References: ALS and AAC ALS and A… · Structural characteristics, diagnostic criteria and relation to the frontotemporal dementias. Acta Neurologica Scandinavica, 168(Supplementum)

2/9/2016 References: ALS and AAC

http://deimos.unl.edu/~dmerriman2/aac/reference/ALS_AAC.html 1/12

References: ALS and AACCompiled by Kathryn N. Yorkston, Pam Mathy, and Michelle Gutman

From a chapter to appear (July of 2000) in the following volume:

Augmentative Communication for Adults with Neurologic and Neuromuscular

Disabilities

Edited by: David R. Beukelman, Kathryn N. Yorkston, and Joe Reichle

Paul H. Brookes Publishing Co., Inc.

Abe, K, Jujimura, H., Yoyooka, K., Sakoda, S., Yorifuji, S., & Yanagihara, T. (1997).Cognitive function in amyotrophic lateral sclerosis. Journal of Neurological Sciences,148(1), 95100.

Aboussousan, L. S., Kahn, S. U., meeker, D. P., Stelmack, K. A, & Misumoto, H.(1997). Effect of noninvasive positivepressure ventilation on survival inamyotrophic lateral sclerosis. Annals of Internal Medicine, 127(6), 450453.

Abrahams, S., Goldstein, L.H., Al Chalabi, A., Pickering, A., Morris, R. G.,Passingham, R. E. Brooks, D. J., Leigh, P. N. (1997). Relation between cognitivedysfunction and pseudobulbar palsy in amyotrophic lateral sclerosis. Journal ofNeurology, Neurosurgery and Psychiatry, 62(5), 464472.

Abrahams, S., Goldstein, L. H. Brooks, D. J., Lloyd, C. M., Frith, C. D., & Leigh, P.N. (1996). Frontal lobe dysfunction in amyotrophic lateral sclerosis: A PET study.Brain, 119, 21052120.

Abrahams, S., Leigh, P. N., Kew, J. J., Goldstein, L. H., Lloyd, C. M., & Brooks, D. J.(1995). A positron emission tomography study of frontal lobe function (verbalfluency) in amyotrophic lateral sclerosis. J Neurol Sci, 129, 4446.

Albert, S. M., Bene, M. D., Murphy, P., & Rowland, L. P. (1998). Prospective studyof palliative care in ALS: Determnants of choice and timing of therapies,

[www.aslsmdalliance.org/newsymp.htm] [1999, March 24].

Albom, M. (1997). Tuesdays with Morrie. New York: Doubleday.

Armon, C., & Moses, D. (1998). Linear estimates of rates of disease progression aspredictors of survival in patients with ALS entering clinical trials. Journal of theNeurological Sciences, 160(Suppl 1), S3741.

Aronson, A. E., Ramig, L. O., Winholtz, W. S., & Silber, S. R. (1992). Rapid voicetremor, or "flutter," in amyotrophic lateral sclerosis. Annals of Otology, Rhinologyand Laryngology, 101(6), 511518.



Ashworth, P. (1980). Care to communicate. London: Whitefriars Press.

Bach, J. (1995). Amyotrophic lateral sclerosis: Predictors for prolongation of life by

noninvasive respiratory aids. Archives of Physical Medicine and Rehabilitation, 76,828832.

Bach, J. R. (1993). Amyotrophic lateral sclerosis. Communication status and

survival with ventilatory support. American Journal of Physical Medicine &Rehabilitation, 72, 343349.

Bach, J. R. (1998). Rehabilitation of the patient with respiratory dysfunction. In J.

DeLisa (Ed.), Rehabilitation Medicine: Principles and Practice. (3rd ed., pp. 13591384). Philadelphia: J.B. Lippincott.

Baumann, A. (1991). ALS decision making under uncertainty: A positive

approach. Axone, 13(2), 4144.

Beisecker, A. E., Cobb, A. K., & Ziegler, D. K. (1988). Patients' perspectives of the

role of care providers in amyotrophic lateral sclerosis. Archives of Neurology, 45,553556.

