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S TO RY T E L L I N G
L E V E R AG I N G P H I L A N T H RO P Y A N D C O M M U N I T Y TO
C R E AT E S O C I A L C H A N G E
M A RY M AC R A E , S H A R K I S L A N D I N S T I T U T E
• WHO WE ARE
• UNREST CASE STUDY (STORY OF ME, US, NOW)
• AUSTRALIAN CASE STUDY
• STORY AND PHILANTHROPY
• STORY TELLING FOR PHILANTHROPY
SHARK ISLAND INSTITUTE – STORY OF ME
SHARK ISLAND INSTITUTE
• INDEPENDENT DOCUMENTARY FILM COMPANY – NOT PHILANTHROPISTS!
• USING DOCUMENTARY FILM TO LEVERAGE CHANGE IN AUSTRALIAN COMMUNITIES
• A COALITION MODEL TO BUILD COMMUNITIES AROUND AN ISSUE
• INTERNATIONAL FILMS – PORTFOLIO – ONE OF UNREST EXECUTIVE PRODUCERS
• FILM EXAMPLES – THE OASIS (HOMELESSNESS), THAT SUGAR FILM (HIDDEN SUGARS), CONSTANCE ON THE EDGE (REFUGEE TRAUMA AND COMMUNITY INCLUSION), BLUE (OCEAN PLASTICS), THE HUNTING GROUND (SEXUAL VIOLENCE ON CAMPUS).
STORY OF US
• researchers
• health practitioners
• students
• carers
• people living with ME/CFS
• film maker
• administrators
• funders
• sponsors and supporters
STORY OF USUNREST - A CONVERSATION CHANGER
STORY: GETTING THE FILM MADE AND TO AN AUDIENCE
CAMPAIGN
LAUNCH
22 SEPT.
2017
LIMITED
CINEMA
RELEASE
US, UK
Sept - Oct
ONLINE
RELEASE
iTUNES
(OCT-NOV)
COMMUNITY AND TARGETED SCREENINGS
PBS BROADCAST
January 8
2018
FESTIVAL
RELEASE
JAN-OCT
2017
UNREST at FESTIVAL SCREENINGS
AROUND THE WORLD THROUGHOUT
2017/18
CO-FOUND
MEACTION
2015
SUNDANCE
JANUARY 2017
MELBOURNE
AUGUST
2017
KICKSTARTER
CAMPAIGN
2013
MAPPING THE
NETWORK
2016-17
RAISING
FUNDS
2013 - 2016#TIMEFOR
UNREST
GLOBAL GRASSROOTS ADVOCACY NETWORK:GROW AND MOBILISE A COMMUNITY OF PATIENTS AND ALLIES TO BE STRONG AND EFFECTIVE ADVOCATES FOR PEOPLE WITH ME AND RELATED CONDITIONS.
BUILDING A CAMPAIGN – IMPACT GOALS
• Gain mass and strategic recognition of ME as a debilitating illness suffered by millions by reaching wide audiences and bringing them into the conversation.
• Leverage public screenings, in physical and virtual events, to mobilise a community of ME patients and allies to action and generate significant media coverage to challenge existing conceptions of the disease.
• Leverage targeted screenings to promote knowledgeable and empathetic care for ME within the medical profession.
• Inspire new scientists and funders to join the field and concentrate new work around ME/CFS.
• https://www.unrest.film/tools/
ATTRIBUTABLE IMPACT
Time For Unrest
2017 Impact Campaign Highlights
Download the impact deck from the film website for
2017:
https://www.unrest.film/unrest-2017-impact-campaign/
STORY OF NOWAUSTRALIAN ACTION
advocate support
community screenings
international liaison with actions and impact
campaign
STORY OF NOWBUILDING A COALITION OF SUPPORT -
RESEARCH
• Australia Government MECFS research funding totals $1.6m over the last 16 years, or 53 cents per patient
per year
• Targeted call for Research (TCR) submitted - $3m-$5m over 3-5 years
• NHMRC has agreed to look at research and clinical guidance needs for ME/CFS. In order to do this, an
expert advisory committee was established in October 2017.
