Special Needs Mom's - O’Hana Kids’ News · 2016. 6. 2. · Exceptional Advocate Newsletter Mainly for Military families, there is information in this resource for families who

Edition #24 May 2012

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

May is Better Speech & Hearing MonthMay 9 is National School Nurse Day

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Special Needs Mom's

You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do!

We've gained patience beyond measure, love we never dreamed of giving. We worry about the future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. We feel joy and pride and thankfulness more often than we cry.

For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased.

Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!

We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.

-- April Vernon

Page 13

v Camp Quality USA Camp Quality USA, Inc., provides year-round support programs for children with cancer and their families. Programs include our signature week-long camp and other year-round programs such as reunions and ski camps. Each camp is volunteer run and community funded. Camp Quality gives families a much needed rest, knowing that the highest quality program has been selected for their child – a companion will be assigned to ensure the child’s safety and the finest medical supervisors are provided at each camp to administer medications and on-site care. Campers at Camp Quality range from 4 years of age through 17 and vary in stages of their treatment or remission. They are children who smile, laugh, play and have dreams for a bright future. The Companions are the lifeblood of the camp. They are the around-the-clock caretaker for the campers and ensure the most enjoyable, safe, relaxing, and restoring experience possible for each child. Each companion, at least 18 years of age, is interviewed, background checked, and trained BEFORE camp!! Camp Quality provides all the year-round programs at NO COST to families. The camp is run 100% on donations, supplies and volunteer hours. Would you like to volunteer? Or know more about Camp Quality or even Register for an upcoming Camp? Contact Caleb Rogers at 712-310-8177 or via email [email protected]

v Exceptional Advocate Newsletter Mainly for Military families, there is information in this resource for families who have kids with special needs. Check it out. There are tips on preparing for the new school year, information on immunization requirements for military family members, and resources for ensuring emergency preparedness for your whole family, including a Special Needs Parent Tool Kit and more (see page 4). Read it at http://apps.militaryonesource.mil/efmp/book/2013/August/

v True Buddy Farms – Home of Luv A Lamb We provide day camps, individual therapy sessions, & veterinary clinics at the farm. We were established in 2009. Our mission is to encourage & teach life skills to youth & adults through animal therapy & recreational farm work. Our focus is to enhance therapies for youth & adults with special needs & to build relationships among youth in our community. We work closely with Sarpy/Douglas 4-H, and several other community programs. Our main program is the 4 week summer camp session which concludes at the Sarpy County Fair with our True Buddy Sheep Show. True Buddy-Luv-A-Lamb pairs special needs or medically challenged children & adults with a youth volunteer & a sheep. This gives volunteer youth the opportunity to work with special needs individuals & to participate in community service projects. In turn, it is providing occupational & physical therapy to children & adults with special needs or medical challenges through the interactions with our sheep. Physical therapy, communication, & response come naturally when our True Buddies walk a sheep. Contact Donna at [email protected] for more information or to be added to the mailing list!

v Dr. Michels in Omaha Offers Orthopedic Screenings for Shriners Hospital Dr. Michels at Omaha Orthopedic Clinic in Omaha, NE is opening some time in his schedule to work in Shriners Hospitals for Children – Twin Cities Screenings. Any child that may have an orthopedic condition is welcome to make an appointment & see Dr. Michels for a referral to Shriners Hospital free of charge. The Shriners in Nebraska are available to assist with transportation for any child that is referred to the hospital in the Twin Cities. Those arrangements can be made at the time their first visit is scheduled with Shriners Hospitals for Children –Twin Cities. You can read more about Shriners Hospitals at www.shrinershospitalsforchildren.org/twincities For more information about Dr. Michels & his office for scheduling call 402-691-0500. His office is located at 11704 W. Center Frontage Rd. N, OMAHA, NE 68144 He is offering complimentary screening appointments for children with any bone, muscle, or joint conditions. Please say you are calling for a Shriners Hospitals for Children Screening when you make your appointment.

v Shriners Hospitals for Children – Twin Cities Shriners Hospitals for Children – Twin Cities is a non-profit healthcare organization that has been specializing in pediatric orthopedics for over 91 years. Our mission is to provide the highest quality care for all children, regardless of a family’s ability to pay. We focus on providing patients with an exceptional depth of expertise, and are proud members of the Mayo Clinic Care Network, which provides our patients direct access to Mayo Clinic resources. Our family centered approach to care means your child will have the opportunity to develop a close relationship with each member of the care team. Our patients and families appreciate us. In satisfaction surveys, we rank among the top 10% of hospitals nationwide. If your child has a condition of the bones, joints, or muscles; make an appointment by calling us at (612)596-6105. Transportation services can be provided as needed. You can also check out this link, www.shrinershospitalsforchildren.org/locations/twincities

v New Federal Guidelines to Make Air Travel Easier for Individuals with Disabilities The U.S. Department of Transportation teamed up with The Arc and the Autistic Self Advocacy Network to create a list of guidelines for air carriers to follow when assisting travelers with developmental disabilities. The rules are not an addendum to the Air Carrier Access Act; rather, they seek to provide clarification about the existing regulations for both airlines and travelers. The guide addresses topics like what to do/know before flying; what airlines are required to provide people with disabilities; information on service dogs; and how to file a disability-related complaint, etc. The Department of Transportation said in a statement to Disability Scoop, “Recent incidents highlight the need for a guidance document focusing on developmental disabilities, to assist individuals on the autism spectrum and individuals with other developmental disabilities know their rights.” Read the full set of federal guidelines: https://www.transportation.gov/sites/dot.gov/files/docs/ This article was borrowed from The Mighty, in Ollie Webb Center, Inc. monthly newsletter.

Statewide Information

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-- April Vernon

Page 14

SWIMMING Lessons

Swimtastic Swim School 7911 Pioneers Blvd, LINCOLN

(402)489-‐SWIM (7946)

Many of our instructors are qualified AND comfortable working with children who have special needs! We have an open schedule, to

fit YOUR needs! Many lesson options available, including Group Lessons & a 4:1 ratio of kids to teacher, Semi-‐Private Lessons of 2:1 kids to teacher & Private Lessons of 1 on 1. We work to individualize the teaching

to the needs of the child & the family!

Swimtastic Swim School 2920 N 118th Street, OMAHA (402)496-‐SWIM (7946)

2 Locations!

www.swimtastic.com

SWIMMING LESSONS! Lincoln Park and Recreation is willing to work with any family to find a swim lesson program for children with special needs. We have mainstream, inclusive, adaptive,

& private lessons available. Partial scholarships are available for all aquatics

programs.

Saturdays, July 11 – August 8 there is an Introduction to Adaptive Swim Team program for youth who can swim independently or with floatation that runs from

10:30 am to 11:30 am at Highlands Pool, LINCOLN. Cost is $20.

We have added adaptive swim lessons at Star City Shores

& Highlands Pool, both of Lincoln. Cost is $32 for 8 lessons

Go Online to enroll at www.parks.lincoln.ne.gov

Or Questions can be sent to [email protected]

Learning to Swim With Autism: By Swimtastic Corporation

According to a recent study, 1% of all American children have autism. Parents looking for activities with their children who have special needs may be pleasantly surprised to learn that swimming is a great choice. Swim lessons for children (or adults) with autism are approached from a different angle than typical lessons by using the following methods: Individualism: Each child is different. They have different interests and respond in their own way to different approaches. Swim lessons can be tailored so that the right approach is used for the right child. Private lessons are ideal for children with special needs because they allow the instructor to work on specific goals for each particular swimmer. Routine consistency: If you have a child with autism, you are well aware that sudden changes may lead to a higher level of unwanted stress. Trained instructors are well aware of this fact and work to develop a routine for each swim lesson that meets the need of the student. Visualization: Many children with autism are visual learners. Thus, visuals are often incorporated into the lesson, which aids to increase both their comfort level and their learning curve. Not only is it possible for children with autism to learn to swim, but it can be incredibly beneficial to them. Besides the obvious benefits that apply to all swimmers, children with autism can also benefit in a number of other ways. Some of those benefits include: Building self-‐esteem: Learning a new skill, like swimming, will provide a sense of accomplishment for the student. Preventing accidents: Drowning is one of the leading causes of death for a child with autism. A child who have been properly trained how to swim will be safer around water. Exercising safely: The pool is a safe way to exercise. Swimming is a low impact sport, and one of the few activities that use the majority of your muscles. Swimming can relieve muscle stiffness, enhance muscle relaxation, and build muscle strength. Relaxation: Many special needs children find the pool to be relaxing. Underwater submersion provider immense amounts of comfort as the sounds of the busy world are cancelled out when underwater.

