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Georgia State University Georgia State University
ScholarWorks @ Georgia State University ScholarWorks @ Georgia State University
GHPC Materials Georgia Health Policy Center
1-13-2012
Sickle Cell Disease in Metro Atlanta Sickle Cell Disease in Metro Atlanta
Georgia Health Policy Center
Follow this and additional works at: https://scholarworks.gsu.edu/ghpc_materials
Recommended Citation Recommended Citation Georgia Health Policy Center, "Sickle Cell Disease in Metro Atlanta" (2012). GHPC Materials. 25. https://scholarworks.gsu.edu/ghpc_materials/25
This Article is brought to you for free and open access by the Georgia Health Policy Center at ScholarWorks @ Georgia State University. It has been accepted for inclusion in GHPC Materials by an authorized administrator of ScholarWorks @ Georgia State University. For more information, please contact [email protected].
Sickle Cell Disease in Metro Atlanta
Number of Georgia Babies Born with Sickle Cell Disease over Five Years
Metro Atlanta: 414 sickle cell disease babies born in �ve years
Types of Sickle Cell Disease in Metro Atlanta Babies
Overnight Hospital Stays and ER VisitsTogether, those 3,908 people made a total of 49,581 hospital and ER visits for complications related to sickle cell disease. Many more of those were ER visits (35,341) than overnight hospital stays (14,240).
Num
ber o
f vis
its
Hospital Stays and ER Visits by Age GroupThis group of 3,908 people made more ER visits than hospital stays in all age groups. People from 20-29 made the most ER visits (12,490) and had the most hospital stays (3,726).
Num
ber o
f vis
its
Sickle Cell Hospital Visits There were 3,908 people from Metro Atlanta who had hospital visits at some time over the �ve years for problems related to sickle cell disease. Many of these (937) had only one visit. Almost twice as many (1,846) had �ve or more visits - at least one per year, on average.
Num
ber o
f peo
ple
who
had
an
y he
alth
car
e vi
sits
Note: We are unable to tell from the records how many people with sickle cell disease did not make any health care visits in this time period.
Age of Patient
109
233 of 414
Newborn Screening Tells Us (2004-2008):
Hospital Billing Records Tell Us (2004-2008): H
Number of Visits
Type of Visit
Clayton, Cobb, DeKalb, Fulton, Gwinnett
Sickle cell anemia (Hb S/S) or Hb S/β0 thalassemia
Sickle C disease (Hb S/C)
Hb S/β+ thalassemia
Sickle cell disease with genotype uncertain
Compound heterozygous forms of sickle cell disease
937 people
503 349
273
1,846 people
-
250
500
750
1,000
1,250
1,500
1,750
2,000
1 2 3 4 5 or more
14,240
35,341
-
5,000
10,000
15,000
20,000
25,000
30,000
35,000
40,000
Hospital stays ER visits
2,502 2,990
3,726
2,491
1,542 738
218 33
4,029 3,421
12,490
7,900
5,402
1,705
332 62 -
2,000
4,000
6,000
8,000
10,000
12,000
14,000
0-9 10-19 20-29 30-39 40-49 50-59 60-69 70 and older
Hospital stays ER visits
30
36
6
Sickle Cell Centers and Clinics in Georgia
Newborn ScreeningNewborn Screening is a program to test new babies for conditions that can cause major illness, mental retardation, or even death if not found early and treated. Early diagnosis and proper care and treatment can make a big di�erence for babies with these conditions. Sickle cell disease is one of the conditions tested for in Georgia.
Newborn screening is directed by the Georgia Department of Public Health in collaboration with doctors and hospitals across the state. Since 1969 over two million babies have been screened in Georgia.
Registry and Surveillance System for Hemoglobinopathies (RuSH)Georgia is one of seven states participating in the RuSH project. The goal of RuSH is to �nd out how many people in Georgia have sickle cell disease or thalassemia in order to improve health care and other resources for these populations.
The data presented here for your part of the state shows the kind of information RuSH was designed to collect and how it can be useful. Knowing there are more ER visits than hospital stays, and what ages of patients make the most visits, can help hospitals, health departments, patient advocates and others better serve people with sickle cell disease.
