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Beijing IMIA Board and General Assembly Meetings October 22-23, 2012 GA Agenda Item: 10 Board Agenda Item: 11 REPORT OF THE VICE PRESIDENT FOR WORKING GROUPS AND SPECIAL INTEREST GROUPS Hyeoun-Ae Park Part III: Work Group and Special Interest Group Reports The following are the reports of each WG/SIG. Nineteen WG/SIGs submitted updated reports and five WG/SIGs did not submit any updated reports this year despite several requests. I have indicated whether each WG/SIG submitted updated report or not as of September 2012. Special Interest Group Nursing Informatics (Updated September 2012) Website: http://www.imiani.org Chair (2009 - 2012) Heimar Marin Professor Federal University of Sao Paulo Rua Napoleao de Barros 754 Sao Paulo Cep:04024.002 Brazil Tel: +55 11 50821036 Fax: +55 11 573 3371 E-mail: [email protected] or [email protected] Vice Chairs (2009 - 2012) William TF Goossen – Working Groups CEO & Reasearcher & Consultant Health and Nursing Informatics Result 4 Care Nethelands De Stinse 15 VM Amersfoort NL-3823 The Netherlands email: [email protected] Tel: +31 (0)654614458 Fax +31 (0)33 2570169 Hyeoun-Ae Park – Membership Professor, College of Nursing Seoul National University 28 Yongon-dong Chongno-gu Seoul, 110-799, Korea (South) Tel: +82-2-740-8827 Fax: +82-2-765-4103

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Page 1: REPORT OF THE VICE PRESIDENT FOR WORKING GROUPS AND ... · REPORT OF THE VICE PRESIDENT FOR WORKING GROUPS AND SPECIAL INTEREST GROUPS Hyeoun-Ae Park Part III: Work Group and Special

Beijing IMIA Board and General Assembly MeetingsOctober 22-23, 2012

GA Agenda Item: 10 Board Agenda Item: 11

REPORT OF THE VICE PRESIDENT FOR WORKING GROUPSAND SPECIAL INTEREST GROUPSHyeoun-Ae Park

Part III: Work Group and Special Interest Group Reports

The following are the reports of each WG/SIG. Nineteen WG/SIGs submitted updated reports and five WG/SIGs did not submit any updated reports this year despite several requests. I have indicated whether each WG/SIG submitted updated report or not as of September 2012.

Special Interest Group Nursing Informatics (Updated September 2012)

Website: http://www.imiani.org

Chair (2009 - 2012)Heimar MarinProfessorFederal University of Sao Paulo Rua Napoleao de Barros 754Sao Paulo Cep:04024.002 BrazilTel: +55 11 50821036Fax: +55 11 573 3371E-mail: [email protected] or [email protected]

Vice Chairs (2009 - 2012)William TF Goossen – Working GroupsCEO & Reasearcher & Consultant Health and Nursing InformaticsResult 4 Care Nethelands De Stinse 15VM Amersfoort NL-3823 The Netherlandsemail: [email protected]: +31 (0)654614458Fax +31 (0)33 2570169

Hyeoun-Ae Park – MembershipProfessor, College of NursingSeoul National University28 Yongon-dong Chongno-guSeoul, 110-799, Korea (South)Tel: +82-2-740-8827Fax: +82-2-765-4103

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E-mail: [email protected]

Patrick Weber – CommunicationDirectorNice Computing Ch de Maillefer 37Le Mont-sur-Lausanne CH-1052 SwitzerlandTel: +41 21 641 04 20Fax: +41 21 641 04 29Mobile +41 79 212 88 85Email: [email protected]: http://www.nicecomputing.ch

Lucy Westbrooke – Administration and FinanceInformation Management ConsultantInformation Management & Technology ServicesAuckland District Health Board, Building 16 Greenlane Clinical CenterGreenlane Rd West EpsomAuckland 1051 New ZealandPhone (64 9) 307 4949 ext 3467 or 25827Mobile: 021 938 075Fax: (64 9) 631 0794Email: [email protected]

Objectives

Explore the scope of Nursing Informatics and its implications for health policy and information handling activities associated with evidence based nursing practice, nursing management, nursing research, nursing education, standards and patient (or client) decision making and the various relationships with other health informatics entities.

Identify priorities or gaps and make recommendations for future developments in nursing informatics.

Support the development of nursing informatics in member countries and promote nursing informatics worldwide.

Promote linkages and collaborative activities with national and international nursing and health informatics groups and nursing and health care organisations globally.

Provide, promote and support informatics meetings, conferences, and electronic communication forums to enable opportunities for the sharing of ideas, developments and knowledge.

Participate in IMIA working groups and special interest groups to present a nursing perspective.

Develop recommendations, guidelines, tools and courses relating to nursing informatics.

Encourage the publication and dissemination of research and development materials in the field of nursing informatics

Support and work with patients, families, communities and societies to adopt and manage informatics approaches to healthcare.

Recent Activities

Over the three years of the current board direction, IMIANI continued to pursue the development, implementation and evaluation of Nursing Informatics, providing leadership word wide, supporting nursing professionals, organizations, communities and consumers on the adoption of information and communication technology to achieve better health conditions.

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The main focus has being to foster collaboration among nurses and allied professionals who are interested in nursing informatics.

Since 2009 the Board members are making efforts to participate on several congress and conferences to facilitate the integration of nursing informatics on nursing activities, sharing ideas, experiences about practice, education and research.

In 2010 IMIANI had a significant participation on the MEDINFO hold in Africa. Panels, papers, meetings and conferences were hold with the participation of IMIANI members. At this conference we also had our general assembly where was evident the activity of working groups needed more energy. A discussion was also was also taken to decide the cycle of IMIANI congress as consequence of Medinfo cycle.

In the role of educators, IMIANI participated at the Summer Course in Ljubljana, Slovenia organized by Helena Blazun and Peter Kokol. Also, in the same year, we participate in the organization of the Specialization in Nursing Information Systems in Porto, Portugal.

In 2011 IMIANI General Assembly was hold in the ACENDIO Meeting as decided on the 2010 GA. However, just few members were able to participate. At this very productivity ACENDIO Conference, IMIANI Board participated in a panel with ACENDIO Board Members where was agreed that the two groups should and would work closely to promote more integration and collaboration in projects, meeting and dissemination of nursing terminology and technology.

In 2011, IMIALAC start a new discussion to promote a Nursing Informatics Group for Latin America nurses. The IMIANI Board supported but required that this group also should be integrated with IMIANI. The main purpose was to generate a group where nurses could share information using the Spanish Language. This group has IMIANI country representatives (Hugo Leonzio, Erika Caballero). Visit the website: www.ni-imia-lac.org

In 2011 and 2012 IMIANI supported congresses and conferences hosted in different countries such as the HIMSS Asia meeting, the International Symposium in Nursing Informatics in Brazil (Patti Abbott invited as speaker)and MIE in Oslo.

In addition, a short course in health informatics was also delivered in Maputo (November 2011), Mozambique, organized with the University Eduardo Mondlane involving nurses, physicians and computer science professionals. The course was financed by a research project from Fogarty and NIH, USA.

In 2012, a master degree in Nursing Informatics implemented in the Nursing School at Porto (Portugal) was also designed and discussed with IMIANI Board Members (Heimar and William).

In 2012 the IMIANI Board considered important to update the Bylaws. Chair and vice-chairs worked on the revision considering the IMIA Policies and Statutes. A new version of IMIANI ByLaws is submitted by approval in the GA 2012 in Montreal Meeting.

In 2012, also under IMIANI leadership, in conjunction with the Brazilian Health Informatics Society was organized an International Symposium in Nursing Informatics with international invitees and the representation of the IMIANI Nursing Informatics Group

IMIANI continued to participate on the reviewing of the ISO 18104 Nursing Reference terminology. Currently, to reflect the feedback of the international community the name is Health Informatics: categorial structures for representation of nursing diagnoses and nursing actions in terminological systems. Our big thanks to Anne Casey, Hyeoun-Ae Park and Kathryn Hannah for their contributions on this activity.

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From the perspective of better informing our member we are trying to change our IMIANI website to a more dynamic one. Contact was taken with IMIA in order to have the same shape and environment. P. Murray is in favor. Next step is to give a full description of what should be on our website to IMIA web designer in order to prepare a financial proposal to IMIANI. News and reports were always put on our website. The member mailing list was maintained and is up to date.

The financial situation of IMIA-NI is unchanged except for the payments for the website in the past year. IMIA holds the funds on behalf of IMIA-NI and they will be reported as part of the IMIA financial statements. Some work as been undertaken to produce some standardized documents and templates. We now have a country report template that has been based on the objectives of IMIA-NI. Country representatives are encouraged to use this when producing their annual report. There are now also a set of documents and covering letter that can be distributed to new members giving them information on the Board, IMIA-NI Bylaws, Strategy document and the Objectives. There are plans for extending some of this standardization work to review other aspects such as conference reporting.

The currently Working Groups within IMIANI are: NI Consumer/Client Health Informatics, NI Evidence Based Practice, NI Education, NI Standards. IMIA-NI national members (26) undertake a wide range of activities that support nursing informatics in member countries. Reports in full are available on the Web Site from National Members and WG.

In January 2012, Robyn Carr in her role as the Chair of the Nominated Committee start the nomination process of the new IMIANI Board that will be submitted for approval at the General Assembly in Montreal.

Future Activities

NI2012 (the 11th International Congress on Nursing Informatics) will be held 23-27 June 2012 in Montreal, Canada. Theme is “Advancing Global Health through Informatics”.

NI2014 (the 12th International Congress on Nursing Informatics) will be held 21-25 June 2014 in Taipei, Taiwan.

Biomedical Pattern Recognition (WG7) (Updated May 2012)

Website of the WG: http://www.imia-medinfo.org/new2/node/136

Chair (2010-2013)Prof. Luca Mainardi, Position: ProfessorDepartment: Department of BioingeneeringOrganization: Politecnico di MilanoAddress: Piazza Leonardo da Vinci 32, 20133 MilanoTel: + 39-02-2399-3347Fax: + 39-03-2399-3360E-mail: [email protected]

Objectives

To promote applications in medicine and biology focusing on methods of pattern recognition and interpretation.