Bensimon, G., Lacomblez, L., & Meininger, V. (1994a). A controlled trial of riluzole

in amyotrophic lateral sclerosis. New England Journal of Medicine, 330(9), 639637.

Bensimon, G., Lacomblez, L., & Meininger, V. (1994b). A controlled trial of riluzole

in amyotrophic lateral sclerosis. New England Journal of Medicine, 330(9), 585591.

BerghomEngberg, I., & Haljamae, H. (1993). The communication process with

ventilator patients in the ICU as perceived by the nursing staff. Intensive andCritical Care Nursing, 9(1), 4047.

Birbaumer, N. G., N., Hinteberger, T., Iversen, I., Ktchoibey, B., Kubler, A.,

Perelmouter, J., taub, E., & H. F. (1999). A spelling device for the paralyzed.

Nature, 398(6725), 297298.

Borasio, G. D., & Voltz, R. (1997). Palliative care in amyotrophic lateral sclerosis.

Journal of Neurology, 244, S1117.

Borasio, G. D., & Voltz, R. (1998). Discontinuation of mechanical ventilation in

patients with amyotrohic lateral sclerosis. Journal of Neurology, 245(11), 717722.

Braun, S. R. (1987). Respiratory systems in amyotrophic lateral sclerosis.

Neurologic Clinics, 5(1), 931.

Brooks, B. R. (1991). The role of axonal transport in neurodegenerative disease

spread: Metaanalysis of experimental and clinical poliomyelitis compared with

amyotrophic lateral sclerosis. Canadian Journal of Neurological Sciences,18(Supple), 435438.

Brown, w. A., & Mueller, P. S. (1970). Psychological function in individuals with



amyotrophic lateral sclerosis (ALSL). Psychosomatic Medicine, 32(2), 141152.

Brun, A., & Passant, U. (1996). Frontal lobe degeneration of nonAlzheimer type.Structural characteristics, diagnostic criteria and relation to the frontotemporaldementias. Acta Neurologica Scandinavica, 168(Supplementum), 2830.

Caroscio, J. T., Mulvihill, M. N., Sterling, R., & Abrams, B. (1987). Amyotrophiclateral sclerosis: Its natural history. Neurol Clin, 5(1), 18.

Caselli, R. J., Windebank, A. J., Petersen, R. C., Komori, T., Parisi, J. E., Okazaki,H., Kokmen, E., Iverson, R., Dinapoli, r. P., GraffRadford, N.R., & et al. (1993).Rapidly progressive aphasic dementia and Current therapy in neuolo motor neurondisease. Annals of Neurology, 34(3), 417418.

Cavalleri, F., & DeRenzi, E. (1994). Amyotrophic lateral sclerosis with dementia.Acta Neurologica Scandinavica, 89, 391394.

Cazzolli, P. A., & Oppenheimer, E. A. (1996). Home mechanical ventilation foramyotrophic lateral sclerosis: Nasal compared to tracheostomyintermittent positivepressure ventilation. Journal of the Neurological Sciences, 139, 123128.

Cazzolli, P. a., & Oppenheimer, E. Z. (1998). Prediction of respiratory failure inamyotrophic lateral sclerosis: Decision making for mechanical ventilation orpalliative care. Paper presented at the Ninth International Symposium of theInternational Alliance on ALS/MND, Munich.

Clawson, L. L., Rothstein, J. D., & Kuncll, R. W. (1993). Amyotrophic lateralsclerosis. In R. T. Johnson (Ed.), Current therapy in neurologic disease (Vol. 4, pp.286295). Philadelphia: BC Decker.

Cobb, a. K., & Hamera, E. (1986). Illness experience in a chronic disease ALS.Soc Sci Med, 23(7), 641650.

DePaul, R., Abbs, J. H., Caligiuri, M. P., Gracco, V. L., & Brooks, B. R. (1988).Hypoglossal, trigeminal, and facial motoneuron involvement in amyotrophic lateralsclerosis. Neurology, 38, 21283.

