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MOVING TOWARD A WORLD FREE OF MS | 2009 SPRING VOL 2 INSIDE THIS ISSUE PACIFIC SOUTH COAST CHAPTER Group Fitness PAGE 4 MS Activists PAGE 5 Energy Assistance PAGE 7 Walk MS 2009 PAGE 10 JOIN THE MOVEMENT BY CHALLENGING YOURSELF! MORE INFO National MS Society CEO, Joyce Nelson, will participate in Challenge Walk MS PAGE 9 Bike MS Bay to Bay Tour October 10 & 11, 2009 This October, 2,500 cyclists will pedal their way toward a cure for multiple sclerosis at the Bike MS Bay to Bay Tour, voted “Best Cycling Event” by the readers of Competitor magazine for the past three years. Riders enjoy fully-supported 30, 100 and 150-mile routes over two days along Southern California’s beautiful coastline. Registration is now open and will close at capacity of 2,500 cyclists. On Saturday, cyclists will begin in either Irvine or Carlsbad for 50, 100 or 30 miles down the coast. Routes finish in Carlsbad at the Westfield Plaza Camino Real, where cyclists will enjoy a celebration festival including a cycling expo, children’s fun zone, food, drink and live entertainment. On Sunday, 100 and 150-mile riders will pedal the remaining miles to the finish in Mission Bay, where they’ll be surrounded by cheering supporters and another celebration offering food and fun! The Bike MS Bay to Bay Tour is a fun-filled event open to all levels of cyclists, from beginners to experts. Register to ride at biketofinishMS.com Challenge Walk MS September 11-13, 2009 Challenge Walk MS is a personal journey of spirit and stamina, and makes an important difference in the lives of people living with multiple sclerosis. United for one cause, we will take over 100,000 steps in one of the most rewarding journeys of our lives, filled with friendship, unforgettable moments and most of all, hope. Accept the Challenge and journey toward a world free of MS. 3 days. 50 miles. Carlsbad to San Diego. Register today at myMSchallenge.com TWO GREAT EVENTS. ONE DESTINATION. A CHANCE TO TEST YOUR LIMITS WHILE CREATING A WORLD FREE OF MS.

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Page 1: Spring 2009 - MSConnection

MOVING TOWARD A WORLD FREE OF MS | 2009 • SPRING • VOL 2

INSIDE THIS ISSUE

PACIFIC SOUTH COAST CHAPTER

Group Fitness PAGE 4

MS Activists PAGE 5

Energy Assistance PAGE 7

Walk MS 2009 PAGE 10

JOIN THE MOVEMENT BY CHALLENGING YOURSELF!

MOREINFONational MS Society CEO, Joyce Nelson, will participate in Challenge Walk MS PAGE 9

Bike MS Bay to Bay Tour October 10 & 11, 2009

This October, 2,500 cyclists will pedal their way toward a cure for multiple sclerosis at the Bike MS Bay to Bay Tour, voted “Best Cycling Event” by the readers of Competitor magazine for the past three years. Riders enjoy fully-supported 30, 100 and 150-mile routes over two days along Southern California’s beautiful coastline.

Registration is now open and will close at capacity of 2,500 cyclists.

On Saturday, cyclists will begin in either Irvine or Carlsbad for 50, 100 or 30 miles down the coast. Routes finish in Carlsbad at the Westfield Plaza Camino Real, where cyclists will enjoy a celebration festival including a cycling expo, children’s fun zone, food, drink and live entertainment.

On Sunday, 100 and 150-mile riders will pedal the remaining miles to the finish in Mission Bay, where they’ll be surrounded by cheering supporters and another celebration offering food and fun!

