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A report on the findings of the 2012 parent carer short breaks survey.
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Page 1 of 6
How well do you think short breaks are meeting
the needs of children and young people?
How would you rate the choice and
availability of short breaks?
How many short breaks do you use?
Surrey Short Breaks
Survey 2012-13
24 said they were unaware of short breaks,
the full range available or how to get them
13 said short breaks
are hard to get
‘Availability especially at short notice is
still a problem’
‘Good breaks available up to 16 years
only. There needs to be more for 16+.’
‘It varies greatly. It is ok as there
are still gaps but it is much better
than it was.’
‘There are some fantastic things in place but
they seem to cater for more high functioning
or LD/MLD kids.’
183 parents replied
either online or by
post
32% didn’t mention any short breaks but some chose not to
answer the question.
Some families choose not to use any and
many don’t know the full definition of a short
break.
68% of respondents use at least one short break
service.
University of
Surrey survey*:
72% said there
aren’t ‘several’
options
* In 2011 the University of Surrey, sponsored by Disability Challengers, undertook research into short break including a survey of parents.
Only responses from parents of disabled children included here.
Page 2 of 6
Location
Gaps in Camberley, East Surrey, Epsom,
Leatherhead, Lingfield, Runnymede,
Spelthorne, Waverley
National Autistic Society (NAS) has clubs around Surrey including
Redhill, Epsom, Staines and Godalming.
Leatherhead has the Funtastic Club for all disabilities.
Challengers in Epsom, Oxted, Caterham, Dorking and Bookham.
Link Leisure runs a youth club in Camberley. There is Saturday
swimming at the Arena Leisure Centre for children with disabilities
Overnights/Weekends
“Respite with trained disability nurses.”
“For children below teenage.”
“Even if you don’t get social services.”
“More expensive but many of our
children don't sleep.”
We recognise that there will always be a need for overnight short
breaks and these services will continue to be commissioned for those
children for whom this is the best way to meet their assessed needs.
Nursing care is provided by the NHS for children with complex health
needs who meet the criteria for continuing health care; this may be
provided in the child's own home or a residential setting.
Day/Weekend trips
“Something at PGL Hindhead?”
“Real activity breaks; canoeing,
climbing, archery.”
“Use SCC facilities (e.g. High Ashurst).”
Disability Challengers, Link Leisure and NAS have regular day trips and
occasional overnight trips.
High Ashurst and PGL Hindhead are great ideas! We will make a note
of them, and take them forward as budgets allow.
Holidays
“Haven/Butlins should offer
subsidised breaks.”
“Holidays at the seaside.”
“A 5-7 day summer camp.”
“Help throughout the summer!”
Many organisations run holiday schemes including; Challengers
(Bookham, Dorking, Epsom, Farnham, Guildford, Caterham, Oxted),
Link Leisure (Woking), Reigate & Redhill YMCA, interAKtive – ASD
(Worcester Park), Grafham Grange – ASD (nr Guildford) and White
Lodge (Chertsey, Addlestone, Walton, Spelthorne).
We’ve noted ideas regarding Butlins/Haven and full summer service.
Sports
“More sports clubs for the disabled.”
Dancing, boxing, athletics, trampolining,
Judo/karate, canoeing, swimming clubs
Sports clubs can be found at:
www.activesurrey.com/clubs/activity-finder
www.asksid.org.uk/fab
Teenagers
“My son needs a social skills group”
‘There should be more during holidays.’
“11+ and for a certain activity.”
Again, there are a number organisations that run schemes for teenagers.
Get in touch with Surrey Short Breaks or visit www.asksid.org.uk/fab for
more information.
Autism
“More for 14-18 yr olds with mild ASD.”
“Support groups, trained specialist staff
to come to the home, social groups.”
“Social groups for children with
Aspergers but high intellectual ability.”
The NAS has youth clubs in Ash, Guildford, Woking, Epsom, Reigate
and Staines. There is a NAS Family Support Worker who offers advice
and support on the phone or at home. NAS run support groups.
halow organise weekend and evening trips for young people aged 16+
Link Leisure (Woking, Camberley) run lots for young people with
learning disabilities.
