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Summer 2009 Volume 5, Issue 2 Cover artwork created by Luis Huete

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Page 1: Summer 2009 Volume 5, Issue 2 - Regional Center of ......Summer 2009 Autism News of Orange County – RW 3 The Many Sides of Assessment in Autism Spectrum Disorders With the increased

Summer 2009 Volume 5, Issue 2

Cover artwork created by Luis Huete

Page 2: Summer 2009 Volume 5, Issue 2 - Regional Center of ......Summer 2009 Autism News of Orange County – RW 3 The Many Sides of Assessment in Autism Spectrum Disorders With the increased

2 Autism News of Orange County – RW Summer 2009

C O V E R F E AT U R E

Editorial TeamVera Bernard-Opitz, Ph.D., EditorGinny Mumm, Associate Editor

Editorial BoardTeri M. Book, RN, MSN, CPNPJoe Donnelly, M.D.Christina McReynolds, Ed.S., M.S., BCBAJanis B. White, Ed.D.

Advisory BoardLOCALMarjorie H. Charlop-Christy, Ph.D.

Clarement McKenna College andThe Clarement Autism Center

Pauline A. Filipek, M.D.University of California, IrvineFor OC Kids

BJ Freeman, Ph.D.Autism Consultant

Wendy Goldberg, Ph.D.University of California, Irvine

Belinda Karge, Ph.D.Cal State University, Fullerton

Connie Kasari, Ph.D.University of California, Los Angeles

Jennifer McIlwee MyersOrange County, California

Marian Sigman, Ph.D.University of California, Los Angeles

Becky TouchetteSaddleback Valley Unified School District

NATIONAL/INTERNATIONALBarbara Bloomfield, M.A., CCC-SLP

Icon Talk, Goshen, New YorkV. Mark Durand, Ph.D.

University of South Florida, St. PetersburgPatricia Howlin, Ph.D.

St. Georges’s Hospital London, EnglandDavid Leach, Ph.D.

Murdoch University, AustraliaGary Mesibov, Ph.D.

University of North Carolina,Chapel Hill Division TEACCH

Salwanizah Bte Moh.SaidEarly Intervention, Autism Association, Singapore

Fritz Poustka, M.D.University of Frankfurt, Germany

Emily Rubin, M.S., CCC-SLPCommunication Crossroads, Carmel, California

Diane Twachtman-Cullen, Ph.D., CCC-SLPADDCON Center, Higganum, Connecticut

Pamela Wolfberg, Ph.D.San Francisco State University

We are pleased to feature one of our local artists, Luis Huete.Read more about Luis on page 11.

Mission StatementAutism News of Orange County & the Rest of the World

is a collaborative publication for parents and professionalsdedicated to sharing research-based strategies, innovativeeducational approaches, best practices and experiences inthe area of autism.

Submission PolicyThe Autism News of Orange County–RW is available free

of charge. The opinions expressed in the newsletter do notnecessarily represent the official view of the agencies involved.

Contributions from teachers, therapists, researchers andrelatives/children of/with autism are welcome. The editorsselect articles and make necessary changes.

Please submit articles in Microsoft Word using font size12, double spaced, and no more than four pages in length(2600 words). Photos are encouraged and when submittedwith articles the permission to include is assumed.

Please E-mail all correspondence to: Dr. Vera Bernard-Opitz

[email protected] visit our website: www.autismnewsoc.org

C O N T E N T S

EditorialThe Many Sides of Assessment in ASD .............. 3

ResearchScreening for Autism in Toddlers ........................ 5

Education/Therapy Informal Dynamic Assessments ......................... 12Speech-Language Assessment: Collaborative Approach ..................................... 17Assessing Symbol Levels .................................... 20TEACCH Transition Assessment Profile .............23S.U.C.S.E.S.S. Project ....................................... 29

Parent/FamilyThristan ‘Tum Tum’ Mendoza .......................... 31Let’s do this together ......................................... 32Life with Zane ................................................... 33

News/HighlightsCover Artist: Luis Huete ................................... 11Recreation Resource Guide..................................35Sponsorship ................................................. 34, 35Calendar of Events ............................................ 37

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Summer 2009 Autism News of Orange County – RW 3

The Many Sides of Assessment in Autism Spectrum Disorders

With the increased attention to AutismSpectrum Disorders (ASD), assessment has becomeone of the recent “hot topics.” Over the last years thepicture of autism has changed and with it the needto adjust existing assessment tools and to developnew assessment methods. Instead of focusing main-ly on non-verbal children and adolescents withsevere cognitive impairments, efforts of researchersand practitioners currently center on infants andyoung children on one side and individuals withhigh IQ and language skills on the other side. Forthis expanded spectrum of individuals traditionalassessment methods are usually not sensitive enough.They fail to detect autistic tendencies in childrenand older individuals, who formerly might havebeen called “shy,” “precocious,” “unusual” or“quirky” and might have received another diagnosticlabel or no diagnosis at all. The above trend has ledto a refinement of assessment tools as well as to thetendency to look for more naturalistic methods.Critical voices have pointed out that the diagnosticnet might sometimes be cast too wide, leading tounjustified concern in parents of typical infants andyoung children and stigmatization/labeling individ-uals who just represent the wonderful variability of personalities we call the“human race.”

The main functions ofassessments are to find anappropriate diagnosis, to nor-malize behavior, optimize learn-ing, plan individual programsand – last but not least – to pro-vide access to services. One question is “What isexpected for a particular individual at that age, in aspecific situation and a specific cultural context?” Thisis important for the diagnosis of very young children,but also for older individuals, who never before mighteven have been considered for a diagnosis. While for-mer testing centered on developmental norms, general

deficits and challenging behavior, in recent years devel-opmental profiles, strengths of the individual and envi-ronmental support options have become the focus ofassessment as well as the basis for intervention.

In this issue we highlight some of the new researchfindings on diagnosing children below the age of threeyears as well as contributions for young children andolder individuals with different skill levels.

• Carrie Allison and Simon Baron-Cohen,Professor, both of Cambridge University, describethe challenges and benefits of screening forautism in children as young as 18 months. Theencouraging results of their Q-Chat testing raisesthe question of whether this instrument can pro-vide valid findings for wide-scale populationstudies and whether the specific score at a youngage can predict outcome at a later age.

• Michelle Garcia Winner and Pamela J.Crooke attempt to assess the social mind inindividuals with autism, looking at dynamicassessment options. They stress the importanceof social perspective taking skills, not only onschool-, but life-success, thereby going beyondautism and raising an important aspect for edu-cation in general.

• Rachael Gray summarizes some relevant norm-referenced speech-language assessments and com-

bines these with structured inter-view scales with parents, andobservations in natural settings.Her article reminds us that a com-prehensive assessment is only pos-sible when different members ofthe child’s team collaborate.• Barbara Bloomfield has been a

frequent highlight of workshops organized by theS.U.C.S.E.S.S. program. She outlines core visualsupports and predictors for the success of varioussupport systems.

• S. Michael Chapman, Director of SupportedEmployment at the Division TEACCH, sharesthe TEACCH Transition Assessment Profile

E D I T O R I A L

EditorialBy Vera Bernard-Opitz

Main functions of assessments:• Diagnosis• Normalize behavior• Optimize learning• Plan individual programs • Provide access to services

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4 Autism News of Orange County – RW Summer 2009

(TTAP), which is a successful assessment tool forolder children, adolescents and adults with ASD.This assessment, which reaches across multipleenvironments, together with the array of visualsupports, demonstrate the functionality of anassessment instrument, which is directly relatedto effective transition programs and positivelong-term outcomes.

• Andrea Walker, S.U.C.S.E.S.S. ProjectCoordinator, from the Orange CountyDepartment of Education, introduces theAssessment Focus Academy, a five-year-effort

within Orange County which has successfullyprovided training and support for preschool tosecondary school staff involved in educationalassessment for students with ASD.

• Our parent section has many highlights, such asthe moving account by Zane’s mother on the dif-ferent stages of accepting his diagnosis and find-ing support from caring and loving teachers.

• Also from Singapore is a photo we will rememberfor a long time: a child with autism helpinganother child face a challenging new situation.“Let’s do it together” – thanks to Salwanizah,Head of the Early Intervention program, of theAutistic Association Singapore for this contribu-tion and all the support for children like “Jack”and “Jill”! Again the message “Let’s do it togeth-er” is one we can apply beyond this context!

• Last but not least: Our cordial congratulations goto Luis Huete and his teacher Lauren Myers. Ourcover artist won the prize in a competition kindlyorganized by Christina McReynolds, to help theAutism News survive the current financial crisis byillustrating the theme “Step up to the Plate.”

After six years of ANOC-RW, this is the firstissue which is only available on our website. Thebudget crisis has significantly impacted our spon-sors, and we need the support of the communityto continue. In a recent survey of more than 100readers we received very enthusiastic feedback.We are very honored. We also very much appreci-ate the support of parents and colleagues whohave “Stepped up to the Plate” and hope thatmany other readers will join them.

Please spread the news that ANOC needs helpand pass on our brochure. We hope that with thesupport of the community we can continue an“invaluable publication that successfully bridgesthe all too formidable gap between academicresearch and everyday practice” (a comment fromone of our readers).

Vera Bernard-Opitz, Ph.D.Clin. Psych, BCBA-D™

Website: www.verabernard.orgE-mail: [email protected]

E D I T O R I A L

Learning from children with ASD:Social perspective taking skills, not only predictschool-, but life-success, thereby going beyondautism and raising an important aspect foreducation in general.

This picture of a staircase was drawn byFlorian Musolff as an image of stepping up

and getting better every day.

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Summer 2009 Autism News of Orange County – RW 5

Autism is a lifelong Pervasive DevelopmentalDisorder (PDD) that is characterized by qualitativeimpairments in social interaction and communica-tion, along with repetitive and stereotyped behaviorsand/or interests. Autism is one of several conditionsthat represent variations in the manifestation ofimpairments, including Asperger Syndrome (AS),atypical autism and PDD not otherwise specified(PDD-NOS). Autism is behaviorally defined,although the etiology may be genetic, neurobiologi-cal (Bailey et al., 1995; Bolton et al., 1994), and/orneuroanatomical (e.g., Courchesne, Carper &Akshoomoff, 2003) in origin. There is no clear uni-fying pathology at the genetic level (Geschwind,2008). The prevalence of autism has been estimatedto be as high as affecting 116 per 10,000 individu-als, or 1 in 86 (Baird et al., 2006).

Traditionally, autism was conceptualized as a dis-tinct categorical condition defined by behavioralimpairments. Unlike other developmental condi-tions such as Down syndrome where there is a cleargenetic etiology, there is no biological marker thatdetermines the presence of autism. Increasingly,autistic features have been proposed to be on a con-tinuum (Baron-Cohen, Wheelwright, Skinner,Martin & Clubley, 2001; Constantino & Todd,2003; Wing, 1988), with autism representing theupper extreme of a constellationof traits that may be continuouslydistributed. This has shiftedthinking about autism away froma discrete categorical approach,towards a more dimensional andquantitative approach.

The diagnosis of autism isoften delayed because it can bedifficult to detect in very youngchildren. Parents often raise con-cerns about their child by about18 months (Wing, 1997) butthere is usually a significant delay

between the point of first concern and an eventualdiagnosis. In a large survey of parents of childrenwith a diagnosis of an autism spectrum condition,Howlin & Asgharian (1999) found that abnormalsocial development was most commonly reported asthe main area of concern. In parents of children withautism, this concern was usually noted by 18months, but later for parents of children with AS (amilder form of autism) - at around 30 months. In aUK longitudinal study, the average age at diagnosisranged from 45 months in children whose diagnosiswas autism, to 116 months in children with a diag-nosis of Asperger Syndrome (Williams, Thomas,Sidebotham & Emond, 2008).

The benefits of early detection and diagnosis ofautism could be several. First, early detection mayallow the child to benefit from the implementationof specific interventions, leading to a better overalloutcome for the child (Harris & Handleman, 2000).Evidence that demonstrates that early (versus late)intervention improves outcome is currently lacking,although Lord, Wagner, Rogers, Szatmari, Aman,Charman et al (2005) reports that studies do existwhich show significant improvements in outcomefor children with autism if intervention starts early(McEachin, Smith & Lovaas, 1993; NationalResearch Council, 2001; Sheinkopf & Siegel, 1998).

R E S E A R C H

Screening for Autism in Toddlers: A Revised MeasureBy Carrie Allison & Simon Baron-Cohen

Autism Research CentreCambridge University

The ARC at Cambridge University collaborates intensively withoutside researchers. As part of their research various tests have beendevised. Some of these tests are made available for download.

Tests can be downloaded if they are used for genuine researchpurposes, and due acknowledgement of ARC as the source is given.

