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STERILIZATION: USE, MISUSE AND ABUSE RD 585 . F'37x State of Minnesota House Research Department Tricia Farris, Research Assistant May, This document is made available electronically by the Minnesota Legislative Reference Library as part of an ongoing digital archiving project. http://www.leg.state.mn.us/lrl/lrl.asp STERILIZATION: USE, MISUSE AND ABUSE RD 585 . F'37x State of Minnesota House Research Department Tricia Farris, Research Assistant May, This document is made available electronically by the Minnesota Legislative Reference Library as part of an ongoing digital archiving project. http://www.leg.state.mn.us/lrl/lrl.asp

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Page 1: STERILIZATION: USE, MISUSE AND ABUSE

STERILIZATION:

USE, MISUSE AND ABUSE

RD585. F'37x

State of MinnesotaHouse Research DepartmentTricia Farris, Research AssistantMay, 197J~

This document is made available electronically by the Minnesota Legislative Reference Library as part of an ongoing digital archiving project.  http://www.leg.state.mn.us/lrl/lrl.asp 

STERILIZATION:

USE, MISUSE AND ABUSE

RD585. F'37x

State of MinnesotaHouse Research DepartmentTricia Farris, Research AssistantMay, 197J~

This document is made available electronically by the Minnesota Legislative Reference Library as part of an ongoing digital archiving project.  http://www.leg.state.mn.us/lrl/lrl.asp 

Page 2: STERILIZATION: USE, MISUSE AND ABUSE

TABLE OF CONTENTS

Synopsis

Voluntary SterilizationLegalityConsent ProcedureReported AbuseIssues

Sterilization of MinorsValidity of minors' consent"Total ban solution"" pros and consMinnesota

i

1

3

Sterilization of Racial Minorities andt~P~r 6

Reported abuseProcedural safeguardsThe right to procreateMinnesotaIssue

Sterilization of the Mentally Incompetent 8Validity of consentTotal ban solutionThe situation in MinnesotaEugenic sterilization laws: new

developments and rationaleMinnesotaIssuesGuidelines for procedural safeguards

Genetic Counseling 16

Conclusion 16

Footnotes 18

Sources 19

Page 3: STERILIZATION: USE, MISUSE AND ABUSE

Synopsis

Over the past year, reports of abuse and coercionin the performance of sterilization operations haveprompted renewed and heated discussions of the subjectin legal, medical and administrative circles. Whereassterilization was used as a punitive and eugenic toolin the early part of this century, increasing knowledgeabout the educability of the mentally retarded, greaterconcern for the rights of the mentally retarded and thementally ill, and knowledge of disproportionate numbersof sterilization operations performed on racial minoritiesand the poor all point to the urgent need for carefulthinking, research and statutory reform.

A survey of the present situation shows:

I. Voluntary contraceptive sterilization

A. being chosen by more and more adults as a form offamily planning;

B. dangerously open to abuse and coercion; and,

c. being performed without uniform guidelines fromstatute or professional medical and hospitalassociations.

II. Sterilization of minors

A. prohibited in any federally funded program byDepartment of Health Education and Welfareregulations;

B. no clear definition of minors' consent asprovided for in M.S. 144.341-144.343; and,

C. performed at the discretion of parents andphysicians.

III. Sterilization of the mentally retarded and mentallyill

A. prohibited in any federally funded program byDepartment of Health Education and Welfareregulations;

B. possible in Minnesota for mentally retarded wardsof the state and mentally ill inmates of institu­tions under M.S. 256.07-256.10; and,

i

Page 4: STERILIZATION: USE, MISUSE AND ABUSE

c. completely unregulated for Inentally retardedminors under private guardianship and mentallyretarded adult non-wards.

Many classes of persons, including minors, the mentallyretarded and the mentally ill, persons receiving publicbenefits, and racial minorities, are extremely susceptibleto coercion. It must be recognized that providing theaccessibility of sterilization to these persons simultan­eously opens the door to abuse. What must be weighedare, on the one hand, the protection of such persons'integrity and rights and on the other, society's over­riding concern for all its members. Legislative intentmust be clarified, state policy determined, and adequateprocedural safeguards established. This report isintended to facilitate that process.

ii

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.'

The disclosure last summer that two black girls inAlabama, ages 12 and 14, had been sterilized by an OEOfunded family planning clinic allegedly without the in­formed consent of their parents, forced the courts, thepress, the public and various agencies and associationsto confront the issues involved in sterilization andcreate appropriate solutions. Consensus on these solu­tions will not be easily attained, for the issues involvedare complex and cut across medical, legal, economic, ethicaland moral grounds. Nevertheless, all agree that statutoryreform is long overdue. The Minnesota Statutes on sterili­zation, dating back to 1925, apply only to mentally retardedwards of the commissioner and mentally ill inmates of thestate

-~----~-----~-~~~-~

Minnesotans seeking voluntary sterilization,and who are mentally retarded minors under privateguardianship or mentally retarded adult non-wards are leftto the arbitrary discretion of individual doctors andhospitals. Sterilization is an irreversible procedureand affects one of our most basic rights, the right toprocreate. Out of concern for all those involved, thisreport has been prepared in an attempt to 1) documentthe existing situation and alleged abuses; 2) clearlystate the issues at hand; and, 3) suggest various possiblebases of statutory reform. It is not intended to be thefinal word on the subject nor to advocate any particularreform. It should, however, raise the issues, spark debate,and provide a list of resources to be called upon in furtherstudy and consideration.