DePaul, R., Waclawik, A. J. Abbs, J. H., & Brooks, B. R. (1998). Histopathologicalcharacteristics in lingual muscle tissue in ALS: Perspectives on the natural history ofthe disease. In M. P. Cannito, K. M. Yorkston, & D. R. Beukelman (Eds.),Neuromotor speech disorders: Nature, assessment, and management (pp. 6984).Baltimore, MD: Paul H. Brookes.

Dikeman, K., & Kazanddjian, M. (1995). Communication and swallowingmanagement of tracheostomized and ventilatordependent adults.San Diego:Singular Publishing Co.

Eisen, A., & Calne, D. (1992). Amyotrophic lateral sclerosis, Parkinson's diseaseand Alzheimer's disease: Phylogenetic disorders of the human neocortex sharingmany characteristics, 19(1), 117123.



Eisen, A., & Krieger, C. (1993). Pathogenic mechanism in sporadic amyotrophiclateral sclerosis. Canadian Journal of Neurologic Sciences, 20(4), 286296.

Eisen, A., Schulzer, M., MacNeil, M., Pant, B., & Mak, E. (1993). Duration ofamyotrophic lateral sclerosis is age dependent,16(1), 2732.

Frank, B., Haas, J., Heinze, H. J., Stark, E., & Munte, T. F. (1997). Relation ofneuropsychological and magnetic resonance findings in amyotrophic lateralsclerosis: Evidence for subgroups. Clinical Neurology and Neurosurgery, 99(2), 7986.

Gallagher, J. P. (1989). Pathologic laughter and crying in ALS: A search for theirorigin, 80(2), 114117.

Gallassi, R., Montagna, P., Morreale, A., Lorusso, A., Tinuper, P., Daidone, R., &Lugaresi, E. (1989). Neuropsychological, electroencephalogram and brain computedtomography findings in motor neuron disease. European Neurology, 29, 115120.

Ganzini, L., Johnston, W. S., McFarland, B. H., Tolle, S. W., & Lee, M. A. (1998).Attitudes of patients with amyotrophic lateral sclerosis and their care givers towardassisted suicide. New England Journal of Medicine, 339(14), 967973.

Gelinas, D. F., O'Connor, P., & Miller, R. G. (1998). Quality of life for ventilatordependent ALS patients and their caregivers. Journal of Neurological Sciences,160(Suppl 1), S134136.

Goldblatt, D., & Greenlaw, J. (1989). Starting and stopping the ventilator forpatients with amyotrophic lateral sclerosis. Neurol. Clin., 7(4), 789806.

Gregory, R., Mills, K., & Donaghy, M. (1993). Progressive sensory nervedysfunction in amyotrophic lateral sclerosis: A prospective clinical and neurologicalstudy. Journal of Neurology, 240(5), 309314.

Gries, M. L., & Fernsler, J. (1988). Patient perceptions of the mechanical ventilationexperience: Focus on critical care. Focus on Critical Care, 15, 5259.

Gutmann, M. (1999, November). The communication continuum in ALS: Clientpreferences and communicative competence. Paper presented at the AnnualConvention of the American Speech Language Hearing Association, San Francisco.

Hafsteinsfottier, T. B. (1996). Patient's experience of communication during therespirator treatment period. Intensive and Critical Care Nursing, 12(5), 261271.

Hanayama, K., Ishikawa, Y., & Bach, J. R. (1997). Amyotrophic lateral sclerosis:Successful treatment of mucos plugging by mechanical insufflationexsufflation.American Journal of Physical Medicine and Rehabilitation, 76(4), 338339.

Hewson, D. (1997). Coping with loss of ability: "Good grief" or episodic stressresponse? Social Science and Medicine, 44(8), 11291139.



Hillel, A. D., Yorkston, K. M., & Miller, R. M. (1989). Use of phonation time toestimate vital capacity in amyotrophic lateral sclerosis. Archives of PhysicalMedicine and Rehabilitation, 70, 618620.