Please visit the following website for further information:http://www.autismresearchcentre.com/tests/default.asp

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R E S E A R C H

Lower functioning children may respond better andmake measurable gains in IQ if intervention isimplemented before the age of four. Second, earlydetection is important for parents so they can avoidlengthy delays between initial concerns and eventualdiagnosis. This may allow them to start learning tomanage their child’s often difficult behavior. Thestress that is sometimes involved in having a childwith autism can have consequences for other familymembers so the sooner the difficulties are recog-nized, the better (Hastings et al., 2005). Third, earlydiagnosis may lead to the prevention of secondarydifficulties associated with autism, such as anxiety(Tonge, Brereton, Gray & Einfield, 1999), depres-sion, or the prevention of bullying (Howlin, 2000).Fourth, in the UK the economic impact of individ-uals with autism has been estimated to be high. Forchildren, the aggregate national costs of support-ing children with autism are estimated to be £2.7billion each year, and for adults this amounts to£25 billion each year. For both adults and children,the majority of this cost is due to services requiredfor support (e.g., residential care for very low func-tioning individuals) (Knapp, Romeo & Beecham,2007). It is hoped that earlier diagnosis will allow forearlier implementation of interventions. In turn, thismay lead to reduced impairment and ultimatelyreduce the economic consequences, nationally.

The many benefits to early diagnosis provide themotivation to attempt to improve on current identi-fication and diagnostic practice through screeningfor autism, with the ultimate aim of leading to earli-er prognostic benefit. It is important therefore toidentify individuals with autism as soon as possiblein order to maximize the support to both the childand their family. In the UK, there is no standardizedroutine developmental screening for autism (Mawle& Griffiths, 2005) despite a wealth of availablescreening tools. In contrast to the UK policy, theAmerican Academy of Pediatrics (Council onChildren With Disabilities, 2006) recommends thatall children receive screening for autism at 18 and 30months. In the US, there is clearly a different per-ception about the potential benefits of early detec-tion of autism.

Attempts to screen children as early as 18months of age for autism have provided mixedresults. The first attempt took place in the early1990’s in the United Kingdom by Simon Baron-Cohen and colleagues. This landmark study shapedresearch into screening for autism. The authorsdeveloped a measure called the Checklist for Autismin Toddlers (CHAT). The CHAT is a combinedparent-report checklist, with a Health Visitor (HV)observation section. This section provides an oppor-tunity for the health professional to rate the child’sbehavior according to what s/he observes during theappointment. Behaviors that were consideredimportant in the etiology of autism provided thebasis for the CHAT items. These included jointattention, pretend play, social play, social inter-est, and imitation. Initially, the CHAT was testedon a group of 41 children at high-risk for autismsince they already had a sibling with autism. Resultsindicated that all those children identified to be atrisk at 18 months on the CHAT received an autismdiagnosis at follow-up (Baron-Cohen, Allen &Gillberg, 1992). This led to a large scale prospectivescreening study (Baron-Cohen et al., 1996) where-by over 16,000 children were administered theCHAT at 18 months. At follow-up six years later, itwas found that when the CHAT did identify a childto be at risk for autism, it was very accurate in doingso (Baird et al., 2000). In research terms, the speci-ficity was very high, at 98%. However, the CHATmissed many cases of autism; that is, it failed toidentify children to be at risk who later receiveda diagnosis – therefore the sensitivity was unac-ceptably low.

There are numerous possible reasons why theCHAT missed cases of autism at 18 months. First,each item on the CHAT was structured in such away that the behavior in question had to be definite-ly present or absent. For example the key items werephrased “Does your child ever pretend?” This meantthat to “fail” an item, the child must never have pro-duced the behavior and this may have been too strin-gent. More likely is that reduced frequency of behav-iors such as pointing or pretending may be impor-tant in detecting risk for autism. Second, the key

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R E S E A R C H

items on the CHAT solely focused on joint attentionand pretend play. The CHAT did not take into con-sideration other important behaviors that may besignificant in the early identification of autism,including repetitive and stereotyped behaviors andsensory abnormalities. Third, screening at 18months might have been too early to catch all chil-dren with autism since approximately 20-50% ofchildren with autism exhibit developmental regres-sion (Lord, Shulman & DiLavore, 2004) in languageand/or social skills (Hansen et al., 2008) after 18months. Lastly, during the 1990s when the CHATwas developed there was a noted increase in theprevalence of autism. The design of the CHAT wasprimarily based on aiming to detect what todaywould be called childhood autism, rather than thebroader spectrum that includes AS, atypical autism,or PDD-NOS (it is relevantthat AS was only officially rec-ognized in 1994, during thedecade of the CHAT studies).

In light of lessons learnedthrough the course of thesestudies, a revised version ofthe CHAT has been developed by Simon Baron-Cohen andhis team. The QuantitativeChecklist for Autism inToddlers (Q-CHAT) aims toenable parents to quantifyautistic traits. The Q-CHATbypasses the need for clinicianobservation, by relying entire-ly on parental report. If suc-cessful, this has the potentialto reduce the burden on pri-mary health care workers andcould be a cost-effective method of screening largepopulations. The Q-CHAT retains the key itemsfrom the original CHAT but includes additionalitems that examine language development, repeti-tive and sensory behaviors, as well as other aspectsof social communication. Each item contains arange of response options and does not force theparent to decide whether the behavior is definitely

present or absent. This approach allows for the pos-sibility that children at risk for autism and ASCshow a reduced rate of key behaviors. In effect, this“dimensionalizes” each item (using a five-pointscale of frequency), allowing for greater variabilityin responses and provides statisticians with moreinformation with which to discriminate childrenwho are developing typically from those on thedevelopmental trajectory towards autism.Altogether, the Q-CHAT consists of 25 items, all ofwhich endeavor to capture behaviors that may becharacteristic of children who later receive a diagno-sis of ASC. All 25 items have been illustrated bya wonderful charity in the US, the Help AutismNow Society, founded by Linda and Paul Lee.These illustrations help parents to understandabout what each item is asking, and hopefully

avoids misunderstandings. See Box 1 for someexample Q-CHAT items and illustrations.

Our pilot study has provided encouragingresults. Two groups of children were compared. First,a group of 160 parents of children who already hada diagnosis of autism were asked to complete the Q-CHAT. These children were older than the age at

Box 1: Example Q-CHAT items and illustrations

SECTION 1Please answer the following questions about your child by marking the appropriate circle.

Try to answer EVERY question if you can.

1. Does your child look at you when you call his/her name?alwaysusuallysometimesrarelynever

2. How easy is it for you to get eye contact with your child?very easyquite easyquite difficultvery difficultimpossible

3. When you child is playing alone, does s/he line objects up?alwaysusuallysometimesrarelynever

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which the Q-CHAT is intended to be administered,but this group included 41 children who were all lessthan three years of age. A second group (754) of par-ents from a birth cohort of 18-24 month old tod-dlers also completed the Q-CHAT. The score distri-butions of children in the two groups were com-pared and a significant difference was found: thegroup with autism scored higher on the Q-CHATthan the general population sample (see Figure 1).

Further, the distribution of scores on the Q-CHATin the general population sample approximated anormal distribution.

This is the first toddler screening instrumentspecifically for detecting autism that has shown arange of scores in the general population thatapproximates a normal distribution. Interestingly,boys scored significantly higher on the Q-CHATthan girls. Sex differences have been found in othermeasures of social and communication abilities. Forexample, males score higher on the Childhood

Autism Spectrum Test (CAST) (Williams, Allison etal., 2008); the Social Reciprocity Scale (SRS)(Constantino, Davis et al., 2003); and on the child,adolescent and adult versions of the AutismSpectrum Quotient (AQ), a quantitative measure ofautistic traits in high functioning autism or AS inchildren, adolescents or adults of average IQ orabove (Auyeung, Baron-Cohen, Wheelwright &Allison, 2008; Baron-Cohen, Hoekstra, Knickmeyer

& Wheelwright, 2006;Baron-Cohen et al., 2001).The sex difference foundhere suggests two possibili-ties. First, boys may exhibitmore difficulties in social,communication and rigidand repetitive behaviorsthan girls in early develop-ment (Leekam et al., 2007).Alternatively, the Q-CHATmay be more efficient atdetecting autistic featuresin boys than in girls; there-fore the sex differencefound may simply be anartifact of the measurementinstrument and samplingprocedure. Per-haps the Q-CHAT is more sensitive tosocial and communicationdevelopment difficulties inboys, and additional itemswould be required to iden-tify more specific features in

girls that are less obvious (Kopp & Gillberg, 1992;Wolff & McGuire, 1995) at this early age. Long-term follow-up of this pilot sample is ongoing totrack the diagnostic outcomes of children who scorehigh on the Q-CHAT. These data only represent ini-tial psychometric work with this revised instrument.

A large-scale project is currently underway thataims to fully validate the Q-CHAT. We are undertak-ing to distribute 20,000 Q-CHATs to parents of tod-dlers aged 18-30 months in Cambridgeshire, UK. Sofar, we have sent out about 14,500 questionnaires and

Figure 1: Comparison of Q-CHAT distribution between a selected subsampleof Group 1 (N=41) and Group 2 (N=754) (from Allison et al., 2008)

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have had about 3,500 responses. We have developed asampling strategy that we hope will maximize the cap-ture of potential autism cases. This involves samplingacross the whole score distribution, rather than onlycalling in children for diagnostic assessments with ahigh score. All high scorers will be called in, as well aschildren with borderline and low scores (the chance ofbeing selected decreases as the Q-CHAT score lowers).Most other screening studies, such as the ModifiedChecklist for Autism in Toddlers (M-CHAT) (Robins,Fein, Barton & Green, 2001), only call in for assess-ment those who “fail” the screen. While our samplingstrategy is labor intensive, time consuming and expen-sive, we hope that the information that we gatherabout how the Q-CHAT performs across the wholescore distribution will enable us to make valid recom-mendations about its utility. We are using the goldstandard diagnostic measures, namely the AutismDiagnostic Observation Schedule (Lord et al., 2000),Autism Diagnostic Interview-Revised (Lord, Rutter &Le Couteur, 1994) as well as obtaining a measure of IQthrough the Mullen Scales of Early Learning (Mullen,1995), and a measure of adaptive ability through theVineland Adaptive Behavior Scales (Sparrow, Cicchetti& Balla, 2005). We are blind to the child’s Q-CHATscore at the time of the assessment to minimize expec-tation bias. Also, because we have children with lowscores on the Q-CHAT, not every assessment is with achild who is likely to have developmental difficulties,and this also helps to reduce bias.

Few research groups have attempted populationscreening for autism in very young children. There arepracticalities and inevitable problematic outcomes(e.g., low positive predictive value, high number offalse positives, low response) associated with popula-tion screening, which make it a daunting task.

Research with screening instruments like the Q-CHAT and the M-CHAT are longitudinal projectsand require many years of follow-up. In the UK, barri-ers exist in attempting population health research suchas accessing the population because of data protectionlegislation, poor response, attrition at various stages,and cooperation and collaboration with our NationalHealth Service. As there is no standardized screeningor compulsory developmental check-ups in the UK,there is no already available opportunity to have thehealth professionals themselves involved in the screen-ing. Instead, the Q-CHATs have to be mailed to thefamily home. Despite concerted efforts to maximizeresponse, 25-30% is a typical response to an unsolicit-ed questionnaire of this nature. We feel that face-to-face contact with a trusted health professional wouldhelp to improve response, but there are so manyresource implications that this cannot currently beconsidered. When response is low, it calls into questionhow representative the responders are of the generalpopulation. The amount of bias that could be attrib-uted to the non-responders is unknown and is notmeasurable beyond comparison of general populationstatistics. In our pilot study, we did find a largerproportion of parents with higher levels of educa-tion, from higher socio-economic strata than isfound in the general population. In terms of popu-lation screening, this may have implications con-cerning access to services if the high socioeconomicgroups are more inclined to complete screeningquestionnaires. In fact, results from a recent preva-lence study of autism showed those children who hadbeen previously identified and diagnosed with autismwere more common in families with well-educatedparents (Baird et al., 2006). Despite these challenges,they are not valid reasons to give up on populationscreening for autism. In the UK at least, better meth-ods must be found to work collaboratively with thehealth professionals who contend first hand with con-ditions like autism. It seems that in the US, a more col-laborative approach to screening for autism occursbetween clinicians and researchers, a model that theUK health system should follow. Ultimately, earlierdetection of autism may lead to improved outcomesthrough the implementation of specific interventions,

Summer 2009 Autism News of Orange County – RW 9

R E S E A R C H

“Long-term follow-up of this pilot sample is ongoing to track the diagnostic

outcomes of children who score high on the Q-CHAT. These data only

represent initial psychometric work with this revised instrument.”

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which will benefit not just the individuals themselves,but their families and society at large.

For further information, please contact:

Carrie AllisonScientist, Autism Research CentreUniversity of Cambridge, UK

Simon Baron-CohenProfessor and Director, Autism Research CentreUniversity of Cambridge, UK

References• Allison, C., Baron-Cohen, S., Wheelwright, S., Charman,

T., Richler, J., Pasco, G., et al. (2008). The Q-CHAT(Quantitative CHecklist for Autism in Toddlers): ANormally Distributed Quantitative Measure of AutisticTraits at 18-24 Months of Age: Preliminary Report. JAutism Dev Disord, 38(8), 1414-1425.

