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To help address challenges presented by older adults experiencing loneliness and depression, Holiday Retirement introduced a pilot mutual support group program called the Java Music Club™ in communities including a mix of independent living, assisted living, and memory care homes. For those living with dementia, these issues become more acute as the capacity to understand information deteriorates, yet the need for meaningful social engagement remains. Loneliness and depression are associated with numerous negative health outcomes and a significant increase in hospitalizations and health care costs. Using video and interactive learning, presenters will review the theory and structure of mutual support groups, share results and the implementation processes, program effectiveness and lessons learned. Tess Aiello Resident Enrichment Manager, Holiday Retirement Kristine Theurer Founder, Java Music Club
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ALFA 2015 ConferencePresented by Tess Aiello,
Holiday Retirement andKristine Theurer,
MA (Gerontology), MTA
Residents Helping Residents: A Dynamic Shift in Psychosocial Care
Loneliness and Depression in Senior Living
o loneliness and depression (Victor, 2012;
Snowden, 2010)
o diminished sense of purpose (Choi, 2008)
o limited opportunities for contribution (Brownie, 2014; Malderen, 2013)
“When the Golden Years are Blue”
o Prevalence of depression incare homes on admission
o 54% and 60% by follow-up(Neufeld, 2014)
o Assisted living—significantly higher depressive symptoms (58%) than community (19%) (McLaren et al. 2013)
o Retirement—depression (21%),loneliness (19%) (Adams, 2004)
“It’s hard to get to know anybody…”
“No one has time…”
“People here – they are always in a hurry…., they pass you by andsay ‘How are you?’ and then keep going.
No one has time – to look, to talk.”
“My room is at the end of the world.”
Theoretical Foundation
o Tom Kitwood’s Concept of Personhood
– Fundamental human drive towards helping others—when this drive is inhibited,beings do not thrive (Kitwood, 1997)
o Riessman’s Helper-Therapy Principle
– Helping others helps the helpee and helper
– Those observing receive benefits too (Riessman, 1965)
“Members use the power of their own experienceand of their own wounds
to lighten the burden of others,and heal themselves in the process.”
(Post, 2011)
Mutual/Peer Support
“We recognize peer support as an integral component of a mental health programfor older adults.”
US Institute of Medicine
(2012)
Research and Development
The Study (Theurer, 2012)
o 6-year pilot: residents chose components
o 2-year study: staff manual developed
o 65 residents, 7 staff
o Complex care and an adult day centre
Research and funding
o Simon Fraser University
o Social Sciences and Humanities ResearchCouncil of Canada
o Michael Smith Foundation for Health Research
What is the Java Music Club?
The first standardized mutual support groupfor senior living—themes,music, photos andreadings, a Talking Stick.
Why is it unique?
1. Peers helping peers2. A safe place to share3. Talking stick ↑ courage4. Something for everyone5. Equips residents to
support those that are lonely in their home
6. Targets lonelinessand depression
The Findings: The Staff’s Experience
“I knew this was a positive program. How positive it was going to be I couldn’t have even imagined.”
Donna Levi, Therapeutic Recreation Director
The Findings:The Resident’s Experience
o active participation of thosewith cognitive impairment
o 96% enjoyed the program
o low attrition rate (15.4%)
The Resident’s Experience
Resident reports indicate:
o a decrease inloneliness
o feelings of empowerment
o the development of new friendships
A New Sense of Belonging
“It's like brothers & sisters thatyou don't have.”
The Java Music Club and Java Memory Care
“I am amazed at how residents with dementia have responded…short, simple, yet profound answers.”
Hilary Lipsett, Staff
Research Published
Journal of Applied Gerontology 2012
The Development and Evaluationof Mutual Support Groupsin Long-Term Care
Kristine Theurer1, Andrew Wister2
Andrew Sixsmith2, Habib Chaudhury2
and Loren Lovegreen3
1University of British Columbia, Vancouver, Canada 2Simon Fraser University, Vancouver, Canada 3Case Western Reserve University, Cleveland, OH, USA
This is different, something special. It takes the loneliness away.Resident
A smashing success—everyone is loving the program!Schlegel Waterloo Research Institute for Aging
I have been doing the Java Music Club have felt honoured to hear the stories and feelings. I also personally feel grateful, I listen and they listen. Thank you for taking the time to train me and for developing such an innovative and needed program.