Lincoln YMCA are offering adaptive swim lessons called “Turtle” www.ymcalincoln.org

Lincoln Park & Recreation Summer Camps

For More Information contact Sherry at 402-‐441-‐7948 Must Register for these camps! Forms to register will be available March 2016

Art Extravaganza Camp for ages 13 & Up

Starts June 6 – Runs Monday through Friday from 1:15 – 4:15 pm COST: $70.00 per person

**Door to door transportation is available within Lincoln for $22.50 for the week, must register LOCATED AT: Easterday Recreation Center, 6130 Adams St, LINCOLN

Drama Camp for ages 13 & Up

Starts July 25 – Runs Monday through Friday from 9:30 am to 3:00 pm COST: $113.00 per person

**Door to door transportation is available within Lincoln for $22.50 for the week, must register LOCATED AT: Auld Pavilion, 1650 Memorial Dr., Antelope Park, LINCOLN

Adaptive Recreation SumFun Day Camp for ages 5 to 21

Start Dates are: June 20, June 27, July 11 and July 18 , Runs Monday through Friday each week is a different session From 9:00 am to 2:30 pm

COST: $89.00 per person per session **Door to door transportation is available within Lincoln for $22.50 per week, must register

LOCATED AT: Auld Pavilion, 1650 Memorial Dr., Antelope Park, LINCOLN SumFun is a camp designed to meet the needs of youth with intellectual and physical disabilities. The program offers a wide range of recreation

activities which provides opportunities for social interaction and aid in the development of physical and social skills. SumFun is designed to provide a paid staff to participant ratio of 1:5. Activities will include arts and crafts, games, music, sports, swimming, and field trips. Participants will be

assigned to camp groups according to their age. Enrollment is limited. Registrations are taken on a first come first served basis.





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-- April Vernon

CAMP INFORMATION

THERAPLAYCE 4930 L Street, OMAHA

TIMES: 9:00 am to 3:00 pm or Noon to 6:00 pm

Come join us to fill your summer with excitement, learning, and fun! Meet new friends, experience new activities, and learn life skills! Camp activities include: Arts & Crafts, Water Play, Self Help Skills, Climbing and Swinging, Motor Activities, Team Sports, and Much, Much More!

Week 1 June 13 – 17 Week 2 June 20 – 24 Week 3 June 27 – July 1 Week 4 June 11 – 15 Week 5 June 18 – 22 Week 6 July 25 -‐ 29

Full week, full day, or half day options are available. Please call for more information or to register!

See the website for more details and registration form! www.theraplayce.com

Call 402-‐301-‐6829 or 402-‐731-‐8888





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[email protected]

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Special Needs Mom's






-- April Vernon

CAMP INFORMATION

Creighton Pediatric Therapy OMAHA

SUMMER CAMPS!

Picnic and Play Tuesdays and Thursdays, June 7 – 23

10:30 am to 12:00 pm For children between the ages of 3 & 7 with feeding, communication, and gross motor

development needs.

Movin; & Groovin’ the WRITE Way Mondays & Wednesdays, June 6 -‐ 22

8:30 – 10:00 am For grade school children to incorporate simple yoga poses and breathing techniques into practice to improve handwriting skills.

Making Waves

Fridays, June 3, 10, & 17, July 1, 8, 22 10:30 am to 12:00 pm

For preschool through early grade-‐school children to work on motor skills & pre-‐swim

activities at the Armbrust YMCA, our community partner site.

Call 402-‐280-‐2000 www.Pediatrictherapy.creighton.edu

Easter Seals Nebraska Camp Registration is OPEN!!!

Easter Seals Nebraska camp is an overnight camp for campers of any age, who have any disability. We maintain a 1:1 to 1:3 counselor to camper ratio as well as have a nurse on site 24 hours.

Summer camps are 6 days, 5 nights and take place at Boy Scout Camp Eagle near Fremont, NE.

Cost is $1,100 and can be paid for with respite waivers or Lifespan subsidies. Scholarships are available.

To learn more, and to register, visit www.easterseals.com/ne or contact Jami

at [email protected] or call 402-‐930-‐4053

The Arc of Platte County’s Summer Friends

Special Needs Camp

June 20 – 23 Emerson Elementary,

2410 20th Street, COLUMBUS, NE CAMP TIME: 9:00 am to Noon

Talent Show/Family Night on June 23 at 6:30 pm

COST: $30 for Arc Members; $45 for Non-‐Arc Members

Summer Friends, Special Needs Camp, is a summer camp

for children ages 5 – 21 who have developmental disabilities. There will be many fun indoor and outdoor activities planned for camp! Volunteers will be paired up

with the campers to provide one on one support!

Register early as there is a limit of 24 campers! Deadline to register is May 27!

Contact The Arc of Platte County for registration

& questions 402-‐563-‐1699 or

[email protected]

Volunteers are NEEDED!

We encourage middle & high school kids to come & be FRIENDS to our campers!!





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-- April Vernon

CAMP INFORMATION

Camp High Hopes Year-round Camps Located in Sioux City, IOWA

Providing fun, safe & adaptive recreational experiences for children, teens, & adults with disabilities!

Sleep Away Camp $598 Day Camps $208

Visit our Camp Sessions section online at www.camphighhopes.com for further details, session dates & more information!

(712) 224-CAMP (2267) Camp High Hopes offers a fun, safe, & adaptive recreational environment to waiver & non-waiver campers with disabilities. Each day is

designed to offer a fun, safe, & adaptive recreational environment for people with disabilities, their friends, & families. Our high quality programs include experiences in archery, canoeing, & outdoor education, amongst others, for individuals & groups with disabilities.

Coming from Iowa, Nebraska, & South Dakota, campers arrive with anticipation & excitement, leaving with smiles, new friends, & fond memories for years to come!

Camp Abilities Nebraska July 17 – 22, 2016

Camp Abilities Nebraska is a week-‐long residential sports camp for youth who are blind, visually impaired or deaf-‐blind. Youth explore sports and recreational activities in a safe environment with instructors who have experience in adaptive techniques.

The cost is $300; scholarships are available and Nebraska residency is not required. Camp registration opens March 1 and is limited to 20 campers so prompt enrollment is suggested.

For more information or to make a donation to Camp Abilities Nebraska, contact Kristal Platt, Vision Program

Coordinator, at 402-‐498-‐6365, [email protected] or visit www.BoysTownHospital.org/HearingServices/EducationalOutreach

2016 Junior Wheelchair Sports & Recreation Camp Iowa School for the Deaf, Lied Multipurpose Complex,

3501 Harry Langdon Blvd., Council Bluffs, IA

July 25 – 29, 2016

Our Mission Statement: Junior Wheelchair Sports and Recreation Camp is dedicated to providing opportunities for both new & experienced wheelchair athletes to attain excellence & an enthusiasm for a rich & fulfilling life through a program of diverse sports & recreational activities.

COST: FREE due to the support of generous sponsors and many donations, however the number of campers is limited to RSVP EARLY!

We provide, Transportation available in the Omaha/Council Bluffs metro areas, & a designated site in Lincoln; Admission and transportation to all field trips; Daily lunches and snacks; Nursing assistance; and a camp t-shirt. Volunteers are available to assist campers with personal help skills, lunches, day-to-day

operation and all activities. Our instructors have achieved national or international recognition in wheelchair sports competition.

Camper/staff ratio is 4:1. This camp is not suitable for campers requiring 1:1 ratio.

Registration Forms can be downloaded at: www.CHIhealth.com/rehab www.cbparksandrec.org/youth www.enwaa.org

www.cityofomaha.org/parks

or for more information contact Camp Director, Jena Munson at 402-572-2276 or email at [email protected]

Page 17

Respite INFORMATION

v Respite Care Available for Air Force Families * FREE to them * U.S. Air Force (USAF) Exceptional Family Member Program (EFMP) families stationed throughout the country have children who require unique child care considerations due to the child’s special needs. Finding & paying for quality child care for children with special needs can also present significant challenges for military families. The U.S. Air Force EFMP program has established a quality respite program for families with children having special needs & who are enrolled in the USAF EFMP. USAF EFMP Respite Care is specifically designed for Air Force families who have children diagnosed with moderate or severe special needs under EFMP. This includes exceptional family member children whose medical conditions require assignment near major medical facilities in the continental United States, or whose needs are complex and require specialized community of care. What is included in the USAF EFMP Respite Care? Twelve (12) respite care hours per month regardless of condition severity. Your choice of an approved in-child’s home or licensed Family Child Care or Child Care Center. Approved providers are background screened and have the following pre-service training: CPR, First Aid, Medication Dispensation, & Child Abuse Recognition & Prevention as well as subject matter training in the care of children with special needs. To begin the application process, call Child Care Aware toll-free at 1-800-424-2246 or email [email protected] for a Respite Care Step by Step instruction form. Or call the EFMP Office at 402-294-4329 for more info! (5/16)

v Youth Care & Beyond They provide a caring and supportive environment for teen clients in three group homes. However, they are currently in the process of readying themselves to provide in-home respite. They can provide services for kids ages 10 – 19. If you are interested in respite or the group home setting please call them at 402-991-9709 you can also check out their website at www.YCBinc.org

v “Our Story” The Beginning of A Special Sitter As parents of four children, two with special needs, we understand your challenges in raising special needs children. As parents, our God given responsibility is to train our children for life. As a parent, you experience highs & lows as your children grown through the seasons of life. We learned early, that these highs & lows are amplified when you are caring for a child with special needs. You want to attend your children’s sporting events, teacher conferences, & musical performances. You want to continue to date your spouse, because a strong marriage creates a strong family. Like us, you probably have asked yourselves, “How do we create & maintain this balance when most of our time & energy is devoted to caring for our child with special needs?” Our desire is to help you answer that question so your family can experience the fullness of blessings available to your family because of your child with special needs. A Special Sitter was inspired by our ongoing journey of parenting our family & we believe our experiences can help you experience the fullness of blessings we have received as we raise our family. – Kimberly & Richard Troia, Co-Founders of A Special Sitter. Call 402-697-8400 x201 or [email protected] (5/16)





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[email protected]

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Special Needs Mom's






-- April Vernon

The Nebraska Respite Network

Do you know about the Lifespan Respite Subsidy Program? This program pays for respite services (someone to come into the home to care for a person with special needs, to give the primary caregiver a temporary break). The program serves people of all ages. It is for people who are NOT receiving the services from another government program.