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Recent Activities

August 2011. A Joint Panel between EFMI WG MIP (Medical Image Processing) and IMIA WG7 titled: "Patient Empowerment and High-Tech Imaging and Biosignal-Based Procedures: Contradiction or Challenge?" will be held at the MIE 2011. (A. Horsch & L. Mainardi proponents). The panel aimed at exploring the view of patients and their empowerment in healthcare settings involving high-tech imaging and biosignal-based procedures. The panel addresses colleagues working in the fields of imaging and biosignals with interest in patient empowerment.

Current Activities

July 2012. The 7th Biomedical Signal and Interpretation (BSI2012) Workshop will be held in Como, Italy next July 2-4th 2012. The workshop is an initiative by the IMIA, IFMBE and IEEE-EMBS. IMIA WG7 has been deeply involved in the organization of the event: the WG7 chair is the Programme Chair of BSI2102 and a few members of the WG7 were involved in the Scientific Committee. The workshop aims at exploring the fields of biosignal interpretation including model based signal analysis, data interpretation and integration, medical decision making extending the existing signal processing methods and technologies for the effective utilization of biosignals in a clinical environment as well as for a deeper understanding of biological functions from the whole organism, system, to cellular, protein and gene scales. This Workshop was held basically every three years with a site rotation among Europe, Asia and America. The first one was held in Denmark in 1993 and the last one was in New Haven CT, USA, in 2009.

July 2012. Two satellite symposia will be organized in relation to BSI2012. The first one is on “Signal Processing in Dialysis Treatment” and the second on “PSYCHE: a Personalised monitoring SYstems for Care in mental HEalth”. These symposia will addresses current challenges of signal processing and biomedical pattern recognition methods in nowadays clinical practice.

Next year activities

2013. The WG7 are planning to have a special issue (to be published on Methods of Information in Medicine) based on the selection of top 20-25 papers among those presented at the 7th International Workshop on Biosignal Interpretation (BSI) next July. In line with the mission of the Workshop and the WG7, the selected papers deal with the most recent advances in medical informatics and biosignal processing methods that can be applied to biological and physiological systems so that interpretation of the results can lead to better detection, diagnosis and treatment of various diseases.

Meeting of the WG7 to be organized during MEDINFO 2013 in Copenhagen.

Consumer Health Informatics (Updated May 2012)

Chair (2011-2014)Thomas WetterProf. Dr. Thomas WetterMedizinische InformatikUniversitat HeidelbergIm Neuenheimer Feld 305D-69120 HeidelbergTel: +49 6221 56-7490Fax: +49 6221 56-4997

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E-mail: [email protected] JimisonE-mail: [email protected]

Scope

The Consumer Health Informatics Working Group (CHIWG) became an official IMIA Working Group in 2000. The CHIWG is concerned with electronic information related to health care available to the public (e.g. Internet, wireless, standalone electronic media). For its purposes, it defines Consumer Health Informatics as “the use of modern computers and telecommunications to support consumers in obtaining information, analyzing unique health care needs and helping them make decisions about their own health” (U.S. General Accounting Office, 1996, p.1.), in which the consumer interacts with the applications with or without the presence of health care professionals. The group's interests focus on, but are not limited to, world wide web sites that offer advice about healthy living, research findings, and recommendations on specific disease conditions, descriptions of products, medications, and self-care health programs available to the public. Issues of concern may be the evaluation of the quality of information, education of the public, ethical issues related to the electronic information, and the effect on a person's health care and relationship with health care providers.

Objectives for the next 3 years

The WG hopes to work with the IMIA leadership on strengthening the role of the Working Groups within IMIA. We look forward to greater participation in key IMIA activities, increasing the visibility and impact of CHI WGs in the world. Provide greater opportunities to share CHI related information from relevant and accessible sources such as the International Journal of Medical Informatics (IJMIA), and the Journal of Medical Internet Research (JMIR). Emphasis will be given to high-quality studies and randomized trials published in quality journals. The group plans to hold a business meeting at Medinfo, and plans a tutorial The group will continue to liaise with counterparts in other countries, such as the AMIA WG CHI, EFMI, IMIA's NI-SIG(WG on CHI). A priority will be to expand our contacts with CHI interest groups in Asia and Africa.

Recent Activities

Scientific representation: The National Library of Medicine has created the MeSH keyword “Consumer health information”. This comes close to what we had applied for by suggesting “Consumer health informatics”. The new keyword retrieves various articles about patient knowledge, literacy, and education. But as numerous articles about design of patient safe medical GUIs, architectures of home monitoring and alerting systems, patient or professional run self help or advice giving services, opportunities to reduce healthcare disparities and many more are not covered. Therefore, a new approach to the NLM should be made to add another keyword, maybe not Consumer health informatics but something that addresses aspects of the field that differentiate well against Consumer health information.

Membership: Attempts were made to raise interest in countries where consumer health informatics does not yet have any official representation. This turned out harder than expected because the field has so many facets. But at least in Taiwan, Uganda, Peru and Chile there are now volunteers who will assist to build up respective structures.

Future Activities

Activity to promote broader representation in 3rd world countries where the effort - effect ratio

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can be enormous. Concrete actions might then emerge upon request of newly engaging countries.

Activity to promote getting another MeSH keyword, to allowed focused search for all those we try to get on board.

Critical Care Informatics (Updated May 2012)

Website of the WG: Not launched yet

Chair (2010 – 2013) Name: Reza ShahporiCredentials: M.Sc. Position: Clinical Informatics LeadDepartment: Critical Care MedicineOrganization: Alberta Health ServicesAddress: 1418 29th Street N.W., Calgary, Alberta, CanadaTel: 1-403-650-3428Fax: E-mail: [email protected]

Objectives

To bring the critical care community and the medical informatics community together as many subjects such as quality registries, benchmarking, prognostic models, terminological systems, clinical decision support and clinical information systems are of interest for both communities.

Recent Activities

• May 2011, Copenhagen, Denmark; Invitation for a visit and consultation to DAINTEL, An emerging revolutionary Critical Care information system and solution developer with focus on the Scandinavia. http://www.daintel.com/

• May 2011, Guadalajara, Mexico; Offering of a workshop titled ‘Information Manage-ment Model for Clinical Departments’ at the Latin-American Conference on Health In-formatics (InfoLac 2011) http://www.infolac2011.org/infolac2.html

• August 2011, Oslo, Norway; Offering of a workshop titled ‘Generating a research and education agenda for Critical Care Informatics‘ at the International Conference of the European Federation for Medical Informatics (MIE 2011) http://www.mie2011.org/.

• Feb 2012, Marseille, France; Invitation for assessment and preparing a proposal for development of a Clinical Informatics Committee for the French Society of Critical Care, Société Française d’Anesthésie et de Réanimation (SFAR). http://www.sfar.org/

Future Activities

• Continued work with SFAR to develop and launch an informatics maturity environment-al scan survey in the French Critical Care

• Proposal for a workshop in and with collaboration with Australia & New Zealand Intens-ive Care Society (ANZICS)

• Selection of a new Vice-Chair

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Dental Informatics (Updated May 2010)

Website: http://www.ecs.gannon.edu/IMIA

Chair (2009-2012) Miguel Humberto Torres-Urquidy, DDS MSPost-doctoral Associate, Ctr. for Dental InformaticsUniversity of PittsburghUSATel: +1 412 648-8611E-mail: [email protected]

Objectives

To bring the small, but rapidly growing community of dental informaticians around the world into closer contact.

Recent Activities

The Dental Informatics Working Group was reactivated in 2009. We are in the process of possibly moving our current hosting to a new website that will offer more functionality to our members, but we are not ready to announce it since we need to check several technical details.

Health and Medical Informatics Education (Updated May 2012)

Web sites: http://www.imia.org/wg1 http://imiawged.pbwiki.org/

Chair (2009-2012)Professor William Hersh, MD Department of Medical Informatics and Clinical EpidemiologyOregon Health and Science University3181 SW Sam Jackson Park RoadPortland, Oregon, 97239USATel: +1-503 494-4502Fax: +1-503 494-4551E-mail: [email protected]

Vice-Chair (2009-2012)Paula Otero, MD Hospital ItalianoCoordinadora del Area productos Medicos HIBADepartamento de Informacion Hospitalaria HIBAGascón 450(1181) Buenos Aires, ArgentinaPhone: +54-11-42939365Fax: +54-11-42939365E-mail: [email protected]

Objectives

• To disseminate and exchange information on Health and Medical Informatics (HMI) programs and courses

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• To promote the IMIA HMI database of programs and courses on HMI education• To produce international recommendations on HMI programs and courses• To support HMI courses and exchange of students and teachers• To advance the knowledge of:

How informatics is taught in the education of health care professionals around the world

How in particular health and medical informatics is taught to students of computer science/informatics

How it is taught within dedicated curricula in health and medical informatics

Recent Activities

For the 2011 edition of the IMIA Yearbook of Medical Informatics that has the theme “Towards Health Informatics 3.0”, the WG was invited to contribute. Dr Otero and Dr. Hersh wrote an article entitled “Education in Biomedical and Health Informatics in the Web 3.0 era: Standards for Data, Curricula, and Activities” which describe a new scenario in education and training known as “Education 3.0” that can help in the promotion of learning in health informatics in a collaborative way. Because the Web 3.0 can propose new approaches to building the Biomedical and Health Informatics workforce so there is a need to build tools as knowledge infrastructure to leverage it. The usefulness of standards in the content and competencies of training programs in Biomedical and Health Informatics needs more experience and research so as to promote the interoperability and sharing of resources in this growing discipline

Future Activity

During MEDINFO 2013 at Copenhagen IMIA WG on Education Business Meeting will be held.

Informatics in Genomic Medicine (Updated May 2012)

Chair (2010-2013)Julian DoradoEmail: [email protected]

Vice-Chair (2010-2013) Lewis FreyEmail: [email protected]

Objectives

Opportunities arise within the discipline of biomedical informatics to facilitate the advancement of genomic and individualised medicine. To effectively link the genotype and phenotype a bi-directional flow of data, tools and methods between two traditionally separate areas of informatics (clinical informatics and bioinformatics) must be ensured.

