Glenn T. Fujiura, Ph.D.University of Illinois at Chicago

Monitoring the Status and Prospects of People Monitoring the Status and Prospects of People with Disabilitieswith Disabilities Equip Seminar, USAID January 2008Equip Seminar, USAID January 2008

1. Some Context

2. The Status and Prospects Study

3. Concluding Thoughts

Overview

Glenn T. Fujiura, Ph.D.University of Illinois at Chicago

Monitoring the Status and Prospects of People Monitoring the Status and Prospects of People with Disabilitieswith Disabilities Equip Seminar, USAID January 2008Equip Seminar, USAID January 2008

Status and Prospects StudySpecial Olympics International & Centers for Disease Control

• Purpose of the study• International status of disability

monitoring• Approach

Glenn T. Fujiura, Ph.D.University of Illinois at Chicago

Monitoring the Status and Prospects of People Monitoring the Status and Prospects of People with Disabilitieswith Disabilities Equip Seminar, USAID January 2008Equip Seminar, USAID January 2008

Inclusion of ID in Recurring National Data Systems

CHINA Features Indicators

Surveillance System Type GD ID Agency Freq H f W rk Ed He Inc So Ss

1st National Survey of D isability PS 3 3 multiple 1987 3 3 3 3 3 3 3

2nd National Survey of D isability PS 3 3 multiple 2006 3 3 3 3 3 3 3

China National Population & Housing Census

C 3 NBS 10 yrs 3 3 3

Com prehensive Labour S tatistics Reporting System

C NBS 1 yr 3 3

Education S tatistics R 3 3 MOE 1 yr 3Health & Nutrition Survey PS 3 3 CCDCP 3 yrs 3 3 3 3 3 3 3National Health Services Survey PS MH 5 yrs 3 3Poverty M onitoring Survey PS NBS 1 yr 3 3 3 3Rural Household Survey PS NBS 1 yr 3 3 3 3 3Statistica l Reporting System Tra in ing & Em ploym ent

R MLSI 1 yr 3

Urban Household Survey PS NBS 1 yr 3 3 3Urban Labour Force Survey PS NBS 1 yr 3 3 3

China Centers for D isease Contro l & Prevention (CCDCP), M in istry of Education (M O E), M inistry of Health (M H), M in istry of Labour & Socia l Insurance (M LSI), and National Bureau of S tatistics of China (NBS); “m ultip le = CC DCP and NC Chapel H ill Carolina Population Center.

Glenn T. Fujiura, Ph.D.University of Illinois at Chicago

Monitoring the Status and Prospects of People Monitoring the Status and Prospects of People with Disabilitieswith Disabilities Equip Seminar, USAID January 2008Equip Seminar, USAID January 2008

Inclusion of ID in Recurring National Data Systems

EGYPT Features Indicators

Surveillance System Type GD ID Agency Freq H f W rk Ed H e Inc So Ss

C ensus of Population C 3 3 CAPMAS 10 yrs 3 3 3 3

D em ographic & H ealth Survey

PS MHP 3 yrs 3 3 3 3 3

Labor Force Sam ple Survey

PS 3 CAPMAS 6 mos

3 3

C entra l Agency for Public M obiliza tion & S tatistics (C APM AS) and the M in istry of H ealth & Population (M H P)

Glenn T. Fujiura, Ph.D.University of Illinois at Chicago

Monitoring the Status and Prospects of People Monitoring the Status and Prospects of People with Disabilitieswith Disabilities Equip Seminar, USAID January 2008Equip Seminar, USAID January 2008

Inclusion of ID in Recurring National Data Systems

SOUTH AFRICA Features Indicators

Surveillance System Type GD ID Agency Freq H f W rk Ed H e Inc So Ss

Annual School Survey C 3 DE 1 yr 3Com m unity Survey PS 3 3 SSA 5 yrs 3 3 3 3 3Dem ographic & H ealth Survey PS 3 DH 5 yrs 3 3 3 3 3 3Education M anagem ent Inform ation System s

R 3 DE 1 yr 3

Higher Education M anagem ent Inform ation System s

R 3 DE 1 yr 3

G eneral Household Survey PS 3 3 SSA 1 yr 3 3 3 3 3 3Incom e & Expenditure Survey PS 3 SSA 3 yrs 3 3 3 3 3 3Labour Force Survey PS 3 SSA 6 mos 3Population and Housing Census

C 3 3 SSA 10 yrs 3 3 3 3 3

D epartm ent of Education (DE), Departm ent of H ealth (D H ), and S tatistics South A frica (SSA).

