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Symposium-US and Taiwansteogenesis mperfecta
May 21st - 22nd, 2011
Shangri-La's Far Eastern Plaza Hotel, Taipei
Venue
Date
2011 5 21 -5 22
Program Program BookBookProgram Book
Symposium-US and Taiwansteogenesis mperfecta
Date /
08:00 -- 08:30 08:00 -- 08:30
08:30 -- 09:00 08:30 -- 09:00
16:00 -- 16:30
(30 min / )16:00 -- 16:30
ModeratorDeputy Director, Taiwan for Rare Disorders, Taiwan
/
Professor of Orthopedic Surgery, Rush Univ., Chicago, USA
Professor, Dept. of Orthopedics surgeon, Nat'l Taiwan Univ. Hospital, Taiwan
/
/
2011/05/21 Saturday 2011/05/22 Sunday
Dept. of Pediatrics, Mackay Memorial Hospital,
Taiwan
Moderator
Kuan-Ju Chen / Ken N Kuo /
09:00 -- 09:10
(10 min / )
Opening RemarksOI Medical
OI Program Director, Kennedy Krieger Inst., Johns
Hopkins, USA
Professor, Dept. of Physical Medicine and
Johns Hopkins Univ., USA
Discussions /
Discussions /
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OI Program Director, Kennedy Krieger Inst., Johns
Hopkins, USA
Professor, Dept. of Physical Medicine and
Johns Hopkins Univ., USA
09:00 -- 09:15
(15 min / )
09:10 -- 09:50
(40 min / )
OI means Opportunity Ignited
Dr. James G Gamble
Osteogenesis Imperfecta: An Orthopaedic
Dr. James G Gamble
09:15 -- 09:45
(30 min / )
Professor, Dept. of Orthopaedics Surgery, School of
Medicine, Stanford Univ., USA
Lucile Packard Children’s Hospital, Stanford, Palo
Alto, USA
( )
Professor, Dept. of Orthopaedics Surgery, School of
Medicine, Stanford Univ., USA
Lucile Packard Children’s Hospital, Stanford, Palo
Alto, USA
Break /
09:45 -- 09:55
(10 min / )09:50 -- 10:00
(10 min / )Discussions /
Wellness Concerns for the OI Child and Adult
Dr. Jay R. Shapiro
09:55 -- 10:25
(30 min / )
10:00 -- 10:40
(40 min / )
Osteogenesis Imperfecta:
Current Research and Treatment
Dr. Jay R. Shapiro
11:20 -- 11:30
(10 min / )
10:25 -- 10:35
(10 min / )
Break /10:35 -- 10:45
(10 min / )10:40 -- 10:50
(10 min / )Discussions /
Clinical and Overview of Osteogenesis
Imperfecta (OI) – Taiwan Experience
Dr. Shuan-Pei Lin
10:45 -- 11:00
(15 min / )10:50 -- 11:00
(10 min / )
11:35 -- 12:20
(45 min / )
Deputy Director, TFRD, Taiwan
11:00 -- 11:20
(20 min / )
The Osteogenesis Imperfecta (OI) Registry
Dr. Caden Feng-Shu BrennenDiscussions /
11:00 -- 11:10
(10 min / )
OI Registry Manager, Bone and Osteogenesis
Imperfecta Dept., Kennedy Krieger Inst., Johns
Hopkins, USA
OI Scoliosis Treatments – Taiwan Experience Dr. Kuan-Wen Wu
11:30 -- 11:55
(25 min / )
Impact of Rare Disease and
Orphan Drug Act for OI
Ms. Kuan-Ju Chen
Panel Discussions
US and Taiwan OI Medical
Discussions / Dept. of Orthopedics surgery, Nat'l Taiwan Univ.