These interests include, but are not limited to: • Integrating molecular and genomic information (genetic testing, mutation analysis,

gene and protein expression) into health information systems and tools (electronic health records, computerised protocols and clinical guidelines, clinical trials in the context of pharmacogenetics, molecular imaging).

• Generating structured, standardised, anonymous clinical data sets (phenomic data) to be used in the context of post-genomic research (for annotation and validation of experimental results).

• Facilitating new approaches for the integration and analysis of different levels of

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information (molecular, cellular, tissue, organ, patient, population) about diseases (grid, biobanks, disease modelling and simulation, mapping of clinical and genetic databases and ontologies).

The IGM WG aims to: • Provide a forum to enhance collaboration, share experiences, and promote research in

this field. • Increase communication with other working groups at IMIA, AMIA and other

organizations relevant to IGM including groups with an emphasis on genomic medicine and informatics from the biomedical community, computing research and bioinformatics as relevant.

• Establish itself as a scientific reference on issues related to information technology projects in genomic medicine.

Recent Activities

• In this year we develop the connection in Facebook and Linked-in of the WG and now we have pages in both social networks.

• Additionally, the WG collaborated with the professor Arie Hasman (University of Maastricht, Netherlands) to organize the “Interfacing bio- and medical informatics” workshop inside the 2012 International Federation for Information Processing (IFIP) World Computer Congress WCC2012 in Amsterdam.

• Finally, we send a contribution to the IMIA Yearbook titled “Data Integration in genomic medicine: trends and applications” as a review of the knowledge related to the WG.

Future Activities

• For the next year, we’ll work to promote the area of the WG in different networks and collaborating in different conferences and publications.

Health Informatics for Development (Updated May 2012)

Website: hi4dev.iosnasean.net

Chair (2011-2014)Daniel Luna, MD, MSc, PhD cand.Position: ChairDepartment: Health InformaticsOrganization: Hospital Italiano de Buenos AiresAddress : Gascón 450 - Ciudad Autónoma de Buenos AiresTel: +54 11 49590507Fax: +54 11 49590507 E-mail: [email protected]

Vice-Chair (2011-2014)Alvin B. Marcelo, MDAssociate Professor of Surgery and Medical InformaticsCollege of Medicine and National Telehealth Center University of the Philippines Manila547 Pedro Gil Street, Ermita, manila, PHILIPPINES 1000Tel: 632-525-6501Fax: 632-525-6501E-mail: [email protected]

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Objectives

• Define the sub-domain of “health informatics for development” as it pertains to its parent “biomedical and health informatics” and as it relates to specific issues in low-to-medium income countries (LMICs)

• Characterize the unique issues in health informatics experienced by LMICs such as those found in the social, political, and economic contexts

• Identify best practice and lessons learned in health informatics that LMICs can adopt in order to build cost-effective health information systems

• Connect developed and developing country health informatics experts for possible partnerships and collaborations

• Redefine standards and interoperability in the context of the needs of LMICs • Identify innovations such as mobile health that make it possible for LMICs to design

and implement health information systems at a cost they can afford

Recent Activities

• April 2011: Regional Workshop on Standards, Interoperability and Health Information Systems (participant)

• April 2011: Fourth PANACeA Annual Workshop, Kuala Lumpur, Malaysia (participant)• May 2011: Infolac2011, Guadalajara, Mexico (participant)• October 2011:SUEIIDIS 2011, Montevideo, Uruguay (participant)• Update on eHealth in Asia.

Exciting times as it is for Asia as eHealth scientists from seven countries (Philippines, Thailand, Malaysia, Cambodia, Viet Nam, and Indonesia) convened together last December at the UN Regional Centre, Bangkok, Thailand to discuss on how countries in Asia could leverage eHealth potentials in their region. Countries shared their experiences on eHealth implementations and challenges they are experiencing therein. Highlighted in the meeting was the emerging role of civil registry and vital statistics for developing HIS and eHealth solutions.In the meeting, it was found out that political support to HIS is increasing in Asia. eHealth experts in Cambodia reported that the number of facilities submitting timely reports to their Ministry of Health have increased by 32% upon the government support to their Health Information Management System. In Thailand, the government has already created a National Health Information Committee (NHIC) responsible for keeping an eye on National health information standards, Health information security, National health indicators, and Community-base information systems. In Indonesia, a strong advocacy on using open source platform such as OpenMRS is observed. November of last year, Indonesia started national workshops on OpenMRS and conducted capacity building efforts such as the Indonesia Health Informatics Forum to support this initiative. The Philippines, on the other hand, showcased efforts to harness support from public and private entities for developing the ICT4Health community and reviving the Philippine Health Information Network. Among these wonderful updates on eHealth in Asia is the National Telehealth Center’s (NTHC) effort to bridge Asian countries together for the Asia eHealth Information Network (AeHIN). The network primarily aims to improve health care in the region through improved use of ICT. In coordination with the WHO-Western Pacific Regional Office, NTHC spearheads the AeHIN scientific committee who will serve as initiating body for the network. On August this year, AeHIN will be formally launched to countries in South and South Asia for cross-country collaboration and capacity building for improved HIS.

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Future Activities

• Inter-networking of existing eHealth networks through the hi4dev website• eLectures between node members of eHealth networks• Build a professional networking for research of the related topics to WG

Health Informatics for Patient Safety (Updated May 2012)

Website: http://www.imia-medinfo.org/new2/node/345.

Chair (2011-2014)Dr. Elizabeth BoryckiAssistant ProfessorSchool of Health Information ScienceUniversity of VictoriaVictoria, British Columbia, CanadaPhone: 1-250-472-5432Email: [email protected]

Vice-Chair (2011-2014)Dr. Hiroshi TakedaDean and ProfessorGraduate School of Health Care Sciences,Jikei Institute, Osaka, JapanOsaka University Hospital, Suita, JapanPhone: 1-66150-1336Email: [email protected]

Focus

The purpose of the working group is to promote patient safety involving software in health information systems and their associated medical devices. The working group will focus on safety in a broad sense including how healthcare information systems can be designed to improve patient safety, as well as identifying and rectifying safety issues that may arise from use of health information systems.

Recent ActivitiesThe IMIA Working Group on Health Informatics for Patient Safety has had a busy first year.

As outlined in our initial proposal to IMIA, the purpose of the working group is to promote patient safety involving software in health information systems and their associated medical devices. The working group will focus on safety in a broad sense including how healthcare information systems can be designed to improve patient safety, as well as identifying and rectifying safety issues that may arise from use of health information system.

We have undertaken several activities internationally. Much of our work has focused upon setting up and offering patient safety and healthcare quality panels, workshops and papers at health informatics and medical informatics conferences world wide. To date we have initiated

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activities in North America, Europe and Asia with collaborators from Asia, Europe, North America and the Middle East.

Symposium

Akiyama, M., Tsuchiya, F., Yamashita, Y., Takeda, H. (2011). Does the medical information system contribute to patient safety and healthcare quality improvement? The 6th Annual Congress of Japan Society for Quality and Safety in Health Care, Tokyo, November 20, 2011.

Paper

Borycki, E. M., Househ, M., Kushniruk, A. W., Nohr, C., Takeda, H. (submitted). Empowering patients: Making health information and systems safer for patients and public. IMIA Yearbook

We have also set up our IMIA website at: http://www.imia-medinfo.org/new2/node/345. The site provides an overview of the working groups purpose, goals and objectives and an intro-duction to its activities. We are currently extending our list of potential participants in the group and are in planning stages for a meeting a MedInfo 2013.

To increase the global representation of the group we have added: Christian Nohr from Aal-borg University, Denmark as Vice Chair.

Future Activities

Panel

Takeda, H., Tsuru, S., Borycki, E., Murray, P. (2012). Information Systems Safety: Reaping the Benefits. NI2012: 11th International Congress on Nursing Informatics. Montreal, Canada. June 23-27, 2012.

Workshop

Borycki, E. M., Househ, M., Kushniruk, A. W., Nøhr, C., Turner, P. (2012). International Perspectives on Health Information Technology Safety: Issues, Controversies and Challenges. MIE2012. Pisa, Italy.

Health Information Systems ((Updated May 2012)

Website: http://www.med.uni-marburg.de/imi/IMIA_WG10.html

Chair (2006 - 2012)Prof. Christian Lovis, MD, MPHHead, Division of Medical Information SciencesUniversity Hospitals of GenevaGeneva 14 Switzerland CH 1211+41 22 372 6180+41 22 372 8680Email: [email protected]

Vice-Chair (2006 - 2012)Dr. Dominik Aronsky, MD, PhDAdjunct Associate ProfessorDept. Of Biomedical Informatics & Emergency MedicineVanderbilt University Medical CenterNashville TN USA 3732-8340

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+ 1 615 936 1068Email: [email protected]

Goals and Objective

• Promote systematic development and research in the field of health information systems;• Promote research and efforts on efficiency and cost-effectiveness of health information

systems for the healthcare, health delivery and access to health;• Promote research and development in the domain of sustainability in health information

systems;• Promote evaluation, identify and assess problems and success factors of health informa-

tion systems.

Recent Activities

2010 was an important date for the IMIA Health Information Systems (HIS) WG, and Cape Town a very special place. In 1979, the first IMIA HIS working conference was held in Cape Town, South Africa. As a result of that conference the International Medical Informatics Association (IMIA) created a working group on hospital information systems. Since then the working group has organized a series of working conferences (Nijmegen, Gottingen, Durham, Heidelberg) of which the proceedings have been published.

In 2010 the IMIA HIS working group returned to its ‘birthplace’ and organized a two-day workshop on "Health Information Systems - 30 Years of Evolution" (www.hiswork2010.com). The event was held on September 10-12, 2010 in the beautiful surroundings of Stellenbosch (Le Franschhoek Hotel & Spa), South Africa, immediately before the Medinfo 2010 main Conference in Cape Town, South Africa. The scientific program committee included: Marion Ball (USA), Elida Casal (Argentina), Kiyomu Ishikawa (Japan), Christian Lovis (Switzerland); chairman, Otto Rienhoff (Germany), Hans Peterson (Sweden), John Tresling (South Africa), Yu-Chuan Li (Taiwan), and Ab Bakker (The Netherlands).

