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Rotary Club of Currie Balerno District Grant Project 2013. ‘RETINITIS PIGMENTOSA’ RP Fighting Blindness. ‘ RETINITIS PIGMENTOSA ’ RP Fighting Blindness. We are - Ralph Allardyce & Allan Maclaughlan. This Is The Traditional Image Of A Blind Person. - PowerPoint PPT Presentation
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‘RETINITIS PIGMENTOSA’RP Fighting Blindness
Currie Balerno District Assembly 2013 RPFB Project
Rotary Club
We are - Ralph Allardyce & Allan Maclaughlan
‘RETINITIS PIGMENTOSA’RP Fighting Blindness
This Is TheTraditional Image Of A
Blind Person
Currie Balerno District Assembly 2013 RPFB Project
Rotary Club
IS THE PREVENTATION OF INHERITED BLINDNESS POSSIBLE?
Retinitis Pigmentosa Fighting Blindness (RPFB) says
YES!
Retinitis Pigmentosa is a major cause of blindness in young people worldwide
The genetic faults cause irreparable retinal damage and eventual total sight loss
Currie Balerno District Assembly 2013 RPFB Project
Rotary Club
25, 000 sufferers in UK2 – 3 million sufferers worldwide
BUT !!!These figures are conservative because,
RP being a progressive condition, Many people are recorded later in life.
HOW EXTENSIVE IS RETINITIS PIGMENTOSA?
Currie Balerno District Assembly 2013 RPFB Project
Rotary Club
It is now possible to replace the defective Gene
Bad News – Good News
Bad – Unlikely to help existing sufferers restore their sight
Good – For young people: early diagnosis + planned gene therapy treatment will help
prevent further sight loss
Extensive Research has led to a BREAKTHROUGH
Currie Balerno District Assembly 2013 RPFB Project
Rotary Club
Currie Balerno District Assembly 2013 RPFB Project
Rotary Club
Animal Trials have been SUCCESSFUL
The next stage is
CLINICAL TRIALS ON HUMAN
VOLUNTEERS
‘This is a complex and expensive process’
WHAT STAGE IS THE RESEARCH AT?
Currie Balerno District Assembly 2013 RPFB Project
Rotary Club
RPFB has raised millions to get to this exciting stage
..... However .....
RPFB has committed £750,000 to raise over 5 years
That is £150,000 per year
This is where our Project begins
Funding progress to date
Currie Balerno District Assembly 2013 RPFB Project
Rotary Club
The Importance of the Work
“From the bench to the bedside”Essential to translate the science into
genuine treatments for patients losing their sight
Gene Therapy in young people offers the prospect of preservation of sight for many
years
The charity investing this money helps researchers attract £millions from statutory
funding
Currie Balerno District Assembly 2013 RPFB Project
Rotary Club
By saving someone’s sight you give that person:-
The ability to live a normal lifeFreedom from dependency on others
Reduce their reliance on the stateplus
It Meets Our FOUNDATION’S OBJECTIVE
“To Do Good In The world”
WHY BECOME INVOLVED??
Currie Balerno District Assembly 2013 RPFB Project
Rotary Club
Travel and subsistence costs of:-We (gu)estimate £1,800
This year CB is committing £1,000}Ralph has raised £500} =
£1,800With 20%District Grant £300}
------------------------------------------------CB can fund 1 Volunteer We invite 1020 Clubs to help us FUNDANOTHER.
FUNDA VOLUNTEER
Currie Balerno District Assembly 2013 RPFB Project
Rotary Club
THANK YOU from TOBYThe Next Generation