• Auyeung, B., Baron-Cohen, S., Wheelwright, S., & Allison,C. (2008). The Autism Spectrum Quotient: Children’sVersion (AQ-Child). J Autism Dev Disord, 38(7), 1230-1240.

• Bailey, A., Le Couteur, A., Gottesman, I., Bolton, P.,Simonoff, E., Yuzda, E., et al. (1995). Autism as a stronglygenetic disorder: evidence from a British twin study. PsycholMed, 25(1), 63-77.

• Baird, G., Charman, T., Baron-Cohen, S., Cox, A.,Swettenham, J., Wheelwright, S., et al. (2000). A screeninginstrument for autism at 18 months of age: a 6-year follow-up study. J Am Acad Child Adolesc Psychiatry, 39(6), 694-702.

• Baird, G., Simonoff, E., Pickles, A., Chandler, S., Loucas,T., Meldrum, D., et al. (2006). Prevalence of disorders ofthe autism spectrum in a population cohort of children inSouth Thames: the Special Needs and Autism Project(SNAP). Lancet, 368(9531), 210-215.

• Baron-Cohen, S., Allen, J., & Gillberg, C. (1992). Canautism be detected at 18 months? The needle, the haystack,and the CHAT. Br J Psychiatry, 161, 839-843.

• Baron-Cohen, S., Cox, A., Baird, G., Swettenham, J.,Nightingale, N., Morgan, K., et al. (1996). Psychologicalmarkers in the detection of autism in infancy in a largepopulation. Br J Psychiatry, 168(2), 158-163.

• Baron-Cohen, S., Hoekstra, R. A., Knickmeyer, R., &Wheelwright, S. (2006). The Autism-Spectrum Quotient(AQ)–adolescent version. J Autism Dev Disord, 36(3), 343-350.

• Baron-Cohen, S., Wheelwright, S., Skinner, R., Martin, J.,& Clubley, E. (2001). The autism-spectrum quotient(AQ): evidence from Asperger syndrome/high-functioningautism, males and females, scientists and mathematicians. JAutism Dev Disord, 31(1), 5-17.

• Bolton, P., Macdonald, H., Pickles, A., Rios, P., Goode, S.,Crowson, M., et al. (1994). A case-control family historystudy of autism. J Child Psychol Psychiatry, 35(5), 877-900.

• Constantino, J. N., Davis, S. A., Todd, R. D., Schindler,M. K., Gross, M. M., Brophy, S. L., et al. (2003).Validation of a brief quantitative measure of autistic traits:comparison of the social responsiveness scale with theautism diagnostic interview-revised. J Autism Dev Disord,33(4), 427-433.

• Constantino, J. N., & Todd, R. D. (2003). Autistic traits inthe general population: a twin study. Arch Gen Psychiatry,60(5), 524-530.

• Council on Children With Disabilities. (2006, July 1,2006). Identifying Infants and Young Children WithDevelopmental Disorders in the Medical Home: AnAlgorithm for Developmental Surveillance and Screening.Pediatrics Retrieved 1, 118, from http://pediatrics.aappub-lications.org/cgi/content/abstract/118/1/405.

• Courchesne, E., Carper, R., & Akshoomoff, N. (2003).Evidence of brain overgrowth in the first year of life inautism. Jama, 290(3), 337-344.

• Geschwind, D. H. (2008). Autism: many genes, commonpathways? Cell, 135(3), 391-395.

• Hansen, R. L., Ozonoff, S., Krakowiak, P., Angkustsiri, K.,Jones, C., Deprey, L. J., et al. (2008). Regression in autism:prevalence and associated factors in the CHARGE Study.Ambul Pediatr, 8(1), 25-31.

• Harris, S. L., & Handleman, J. S. (2000). Age and IQ atintake as predictors of placement for young children withautism: a four- to six-year follow-up. J Autism Dev Disord,30(2), 137-142.

• Hastings, R. P., Kovshoff, H., Ward, N. J., degli Espinosa,F., Brown, T., & Remington, B. (2005). Systems analysis ofstress and positive perceptions in mothers and fathers ofpre-school children with autism. J Autism Dev Disord,35(5), 635-644.

• Howlin, P. (2000). Autism and intellectual disability: diag-nostic and treatment issues. J R Soc Med, 93(7), 351-355.

• Howlin, P., & Asgharian, A. (1999). The diagnosis ofautism and Asperger syndrome: findings from a survey of770 families. Dev Med Child Neurol, 41(12), 834-839.

• Knapp, M., Romeo, R., & Beecham, J. (2007). The eco-nomic consequences of autism in the UK: Foundation forPeople with Learning Difficulties.

• Kopp, S., & Gillberg, C. (1992). Girls with social deficitsand learning problems: Autism, atypical Asperger syn-drome or a variant of these conditions European Child &Adolescent Psychiatry, 1(2), 89-99.

• Leekam, S., Tandos, J., McConachie, H., Meins, E.,Parkinson, K., Wright, C., et al. (2007). Repetitive behav-iours in typically developing 2-year-olds. Journal of ChildPsychology and Psychiatry, 48(11), 1131-1138.

• Lord, C., Risi, S., Lambrecht, L., Cook, E. H., Jr.,Leventhal, B. L., DiLavore, P. C., et al. (2000). The autismdiagnostic observation schedule-generic: a standard measureof social and communication deficits associated with thespectrum of autism. J Autism Dev Disord, 30(3), 205-223.

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• Lord, C., Rutter, M., & Le Couteur, A. (1994). AutismDiagnostic Interview-Revised: a revised version of a diag-nostic interview for caregivers of individuals with possiblepervasive developmental disorders. J Autism Dev Disord,24(5), 659-685.

• Lord, C., Shulman, C., & DiLavore, P. (2004). Regressionand word loss in autistic spectrum disorders. J Child PsycholPsychiatry, 45(5), 936-955.

• Lord, C., Wagner, A., Rogers, S., Szatmari, P., Aman, M.,Charman, T., et al. (2005). Challenges in evaluating psy-chosocial interventions for Autistic Spectrum Disorders. J Autism Dev Disord, 35(6), 695-708; discussion 709-611.

• Mawle, E., & Griffiths, P. (2005). Accuracy of communityscreening for autism in pre-school children: Systematicreview. Int J Nurs Stud.

• McEachin, J. J., Smith, T., & Lovaas, O. I. (1993). Long-term outcome for children with autism who received earlyintensive behavioral treatment. Am J Ment Retard, 97(4),359-372; discussion 373-391.

• Mullen, E. (1995). Mullen Scales of Early Learning (AGSed.). Circle Pines, MN: American Guidance Service Inc.,Western Psychological Services.

• National Research Council. (2001). Educating Childrenwith Autism. Washington DC: Henry (Joseph) Press.

• Robins, D. L., Fein, D., Barton, M. L., & Green, J. A.(2001). The Modified Checklist for Autism in Toddlers: aninitial study investigating the early detection of autism andpervasive developmental disorders. J Autism Dev Disord,

31(2), 131-144.• Sheinkopf, S. J., & Siegel, B. (1998). Home-based behav-

ioral treatment of young children with autism. J AutismDev Disord, 28(1), 15-23.

• Sparrow, S. S., Cicchetti, D. V., & Balla, D. A. (2005).Vineland Adaptive Behavior Scales: Second Edition(Vineland II), Survey Interview Form/Caregiver Rating Form.Livonia, MN: Pearson Assessments.

• Tonge, B., Brereton, A., Gray, K., & Einfield, S. (1999).Behavioural and Emotional Disturbance in HighFunctioning Autism and Asperger Syndrome. Autism, 3,117 - 130.

• Williams, E., Thomas, K., Sidebotham, H., & Emond, A.(2008). Prevalence and characteristics of autistic spectrumdisorders in the ALSPAC cohort. Dev Med Child Neurol,50(9), 672-677.

• Williams, J. G., Allison, C., Scott, F. J., Bolton, P. F.,Baron-Cohen, S., Matthews, F. E., et al. (2008). TheChildhood Autism Spectrum Test (CAST): SexDifferences. J Autism Dev Disord.

• Wing, L. (1988). The continuum of autistic characteristics.In E. Schopler & G. Mesibov (Eds.), Diagnosis and assess-ment in autism. New York: Plenum Press.

• Wing, L. (1997). The autistic spectrum. Lancet,350(9093), 1761-1766.

• Wolff, S., & McGuire, R. J. (1995). Schizoid personality ingirls: a follow-up study–what are the links with Asperger’ssyndrome? J Child Psychol Psychiatry, 36(5), 793-817.

Cover Artist: Luis Huete

For this issue, we pursuedcontributions for the cover a lit-tle differently, providing ourpotential cover artists with atheme for their illustration. Weasked them to draw how youwould “step up to

the plate.” As many of you know, weneed financial support to keepANOC going. We have receivedextensive positive feedback regardinghow much our readers enjoy the con-tent, and we appreciate the affirma-tion. We are now asking that those ofyou who have enjoyed ANOC overthe years “step up to the plate,” anddonate what you are able.

Thank you for your continuedsupport!

Luis is a 7th grader who attends WashingtonMiddle School in La Habra California. He attendsthe S.U.C.S.E.S.S. class taught by Miss Myers. Asdemonstrated by the drawing, Luis is a skilledartist, who likes objects to be orderly and systemat-ic. The drawing on the cover is a result of a chal-

lenge given to the students inMiss Myers’ classroom to illus-trate how you “step up to theplate.” Luis enjoys playing andwatching baseball, and wouldlove to attend an Angels base-ball game someday.

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While most of us engage in social interaction/regulation intuitively, many students with sociallearning challenges who have good to excellent lan-guage and cognition (e.g., High FunctioningAutism, Pervasive Developmental Disorder-NotOtherwise Specified, Asperger Syndrome and/orAttention Deficit Disorder) are weak in their abilityto think about how we think socially. They also oftenlag behind their peers in the development of theirsocial relationship skills. Professionals may regardthis higher functioning group as being “quirky” withsome level of “social skill problems,” but strugglewhen determining whether or not these studentsshould qualify for specialized services in our schools,given that they may demonstrate strong academicknowledge. Nonetheless, the peer group is general-ly very critical of how these students relate and mayactively reject those who don’t fit in. Furthermore,the deeper social learning challenges faced by thisgroup may have an impact on how they interpretand respond to academic lessons that require socialknowledge, such as reading comprehension of litera-ture, written expression of essays, organizationalskills and participating in peer-based (less struc-tured) work groups. (Westby, 1985; Winner, 2000)

Social intelligence has an impact not only on ourability to live productively, but also on our ability toexperience relative satisfaction throughout our lives(Hersh-Pasek & Golinkoff, 2003; Goleman, 2006).In fact, the set of tools used for social understandingand social regulation/communication in our earlyyears is the same set required in adulthood to partic-ipate effectively as a member of society (i.e., hold ajob and live with others in the community). Severalyears of clinical experience by both authors has ledus to the conclusion that IQ scores and achieve-ment fail to predict whether or not an individualconsidered high functioning will achieve a similarlevel of success in adulthood (e.g., maintainemployment and develop satisfactory interpersonal

social relations within theirdesired community).

Most of us would agreethat the purpose of receiv-ing an education is to pre-pare students to participate successfully in the adultworld. Therefore it is reasonable to assume that thosewith significant social learning challenges need extrasupports for learning about the social world, as wellas for improving their capacity to develop social rela-tionship skills. However, given that a neurotypicalchild’s social knowledge and social skills are learnedintuitively from their earliest days of life (Sabbagh,2006), generally, teachers need only provide subtlecues to help these students learn to adjust their socialbehavior across different situations and grade levelexpectations. Therefore direct, concrete and explic-it social teachings are not taught as part of thedaily core curriculum. These more intensive teach-ings are usually taught by special educators, speech-language pathologists and psychologists/counselors.

In order to “qualify” for an IndividualizedEducation Plan (IEP), a professional must demon-strate, via an assessment, that a student’s deficits aresevere enough across the school day to warrantmore intensive services. Most professionals aretaught to rely on standardized measures to deter-mine whether or not a student is eligible for ser-vices. Thus, the most logical place to turn to assessa student’s social thinking and related social skillswould be through formal measures. However, sig-nificant limitations persist with the use of stan-dardized tools for higher functioning students withASD and related disabilities. The dynamic natureof social interaction is not easily captured in alinear standardized test battery.

Simmons-Mackie & Damico, in their seminalarticle, Contributions of Qualitative Research to theKnowledge Base of Normal Communication (2003)

Assessing the Social Mind in Action: TheImportance of Informal Dynamic AssessmentsBy Michelle Garcia Winner & Pamela J. Crooke

Pamela J. Crooke (Left) &Michelle Garcia Winner

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acknowledge that communication is a synergisticand dynamic process that quickly becomes indeci-pherable when we try and break it down into partsin order to test specific aspects. Furthermore, speedis of the essence during the process of interpretingwhat another person is thinking/saying and codingour own related social response. It is expected thatwe respond to one another in an interactionwithin milliseconds to 2 seconds (Vuchinich,1980). Unfortunately, standardized testing is aprocess that deconstructs and examines communica-tion in parts, but fails to assess how a student inte-grates this information. This may result in testscores that demonstrate islands of social knowledgewithout the ability to combine this knowledge intoa functional whole. In fact, Minshew and Goldstein(1998) state that Autism Spectrum Disorders(ASD) are best described as a deficit in the inte-gration of complex information.