The Bike MS Bay to Bay Tour is a fun-filled event open to all levels of cyclists, from beginners to experts. Register to ride at biketofinishMS.com

Challenge Walk MS September 11-13, 2009

Challenge Walk MS is a personal journey of spirit and stamina, and makes an important difference in the lives of people living with multiple sclerosis. United for one cause, we will take over 100,000 steps in one of the most rewarding journeys of our lives, filled with friendship, unforgettable moments and most of all, hope. Accept the Challenge and journey toward a world free of MS.

3 days. 50 miles. Carlsbad to San Diego. Register today at myMSchallenge.com

TWO GREAT EVENTS. ONE DESTINATION. A CHANCE TO TEST yOUR LIMITS WHILE CREATING A WORLD FREE OF MS.

Page 2: Spring 2009 - MSConnection

MULTIPLE SCLEROSIS AFFECTS FAMILIES.MULTIPLE SCLEROSIS AFFECTS CHILDREN TOO.

THIS IS WHy WE ARE TAkING A STAND AGAINST MS. On Saturday, May 30, families all over the area will host lemonade stands to raise awareness and funds for MS. Take your Stand Against MS. Get your neighborhood, school, business, church, friends and family involved. Visit standagainstMS.com or call Heather at 760-448-8446 to start your stand today!

2 | JOIN THE MOVEMENT: nationalMSsociety.org

(800) 344-4867PUbLICATION OF THE NATIONAL MULTIPLE SCLEROSIS SOCIETy Pacific South Coast Chapter

Chapter Offices: 5950 La Place Court, Suite 200 Carlsbad, California 92008

3000-C Airway Avenue, Suite 125 Costa Mesa, California 92626

Vice President, Programs & Services Karen Hooper Director, Marketing & Communications Beth Clark

HELP THE CHAPTER SAVE PRINTING & POSTAGE COSTS! To receive this publication via email, send an email to [email protected] with “Email me the MSConnection” in the subject line. You’ll save paper (and therefore trees) as well!

The National Multiple Sclerosis Society does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The National Multiple Sclerosis Society assumes no liability for the use of contents of any product or service mentioned.

Information provided by the Society is based upon professional advice, published, experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The National Multiple Sclerosis Society recommends that all questions and information be discussed with a personal physician.

The National Multiple Sclerosis Society is dedicated to ending the devastating effects of MS.

© 2009 National Multiple Sclerosis Society, Pacific South Coast Chapter

ARE yOU OR SOMEONE yOU kNOW LIVING WITH THE CHALLENGES OF MULTIPLE SCLEROSIS THROUGH CHILDHOOD OR ADOLESCENCE? The chapter is currently developing an outreach project to help children and adolescents living with MS. If you or someone you know is under 18 living with MS, please contact Janell Marshall at 760-448-8407 or [email protected] to see how you can work with the chapter to outreach to other kids and teens living with MS in our area.

Page 3: Spring 2009 - MSConnection

TOLL FREE NUMbER 1 800 344 4867 | 3

RESEARCH

MOREINFOStay up-to-date on research by signing up

for our monthly research updates email.

Just email [email protected]

with “I want the research email” in the

subject line.

FAST FORWARD SPEEDING TREATMENTS BY FUNDING INNOVATION

Fast Forward, LLC is a nonprofit organization established by the National MS Society in order to accelerate the development of treatments for MS. Fast Forward will connect university-based MS research with private-sector drug development and fund small biotechnology/ pharmaceutical companies to develop innovative new MS therapies and repurpose FDA-approved drugs as new treatments for MS.

Fast Forward and Apitope International NV, a biopharmaceutical company with headquarters in Belgium, recently announced a partnership to support Apitope’s proof of principle clinical trial of ATX-MS-1467. This peptide therapeutic vaccine is designed to target and prevent the abnormal pathological immune response in MS.