VOLUNTARY STERILIZATION

Voluntary sterilization is legal in all 50 states. Afew states require that specific conditions such as consul­tation, consent of spouse, parity or age be met before theoperation can be performed. Others have statutes whichclearly legalize voluntary sterilization by assuringimmunity from criminal or civil suits (except for negligence)for physicians who perform such an operation. Nonetheless,voluntary sterilization is not illegal in those stateswithout statutes specifically making it legal. l In theabsence of statutory provisions, the courts have ruledthat performance of voluntary sterilization for thepreservation of health would not be considered violativeof public policy (see Christensen v. Thornby, 255 N.W.520 (1934» and that a state cannot deny birth controlinformation to a married couple because of the right ofmarital privacy guaranteed under the "penumbra" of theBill of Rights (see Griswold v. Connecticut, 381 U.S.479 (1965». But in the absence of clear statutory

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authority and a dearth of pertinent case law, regulationof voluntary sterilization is left to individual doctorsand hospitals. Because of the relative complexity of thesterilization procedure for women as compared to the onefor men, women voluntarily requesting sterilization aregenerally subjected to a more formal consent procedurethan are men. Nonetheless, neither the AHA nor manyindividual hospitals have developed detailed writtenprocedure to be followed prior to performance of sterili­zation operations. Information from the Journal of theAMA and the Hospital Law Manual Newsletter focuses moreon the protection of physicians from civil or criminalliability than on the protection of patients' rights andthe responsibility of physicians and hospitals to protectthem.

Voluntary contraceptive sterilization is beingchosen more and more often as a form of family planning.Statistics from Planned Parenthood report that amongAmerican couples over 30, sterilization is the most widelyused form of family limitation. Moreover, 50% of requestsfor vasectomy and various forms of tubal ligation arepresently corning from single and childless persons. 2

But, according to the findings of the Nader HealthResearch Group in Washington, D. C., this dramatic increasein the number of sterilization operations being performedbetrays a dangerous epidemic of abuse rather than a clear­cut choice of sterilization as a form of contraception.The group charges that patients are often not fully informedof all possible consequences, that many are not aware thatthe operation should be considered irreversi~le, that womenare often scared into sterilization with unfounded threatsof vaginal cancer or mortality from possible future caesareansections, and that many women are encouraged to sign sterili­zation consent forms just prior to or after delivery, whenstill heavily sedated. Their report indicates that althoughabuse is greatest among low-income women and blacks inpublic hospitals, people under thirty with only one or twochildren are also affected. Sterilization is often presentedto them as a danger-free panacean alternative to the publi­cized dangers associated with the IUD and the pill. 3

The key to protection from abuse is the assurance thatconsent to the sterilization operation is both voluntaryand informed. The guarantee of the protection of patients'rights and protection of physicians from civil and criminalliability is determined by the patient's ability to givevoluntary informed consent. Legally adequate consent tosterilization (and any medical procedure) must be voluntary,competent and knowing. The person should be neitherovertly nor covertly coerced into consent, whether through

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fabricated medical reasons, threatened loss of medicaltreatment or public assistance. A consent must be froma person competent to give it - a person who has reachedthe age of majority and who is mentally competent togive consent.

Informed consent should include all the informationa prospective sterilization patient reasonably needs inorder to decide whether or not to undergo sterilization.Based on this researcher's reading of several courtdecisions on informed consent (see Canterbury v. Spence,464 2d 772; Cobbs v. Grant, 8 Cal. 3d 229; S02P. 2d 1;and, Wilkinson v. Vesey 29SA 2d 676), it would appearthat a patient must be given a full explanation of theprocedure covering both the inherent benefits and risksincluding an explanation that the sterilization isconsidered to be an irreversible procedure, and an ex­planation of alternative methods of contraception.

Ideally, there is no need for a special statuteregarding sterilization, and in fact, some doctorshave suggested that it be considered like other majorsurgery in terms of consent requirements. Given, however,the irreversible nature of the operation, its interferencewith the right to procreate, and reported abuse, specialprotection appears to this writer to be warranted.

Issues

Issues in the regulation of voluntary sterilizationbrought to light are:

a) The need for a statute legalizing the performanceof voluntary sterilization operations, relievingphysicians of threats of civil or criminal liability,except for negligence;

b) Provision of equal accessibility to the operationregardless of race, sex, marital or economicstatus;

c) Provision of adequate safeguards to preventcoercion into "voluntary" consent.

STERILIZATION OF MINORS

It is generally assumed that minors cannot themselvesgive consent to sterilization operations. Traditionally,minors have been considered to be incapable of fully under­standing the operation and its permanent implications.

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Moreover, they are one of the classes of persons mostsusceptible to coercion and, therefore, in need of specialprotection.