Many clinicians have reported experiencing frus-tration when trying to find assessment tools to fairlyrepresent a student’s social functioning in “realtime.” This frustration has been the impetus for thedevelopment of the strategies described later in thisarticle. A student with very impressive test scoreswho looks good on paper, but has obvious social rela-tionship issues, becomes perplexing to the diagnosti-cian. These students have motivated the authors tobetter understand not only why this group shouldreceive specialized teaching, but the specifics behindwhat should be taught.

What does it mean to assess social thinking andrelated social skills?

Before assessing social thinking and related socialskills, one must consider the enormous task that aperson’s social mind must undertake in order to inte-grate and then respond when given social informa-tion. The term Social Thinking was coined by thefirst author to illuminate the fact that social skills donot merely exist as separate units of informationlearned through behaviorism. Instead as we age,including across the school years, social skills are thebehavioral output of our more fine-tuned socialthoughts. To interact “appropriately” for our age,we need to consider what others are thinking and

feeling as well as the expectations imposed by thesituations in which we share our space or interact.While this may seem well beyond the ability of thepreschool or young elementary school child, it is not.This can be seen when observing a kindergarten classwhere most five-year-old children can work in agroup of 20 students, adapting effectively to theteacher’s expectations across time.

Winner (2000) developed the acronym, theILAUGH model of Social Thinking to help explainto parents and professionals the many elements thatcontribute to Social Thinking:

I = Initiation of language to problem solve, askfor help or enter into social interactions that are notroutine.

L = Listening with eyes and brain. We “listen” notonly by hearing what people are saying, but also bywatching what people are doing with their body lan-guage, eye contact, and facial expression as they speak.

A = Abstract and inferential thinking; making“smart” or educated guesses about what people meanby what they say or what they plan to do next basedon what you know about them and the situation.

U = Understanding perspective: consideringother’s thoughts, emotions, motives, intentions,prior knowledge, belief systems and personality,simultaneous to doing everything else represented inthis model.

G = Getting the Big Pictures (gestalt processing);focusing on the main idea rather than tangentialdetails.

H = Humor and Human relatedness: Helpingour students to enjoy the bond of human interactionto help motivate them to partake in learning moreabout all of the elements of social thinking.

It is also critical that we realize that social behav-ior is ever-changing based on our own stage of devel-opment. We expect students to demonstrate increas-ing nuance and sophistication in the ways theyengage with each other, in their social thinking andrelated social skills with each passing year. Whenchildren are young they have relatively little socialknowledge, thus may act in a more “immature” man-ner. But as they grow, we expect increasing maturitywhich is reflected by the expression of more finely

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tuned social-behavioral responses, also referred to associal skills. Furthermore, social behavior is also dic-tated by our ability to “read” the changing “hiddenrules” or “hidden curriculum” required in specificsituations (Myles, Trautman, & Schelvan, 2004).Adapting to the complexities by considering andresponding to all of these variables can best be under-stood as “complex social processing.” To our knowl-edge, there is no standardized test or informal check-list that explores one’s ability to socially adapt at amicroscopic level, but it is at this level that we formperceptions of how people are “behaving” around us.

Remarkably, across cultures, we have subtle,nuanced behavioral expectations but we don’t have areadily accessible way to describe when a child oreven an adult is not “behaving” in a way that isexpected. Yet interpreting those around us accurate-ly and conforming our social behavior to situationaldemands, even for our youngest students, is consid-ered a mandatory part of participating in the soci-eties of our home, school and community. Therefore,creative approaches to assess this complex processingare in order.

Aspects of an Informal Dynamic Social ThinkingAssessment Process:

The first step in assessing a student’s social chal-lenges is to understand the many ways in which wethink socially and expect related social behavioraladaptations in others (Winner, 2007). As we acquirethis knowledge, we can become better observers ofour student’s social behavior within social situations.Our goal is to not only observe in structured andunstructured naturalistic situations (Weatherby,2006), but to also learn what about the student’ssocial knowledge that may support or fail to supportsocial behavioral or social academic expectations.

If a professional works in a school environment,observing a student in the naturalistic setting is aninvaluable part of the assessment. Professionals mayask, “Where are the guidelines or written social stan-dards on which we can base these observations?” Theanswer is that the professional has to observe, tosome extent, the student in the setting to determineif the behavior of the student they are assessing is“expected” or “unexpected.” For example, if a stu-

dent is “blurting” out in class, it is important to notethat to some extent all students “blurt” on occasionin a classroom. Thus it is not that the student hasblurted, it is whether his level of blurting significant-ly exceeds the expected “norm” of the other studentsin the classroom.

If a professional does not work within the school,it is important to remember that social behavior hap-pens 24 hours a day and so the assessment shouldbegin in the waiting room or at the initial meeting.Knowledge of general social developmental expecta-tions of students across childhood and into adult-hood is helpful. This knowledge is most easily gainedby actively observing “normal” behavior in a givensituation, whether it is in a grocery store, a school,home, etc. A recent example of this occurred when a13-year-old boy came for a first visit to the authors’waiting room. The boy stood very close, spoke in avery loud voice, and described his Playstation gamein a very, very excited manner. This behavior mayhave been “expected” for a 6-year-old but was clear-ly “out of the norm” for a 13-year-old. Thus, theassessment had already begun.

Winner (2007) created a number of informalassessment tasks to better understand how individu-als process and respond to social information that iscomplex in nature. The following is an example ofone task within an informal Dynamic SocialThinking Assessment. The tasks in this assessment aredesigned to explore a student’s thinking in “realtime” and are a critical aspect of assessing the abilityto relate effectively with others. This core taskexplores how students use their eyes to process andrespond to other’s thinking. The task will bedescribed in three parts: a. the task itself, b. how thistask relates to developing social interactive compe-tencies, and c. how this knowledge is incorporatedacross a school or home day using the paradigm ofthe ILAUGH model of social thinking.

Thinking With Your Eyes:a. Task description: The examiner works with the

student in a relatively small room and asks himto guess what he thinks the examiner might belooking towards. The examiner can cue the stu-dent by telling him that the task relates to look-

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Summer 2009 Autism News of Orange County – RW 15

ing at her eyes. If the examiner is wearing glass-es, she should take them off. The examinerthen looks at one object in the room that is 8feet or less from where the examiner is sitting.The student is to focus on what the examiner islooking at, follow her eyes and then state aloudwhat he or she thinks the examiner sees. Forexample, if the examiner is looking at a clock,the student should guess she is looking at theclock. The examiner should not correct the stu-dent if they are wrong.

After the examiner determines the student’sability to follow the examiner’s eyegaze, she can then say, “Now I wantyou to guess what I am thinkingabout and this also has to do with myeyes.” Now she should look backtowards some of the objects from theprevious task. For example, if the stu-dent thinks she is looking at the clockhe should now state she is thinkingabout the time. If the student can dothis, it indicates that he is able toshift his observation of anotherperson’s eyes from thinking aboutwhat they seeing to inferring theconcept the examiner may be con-sidering or thinking.

b. Assessment of social knowledge: In the researchon early development, the ability to follow eyegaze is called “Joint Attention” and it isexpected that neurotypical students are pro-ficient by 12 months. When a student is lim-ited in his ability to “read someone’s eyes” orwhat we describe as “thinking with your eyesabout what someone else is thinking,” itimpacts social understanding of the situation.For example, a student is required to deter-mine what the teacher may be thinking in theclassroom each and every day (e.g., observingthe teacher to figure out whose turn it is tospeak or what is expected from the students).This is also the case when two or more individ-uals are actively engaged in a discussion orconversation. If you take time to observe this

skill in yourself, you will begin to notice howmuch we depend on watching and readingothers’ eyes to figure out their intentions, etc.

c. How this knowledge is incorporated into theschool and home day: Awareness of anotherperson’s eyes (and related thoughts) is a centralskill for understanding how a person works aspart of a larger group in a classroom as well ashow to relate to others through play and con-versation. It is also considered a part of ourown personal safety as we monitor what otherssee as it relates to thoughts they may be having

about us. Typically, when astudent has “poor to good eyecontact” we determine theyneed to learn to use appropri-ate eye contact. What wemay not realize is that theyare lacking more than theunderstanding of eye contactitself; many students withsocial learning challenges areinefficient social thinkerswho do not easily making theeye-gaze/social thinking con-nection. With regards to theILAUGH model of SocialThinking the concept of

“thinking with your eyes” is central not only to“Listening with eyes and brain” but also“Understanding Perspective.” The ability toefficiently think about what someone else isthinking also leads to better abstract/inferen-tial thinking as we infer what people mean bywhat they say, based on what we think theymight be thinking about.

Many instances of using this task in hundreds ofindividuals of all ages has shown us that how a per-son performs on this task cannot be predicted basedon their diagnostic label, IQ scores, or languageskills. The task is unique in that it assesses the abili-ty to actively engage in Social Thinking in themoment of social interaction and appears to be acrucial aspect of the assessment of social competen-cies. Winner (2007) has described a number of tasks

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that attempt to capture a more“real time” assessment of socialthinking and related social skillsand discusses how the informa-tion gleaned from these taskshelps to more accurately predicta student’s actual social process-ing and responding.

A comprehensive assessmentshould include a blend of stan-dardized assessments, checklistsof social functioning, such as Bellini’s Autism SocialSkills Profile (2006), and Informal DynamicMeasures of Social Thinking. However, if the pro-fessional has time constraints, the least informativemethod for predicting how a student relates andresponds to social information in real-time interac-tions and in their core curriculum is through stan-dardized tests. In the process of understanding thesocial mind in action, it is critical to consider thatformal tests are not the best and most accurate indi-cators of a student’s ability to function in day-to-daysocial and academic skills. Instead, this article hasgiven one task to inspire diagnosticians to dig a littledeeper into the assessment of the social mind; thereare many other creative ways in which dynamicsocial thinking and related social skills can beexplored. Professionals should realize they are on thecutting edge of a new field for which the research hasnot been completed, but the need for creativity com-bined with continued learning about the complexsocial mind and its many functions is crucial.Individuals with social learning challenges are herenow and they can’t wait for our field and ourresearch to evolve.

For further information, please contact:

Michelle Garcia Winner, M.A., CCC-SLPSan Jose, CaliforniaWebsite: www.socialthinking.org

Pamela J. Crooke, Ph.D., CCC-SLPSenior therapist for Social Thinking andFaculty member at San Jose State University inSan Jose, California

Reference• Bellini, S. (2006), Autism Social

Skills Profile within Building SocialRelationships; A Systematic Approachto Teaching Social Interaction Skillsto Children and Adolescents withAutism Spectrum Disorders andOther Social Difficulties; p. 73.Autism Asperger Publishing Co.;Shawnee Mission, KS.

• Goleman, D. (2006) SocialIntelligence: The New Science ofSocial Relationships. New York, NY:Bantam Books.

• Hersh-Pasek, K., & Golinkoff, M. (2003). Einstein neverused flashcards (p. 183), New York, NY: St Martin’s Press.

• Minshew, N., Goldstein, G. (1998) Autism As A DisorderOf Complex Information Processing. Mental Retardationand Developmental Disabilities Research Reviews, Vol. 4:129-136.

• Myles, B., Trautman, M., Schelvan, R. (2004) The HiddenCurriculum: Practical Solutions for UnderstandingUnstated Rules in Social Situations. Autism AspergerPublishers, Inc. Kansas City, KS.

• Sabbagh, M. (2006). Neurocognitive bases of preschoolers’theory of mind development: Integrating cognitive neuro-science and cognitive development. In P. Marshall & N.Fox (Eds.), The development of social engagement.Neurobiological perspectives pp. 153-170. NY: OxfordUniversity Press.

• Simmons-Mackie, N. and J. Damico. “Contributions ofQualitative Research to the Knowledge Base of NormalCommunication. American Journal of Speech LanguagePathology. Vol 12. May 2003 144-154.

• Westby, C. (1985). Learning to talk-learning to learn: Oralliterate language differences. In C. Simon (Ed.),Communication skills and classroom success, pp. 181-218.San Diego, CA: College Hill Press.

• Wetherby’s (2006) chapter in Social & CommunicationDevelopment in Autism Spectrum Disorders. EdsCharman, T. and Stone, W. The Guilford Press, New York,NY.

• Winner, M. (2000). Inside out: What makes the person withsocial cognitive deficits tick? Think Social Publishing; SanJose, CA.

• Winner, M. (2007). Thinking about you thinking about me,2nd edition. Think Social Publishing; San Jose, CA.

• Vuchinich, S. (1980) Logical relations and comprehensionin conversation. Journal of Psycholinguistic Research, Vol.9, 5, 473-501.