• We need allies and influencers to encourage the Minister for Health to commit to providing
appropriate research funding alongside philanthropic partnerships in place
STORY OF NOWBUILDING A COALITION OF SUPPORT -
MEDICAL
• Patients and carers are often misunderstood and/or ignored by the mainstream health system. GP
bewilderment and patient anxiety about diagnosis and treatment are common.
• Very few specialist ME/CFS physicians exist and there are very few public day care clinics.
• GP’s and patients usually face very long waiting lists for specialist care.
• ME/CFS patients are not eligible for the National Disability Insurance Scheme (NDIS)
• We need allies and Influencers to encourage the NHMRC to commit to providing appropriate guidelines to GPs
“The Committee is in the process of synthesising the views of members prior to drafting a
report to NHMRC’s Chief Executive Officer (CEO) on the research and clinical guidance
needs of ME/CFS in Australia. The draft report to CEO will be released for public
consultation later this year to provide an opportunity for the general public as well as the
ME/CFS sector to contribute to the proposed recommendations in the report and ensure
that the views of researchers and those with ME/CFS and their clinicians/carers have
been captured and considered. ”
NHMRC ME/CFS Advisory Committee website
STORY OF NOW DECISION MAKERS
STORY OF ME, US, NOWKETRA WOODING
• https://ketrawooding.com
• https://www.youtube.com/watch?v=yKoheNZlqXg
image courier mail
STORY AND PHILANTHROPY
STORY OF NOW PHILANTHROPY
• KNOW YOUR PURPOSE – are you seeking funds, network or influence
STORY OF NOW PHILANTHROPY
• KNOW YOUR PURPOSE – are you seeking funds, network or influence
• KNOW YOUR TARGET – ask for a meeting – start a personal relationship
STORY OF NOW PHILANTHROPY
• KNOW YOUR PURPOSE – are you seeking funds, network or influence
• KNOW YOUR TARGET – ask for a meeting – start a personal relationship
• CREATE YOUR PITCH FOR YOUR AUDIENCE – what emotion do you want to elicit
STORY OF NOW PHILANTHROPY
• KNOW YOUR PURPOSE – are you seeking funds, network or influence
• KNOW YOUR TARGET – ask for a meeting – start a personal relationship
• CREATE YOUR PITCH FOR YOUR AUDIENCE – what emotion do you want to elicit
• REVIEW – DISTILL DON’T DUMB DOWN – Elevator Pitch
STORY OF NOW PHILANTHROPY
• KNOW YOUR PURPOSE – are you seeking funds, network or influence
• KNOW YOUR TARGET – ask for a meeting – start a personal relationship
• CREATE YOUR PITCH FOR YOUR AUDIENCE – what emotion do you want to elicit
• REVIEW – DISTILL DON’T DUMB DOWN – Elevator Pitch
• TIMING – don’t cut and paste to a deadline – get a timeline for response and follow up
STORY OF NOW PHILANTHROPY
• KNOW YOUR PURPOSE – are you seeking funds, network or influence
• KNOW YOUR TARGET – ask for a meeting – start a personal relationship
• CREATE YOUR PITCH FOR YOUR AUDIENCE – what emotion do you want to elicit
• REVIEW – DISTILL DON’T DUMB DOWN – Elevator Pitch
• TIMING – don’t cut and paste to a deadline – get a timeline for response and follow up
• RELATIONSHIP – engage and APPLY AGAIN
SUPPORTSUPPORTSUPPORT
BUILD COMMUNITY AND COLLABORATION
READ AND WATCH MORE AT:
WWW.UNREST.F I LM
WWW.MEACTION.NET
KETRAWOODING.COM
EMERGE .ORG.AU