Horoupian, D. S., Thal, L., Katzman, R., Terry, R. D., Davies, P., Hirano, A.,DeTeresa, R., Fuld, P. S., Petito, C., & Blass, J. (1984). Dementia and motor neurondisease: Morphometric, biochemical and Golgi studies. Annals of Neurology, 16,305313.

Houpt, J. L., Gould, B. S., & Norris, F. H. (1977). Psychological characteristics ofpatients with amyotrophic lateral sclerosis (ALS). Psychosomatic Medicine, 39, 299303.

Hudson, A. J. (1981). Amyotrophic lateral sclerosis and its association withdementia, parkinsonism and other neurologic disorders: A review. Brain, 104(2),217247.

Hunter, M. D., Robinson, I. C., & Neilson, S. (1993). The functional andpsychological status of patients with amyotrophic lateral sclerosis: Someimplications for rehabilitation. Disability and Rehabilitation, 15(3), 119126.

Hustad, K. (1999). Optimizing communicative effectiveness. In K. M. Yorkston, D.R. Beukelman, E. A. Strand, & K. R. Bell (Eds.), Management of motor speechdisorders in children and adults. (pp. 483542). Austin, TX: ProEd.

Iwasaki, Y., Knoshita, M. Ikeda, K., Takamiya, K., & Shiojima, T. (1990).Neuropsychological dysfunction in amyotrophic lateral sclerosis: Relation to motorabilities. International Journal of Neuroscience, 54(2), 191195.

Jablonski, R. S. (1994). The experience of being mechanically ventilated.Qualitative Health Research, 4(2), 186207.

Jackson, C. E., & Bryan, W. W. (1998). Amyotrophic lateral sclerosis. Semin Neurol,18(1), 2739.

Kapadia, F. (1998). Mechanical ventilation: Simplifying the terminology.Postgraduate Medical Journal, 74(872), 330335.

KaubWittemer, D., von Steinbchel, N., Wasner, M., & Borasio, G. D. (1998). Acrosssectional study of the quality of life of ventilated ALS patients and their

caregivers in Germany. Paper presented at the Ninth International Symposium ofthe International Alliance on ALS/MND, Munich.

Kazandjian, M. S. (1997). Communication and swallowing solutions for theALS/MND Community. San Diego: Singular Publishing Group.

Kennedy, M. R. t., Strand, E. A., & Yorkston, K. M. (1994). Selected acousticchanges in the verbal repairs of dysarthric speakers. Journal of medical SpeechLanguage Pathology, 2(4), 263280.



Kent, J. F., Kent, R. D., Rosebek, J. C., Weismer, G., Martin, R., Sufit, R., & Brooks,

B. R. (1992). Quantitative description of the dysarthria in women with amotrophic

lateral sclerosis. Journal of Speech and Hearing Research, 35, 723733.

Kent, R. D. (1998). Insights from memoirs of illness and disability. ASHA, 40(3),

2225.

Kent, R. D., HyangHee, K., Weismer, G., Kent, J. F., Rosenbek, J. C., Brooks, B.

R., & Workinger, M. (1994). Laryngeal dysfunction in neurological disease:

Amyotrophic lateral sclerosis, Parkinson disease, and stroke. Journal of Medical

SpeechLanguage Pathology, 2(3), 157176.

Kent, R. D., Kent, J. F., Weismer, G., Sufit, R. L., Rosenbek, J. C., Maritn, R. E., &

Brooks, B. R. (1990). Impairment of speech intelligibility in men with amyotrophic

lateral sclerosis. Journal of speech & Hearing Disorder, 55(4), 721728.

Kew, J. J., Goldstein, L. H., Leigh, P. N., Abrahams, S., Cograve, N., Passingham,

R. E., Frackowiak, R. S., 7 Brooks, D. J. (1993a). The relationship between

abnormalities of cognitive function and cerebral activation in amyotrophic lateral

sclerosis: A neuropsychological and positron emission tomography study. Brain,

116, 13991423.