The protection proposed by DilEW in their new regula­tions on sterilizations by federally funded programs 4(these regulations apply to programs financed and adminis­tered by the Public Health Service (the Health ServicesAdministration, the Health Resources Administration, theNational Institutes of Health, the Center for DiseaseControl and the Food and Drug Administration, as well asall their constituent agencies and programs) and by theSocial and Rehabilitation Service (as they affect TitlesIV-A, VI, and XIX) is a total ban on the sterilizationof persons under 21 years of age. This ban was imposedto conform with Judge Gesell's ruling in Relf et al v.Weinberger et al., the suit brought as a class actionby the Relf sisters against DHEW, that the family planningsections of the Public Health Service Act and of theSocial Security Act "do not authorize the sterilization ofany person who . • • is in fact legally incompetent underthe applicable state laws to give informed and bindingconsent to the performance of such an operation becauseof age • • .".5

Judge Gesell stated that although minors may becompetent to rely on temporary methods of birth control,they are not, under present statute, capable of voluntarilyconsenting to an irreversible operation such as steriliza­tion. Proponents of this approach, such as Nader'sHealth Research Group, the Mental Health Law project, andmany other women's and civil rights groups, support theACLU's statement that "",hile some minors may still getpregnant or impregnate, the net cost to society is muchlower than the possible abuses which would continue toflow from provision by the government for the steriliza­tion of unwitting minors. "6

Critics of this total ban solution argue that sucha prohibition on federal financial participation resultsin an unfair denial of such services to medically indigentminors who would have to rely on federally supportedprograms for this service. It is also argued that insome cases, the minor's consent should be sufficient.

Since questions about the validity of minors' consenthave also been raised in reference to abortion, it may berelevant to this discussion of sterilization that a Districtof Columbia superior court judge ruled February 6, 1973,that a minor could not be denied an abortion solely becauseof her age. Referring to a Supreme Court decision, in reGault, 387 U.S. 1 (1967), which held that "neither theFourteenth Amendment nor the Bill of Rights is for adults

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alone," the judge held that minors have the same right asadults to an abortion and parental consent is not necessaryif the minor understands the nature and consequences ofthe operation.

Minnesota

Validity of minors' consent in Minnesota is regulatedby the "Consent of Minors for Hedical Health Services"law (M.S. 144.341-144.343) which states:

144.341. LIVING APART FROM PARENTS AND MANAGINGFINANCIAL AFFAIRS, CONSENT FOR SELF. Notwithstandingany other provision of law, any minor who is livingseparate and apart from his parents or legal guardian,whether with or without the consent of a parent orguardian and regardless of the duration of suchseparate residence, and who is managing his ownfinancial affairs, regardless of the source or extent·of his income, may give effective consent to medical,dental, mental and other health services for himself,and the consent of no other person is required.

144.342. ~mRRIAGE OR GIVING BIRTH, CONSENT FORHEALTH SERVICE FOR SELF OR CHILD. Any minor who hasbeen married or has borne a child may give effectiveconsent to medical, mental, dental and other healthservices for his or her child, and for himself orherself, and the consent of no other person isrequired.

144.343. PREGNANCY, VENEREAL DISEASE AND ALCOHOLOR DRUG ABUSE. Any minor may give effective consentfor medical, mental and other health services todetermine the presence of or to treat pregnancy andconditions associated therewith, venereal disease,alcohol and other drug abuse, and the consent of noother person is required.

It is unclear whether or not these provisions apply toconsent for sterilization operations. In response toinquiries by the writer, opinions range from lI yes " to"yes with great reluctance ll to "no". Apparently somehospitals will perform a sterilization operation on anyparent who requests it regardless of age or marital status.

It should be obvious, then, that lacking a clearstatutory indication of which minors can give consent tosterilization operations, there will be no uniform avail­ability to such services across the state.

The crucial policy decision which must be made is:Is the desirability of minors' access to sterilization

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in certain instances great enough to risk the possibilityof coercive abuse inherent in the availability of theprocedures? If the decision is made to make sterilizationavailable to minors on a case-by-case basis, then provisionswill be needed to insure that consent would be truly in­formed and voluntary.

STERILIZATION OF RACIAL MINORITIES AND THE POOR

Minnie and Mary Alice Relf are not only minors; theyare black and supported by welfare money. From availableinformation, both of these groups have been subject todisproportionate abuse in the performance of sterilizationoperations, not only in Alabama, but also in Texas, Florida,California and Pennsylvania. 7 In his Memorandum Opinionto the Relf decision, Judge Gesell states that an in­definite-n-umber of the 100,000 to 150,000 low-incomepersons sterilized over the past few years under federallyfunded programs "have been improperly coerced into acceptinga sterilization operation under the threat that variousfederally supported welfare benefits would be withdrawnunless they submitted to irreversible sterilization ll

•8

Reported statistics from the North Carolina State EugenicsBoard show that of the 1,620 persons sterilized between1960 and 1968, 1,023 were black. 9 In Aiken, South Carolina,where three obstetricians were sued for refusing to deliverthe babies of welfare women who had two or more childrenunless the women agreed to be sterilized at the time ofdelivery, records show that 18 of the 34 deliveries pai.dfor in 1972 by Medicaid included sterilizations and that16 of these 18 women were black. lO Moreover, the JointProgram for the Study of Abortion, following a study of72,988 women who had legal abortions between July 1,1970, and June 30, 1971, discovered a significantly greaternumber of nonwhite women and women on welfare being sterilizedat the time of abortion than white private service women:under similar circumstances. Even when tak~ng age and numberof children into account, the study conceded that this dis­crepancy was due in part to the likelihood that physiciansmore readily recommended sterilization to the poor than to