Who Needs This Program? Caregivers who need a temporary break from providing care to persons of any age, with special needs. Examples of special needs are developmental & physical limitations, emotional or behavioral disorders, chronic illness. Alzheimer’s disease & related health concerns, or persons at risk of abuse & neglect. Eligibility is based on income guidelines. HOWEVER, if you have expenses directly related to the disability, these can usually be subtracted

from the counted income. The person applying must have a caregiver. The program will provide up to $125 per client per month!!

How do I become a Respite Provider? How do I get qualified for the Lifespan Respite Subsidy Program?

What if I need help finding a respite provider, so I as a Caregiver, can have a break? Contact the Nebraska Respite Network by contacting a Respite Network Coordinator in your area (see below) or call 1-‐866-‐RESPITE

Eastern Service Area Serving Douglas & Sarpy

Coordinator Ellen Bennett (402)559-‐5732

[email protected]

Southeast Service Area Serving Thayer, Jefferson, Gage, Otoe, Cass, Pawnee, Richardson, Johnson, Nemaha,

Lancaster, Saline, Fillmore, York, Seward, Polk, Butler & Saunders

Coordinator Mary Shada (402)434-‐3494 ext. 103 [email protected]

Central Service Area Serving Harlan, Franklin, Webster, Clay, Nuckolls, Phelps, Kearney, Adams, Buffalo, Hall, Hamilton, Merrick, Howard, Sherman, Custer, Valley, Greeley, Blaine, Loup, Garfield,

Wheeler Northern Service Area

Serving Washington, Dodge, Colfax, Platte, Nance, Boone, Antelope, Holt, Rock, Brown, Cherry, Keya Paha, Boyd, Knox, Cedar, Burt, Dixon, Dakota, Thurston, Cuming, Stanton,

Madison, Pierce & Wayne

Coordinator Lydia Hovi, For BOTH Service Areas (308)745-‐0780 ext. 145 [email protected]

Western Service Area Serving Sheridan, Garden, Deuel, Sioux, Cheyenne, Morrill, Box Butte, Dawes,

Scottsbluff, Banner & Kimball

Coordinator Sherri Blome (308)432-‐8190

[email protected]

Southwest Service Area Serving Dundy, Hitchcock, Red Willow, Furnas, Gosper, Dawson, Lincoln, Logan, Thomas,

Grant, Hooker, Arthur, Keith, Perkins, Chase, Hayes, & Frontier

Coordinator Helena Janousek (308)345-‐4223 (308)345-‐4990

[email protected]





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[email protected]

FACEBOOK too!!


Special Needs Mom's






-- April Vernon

Respite INFORMATION

!

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family,"which"includes"2"kids"with"special"needs,"&"we"

believe"that"our"experiences"can"help"you"experience"the"fullness"of"blessings"we"have"received"as"we"have"raised"our"

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June 10 Take A Break – RESPITE for Families Childcare for kids ages 6 weeks to 10 years of age LOCATION: Grace Lutheran Church, 2225 Washington, LINCOLN TIME: 6:30 – 8:30 pm COST: Payment due based on a sliding scale for private pay, or we can bill DCP or Respite Subsidy MORE INFO: Mary at YWCA Lincoln at 402-434-3494 ext. 103 or [email protected] UPCOMING DATES: July 1 & 8, August 5 & 12, September 2 & 9,

October 7 & 14, November 4 & 11, December 2 & 9 July 29

Masterpiece Respite Night! Super Hero Theme! Free Respite for families who have children with special needs LOCATION: First Free Church, 3300 S. 84th St., LINCOLN TIME: 6:00 – 9:00 pm MORE INFORMATION & to RESERVE YOUR CHILD’s SPOT: Contact Masterpiece Director, Danelle Mills, at [email protected] or 402-261-8304 DESCRIPTION: This is an opportunity for parents to enjoy an evening of rest & renewal while their kids experience a variety of activities such as sensory & gross motor play, arts & crafts, carnival games, & movies. Pizza and snacks are provided. We offer an evening of fun for kids of any age, with special needs AS WELL AS their siblings ages birth to 13. Every child is paired with a volunteer on a one-on-one basis. If your child needs more volunteers, we can do that too! We specialize each child’s respite stay with us, to them & your family’s needs. Every volunteer is background-checked, and trained. There are volunteer nurses on-site to oversee any medical needs your child may have. We ask that each family completes a registration packet, in advance so a coordinator can pair your child with the appropriate volunteer(s) and plan accordingly. If this is your first time to bless us with watching your child(ren), we give you a $25 gift card to go do something, and spend how you want. While Respite is only every other month, for one Friday evening, we are able to watch your children on Sunday mornings during church also, Just ask so we are prepared when you come! We LOVE having your children! NOTE: This is Heather from OKN J, and we take our son who has many special needs, they are always great with him, and I never have felt I can’t leave him. They go above and beyond to prepare for the kids! I highly

Respite JUNE Events

Respite UPCOMING Events

SURVEY FOR CAREGIVERS & RESPITE CARE PROVDERS!!

If you are a Family Caregiver or a Respite Care Provider please type in the survey link below into your web browser and take part in our survey.

The University of Nebraska Medical Center-‐Munroe Meyer Institute in conjunction with the DHHS are conducting an evaluation of the Nebraska Lifespan

Respite Care system. We anticipate that an evaluation will provide information and insights

into the system and help address possible challenges. We are looking at multiple factors including the need for respite services, access to

services, family caregivers satisfaction and barriers.

Once you complete the survey, there is an option to fill out your personal information.

This information will be used only as part of a raffle for the opportunity to win a $25 gift card.

Your participation in the survey is completely voluntary and all information provided

will be kept confidential. If you have any questions please contact,

Jolene Johnson at [email protected] or Jennifer Harmon at [email protected]

Survey for Caregivers: https://www.surveymonkey.com/r/EnglishFam

Caregiver

Survey for Respite Providers: https://www.surveymonkey.com/r/EnglishRes

piteProvider

New Name & Location – Same Great Service! The Respite Resource Center, providing assistance to family caregivers to take a short break from caregiving, has moved their office from the Eastern Nebraska Office on Aging to the Munroe-Meyer Institute on the University of Nebraska Medical Center campus. Our name has also changed to Respite Across the Lifespan! Both Ellen Bennett and Janet Miller are still available to assist family caregivers in finding qualified, screened care providers to come into the home, and enable the caregiver an opportunity to rest, refresh and reenergize! We can also help caregivers locate potential funding sources to cover some of the costs of respite care. You can reach Ellen at 402-559-5732 or Janet at 402-559-5735. Our assistance is available to you at no cost. A caregiver is a person who cares for someone who has a long-term or lifelong physical or psychological challenge across the lifespan. If your loved one cannot be left alone due to their disability or chronic health condition, we can help. Caregivers often struggle with fatigue, and health issues of their own, stemming from decreased time and energy to take care of themselves. Respite can occur in many different ways and places depending on the needs of the caregiver and the person they are caring for. We will work with you to help determine the best providers to meet the needs of you and your loved one. For immediate information about Respite, please go to https://nrrs.ne.gov/respiteresearch or call 1-866-737-7483





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-- April Vernon

Page 20 ALLIANCE: June 9

Nebraska Foster & Adoptive Parent Association Support Group Meets the 3rd Thursday of every month Including Foster & Adoptive Parents who have kids with special needs LOCATION: Box Butte Community Hospital, Meet in Alliance Room, ALLIANCE TIME: 6:00 – 7:30 pm MORE INFORMATION & to RSVP: www.nfapa.org or Jolie 308-672-3658

COLUMBUS: June 14 Nebraska Foster & Adoptive Parent Association Support Group Meets the 2nd Tuesday of the month (Except December) LOCATION: Peace Lutheran Church, 2720 28th ST., COLUMBUS TIME: 7:00 – 8:30 pm MORE INFORMATION: Contact Tammy Welker at [email protected] or www.nfapa.org DESCRIPTION: Childcare is provided! Thanks you Building Blocks and Behavioral Health Specialists for providing childcare!