Kew, J. J., Leigh, P. N., Playford, E. D., Passingham, R. E., Goldstein, L. H.,

Frackowiak, R. S., & Brooks, D. J. (1993b). Cortical function in amyotrophic lateral

sclerosis: A positron emission tomography study. Brain, 116(Pt 3), 655680.

Kim, T. (1989). Hope as a mode of coping in amyotrophic lateral sclerosis. Journal

of Neuroscience Nursing, 21(6), 342347.

Klasner, E. R., Yorkston, K. M., & Strand, E. A. (1999). Patterns of perceptual

features in speakers with ALS: Prominence and intelligibility considerations. Journal

of Medical SpeechLanguage Pathology, 72(2), 117126.

Kubler, A., Kotchoubey, B., Hinterberger, T., Ghanayim, N., Perelmouter, J.,

Schauer, M., Fritsch, C., Taub, E., & Birbaumer, N. (1999). The thought translation

device: A neurophysiological approach to communication in total paralysis.

Experimental Brain Research, 124(2), 223232.

Lange, S. P. (1978). Hope. In C. E. Carlson & B. Blackwell (Eds.), Behavioral

concepts and nursing intervention. (pp. 287299). Philadelphia: Lippincott.

Leach, C. F., & Delfiner, J. S. (1989). Approaches to loss and bereavement in

amyotrophic lateral sclerosis. In S. C. Klagsbrun (Ed.), Preventive psychiatry: Early

intervention and situational crisis management.(pp. 201211). Philadelphia: Charles

Press.

Lindgren, C. (1996). Chronic sorrow in persons with Parkinson's and their spouses.

Scholarly Inquiry for Nursing Practice, 10(4), 351370.

Livneh, H., & Antonak, R. F. (1997). Psychosocial adaptation to chronic illness and



disability.Gaithersburg, MD: Aspen Publication.

Louvel, E., Hugon, J., & Doble, A. (1997). Therapeutic advances in amyotrophiclateral sclerosis. Trends Pharmacol Sci, 18(6), 196203.

Ludolph, A. C., Langen, K. J., Regard, M., Herzog, H. Kemper, B., Kuwert, T.,Bottger, I. G., & Feinendegen, L. (1992). Frontal lobe function in amyotrophiclateral sclerosis: A neuropsychologic and positron emission tomography study. ActaNeurologica scandivavica, 85(2), 8189.

Malcolm, A. (1987). This far and no more. New York: Times Books.

Manzano, J. L., Lubillo, S., Henriquez, D., Martin, J. C., Perez, M. C., & Wilson, D. J.(1993). Verbal communication of ventilatordependent patients. Crit. Care Med.,21(4), 512517.

Massman, P. J. Kreiter, K. T., Jankovic, J., & Doody, R. S. (1996a).Neuropsychological functioning in corticalbasal ganglionic degeneration:differentiation from Alzheimer's disease. Neurology, 46, 720726.

Massman, P. J., Sims, J., Cook, N., Haverkamp, L. J., Appel, V., & Appel, S. H.(1996b). Prevalence and correlates of neuropsychological deficits in amyotrophiclateral sclerosis. Journal of Neurology, Neurosurgery and Psychiatry, 61, 450455.

Mathy, P. (1996). Use of electronic communication by adult AAC users. Paperpresented at the 7th Biennial Conference of the International Society ofAugmentative and Alternative Communication, Vancouver, Canada.

McDonald, E. R., Hillel, A., & Wiedenfeld, S. A. (1996). Evaluation of thepsychological status of ventilatorysupported patients with ALS/MND. PalliativeMedicine, 10(1), 3541.

McDonald, E. R., Wedenfeld, S. A., Hillel, A., Carpenter, C. L., & Walter, R. A.(1994). Survival in amyotrophic lateral sclerosis: The role of psychological factors.Archives of Neurology, 51(1), 1723.

Menzel, L. (1994). Need for communicationrelated research in mechanicallyventilated patients. American Journal of Critical Care, 3(3), 165167.

Menzel, L. K. (1997). A comparison of patients' communicationrelated responsesduring intubation and after extubation. Heart Lung, 26(5), 363371.