The agreement with Apitope is the first in a series of partnerships between Fast Forward and early stage biotechnology companies. “We are pleased to partner with Apitope to accelerate the development of innovative therapies for MS,” said Dr. Timothy Coetzee, Fast Forward’s Executive Director. “ATX-MS-1467 has the potential to redirect the immune system in MS which is essential to minimizing the damage to the nervous system in this highly debilitating disease.” Adds Dr. Coetzee, “We are concerned about the small number of therapies in development for MS relative to other diseases and the impact that the current

economic climate will have on development of new treatments for people with MS. Fast Forward is committed to reversing this trend by deploying its resources to spur development of innovative MS therapies and bring them to market as quickly as possible.”

“The National MS Society’s support provides a strong independent validation of our approach to the treatment of MS,” said Dr. Keith Martin, CEO of Apitope. “We are very grateful for this funding from a world leader in MS research.”

Following more than 15 years of research, ATX-MS-1467, which consists of four short peptides derived from myelin basic protein, a key autoantigen in MS, was taken into clinical trials in 2006. The therapy is a highly selective treatment for MS targeting the major histocompatability complex (MHC) class II molecule to regulate T cell activity. The company recently announced results from the initial clinical trial in secondary progressive MS patients, which indicated that the drug was safe and well tolerated with promising early evidence of efficacy.

For more information, visit fastforward.org.

Page 4: Spring 2009 - MSConnection

Do you worry that you might get injured if you work out on your own? Are you unsure of how to use the equipment at big gyms or aren’t comfortable in large classes? Or, maybe you are the one who hits the gym full force for a week or two but then burns out. If any of these scenarios sound familiar, you might want to give small group classes specific to MS a chance!

Small group exercise programs are a popular fitness trend now. They usually have 5-10 people in each class lead by one instructor. When looking for a group class to join, don’t be afraid to “interview” the trainer or instructor. Be sure they are certified with a nationally accredited agency and that they have an extensive knowledge base regarding MS and its effects. “I want my students to get an effective workout while having fun, but just as importantly, stay injury free, “says Dane Brockman, CPT and MS strength class instructor at Addie’s Studio.

With group training, you are not only holding yourself accountable to the workout, you also have a trainer and others in the class who are counting on you to be there.

“I have more energy, stamina and balance thanks to strength training. I’ve also made some new friends and have a wonderful support system in the class,” says Carol of an MS-specific group class at Addie’s Studio.

“Having MS makes it a challenge to find a yoga class where the temperature is right and the

instructor understands how MS impacts individuals,” says Serge of his continued commitment to attend MS yoga. “Lauren is an incredible instructor, her classes motivate me and help me stay balanced and strong,” he continues.

There are many obstacles that discourage individuals from exercise. Break through these obstacles to get to a healthier, happier you! Get up and get started today! Health benefits, socializing, new friendships and a healthier, more energetic you are just a few of the perks you will enjoy from your group exercise class. Now go out there and make today your best day ever!

The chapter offers a wide variety of boutique exercise classes to registered clients living with MS including strength training, yoga, balance and aquatics. Call 1-800-344-4867 to request a class waiver and start enjoying the many benefits of exercise.

PROGRAMS

4 | JOIN THE MOVEMENT: nationalMSsociety.org

THE BENEFITS OF GROUP FITNESSADDIE JACObS, CPT OWNER, ADDIE’S PERSONAL TRAINING STUDIO, INC.

INSIDELOOK“I have more energy, stamina and balance thanks to strength training. I’ve also made some new friends and have a wonderful support system in the class,” says Carol of an MS-specific group class at Addie’s Studio.

DOMORERace to Stop MS at the Long Beach Marathon, Orange County Triathlon or endurance event of your choice. Receive free personal training and fundraising assistance!

Visit racetostopMS.com or call 760-448-8422.

Page 5: Spring 2009 - MSConnection

SOCIETy COMMENDS PRESIDENT ObAMA’S INITIAL STEPS IN REMOVING THE bANS ON EMbRyONIC STEM CELL RESEARCHThe National MS Society continues to seek ways to prevent, slow the progression or repair the effects of MS. One channel is by supporting scientifically meritorious medical research, including research using human cells. This is done in accordance with federal, state and local laws and with adherence to the strictest ethical and procedural guidelines. For the past eight years, federal policies have impeded these efforts by severely limiting the number of approved embryonic stem cell lines that could be used in federally funded research and prohibiting the donation of unused embryos for research purposes by people utilizing the services of in vitro fertilization clinics.