GOTHENBURG: June 16 Nebraska Foster & Adoptive Parent Association Support Group Meets the 3rd Thursday of the month LOCATION: American Lutheran Church, 1512 Ave G, GOTHENBURG TIME: 6:00 – 8:00 pm MORE INFORMATION: Contact 308-537-3433 or www.nfapa.org

KIMBALL: June 6

Nebraska Foster & Adoptive Parent Association Support Group Meets the 4th Monday of every month Including Foster & Adoptive Parents who have kids with special needs LOCATION: Kimball Baptist Fellowship Church, 507 Oak Street, KIMBALL TIME: 6:00 – 7:30 pm MORE INFORMATION & to RSVP: www.nfapa.org or Jolie 308-672-3658

LEXINGTON: July 26

Nebraska Foster & Adoptive Parent Association Support Group Meets Quarterly Including Foster & Adoptive Parents who have kids with special needs LOCATION: Parkview Baptist Church, 803 West 18th Street, LEXINGTON TIME: 6:00 – 8:00 pm MORE INFORMATION: www.nfapa.org or 308-324-4410 UPCOMING DATES: October 25

NORTH PLATTE: June 2

Nebraska Foster & Adoptive Parent Association Support Group Meets Every other month, on a Thursday evening Including Foster & Adoptive Parents who have kids with special needs LOCATION: Mid Plains Center, 1101 Halligan Drive, NORTH PLATTE TIME: 1:30 – 3:30 pm MORE INFORMATION: www.nfapa.org or 402-460-7296 UPCOMING DATES: August 4, and December 1

SCOTTSBLUFF: June 7 Nebraska Foster & Adoptive Parent Association Support Group Usually Meets the 2nd Tuesday of every month Including Foster & Adoptive Parents who have kids with special needs LOCATION: RWMC south plaza room 1204, SCOTTSBLUFF TIME: 6:00 – 7:30 pm MORE INFORMATION: www.nfapa.org or RSVP to Jolie at [email protected]

Nebraska Foster & Adoptive Parent Association UPCOMING Support Group Information

STATE-WIDE/ONLINE: June 7, 14, 21, & 28

Nebraska Foster & Adoptive Parent Association FACES – Online Support Group Weekly chats, every Tuesday – MUST ASK TO JOIN!!! SEE CONTACT INFO!!! Including Foster & Adoptive Parents who have kids with special needs LOCATION: Online TIME: starting at 9:00 pm Central Time MORE INFORMATION: www.nfapa.org or Terry at [email protected] DESCRIPTION: Whether you are a foster parent, an adoptive parent, have guardianship, or are kinship/family caregiver, this group is designed to give support, information, resources, and encouragement. Foster Parents are vital to keeping children safe and helping them heal from the trauma of abuse, neglect, abandonment, or removal from their family home. This support group can help by: Working together to improve the lives of children not living with their birth parents; Through mutual support foster families are strengthened and placement stability is improved for the children in care; Foster Parenting is a journey, Foster Parents must strive to keep up on educational opportunities to be better equipped to protect the health and safety of the children placed in our care. Staying informed and up to date on issues affecting the child welfare system are also important. Each week we will have a topic of discussion, and during this time anything and everything related to the topic will be discussed. Just like an in person support group, this will be a closed forum and issued discussed should remain confidential. If there is a topic you’d like to suggest, let Terry know.

A comprehensive pediatric therapy gym with private treatment rooms &

a customized climbing structure.

• Physical Therapy • Occupational Therapy • Speech & Language Therapy • Feeding/Swallowing Therapy • AAC Evaluations

5321 South 138th Street, Omaha, NE 68137

NOW OPEN SATURDAYS! For more information or to request

an evaluation please,

Call 402.895.4000. !

!!





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Free support for Children, teens & adults who have experienced the death of a family member or friend.

All family programs are offered FREE of charge, but families must register in advance to attend.

Unless otherwise noted, all programs are for youth ages 3 – 18 accompanied by an adult caregiver.

Here are programs that we offer:

CARE: Coping Around Real-Life Experiences Support Group: CARE is a free grief support group for families coping with a serious illness or injury. Join us for an opportunity to share your grief, build healthy coping skills, & meet others who “get it”. This is for youth ages 3 – 18 & their adult caregivers dealing with a serious illness or injury. This is an open group that you may join at any time, & we encourage you to attend as many sessions as you can. Just be sure to register in advance so we know you are coming! Held the 2nd Saturday of every month, from 12:00 – 1:30 pm. See monthly information under Omaha Events. Monthly Support Groups: This group is open for families to attend at any time, and is a great way to get started with our programs. A light breakfast is provided. Children & adults then work with trained facilitators in separate age/developmental groups. See info in Omaha Events

8-Session Support Groups: Series are held throughout the year in which the same families attend for 8 sessions. Having the same people in your group provides comfort & security. Following a potluck meal, children & adults work with trained facilitators in separate age/developmental groups.

KidsKamp: Held in the spring, KidsKamp is an afternoon filled with crafts and activities to honor and remember special people who have died. Families work together with volunteers in this a fun, light-hearted camp.

Tinsel & Tears: This afternoon camp helps grieving families as they prepare for the holidays. Families work together with volunteers to make special holiday memories and crafts to honor the lives of those who have died. Check out the upcoming events under these towns in OKN: Fremont, Omaha, Plattsmouth, Council Bluffs. If you are interested in being a volunteer at one of these events, call us at the number below.

YAG (Young Adult Group): This is a special group for 19 – 40 year olds who have experienced death, meeting on its own night separate from our family programs. This is an open group so that new members can join at any time. See monthly information in Omaha Events

AHA (Adults Helping Adults): An 8-session group for adult caregivers who have already attended our 8-session family support groups. This group provides an opportunity for further support and education focused specifically on the caregiver. No children’s program is provided.

Camp Hope: A Retreat for Grieving Teens: This weekend, overnight, camp is a special program for teens who have attended TEBH programs with their families. Campers enjoy hanging out with other teens and participating in a variety of activities such as horseback riding, drumming, hiking, photography, & a campfire. All food and drinks for the weekend are provided.

For the monthly dates of events, look under the group above and the information is listed in what city the camp or group is located,

so that you can find all the information you need.

For More Information on any of the support programs we offer, please contact us 402-502-2773 or www.tedebearhollow.org

We are located at: 7811 Farnam Drive, OMAHA

Ted E. Bear Hollow Information

PTI-Nebraska Webinars JUNE

Page 21





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June 12 Autism Support Group (2nd Sunday Monthly) LOCATION: Third City Christian Church, GRAND ISLAND TIME: 2:30 – 4:30 pm MORE INFORMATION: Contact Andrea Beck at 402-679-1115 or 308-687-6270 or [email protected] for more information about the group CHILDCARE IS AVAILABLE: Call Bridget at 308-381-8844 to set that up DESCRIPTION: Come join us for our Autism Support Group! (May 2016)

June 2 Families CARE Group Festival LOCATION: Buffalo County Extension Building, KEARNEY TIME: 4:30 – 7:30 pm MORE INFORMATION: Jodi Richards at 402-469-4763 or [email protected]

Grand Island INFORMATION

Grand Island JUNE Events

Tech Tots Toy Lending Library based in Grand Island For families in Central Nebraska there is a Tech Tots Toy Lending Library available to you at Children’s

Rehab Center in Grand Island. Tech Tots provides developmental toys, adapted toys and devices to children with developmental and physical disabilities. Tech Tots is a FREE service!! You can check out toys to use in your home for 1 month. Tech Tots Toy Lending Library is a program of UCP Nebraska. Play is an essential component of growing up, and is the most important work explored by children. As children engage in play,

they practice and master specific physical, psychological, emotional and creative skills necessary for understanding and interacting with the world around them. As children all have different abilities, so too are their methods of operating devices and accessing information. The use of adapted toys and devices decrease physical barriers and social barriers to play, enabling children at varied functional levels to

actively explore and achieve some independence. By equalizing play through these modifications, children learn about the cause-effect relationships and practice creative problem solving. As children recognize

their abilities through the work of play, they gain the self-confidence necessary for handing challenges in all areas of daily living. This is a wonderful opportunity for your child! To access the Tech Tots Lending

Library call Children’s Rehab Center in Grand Island at 308-398-5170, ask for Carole Ostdiek

Fyzical Pediatric Therapy clinic in BELLEVUE Fyzical Pediatric Therapy is excited to announce we opened a new clinic in Bellevue, NE in the fall of 2015. This clinic will be a huge help to families in this community and beyond. For more information email Corey at

[email protected]

Project Lifesaver in Sarpy County The Sarpy County Sheriff’s Office implemented Project Lifesaver in 2008 to help locate missing persons.

Children with Autism or Down Syndrome, who are at risk to wander, can have their safety greatly enhanced through this program. Project Lifesaver emphasizes relationships between specially trained Sheriff’s

personnel & individuals enrolled in the program BEFORE the need may arise for a rescue. During an initial home visit, Project Lifesaver enrollees are fitted with a personalized wristband & transmitter, & family members are provided with a comprehensive overview of the program. Trained in communicating with individuals with special needs, deputies will schedule a monthly home visit to inspect & maintain the

equipment & get to know the enrollee better, on a more personal basis. The cost to participate in this program is minimal, at $10 a month. For more information on Project Lifesaver, contact Lt. Griger at

402-593-2288.

BELLEVUE INFORMATION Page 22

!

!

!

!

!

600 N. 93 rd Street, Suite 100

Omaha, NE 68114

402-391-2001

www.stonesworthstepping .com

OT/PT/ST

Special ized therapies include :

Sensory Integration

Therapeutic Listening Programs

Craniosacral Therapy

Orthotics & Bracing

Baby signs

Social Groups

Feeding Therapy

!