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A comprehensive valid assessment of an individ-ual’s communication skills is the foundation onwhich diagnosis, intervention strategies, and referralsare determined. Due to the remarkable heterogene-ity among individuals with Autism SpectrumDisorders (ASD), assessment approaches will differaccording to the unique needs of the individual, aswell as the individual’s family (National ResearchCouncil, 2001; American Speech-Language-HearingAssociation, 2005b, 2006a). Keeping social andcommunicative competence as the central focus, acomprehensive assessment should include an evalua-tion of the individual’s communicative skills by bothinformal measures in natural contexts and standard-ized/norm-referenced assessments.

By evaluating an individual in his/her naturalenvironment, a clinician is more likely to discoverinformation that will lead to intervention strategiesthat enhance the individual’s quality of life acrossschool, home, and community settings (AmericanSpeech-Language-Hearing Association, 2006c). Inaddition to including observations across settings,the members of an individual’s medical (neurologist,psychiatrist, pediatrician), educational (teacher, dis-trict autism specialist, inclusion specialist), and ther-apeutic team (school-based SLP, OT, psychologist,behavioral specialist) should be consulted. A broad-based multidisciplinary consensus panel stressed the

importance of interdisciplinary collaboration inassessing and diagnosing ASD, due to the complexi-ty of these disorders, the varied aspects of function-ing affected, and the need to rule in or rule out otherdisorders or medical conditions (Filipek et al.,1999). It is important to include a variety ofobservers and informants in order to provide a com-prehensive picture of an individual’s communicativebehaviors as a function of specific contexts and com-munication partners.

While it is a challenging task to conduct a trulycomprehensive assessment that includes the afore-mentioned components, due to the amount of timeand the differing philosophies of professionals thatmay be involved, the results of an assessment thatincludes an individual’s family, peers, and profes-sional team will provide a detailed picture of theexisting communicative strengths and weaknesses,leading to appropriate program development.

Informal Assessment Procedures

Family Interview and ObservationFamily participation is critical to obtain develop-

mental history, current level of daily functioning,and future goals of the individual with ASD (e.g.,Domingue, Cutler, & McTarnaghan, 2000; Lord &Corsello, 2005). The combined use of interviews,communication checklists, and observations is use-ful in collecting this information.

A Comprehensive Speech-Language Assessment: The Importance of a Collaborative Approach for Individuals with Autism Spectrum DisordersBy Rachael Gray

“This is a very useful, readable, practical publication. ANOC brings together articles from many reliable, knowledgeable sources and puts them into a format that is accessible

to the average reader. While some articles are technical, they are readable, and almost anyreader can find useful articles that will work for his or her particular situation. People

who read ANOC are more informed and more empowered for having read it.”

a comment from our readers...

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The intake interview shouldprovide historical informationfrom the individual or familymember. This is also where youwill likely learn about the otherprofessionals involved in the indi-vidual’s care and gain insightregarding the individual’s daily life(schedule, activities, etc.).

There are several checklistsavailable that are related to com-munication and social/behavioralskills. The Pragmatics Profile of theClinical Evaluation of LanguageFundamentals, Fourth Edition,Children’s Communication Check-list-2, and the Receptive-ExpressiveEmergent Language Test–ThirdEdition are commonly used by speech-languagepathologists in collaboration with family members,teachers, and/or other caregivers.

Observations and language samples in the homeenvironment can be quite helpful in providing infor-mation about the family culture and how the indi-vidual with ASD is communicating within the fam-ily unit. Also, observations on the playground, dur-ing story time, and during group learning in theclassroom will provide information regarding theindividual’s ability to reference his/her peers whennecessary, problem solving skills, flexibility with lan-guage, and understanding of the subtleties of lan-guage. Observations can be done in-person orthrough video; either way, observations should bemade over several different days and during differentactivities to obtain a true sample of the individual’scommunication skills across contexts.

Standardized Speech-Language Assessment Measures

Speech ProductionApproximately one-third to one-half of individ-

uals with ASD present with significant difficultiesproducing a variety of consonant sounds and usingmore complex syllable structures, such as those inmultisyllabic words. The nature of these difficulties

is not well documented in the literature; however,underlying difficulties may include challenges withoromotor planning and/or delays in phonologicaldevelopment (American Speech-Language-HearingAssociation, 2006; Bryson, 1997; Lord & Paul,1997; National Research Council, 2001). Also,limb apraxias, oral apraxia, and apraxia of speechhave been frequently reported for children with ASD(Boyar et al., 2001; Page & Boucher, 1998; Rogers,Bennetto, McEvoy, & Pennington, 1996; Seal &Bonvillian, 1997). Therefore, a comprehensiveassessment should include a complete oral-facialexamination and an assessment of articulation/phonological processes and/or an assessment ofspeech praxis; collaboration with an occupationaltherapist can be useful when assessing apraxia andmotor planning deficits.

LanguageThe aforementioned home, school, and play

observations will play a vital role in the assessment ofthe language skills of an individual with ASD; how-ever, standardized language assessments provide anindividual’s level of functioning in comparison tohis/her peers.

The field of communication disorders and sci-ences has generated multiple, highly respected, stan-

Assessments commonly used in a speech-language evaluation for a child with ASD

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dardized language tests that evaluate syntactic,semantic, and metalinguistic skills; however, thetools to assess pragmatics are seriously insufficient.In fact, using a standardized measurement of prag-matic language without careful observation of theindividual in his/her natural setting could lead to agross misrepresentation of social skill level. Forexample, many individuals with high functioningautism can look at a photograph or an illustrationand describe what should be done in a given situa-tion, but would not demonstrate the ability toappropriately use those same skills in the real-worldexperience. Therefore, it is critical to recognize thelimitations that standardized pragmatic tests mayhave for individuals with ASD and insist that theynot be used in isolation, but to complement theresults of other language measures and informalfindings.

When considering the results of language andsocial communication testing, collaboration withmedical, mental health, and behavioral professionalsis critical in assessing the possible effects that atten-tion, behavioral, and psychological symptoms mayhave on the findings.

Discussion

As a speech-language pathologist in private prac-tice, I have relatively easy access to a variety of nat-ural settings. I greatly appreciate the educationaland professional teams that welcome a collaborativeapproach. Individuals with ASD require intensiveintervention across disciplines, and it is our job, asprofessionals in the field of autism, to work as a teamto provide differential diagnosis that will lead to anindividualized program that improves the individ-ual’s quality of life across school, home, and commu-nity settings.

For further information please contact:

Rachael Gray, M.S., CCC-SLPLicensed Speech-Language PathologistE-mail: [email protected]

References • American Speech-Language-Hearing Association. (2005b).

Roles and responsibilities of speech-language pathologists serving persons with mental retardation/developmental

disabilities [Guidelines]. Available from http://www.asha.org/policy.

• American Speech-Language-Hearing Association. (2006a).Guidelines for speech-language pathologists in diagnosis, assess-ment, and treatment of Autism Spectrum Disorders across thelife span. Available from http://www. asha.org/policy.

• American Speech-Language-Hearing Association. (2006).Principles for Speech-Language Pathologists in Diagnosis,Assessment, and Treatment of Autism Spectrum DisordersAcross the Life Span [Technical Report]. Available fromwww.asha.org/policy.

• American Speech-Language-Hearing Association. (2006c).Roles and responsibilities of speech-language pathologists indiagnosis, assessment, and treatment of Autism SpectrumDisorders across the life span: Position statement. Availablefrom http://www.asha.org/policy.

• Boyar, F. Z., Whitney, M. M., Lossie, A. C., Gray, B. A.,Keller, K., & Stalker, H. J., et al. (2001). A family with agrand-maternally derived interstitial duplication of proxi-mal 15q. Clinical Genetics, 60, 421-430.

• Bryson, S. (1997). Epidemiology of autism: Overview andissues outstanding. In D. Cohen & F. R. Volkmar (Eds.),Handbook of autism and pervasive developmental disorders(2nd ed., pp. 41–46). New York: Wiley.

• Domingue, B., Cutler, B., & McTarnaghan, J. (2000). Theexperience of autism in the lives of families. In A. Wetherby& B. Prizant (Eds.), Autism Spectrum Disorders: A transac-tional developmental perspective (pp. 369–393). Baltimore:Brookes.

• Filipek, P., Accardo, P., Baranek, G., Cook, E., Dawson, G.,Gordon, B., et al. (1999). The screening and diagnosis ofautistic spectrum disorders. Journal of Autism andDevelopmental Disorders, 29, 439–484.

• Lord, C., & Paul, R. (1997). Language and communica-tion in autism. In D. J. Cohen & F. R. Volkmar (Eds.),Handbook of autism and pervasive developmental disorders(2nd ed., pp. 195–225). New York: Wiley.

• Lord, C., & Corsello, C. (2005). Diagnostic instruments inautistic spectrum disorders. In F. Volkmar, R. Paul, A. Klin,& D. Cohen (Eds.), Handbook of autism and pervasivedevelopmental disorders: Vol. 2: Assessment, interventions, andpolicy (pp. 730–771). Hoboken, NJ: Wiley.

• National Research Council. (2001). Educating childrenwith autism. Washington, DC: National Academy Press.

• Page, J., & Boucher, J. (1998). Motor impairments in chil-dren with autistic disorder. Child Language Teaching andTherapy, 14, 233-259.

• Rogers, S. J., Bennetto, L., McEvoy, R., & Pennington, B.F. (1996). Imitation and pantomime in high functioningadolescents with Autism Spectrum Disorders. ChildDevelopment, 67, 2060-2073.

• Seal, B. C., & Bonvillian, J. D. (1997). Sign language andmotor functioning in students with autistic disorder.Journal of Autism and Developmental Disorders, 27, 437-466.

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Assessing Symbol Levels for Core Visual SupportsBy Barbara Bloomfield

An often-cited best practice in the education ofstudents with Autism Spectrum Disorders (ASD)involves the use of visual supports across the schoolday. Engineering of the classroom space, the dailyvisual schedule, a myriad of routine-specific embed-ded schedules and task organizers, and scriptedcommunication aids are but a few of the visualteaching supports that classrooms sometimes makeavailable to students with ASD. These, as well asseveral other categories of visual instructional aides,are often referred to as “core” supports.

Unlike the variations in thematic materials dur-ing the school year, the types of core supports avail-able to the student are presumed to remain relative-ly constant. Integral to each of these supports isvisual language, i.e., symbols used to clarify specificinformation for the student. For example, the dailyvisual schedule for a particular student offers infor-mation in picture symbol form regarding the num-ber and sequence of upcoming classes. Over thecourse of the year the schedules can change in type,

size and number of displayed symbols. Ideally thechange would be very gradual and carefully matchedto the increasing skills of the student.

How does a student’s educational team deter-mine the optimal level of visual language that willbe featured on core supports? Is there a “rule” orwidely accepted decision making standard thatteachers and therapists can turn to as they constructan information system for the student? Most edu-

cators would probably agree that a student shouldonly be exposed to abstract symbol systems, e.g.,printed words, if these have previously been paired

and systematically introducedby fading in symbols contain-ing a large printed word withincreasingly smaller pictures.

Do educators planningcore supports sometimesconfuse literacy skills andfunctional communicationabilities? What is the prima-ry goal, for example, of thedaily visual schedule? If wewere to conclude that it is toassist the student in gettingfrom one routine or event tothe next independently, itsoon becomes apparent thatthe visual language selectedshould be so salient or under-standable to the student thathe can easily and almost auto-

EXAMPLES OF CORE VISUAL SUPPORTS• Engineered classroom space• Daily visual schedule• Mini schedules• Task organizers• Communication aids

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matically reference it as he moves through the schoolday. The symbol level chosen may or may not be themost sophisticated visual language we could offer thestudent. From the student’s perspective, however, itshould be the most meaningful.

When evaluating visual language levels to beused in core supports for students with ASD, it issuggested that educators consider the following:

1. Family input regarding the type of visualinformation most pursued/preferred by thestudent in the home setting. Does he payattention to books at any level? Magazines?Does he show an interest in looking at cata-logs, newspapers, flyers, coupons, etc.? If so,what are his favorites? Do they tend to fea-ture lots of colorful illustrations or are theymostly print?

2. The outcome of “at the table” matching activ-ities to determine the highest level at which astudent is able to connect a target symbol tothe three-dimensional object it represents.The ability to match to a three dimensionalitem is at the heart of successfully using corevisual supports. A student whose daily sched-

ule consists of single line drawings, for exam-ple, must be able to match a picture symbol tothe three dimensional reality of the readingcorner in order to understand that he shouldtransition to reading group. A suggested min-imum standard for successful matches wouldinvolve 12 to 24 objects representing bothhighly preferred and relatively neutral items.

3. Observations involving the fluency, i.e., accu-racy plus speed, of the student’s matchingpatterns. How quickly and easily was he ableto correctly make associations during tableactivities? When presented with multi-taskingchallenges during matching activities, was heable to override competing signals or bids forhis attention well enough to accurately (if notfluently) complete object-symbol matches?

4. Is the student able to generalize matchingaccuracy from table-tasks to a range of set-tings or to a variety of routines? For exam-ple, matching opportunities that were original-ly introduced by a student’s classroom staffcould later be extended to both speech andlanguage therapy and occupational therapy

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sessions away from theclassroom setting.