CHAPTER HAPPENINGSMS ACTIVISTS SHOW THEIR COLORS ON CAPITOL HILL

ADVOCACY

TOLL FREE NUMbER 1 800 344 4867 | 5

Over 350 MS Activists from chapters throughout the United States proudly displayed their orange ties and scarves when they stormed Capitol Hill as part of the 18th Annual National MS Society Public Policy Conference. MS Activists met with senators and congressmen/women in their respective districts to boldly advocate for the needs of people with MS.

Each meeting with legislators focused on three key issues:

Supporting comprehensive • health care reform

Increasing federal • investment in MS research through funds made

available by the Department of Defense

Supporting establishment • of a disease registry for MS and Parkinson’s

The Conference was held at the Washington Hilton in Washington D.C., where the chapter received an award for participation in the California Action Network (CAN) for outstanding outreach and collaborative work on health care reform. The chapter was represented by Government Relations Committee (GRC) Chair Nan Luke, GRC Member Barbara Katz, Programs Manager Amanda Lasik and Chapter President Rich Israel.

Join the Action Alert Network and help us pass key legislation today! For more information, contact Amanda Lasik at 760-448-8404 or [email protected].

President Obama has taken a major step in removing the barriers to a promising path of responsible scientific research and the Society commends him for the new hope and optimism he brings to the millions of people living with chronic and debilitating diseases or disabilities.

The Society respects the opinions of people who do not agree with our stem cell research position. Anyone wanting to ensure that their contributions will be devoted to other research areas or to the support of direct services that help individuals and families impacted by MS move forward with their lives can do so by submitting a simple request. For additional information, visit nationalmssociety.org/news and search for “stem cell.”

INSIDELOOK“The energy created by 350 MS activists on Capitol Hill was phenomenal. The conference showed me how crucial our grassroots activism movement is to the needs of people with MS,” says Amanda Lasik, Chapter Programs Manager.

Page 6: Spring 2009 - MSConnection

FROM OUR MEMBERS TO YOU

BLUE SPACE BLUESby CONNIE kENNEMER

6 | JOIN THE MOVEMENT: nationalMSsociety.org

One of the few advantages that multiple sclerosis has afforded me is the use of a blue parking placard. If muscle weakness and fatigue are my handicaps, why should I feel embarrassed when other people see me pull into a “blue space”? But I do. I always hope no one will notice that I seem able-bodied. Sometimes I am tempted to limp.

But today I don’t hesitate and place the placard on my dash after parking between the blue lines. As I return to my car sometime later, wearily juggling bags and boxes, I notice a car in the handicapped space next to mine. I notice because the driver, a middle-aged man, is staring at me. Glaring would be more accurate. He shakes his head in disgust. His look of resentment is fully intended to shame me.

My heart begins to race. My body temperature rises noticeably. I attempt to get his attention,

to wave my placard in his view, but now he is ignoring me and avoiding eye contact. I want to honk—shout—anything. I back out of the space just as he maneuvers a wheelchair out of his trunk, rolling it to the passenger side of his car. Still struggling to defend myself, I roll my window down and say assertively, “I have multiple sclerosis.” At that moment he lifts out a frail, trembling woman and places her gently into the wheelchair. She addresses me with words that pierce my heart, “So do I.”

I am shaken. As I drive out of the parking lot, tears fill my eyes and begin to spill down my cheeks, quickly turning into little streams of ruined makeup. My mind fills with unruly and unwelcome emotions. Indignation that I should have to explain my limitations. Sorrow for myself and for this nameless woman who knows intimately the darker side of this disease. Fear. I am frightened by her condition. I want to pretend we do not share the same illness and possibly the same future.