Jackie Kramer, Retirement Recreation, Village of Winston Park
• Implemented in 186 homes across Canada• Signature spiritual program• Included French translation for Quebec• Two trainings – one east coast, one west coast• Additional programing being developed for 2016
to address resident-resident bullying
“By the end of the hour, I witnessed all 10 of these residents coming together – they were hugging and holding each other’s arms as they left the room.”
“I have heard so many amazing stories from our Lifestyle and Program Managers from across Canada. They all give me goosebumps and bring tears to my eyes.”
Laura Forsyth – Director of Life Enrichment
The Serendipity Adult Day ServicesThe Salvation Army
ReferencesAdams, K. B., Sanders, S., & Auth, E. A. (2004). Loneliness and depression in independent living retirement communities: Risk and
resilience factors. Aging & Mental Health, 8(6), 475-485. doi: 10.1080/13607860410001725054
Brownie, S., Horstmanshof, L., & Garbutt, R. (2014). Factors that impact residents' transition and psychological adjustment to long-term
aged care: A systematic literature review. International Journal of Nursing Studies. doi: 10.1016/j.ijnurstu.2014.04.011
Canadian Institute for Health Information. (2010). Depression among seniors in residential care. Ottawa, Canada.
Choi, N. G., Ransom, S., & Wyllie, R. J. (2008). Depression in older nursing home residents: The influence of nursing home environmental
stressors, coping and acceptance of group and individual therapy. Aging & Mental Health, 12(5), 536-547.
Kitwood, T. (1997). Dementia reconsidered: The person comes first. Philadelphia: Open University Press.
McLaren, S., Turner, J., Gomez, R., McLachlan, A. J., & Biggs, P. M. (2013). Housing type and depressive symptoms among older adults: A
test of sense of belonging as a mediating and moderating variable. Aging & Mental Health, 18(8), 1023-1029. doi:
10.1080/13607863.2013.805402
Neufeld, E., Freeman, S., Joling, K., & Hirdes, J. P. (2014). "When the golden years are blue": Changes in depressive symptoms over time
among new admitted to long term care facilities. Clinical Gerontologist, In press. doi: 10.1080/07317115.2014.885919
Post, S. G. (2011). The hidden gifts of helping. San Francisco, CA: Jossey-Bass.
Riessman, F. (1965). The "Helper therapy" principle. Social Work, 10(2), 27-32.
Snowden, J. (2010). Mental health service delivery in long-term care homes. International Psychogeriatrics, 27(7), 1063-1071. doi: 10.1017/S1041610210000773
Theurer, K., Wister, A., Sixsmith, A., Chaudhury, H., & Lovegreen, L. (2012). The development and evaluation of mutual support groups in long-term care homes. Journal of Applied Gerontology, 33(4), 387-415. doi: 10.1177/0733464812446866
Van Malderen, L., Mets, T., & Gorus, E. (2013). Interventions to enhance the quality of life of older people in residential long-term care: A systematic review. Ageing Research Reviews, 12(1), 141-150. doi: 10.1016/j.arr.2012.03.007
Victor, C. R. (2012). Loneliness in care homes: A neglected area of research? Aging Health, 8(6), 637-649. doi: 10.2217/ahe.12.65
What People Are Saying...
Resident Enrichment & Java Music
RESIDENTS HELPING RESIDENTS: A DYNAMIC SHIFT IN PSYCHOSOCIAL CARE
How/Why Consider Java Music?
Memory Care Programming: expansion of music therapy programs and engagement between residents and memory care associates.
Independent Living Programming: enhancement to our emotional and spiritual activities while creating additional opportunities to expand our Seniors Serving Seniors volunteer opportunities.
Pilot Sites: Java Music agreed to support in piloting 14 Memory Care and 7 Independent Living Enrichment Programs.