A student’s ability to accu-rately and fluently perform atask in the face of multi-task-ing demands and across arange of routines and settingsis viewed as skill mastery. It’ssuggested that, if at all possi-ble, the visual language select-ed for a student’s core supportsshould be at a level that has already been mastered by thestudent. He is then freed up to understand and followthrough on the true goal of the visual support, e.g., in theearlier example of a visual schedule, the goal would be tocorrectly transition to the next targeted routine.

Following initial selection of the visual languageto be used in core supports, it’s suggested that anattempt be made to establish an accuracy baseline forsupport use. The staff can then periodically collectdata to determine how quickly a student was able tosuccessfully accomplish a task or routine through useof the support and how well this success is main-tained over time.

Another important decision is when to moveon to a more advanced level of symbol use ininstructional supports? After three months of suc-cessful symbol use? Six months? A year? Some yearsago, Gary Mesibov, Director of Division TEACCH(Treatment and Education of Autistic and relatedCommunication-handicapped CHildren), reportedthat the two most common errors made by educatorswho provide visual schedules for their students withASD are: choosing a visual symbol level that is tooadvanced or that has not been mastered by their stu-dent and, once a schedule level has been mastered,moving that student too quickly to a new and morechallenging level. Inaddition to helping astudent become a com-petent user of visualsupports, he speculat-ed, shouldn’t our goalalso be for the student

to become comfortable and evenconfident in his ability to meetclassroom expectations with thehelp of well-selected, well-plannedvisual supports?

Choosing when to transition astudent to the next level of visuallanguage use for core supportswould ideally be a decision inwhich the entire educational teamhas input based, in part, on data

collected across settings by more than just a singleteam member. Although terms like “comfortable”and “confident” may be meaningful to team mem-bers, they are nonetheless difficult to objectify andscore. The final decision, then, will need to be oneof consideration of objective factors which can bescored, e.g., accuracy and fluency, along with moresubjective recommendations.

For further information, please contact:

Barbara Bloomfield, M.A., CCC-SLPIcon Talk, Goshen, New YorkE-mail: [email protected]

AN IMPORTANTTHOUGHT FROMGARY MESIBOV:

Students should notonly become competentuser of visual supports

but confident users.

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History and Rationale for the TTAP

Planning for the future is a difficult task for mostpeople. For adolescents and adults with autism, thistask is even more difficult for them, their caregivers,educators and support networks as they strive todevelop a comprehensive plan that takes intoaccount the vocational, residential and recreationalopportunities that lead to positive adult outcomes.In an effort to help provide guidance in developingmore effective transition planning for adults withautism, in the mid 1980’s, Division TEACCH(Treatment and Education of Autistic and relatedCommunication-handicapped CHildren) createdthe Adolescent and Adult Psycho EducationalProfile, or AAPEP. The AAPEP was designedaround what the positive adult outcomes and oppor-tunities for adults with autism looked like at thattime. However, over the last 20 years, the opportu-nities for individuals with autism have broadenedand the old AAPEP was not as effective in guidinggood transition planning. Therefore, when rewrit-ing the AAPEP, Division TEACCH used the infor-mation learned from their Supported Employmentand Residential programs. In addition, evidencefrom other successful transition programs as well asinformation based on current research and changingeducation laws, to create a more effective and usefulassessment tool. The TEACCH TransitionAssessment Profile (TTAP) is that tool.

The TTAP was designed with older children andadolescents as the primary focus. However, the toolhas been used by the TEACCH SupportedEmployment Program as a means of providing effec-tive assessment and goal development for adults aswell. Current research and experience has shownthat assessment and transition planning needs tostart at a younger age. The current Individuals withDisabilities Education Act (IDEA) requires that a

transitioning adolescent has aneeds evaluation assessment and a transition plan inplace no later than age 16. IDEA also states that theneeds evaluation assessment should include both for-mal and informal measures. The TEACCHTransition Assessment Profile was designed to meetthose requirements and to give educators a means ofcomplying with federal law. In an effort to do this,the TTAP includes the following features.

1. It is an assessment designed for individualswith Autism Spectrum Disorders. Currentlythere are few assessment tools designed forindividuals with ASD at all levels of cognitiveability and adaptive functioning.

2. The TTAP assesses the six core functioningareas for individuals with autism that are mostimportant for developing positive adult out-comes. These six areas are: vocational skills,vocational behaviors, independent function-ing, leisure skills, functional communicationand interpersonal behavior. In addition, theTTAP provides a systematic way of identifyinglong-range goals in each of these critical areas.

3. The TTAP looks at performance of these skillsareas across multiple environments. By gath-ering information from multiple environ-ments, such as home, school, work and directobservation, the TTAP helps identify weak-nesses and strengths in each area that areimportant for future goal development.

4. The TTAP uses a unique scoring system thatemploys a Pass, Emerge and Fail scale to iden-tify and document a student’s present level ofperformance.

5. The TTAP uses a variety of visual supports inan effort to help educators identify those sup-ports that are most effective for individuals

The TEACCH Transition Assessment Profile: Assessing Individuals with Autism Spectrum Disorders with an Eye to SuccessBy S. Michael Chapman

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with ASD. Current research shows the individ-uals with ASD need physical and visual struc-tures to assist with skill development retention,while IDEA requires that an effective assess-ment tool should identify life skills and theaccommodations required by the student toachieve the greatest level of independence inachieving and maintaining that skill. TheTTAP assists with all of this.

The Formal Section

The TTAP has a formal section that is comprisedof three different scales: two Interview scales and aDirect Observation scale. The Direct Observationscale provides a structured set of test items that areadministered in a controlled and systematic manner,similar to most other intellectual and skills assess-ment. It consists of 72 total test items with 12 testitems in each of the six domains: vocational skills,vocational behaviors, independent functioning,leisure skills, functional communication and inter-personal behaviors. Now let’s look at what each ofthese areas encompasses and review sample itemsfrom the test.

Vocational Skills looks at specific technicalskills. During the Direct Observation we look atsuch tasks as sorting, counting and measuring. InFigure 1, we are looking at packaging and assem-bling of items in a travel kit. The student must lookat the picture and create a package just like the pic-ture. Note that there is an item presented that is notin the picture. The student must recognize this and

be able to assemble the items correctly. If the stu-dent cannot, we can present a different set of visualinstructions to see if this clarifies the task (Figure 2).

Vocational Behaviors looks at relevant workrelated behavioral skills, such as stamina, the abilityto stay on task and the ability to work without super-vision. In Figure 3, we see a set of items that looksat several different vocational behaviors. During thisportion of the test, we observe productivity, organi-zation and speed, as well as how an individual workswithout supervision or when a distraction is present,like a phone or radio.

Independent Functioning covers the areas ofself-help and self-guidance. Some of the items inthis section include the use of money, eating habitsand the ability to follow a schedule. In Figure 4, weassess if an individual can recognize money andmake simple monetary calculations (Figure 5). We

Figure 1: Vocational Skills: Direct Observation Item 7, TravelKit Assembly

Figure 2: Vocational Skills: Direct Observation Item 7 TravelKit Assembly with different visual supports

Figure 3: Vocational Behavior: Direct Observation Items 13-18, Assembly line, Distracted by noises, Works continuously,Without supervision

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ask for the amount verbally and if the person hasdifficulty, we use visual cards that request the sameamount.

In Leisure skills, we look to see what activitiesthe individual uses for socially acceptable and plea-surable activities. In this section weexplore the abil-ity to sustain interest in an activity, stop that activi-

ty at a prescribed time and to play solitary and coop-erative games. In Figure 6 we look at the person’sability to play darts, take turns and record the score.

Functional Communication items assess theminimum communication abilities necessary forinteractions in vocational and residential settings.Some of the skills reviewed in this area include theability to communicate basic needs and to compre-hend verbal and visual instructions or directions. InFigure 7, we examine the individual’s ability to readand follow simple written instructions. Each card ispresented to the individual one at a time in order tosee if he understands and will follow the direction.

Interpersonal Skills relate to the social skillsand abilities of the individuals with autism. Many

Figure 4: Independent Functioning: Direct Observation Item26, Recognizes money

Figure 5: Independent Functioning: Direct Observation Item27, Calculates monetary amounts

Figure 6: Leisure Skills: Direct Observation Items 39, Playsdarts and Item 40, Records score

Figure 7: Functional Communication: Direct ObservationItem 58, Follows written instructions

Figure 8: Interpersonal Skills: Direct Observation Item 71,Engages in conversation

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of the items in this section are directly related to theinteractions between the examiner and the individ-ual. Examples of items include appropriate initialgreeting, smiling appropriately, responding to theexaminer throughout the test and positive personalinteractions between the examiner and the individ-ual. In Figure 8, we use visual cards to assess theindividual’s ability to carry on a social conversation.In Figure 9, we assess whether they can understandand use visual rules for appropriate social interac-tions during the testing period.

In addition to the Direct Observation scale,there are two interview scales: the Home scale andthe School/Work scale. These two interview scalesare administered in an effort to gain data on the rel-ative skills present in each of these areas as observedby the person with the most knowledge about theperson with autism. As with the Direct Observationscale, there are 72 items in each of the two interviewscales, with 12 items in each of the six life domains.

The total administration time for the DirectObservation scale is typically one-and-a-half to twohours. However, the TTAP was designed so that

items can be presented in any order and even overmultiple sessions. This makes it easier for teacherswho may find it hard to set aside so much of aninstructional day at one setting. The two interviewscales take about an hour each. When completingthe formal section of the TTAP, the comparison ofinformation across all three environments offerssome of the most powerful data for creating effectivetransition/habilitation plans. By noting areas andenvironments where the data shows insufficientskills, we are better abled to recognize where tointensify our educational focus.

Informal Section of the TTAP

As good and effective as the Formal Section ofthe TTAP is, it only assesses 216 total skills. In adultlife, we may use more than 216 skills even beforebreakfast. When using the original AAPEP in ourSupported Employment Program at DivisionTEACCH, we soon realized this and started to cre-ate a list of other skills that we found were commonin many of the jobs we were locating for individualswith autism. This list, though not exhaustive, is a

compilation of thosecommon transitiongoals and objectivesfrom more than 20years of SupportedEmployment services tomore than 400 adultswith autism in the stateof North Carolina. As aresult, when writing theTTAP, we knew that wehad to include this list

in the manual. This addition to the TTAP is calledthe Informal Section and is the most powerful anduseful part of the TTAP.

Both IDEA and best practice state that we needto use informal assessments in transition planningfor adolescents and adults with Autism SpectrumDisorders. The TTAP is designed to assist the educa-tion system and adult provider agencies with meet-ing this mandate and with documenting the stu-dent’s progress toward achieving the necessary skills

Figure 9: Interpersonal Skills: Direct Observation Item 72Follows visual rules

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that lead to positive adult out-comes. To do this, the TTAPuses three main tools: theCumulative Record of Skills,The Community Site Assess-ment Worksheet and the DailyAccomplishment Chart.

• The Cumulative Recordsof Skills (CRS) is a 49-page reference documentthat is used by the teacheror job coach to determinethe skills needed by thestudent in a communitysetting.

The skills in this docu-ment are those found tobe most commonly usedby individuals with ASDin employment settings.In addition, the CRS isused to document theoverall progress of theindividual and to create aportfolio or résumé forthe individual with ASD.This Cumulative Recordis a history of all the stu-dent has been taught overtheir transition years. Asmall sample of goals canbe seen in Table 1.

• The Community SiteAssessment Worksheet(CSAW) is a tool used tohelp the teacher identifythe specific skills in acommunity site and torecord the student’s levelof performance on thefirst and last days of thetraining period.

• The Daily Accomplish-ment Chart (DAC) is a

Stamina – Note tasks that student completes at a steady, fast pace:

• for 10 minutes,• for 20 minutes,• for 30 minutes,• for 1 hour,• for 1 1/2 hours.

On Task Ability:

• Stays on task with supervisor or coach in close proximity,

• Stays on task with coach across room, • Stays on task with coach in next room.

Sustains Quality of Task:

• Sustains quality of task during short intervals,• Sustains quality of task over one hour, • over 2 hours, • over 3 hours, • over one week, • over six weeks training period.

Response to Interruptions:

• Responds to visual cue to stop one job (activity) and go to another (does not return to old job independently when finished),

• Responds to verbal cue to stop one job and go to another (does not return to old job when finished),

• Responds to visual cue to stop job and go to another (independently returns to old job and finishes),

• Responds to verbal cue to stop one job and go to another (independently returns).

Vocational Behavior SKILLScore: Record Setting and Structure

Table 1: Excerpt from the Vocational Behaviors Section of the Cumulative Record of Skills

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data collection tool to record progress or lackof progress toward goal achievement while at acommunity site. Each day, the teacher or jobcoach will record the student’s level of perfor-mance as a Pass, Emerge or Fail. By examin-ing the data recorded on this tool over severaldays or weeks, the transition or assessmentteam may determine that additional visualsupports are needed or that they need to bemodified to achieve goals that are not at a pass-ing level.

When using the informal section of the TTAPthere are some recommendations that have beenfound to be very important through research andobservation.