At the same time, I feel violated by a self-righteous and judgmental society that narrowly defines disability. I am not in a wheelchair. My handicap is hidden. Do these facts eliminate the possibility that I share the same limitations as those who are visibly disabled? Like those in the community of the recognizably handicapped, I must adapt to a world that is restricted and structured by my disease. “Normal” for me now includes a list of diminishing abilities and activities. Five years ago it felt

“normal” to bound up stairs two at a time while ignoring the handrail. Now, “normal” finds me inching along the staircase, one step at a time, with one hand firmly planted on an adjacent wall. “Normal” means no more walks with friends since my left leg begins to drag halfway home. No more high heels and dancing with my husband; my weak ankles, absence of balance and diminishing coordination have seen to that. These activities— trivial to some, but precious to me – have been taken from me by this disease. I want to shout at the world, “Give me a break! I’ll give you this handy placard if you’ll take my disease! Deal?”

With my mind on autopilot, I numbly steer my car toward the freeway entrance. I am anxious to escape, exhausted by my emotions and feel as though I have lived a week in the last five minutes. All the implications of multiple sclerosis seem to be haunting me and I long for the refuge and quiet of home.

I suppose I will always have to deal with surges of emotion as I face the losses and challenges that MS brings. Today I grieve freely and fully. Tomorrow I will begin again and move on.

INSIDELOOK“My heart begins to race... I attempt to get his attention, to wave my placard in his view, but now he is ignoring me and avoiding eye contact.”

Page 7: Spring 2009 - MSConnection

CHAPTER SERVICESSUMMER IS ALMOST HERE!

TOLL FREE NUMbER 1 800 344 4867 | 7

SERVICES

SUMMER ENERGY ASSISTANCE PROGRAMMany of us know how difficult it can be to live with MS in the hot summer months. The chapter wants to help people stay cool this summer! Portable air conditioners, fans, cooling vests and help with those high summer air conditioning bills will be available to clients in need.

Applications will be available starting May 15 and our first awards will be distributed by July 31. If you would like to request a grant from our Summer Energy Assistance Program, please call 1-800-344-4867 and press 1. Funds are limited and awards are based on a first-come-first-serve basis, so contact us today.

Please note: Applications and income assessments will be used to choose grant recipients – not everyone will qualify.

If you are a customer of SOCAL GAS, SDG&E® or SOCAL EDISON and you meet the income guidelines listed below, you may be eligible to receive both free appliances and home improvements. Additionally, you may be eligible for increased medical baselines and/or a special discount on your monthly bill due to your diagnosis of MS. The Energy Team program has helped thousands of customers receive the appliances and home improvements including refrigerators, low-flow shower heads and faucet aerators, ceiling insulation, caulking and weather-stripping, energy-saving light bulbs and porch light fixtures.

In order to participate, you must be a customer of one of the three utility companies listed above and meet the income guidelines below, or you may also qualify if you participate in one or more of the following public assistance programs; WIC, LIHEAP, Food Stamps, Medi-Cal, Healthy Families A & B or TANF.

Energy Team Income Guidelines:

If you meet the criteria, please contact your appropriate company:

SDG&E 866-597-0597 or sdge.com/energyteam

Southern California Edison 800-684-8123 or sce.com

Southern California Gas 800-427-2200 or socalgas.com

Household Members

Maximum House-hold Income Level

1 or 2 $30,5003 $35,8004 $43,2005 $50,6006 $58,000

For each additional $7,400

Page 8: Spring 2009 - MSConnection

www.abilitycenter.com

SALES • RENTALS • SERVICEACCESIBLE VANS, SCOOTER

ANDWHEELCHAIR LIFTS, STAIRLIFTS, SCOOTERS, WHEELCHAIRS, PORTABLE RAMPS,COMPLETE REPAIR CENTER

We offer EquipmentFinancing (OAC)

For the MS Society members we offerfree installation and a free in home

evaluation.Call or visit us at one of our 2 convenientlocations in Southern California:

San Diego4797 Ruffner St.San Diego, CA 92111

1 800 242 4111

Orange County11600 Western Ave.Stanton, CA 90680

8 | JOIN THE MOVEMENT: nationalMSsociety.org

MS DINNER AUCTIONNOVEMbER 21, 2009 LOEWS CORONADO bAy RESORT For more information, visit msdinnerauction.com.