The conference had three plenary sessions, each accompanied by three group discussion sessions and were divided up around the following three themes: - "Evolution of HIS concepts and architecture", - "Lessons learned, expectations versus realization", and - "Challenges for the coming decade"

The outcome of the conference was reported out at a panel discussion during Medinfo 2010. Special thanks go to Ab Bakker who led the organizing committee with utmost dedication and to John Tresling. Special thanks also to the sponsors who provided generous financial support: IBM, University Hospital of Geneva, Vanderbilt University, Meditech South Africa)

A white paper has been published in 2001 in the Yearbook of the IMIA : Hospital and Health Information Systems - Current Perspectives. Contribution of the IMIA Health Information Systems Working Group. Lovis C, Ball M, Boyer C, Elkin PL, Ishikawa K, Jaffe C, March A, Marin H, Mykkänen J, Rienhoff O, Silva J, Sittig DF, Talmon J. Yearb Med Inform. 2011;6(1):73-82.

A Facebook page, IMIA HIS Working Group 2010, has also been created.

Upcoming Activities

The HIS WG will be planning a meeting at Medinfo2013, in Copenhagen, Denmark. New leadership will be nominated for the HIS WG as the two 3-year appointments will expire at the end of 2012.

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The WG aims to develop a website, having a forum, and try to build up a Skype (or equivalent) community.

Human Factors Engineering for Healthcare Informatics (Updated September 2012)

Chair (2006-2012)Peter L. Elkin, MD, FACP, FACMIEmeritus Professor of MedicineDirector, Center for Biomedical Informatics Vice-ChairmanDepartment of Internal MedicineMount Sinai School of MedicineVice-PresidentMount Sinai Medical CenterCenter for Advanced Medicine17 102nd Street EastNew York, NY USA 10029Tel: 917 841 0822Fax: 212 289-2663E-mail: [email protected]

Vice-Chair (2006-2012)Marie-Catherine Beuscart-ZéphirPhD, Lab Manager, EVALABINSERM CIC-ITUniversity Hospital of Lille1 Avenue Oscar Lambret59037 Lille Cedex, FranceTel : (33) 3 20 62 34 61Fax : (33) 3 20 52 10 22E-mail : [email protected]://www.univ-lille2.fr/evalab/

Focus

Human factors can be the difference between systems that function well in the clinical environment and systems that function poorly. The Physician-Patient relationship has now become the Physician-Computer-Patient relationship. Human factors engineering is the field of study which deals with the cognitive aspects of the human computer interaction. This working group discusses methods for studying the computer-human interaction in health. Adapted research and methods are needed to evaluate the complex systems facing both clinicians and patients today. Further, this working group engages in discussions regarding optimal interface designs for health informatics software to make the computer a welcome partner with both the clinician and the patient in the empowered longitudinal care of the individual.

Objectives / Goals

• To promote methods and techniques devoted to the study of human factors in the field of Biomedical Informatics.

• To coordinate studies and actions in this particular domain and to develop standardization initiatives for usability studies and user-centered design in the healthcare domain. This in-ternational group of experts confronts state of the art methods, models, innovations and results.

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• To disseminate rigorous scientific principles for performing formal usability evaluations to improve their degree of efficiency, acceptability and safety of health informatics applica-tions.

• To support emerging teams in this field all around the world: an IMIA Working group is the opportunity for newcomers to benefit of the support of experts in this domain

Recent Activities

Our most recent meeting was hosted by Dag Svagnes in Trondheim Norway in advance of the MIE 2011 meeting in Oslo. There were 54 participants. The purpose of the event was to provide an arena for practitioners and researchers in Human Factors Engineering in Health In-formatics to exchange experience on state-of-the art in the field, and thus to maintain and ex-pand the existing international network. It was a huge success with many very interesting pro-jects having been presented and the Keynotes expanded our understanding of HFE in HI.Marie-Catherine Beuscart Zéphir, Vice-Chair of the IMIA WG, was invited to deliver the open-ing keynote of the 2011 MIE conference to value the work of the WG and HFE-HI network.

Future Planned Activities

We have begun planning for our next meeting to be held in conjunction with MedInfo in Copenhagen. It is chaired by Christian Nohr and Sanne Jansen and is hosted by the Danish region simulation laboratory at the regional hospital. This will be a joint HFE-HI and ITHC meeting supported by IMIA HFE-HI WG and EFMI Human and Organizational Factors for Medical informatics WG chaired by Jos Aarts. This promises to be an excellent meeting. The scientific program committee is composed of Jos Aarts, Rotterdam, Marie-Catherine Beuscart-Zéphir Lille, Peter Elkin, New York, Andrew Georgiou, Sydney, Monique Jasper, Am-sterdam, Sanne Jensen, Copenhagen, Craig Kuziemsky, Ottawa, Claudia Moro, Curitiba, Marianne Sørensen, Aalborg, Dag Svarnæs, Trondheim and Johanna Westbrook, Andrew Georgiou, Sydney. The SPC held a first meeting in Rotterdam in May 2012.

Potential Overlap with other IMIA WGs

The major overlap is with the IMIA Evaluation WG where human factors are only a small part of their agenda. We have established a liaison with the evaluation WG to ensure that overlap is minimized and that the output of the HFE WG is made available to the members of the evaluation WG. As the methods in human factors are quite particular to this field of study and with a large agenda, the discussions necessary to move the field of HFE forward are not possible within the evaluation WG. We also propose a strong relationship with the Organizational Issues IMIA WG.

There has been a joining of the EFMI Organizational Factors in Medical Informatics (OFMI) group with human factors to make the EFMI HOFMI working group. The group is led by Jos Aarts and Marie-Catherine Beuscart and has a strong liaison with the IMIA HFE working group.

Lastly, an effort to form a coordinate group at AMIA will be undertaken to complement the European effort and to bring the work of these two organizations forward to IMIA via the proposed working group. This will be accomplished through the symposiums and through ongoing dialog. IMIA will help to coordinate various cultural and regulatory differences between and among members that could not reasonably be understood in the context of a single nation or region.

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Transition Planning

As the chair and vice-chair terms are ending mid 2012, we have started the process of suc-cession planning. We have strong participants who are also interested candidates, so that we may be nominating new chair and vice-chair in the upcoming months.

Future Activities

A MEDINFO 2013 pre-conference will be organized by the Human Factors Engineering in Health Informatics WG

Intelligent Data Analysis and Data Mining (WG 03) (Updated May 2012)

Website: http://www.imia-medinfo.org/new2/node/144

Chair (2008-2014)Dr. Niels Peek Department of Medical Informatics, Room J1b-110Academic Medical Center - University of AmsterdamP.O. Box 227001100 DE AmsterdamThe Netherlands Tel: +31 20 5667872 Fax: +31 20 6919840E-mail: [email protected]

Vice-Chair (2008-2014)Dr. John H. HolmesAssociate Professor of Medical Informatics in Epidemiology 726 Blockley Hall423 Guardian DrivePhiladelphia, PA 19104-6021USATel: +1 215-898-4833 E-mail: [email protected]

Objectives

• To increase the awareness and acceptance of intelligent data analysis and data min-ing methods in the biomedical community.

• To foster scientific discussion and disseminate new knowledge on AI-based methods for data analysis and data mining techniques applied to biomedicine. To promote the development of standardized platforms and solutions.

• To provide a forum for presentation of successful intelligent data analysis and data mining implementations in biomedicine, and for discussion of best practices in intro-duction of these techniques in medical and health-care information and decision sup-port systems.

• Focus on specific topics of interest for the scientific community, in particular: the exploitation of predictive data mining in clinical medicine, knowledge-based functional genomics, IDA of molecular phenotypes, Data Mining models for the assessment of clinical risk, temporal data mining in medicine and bioinformatics, and evolutionary computation in biomedical knowledge discovery.

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Recent Activities:

• The Intelligent Data Analysis in bioMedicine and Pharmacology (IDAMAP) 2011 work-shop was held on July 6, 2011 at the 13th Conference on Artificial Intelligence in Medi-cine (AIME) in Bled Slovenia. The program chairs were Niels Peek, John Holmes, Al-lan Tucker (Brunel University, London, UK), and Riccardo Bellazzi (University of Pavia, Italy). There were about 20 attendees.

• John H. Holmes presented the tutorial “Introduction to Clinical Data Mining Methods” at the 13th Conference on Artificial Intelligence in Medicine (AIME) in Bled Slovenia. There were six participants.

Future Activities:

• Yearly organization of the Intelligent Data Analysis in bioMedicine and Pharmacology (IDAMAP) workshop. This year, the workshop will be held at the MIE Conference 2012 in Pisa, Italy, in August, 2012. Program chairs are Lucia Sacchi (University of Pavia, Italy) and Barbara Di Camillo (University of Padova, Italy).

• A focus theme of the Methods of Information in Medicine journal will be published, en-titled "Intelligent Data Analysis for Knowledge Discovery, Patient Monitoring and Qual-ity Assessment", based on a selection of papers presented at IDAMAP 2010 en IDAM-AP 2011. Guest editors are Stephen Swift (Brunel University, London, UK) and Niels Peek.

• As a satellite activity, a new workshop called "Machine Learning for Clinical Data Ana-lysis" which will be given at the International Conference on Machine Learning (ICML 2012) in Edinburgh, Scotland, on June 30 and July 1, 2012. The program chairs are Noemie Elhadad (Columbia University, USA) and Milos Hauskrecht (University of Pitts-burgh, USA).

• Organization and support of tutorials and master classes on all topics related to intelli-gent data analysis and data mining, at national and international medical informatics meetings. John Holmes has planned to present the tutorial “Introduction to Clinical Data Mining” at the AMIA 2012 Annual Symposium in Chicago, Illinois, in November, 2012.

• Further enrichment of the WG’s web site, in order to offer a list of most relevant public-ations, technical notes and recent results to the general audience.

• Continued linkage with the American Medical Informatics Association through the Knowledge Discovery and Data Mining Working Group.