Six organizations with a range of perspectives and expertise are partnering on the RuSH project in Georgia:
• Newborn Screening Unit, Georgia Department of Public Health• Sickle Cell Disease Foundation of Georgia, Inc. • Georgia Comprehensive Sickle Cell Center, Grady Health System• Aflac Cancer Center and Blood Disorders Service, Children’s HealthCare of Atlanta • Comprehensive Sickle Cell Center, Georgia Health Sciences University • Georgia Health Policy Center, Georgia State University
Children’s HealthCare of Atlanta
Grady Sickle Cell Center
Georgia Health Sciences University
(GHSU) Sickle Cell Center
C - Serves Children
A - Serves Adults
CA - Serves Children & Adults
Ware
Burke
Clinch
Hall
Laurens
Lee
Coffee Wayne
Early
Floyd
Bulloch
Worth
Fulton
Charlton
Screven
Long
Dodge
Emanuel
Decatur
Troup
Polk
Harris
Jones
Tift
Wilkes
Carroll
Dooly
Bryan
Grady
Liberty
BrooksCamden
Thomas
Telfair
Colquitt
Cobb
Sumter
Irwin
Bartow
Echols
Appling
WalkerGilmer
Glynn
Coweta
Mitchell
Elbert
Tattnall
Talbot
Taylor
Stewart
Jasper
Rabun
Berrien
WashingtonJefferson
Fannin
Macon
Lowndes
Union
Greene
Baker Pierce
Hancock
Wilcox
Bibb
Monroe
Upson
Brantley
Hart
Twiggs
Henry
Crisp
Pike
Terrell
Heard
Marion
Gwinnett
Toombs
McIntosh
Gordon
Murray
Jenkins
Walton
Miller
Effingham
Putnam
ClayBacon
Cherokee
Morgan
Wilkinson
Randolph
Houston
Cook
Meriwether
Jackson
Turner
Chatham
Oglethorpe
White
Banks
Atkinson
Johnson
Warren
Paulding
Dade
Newton
Wheeler
Butts
Pulaski
DeKalb
Madison
Baldwin
Jeff Davis
Crawford
Calhoun
Richmond
Lincoln
Candler
Haralson
Dougherty
Forsyth
Whitfield
Lumpkin
Evans
FranklinChattooga
Columbia
Pickens
Towns
Ben Hill
LanierSeminole
Lamar
Dawson
Fayette
Schley
Bleckley
Peach
Douglas
Treutlen
Barrow
Catoosa
Spalding
Muscogee
Stephens
Clarke
McDuffie
Oconee
Webster
Habersham
TaliaferroClayton
Montgomery
uitman
Chattahoochee
Glascock
Rockdale
CA
C
AC
A
ACCA
AC
AC
Public Health Outreach Sickle Cell Clinics(Services provided by GHSU)
- Dublin - Athens- Macon- Savannah- Waycross- Valdosta- Albany
Georgia
There are di�erent types of sickle cell disease.Sickle cell disease a�ects each person di�erently. There are di�erent types of the disease, some that are severe and others that are mild. It is important to know which type you have and tell your doctor. Some of the di�erent types of sickle cell disease are shown on the charts at right.
These are some things that are important to do if you have sickle cell disease:
• Get regular checkups • Get recommended vaccinations • Prevent infections • Learn healthy eating habits • Get support from others
People with sickle cell disease can do things to reduce complications.
FactsNot just African Americans get sickle cell disease.People whose families come from any part of the world can have sickle cell disease. That is why states in the U.S. test all newborn babies for the disease.
It’s important to know if you have sickle cell trait even if you don’t have any symptoms.Some people inherit a sickle cell gene from one parent and a normal gene from the other. In this case, they have sickle cell trait, not sickle cell disease. It is possible to have health complications from sickle cell trait unless you know what to do to avoid them. It is also possible to pass sickle cell trait or even sickle cell disease on to your children if both parents carry the sickle gene.
Sickle cells travel through small blood vessels and clog blood �ow. This causes mild to severe pain that can start suddenly and last for any amount of time.
Pain is the most common symptom of sickle cell disease.
Sickle Cell Foundation of Georgia, Inc. 2391 Benjamin E. Mays Dr., Atlanta, GA 30311
404.755.1641 www.sicklecellga.org
Adapted from Centers for Disease Control and Prevention Sickle Cell Disease Quiz: http://www.cdc.gov/ncbddd/sicklecell/quiz/index.html