Upload
others
View
3
Download
0
Embed Size (px)
Citation preview
Having trouble viewing this email?Click here
September 27, 2015
New England PANS/PANDAS Association
In This Issue*PANDAS Awareness Day
*Awareness Posters
*Locall Meet Up Groups
PANS Information
New, easy to sharePANS/PANDAS Informationsheets available now! Theyare convenient to email,print, and/or share withanyone who needs to knowthe basic facts aboutPANS/PANDAS. Available viawebpage and downloadablepdf file.Read More
PANDAS Awareness Day - October 9, 2015
Awareness Day Proclamation Updates
http://campaign.r20.constantcontact.com/render?ca=a33b6538-...
COMING SOON!
PANS/PANDAS Family StoriesVideo coming soon! NEPANSis excited to share a newAwareness Video with you intime for PANDAS AwarenessDay. We will also soon launcha section of PANS/PANDASStories written by membersof our community.
Stay Tuned!
Contact Us
NEPANSPO Box 1315
Duxbury, MA 02231
WebsiteNE PANS/PANDAS Assoc.
Proclamations GrantedProclamations granted in CT & NH.
Proclamations RequestedProclamations in MA, RI, VT have been requested.
Awareness CampaignsNE PANS/PANDAS has a couple fantastic PANS/PANDAS Awarenesscampaigns! Six new Awareness Posters are available to share. A newPANS/PANDAS Family Stories Video will launch soon! We are excited toshare it with you.
For More Information
Awareness Posters
Six New Awareness Posters
http://campaign.r20.constantcontact.com/render?ca=a33b6538-...
Join OurMailing List
NEPANSThe New EnglandPANS/PANDAS Association isa group of parent volunteersfrom various states acrossthe New England focused onraising awareness ofPediatric AutoimmuneNeuropsychiatric DisorderAssociated with StreptococcalInfections (PANDAS), alsoknown as PediatricAcute-onset NeuropsychiatricSyndrome (P.A.N.S.).
Our mission is simple:* To raise awareness ofPANS/PANDAS in ourcommunity and beyond* To support the medicalcommunity in their missionto heal our children sufferingfrom PANS/PANDAS* To look for ways to expandthe medical care available* To create opportunities toassist families searching forsolutions
Board Members:Margaret Chapman, MicheleDanubio, Melissa Glynn-Hyman, Lisa Grisolia, LisaHart, Emily Klein, ElizabethLaForest, Tiffani Maxwell,Robin McCune, Kim Panton,Beata Takahashi, LauraTedeschi, Gabriella True,Jennifer Whelan
NEPANS is excited to share 6 new Awareness Posters for you to use andshare!Help raise awareness on October 9-PANDAS AWARENESS DAY!
Printing Poster Size - 16x20 - You can download full size PDFs ofeach image by clicking on the images. Then you upload the PDFsto various printing companies .Printing Letter Size - We know many people won't have theopportunity to display full size posters so we have reformatted theimages to fit on letter size paper. PDF file available on website.
Read More
Local Meet Up/Support Groups
Upcoming Meetings
Do you need a little in personsupport? Below is a list of localmeetings hosted by members of thePANS/PANDAS community. Pleasecontact the individual groups if youhave questions regarding a specificgroup.
Do you organize a local MeetUp/Support group in the North East and would like us to help spread theword? Please email our Meet Up Group Coordinator.
New Hampshire Meet UpNext Meeting: Wednesday, September 30 @12:00pm-2:00pmLocation: See NH PANDAS FB Group for information
Connecticut Meet UpNext Meeting: Tuesday, October 6 @9:00amLocation: Coffee Barn, Wilton, CT
Massachusetts Meet UpNext Meeting: Monday, October 12 @6:00pmLocation: Whitman, MA Public Library
Rhode Island Meet UpNext Meeting: Thursday, October 15 @6:45pmLocation: East Greenwich
For More Information
http://campaign.r20.constantcontact.com/render?ca=a33b6538-...
What is PANS/PANDAS?
P.A.N.D.A.S (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections) and P.A.N.S. (Pediatric
Acute-onset Neuropsychiatric Syndrome) are terms used to describe a subset of children and adolescents whoexperience an encephalitic-like onset of neuropsychiatric symptoms following an infection such as Strep,Pneumonia, and Mononucleosis.
In simple terms, antibodies created to fight the infection become misdirected and attack a small area of thebrain known as the basal ganglia. This autoimmune reaction results in an acute onset of neuropsychiatricsymptoms that can include: separation anxiety, OCD, tics, age regression, sleep difficulties, personalitychanges, urinary frequency, irritability, rage, sensory sensitivities, deterioration in learning abilities andanorexia.
Forward this email
This email was sent to [email protected] by [email protected] | Update Profile/Email Address | Rapid removal with SafeUnsubscribe™ | About our service provider.
NE PANS/PANDAS Association | PO Box 1315 | Duxbury | MA | 02331
http://campaign.r20.constantcontact.com/render?ca=a33b6538-...