Medical Concept Representation (WG 6) (Updated May 2012)

Website of the WG: http://www.imia-medinfo.org/new2/node/145

Chair ( 2007-2013)Dr. Olivier BodenreiderStaff ScientistU.S. National Library of Medicine8600 Rockville Pike – MS 3826Bethesda Maryland, USA.Tel: +1 301 435 3246Fax: +1 301 480 3035E-mail: [email protected]

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Objectives

The goal is to provide a forum for state of the art dialogue and collaboration on medical concept representation in healthcare applications. IMIA's Medical Concept Representation Working Group is the international forum for issues related to informatics in the classification and coding of health data. Since its formation, the working group was charged with: (1) Re-viewing health data nomenclature and classification needs for the world community; (2) Evalu-ating information processing technology in meeting these defined needs; and (3) Recom-mending methods for future classification and nomenclature systems.

Recent Activities

• The IMIA WG6 was a sponsor of the International Conference on Biomedical Ontology (ICBO 2011), University at Buffalo, NY, USA, July 26-30, 2011 (http://icbo.buffalo.edu/). The conference was sold out. The proceedings are publicly available at http://ceur-ws.org/Vol-833/.

• The LinkedIn group (http://www.linkedin.com/groups?home=&gid=3680642&trk=anet_ug_hm), administered by Laszlo Balkanyi, provides a platform for exchange of information (e.g., about conferences and publications of in-terest) and has 51 registered members to date. A companion wiki (http://imia-mcr-wg.wikispaces.com/?goback=.gmp_3680642.gde_3680642_member_36033583) provides an overview of past meetings organized by WG6.

Future Activities

• In the spirit of alternating between North America and Europe, the chair of the IMIA WG6 will be handed over to Pr. Stefan Schulz ([email protected]) in 2012.

Mental Health Informatics (Updated May 2011)

Chair (2010-2013): Dr. Kannan SubramanianManaging DirectorKangela LimitedAuckland, New ZealandTel: +64 21 80 44 14 Fax: +61 2 80 80 81 81 E-mail: [email protected]

Vice-Chair (Providional) (2010-2013)Chris Chao-Cheng Lin, MD, PhD., Adjunct Assistant ProfessorDepartment of Psychiatry, National Taiwan University Hospital and National Taiwan University College of MedicineTel: +886-2-23123456 #67526Mobile: +886-972651516

Goals & Objectives

Background: The MHWG of IMIA has been in existence since 2000. For a variety of reasons, the Work Group has not been able to garner the resources to achieve its mission.

During this time, the world of informatics in mental health has exponentially changed. Now consumers can use the web for actual therapy. Clinicians can peek into functioning of the

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brain during cognitive tasks. They search for evidence-based information while taking care of patients. Patients can be seen by their clinicians via tele-psychiatry. Yet, we have not developed ways that informatics can reduce the disease burden of psychiatric disorders, increase collaboration between medical and mental health clinicians, or shared best practices in research, practice, or policy. If an international body can make a difference, it should be in transforming the burden of mental health disorders worldwide and being an international best practices exchange group.

There exist today unlike three years ago, a critical mass of informatics innovators who function as researchers, developers, and policy leaders who have no forum to share perspectives and shape the future of mental health informatics.

IMIA has already multiple corporate, academic, and governmental partners. The Mental Health Workgroup membership should be recruit members from existing partners. As a potential Mental Health Workgroup Chair I propose four goals to be achieved by 2009:

• Formal collaboration with the WHO mental health initiative• An Annual Publication of International Best Practices in research, policy and

practice in collaboration with Elsevier• An Informatics Policy Framework that would allow medical and mental health

clinicians to share information to the betterment of patients and society while protecting confidentiality and privacy.

• Corporate, Foundation, and Governmental Support to fund the functions of the IMIA Workgroup

Open Source Health Informatics (Updated May 2012)

Website: http://www.imia-medinfo.org/new2/node/147

IMIA OS WG at MedFLOSS.org: http://www.medfloss.org/node/479

Chair (2011 – 2014)Thomas KaropkaBioCon Valley GmbHWalther-Rathenau-Str. 49a, 17489 Greifswald, Germany Tel: +493834515303Fax: +493834515102E-mail: [email protected]

Objectives

IMIA OS WG has been formed in 2002 with the objective to focus on educational, promotional and 'evangelistic' activities to raise awareness of open source software in health care. The primary objectives of the IMIA OS WG are to:

• disseminate knowledge about the benefits and prospects of FLOSS in health care among IMIA members and outside of IMIA,

• provide a neutral collaboration platform for all stakeholders in health care in respect to FLOSS,

• to foster collaborations between FLOSS-HC projects and • to lower the perceived barriers to the adoption of FLOSS in health care

Recent Activities

• 3rd FLOSS in health care track at Med-e-Tel 2012, 20th of April 2012, 11 paper

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presentations, 1 panel discussion (http://www.medetel.lu/index.php?rub=educational_program&page=benefits_of_open_source_software_in_health_care_2012)

• The FLOSS in health care track is a joint activity of IMIA OS WG, EFMI LIFOSS WG and the International Society for Telemedicine and eHealth (IsfTeH). The cooperation is now in its 3rd year and is expected to continue in the future.

• Co-organization of 5th International Workshop on eHealth in Emerging Economies: „Commitment“ (IWEEE 2012-Granada, http://www.iweee.org/2012-granada/), January 11, 2012, Granada

• Joint Workshop with EFMI LIFOSS WG and Ambient Assisted Living Open Association (AALOA): Common Infrastructure Software for eHealth, Telemedicine and Ambient Assisted Living based on Open Source Software, MIE2011, Oslo, Norway

Future Activities

• Further community building at Medfloss.org• Co-organization of IWEEE 2013• Organization of a workshop for MEDINFO 2013 in Copenhagen• Co-organization of a workshop for EFMI STC 2013 in Prague

Nomination of Vice-Chair

Holger Schmuhl is nominated as vice-chair for the WG for the period 2012-2015 (to be approved at IMIA GA in Bejing). Holger is a very active member since several years and co-author of the IMIA yearbook contribution of the WG in 2011. He is founder of MedFLOSS.org and maintains a website for the WG at MedFLOSS (http://www.medfloss.org/node/479). We are looking forward to a fruitful work together with Holger in this new position. Holger is currently working at the University Hospital Heidelberg, Germany.

Organizational and Social Issues (Updated October 2009)

Chair (2008-2011)

Kai ZhengAssistant ProfessorSchool of Public Health, School of InformationUniversity of MichiganM3531 SPH II, 109 S. Observatory St.Ann Arbor, MI 48109-2029(734) 936-6331, Fax: (734) 764-4337

Objectives

• To investigate and evaluate organizational, social, ethical, and individual behavioural issues surrounding the introduction and use of informatics applications.

• To determine strategies for systems and workflow analysis, product design and implementation, and technological and organizational change to support health care delivery through information and communication technologies.

• To incorporate organizational change management and human concerns into information technology projects.

Recent Activities

Conference Activities• Co-sponsor of a workshop at the ACM Conference on Computer-Supported

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Collaborative Work titled “CSCW Research on Healthcare: Past, Present, and Future.” The conference was held Feb. 6-10, 2010 in Savannah, GA., USA.

Outreach and Collaborative ActivitiesTo raise awareness of organizational and social issues in health care, the chair • is serving as a lead editor for a Special Issue of the International Journal of Medical

Informatics on “Supporting Collaboration in Healthcare Settings”. The publish date is 2010.

• is serving on the steering committee for the Workshop on Interactive Systems in Healthcare to be held at the ACM Conference on Human Factors in Computing (CHI 2010) at Atlanta, GA, April 11, 2010.

• is the co-chair of the technical program committee for the ACM Conference on Supporting Group Work. Sanibel Island, Fl, USA, November, 2010.

• Served as Associate Chair, Program Committee. ACM Conference On Computer Supported Cooperative Work 2010 (CSCW’10). Savannah, GA. Feb 6-10, 2010.

• Will be the invited speaker at the University of Michigan Health Informatics Grand Rounds. Ann Arbor, MI, December 10, 2009.

• Was a keynote speaker at the SIG-HEALTH Workshop held at the Americas Conference on Information Systems (AMCIS 2009). San Francisco, CA. August 6, 2009. The title of the talk was Publishing in Medical Informatics Journals: The Interdisciplinary Challenges

On-Going Activities• Nominate papers for the Diana Forsythe Award of the AMIA People and Organizational

Issues WG.• Co-sponsoring a Special Issue of the Journal of Association of Information Systems

(JAIS) on “Health Care IT…Process, People, and Patients.” The publish date is 2010.• Co-Sponsoring for a Special Issue of the International Journal of Medical Informatics

on “Supporting Collaboration in Healthcare Settings”. The publish date is 2010.• Co-sponsor AMIA People & Organizational Issues WG Doctoral Symposium

Primary Health Care Informatics (Updated May 2012)

Website: http://www.imia-medinfo.org/new2/node/149

Chair (2009-2012) Dr. Kumara MendisSenior Lecturer University of SydneySydney NSW [email protected]

Vice-Chair (2010-2013)Simon de Lusignan Professor of Primary Care & Clinical InformaticsUniversity of Surrey, GUILDFORD, GU2 7PX, [email protected]

Goal

The aim of the group remains to promote and develop primary care informatics as a specialism within health informatics.

Objectives

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Our current objectives are: (1) How to model research studies based on routinely collected data; (2) Ontologically rich approached to case finding in routine data; (3) The use of IT at the point of care – in the primary care clinical consultation; (4) Focus on diabetes – and the completeness and accuracy of recording in primary care records.

Recent Activities

MEDINFO 2010 South Africa

The working group put on two workshops at this event – one on the use of the computer in the consultation and the second on the barriers to using routine data for international research (http://www.clininf.eu/news/photos/69-medinfo-photo.html). The outputs from this informed our submission to the IMIA Yearbook of Medical Informatics, see later in the report.

EFMI STC 2011 Slovenia

From these and the discussions post conference emerged a submission to the EFMI STC (Special Topic Conference) in Slovenia in 2011, and a further workshop at MIE in Oslo at the end of August 2011. We have begun to recognise that part of the standard approach to research studies using routine data should be to develop and model use cases for the study; (we have used Unified Modelling Language (UML) to do this and also constructed data flow diagrams (DFD). We have created generic reference models for some types of study. The first versions of these can be found at: http://www.clininf.eu/refmodel/

EFMI MIE 2011 Norway

We extended this work at our workshop at MIE in Oslo August 2011. This involved international collaboration including a guest presenter (Dr. Chris Pearce) from Australia.