Menzel, L. K. (1998). Factors related to the emotional responses of intubatedpatients to being unable to speak. Heart and Lung, 27(4), 245252.

Miller, R. G. Rosenberg, J. A., Gelinas, D. F., Mitsumoto, H., Newman, D., Dufit, R.,Borasio, G. D., Bradley, w. G., Bromberg, M. B., Brooks, B. R., Kasarskis, E. J.,Munsat, T. L., Oppenheimer, E. A., & the ALS Practice Parameters Task Force.(1999). Practice parameter: The care of the patient with amyotrophic lateralsclerosis (an evidencebased review): Report of the Quality Standards



Subcommittee of the American Academy of Neurology. Neurology, 52, 13111323.

Mitsumoto, H. (1997). Riluzole What is its impact in our treatment andunderstanding of amyotrophic lateral sclerosis? Annals of Pharmacotherapy, 31(6),779781.

Montgonery, G. K. & Erickson, L. M. (1987). Neuropsychological perspectives inamyotrophic lateral sclerosis. Neurologic Clinics, 5(1), 6181.

Moore, M. K. (1993). Dying at home: A way of maintaining control for the personwith ALS/MND. Palliative Medicine, 7(4 Suppl), 6568.

Moss, A. H. Casey, P., Stocking, C. B., Roos, R. P., Brooks, B. R., & Siegler, M.(1993). Home ventilation for amyotrophic lateral sclerosis patients: Outcomes,costs, and patent, family and physician attitudes. Neurology, 43(2), 438443.

Moss, A. H., Oppenheimer, E. A., Casey, P., Cazzolii, P. A., Roos, R. P., Stocking, C.B., & Siegler, M. (1996). Patients with amyotrophic lateral sclerosis receiving longterm mechanical ventilation: Advance care planning and outcomes. Chest, 110(1),249255.

Neary, D., Snowden, J. S., Gustafson, L., Passant, U., Stuss, D., Black, S.,Freedman, M., Kertesz, A., Robert, P. H., Albert, M., Boone, K., Miller, B. L.,Cummings, J., & Benson, D. F. (1998). Frontotemporal lobar degeneration: Aconsensus of clinical diagnostic criteria. Neurology, 51(6), 15461554.

Neary, D., Snowden, J. S., Mann, D. M. A., Northern, B., Goulding, P. J., &MacDermott, N. (1990). Frontal lobe dementia and motor neuron disease. Journalof Neurology, Neurosurgery, and Psychiatry, 53, 2332.

Oppenheimer, E. A. (1997). Living with ALS: Adapting to Breathing Changes.Woodland Hills, CA: The ALS Association.

Peavy, G. M. Herzog, A. G., Rubin, N. P., & Mesulam, M. M. (1992).Neuropsychological aspects of dementia of motor neuron disease: A report of twocases. Neurology, 42(5), 10041008.

Peters, D. J. (1996). Disablement observed, addressed, and experienced:Integrating subjective experience into disablement models. Disability andRehabilitation, 18, 593603.

Pinto, A. C., Evangelista, T., Carvalho, M., Alves, M. A., & Sales Luis, M. L. (1995).Respiratory assistance with a noninvasive ventilator (BiPAP) in MND/ALS patients:Survival rates in a controlled trial. Journal of the Neurological Sciences, 129, 1926.

Poloni, M., Capitani, E., Mazzini, L., & Ceroni, M. (1986). Neuropsychologicalmeasures in amyotrophic lateral sclerosis and their relationship with CT scanassessed cerebral atrophy. Acta Neurol Scand, 74(4), 257260.

Pradas, J., Finison, L., Andres, P. L., Thornell, B., Hollander, D., & Munsat, T. L.



(1993). The natural history of amyotrophic lateral sclerosis and the use of naturalhistory control in therapeutic trails, 43(4), 751755.