. their private, largely nonpoor and white patients. ll

Again to conform with Judge Gesell's ruling, the newDHEW regulations seek to provide additional proceduralsafeguards for voluntary consent to sterilization bylegally competent adults. Specifically, they provide thatno nonemergency sterilization may be performed unlessvoluntarily requested by the person on whom the operationis to be performed and that any person requesting such anoperation must be advised prior to his solicitation of orhis consent for sterilization that no benefits will bewithheld or withdrawn because of a decision not to be

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sterilized. In addition, the regulations require a 72hour waiting period between the giving of informed consentand the performance of the sterilization operation.

At the same time that civil libertarians and various"pro-life" groups are adamantly opposing any state orfederal aid for sterilizations, a growing minority areproposing laws requiring the sterilization of welfarerecipients in order to relieve what they term "the growingwelfare burden". At least 14 states have considered or areconsidering legislation which would require certain peoplereceiving welfare to submit to sterilization. In 1973,bills introduced in the Illinois and New Hampshire legis­latures would have offered cash incentives to welfarerecipients who would submit to sterilization. Bills inOhio and Tennessee would have denied welfare payments toa woman with more than two illegitimate children unlessshe has undergone sterilization. This sort of coercivelegislation, proposed by those who fear that the new DHEWregulations will create too many obstacles to sterilization,is adamantly opposed by many groups such as the NWRO, ACLU,American Public Health Association, Planned Parenthood,the National Center for Bio-Ethics, and others who fearits coercive nature and ramifications. The court, inRelf v. Weinberger, based its findings on the fact thatthe intent of Congress as expressed in existing statute,is to provide for voluntary family planning. The courtthen noted that involuntary sterilization is not onlydiametrically opposed to such voluntary planning, butalso invades rather than complements the right to procreate.The Supreme Court has repeatedly stated that the right toprivacy entails the right of the individual "to be free

. from unwarranted government intrusion into matters sofundamentally affecting· a person as the decision whetherto bear or beget a child." (See Skinner v. Oklahoma, 316u.S. 535.541 (1942); Eisenstadt v. Baird, 405 U.S. 438,453 (1972); Cleveland v. La Fleur, 42 USLW 4186 (U.S.January 21, 1974); Roe v. Wade, 410 u.s. 113 (1973);Griswold v. Connecticut, 381 U.S. 479 (1965).)

Minnesota

The existence and/or extent of such abuse in Minnesotais difficult to ascertain. An·extensive survey of hospitalsand clinics in the state being prepared by the MCLU hasrevealed no reported abuse. However, the writer has receivedinformation from two sources indicating cases of coercioninto sterilization at the time of childbirth or legal abor­tion of several welfare mothers. These sources spokefavorably of DPW programs and personnel on the state level.But many indicated that while abuse is least likely to

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occur in the Twin Cities, they had less confidence incounty programs and questioned the possible situationin rural Minnesota. Clearly, an in-depth study of thesituation in this state is necessary.

Issue

The issue is similar to the one raised in the discussionof sterilization of minors. As stated in a letter to Wein­berger from the four women members of the Black Caucus(Barbara Jordan, D-Texas, Yvonne Burke, D-California,Shirley Chisholm, D-New York, and Cardiss Collins, D-Illinois),"the heart of the issue is how do we make family planninginformation and services available to all those who wantand need them and at the same time insure that no elementof coercion creeps into programs which Congress hasspecifically mandated must be voluntary in nature. "12

STERILIZATION OF THE ~mNTALLY INCOMPETENT

In the 1920's and early 1930's, it was thought thatmental retardation and mental illness were hereditaryand, therefore, on eugenic grounds, society would beimproved if it prevented the reproduction of lIinferiorindividuals" or those whom it considered likely tobecome wards of the state. Many states passed voluntaryor involuntary eugenic sterilization laws. Despitechallenges, the u.S. Supreme Court upheld the constitu­tionality of such laws when it ruled in Buck v. Bell,274 u.S. 200 (1926) that a Virginia sterilizatlon lawafforded adequate due 'process and equal protection.Justice Holmes, affirming the right of the state tosterilize thos~whom it believed to be a drain on society'sresources, uttered the now famous dictum "Three genera­tions of imbeciles are enough."

In the past years, however, there have been severaldevelopments which should call into question this regula­tion of sterilization of the mentally retarded.

a) The hereditary nature of mental retardation isvery unclear. Geneticists have found fromempirical studies that hereditary factors inmental retardation are so intertwined with otherfactors such as birth defects, improper prenatalcare and environmental factors as to make thedetermination of the precise cause of mentalretardation virtually impossible.