1. Research has shown us that informal assess-ments need to take place in natural settings,not just in a classroom. As such, the TTAP rec-ommends that a student have varied communi-ty opportunities during the transition process.This means that a student should have 3-4unique community sites assessed each schoolyear, for a total of between 12 and 26 differentsites by the time the student graduates. Thesesites should be 9-12 weeks in length and theindividual should go to them at least 1-3 timeseach week for an hour or more each time.

2. The informal assessment process allows us tolook at many different types of structures andvisual supports that a person may need inorder to complete an activity. We know peoplewith ASD have difficulty with generalizingskills from one environment to the other.Through informal assessment, we can identifythose visual supports that will assist with thegeneralization of skills across multiple settings.

3. The informal section needs to start early forthose students still in school. Though IDEAstates this review should be conducted by age16, at TEACCH we feel it should be addressedas early as possible in a student’s education.Waiting until the last year is not effective andhas little likelihood for success.

Summary

Performing the proper assessment for individualswith autism is crucial to long-term achievement ofpositive adult outcomes. Current research and educa-tion law states that in order to provide effective tran-sition services for individuals with Autism SpectrumDisorders, we need to use both formal and informalmeasures. In the formal section of the TTAP, educa-tors and job coaches are able to establish a baseline ofwhat the student may or may not know, as well aspossible teaching strategies. To build upon what welearn, the Informal Section of the TTAP helps devel-op a process that fills in the gaps and offers true expe-riential learning opportunities for individuals withautism. The TTAP is designed with these goals inmind and to meet IDEA requirements, thus givingeducators a method of documenting outcomes as wellas giving them some guidance in where to focus theirefforts both in the classroom and in community set-tings. If we are to provide students with autism thegreatest possible chance at success, we need to realizethat the first step is a thorough and comprehensiveassessment of their functional skills. When we fullyunderstand these students’ needs, then, and onlythen, can we help them achieve their dreams.

For more information, please contact:

S. Michael ChapmanDirector of Supported Employment, Division TEACCHE-mail: [email protected]

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The S.U.C.S.E.S.S. Project’s Assessment Focus Academy (AFA)By Andrea Walker

Issues related to assessment of children withAutism Spectrum Disorders (ASD) have had a signif-icant impact on school districts within OrangeCounty and statewide. Educational assessments todetermine eligibility and the unique educationalplanning for children with ASD were of concern tofamilies and staff, often anxiety-producing and apoint of contention. These disputes involved areas ofeligibility, components of a comprehensive assess-ment, interpretation of assessment results, educa-tional planning and/or service recommendationsresulting in negative consequences both fiscally andto the credibility of personnel and program quality.

The availability of research-support recommen-dations and best practices in assessment (“EducatingChildren with Autism” National Research Councilreport, (2001); California Department ofDevelopmental Services’ “Autism SpectrumDisorders: Best Practice Guidelines for Screening,Diagnosis and Assessment,” (2002); and expert prac-titioners in the field) provides a framework for com-prehensive and defensible assessments. Our educa-tional teams need to be highly trained and compe-tent in these areas.

To address this identified need, theS.U.C.S.E.S.S. Project of Orange County conducteda Situational Appraisal within the 13 OrangeCounty Special Education Local Plan Area (SELPA)in January 2003 to clarify concerns and determinepriorities. One of these concerns focused on a “lackof [a] defined and coordinated delivery model across theAutism Spectrum in the areas of training and supervi-sion of staff, identification of student needs and devel-opment of effective educational programs.” The area ofassessment had been identified as a high priority.

Purpose: The purpose of establishing theAssessment Focus Academy (AFA) was to supportselected participants in conducting effective andcomprehensive evaluations for students. These thorough assessments will determine eligibility, iden-tify the impact of the disability on learning and lead

to the development of an Individualized EducationalProgram (IEP).

A committee was formed in summer of 2004.Members included local consultants, OrangeCounty Department of Education staff andS.U.C.S.E.S.S. Project representatives.

The goals were:1. To establish the outcomes for the Assessment

Focus Academy (AFA) series–what is our“vision?”

2. To address the assessment needs across AutismSpectrum Disorders (ASD) and range of devel-opmental levels from Mild to Moderate toSevere, within placements for preschoolthrough secondary education and into adulttransition.

3. To discuss the issues surrounding assessmentand its role in educational planning and pro-gramming, such as:• Defining a comprehensive protocol for use at

the various developmental levels;• Defining the role of the “Best Practices for

Autism Assessment and Diagnosis”Guidelines (Department of DevelopmentalServices);

• Addressing “borderline” students;• Identifying the realities of assessment (i.e.,

overlapping of disciplines, time constraintsand streamlining the process); and

• Developing and defining “teams” (members,team building, reaching consensus/problemsolving).

Assessment Academy: In the Fall of 2004, theAFA offered its first Tier One, Group A, within a fivepart series, designed to address two strands/levels:Preschool/Elementary and Secondary aged studentsacross the spectrum of autism and across levels offunctioning. Topics included: comprehensive anddefensible assessments, profiles of strengths andweaknesses, diagnostic tools, interpretations ofresults, report writing, educational planning and

E D U C AT I O N / T H E R A P Y

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team dynamics. The Assessment Focus Academyutilized local experts in the field of autism. Theteams involved in the training were encouraged todisseminate the information within their local dis-trict/SELPA.

A second tier of mentoring for this first group ofteams was designed for year two. New teams, GroupB, began the first tier in Fall of 2005.

We have just completed a fifth year of AFA (seechart below) with over 650 staff attending Tier 1(about 27 hours of instruction) and Tier 2 (about 12hours of instruction).

Speakers: Lauren Franke,Psy.D., CCC-SLP was instru-mental in the design andimplementation of the AFA.She has been the main facilita-tor and lecturer. Her back-ground as a licensed speech andlanguage pathologist and clini-cal psychologist enabled her toaddress the complexity of con-ducting a comprehensive assessment, emphasizingan interdisciplinary approach. Her expertise inassessing and providing therapy is extensive. Sheintegrated many resources and research-based prac-tices into the AFA. Supplemental speakers wereadded to focus on “specialty” topics such as bilingualassessment, functional behavioral assessments, legalissues and the challenges of assessing students withsignificant deficits. AFA participants were alsoencouraged to attend sessions offered through theS.U.C.S.E.S.S. Project and Regional Center ofOrange County. Often assessment issues, whichlead to the determination of appropriate interven-tion, were addressed within their presentations.

This year, the Orange County Special EducationAlliance generously supported our efforts, allowingthe participants to attend at no cost. These fundscovered speakers’ fees, printing and the cost of somesubstitutes if requested.

Results and future goals: The quality of assess-ments for students with ASD has greatly improvedas reported by parents, administrators and outside

agencies, such as Regional Center and For OC Kids.Staff evaluations from each session were reviewedand used to shape the series throughout the year.Comments reflected an increase in learning andapplication of skills in conducting comprehensiveassessments and reports writing. Team dynamicswere addressed. Opportunities to “problem solve”on tough cases (always honoring confidentialityissues) allow the participants to gain insights fromeach other. Many reported a real appreciation of theaccess to the most current information in the area ofassessment.

In 2009-2010, the AFA will provide Tier 2 hoursfor Group E. In addition, we are designing anAdvanced AFA Support series to provide more indi-vidualized technical assistance. Participants will“take the lead” in discussions and problem solving.Lauren Franke, and others, will be available to “men-tor and coach” as the assessment process leads intodetermination of appropriate interventions and theIEP process.

For further information, please contact:Andrea WalkerS.U.C.S.E.S.S. Project CoordinatorOrange County Department of EducationE-mail: [email protected]

www.autismnewsoc.org

Approximate Preschool/Elementary Secondarynumbers team members team members

2004 – 05 Group A 118 572005 – 06 Group B 77 412006 – 07 Group C 89 562007 – 08 Group D 101 282008 - 09 Group E 76 16Total 461 198

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Summer 2009 Autism News of Orange County – RW 31

Thristan Mendoza, better known as “Tum-Tum”to his family and friends, is a world-class marimbamusician.

Born in Quezon City in 1989, Tum-Tum wasdiagnosed with autism at the age of two and a half.His mother noted unusual behaviors, such as his dis-like of video lights or any form of the shade of red.While Tum-Tum was fascinated with spinningobjects such as electric fans and bicyclewheels, he could not bear the sounds ofelectric drills and food grinders. He wasvery shy and did not like to look at hismirror image. He repeated words overand over and needed a lot of proddingbefore joining other children.

His musical talent was discoveredwhen his school ordered a psychologicaltest, which showed an average Verbal IQwith superior Non-verbal IQ skills,autism and his musical skills.

Tum-Tum started to play three musi-cal instruments all at the same time:drums, cymbals and temple block, and itall started the same year he was diag-nosed with autism. He learned to playmarimba at the age of five. After a few months, hefound himself playing for the Philippine MadrigalSingers, in a concert on the main stage of theTheater of the Cultural Center of the Philippines asa special guest.

By the age of 10, he had performed 120 showswith musicians around the world.

Because of his excellent and world-class marim-ba skills, Tum-Tum has garnered many awards in thePhillipines and abroad. In March 2001, he receivedthe Rosemary Kennedy International Young SoloistAward from the Very Special Arts. He was also invit-ed to perform at the John F. Kennedy Center for the

Performing Arts in Washington, D.C.

A year before, the Walt Disney Company,McDonald’s Corporation and United NationsEducational, Scientific and Cultural Organizationpresented him the Millennium Dreamer’s Award.This award is to honor children worldwide who con-tribut to their community by being an inspiration toyouth.

He became the youngest person to be featured asa gifted child by the University of the Philippines.Tum-Tum is also the only 2-time grand prize awardee

Thristan Mendoza’s Success as a World-Class Marimba Musician

PA R E N T / FA M I L Y

Awards for an outstanding musician

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a comment from our readers...

32 Autism News of Orange County – RW Summer 2009

PA R E N T / FA M I L Y

of McDonald’s Philippines Makabata Award.

Through the years, Tum-Tum managed toimprove his musical skills, which continue to grow.

He is looking forward to the release of his firstalbum soon with proceeds going to Autism SocietyPhilippines’ educational fund, which benefits fami-lies who cannot afford education and therapies fortheir children with autism.

Tum-Tum’s musical talents have helped in rais-ing the autism awareness in the Philippines andabroad. They have helped in the mission of AutismSociety Philippines and other PWD sectors.

He has been described by news articles as “hav-ing been born with a pair of sticks in his hands."

His recent concert will convince audiencesthat autism and incredible talents often go handin hand: http://www.youtube.com/watch?v=tWGinEGg7sk

Adapted from an original article by:

Raphael D. Torralba E-mail: [email protected]: www.withnews.com, May 31, 2009

Let’s do this togetherBy Sawanizah Mohd. Said

Jack (on the left) is a 6-year-old boy diag-nosed with mild autism who has a younger sister,Jill (4 years old) who is diagnosed with severeautism. He has learned to care and “protect” hissister as their parents have inculcated a “bigbrother role” for him, which he performs verywell. He even started to be a “big brother” toother younger children at the Autism Center forChildren. EJ, a 5-year-old boy diagnosed withmoderate autism, is one of the younger friendsJack is looking out for. We observed that EJ, whois normally reserved and passive, would try newor challenging activities when Jack is with him.In this photo, Jack leads EJ into the water play-ground. Facing challenges is easier when youhave a friend at your side.

For further information, please contact:

Sawanizah Mohd. SaidHead of the Early Intervention ProgramAutism Association SingaporeE-mail: [email protected]

“ANOC is a great publication. I only wish it could be distributed more widely. I often send links to my

students and to other researchers.”

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PA R E N T / FA M I L Y

Now ... if you will allow me the honor, let me saya few things about living with autism from 2004 to thepresent day.

I am a preschool educator. I am not stupid. I couldsee that Zane was different since he was a little morethan one. We were all rejoicing far too early when weheard him utter his first word, “papa,” in the car whenhe was 8 months old. I wondered why Zane didn’t saymore words after that, you know, even the very basicwords like “mum mum,” “ball,” “go,” and “bye.” Henever waved anyone goodbye. He never blew kisses likeall toddlers do. He never did the usual things that boyshis age did.

One thing we remember vividly is that Zane was avery difficult baby and toddler. Bringing him placeswas very challenging. I didn’t dare venture alone withtwo children then. Once, we attended a dear friend’sdaughter’s first birthday. Zane was very overwhelmedand had sensory overload (of which I was not aware). Iwanted to cry there and then but I held back my tearsof frustration until late that night after all were asleep.I told myself then, “No more parties for Zane. Nomore other people’s houses for Zane when I am alone.No more ... ....”

I placed him in a playgroup to test my suspicion.Two days was all that I needed to know that my boy isdifferent from his peers.

Zane turned two while we waited for an assess-ment date. It was a really loooooong wait. At morethan three years old, he was finally granted an audiencewith the Authority in this field. Just a few glances athim and a few questions and she deduced that he isautistic and announced that he would be put throughtheir diagnostic testing to confirm it.