Challenger)Little)League)is)an)

opportunity)for)children)who)have)

special)needs)to)play)baseball)and)

make)life)long)friendships.))

We)begin)at)age)5)with)our)minors)

division,)&)end)with)our)alumni)

division,)which)has)no)age)limit.))

The)2016)season)will)begin)in)April.))

Do)you)have)a)friend)who)you)think)

would)like)to)play)baseball?))Tell)

them)about)Challenger)&)ask)them)to)

write)your)name)down)on)the)

registration)on)the)“referred)by”)line.))

You)will)receive)50%)off)your)

registration!))

Registration)for)our)2016)season)

begins)on)January)7,)&)ends)February)

28,)2016.)))

Please)check)out)our)website)

www.challengerlittleleague.org))

)

And/or)please)feel)free)to)call)Kelly)at)

402U968U3608)

For)more)information))

We)are)located)in)Omaha,)Nebraska)

Challenger

Little League





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Kearney INFORMATION

Kearney JUNE Events ! June 2

Families CARE Group Festival LOCATION: Buffalo County Extension Building, KEARNEY TIME: 4:30 – 7:30 pm MORE INFORMATION: Jodi Richards at 402-469-4763 or [email protected] (April 2016)

June 19

Kearney Area Autism Support Group (Meets every 3rd Sunday) LOCATION: First United Methodist Church, 4500 Linden Drive, KEARNEY TIME: 3:00 – 4:30 pm MORE INFORMATION: Contact Dave or Maureen Lucht [email protected] DECRIPTION: Autism Family Support Group (May 2016)

Families CARE Located in Kearney, is one of six family organizations across the State serving those that are parenting children/youth with emotional, behavioral, or mental health challenges. We offer peer support; in fact

every employee/advocate at Families CARE is parenting, or has parented a child with emotional, behavioral, or mental health challenges. Families CARE is a non-profit organization, providing advocacy, resources,

support, and education as we work with parents, along with a mission to Empower parents in the Behavioral Health System of Care. For more information on Families CARE in Kearney 308-237-1102 or

[email protected]

Hastings JUNE Events June 2

Families CARE Group Festival LOCATION: Buffalo County Extension Building, KEARNEY TIME: 4:30 – 7:30 pm MORE INFORMATION: Jodi Richards at 402-469-4763 or [email protected] (April 2016)

Lincoln INFORMATION

Vila Marie Home and School for Exceptional Children Villa Marie Home and School for Exceptional Children provides a loving, home-like atmosphere for up to 22 children, both day students & boarders. Students enjoy comfortable dormitories (4 students to a room),

excellent recreational facilities, a chapel & spacious grounds. The Villa Marie staff provides total 24 hour-a-day supervision. Villa Marie follows the Lincoln Diocesan Catholic School calendar. The school has 3 well-

equipped classrooms, a library, up-to-date computers, a Smart Board in each classroom & a variety of audio/visual aids. Villa Marie is approved by the Nebraska Department of Education & all teachers are

certified in Special Education. The developmental program at Villa Marie works towards preparing students to function effectively in social situations, to live independently, & to use their skills in productive

employment. Specific areas of development include social & emotional development, vocational training, appearance, health & hygiene, & community involvement. Requirements for attendance are: Children with special needs between the ages of 7 & 18 but no students older than 16 will be accepted as new students, Students must be on an Individual Education Plan (I.E.P. & not require one-on-one paraprofessionals, Three step process for entrance (1. Parent interview, 2. Student visit during school, 3. Application for entrance including tuition negotiation) For More Information on Villa Marie Home and School Contact Sister Peggy

Kucera, Principal at 402-786-3625 or [email protected]

!

We!are!a!law!firm!founded!by!the!parent!of!children!with!special!needs,!to!serve!parents!&!caregivers.!!We!provide!affordable,!caring!legal!representation!for!caregivers!throughout!Nebraska.!!!Contact'us'today'for'a'FREE'initial'consultation'with'question'about:'

• Special(Education(• Guardianship(• Special(Needs(Trusts(• SSI(or(SSDI(• Elder(Law(• Medicaid/HHS(• Transition(to(Adult(

Services(Or(Any(other(legal(concern(

402D650D5993((

www.SeamusKellyLaw.com((

[email protected](





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Lincoln INFORMATION

Wonderfully Made GRANT FUNDING AVAILABLE LINCOLN We have more grant funding to be able to give MORE SCHOLARSHIPS for our Focus Group program! This program is designed to provide a small group atmosphere to work on social and emotional skills

with peers, led by a Recreational Therapist. This program is for all ages up to age 18. Check out the website a www.wonderfullymadene.com or [email protected] for more info!

“Real Life Adaptations & Ideas” A program at Handprints & Footsteps Therapy in LINCOLN

Chrissy Scheer, Physical Therapist, has built this program. She has 10 years of experience as a pediatric physical therapist who is passionate about adaptive equipment & increasing independence for all kids & families. She also has extensive experience in the “real home environment” as an in-home

caregiver for many individuals with a variety of needs since 2000. She is available to address: Adaptive Equipment Needs: Such as power & manual wheelchairs, medical strollers, walkers, gait

trainers, standers, etc.; Positioning & Set-up of switches & other toys & environmental controls; Home Visits: For bathroom & bedroom set-up ideas for transfers, positioning, etc.; For transfer training for caregivers (including grandparents & others); For developing ways to access other parts of the home

more independently, etc.; Visits in Public Places to work on specific skills: Such as practicing driving a power wheelchair at the local grocery store; PT sessions to specifically focus on Power Mobility

(power wheelchairs) for kids who need “uncommon methods” to be successful: Such as head control of the chair. For more information on this program, Feel free to contact Chrissy Scheer, PT at Handprints & Footsteps at 402-420-2099 or [email protected] You can also follow the blog for this program

at: real-life-ideas.blogspot.com with an e-mail “following” feature.

Wonderfully Made NOW offering Private & Group Recreational Therapy!! LINCOLN

Focus Groups (our group therapy option) are several skill groups with 3 – 4 similarly aged kids, who have common social skill goals; these can also focus on other cognitive, behavioral, emotional, and/or

physical goals that the child might have and are run by a Recreational Therapist, see more information on Wonderfully Made above! Check out the website at www.wonderfullymadene.com or

[email protected] for more info!

Wonderfully Made Offers MUCH in LINCOLN Nicole Meyer is a Certified Therapeutic Recreation Specialist (CTRS) and she has a Bachelor’s degree in

Neuroscience. She started Wonderfully Made as a way to reach the needs of children with special needs in our community. She wants to provide opportunities for these kids to have fun and make

friends. She wants them to have the freedom and ability to have a social life and build self-confidence, and learn life skills that will carry them into the world. Her goal for Wonderfully Made is to be a resource for families of kids with special needs, and provide Recreational Therapy services on a

group and individual base. Please check out her website at www.wonderfulllymadene.com to learn more. Programs offered at this time are: Friendship Club (meets monthly in Lincoln right now),

Recreational Therapy, & Focus Groups. You can contact her at [email protected] for more information.

Handprints and Footsteps NOW OFFERING Car Seat Checks Handprints and Footsteps is now offering car seat checks for both typically developing kids and those

with special needs. Chrissy Scheer, PT, and certified Child Passenger Safety Technician, is available to do these checks. Please call 402-420-2099 for more information.

Pedi-iCARE Research Study Opportunity Madonna Rehabilitation Hospital’s Research Institute has a Research Study Opportunity available for families of children ages 3 – 12. The purpose of this study is to gather information from children,

parents, and clinicians that will be used to create a rehabilitation device that can be used by children to improve their walking and fitness. Eligibility is for these kids with or without disabilities or chronic

conditions. The study duration & activities: After agreeing to participate, you and your child will attend many sessions. During these sessions, your child will walk, exercise, and use a new device called the Pedi-iCARE. This study is open to children who are participating in therapy, and those who are not.

For further information please contact Nadine Wiley at 402-413-4504 or [email protected]

!

Now$Offering$$$$$$$$Occupational$Therapy!$

We#are#proud#to#offer#exceptional#therapy#services###in#the#Lincoln#community######and#surrounding#areas,###########

for#over#11#years.#

We#look#forward#to#serving#you#in#the#future!#

#402932792500$

1651$North$86th$St,$Suite$200$Lincoln,$NE$68505$

$www.heartlandspeech.com$

$Find$us$on$FACEBOOK$too!$

HEARTLAND S E R V I C E S , P. C .

!

!





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Lincoln INFORMATION

O’hana Kids News reports the events and information as it was given to us. Please contact the providers for the event or information to ensure the

information given is accurate. OKN is not responsible for any changes made to an event, after the publication has gone to print.

Thank you!