Resident Enrichment Philosophy
Provide life-enriching activities and events for residents and potential residents that benefit them in every aspect of living:• Physically• Intellectually• Socially• Emotionally• Creatively• Spiritually• Vocationally
While continually looking for opportunities to promote their community and the Holiday Lifestyle. A few examples are:
Resident Enrichment Philosophy
Exciting Outings
Resident Enrichment Philosophy
Baseball Games
Resident Enrichment Philosophy
Random Acts of Kindness
Seniors Serving Seniors/Society Program
What:International award-winning volunteer program developed by Holiday Retirement.
Purpose:To provide opportunities for all 35,000 residents and 10,000 associates to sustain the foundation of the company’s Grass Roots philosophy, which is to serve seniors, each other, and society.
Mission Statement:“To coordinate opportunities for senior citizens to serve other seniors as well as society, and in return, enhance purpose and passion in their lives, and enrich the lives of the individuals they serve.”
A few examples are:
Seniors Serving Seniors/Society Program
Habitat for Humanity
Seniors Serving Seniors/Society Program
Holiday Hunger-Aid: Food Drive
Seniors Serving Seniors/Society Program
Back-to-School Fundraiser
Seniors Serving Seniors/Society Program
National Police Week: Buddy Bear Drive
Java Music Club Experience
Quiet & Organized Location
Java Music Club Experience
Enticing Refreshments
Java Music Club Experience
Open Conversation
Java Music Club Experience
Engaging Chimes
Java Music Club Experience
Talking Stick = You Have the Floor
Java Music Club Experience
Increasing Resident Engagement & Friendships
A Resident Experience~ Jim & Lise
“They all welcomed me and showed me a lot of kindness and love my very first time. Then I felt like I could share my heart and my feelings. I loved that because it’s like a family; it felt
really close to my heart.”
A Resident Experience~B.J & Fran
“I think it gives everybody a little spiritual uplift also and we can all use that. We’ve all had ups and downs in our lifetime and trust me, when you get to be as old as I am, you’ve been
up and you’ve been down.”
A Resident Experience~Peg
“It is one of the best things I’ve done. I have been able to let go of a lot of stuff I’ve been holding on to. Listening to these people talk about their lives has been an awakening for
me. I feel so much better now.”
A Resident Experience~Jan
“It’s good to be with my friends. We get to visit and sing lovely songs. I’ve gotten to know them in a new way. I really enjoy it.”
Pilot Site Survey Results
17
3
1
Who typically facilitates the Java Music Club at your community?
EnrichmentCoordinator
Manager
ExternalVolunteer
Pilot Site Survey Results
12
8
1
What has the facilitator's experience been like with the
program?
Positive, easyto execute
Improving, it'sjust taking ussome time
Negative, veryhard toexecute
Pilot Site Survey Results
13
5
3
Did you feel trained and ready to execute the Java Music Club after the
webinar training?
Yes, the webinartraining wasperfect
No, additionaltraining isimportant to thesuccess
I didn't attendthe webinartraining
Pilot Site Survey Results
20
1
Do you find the printed materials and leader guide easy to follow?
Yes
No
Pilot Site Survey Results
9
6
4
2
How many residents attended your first Java Music Club experience?
4-6
7-10
16+
11-15
Pilot Site Survey Results
13
12
8
6
6
42
What benefits to participants have you seen?
Increasedengagement ofquieter residents
Improved bondingbetween groupmembers
Increasedsupportive/helpingbehavior
Increased focus onstrengths andcapabilities
Pilot Site Survey Results
16
3
2
How often do you have the Java Music Club scheduled as a regular program on
your activities calendar?
Once a week
Once a month
Twice a week
Pilot Site Survey Results
19
2
Do you see a future for Java Music Club in your community?
Yes
No
Next Steps
Problem Solve: work hand-in-hand with Java Music Club and the few communities experiencing confusion to ensure a positive experience and increased resident engagement.
Budgeting: work to incorporate Java Music Club into our 2016 budgets. With an expanded portfolio, it’s important to ensure a positive experience and then budget accordingly.
Rollout: if/when budgets are approved, roll out Java Music Club one region at a time to ensure success of the program.
Contact Info
Kristine Theurer,MA (Gerontology), MTA
Tess Aiello, Holiday Retirement