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b) Sterilization of the mentally retarded hasbeen justified on the grounds that such personsare incapable of understanding or coping withtheir sexuality and are likely to be incapableof being good parents. This assumption hasbeen challenged on various levels. A represen­tative of the Minnesota Association forRetarded citizens (Minn. A.R.C.) stated thatmany more mentally retarded can be taught todeal with their sexuality than was once thought.Therefore, an irreversible sterilization opera­tion performed early in such a person's lifewould prematurely deny the possibility of suchdevelopment. Studies have shown that womenwith IQs as low as 20 can learn to cope withtheir menstrual periods when they receiveproper training. 13

c) Moreover, many retarded persons have a greaterunderstanding of their sexuality than was onceassumed. A study done in 1962 of 110 mentallyretarded patients released from a Californiastate hospital for the mentally retarded betweenJune, 1949, and June, 1958, 42 of whom had beensterilized there, produced some rather startlinginformation. Many were perfectly capable ofexpressing their reactions to sterilization,often in very poignant terms. Moreover, two­thirds of these did not approve of the operation.~vomen, particularly the married, were mostlikely to object to sterilization, whereas men,particularly the married, were least likely.Rejection seemed to be based most often on thefeeling that it prevented the person from beingable to pass as normal once he or she had beenreleased from the institution and desired tobe rehabilitated and returned to the community.Another objection was that the operation preventedparents from fulfilling their strong desire forparenthood.

The mentally retarded, like minors, constitute a classof persons especially susceptible to coercion. Steriliza­tion of the mentally retarded was often justified as beingin the best interests of the retarded person who, it wasassumed, either did not understand or was a willing subject.However, such sterilization often arose out of the parents'concern for the social management aspects of the issue ­fears of abuse of their children, illegitimacy, or thecompetency of their children for parenthood.

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It has been generally held by the courts that mentallyincompetent persons are incapable of giving consent tosterilization operations. However, parents of mentallyretarded minors or the appointed guardians of mentallyretarded persons have generally been able to consent forsuch person. (See Holmes v. Powers, 439 SW 2d 579, Ky.,1969). Similar substitute consent has not been acceptedfor mentally retarded adults.

In Relf v. Weinberger, the court indicated thatvoluntary consent fl assumes an exercise of free viiI1 II ,

"clearly precludes the existence of coercion or force ll,

and "entails a requirement that the individual have athis disposal the infonnation necessary to make hisdecision and the mental competence to appreciate thesignificance of that information". Judge Gesell wenton to say that II no person who is mentally incompetentcan meet these standards, nor can the consent of arepresentative however sufficient under state law, irr~ute

voluntariness to the individual actually undergoingirreversible sterilization. II To comply with this decision,therefore, the new DHEW regulations provide that no non­emergency sterilization may be performed on individualswho are themselves unable to give legally effectiveinformed consent - minors, whom we have already discussed,and the mentally incompetent.

In the Relf decision, Judge Gesell did not rule onthe constitutional issues. Questions as to the consti­tutionality of these laws continue to be raised, however.At present, a suit being brought in Nichigan challengesthat state's sterilization statute on the grounds that itconflicts with the Fourteenth Amendment to the U.S. Consti­tution, and with the First, Fourth, Fifth, Eighth andNinth Amendments, as made applicable to the state by theFourteenth Amendment. (Densmore v. Yudashkin et al.)Similar suits have been filed in North Carolina (Trent v.Wright, et al. and Cox v. Stanton, et al.) and SouthCarolina (Roe v. Pierce, et al.)

However, among the guidelines included in a recentAlabama decision annulling a state law which had providedfor involuntary sterilization of mentally retarded residentsof the state's major mental retardation facility, was astipulation that no inmate could be sterilized withouthis informed written consent. The court held that if aII court of competent jurisdiction" determines that theinmate is legally incompetent to give consent, or if thedirector cannot certify "without reservation ll that theinmate understands the nature and consequences of theoperation, the sterilization may not be performed unlessthe director, a review committee and a court, all agree

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that it is in the inmate's best interest. Moreover, thereview co~nittee may not approve the proposed steriliza­tion unless it can affirmatively determine that theinmate "has formed, without coercion, a genuine desireto be sterilized."

The ACLU argues that the consent of residents ofmental institutions is per se involuntary and, therefore,cannot be used to enable sterilization operations.Although the ACLU recognizes that this approach deniescertain possibilities to institutionalized persons, theoverriding considerations of abuse of persons in compul­sory institutions lead to the conclusion that such personsmust be deemed incapable of giving voluntary consent tosterilization operations.

Contradictory conclusions could be drawn from twodecisions involving mentally retarded adults on welfare.A Texas court of Civil Appeals held that the court had noauthority to order a sterilization operation on a 34 yearold mentally incompetent woman who was unable to supportherself or her children. (Frazier v. Levi, 440 SW 2d393. ) An Oregon court, hOvlever, found that a n statuteallowing for involuntary sterilization of individualswhose children will become neglected or dependent as aresult of their parents' inability by reason of mentalillness or mental retardation to provide adequate carewas not concerned with the parents' financial status butwith the proper environment for the child and did notdeny equal protection to indigents. I! In this case, thecourt held that lithe state's concern for the welfare ofits citizenry extends .to future generations and when thereis overwhelming evidence that a potential patient will be

. unable to provide a proper environment for a child becauseof his own mental illness or mental retardation, the statehas sufficient interest to order sterilization." (Cook v.State, Or. App., 595P 2d 768.)