What is Early Head Start? Early Head Start (EHS) is a federally funded comprehensive child development program offered by Community Action. EHS serves low-income pregnant women, children ages birth to three (including

children with special needs) & their families. Through EHS, we aim to help children to grow physically and socially while empowering families to move toward self-sufficiency, & get children

ready to go to kindergarten. Our EHS Home-based program offers the opportunity to have a Family Advocate work with you & your child within the comfort of your own home for 90 minutes a week. You & your child will benefit from one-on-one attention from your Family Advocate. Home Visits: The main focus of a home visit is your child’s growth & development. A Family Advocate will visit

your home for 90 minutes a week, & work with you & your child. During each visit you & your child will have the opportunity to enjoy an activity or experience together. Playgroups are organized

playtimes for you & your child to get to meet other children & parents in the EHS program. This is a great opportunity to share experiences & learn from others in the program just like you. EHS

Family Advocates are trained to not only provide fun ways for you to help your child learn & grow, they can also help put you in touch with community resources to help you meet your day-to-day

needs, and help you provide positive opportunities for your family & your child. Call Community Action at 402-875-9385 to schedule a time to fill out an application.

BeHIP Program: The Be Healthy Inclusive Project The Be Healthy Inclusive Project (BeHIP) is a

program operated by The Arc of Lincoln, through a grant awarded by the Community Health Endowment

of Lincoln. The purpose of the program is to provide opportunities for inclusive recreation for

youth and adults with disabilities. What is Inclusive Recreation? This refers to the practice of people with and without disabilities participating in fitness and recreation activities TOGETHER. Inclusive recreation services provide

the support and accommodations needed to give the person with a disability the opportunity to participate in activities of their choice.

Who is eligible for BeHIP? Youth with disabilities under the age of 21 are eligible. Adults over age 21 must be eligible for Developmental Disabilities (DD)

services through the Nebraska Department of Health and Human Services.

Is there a fee for the service? There is no fee for the services for youth. Adults must include BeHIP as a part of their budge for DD non-specialized

services. For all ages, the participant is responsible for the cost of the classes or activity fees.

Who provides the Inclusive recreation support? The Arc recruits, completes background checks, and trains people to serve as Recreation Advocates. Care is taken to ensure that the Recreation

Advocate is a good match for the participant and for the selected activities.

Want to know more? Call The Arc of Lincoln at 402-421-8866 or email [email protected]

Communication Works! Speech & Language Clinic

Communication Works is located at 1540 South 70th Street, Suite #101, in Lincoln. We specialize in

Speech sound disorders, Reading challenges, Expressive language delays, Written language

delays, Late talkers, Apraxia, Stuttering, & Autism. You can contact us at 402-480-3152, or check us out online at http://comworkslincoln.com Visit us

on Facebook at www.facebook.com/comworkslincoln

Special Connections – Lincoln – Facebook Group

Special Connections – Lincoln is a parent-led, Facebook group for families in the Lincoln area with children (birth – 8), who have special needs. It is a

place to network with families and learn about: coping strategies; special events in the community, training opportunities, the Early Childhood Special Education process; IFSPs and IEPs; and how to advocate for your child. Find us on Facebook by searching for Special Connections – Lincoln and

then click on Join Group. Questions? Email Tammy at [email protected]

Lincoln INFORMATION





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Meet your Local Board Certified Music Therapists in Lincoln!! Contact Nicole Jacobs at [email protected]

Contact Jessie Habluetzel at [email protected] or (913)961-3847 www.facebook.com/MusicTherapyConnectionsofLincoln

DESCRIPTION: Nicole Jacobs is originally from Lincoln. She has been a board-certified music therapist for nine years. Upon graduating from the University of Missouri-Kansas City, Nicole opened a private practice in Lincoln, where she has been serving children & adults throughout Southeast Nebraska. She is currently in her second year of the M.M. in Neurological Music Therapy program through Colorado State University.

Nicole is actively involved in local & professional music therapy organizations including the Nebraska State Task Force, which addresses legislative issues related to music therapy. In addition, she is an adjunct

professor at Bryan College of Health Sciences & Concordia University. Nicole is married & has two young children. She is passionate about increasing access to music therapy for all Nebraska families & looks

forward to working with your family! Jessie Habluetzel is a nationally board certified music therapist who recently moved to Lincoln. A graduate of the University of Kansas with degrees in music therapy & Spanish,

Jessie has experience working with a broad range of special needs populations in both group & individual music therapy settings. These individuals ranged from ages 3 to 60, with a variety of abilities & needs. Before arriving in Lincoln, Jessie had the opportunity to work in the Fulton County Schools Music Therapy Department in Atlanta, Georgia, providing music therapy services to over 110 exceptional children in the

metro area. Jessie is truly grateful for the opportunity to grow & develop alongside the wonderful students with whom she served. Jessie is passionate about helping to improve the lives of others & using music to assist her clients in reaching therapeutic goals. She is an active member of the American Music Therapy

Association & Nebraska Music Therapy State Task Force, working to increase access to music therapy services & promote awareness of the profession. Jessie looks forward to meeting many fantastic families, while providing music therapy services in the Lincoln community! Please contact Jessie for a FREE music therapy consultation or more information! What is Music Therapy? Music therapy is the use of music-based interventions to address individualized therapeutic goals. Music therapy is a well-established allied health profession, backed by years of research spanning across multiple client population. When working

with a client, the music therapist follows a specific treatment process: assessment of skills & needs, development of a treatment plan with measurable goals & objectives, implementation of interventions to address the identified goals & objectives, & evaluation & documentation of client responses & progress.

Goal area a music therapist might address include: Communication skills, Behavior & self control; Sensory skills; Motor skills; Social & emotional functioning; Cognitive skills, & Daily living skills. What Does a Music Therapy session look like? Music therapy sessions are designed completely with a specific client in mind. Music interventions focus on addressing current needs of the individual. The music therapist will strive to incorporate the client’s interests & family members to promote success within the therapeutic process.

Sessions can be conducted with an individual or in a group setting. Sessions may include instrument playing, singing, dancing/movement, & listening to music in a safe, fun, & positively reinforcing environment.

EXAMPLE intervention techniques include: music mnemonics, presentation of social or communication scripts through musical cuing, music as a motivator, music to assist in task sequencing, presentation of language

concepts through song format, & support cause & effect goals through the use of musical instruments. Who is qualified to practice Music Therapy? Professional music therapists must: Complete an American Music Therapy Association (AMTA) approved college music therapy curricula; Including an internship consisting of a

minimum of 1,200 hours of clinical training; Complete a national board certification exam offered by the Certification Board for Music Therapists (CBMT); Hold & maintain the Music Therapist Board Certified

credential (MT-BC) Music Therapy with Individuals with Special Needs Most individuals with special needs respond positively to music. They often show a heightened interest & response to music, making it an

excellent therapeutic tool when working with them. Here are some reasons why: Music Therapy provides a unique variety of music experiences in an intentional & developmentally appropriate manner to effect change in behavior & facilitate development of skills. Music therapists are able to meet clients at their own levels & allow them to grow. The flexibility of music makes it well suited to be adapted to meet each individual’s needs through success-oriented opportunities for achievement. The structure & sensory input inherent in

music helps to establish response & role expectations, positive interactions, & organization while addressing multiple goals simultaneously. Under the direction of a qualified music therapist, skills that are learned &

developed in Music Therapy sessions will be transferred to other areas of the individual’s life to promote the highest functionality & quality of life possible!

Lincoln Fencing Club, LINCOLN Lincoln Fencing Club has had a wheelchair fencing program for 3 years now. They have 4 coaches who have

trained with the national USFA wheelchair team that went to London. For more information contact Kit Boesch, Coach and Founder at [email protected]

Page 26

www.p t cne .o rg

Occupational Therapy

Physical Therapy

Speech Therapy

Aquatic Therapy

• Feeding Difficulties

• Torticollis

• Autism

• Sensory Processing

• Speech Delays

• Apraxia

• CP

• Down Syndrome

• Chromosomal

Disorders

Specializing in the treatment of:

Open 6 Days a Week • No Long Wait Lists!

10601 S. 72nd Street, Suite 103Papillion, NE 68046

(402) 932-2782!





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Lincoln Ongoing Event Information

!

A"Special"Sitter"was""inspired"by"our"ongoing"journey"of"parenting"our"

family,"which"includes"2"kids"with"special"needs,"&"we"

believe"that"our"experiences"can"help"you"experience"the"fullness"of"blessings"we"have"received"as"we"have"raised"our"

family."!

Services(Offered:(

Companionship(Services(

Personal(Care(Services(

Home(Helper(Services(!

For(More(Information(

Contact(Richard(Troia(

402@697@8400(x201(

[email protected]((

(

See(“Our(Story”(on(Page(8(

Kindermusik Sign & Sing: Sign Language Class INTENDED AUDIENCE: Kids ages 6 months to 3 years LOCATION: 1111 Old Cheney, LINCOLN REGISTRATION: To register, go to www.kindermusik.com MORE INFORMATION: Call Shawna Gordon at 402-770-1486 DESCRIPTION: Early on a child has an innate desire to communicate. He reaches up to be held, claps when he’s happy, turns away when he is full. That’s why learning sign language makes so much sense in a hearing child’s world. Using his hands, he can say what he means & a parent can understand what he needs. This program is developed by Signing Smart.

Birthday Parties at Art Planet For kids with ALL Abilities LOCATION: Home Studio, 5201 S. 65th St Cir, LINCOLN COST: $120 for 1 ½ hours for up to 10 guests; Additional guests $10 each. MORE INFO: For class details, schedules & to register, go to www.artplanetlincoln.com or email the Director, Tamara Kaye at [email protected] DESCRIPTION: Come to the studio to celebrate your party “Art Planet” style where guests can take home their masterpiece as the party favor. Each party is as individual as the birthday boy or girl. Parties include an art project & time to enjoy cake & presents. You bring the food & guests, Art Planet will provide the rest! Visit the website for a list of party ideas, you choose the project! NOTE: Wheelchair accessibility is limited at this location.