Putnam, A. H. B., & Hixon, T. (1984). Respiratory kinematics in speakers with

motor neuron disease. In M. R. McNeil, J. C. Rosenbek, & A. E. Aronson (Eds.), Thedysarthrias: Physiology, acoustics, perception, management (pp. 3768). SanDiego: CollegeHill Press.

Rabin, R. (1985). Six parts love: One family's battle with Lou Gerig's disease. NewYork: Charles Scribner's Sons.

Ringel, S. P., Murphy, J. R., Alderson, M. K., Bryan, W., England, J. D., Miller, R.

G., Petajan, J. H., Smith, S. A., Roelofs, R. I., Ziter, F., & others, a. (1993). Thenatural history of amyotrophic lateral sclerosis, 43(7), 13161322.

Riviere, M., Meininger, V., Zeisser, P., & Munsat, T. (1998). An analysis of Extended

Survival in patients with Amyotrophic Lateral Sclerosis Treated with Riluzole.

Archives of Neurology, 55,526528.

Rosen, A. (1978). Amyotrophic lateral sclerosis: Clinical features and prognosis, 35,638642.

Rothstein, J. D., Martin, L., & Kuncl, R. W. (1992). Decreased glutamate transport

by the brain and spinal cord in amyotrophic lateral sclerosis, 326(22), 14641493.

Rowland, L. P. (1998). Diagnosis of amyotrophic lateral sclerosis. Journal of theNeurologic Sciences, 160(Suppl 1), S624.

Sasaki, S., Tsutsmui, Y., Yamane, K., Sakuma, H., & Mruyama, S. (1992). Sporadic

amyotrophic lateral sclerosis with extensive neurological involvement. ActaNeuropathologica, 84(2), 211215.

Schiffman, P. L., & Belsh, J. M. (1993). Pulmonary function at diagnosis of

amyotrophic lateral sclerosis: Rate of deterioration. Chest, 103(2), 508513.

Schwartz, M. (1996). Letting go: Morrie's reflections on living while dying. NewYork: Dell Publishing.

Sherman, M. S., & Paz, H. L. (1994). Review of respiratory care of the patient with

amyotrophic lateral sclerosis. Respiration, 61(2), 6167.

Silverstein, M. D., Stocking, C. B., Antel, J. P., Beckwith, J., Roos, R. P., & Siegler,

M. (1991). Amyotrophic lateral sclerosis and lifesustaining therapy: Patients'

desires for information, participation in decision making, and lifesustaining

therapy. Mayo Clinic Proceedings, 66, 906913.

Stovsky, B., Rudy, E., & Dragonnette, P. (1988). Comparison of two types of

communication methods used after cardiac surgery with patients with endotracheal

tubes. Heart Lung, 17, 281293.



Strand, E. A., Buder, E. H., Yorkston, K. M., & Ramig, L. O. (1994). Differentialphonatory characteristics of four women with amyotrophic lateral sclerosis. Journalof Voice, 8(4), 327339.

Strand, E. A., Miller, R. M., Yorkston, K. M., & Hillel, A. D. (1996). Management oforalpharyngeal dysphagia symptoms in amyotrophic lateral sclerosis. Dysphagia,11, 129139.

Strong, M. J., Grace, G. M., Orange, J. B., & Leeper, H. A. (1996). Cognition,language and speech in ALS: A review. Journal of Clinical and ExperimentalNeuropsychology, 18(2), 291303.

Takahashi, H., Oyanagi, K., Ikuta, F., Tanaka, M., Yuasa, T., & Miyatake, T. (1993).Widespread multiple system degeneration in a patient with familial amyotrophiclateral sclerosis. Journal of the Neurological Sciences, 120(1), 1521.

Talbot, P. R., Goulding, P. J., Lloyd, J. J., Snowden, J. S., Neary, D., & Tests, H. J.(1995). Interrelation between classic motor neuron disease and frontotemporaldementia: Neuropsychological and single photon emission computed tomographystudy. Journal of Neurology, Neurosurgery, and Psychiatry, 58, 541547.