Glenn T. Fujiura, Ph.D.University of Illinois at Chicago

Monitoring the Status and Prospects of People Monitoring the Status and Prospects of People with Disabilitieswith Disabilities Equip Seminar, USAID January 2008Equip Seminar, USAID January 2008

Inclusion of ID in Recurring National Data Systems

Total recurring national systems

Systems including other disabilitySystems including other disability

Systems including IDSystems including ID0

30

60

90

Educatio

n

Household

Inco

me

Servi

ces

Social

Work

To

tal

Sy

ste

ms

Re

vie

we

d

Glenn T. Fujiura, Ph.D.University of Illinois at Chicago

Monitoring the Status and Prospects of People Monitoring the Status and Prospects of People with Disabilitieswith Disabilities Equip Seminar, USAID January 2008Equip Seminar, USAID January 2008

Domain Indicator Max Value

School Access

% enrollment National avg

School Integration

% non-segregated schools

100% of enrollment

Inclusive Education

% mainstream 100% of enrollment

Work Participation

% day activity National employment

rate

Open Employment

% employed 100% of work

participation

Institutional-ization

% inst population 0

Standard Rules

Ratings (0-5) on policies

5

• modified HDI

• Scale free

• Relative benchmark

• Indicators based on lowest common denominator

xx

xXIndex

valueminvaluemax

valuemin

Glenn T. Fujiura, Ph.D.University of Illinois at Chicago

Monitoring the Status and Prospects of People Monitoring the Status and Prospects of People with Disabilitieswith Disabilities Equip Seminar, USAID January 2008Equip Seminar, USAID January 2008

• Index created for each domain

• ID vs general disability

• 33% of the indices could not be computed

Index Scores By C ountry and D om ain (PR ELIM IN AR Y O N LY: M ISSIN G D ATA)

NationAccess to

SchoolSchool

InclusionClass

InclusionLabor Force Participation

Non Sheltered

W ork

Non Institutional

Living

Standard Rule Rating

Brazil

G eneral D isability 0.92 0.50 -- 0.82 -- 1.000.45

Inte llectual D isability 0.70 0.33 -- 0.39 -- 0.99

China

G eneral D isability 0.64 0.76 -- 0.46 0.97 0.990.47

Inte llectual D isability 0.47 0.87 -- 0.36 .09 0.99

Egypt

G eneral D isability 0.13 -- -- 0.56 -- --0.37

In te llectual D isability 0.09 -- -- -- -- --

Germany

G eneral D isability 1.00 0.15 0.15 0.32 0.83 0.810.63

Inte llectual D isability 1.00 0.03 0.03 -- 0.10 0.81

India

G eneral D isability 0.62 0.95 -- 0.65 -- --0.40

In te llectual D isability 0.23 0.68 -- 0.14 -- --

Ireland

G eneral D isability 1.00 0.99 0.61 0.63 0.58 0.980.69

Inte llectual D isability 1.00 0.66 0.26 0.26 0.10 0.83Japan

G eneral D isability 1.00 0.70 0.41 0.23 0.19 0.940.60

Inte llectual D isability 1.00 0.63 0.00 0.46 0.05 0.74

Nigeria

G eneral D isability .01 -- -- -- -- --0.24

In te llectual D isability -- -- -- -- -- --

Northern Ireland

G eneral D isability 1.00 0.91 0.47 0.43 -- 0.973.50

Inte llectual D isability 1.00 -- -- 0.14 -- 0.92

Russia

G eneral D isability 0.57 0.31 -- 0.25 -- 0.811.22

Inte llectual D isability 0.22 0.00 -- 0.08 -- 0.73

South Africa

G eneral D isability 0.90 0.72 0.64 0.55 -- --2.50

In te llectual D isability 0.21 -- -- 0.50 -- --

United States

G eneral D isability 1.00 0.97 0.53 0.64 0.95 0.963.89

Inte llectual D isability 1.00 0.95 0.11 0.43 0.42 0.96

Index Scores By C ountry and D om ain (PR ELIM IN AR Y O N LY: M ISSIN G D ATA)