Again, the decision of Judge Gesell, which gave riseto the current DHEW regulations, mandated a total ban onsterilization of mental incompetents. In the face ofreported abuse, this was seen to be the best solution.Many groups and concerned individuals feel, however, thatsterilization of the mentally retarded may in some cases bethe best solution. They advocate, instead, the adoptionof adequate procedural safeguards to allow for the evalua­tion of sterilization decisions on a case-by-case basiswhich will insure that consent remains voluntary in eachcase. Moreover, as long as proper training is not avail­able to all who could benefit from it, some feel thatmajor surgery may be preferable to prolonged institutional­ization or undesirable social experiences {untenable

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family situation, staying out of school, etc.).

Hinnesota

Minnesota Statutes presently contain provisions forthe sterilization of feebleminded who have been committedto the guardianship of the commissioner of public welfareand of insane persons cOIronitted to the custody of thesuperintendent of a state hospital. Although the lawno longer contains definitions of either "feebleminded"or "insane persons ll

, the terms are assumed to refer tothe mentally retarded and the mentally ill, respectively.The Minnesota law is considered to be voluntary since itrequires consent of spouse or nearest kin for the mentallyretarded and consent of the person and spouse or nearestof kin for the mentally ill. The DPW Manual also requiresthe written consent of the mentally deficient ward whichshall be obtained by the staff of the state institutionin which the ward resides.

256.07. STERILIZATION OF FEEBLEMINDED PERSONS;CONSENT TO OPERATION. ~vhen any person has lawfullybeen committed as feebleminded to the guardianshipof the commissioner of public welfare and thecommissioner of public welfare, after consultationwith the superintendent of the state school forfeebleminded, a reputable physician, and apsychologist selected by the commissioner of publicwelfare, and after a careful investigation of allthe circumstances of the case, may, with thewritten consent of the spouse or nearest kin ofsuch feebleminded person, cause such person to besterilized by the operation of vasectomy ortubectomy. If no spouse or near relative can befound, the con~issioner of public welfare, as thelegal guardian of such feebleminded person, maygive his consent.

256.08. INSANE PERSONS IN STATE HOSPITALS;CONSENT TO OPERATION. When any person has beencommitted as insane to the custody of the super­intendent of a state hospital for the insane andhas been an inmate of such hospital for a leastsix consecutive months, the commissioner of publicwelfare, after consultation with the superintendentof the hospital wherein such person is an inmate,a reputable physician and psychologist selectedby the commissioner of pUblic welfare, and aftera careful investigation of all the circumstancesof the case, may, with the written consent ofthe patient and of the spouse or nearest kin,or the duly appointed guardian of such insaneperson, cause such insane person to be sterilizedby a competent surgeon by the operation of

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vasectomy or tubectomy.

256.09. NO CIVIL OR CRIMINAL LIABILITY.Sterilization, as outlined in sections 256.07 and256.08, shall be lawful and shall not render thecommissioner of public welfare, or his employees,or other persons participating in the examinationor operation, liable either civilly or criminally.

256.10. lillCORDS KEPT. A complete record ofthe case shall be made and kept as a permanentfile in the office of the commissioner of publicwelfare.

Sterilization of Mentally Defective Wards in Minnesota14

1964 ... 1973

Authorized in Conformance with M.S. 256.07

1964 01965 01966 01967 01968 01969 1 (institutionalized ward)1970 01971 3 (wards in the community)1972 5 (wards in the community)1973 10 (wards in -the community)

In Minnesota, rapid developments in programming formentally retarded persons, including special residentialliving and sheltered workshops have meant that more mildlyretarded persons are living and working out in the community.Only the more severely retarded are still in state institu­tions where they are segregated by sex and always underclose supervision. The Social Service Manual of theDepartment of Public Welfare refers to a few types ofmental retardation which appear to be hereditary. Wherea hereditary condition is suspected, a request forsterilization should be accompanied by a genetic reportfrom the Human Genetics Unit of the Ninnesota Departmentof Health.

The manual specifically rejects sterilization onsocial management grounds. Private doctors and hospitals,however, with no statutory guidelines on this subject,can and do perform sterilization operations on thesegrounds. One hospital in the Twin Cities area hasperformed only one or two sterilizations of mentally

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retarded persons in the past few years. In lieu of anyclearly defined written consent procedure, it appearsthat letters from psychiatrists or other persons withspecific knowledge of the patient and a court order orparent's consent would be sufficient consent for suchprocedures. However, it has also been reported thatvaginal hysterectomies have been performed on two orthree mentally retarded girls in early adolescence torelieve them and their parents of ever,having to dealwith the girls' sexuality.

Issues

The issues raised in such an approach are complex.Some of the questions which would have to be answered are:

1) Assuming that there has not been a prior courtadjudication of' incompetency, what should be thestandard by which competency is measured?

2) How can informed and voluntary consent be assured?

3) What standards should be established to determinethe "best interests" of the incompetent individual?

The guidelines issued in Wyatt v. Aderholt could perhapsserve as an example of procedural safeguards which couldprovide an alternative to the total ban solution proposedby the DREW Regulations. Although these guidelines applyspecifically to inmates of the Parlon State School andHospital, the safeguards they specify could cover othersituations in which sterilization is to be performed.

The guidelines are as follows:

1) No inmate may be sterilized unless it has beendetermined that no temporary measure for birthcontrol or contraception will adequately meetthe needs of the inmate.