SAVE THE DATE

FUNDING THE MISSION1946 SOCIETyIn 1946, Sylvia Lawry’s search for answers about her brother’s newly diagnosed MS led her to establish what would later become the National Multiple Sclerosis Society. Today, her singular determination has become a worldwide movement committed to a world free of MS.

It is in this spirit that the 1946 Society was formed. The 1946 Society is a group of people who want to do something about MS NOW. The good news is— it has never been so easy to make a difference.

Gandhi once said we need to “be the change we want to see in the world.” Weknow he wasn’t talking about quarters, nickels, and dimes – but it’s hard to imagine he wouldn’t support the idea of using extra coins to make a profound impact in the lives of others. When we all commit to making small contributions individually, collectively we can effect long-lasting and meaningful change. Now, for less than $20 per month – that’s just one cup of coffee each week – you can fund the most promising MS research and provide programs and services for your local MS community.

Join the 1946 Society

All you have to do is make a monthly gift of $19.46 or any amount ending in 9.46 (e.g. $29.46, $59.46, $149.46 etc.) with your debit or credit card. Here’s how:

Contact Lisa Keeley at 760-448-8417 or • [email protected] and set up monthly gifts.

Use your own online banking system to set • up an automatic monthly payment. (Checks should be made payable to the National MS Society and include 1946 Society on the memo line.)

Plus, when you become a member of the 1946 Society we’ll send you a Society tote bag as our way of saying thank you for making this important commitment to a world free of MS.

Join the 1946 Society and help us reach 1,000 members by 2010. Together we will move closer to a world free of MS!

Page 9: Spring 2009 - MSConnection

NATIONAL MS SOCIETY CEO JOYCE NELSON EMBRACES A NEW CHALLENGE

TOLL FREE NUMbER 1 800 344 4867 | 9

FUNDING THE MISSION

INSIDELOOK“I’d love to get to know other participants and learn how they think the Society can respond better to the challenges of living with MS.”

Challenge Walk is a three-day, 50-mile walk event that raises funds and awareness for MS research, programs and services. Joyce Nelson, who became the Society’s President and CEO in 2005, decided to join the Challenge Walk circuit (10 events nationwide) in a big way this summer and fall after hearing the mother-daughter music team of Jeannie and Melody Felton sing their moving composition “Million Miles” at the 2008 National Conference in Chicago.

“Together we’ll take on this fight, and if I could, then I would walk a million miles for you,” they sang.

The lyrics were inspired by a Challenge Walk participant they encountered at the Cape Cod, Massachusetts event, where Melody walked and Jeannie volunteered.

The song reminded Joyce of the energy and camaraderie she enjoyed the last time she participated in Challenge Walk. “It’s been four years since my last multi-day walk, and I realized how much I miss those long conversations with people who live with MS every day,” Joyce said.

“It may not be a million miles, but we plan to walk as many as possible this year,” Joyce said. Some Challenge Walk events occur on the same weekend, so Joyce and her husband John Hansell will attend as many as possible, including the chapter’s walk from Carlsbad to downtown San Diego, September 11-13.

“I’d love to get to know other participants and learn how they think the Society can respond better to the challenges of living with MS,” Joyce continues.

Will you accept the challenge too? There is still time to register, train and fundraise. Learn more at myMSchallenge.com or by calling 800-486-6762.