The presentation from this workshop can be downloaded from the Clinical Informatics website at: http://www.clininf.eu/news/presentations/116-mie2011oslo-presentation.html

EFMI STC 2012 Moscow

Two papers emanating from working group were presented at the conference. The working group vice-chair has co-authored a paper with Prof Matthew Swindells who was previously head of the English National Programme for IT. Olga Dmitrieva presents work on how the English NHS Hospital Episode Statistics (HES) data can be used to explore variation in the quality of care.

Publications in the Yearbook of Medical Informatics 2011

We have achieved two publications in the IMIA Yearbook developed from our MEDFINFO workshops. We hope that these will help standardise the way that we report observational studies of the computer in the consultation and help model the barriers to linking routine data in research.

Yearbook of Medical Informatics 2012

We have a paper accepted for the 2012 yearbook on how to requirements analyses using routine data. This builds on our modelling work within the working group. With more and more research being carried out using routine data, often primary care data but more and more often linked data – research protocols need to be adapted and move with the times.

We suggest how generic reference models for research projects should exist at four levels and be part of standard research protocols:• Rich pictures /schema to give an overview

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• Data flow diagrams (DFD) to document where data used in a research project originate and to describe the data flows during a research project

• Unified Modelling Language (UML) use-case diagrams to capture the processes within a research project

• Business process models modelled using business process modelling notation (BPMN) to capture the barriers to project participation.

Journal

Informatics in Primary Care remains the journal of choice for the working group. The publishers offer working group members a discount on subscriptions.

(http://www.radcliffe-oxford.com/journals/J12_Informatics_in_Primary_Care/default.htm)

Future Activities

Summer School – SISS 2012 – How to measure quality and outcomes using routine data:

We are holding a summer school 9th to 14th July. Further details and enrolment at: http://clininf.eu/siss2012

Or contact Natalie Berge [email protected] Special discount for IMIA working group members.

MIE 2012 Italy

We have had a workshop accepted at MIE2012 in Italy. This explores how we could improve the design of research and quality improvement studies using routine data by using ontologically rich approaches to identifying variables. The workshop objective is to develop consensus methods of consistent extraction and processing of data. Guest speaker at the workshop will be Professor Teng Liaw, from Australia. The workshop will include brief presentations on: (1) Capturing context by defining the domain ontology; and definition of a reference terminology; (2) Modelling data and metadata mechanisms; (3) Formalisation and otology development tools; (4) Validation of data quality ontology; and (5) Governance framework. There will be a post workshop modified Delphi exercise to define and model these components into a usable toolkit that can be made available through the working group.

MEDINFO 2013

14th World Congress on Medical and Health Informatics - Conducting medical informatics by Converging technologies, Conveying sciences and Connecting people. Copenhagen, Denmark, August 20-23, 2013. Please contact the working group vice-chair is you would like to be part of PHCI contributions.

References1. de Lusignan S. What is primary care informatics? J Am Med Inform Assoc.

2003;10(4):304-92. de Lusignan S, Pearce C, Shaw NT, Liaw ST, Michalakidis G, Vicente MT, Bainbridge

M, International and European Medical Informatics Association and Federation Primary Care Informatics Working Groups. What are the barriers to conducting international re-search using routinely collected primary care data?

3. Stud Health Technol Inform. 2011;165:135-40.4. Swindells M, de Lusignan S. Lessons from the English National Programme for IT

about Structure, Process and Utility. Stud Health Technol Inform. 2012;174:17-22.

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5. Dmitrieva O, Michalakidis G, Mason A, Jones S, Chan T, de Lusignan S. Consistent Data Recording across a Health System and Web-Enablement Allow Service Quality Comparisons: Online Data for Commissioning Dermatology Services. Stud Health Technol Inform. 2012;174:84-8.

6. de Lusignan S, Liaw ST, Rahimi AR, Poh H, Jones S, on behalf of the working group. Improving the design of research and quality improvement using routine data in chron-ic disease: ontology driven approach. Accepted as a workshop MIE 2012 Italy.

7. de Lusignan S, Pearce C, Kumarapeli P, Stavropoulou C, Kushniruk A, Sheikh A, Shachak A, Mendis K. Reporting Observational Studies of the Use of Information Technology in the Clinical Consultation

8. A Position Statement from the International Medical Informatics Association Primary Care Informatics Working Group (IMIA PCI WG). Yearb Med Inform. 2011;6(1):39-47.

9. de Lusignan S, Liaw S-T, Krause P, Curcin V, Vicente M, Michalakidis G, Argreus L, Leysen P, Mendis K. Key concepts to assess the readiness of data for International re-search: Data quality, lineage and provenance, extraction and processing errors, trace-ability, and curation. Yearb Med Inform. 2011;6(1):112-20.

10. de Lusisgnan S, Krause P, Mchalakidis G, Vicente MT, Thompson S, McGilchrist M, Sullivan F, van Royan P, Agreus L, Desombre T, Taweel A, Delaney B. Business pro-cess modelling is an essential part of a requirements analysis for studies linking het-erogeneous clinical databases. Accepted for the IMIA Yearbook of Medical Informat-ics, 07/05/2012 Ref: YB1207

Security in Health Informatics Systems (Updated May 2012)

Chair (2009-2012) Prof. Dr. Kiyomu IshikawaDepartment of Medical InformaticsHiroshima University Medical Hospital1-2-3 Kasumi, Mianami-kuHiroshima, JapanTel: +81 82 257 5080 Fax: +81 82 257 5084 E-mail: [email protected]

Vice-Chair (2009-2012)Peter CrollTel: +61 7 338 11083Fax: +61 7 338 11056Email: [email protected]

Objectives

To examine the issues of data protection and security within the health-care environment, the Data Protection in Health Information Systems Working Group addresses state-of-the-art security of distributed electronic patient records (EPR).

Recent Activities

Dr. Ishikawa (Vice-Chair of SiHIS WG) hosted WG4 meeting at Hiroshima from November 21 through 24, 2009 where and when JCMI 2009 and APAMI 2009 was held. The focus was "Trustworthiness of health information - Issues in security and system management for patient safety -". The working conference was promoted by Chair: Dr Kiyomu Ishikawa (Hiroshima Univ.), SPC chair: Dr Koji Yamamoto (Suzuka Univ. of Medical Science), Vice-Chair: Dr Francois A. Allaert (Univ. of Liege), and Dr Yoshiyasu Okuhara (Kochi Univ.) for

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the chair of organizing committee. The summarized session was held by Prof. Dr Peter Croll (Southern Cross Univ.) and Prof. Dr Eike Kluge (Victoria Univ.) and Bernd Blobel(Regens Burg Univ.), Pekka Ruotsalainen (Kuopo Univ.), Dr Vimla L Patel (Arizona State Univ.) and other core members.

Scope of the meeting was to cover what degree OECD 8 Principles are reflected in patient information systems. SiHIS - Security in Health Information System - has a long history of working conference that it is originated from the conference "Realization of Data Protection in Health Information Systems" held in the year 1976. On that year, IMIA - International Association of Medical Informatics - funded to establish the working group 4 and in 1979, the first working conference "Data Protection in Health Information System - Consideration and Guidelines" was held. The title of this working conference clearly states the obligation of SiHIS that it should pose a guideline for the use of health information. The data protection was the original target of discussions. But, as the advent of the new society that will be coming within the next decade where each individual can control his own health record, any protective measure may not work. As the members of workshop belonging to IMIA-based working group on security of health information systems, we tackle with how to use and protect patient information from various positions such as medical doctors, nurses, pharmacists, specialists of social medicine, and system engineers. Especially, our focus is the current contribution of ICT(Information Communication Technology) to patient-centered healthcare based on "individual-participatory outline" which OECD 8 principles stipulate. Here in this workshop, we sought a new solution to reach an idealistic society where each individual can trust the information under full understanding and the responsibility about the use of the information. That is "beyond the paternalism". Our plan was made out with the help of F Roger-FRANCE (Belgium), Jochen MOEHR(Canada), Barry BARBER(UK), and Albert R. BAKKER (Netherlands).

Future Activities

Business meeting will be held in August 2012 in Australia.

At the last meeting of the SiHIS group in Hiroshima, Japan in Nov. 2009 it was agreed to hold the next meeting in the Gold Coast, Australia in 2012. Further to discussion with the Chair, Prof. Dr. Kiyomu Ishikawa, and other SiHIS committee members present of at the recent IMIA general assembly in Oslo, Norway, we agreed to proceed along the following lines:

Dates: The SiHIS main event will be held immediately after the Australian Health Informatics Conference (HIC2012, see below) between Friday 3rd – Sunday 5th August.

Theme: Global Citizens - Accessing and sharing health data across International Borders, to include but not limited to:

• Medical Tourism • Education of global technologies – e.g. cloud computing for health • Collaborative medical/bio research data linkages across borders • Novel technical solutions to support global Privacy and Security • Personal Control of Health Records - e.g. obsolescence, removing data, data location • De-identification for international sharing – i.e. is it strong enough for each country? • Privacy protection technologies • International health data standards • International Policy Framework – update on effectiveness.