I walked out of the clinic that fateful day shocked.“Another round?” was all that was flashing through mymind, back and forth.

I went through what the experts in this field called:

Stage One: When first diagnosed, “disbelief.”

All of a sudden, just the way bubbles burst with-in seconds, my dream and hope that my son wouldtalk and learn with me vanished. My vision that we

could send him to the samepreschool as Zoe also disap-peared.

“I think he is between mod-erately and severely autistic.”

“Autism has no cure.”

“You may want to considerputting him in a special school.”

These statements from theAuthority pierced and broke the person in me. All of asudden I felt inadequate and lost, despite my years oftraining in childhood education. Friends who knowme know that I am a very self-assured and confidentwoman. But all that was gone the moment I steppedout of those cold doors. I knew that I would become adifferent person from that day forth. And so I did.

I went into the next stage.

Stage Two: The “hope” emerged as thePediatrician said OT, ST, ABA, etc. will help whenstarted at a young age. At this stage, there are alsosigns of non-acceptance.

“How can my son be in an autism centre for thenext 2-6 years?” “Why can’t he attend the samepreschool as his sister?”

I searched for a childcare center that offered inte-grated programs right from the start. No need to trythe mainstream Kindergartens, Zane would surely beshown the exit door within the first 3 hours.

The childcare Zane attended has the integratedprogram but alas, not all the teachers there are trainedto handle special needs children. If Zane’s teacherswere willing to take the time and effort to understandhim and work around him, that was already half thebattle won. If the same teachers observed how the ther-apists I hired managed him and helped him throughthe classroom routines by modeling or modifying?That was really HUGE, HUGE blessings droppedfrom heaven into our laps. Zane had both!!

He always had very loving teachers in his more thantwo year stay at the centre. Thank you, dear teachers, ifyou are reading this article now. You don’t know how

The ever-changing life with my son, Zane

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34 Autism News of Orange County – RW Summer 2009

PA R E N T / FA M I L Y

much your help, dedication and willingness to embraceZane helped me to survive the darkest days of parenting.When Zane was with you, I had peace of mind know-ing that he would be well taken care of. Even on baddays, I knew you ladies would go the extra mile withhim. I know my boy made you cry and made you smileat the same time. I know my boy has left very deep foot-prints in your teaching career. I know he will be one stu-dent you will never forget because of the fights he hadwith you on the floor. Thank you ... with tears ... .

We engaged a private therapist to come to Zane’sschool to do sessions with him. His school converted aspace into a therapy room with a one-way mirror. Thatway any teacher who wanted to observe the sessionswithout distracting Zane could view the sessionsthrough the glass. I am very grateful to the centre’s

supervisor, who pushed for this idea and had it created.

Subsequently more and more of the ASD childrenin the centre benefited from this concept. Eventually,the school ventured into providing these in-house ther-apy sessions. Zane was enrolled among its first batch ofstudents. The program was proven effective, as thetherapist was skilful and confident. Zane’s teacherswho were willing to learn from the therapist, eventual-ly managed to take Zane’s behavior in stride. This iswhat we call generalization and inclusion. My son wasvery blessed. He always had great, dedicated teachers.

Concurrently with his childcare’s in-house IEPprogram, Zane also attended the Autism Children’sCentre’s (ACC) twice weekly Early Intervention pro-gram. At times he would have two sessions a day. Poorboy, by 3 p.m. he was super tired.

Zane’s two years with ACC was also beneficial forhim. He was matched to the right therapist at the rightstage of his development and needs. ACC has only 2male therapists in their whole organization and Zanewas very blessed to have them both! I am very indebt-ed to these teachers. I felt bad that Zane struggled sohard with them, knocking them over at times andsometimes physically hurting them with his abruptactions and tantrums. I’m sorry, teachers, that you hadto put up with this aspect of my son’s behavior weekafter week.

I was especially touched when the Program Headmentioned to me that after Zane’s graduation ceremo-ny on the last day of March, she had to time herself inher office (on the pretext that she had to return somecalls and before lunch.) to have a hearty cry. That shehad seen that four-year-old boy grow to the six-year-old boy she just sent out of her centre filled her kindsoul with many tears, joy and comfort. Thank you, N.!My family is another you have touched through yourpassion and love for our special children. I wish you allthe best in all that your hands set to do, be it for your-self or for others. God bless you always.

This is getting too heavy for me. I need to stophere and rest my heart. I will continue ... no promisesthough.

Zane’s Mum, Singapore

Adapted with kind permission from blog at: jjzzj.wordpress.com.

We are grateful for the sponsorship of this newsletter by the

following organizations:

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Summer 2009 Autism News of Orange County – RW 35

Thank You For Your Support!

The following dona-tions for ANOC haverecently been receivedthrough the AutismSupport Fund.

We very muchappreciate all the support!

Supporter ($1,000-$2,999)

Christina McReynolds

REACT Foundation

Contributor ($500-$999)

Vera Bernard-Opitz

Friend ($25-$499)

Janis White

David Monkarsh

Michael & Suzanne Pugsley

Joseph DeCarlo, JD Property Management

Anonymous

Stuart Krassner

Geeta Grover

Dr. William H. Murphey, III

Wiltrud & Gottfried Luderer

S.H. Annabel Chen

Your support is urgently needed to helpANOC continue. Please consider a donationtoday through www.autismnewsoc.org today.

Thank you!

Recreation Resource Guide:RCOC and Comfort Connection

Family Resource Center

Not Just for Summer FunHere in Orange County, there is no shortage of

fun things to do. There are many social and recre-ational opportunities for children and adults withautism. The Regional Center of Orange Countyand Comfort Connection Family Resource Centerhave developed a FREE Recreation ResourceGuide, which lists many activities including sports,arts and camping. There is also a section withadditional opportunities outside of OrangeCounty. You can obtain a copy of this guide by vis-iting the Family Support link at www.rcocdd.comor by calling Comfort Connection FamilyResource Center at (714) 558-5400.

The Grandparent Autism Network’sweb site, www.ganinfo.org,

has posted new videos, including“Today’s Autism Research:

Tomorrow’s Promising Outcomes.” This video was recorded at the third annual Autism Research

Conference, presented on January 31, 2009. Visit the GAN website for more details.

N E W S / H I G H L I G H T S

COMFORT CONNECTION FAMILY RESOURCE CENTER

U S E F U L L I N K S

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“ANOC provides a critical conduit forinformation regarding intervention and

support services for individuals with autism spectrum disorders.”

“I look forward to getting my ANOC – it is the only newsletter I actually read and it is the best out there. It is sent to

professionals all across the world. It would be a great loss if it is no longer funded.”

“It is a valuable resource for families andprofessionals in the field of autism.”

“Love it, clients in the waiting room love it andwe keep old issues out for their review.”

“Outstanding, well researched, informative and helpful to families.”

“I always find [ANOC] interesting to read - itgives a useful update on practical research

conducted in the U.S. and beyond.”

“ANOC is an extremely well edited, informativejournal. It deals with important issues not easily

found in other journals. It is a very valuableresource for new and sometimes different ideas,

in typically very thoughtful and thoughtprovoking articles.”

“ANOC provides excellent practical advice forteachers and parents on ways to foster the

development of children with ASD. It is aninvaluable publication that successfully bridgesthe all too formidable gap between academic

research and everyday practice.”

“I have used ANOC with both staff and parents as a resource.”

“An excellent contribution to the field.”

“The articles published are of high quality,relevant to practitioners, as they provide

practical teaching ideas as well as the latestresearch developments and application

of effective interventions.”

“Thank you for this publication. It’s been a help to me as a new parent on this journey.

Also I was not aware of the website. I am very excited to check it out.”

“ANOC is a wonderful resource for patients,families, and service providers. It is not only

educational, but a great way to link into other support systems and programs.”

“ANOC is a wonderful service to families andprofessionals in the area and beyond.”

WE NEEDYOUR SUPPORT

To continue our newsletter, we need your support. Please donate now at

http://autismnewsoc.org/donation.php

36 Autism News of Orange County – RW Summer 2009

N E W S / H I G H L I G H T S

a few kind comments from our readers...

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N E W S / H I G H L I G H T S

Summer 2009 Autism News of Orange County – RW 37

Developmental Approximate Date/Time/Place Topic/Speaker Level Fee Contact

Locations: OCDE = Orange County Department of Education – 200 Kalmus Drive, Costa Mesa, CA 92628

RCOC = Regional Center of Orange County – 801 Civic Center Drive West, Santa Ana, CA 92702

Sept. 17, 20098:30 AM – 3:30 PMOCDE

“Social Thinking – ILAUGH Model” (Day 1/3)Michelle Garcia Winner

DevelopmentalAges 8+

$65 S.U.C.S.E.S.S. Project(714) 966-4198

Sept. 25, 20098:30 AM – 3:30 PMOCDE

Use of Narratives forLanguage & SocialDevelopmentLauren Franke, Ph.D.

All Ages $65 S.U.C.S.E.S.S. Project(714) 966-4198

Nov. 17, 20094:00 PM – 8:00 PMRCOC

“Bullying: How does a parent respond?”Diane Twachtman-Cullen

All Ages $30 RCOCKaren Schaeffer(714) 796-5330

Oct. 12, 20098:30 AM – 3:30 PMOCDE

Icon to I Can–Using Visual Supportersand StrategiesBarbara Bloomfield

Early- to middle-age developmentallevels

$65 S.U.C.S.E.S.S. Project(714) 966-4198

Nov. 6, 20098:30 AM – 3:30 PMOCDE

The Role andResponsibilities of theSpecial EducationParaeducatorKent Gerlach

All Ages $65 S.U.C.S.E.S.S. Project(714) 966-4198

Sept. 18, 20098:30 AM – 3:30 PMOCDE

OVERVIEW “SocialThinking & CurriculumImplementation” (Day 5)Michelle Garcia Winner

DevelopmentalAges 8+

$65 S.U.C.S.E.S.S. Project(714) 966-4198

Feb. 24, 20108:30 AM – 3:30 PMLocation TBA

“Social Thinking – ILAUGH Model – Lookinginto the mind of ASD”(Day 6)Michelle Garcia Winner

DevelopmentalAges 8+

$65 S.U.C.S.E.S.S. Project(714) 966-4198

Feb. 25, 20108:30 AM – 3:30 PMLocation TBA

OVERVIEW “SocialThinking & OrganizationalSkills – Teaching beyondthe THINK social curricu-lum” (Day 7)Michelle Garcia Winner

DevelopmentalAges 8+

$65 S.U.C.S.E.S.S. Project(714) 966-4198

May 4, 20108:30 AM – 3:30 PMOCDE

Transition Issues–Adolescence intoAdulthoodPeter Gerhardt, Ed.D.

Middle elemen-tary- to secondary-aged students

$65 S.U.C.S.E.S.S. Project(714) 966-4198

Upcoming Staff Development, Conferences and Parent TrainingsPLEASE NOTE: This is a partial listing as of June 4, 2009 and subject to change. More details will be posted on our website after

August 2009. For more current updated information, visit us online at http://sped.ocde.us/cses/Autism/cc_ap/sd/cbs.htm.

Throughout the school year, there are several opportunities for continuing education and support that will be offered by variousorganizations, however during these summer months, the offerings are more limited.

The Regional Center of Orange County (RCOC) and the S.U.C.S.E.S.S. Project of Orange County strives to provideaffordable fees to both families and staff. Each session has a specific focus, some pertaining to early interventions, some with more ofan emphasis on the older aged student. Registrations for those outside of Orange County may be limited, therefore call early!

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Avoids eye contactEvita el contacto visual

Lacks creative “pretend” playCarece el juego creativo

Shows indifferenceDemuestra indiferéncia

Copies words like a parrot (“echolalic”)Repíte las palabras como un loro(“en forma de echo”)

Shows preoccupation with onlyone topicDemuestra preocupación/interésen solo un tema/asunto

Does not like variety: it’s not thespice of lifeNo demuestra interés en variedad

Shows fear of, or fascination withcertain soundsDemuestra miedo de/ó fascinación con ciertos sonidosLaughs or giggles inappropriately

Risa/reír inadecuadamente

Displays special abilities in music,art, memory, or manual dexterity Demuestra capacidades especialesen musica, arte, memoria ordestreza manual

Shows fascination with spinningobjectsDemuestra fascinación con objetosque gíran

Does not play with other childrenNo juega con otros niños

Some Examples of Autistic BehaviorAlgunos ejemplos del comportamiento de personas con autismo

• Difficulty with social interactions.Tienen dificultad para socializar con otras personas.

• Problems with speech. Tienen problemas con su lenguaje.

• Disturbed perception.Tienen una percepción anormal de los sucesos que acontecen a su alrededor.

• Abnormal play.Su forma de jugar es anormal.

• Resistance to change in routine or environment.Se resisten a cambios en sus actividad rutinarias ó a su medio ambiente.

SOME EXAMPLES OF AUTISTIC BEHAVIORALGUNOS EJEMPLOS DEL COMPORTAMIENTO DE PERSONAS CON AUTISMO

Shows one-sided interactionDemuestra interacción que es unilateral