Tanaka, M., Kondo, S., Irai, S., Sun, X., Yamagishi, T., & Okamoto, K. (1993).Cerebral block blow and oxygen metabolism in progressive dementia associatedwith amyotrophic lateral sclerosis. Journal of the Neurological Sciences, 120(1), 2228.

Tedman, B. M., Young, C. A., & Williams, I. R. (1997). Assessment of depression inpatients with motor neuron disease and other neurologically disabling illness.Journal of Neurologic Science, 152(Suppl 1), S7579.

Viner, E. D. (1985). Life at the other end of the endotracheal tube: A physician'spersonal view of critical illness. Prog. Crit. Care Med, 2,313.

Weismer, G., Martin, R., Kent, R. D., & Kent, J. F. (1992). Formant trajectorycharacteristics of males with amyotrophic lateral sclerosis. Journal of the AcousticsSociety of America, 91(2), 10581098.

Wiener, C. L., & Dodd, M. J. (1993). Coping amid uncertainty: An illness trajectoryperspective. Scholarly Inquiry for Nursing Practice, 7(1), 1731.

Wilkstrom, J., Paetau, A., Palo, J., & al, e. (1983). Classic amyotrophic lateralsclerosis with dementia. Archives of Neurology, 39,681683.

Wilkinson, C., Yorkston, K. M., strand, E. A., & Rogers, M. (1995). Features ofspontaneous language in speakers with amyotrophic lateral sclerosis anddysarthria. American Journal of SpeechLanguage Pathology, 4(4), 139142.

Winterhooler, M., Erbguth, F., Hecht, M., & Neunderfer, B. (1998). Home ventilationin patients with amyotrophic lateral sclerosis: A comparison of invasive and non

invasive ventilation techniques. Paper presented at the Ninth International



Symposium of the International Alliance on ALS/MND, Munich.

World Federation of Neurology Research Group on Neuromuscular Disease. (1994).

El Escorial World Federation of Neurology criteria for the diagnosis of amyotrophic

lateral sclerosis. Journal of the Neurological Sciences, 124(Suppl.), 96107.

Yorkston, K. M., Miller, R. M., & Strand, E. A. (1995). Management of Speech and

Swallowing Disorders in Degenerative Disease. Tucson, AZ: Communication Skill

Builders.

Yorkston, K. M., Strand, E., Miller, R., Hillel, A., & Smith, K. (1993). Speech

deterioration in amyotrophic lateral sclerosis: Implications for the timing of

intervention. Journal of Medical Speech/Language Pathology, 1(1), 3546.

Yorkston, K. M., Strand, E. A., & Hume, J. (1998). The relationship between motor

function and speech function in amyotrophic lateral sclerosis. In M. Cannito, K. M.

Yorkston, & D. R. Beukelman (Eds.), Neuromotor speech disorders: Nature,

assessment, and management.(pp. 8598). Baltimore: Paul H. Brookes.

Yorkston, K. M., Strand, E. A., & Kennedy, M. R. T. (1996a). Comprehensibility of

dysarthric speech: Implications for assessment and treatment planning. American

Journal of SpeechLanguage Pathology, 5(1), 5566.

Yorkston, K. M., Strand, E. A., & Miller, R. M. (1996b). Progression of respiratory

symptoms in amyotrophic lateral sclerosis: Implications for speech function. In D.

A. Robin, K. M. Yorkston, & D. R. Beukelman (Eds.), Disorders of motor speech:

Assessment, treatment and clinical characterization. (pp. 193204). Baltimore: Paul

H. Brookes.

Young, J. M., Marshall, C. L., & Anderson, E. J. (1994). Amyotrophic lateral

sclerosis patients' perspectives on use of mechanical ventilation. Health Soc Work,

19(4), 253260.

Young, J. M., & McNicoll, P. (1998). Against all odds: Positive life experiences of

people with advanced amyotrophic lateral sclerosis. Health and Social Work, 23(1),

3543.



Documents

References: ALS and AAC ALS and A… · Structural characteristics, diagnostic criteria and relation to the frontotemporal dementias. Acta Neurologica Scandinavica, 168(Supplementum)