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Research Design
Catherine MurdochHealth Services Research GroupThe Robert Gordon University
Partners: Shared Care Scotland Funded: Community Fund
Aims of the study
The main aims of this study are to:
1. Investigate the role of respite care for
a)children with complex needs and their carers
b)adults with learning disabilities and their
carers
c)people with multiple sclerosis and their carers
d)people with mental health problems and their
carers
e) frail older people and their carers
2. Identify the most appropriate outcome measures for use with the above groups in the evaluation of respite care
Research Design
• Literature search and review
• An interview survey of carers and the people they care for
Literature search and review
• Grey literature (material which is semi published, not formally published or available commercially)
• Published literature
Grey literature
• SIGLE
• Contact universities
• Visited organisations
Published literature
• Databases searched (medline, cinahl, psyclit, ASSIA)
• Key terms used (respite, short breaks, carer(s), caregiver(s), etc)
• Tabulated
Interview survey
• Ethical approval
• Development of information leaflets
• Development of interview schedule (including the respite checklist)
Recruitment
Identification of key organisations
Identification of key people
Visits to day centres, RRT, Feds
Interview survey
Interviews
Semi-structured interviews with all participants
In addition completion of
Hospital Anxiety and Depression Scale (HADS)
Nottingham Health Profile (NHP)
Social Support Questionnaire (SSQ)
Hospital Anxiety and Depression Scale
• Anxiety:I can sit at ease and feel relaxed– definitely
– usually
– not often
– not at all
• Depression:I look forward with enjoyment to things– as much as I ever did
– rather less than I used to
– definitely less than I used to
– hardly at all
Nottingham Health Profile
• I’m tired all the time yes no
• I have pain at night yesno
• I sleep badly at night yes no
Social Support Questionnaire
• Whom could you really count on to help you out in a crisis situation, even though they would have to go out of their way to do so?No one 1)
2)
3)
How satisfied? Very satisfied through to very dissatisfied
Interviews
• 60 people interviewed
• Diverse range of participants
Interviews
Problems with pairs
• interviewee may not have a carer• participants ‘pair’ did not wish to
participate• carer indicating the person they care for
would be unable to take part
Interview survey: Analysis
• Transcriptions of interviews
• Data input into the Statistical Package for the Social Science (SPSS)
• Summaries of interviews
• Collation of quotations
Reflection on methods
• Value of interviews
• Differing understanding of services
Thank you to all who took part in the interviews and assisted with the recruitment of participants