MOREINFOChallenge Walk MS September 11-13 myMSchallenge.com

Page 10: Spring 2009 - MSConnection

VOLUNTEERS MAKE IT HAPPEN!VOLUNTEERS ARE ESSENTIAL TO THE CHAPTER. WE COULDN’T DO IT WITHOUT THESE FINE PEOPLE.> Frazee Paint &Wallcovering was honored at the 15th Annual Health Hero Awards breakfast. We thank Frazee for donating warehouse space and for the many hours spent delivering materials to our events.> The following volunteers were honored at the 33rd Annual Spirit of Volunteerism:

• Frank Austin, Chair of the GRC and leader of a self-help group for men with MS.• Ace Relocation Systems, a sponsor of the Bike Tour for over ten years, helping the chapter save on countless costs. • Disney VoluntEARS, an integral part the chapter’s volunteer corps for over a decade. Whether volunteering at event rest stops, participating and training as a members of Team Disney, cast members have logged thousands of hours and raised over $656,000!• Sam Rubin, KTLA Morning News entertainment reporter, has ridden as a Top Fundraiser each October in the Bike MS Tour for the past ten years.

> THANK YOU to the over 1,000 volunteers who came out in support of the Walk MS 2009. Your time, efforts and talents were much appreciated!

SUPPORTING THE MISSIONFUNDING THE MISSIONWALk MS 2009: kEEP RAISING THOSE FUNDS!Twelve thousand participants enjoyed Walk MS this year! Walk MS was held in April at NTC Park – Liberty Station in San Diego, University of California Irvine and LEGOLAND® California in Carlsbad and offered a 2-3 mile fun walk. The event was a celebration featuring a festival including live music, Papa John’s pizza, entertainment and a LEGOLAND Kid Zone. We are still in need of fundraisers for this event to help up reach our $2.2 million goal. Check out MSwalk.com to learn about the great prizes you can win.

For the past eight years, San Diego County Credit Union®, the largest locally owned financial institution

in San Diego, has returned as the title sponsor of Walk MS. Learn more at sdccu.com.

“We all have something that we can offer from a service perspective,” says SDCCU President & CEO Irene Oberbauer, “…to give back in some fashion. This is the way we do it and together we all help make a difference.” Their philanthropy extends through their branches and Community Crew, a passionate group of SDCCU volunteers, employees and members who take volunteerism to a whole new level. In 2009, their Walk MS team “San Diego County Credit Union Community Crew” had over 200 members and raised nearly $25,000 through fundraising and by selling MS sneaker pin-ups in their branches.

We are extremely thankful for our additional sponsors:

10 | JOIN THE MOVEMENT: nationalMSsociety.org

- - - - - - - - - - - - - - - - PRESENTING SPONSORS - - - - - - - - - - - - - - - -

- - - - - - - - - - - - - - - - - - PLATINUM SPONSORS - - - - - - - - - - - - - - - -

- - - - - - - - - - - - - - - - - - GOLD SPONSORS - - - - - - - - - - - - - - - - - - HD Supply • Lincoln Gustafson & Cercos • PennySaver USA

Qualcomm • Clear Channel Outdoor • EMD Serono • Pure Protein Bill Howe Plumbing • Cedar Pharmacy • Skin1 • Panda Express

Page 11: Spring 2009 - MSConnection

FUNDING THE MISSIONTOP 150 FUNDRAISERS OF 2008 bIkE MS bAy TO bAy TOUR RAISED OVER $784,000.Congratulations and thank you to the amazing 2008 Bike MS 150 Club. Listed below are the top 50 of this remarkable group of fundraisers. For a complete list, visit biketofinishMS.com/150clubstandings.