Co-Events:

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The Health Informatics Conference 2012 will be held in Sydney from 30th July - 2nd August. Note that paper submissions are now open until 23rd February for HIC. Health Privacy Futures 2012, Gold Coast 7-8th Aug. See previous HPF 2008

Smart Homes and Ambient Assisted Living (Updated May 2011)

Website: http://www.health-smarthomes.org

Chair (2009-2012)

Dr. George Demiris, PhDAssociate Professor, Biomedical and Health Informatics, School of Medicine & Biobehavioral Nursing and Health Systems, School of NursingUniversity of Washington, Seattle, WA, USA Email: [email protected]

Vice-Chair (2009-2012)

Sabine KochDirector Centre for Health InformaticsDepartment of learning, informatics, management and ethics (LIME)171 77 Karolinska institutetSwedenTel: +46 (0)8-52487149Fax: +46 (0)8-52483600Email: [email protected]

Goals and Objectives

The aim of this working group is the study and promotion of research and development in the area of smart homes and ambient assisted living applications. A “smart home” is a residential setting equipped with a set of advanced electronics, sensors and automated devices specifically designed for care delivery, remote monitoring, early detection of problems or emergency cases and promotion of residential safety and quality of life. Information and Communication Technologies (ICTs) are utilized to allow individuals to live independently in their preferred environment. Thus, systems are patient-centered rather than institution-centered as they are designed to address the needs of individuals, their families and caregivers rather than these of health care facilities. Furthermore, such technologies can allow for the detection of emergencies and provide the means to increase social interaction and minimize isolation for residents (by increasing access to information, entertainment resources and communication with peers). The Working Group provides a forum for ongoing discussion and a collaborative platform for research and development combining expertise in engineering, sensor technologies, ubiquitous computing, health systems, gerontology and human computer interaction. We will address not only technical challenges but also the end users’ needs, ethical, clinical and policy issues and the design of sustainable and non-obtrusive interventions, providing a holistic examination of the current status and future trends in smart homes and ambient assisted living.

Recent Activities

The WG on Smart Homes and Ambient Assisted Living had its business meeting during Med-info 2010 and discussed next steps and potential synergies with other working groups in sensors and telemedicine.

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We also organized a workshop entitled SmartE (Smart Environments to Enhance Health Care) in conjunction with the Ninth Annual IEEE international Conference on Pervasive Com-puting and Communications (PerCom 2011) on March 25, 2011 in Seattle, USA.

The workshop focused on:

• innovative pervasive computing applications for health care settings and consumers• context modeling and reasoning for health care monitoring• adaptive, autonomic and context-aware computing for diverse populations • mobile/ wireless computing systems and services in the health care context• sensors and RFIDs in pervasive health care monitoring systems• wearable health care devices• integration of smart environment data into personal health record applications• visualization approaches to capturing wellness or health based on smart sensing data

capture• social, ethical and economic models for pervasive health care systems• privacy and confidentiality considerations for pervasive health care applications.

The workshop website is at: http://www.health-smarthomes.org/smarte/

The workshop was a full day event that included 12 peer reviewed paper presentations (pa-pers were also included in the PerCom proceedings).

Social Media Working Group (Updated May 2012)

Websites: Blog: http://imiasocialmedia.wordpress.comTwitter: http://twitter.com/imiasocialmediaLinkedIn: http://www.linkedin.com/groupRegistration?gid=3508923Facebook: http://www.facebook.com/group.php?gid=153666904674185

Chair (2010-2013)

Dr Chris Paton, BMBS BMedSci MBA FACHI Senior Research Fellow (Clinical)University of Auckland, Auckland, New ZealandTel: +64 (0) 9 3737599 ext 83383Email: [email protected]

Vice-Chair (2010-2013)Mr Francisco J Grajales, BHK, MSc (C), CSEP-CEP Graduate Student ResearcherUniversity of British Columbia, Vancouver BC, CanadaTel: +1.209.542.4726

Secretary (2010-2013)Mr Luis Fernandez-Luque, MSc PhD candidateNorthern Research Institute - Tromso Telemedicine Laboratory, Tromso, NorwayTel: +47 934 21 287

Objectives

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The Social Media Working Group (SMWG) aims to be IMIA's vehicle for stakeholder engagement in Social Media. Its membership will be international, inclusive, and multidisciplinary.

The IMIA SMWG will engage members from the international health informatics community, across sectors, to identify, explore, collaborate, and disseminate research on the use of social media for health. Of particular interest are the drivers of change, barriers, facilitators, and policies necessary for the application of the various social media categories in the health domain.

These categories include: 1) Social Networks (e.g., Facebook); 2) Professional Networks (e.g., LinkedIn); 3) Thematic Networks (e.g., PatientsLikeMe, TuDiabetes); Microblogs; 4) Blogs; 5) Wikis; 6) Forums/Listservs; 7) Social Photo and Video Sharing Tools; 8) Collaborative

Filtering Tools (e.g., RSS, recommender systems, tagging); and 9) Multi-User Virtual Environments (e.g., Second Life) 10) Social applications and games; 11) Integration of Social Media with Health Information Technologies (e.g. EHRs, PACS, SNOMED); 12) Other (e.g., FriendFeed).

The sectors that will be engaged and invited to participate in this group, include (but are not limited to): 1) IMIA Member Organizations; 2) Academic Bodies; 3) Industry; 4) Governmental research institutions (e.g, US CDC); and 4) Intergovernmental Organizations (e.g., WHO, PAHO, ITU, WMA).

The applications of social media will be explored with particular applications to: 1) health care delivery, 2) health care professional education; 3) public health; 4) clinical and disaster medicine; and 5) research.

Recent Activities

The Working Group has grown to 55 members (14 new members since last year). We have had several meetings of the group at international conferences and completed a number of projects.

Medical Infrmatics Europe – 2011

The WG conducted a workshop at MIE: “Towards a Research Agenda for Social Media in Healthcare and Academia”. The workshop was well attended and there was a good level of in-terest from participants in joining the working group. In addition to presenting the workshop, members of the working group met to discuss future directions and organised a social event at a local restaurant.

Medicine 2.0 at Stanford University - 2011

The WG followed up the MIE workshop with a panel presentation at the Medicine 2.0 conference at Stanford University. Four members of the working presented ideas on the topic of developing a research agenda for social media in healthcare and fielded questions from the audience.

The WG also sponsored a poster competition in partnership with Stanford University and assisted with judging for the JMIR prize. The WG also administered the IMIA Med2 Award.

The SMWG formed a Secondary Review Committee for the conference and assisted in the

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primary review process.

Medicine 2.0 Harvard – 2012

The WG has been assisting with peer reviewing papers for the Medicine 2.0 conference at Harvard organised by WG member Prof Gunther Eysenbach.

Medicine X Stanford – 2012

The WG has been assisting with peer reviewing for the MedicineX conference at Stanford University organised by Dr Larry Chu.

Marie Curie Initial Training Network

The Working Group supported an application for funding for 10 PhDs and 2 Post-docs in partnership with the University of Tromso in Norway.

IMIA Yearbook

2 papers from the Working Group were published in the 2011 IMIA Yearbook:

• Paton, C, Bamidis, PD, Eysenbach, G, Hansen, M, Cabrer, M. Experience in the Use of Social Media in Medical and Health Education. Yearb Med Inform. 2011; 6(1): 21-9.

• Lau AYS, Siek KA, Fernandez-Luque L, Tange H, Chhanabhai P, Li SYW, Elkin PL, Arjabi A, Walczowski L, Ang CS, Eysenbach G. The Role of Social Media for Patients and Consumer Health. Yearb Med Inform. 2011; 6(1): 131-8.

The WG has also contributed a paper to the 2012 yearbook which has been accepted for publication.

Other Publications

The Working Group has also facilitated the collaboration of a number of members on new publications including:

• Annie YS Lau, Elia Gabarron, Luis Fernandez-Luque and Manual Armayones. Social media in health – what are the safety concerns for health consumer? Health Information Management Journal. 2012; 41(2): 30-35

Future Activities

Members of the working group are collaborating on a number of new initiatives including publications and research projects. We are aiming to continue to grow our membership through both online and offline activities and further facilitate research into social media in health informatics.

IMIA Yearbook

WG member Margaret Hansen has taken the lead in developing the WG’s submission to the 2013 yearbook and has had a good response from the working group membership to assist with this task.

Social Media Book

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The working group is continuing to pursue the publication of a book about social media in healthcare. We have attempted to raise funds from several sources and are now looking at options that can support Open Access and the widest dissemination of the research.

Medicine 2.0 Harvard – 2012

The WG will meet up at the Medicine 2.0 conference at Harvard in September. The group has been peer-reviewing papers.

Medicine X Stanford – 2012

The WG will meet up at the Medicine X conference at Stanford and several working group members are making presentations.

Standards in Health Care Informatics (Updated May 2011)

Website: http://mi.hama-med.ac.jp/stds/index-en.html

Chair

Vacant

Objectives• To advise about standards from an academic perspective• To promote the mutual identification of needed standards world-wide• To share information to facilitate mutual coordination of standards development in

health informatics• WG 16 itself does not create new standards; rather, it devotes its activity on promotion

of mutual identification and coordination by posting and maintaining an inventory of health informatics standard activities.

• Usually, standard development activities are by volunteers, vendors, and immediate users. It is quite natural and fine for them to devote efforts to acquire fruitful outcomes. Sometimes, however, potential future users’ profit could be underrated.

• IMIA is academically oriented, and is a world-wide organization which has connections with countries which participate less currently in existing standard development activit-ies.

• Therefore, IMIA WG 16 inputs thoughtfulness for future users and for multicultural en-vironments, as advisory to standard development activities.

Recent Activities

Future Activities

Technology Assessment & Quality Development in Health Informatics (Updated May 2012)

Website: (shared with/ hosted by the EFMI WG Evaluation) on http://iig.umit.at/efmi/

Chair (2011-2014)Nicolette de Keizer Dept. of Medical Informatics,Academic Medical Center,

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Meibergdreef 15, 1105AZ Amsterdam, The Netherlands;Tel: + 31-20-5665205E-mail [email protected]

Objectives

• To foster interdisciplinary discussion on evaluation issues in health informatics. • To support communication of experiences and education by organizing tutorials and

workshops. • To promote international networking on evaluation issues in health informatics.

Recent Activities (May 2011- May 2012)

• The working group continues its close collaboration with the EFMI Working Group As-sessment of Health Information Systems, mostly by joint publications and joint work-shops and tutorials at international conferences.

• GEP-HI, the Guidelines for Good Evaluation Practice in Health Informatics, has been published by the International Journal of Medical Informatics:- Nykänen P, Brender J, Talmon J, de Keizer N, Rigby M, Beuscart-Zephir MC,

Ammenwerth E. Guideline for good evaluation practice in health informatics (GEPHI). Int J Med Inform 2011; 80: 815-827

• Besides, the working group issued the following international publications:- de Keizer NF, Talmon J, Ammenwerth E, Brender J, Rigby M, Nykänen P. Sys-

tematic Prioritization of the STARE-HI Reporting Items. An Application to Short Conference Papers on Health Informatics Evaluation. Methods Inf Med. 2012 Mar 15;51(2):104-11

- Rigby M, Ammenwerth E, Talmon J, Nykänen P, Brender J, de Keizer N. Health Informatics 3.0 and other Increasingly Dispersed Technologies Require Even Greater Trust: Promoting Safe Evidence-based Health Informatics. IMIA Yearbook of Medical Informatics 2011. Stuttgart: Schattauer. 105-111.