NationAccess to

SchoolSchool

InclusionClass

InclusionLabor Force Participation

Non Sheltered

W ork

Non Institutional

Living

Standard Rule Rating

Brazil

G eneral D isability 0.92 0.50 -- 0.82 -- 1.000.45

Inte llectual D isability 0.70 0.33 -- 0.39 -- 0.99

China

G eneral D isability 0.64 0.76 -- 0.46 0.97 0.990.47

Inte llectual D isability 0.47 0.87 -- 0.36 .09 0.99

Egypt

G eneral D isability 0.13 -- -- 0.56 -- --0.37

In te llectual D isability 0.09 -- -- -- -- --

Germany

G eneral D isability 1.00 0.15 0.15 0.32 0.83 0.810.63

Inte llectual D isability 1.00 0.03 0.03 -- 0.10 0.81

India

G eneral D isability 0.62 0.95 -- 0.65 -- --0.40

In te llectual D isability 0.23 0.68 -- 0.14 -- --

Ireland

G eneral D isability 1.00 0.99 0.61 0.63 0.58 0.980.69

Inte llectual D isability 1.00 0.66 0.26 0.26 0.10 0.83Japan

G eneral D isability 1.00 0.70 0.41 0.23 0.19 0.940.60

Inte llectual D isability 1.00 0.63 0.00 0.46 0.05 0.74

Nigeria

G eneral D isability .01 -- -- -- -- --0.24

In te llectual D isability -- -- -- -- -- --

Northern Ireland

G eneral D isability 1.00 0.91 0.47 0.43 -- 0.973.50

Inte llectual D isability 1.00 -- -- 0.14 -- 0.92

Russia

G eneral D isability 0.57 0.31 -- 0.25 -- 0.811.22

Inte llectual D isability 0.22 0.00 -- 0.08 -- 0.73

South Africa

G eneral D isability 0.90 0.72 0.64 0.55 -- --2.50

In te llectual D isability 0.21 -- -- 0.50 -- --

United States

G eneral D isability 1.00 0.97 0.53 0.64 0.95 0.963.89

Inte llectual D isability 1.00 0.95 0.11 0.43 0.42 0.96

Glenn T. Fujiura, Ph.D.University of Illinois at Chicago

Monitoring the Status and Prospects of People Monitoring the Status and Prospects of People with Disabilitieswith Disabilities Equip Seminar, USAID January 2008Equip Seminar, USAID January 2008

Benchmarking Disability: General

0.0 0.2 0.4 0.6 0.8 1.0

S Africa

Russia

Ireland

N. Ireland

Nigeria

Japan

India

Germany

Egypt

China

Brazil

General Disability ID

Glenn T. Fujiura, Ph.D.University of Illinois at Chicago

Monitoring the Status and Prospects of People Monitoring the Status and Prospects of People with Disabilitieswith Disabilities Equip Seminar, USAID January 2008Equip Seminar, USAID January 2008

Benchmarking Disability: Education

0 0.2 0.4 0.6 0.8 1

US

S Africa

Russia

N Ireland

Japan

Ireland

India

Germany

Egypt

China

Brazil

Disabilty

ID

Glenn T. Fujiura, Ph.D.University of Illinois at Chicago

Monitoring the Status and Prospects of People Monitoring the Status and Prospects of People with Disabilitieswith Disabilities Equip Seminar, USAID January 2008Equip Seminar, USAID January 2008

• Relative Disadvantage

• Heterogeneity within Disability

• Importance of Visibility

Concluding Thoughts