Where are
the gaps in
Surrey?
Though we have made some
suggestions, these main
themes have been noted.
University of Surrey
survey: “Disabled
children are accessing
significantly less activities
than non-disabled peers.”
You said... Did you know...
Page 3 of 6
Where do you get information on short breaks?
How far do you agree/disagree that views of parents/carers are taken into account about short breaks?
- ‘Strongly Agree - Agree - ‘Strongly Disagree - ‘Disagree’
- 25
- 46
- 11
- 18
- 19
- 40
- 14
- 13
How would you like to have your view heard?
Parents/Carers Children / Young People
‘Parents of children with the highest
needs can't get to conferences etc and
often too tired to fill in forms.’
TOP 5 WAYS PARENTS
WANT INFORMATION:
1. By email
2. Schools
3. By post (via Disability Register)
4. Good as it is!
5. A single website
‘More posters - send to school, children's
centres, GP surgeries etc. Radio advert?’
‘I think that the better sharing of
information is one of the great successes
of the Aiming High project in Surrey. A
website up to date with all the contact
details of helpful.’ organisations would
be good.
University of
Surrey survey:
39% said it is
difficult to get
information
Page 4 of 6
Ensure services
all over Surrey
More!
Wider range and more places
More overnight support -
prevent family breakdown Raise awareness –
clear and easily accessible
information
Day/ Weekend trips –
especially for older children
How would
you spend the
short breaks
budget?
University of
Surrey survey: 33% think services for "Any disability"
are best. Only
around 8% prefer
"Integrated".
University of Surrey survey:
Most important factors for
short breaks: Having been before, staff ratio, staff competence, the range of activities, a
warm welcome!
Page 5 of 6
Other ideas ‘Easy access after-school clubs with
transport home or in local area.’
‘Befriending schemes across Surrey.’ ‘Soft play centre especially for special
needs.’
‘More 1:1 support including playschemes’ ‘Clubs where they learn something e.g.
swimming.’
‘Recently a canal trip was offered. It
would be great if adventures like that
were offered more regularly.’
‘Drop-in resource to cope with
emergencies and care at short
notice’
‘I would love to see a 'disco' based
occasional party for the older youngsters
to mingle with people of the opposite
sex.’
‘Grants to take a break, subsidised entry into
soft play areas, theme parks, theatres, cinema
together with free entry passes for the extra
carers’
‘Is there any chance that Surrey short breaks could
team up with Surrey Arts and provide suitable music
lessons within the school day for disabled children.’
‘Free or sponsored crèche-style clubs
operated on hourly basis.’
‘Aspergers activities during holidays
(secondary school age)’
‘More liaison workers for families under
stress would be good.’
‘interactive breaks that involves interacting
with the community through mentored
volunteering.’
‘there are a lot of families going
into crisis from the
SLD/Complex/Behavioural end of
the scale.’
.’
‘Please please more availability of schemes over
Christmas, this is such a stressful time and respite is
closed the whole time.’
‘Give parents the money to use as they feel
would best meet the needs of the child and
family’
‘Please do something for siblings - maybe a
siblings group. Desperately needed.’
‘Would like a more coherent list - sometimes
unsure what organisation is doing what.’
‘Nothing is available to children who
are unable to go out.’
Page 6 of 6
Compliments
‘Surrey Short Breaks has provided a
great service - especially the Fun Days
and trips to Thorpe Park
‘I’m pleased with the level of work
being put into improving services. It
has made a dramatic difference..’
‘short breaks (aside from overnight) has
improved a lot in the last four years and
communication is much better, so well done
‘Everyone I have come into contact with
has been lovely. The Merlin Pass is
amazing. Thank you very much for
supporting my family.’
‘The services in existence are brilliant
and provide a lifeline to all who use
them however we need more!.’
‘We feel Surrey provides a good service
and number of activities for disabled
children and young people.’
‘I think we are lucky to be living in Surrey where there is such good
provision.’