2) No inmate under 21 may be sterilized unless itis a medical necessity.

3) No sterilization may be performed on any inmatewithout the prior approval of a review committeeIlcompetent to deal with the medical, legal,social and ethical issues involved".

4) No inmate may be sterilized without his informedwritten consent. Such consent must be informed,that is " a ) based on an understanding of the

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nature and consequences of sterilization, b)given by a person competent to make such adecision, and c) wholly voluntary and free fromany coercion, express or implied".

5) If the inmate is legally incompetent or if thedirector cannot certify without reservationthat the inmate understands the nature andconsequences of the operation, sterilizationshall not be performed unless a) the directorshows that such sterilization is in the bestinterests of the inmate; b) the Review Committeeapproves such sterilization; and c) it is deter­mined by a court of competent jurisdiction thatsuch sterilization is in the best interest of.the inmate. (The preamble statement to the DREWRegulations notes that "without an express grantof authority some state courts may hold thatthey have no jurisdiction to approve the steriliza­tion of persons legally incapable of consentingfor themselves ll

• Planned Parenthood proposes theprovision of an alternative legal process to obtainthe necessary judicial review in these instances.)

6) In all procedures before the review committee,the inmate must be represented by legal counselwho shall lIinsure that all considerationsmilitating against the proposed sterilizationhave been adequately explored and resolved ll

7) The review con~ittee must report monthly on thenumber of sterilizations approved and disapprovedand the reasons why.

8) Consent to sterilization may not be made acondition for receiving any form of publicassistance or health or social services or foradmission or release from the state school.

In addition, the procedural safeguards which theSupreme Court held constitutional in Buck v. Bell, 274u.S. 200, 207 (1927) could be considered. They requirenotice, attendance at the hearing if the patient desires,presentation of the evidence in writing to the patientand the possibility of appeal to the Circuit Court andthen to the Supreme Court of Appeals.

It has also been suggested that some sort of penaltybe stated for those who would violate a sterilizationstatute.

Another issue raised involves the lIconscience clause",that is, the ability of hospitals and doctors to refuse

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to perform sterilization operations if they object onreligious or moral grounds. Idaho, Pennsylvania andMaryland passed laws in 1973 giving hospitals and medicalpersonnel the right to refuse to perform sterilizationoperations. A 1973 Massachusetts law gives privatehospitals the right to refuse. However, the outright banon the performance of sterilization operations by a cityhospital in Massachusetts was declared unconstitutionalby aU. S. Court of Appeals. (llathavlay v. 1iJorchester CityHospital, 475 F. 2nd 701 (1st Cir. 1973).) On the other-­hand, Congress enacted a federal "conscience clause" in1972, which prohibits any judge ~rom finding that receiptof Hill-Burton funds (federal tax money) puts any hospitalin the position of having to perform sterilization contraryto the religious belief of its sponsors. In line with thislegislation, a U. S. District Court in Montana dissolveda temporary injunction which had required a Catholic hospitalthere to allow limited sterilization operations.

GENETIC COUNSELING

A word should be added about the possible implicationsof increased genetic counseling. More and more programs ofthis sort are being fonned to detect hereditary birth defectssuch as mental retardation and sickle cell anemia. Some havealready expressed fears about the obvious implications forthe use of sterilization operations. At a-recent geneticscourse for medical professionals in Minneapolis, PhilipReilly, Professor of Law at the University of Houston,cautioned that the rights of individuals remain paramount,despite the public welfare derived from gene~ic screening.

CONCLUSION

In any case, it appears hazardous, in lieu of statutoryguidelines, to rely on the sound judgment and good faith ofvarious individuals in determining the performance ofsterilization operations - whether it be the medical directorof DPW, individual doctors, or individual hospitals. In lightof current confusion and abuse, the state should clarify theprinciples and standards which are to control in given cases.Judge Gesell's conclusion in the Relf case can be pointedlyapplied to the state level:

Surely the Federal Government must move cautiouslyin this area, under well-defined policies determinedby Congress after full consideration of constitutionaland far-reaching social implications. The dividingline between family planning and eugenics is rnurky.• • • Whatever might be the merits of limiting

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irresponsible reproduction . • • it is for Congressand not individual social workers and physiciansto determine the manner in which federal fundsshould be used to support such a program. Weshould not drift into a pOlicy which has unfathomedimplications and which permanently deprives unwillingor immature citizens of their ability to procreatewithout adequate legal safeguards and a legislativedetermination of the appropriate standards in thelight of the general welfare and individual rights. lS

Almost all of Minnesota's citize~s are potentiallyaffected by the regulation of sterilization - adultsseeking sterilization voluntarily as a form of contracep­tion, institutionalized and non-institutionalized mentallyretarded and mentally il~ minors, racial minorities, andpersons receiving public assistance. The rights of allthese persons to freely chose sterilization and to be freefrom abuse must be protected. What is urgently needed isclarification of legislative intent, a determination ofstate policy, and the implementation of adequate proceduralsafeguards.

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FOOTNOTES

ll\.MA Journal, May 27, 1968.

2st . Paul Dispatch, October 10, 1973, p. 34.

3Heal t h Research Group Study of Surgical Sterilization.