- Rigby M, Brender J, Beuscart-Zephir MC, Hyppönen H, Nykänen P, Talmon J, de Keizer N, Ammenwerth E. Next steps in evaluation and evidence? From generic to context-related. In: A Moen, SK Andersen, J Aarts and P Hurlen (eds.), User Centred Networked Health Care. Proccedings of MIE2011. Stud-ies in Health Technology and Informatics 169. IOS Press, Amsterdam, 2011, 208-212.

- Hasman A, Ammenwerth E, Dickhaus H, Knaup P, Lovis C, Mantas J, Maojo V, Martin-Sanchez FJ, Musen M, Patel VL, Surjan G, Talmon JL, Sarkar IN. Biomedical Informatics - A Confluence of Disciplines? Methods Inf Med 2011: 50: 508-524.

• The working group is working on two explanation papers for STARE-HI and GEP-HI that will give further explanations and justifications as well as examples.

• Members of the working group contributed to workshops at the International Confer-ence on Integrated Care 2011 in Odense/DK.

• The working group organized the following activities at MIE2011 in Oslo:o a workshop on Minimum Dataset for monitoring eHealth implementations;o a panel on the Medical Device Directive;o a paper on “next steps in evaluation and evidence”;o a workshop on STARE-HI;o a business meeting to discuss future activities. The business meeting at MIE

2011 was well attended with around 30 participants and produced a list of planned actions and further potential future activities (the complete list of dis-cussed activities is available on the web-site of the working group).

• As a follow-up of the business meeting at MIE, Jan Talmon gave a one day tutorial on

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writing for bioinformatics journals, including a presentation and discussion on STARE-HI, at the University of Münster for 15 PhD students from various places in Germany.

• Members of the working group contributed to a paper describing eHealth-related activ-ities in EFMI countries. The paper is just under review for an international biomedical informatics journal.

• A workshop on GEP-HI at STC2012 in Moscow was accepted. Unfortunately due to visa problems the workshop could not take place but a paper is included in the pro-ceedings.

Future Activities

• Organization of a workshop on indicator development methodology at MIE2012 in Pisa.

• Submission of three papers related to evaluation and indicator development to MIE2012.

• Analysis of the Medical Device Directive and its implications for health IT evaluation.• Analysis of the usability standards mentioned in the Medical Device Directive.• The development and testing (in Nordic eHealth project) of a methodology to develop

indicators for national eHealth strategies and projects.• The preparation of a special issue in Artificial Intelligence in Medicine on the evaluation

of CDSS systems in health care.• Finalization of the STARE-HI explanation paper.

Telehealth Status report (Updated May 2012)

Compiled by S B Gogia, A Maeder, M Mars, and G Hartvigsen

Correspondence to S B Gogia ([email protected])

Background

The following persons offered to be part of this working group

1. Dr S B Gogia (Past President IAMI, President SATHI, India) – Chairperson2. Prof Anthony Maeder (HISA/UWS, Australia) Co-Chairperson3. Prof Gunnar Hartvigsen (University of Tromso & Norwegian Centre for Integrated Care

and Telemedicine)4. Prof Maurice Mars, (Durban University, SA) 5. Dr Rajeev Rao Eashwari (South Africa)6. Knut Bernstein (Denmark) 7. Janette Gogler (Australia) 8. Sushil Meher (IAMI)9. Vama Magaqa (South Africa) 10. Maurizio Matolli (Chile)

Progress

After the initial physical meeting in 2010 at Cape town itself, the group has set up an online discussion group ([email protected] ) for sharing thoughts. Two noteworthy papers have come out due to these discussions. However are group members are disappointed to be still placed as “provisional” and hope that this will be corrected soon.

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The group was offered a write up on this topic in the 2011 IMIA Yearbook, which was submitted with Prof Anthony Maeder as the lead and corresponding author. Co authors were S B Gogia and Gunnar Hartvigsen. The same has been duly published in the same.

Similarly we were invited to write an article for this (i.e. 2012) years' IMIA Yearbook and have submitted an article titled Using Personal Handheld Computing Devices for Personalizing Healthcare. The same is authored by Shashi B Gogia, Anthony Maeder, Sushil Meher, Maurice Mars, Gunnar Hartvigsen and a student Anil Kuthiala

Current state of affairs

Our members are from a diverse range of countries with some variety of opinion regarding the role of Telehealth as a facilitator to Health care. In developing countries (e.g India and South Africa), the emphasis is on public health and community based care while in more advanced countries (Australia, Norway), Home Telehealth requires a more individual approach. In both situations, the emphasis is to reduce costs largely for the need to get high quality healthcare where technological assistance and devices are used to reduce the need for physical transport. A balance has to be drawn wherein the technology should not become the total solution provider with its attendant risks.

As outlined in the 2011 IMIA Yearbook paper, we believe that the above balance is best addressed through projects which can ultimately bring together information on Telehealth from both developing and advanced countries, for the benefit of all. The two initial projects recommended in that paper for the WG were:

- identify and evaluate (at high level) a range of less conventional Telehealth projects (for advanced countries) which have shown or promised success, to provide a range of best case scenarios which could stimulate further Telehealth initiatives in those areas.

- cataloging various aspects of Telehealth in developing countries that can be leveraged for both increased access to quality care and educational advancement of the health workforce and indeed the population at large.

Leadership and timelines for these two projects have yet to be determined, but it is expected that we would be in a position to report on them at the next MedInfo Conference in Copenhagen, Denmark. Both projects are seen as multi-year and multi-person, perhaps requiring their own discussion groups.

We plan to continue our online meetings and once approved, hold physical meetings of our members so that we can advise IMIA and its members on the key directions to follow in this topic while talking with WHO and other International Bodies.

Another forthcoming task is to promote the WG in order to recruit new members.

Personal achievements of some of the members

Dr Gogia was incorporated was part of the Editorial team for WHO Bulletin special issue on eHealth. SATHI (www.sathi.org) – the organization of Dr Gogia is the president has also started two projects which involves focused and targetted use of ICT as a facilitator to provide healthcare at the community level. These projects in eye as well as limb care respectively will decrease health related travel by 50 to 90% even while being self sustaining as all aspects such as needs assessment, funding, skills development etc. have been worked out. The Eye project in Norht east India has already showing results.

Prof Maurice Mars has been made the Corresponding authors for one of the 6 topics of the same – Economics and sustainability and he has been appointed to the African Union eHealth

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Experts Group and the Ministerial Advisory Committee on Health Technology and chairs the subcommittee on Telemedicine.

Prof Gunnar Hartvigsen has written a status report on telemedicine/telehealth in homes (approx. 100 pages), which the WG will be invited to discuss and extend. Prof Hartvigsen is currently working on a book that documents the telemedicine effort in Norway the last 20 years. (A 370 pages draft exists.)The book will be presented as a 3 hours tutorial at MIE 2012 in Pisa, Italy, and in a WG meeting Fall 2012. (Webinar) As part of his sabbatical leave at UC Davis, California, he is studying the development of telemedicine/telehealth services in California. He is also working on a book about the development of telemedicine in California.

Forthcoming opportunities for WG meetings:

- 2012: MIE 2012, 26-29th August, Pisa, Italy- 2012: APAMI 2012, 22-24th October Beijing China- 2012 Ehealth meeting Nov 23rd /24th. at Sydney (Australia) the preferred choice as

Prof Anthony Maeder our co-chairperson is one of the organizers- 2013: Medinfo 2013, 19-23 August, Copenhagen, Denmark

Wearable sensors in healthcare (Updated May 2012)

Website: http://www.wearable-sensors.org

Chair (2009 - 2012)Michael Marschollek, Prof. Dr. med. Dr.-Ing.Assistant professor for medical informaticsPeter L. Reichertz Institute for Medical InformaticsUniversity of Braunschweig - Institute of Technology and Hannover Medical SchoolCarl-Neuberg-Strasse 1D-30625 Hannover, Germanyphone: +49(0)511/532-5295mobile: +49(0)1761/[email protected]

Vice-Chair (2010 – 2013)Feng Tian, Prof. Dr.Associate ProfessorInstitute of SoftwareChinese Academy of SciencesP.O. Box 8718, Beijing, China, 100080tel (+86-10) [email protected]

Objectives

The WG aims to promote medical informatics research in the area of wearable sensor techno-logy in healthcare by providing a joint comprehensive platform for information exchange and scientific collaboration. The group aims to attract experts from different areas of expertise, such as medical informatics, biomedical engineering, nursing and medicine.

The following areas of research will be addressed by the WG:

- sensor application and research areas in healthcare: diagnostics and therapeutics, in terms of primary, secondary and tertiary prevention

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- methods for sensor data analysis, with a special focus on the analysis of multimodal data

- integration of sensor data resp. extracted information with health information systems and decision support systems to achieve individualization of diagnostics

- acceptance of wearable sensor technologies for healthcare, both by potential users/ relatives and healthcare professionals.

Recent Activities

- successful workshop (ca. 30 participants) entitled “Smart Homes and Wearable Sensors in Healthcare – infrastructures and applications” in collaboration with the IMIA WG Smart Homes and Ambient Assisted Living at the Medical Informatics Europe (MIE2011) conference in Oslo 2011; program and workshop slides available on our website (wearable-sensors.org)

- co-organization (Michael Marschollek) of the PervaSense2012 workshop (“Situation Recognition and Medical Data Analysis in Pervasive Health Environments”) on May 21st, 2012 in San Diego (held in conjunction with the IEEE Pervasive Health confer-ence); 9 accepted full papers

- frequent updates of the WG’s website (domain: wearable-sensors.org) and postings to the mailing list

- current WG members: 20- current mailing list subscribers: 53

Future Activities

- planned: publication of a paper focusing on the MIE2011 workshop results- organization of a workshop at MedInfo 2013