TOP TEAMSOUR 2008 bIkE TEAMS DID A GREAT JOb RAISING FUNDS! HERE’S SOME OF THE “TOP DOGS”

TOLL FREE NUMbER 1 800 344 4867 | 11

1. Al Basso - $43,827

2. Franklyn Gottbetter - $28,226

3. Daniel Abrams - $20,036

4. Steve Malloy - $16,806

5. John Most - $15,210

6. Joe Cucinotti - $12,465

7. Bryon Barnes - $11,215

8. Rona Kay - $11,050

9. Jay McCabe - $10,500

10. Carolyn Elsberry - $10,426

11. David Lee - $10,359

12. Larry Stinson - $10,000

13. Steve Starboard - $9,145

14. Jack Babbitt - $9,055

15. Jamie Horton - $8,490

16. Roger Waterman - $7,830

17. Ajay Madiah - $7,772

18. Mark Malbon - $7,765

19. Peter Bissell - $7,260

20. Roland Hoffman - $7,247

21. Ken McKinley - $7,225

22. Debbi Kemp - $7,170

23. Bill Fischbeck - $6,533

24. Joel Greiner - $6,440

25. Keith Sherwood - $6,345

26. Jeff Howard - $6,255

27. Kirk Evans - $6,000

28. Matthew Fein - $5,904

29. Michael Plumlee - $5,760

30. Tony Letendre - $5,615

31. Doug Schneble - $5,200

31. Shar Kanamouie - $5,200

32. Terri Gaydon - $5,190

33. Peter Albini - $5,162

34. Bill Horner - $5,150

35. Roman Cendejas - $5,090

36. David Strom - $5,064

37. Ray Freiwirth - $5,039

38. Julie Rieger - $5,030

39. Robert Stojkovic - $4,807

40. Wendy Carter - $4,720

41. Arlyn Asch - $4,696

42. Seth Grainger - $4,580

43. Arthur Berg - $4,561

44. Marcia Ugalde - $4,500

44. Dave Brock - $4,500

45. Lloyd von Sprecken - $4,490

46. Greg Ferree - $4,490

47. Michael Adam - $4,420

48. Mark Firger - $4,325

49. Kevin Gaffney - $4,316

50. Greg Eso - $4,210

Team Disney $129,917

24 Hour Fitness $77,050

KPMG All-Stars $72,827

OutSpokin’ For A Cure $68,233

Blue Cross Rebels $67,665

Team Basso $61,542

Team LT $55,181

Team SCRUBS $50,736

Team COX $45,869

Team Qualcomm $45,616

SchoolsFirst FCU (OCTFCU)

$44,819

Lloyd’s Lagers $37,745

Saddle Soars $35,668

Bill’s Biker Backers $31,846

Union Bank of California $31,830

Team Climb On! $31,406

Rehab United $30,523

teaMSeaside $30,355

Power Peddlers $28,347

TEAM SONY $27,057

Team Martini & Team Wells Fargo $26,985

Intuit $25,734

Beckman Coulter $25,008

Love for Lisa $21,356

Mitsubishi Motors Nationwide Traffic $20,969

Page 12: Spring 2009 - MSConnection

CALENDAR OF EVENTS

MAY

4 MS Golf Classic - La Jolla

16 Family Day at the bay - Mission bay

30 Take a Stand Against MS - Everywhere

www.standagainstMS.com

JUNE

13 Moving Forward:

Program for the Newly Diagnosed - San Diego

JULY

15 Friends of the Fair - Orange County Fairgrounds

NON-PROFITORGANIZATION

U.S. POSTAGEPAID

San Diego, CAPermit # 451

Pacific South Coast Chapter

5950 La Place Court #200Carlsbad, CA 92008

CLASSIFIEDS2001 Dodge Grand Caravan.

Approx. 68,000 miles. Extended warranty. Bruno curbsider with

scooter. $11,500 OBO Hand controls available. Call Greg 714-993-5988

3-wheel Shop Rider power scooter. $300 Very good cond.

Call Jerry 949-733-1837

MAKEADIFFERENCEVolunteer at events or at the chapter office.

Contact Linda Ingram at 760-448-8416 or [email protected]