4Federal Register, Vol. 39, No. 76, April 18, 1974, pp. 13872-13873 and 13887-13888.

5 Re l f v. Weinberger, p. 7.

6ACLU .fI1emorandum, p. 5.

7Slater, p. 152.

8Relf v. Weinberger, p. 3.

9Slater, 152.

lOSlater, p. 152.

llLe'''1it, p. 182.

l2Family Planning/Population Reporter, August 1973, p. 78.

l3Reported by Eunice Davis, M.D.

l4provided by Frances Ames, Supervisor Family and Guardian­ship Services, Bureau of Residential Services, Departmentof Public Welfare

l5 Relf v. Winberger, pp. 11-12.

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SOURCES

In preparing this report, the researcher has contactedmany individuals and organizations and has read a great numberof cases and articles from various periodicals, journals,newspapers, and law reviews, many of which are on file in theHouse l"Zesearch Department. '1'lle follovling, list of individuals,organizations, and some of the most pertinent articles canbe referred to for further information.

GENERAL

Rosenfeld, Bernard; Wolfe, Sidney; and McGarrah, Jr., Robert;Health Research Group Study on Surgical Sterilization:Present Abuses and Proposed Regulations, Washington, D. C.(Oct. 1973).

Paul, Julius, "The Return of Punitive SterilizationProposals: Current Attacks on Illegitimacy and the AFDCProgram", La\v and Society Revie\v, (August, 1968).

Bumpass and Presser, IIcontraceptive Sterilization inthe U. S.: 1965 and 1970", Demography, (November, 1972).

Family Planning/population Reporter: A Review of StateLaws and Policies.

Lewit, Sarah, "Sterilization Association with InducedAbortion: JPSA Findings, a Family Planning Perspectives,Vol. 5, No.3, p. 182.

Slater, Jack, "Sterilization: Newest Threat to the Poor,"Ebony, October, 1973.

Elissa Krauss, Administrative Assistant (212-725-1222)Women's Rights ProjectAmerican civil Liberties Union22 East 40th StreetNew York, New York 10016

Emily Fuerste (646-9603)Population Resource CenterPlanned Parenthood of Minnesota1562 University AvenueSt. Paul, Minnesota 55104

Health Research Group (202-872-0320)2000 P Street N.W.Washington, D. C. 20036

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"

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Minnesota Civil Liberties Union (332-2032)628 Central AvenueMinneapolis, Minnesota 55414

Jim GlazerMinnesota Recipients Alliance

Doug Ewald (331-5571)Minnesota Hospital Association2333 University Avenue S.E.Minneapolis, Minnesota

James Wall, H. D. (645-8631)Midway Hospital1700 University Avenuest. Paul, Minnesota

VOLUN'I'ARY S'l'ERILIZATION

Forbes, "Voluntary Sterilization", 18 De Paul Law Review560, (1969).

Pitts, "Sexual Sterilization: A New Rationale?'l, 26Arkansas Law Review 353, (1972).

"APBA Recommended Program Guide for Voluntary Sterilization",American Journal of Public Health, (September, 1972).

HEW' REGULATIONS

Federal Register, Vol. 39, No. 76, April 18, 1974, pp. 13872­°13873 and 13887-13888.

Planned Parenthood - World Population, Memorandum Re:Department of Health Education and Welfare ProposedRegulations on Sterilization, (September 27, 1973).

American Civil Liberties Union, Memorandum Re: Departmentof Health Education and Welfare Regulations, (October 23,1973).

Coburn, "Sterilization l~egulations: Debate Not Quelledby Health Education and Welfare Document", Science, Vol. 183,(March, 1974).

STERILIZATION OF THE MENTALLY T-illTARDED

Ferster, "Eliminating the Unfit - Is Sterilization theAnswer?", 27 Ohio state LaVl Journal 581, (1966).

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Sabagh and Ed gerton, "sterilized Mental Defectives Lookat Eugenic st erilization", 9 EU.9-enics Quarterly 215,(1962) •

Department of Health Education and ~velfare, "MentalRetardation and the Lavl: A Report on Status of CurrentCourt Cases", (October, 1973).

Proposed Official Policy Statement of the AmericanAssociation on Mental Deficiency: Sterilization ofPersons Who Are Hentally Retarded, (April, 1974).

Minnesota Department of Public Welfare, Social ServiceManual, 'II-8442, (July 5, 1967).

Evelyn Van Allen, Supervisor (296-5285)Family Planning unitPersonal Health Services DivisionMinnesota Department of Health

Frances Ames, Director (296-2147)Family and Guardianship ServicesMinnesota Department of Public Welfare

Eunice Davis, M.D., DirectorChild Development SectionDepartment of PediatricsSt. Paul - Ramsey HospitalSt. Paul, Minnesota

Russell Goodman, Social Service Coordinator (296~6740)

Social Services DivisionMinnesota Department of Public Welfare

Jim Tackes (827-5641)Minnesota Association for Retarded Citizens

Neil Mickenberg (338-0968)Legal Advocacy for the Developmentally Disabled

of Minnesota501 Park AvenueMinneapolis, Minnesota 55415

Stephen B. MillerLegal Aid Society of Calhoun County205 Capital Building37 Capital Avenue N.E.Battle Creek, Michigan 49014