Cheer & Dance Express Class For Kids with Special Needs LOCATION: 4001 S. 8th Street, LINCOLN TIME: Sunshine Team Wednesdays 6:15 to 7:15 pm MORE INFORMATION: 402-489-5111 or www.cheeranddanceexpress.com DESCRIPTION: The Sunshine team has won many awards & always receive a standing ovation. They have performed at numerous competitions & shows throughout the Omaha & Lincoln areas. The students learn cheers, jumping on trampolines, stunts & much more!! This team has made a huge impact on the kids’ self-esteem & confidence!!

Psychological & Emotional Regulation Training for Kids of ALL Ages With Anxiety, Aggression & Depression

LOCATION: Williamsburg Behavioral Psychology, 3801 Union Dr., Suite 206, (Just south of the Hy-Vee at 40th & Old Cheney), LINCOLN TIME: Usually late afternoon or early evenings, call for specifics COST: Billed through insurance MORE INFORMATION: Call 402-489-2218 DESCRIPTION: There are ongoing groups for children with anxiety, aggression, & depression for young boys, young girls, teen boys, teen girls & adults. Call to schedule a session with one of our providers, to enable us to place your child in the appropriate age group that is best for them.

Ager Play Center 9 week Session For Kids with Special Needs, ages 6 mo. – 5 yrs LOCATION: 1300 South 27th Street, LINCOLN TIME: 6:00 – 8:00 pm Tuesday Evenings COST: $36per session/family *Scholarships are available RSVP & MORE INFORMATION: Contact the Therapeutic Recreation Team for more information & to request an application. Go to [email protected] or 402-441-7901, 402-416-7607 DESCRIPTION: The Developmental Play Program has been specifically designed for families of very young children with special needs. We offer: A safe, family friendly environment, structured activities, opportunities to interact with other parents, professional presentations, adaptive toys to accommodate children of all abilities, trained staff & volunteers, an opportunity for siblings to play together & a special time to PLAY with your child!!

A comprehensive pediatric therapy gym with private treatment rooms &

a customized climbing structure.

• Physical Therapy • Occupational Therapy • Speech & Language Therapy • Feeding/Swallowing Therapy • AAC Evaluations

5321 South 138th Street, Omaha, NE 68137

NOW OPEN SATURDAYS! For more information or to request

an evaluation please,

Call 402.895.4000. !

!!





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-- April Vernon

Lincoln Ongoing Event Information

“Every child deserves a chance to play baseball!”

2012 Summer Session Begins Saturday, May 19 th !

Games are held every Saturday at

9am, 10:30am & Noon

Games last approx. 1 hour

The season lasts 7 weeks (to June

30th)

All Games are played in the ALLPLAY

Complex, located in Seymour Smith

Park at 6802 Harrison Street in

Omaha.

This complex features barrier free

design & level surfaces. The Miracle

Field & playground are covered with

rubber surfaces to soften any falls.

These surfaces are perfect for

wheelchairs, walkers, braces & use by

people who are visually impaired.

Ages from 4 - 20+. Athletes disabilities

include autism, cerebral palsy, spina

bifida, visual impairments, muscular

dystrophy, dwarfism, multiple

sclerosis, spinal cord injury, down

syndrome, amputations & other

physical & mental & cognitive

disabilities!

REGISTER TODAY!!!

For More Information go to:www.ALLPLAY.org or

call Bruce Froendt at 402-305-5020

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IMPORTANT TIDBITS FOR FAMILIES Learn how to adapt toys to use with a switch/button/BigMacThis workshop is for ANYONE!! You will learn how to easily & cost effectively turn the toys that your child already has, & isn't using because of physical limitations, into toys that are adapted to your child!! You will learn how to install a jack into a single function toy & convert it into a toy that is operated with a switch. You will learn how to assemble a switch. You will make a detachable cord that runs from the toy to the switch. You will be able to do this, AND you will go home with a working switch toy & switch. Best of all, your child's toy will look professionally adapted, by YOU!! You have seen that the switch operated toys are sometimes 8x as much to order, than if you could buy the toy & put the switch in for a few dollars, yourself. Dates/Times will be determined when I have 4 or more people interested in the class. This class is FREE, however donations of any kind are appreciated. Contact Aaron today at [email protected] for more information!

A & D Waiver – Aged & Disabled Waiver

Is YOUR child on this? Is YOUR child eligible to be on this?If your child is on this waiver, do you know that it makes your income guidelines non-existent? No cap on your income. Just have to use the 2 hours minimum respite each and every month, so you don't lose your A&D Coverage. Do you know that you can add your child, to your private

health insurance (non-medicaid), and if you are on the A&D Waiver, you can get those

premiums paid for for BOTH you and your child, through the HIPP program? Has to be the

same family policy, but they will cover all the insurance premiums for your entire family!!

For us this was $1,200 in premiums, because we are self-employed, don't have a corporate medical plan, and it was killing us. By talking with another mom, I found out about this program, and we are waiting on our reimbursement to arrive!! So cool. For 5 years we were told that our income dictated the medicaid that our son received, for us that meant we had to either stay in this little income box of like $45,000 or make an additional $100,000 to cover the expenses in therapy and medical services that our sons receives on an annual basis minimum. The guidelines to be on the A&D Waiver, I do not know for sure what they are. If you want to know, I can find out, just email me. I know that my son qualifies, and if has something to do with being fed solely by g-button, and being non-independent. If you want the contact information for the HIPP program, just shoot me an email on that also, or ask your Service Coordinator specifically about it. There are many programs out there available to help families like ours out. We just need to get the word out there for families to access that information. If you know of a program, that would benefit families, email me.

[email protected] We will research it and get the correct information out to all

the families.*

Parent Group with kids with combined hearing & vision lossThe Nebraska Technical Assistance Project on Deaf-Blindness has conducted training this year specific to parents of children who have a combined hearing & vision loss. The training has been in partnership with the National Consortium on Deaf-Blindness (NCDV2.0). A total of 7 parents have participated in a series of training activities from May 2011 through October 2011. They are now working on their leadership goals & have another planned meeting in April 2012, as well as ongoing meetings in the future. They are called the Nebraska DB Parent Leadership Team, & have provided lots of support to the state deaf-blind project. It is the intent of this team to provide one-on-one interaction either via phones, technoloty or face to-face with other parents in the state who have a child birth to age 21 with a combined hearing & vision loss. If you want to be connected to one of these parents, please contact Teresa Coonts at the number and email listed above. This is an exciting group of parents working & learnin together for the purpose of supporting other families in the future.

When contacting our advertisers, please tell them you found them HERE!!!

Make sure to let people know how you found out about these events, activities & advertisers!!Tell ‘em, O’Hana Kids’ News pointed you their way!!!

Easter

Seals Nebraska

2012 Summer

Respite Camp Dates

June 10 - 15 Young Adults, ages 23-39

June 17 - 22 Adults, age 40+

June 24 - 29 Youth, ages 6 - 13

July 10 - 13 Military Youth, ages 7 - 16, Offutt AFB

July 15 - 20 Teens, ages 14 - 22

July 22 - 26 All Ages

MORE INFORMATION: 1(800)650-9880, ext. 1128www.campeastersealsne.com

All camps are held at the BSA

Camp Eagle near Fremont, NE.

Miracle League Baseball

~ Omaha ~

We believe that

Conservatory of Contemporary Dance, Every Monday

For Kids with Special Needs LOCATION: 2701 O Street, LINCOLN TIME: 6:30 – 7:30 pm COST: First session FREE, Registration Fee FREE, $20 1st month, $45 every month after MORE INFO: Contact Monya DeBoer at 402-405-6470 or [email protected] DESCRIPTION: Dance class of various studies, for ALL AGES from 3 & up! Come make friends, & have fun learning about dance. This class is open to BOYS & GIRLS!!

Preschool Fine Arts Play Group at Art Planet For preschoolers with all abilities ages 2 – 5, & their caregivers FREE FOR FOSTER FAMILIES & THEIR PRESCHOOLERS LOCATION: Home Studio, 5201 S. 65th St Cir, LINCOLN MORE INFO: Go to www.artplanetlincoln.com REGISTER ONLINE! Art Planet is also on FACEBOOK DESCRIPTION: Art Planet’s Fine Arts Play Group is a time for you and your preschooler to experience wonderful hands-on messy art with a variety of mediums and materials. Great for sensory, attention span and social skill development – plus LOTS of FUN!!! This adult/child class is well suited for parents, grandparents, and caregivers too!! It’s an artful experience where you and your child play, engage, and explore the senses.

Mighty Movers Gymnastics Class INTENDED AUDIENCE: For all kids ages 3 – 10 with a special need LOCATION: Cooper YMCA, 6767 S. 14th Street, LINCOLN MORE INFO: 402-323-6400 DESCRIPTION: This is a parent/child gymnastics class, for children with any special needs, we do not limit or label any disability in this class. If a parent thinks this is going to be a good fit for their child, they are more than welcome to sign up.

Lincoln Fencing Club: Wheelchair Fencing Program Persons who are physically challenged, ages 10 to adult LOCATION: The Lincoln Fencing Club, 27th & O, LINCOLN MORE INFO & RSVP: www.lincolnfencing.com or call 402-420-7688 ask for Kristian WATCH THE VIDEO on YOUTUBE: www.youtube.com/watch?v=twc7ESexoZMm DESCRIPTION: Lincoln Fencing Club and the Dream 62 Foundation are proud to announce the opening of the Joba Chamberlain Wheelchair Fencing Program. We will give any physically challenged person one FREE individual lesson, after which the fencer can decide if they wish to continue or not. LFC has 4 trained wheelchair coaches and WE LOVE TO FENCE! LFC provides all necessary equipment. Scholarships are available. Remember “Disability does not mean impossibility” at LFC nothing is impossible! See you soon!!

Youth Theatre at the Youth Actors Academy of Lincoln INTENDED AUDIENCE: For all kids including kids with Asperger’s or high functioning Autism LOCATION: Youth Actors Academy of Lincoln, YAAL, 5930 S. 57th Street (just south of Old Cheney), LINCOLN AGES: Grades 1 - 9 COST: Scholarships available MORE INFO: www.yaal.org or [email protected] or 402-450-9823 DESCRIPTION: YAAL is a non-profit, providing theatre & vocal instruction for youth. Make friends & build confidence! We are now registering for our spring classes! Children with Asperger’s or high functioning Autism are encouraged to register for our mainstream classes or performance workshops. Please read the class descriptions carefully & call for more information, so that we can ensure your child is in an appropriate class!

Page 28

!

! Are$you$a$caregiver$for$a$loved$$$$$$$$$$$$$$$$$$one$with$a$disability?!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Call!the!Nebraska!Respite!Network!to!ask!questions!about!possible!funding!for!respite!&!help!in!finding!a!respite!

provider!for!your!family.!

Are$you$interested$in$working$$$$$$$$$$$$$$with$other$individuals$who$$$$$$$$$$$$$$$$$$$$$$$$

have$a$disability?!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!The!Nebraska!Respite!Network!is!

seeking!individuals!to!provide!respite!to!individuals!with!disabilities!across!

the!lifespan.$

Contact$Us$Today!$

Statewide:$1?866?RESPITE$

SE$Nebraska:[email protected]$

Douglas$and$Sarpy$Counties:$$$$$$$$$402?559?5732$$$$$$

[email protected]$

!

Lincoln Park & Recreation Summer Camps

For More Information contact Sherry at 402-‐441-‐7948 Must Register for these camps! Forms to register will be available March 2016

Art Extravaganza Camp for ages 13 & Up

Starts June 6 – Runs Monday through Friday from 1:15 – 4:15 pm COST: $70.00 per person

**Door to door transportation is available within Lincoln for $22.50 for the week, must register LOCATED AT: Easterday Recreation Center, 6130 Adams St, LINCOLN

Drama Camp for ages 13 & Up

Starts July 25 – Runs Monday through Friday from 9:30 am to 3:00 pm COST: $113.00 per person

**Door to door transportation is available within Lincoln for $22.50 for the week, must register LOCATED AT: Auld Pavilion, 1650 Memorial Dr., Antelope Park, LINCOLN

Adaptive Recreation SumFun Day Camp for ages 5 to 21

Start Dates are: June 20, June 27, July 11 and July 18 , Runs Monday through Friday each week is a different session From 9:00 am to 2:30 pm

COST: $89.00 per person per session **Door to door transportation is available within Lincoln for $22.50 per week, must register

LOCATED AT: Auld Pavilion, 1650 Memorial Dr., Antelope Park, LINCOLN SumFun is a camp designed to meet the needs of youth with intellectual and physical disabilities. The program offers a wide range of recreation

activities which provides opportunities for social interaction and aid in the development of physical and social skills. SumFun is designed to provide a paid staff to participant ratio of 1:5. Activities will include arts and crafts, games, music, sports, swimming, and field trips. Participants will be

assigned to camp groups according to their age. Enrollment is limited. Registrations are taken on a first come first served basis.





What's Where???













[email protected]

FACEBOOK too!!


Special Needs Mom's






-- April Vernon

Lincoln JUNE Events

Call on date Amplify Support Group: (usually last Tuesday of the month)(quarterly) Parents of Children with hearing loss in Lincoln and the surrounding areas LOCATION: Sheridan Lutheran Church, Room 111, 70th & Pioneers, LINCOLN TIME: 6:30 pm MORE INFORMATION: Contact Missy Stithem at [email protected] to be part of this group! Childcare is provided! DESCRIPTION: If you have a child with hearing loss you know or soon will, that sharing your experience with other parents that have “been there” is extremely valuable. We’d invite you to join us at our next quarterly meeting. Amplify’s goals are to support families through their children’s hearing journey’s, collaborate on important issues related to hearing loss, as well as welcome new families. AS a parent driven group, we share information, answer questions, focus on local issues, and brag about our children!

June DATE TO BE DETERMINED Wonderfully Made, Friendship Club Event: Lincoln Children’s Zoo LOCATION: TBD, LINCOLN TIME: TBD FOR ALL DETAILS: Nicole at 402-429-0771 or [email protected] or check out the website at www.wonderfullymadene.com DESCRIPTION: This program is for middle school and high school aged kids with varying special needs; we want them to have fun, make friends, and work on social skills in a safe and laid back environment.

June 1 Autism Family Network Parent Meeting with DHHS LOCATION: Lincoln Community Foundations, 215 Centennial Mall South, 5th Floor, LINCOLN TIME: 6:30 pm REGISTRATION OR QUESTIONS: [email protected] DESCRIPTION: Join us for an open forum meeting with Courtney Miller from DHHS Division of Developmental Disabilities. Courtney would like to hear from families the problems and issues that they are experiencing to see where her division can help.

June 2, 9, 16, 23 & 30

Adaptive Youth Tennis Program (Thursdays through September) LOCATION: Woods Tennis Center, LINCOLN TIME: 6:00 – 7:00 pm MORE INFO: Rick Haith at [email protected] DESCRIPTION: The goal of this program is to give the participants the foundation of skill so they can approach their middle school or high school tennis programs, when they reach that age, & play on those teams. That is why we are starting them so young. Tennis is the only sport where an able bodied participant doesn’t have to utilize a piece of equipment to paly vs an individual with a disability. The only international rules change is that the chair user gets 2 bounces on their side of the net. Therefore, is a kid that utilizes a chair wanted to play an able bodied classmate, family member or friend they can!





What's Where???













[email protected]

FACEBOOK too!!


Special Needs Mom's






-- April Vernon

June 2, 9, 16, & 23 July 7, 14, 21, & 28 August 4

Special Olympics Spring 2016 Soccer Practice Schedule for Ages 8 & up (22+) LOCATION: Easterday Park, 6130 Adams, LINCOLN TIME: 5:30 – 7:30 pm PRE-REGISTRATION REQUIRED! QUESTIONS: 402-441-7901 DESCRIPTION: Tournament in Lincoln on August 6 & 7

June 4

Strider Bike Camp For ages 2 - 21 LOCATION: Easterday Recreation Center, 6130 Adams, LINCOLN TIME: 11:00 – 11:45 am MORE INFO: 402-441-7948 to register and for more information DESCRIPTION: Strider no-pedal balance bikes are designed specifically to help riders learn balance and coordination before pedaling. Ready. Set. Go! Come ride with us! We will be having fun and learning important skills with Strider no-pedal balance bikes provided by Strider Sports Int’l, Inc. Strider Sports has donated bikes to Special Olympics to encourage participation in the Strider Cup race for youth with special needs. The race will occur on Saturday, June 11, 2016, at 11:00 am at the Railyard in Lincoln. Our 5 week training will prepare riders to compete in the Strider Cup!

June 4, 11, 18, & 25 July 9, 16, 23, & 30

Special Olympics Spring 2016 Bocce Practice Schedule for Ages 8 & up (22+) LOCATION: Easterday Park, 6130 Adams, LINCOLN TIME: 9:00 to 10:30 am PRE-REGISTRATION REQUIRED! QUESTIONS: 402-441-7877 DESCRIPTION: Tournament in Lincoln on August 7

Lincoln JUNE Events

June 4 July 2 August 20

Swim Party! Sponsored by the O.N.E. Coalition This event is intended for kids with special needs & their families LOCATION: Star City Shores, 4375 S. 33rd Street, LINCOLN TIME: 8:30 – 10:00 pm on June 4 & July 2; 6:30 – 8:00 pm on August 20 COST: FREE MORE INFO: 402-441-7948 to register and for more information DESCRIPTION: This is a sensory friendly evening. Lifeguards will NOT be using their whistles except when people are using the slides. Music will not be playing as well. Come join us for a FREE evening of swimming for the whole family!!

Feel free to contact us with questions or comments! [email protected] or www.ohanakidsnews.com

Page 31

Documents

Special Needs Mom's - O’Hana Kids’ News · 2016. 6. 2. · Exceptional Advocate Newsletter Mainly for Military families, there is information in this resource for families who