Hospital, TaiwanDiscussions /
11:25 -- 11:35
(10 min / )
11:10 -- 11:25
(15 min / )
11:55 -- 12:20
(25 min / )
Taiwan OI Overview
Mr. Jian Chi Chen
Former Secretary General, TOIA, Taiwan
Closing Remarks
B1 Level, North Gate, Far Eastern Plaza Hotel, Taipei 12:20 -- 12:35
(15 min / )
12:35 -- 14:00
(85 min / )
Lunch & Members Talent Show
B1 Level, North Gate, Far Eastern Plaza Hotel, Taipei
Lunch
B1 Level, North Gate, Far Eastern Plaza Hotel, Taipei12:35 -- 14:00
(85 min / )
12:20 -- 12:35
(15 min / )
Panel Q & A
14:00 -- 14:10
(10 min / )
Scholarship Awards14:00 -- 14:10
14:10 -- 15:40
(90 min / )
Medical 14:10 -- 15:40
18:30 -- 20:00
(90 min / )
Banquet6F, Shang Place, Far Eastern Plaza Hotel, Taipei
(Private 18:30 -- 20:00
15:40 -- 16:00
(20 min / ) Break / 15:40 -- 16:00
Members Annual
16:30-- 18:30 16:30-- 18:30
Symposium-US and Taiwanteogenesis mperfecta
May 21st - 22nd, 2011
aipei, Taiwan
Symposium Program
Taiwan Osteogenesis Imperfecta (OI) Association
Symposium-US and Taiwaneogenesis mperfecta
Contents
Preliminaries / Welcome Message /
Symposium Committees /
Acknowledgements /
General / General Information for OIS 2011 /
Social Programs /
Travel Information /
Symposium Information /
Program at-a-glance /
Symposium Information /
Moderators & Invited Speakers Daily Programs
Saturday, May 21, 2011
Sunday, May 22, 2011
2011/05/21
2011/05/22
Taiwan Osteogenesis Imperfecta Association /
Contact Information /
Activities /
07
15
23
27
51
71
91
105
127
147
May 21st - 22nd, 2011
Taipei, Taiwan
Prelim aries
Symposium-US and Taiwaneogenesis mperfecta
7
-US and Taiwanesis mperfecta
8 9
-US and Taiwanesis mperfecta
10 11
Managed care contracting/ System transition from UniHealth to Catholic Healthcare West - Projects in educational, operational and service line strategic planning in hospital settings
-US and Taiwanesis mperfecta
12 13
May 21st - 22nd, 2011
Taipei, Taiwan
Ge ral
Symposium-US and Taiwaneogenesis mperfecta
14 15
-US and Taiwanesis mperfecta
16 17
-US and Taiwanesis mperfecta
18 19
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Taipei City Hall Station
Sun Yat-Sen Memorial Hall Station
Zhongxiao Dunhua Station
Nanjing E. Rd. Station
Zhongxiao Fuxing Station
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2
3
4
5
MRT STATION
Daan Station
Liuzhangli
Taipei Main Station
Zhongshan Station
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Chiang Kai-shek
Memorial Hall
-US and Taiwanesis mperfecta
20 21
May 21st - 22nd, 2011
Taipei, Taiwan
posium formatitiooniiooonnnnnn
Symposium-US and Taiwaneogenesis mperfecta
22 23
-US and Taiwanesis mperfecta
24 25
Date
08:00 -- 08:30 08:00 -- 08:30
08:30 -- 09:00 08:30 -- 09:00
16:00 -- 16:30
(30 min)16:00 -- 16:30
Moderator
Kuan-Ju Chen Ken N Kuo
ModeratorDeputy Director, Taiwan for Rare Disorders, Taiwan
2011 Osteogenesis Imperfecta (OI) Symposium -- US and Taiwan
Program at-a-glance
B1 Level, Metro Suite, Far Eastern Plaza Hotel, Taiepi
Saturday, May 21 Sunday, May 22
09:00 -- 09:10
(10 gninepO
)nim Remarks
OI Medical
OI Program Director, Kennedy Krieger Inst., Johns
Hopkins, USA
Professor, Dept. of Physical Medicine and
Johns Hopkins Univ., USA
Discussions
Professor of Orthopedic Surgery, Rush Univ., Chicago, USA
Professor, Dept. of Orthopedics surgeon, Nat'l Taiwan Univ. Hospital, Taiwan
R
e
g
i
s
t
r
a
t
i
o
n
&
R
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c
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p
t
i
o
n
R
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g
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t
r
a
t
i
o
n
&
R
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c
e
p
t
i
o
n
09:00 -- 09:15
(15 min)
09:10 -- 09:50
(40 min)OI means Opportunity Ignited
Dr. James G Gamble
Osteogenesis Imperfecta:
An Orthopaedic
Dr. James G Gamble
09:15 -- 09:45
(30 min)Professor, Dept. of Orthopaedics Surgery, School of
Medicine, Stanford Univ., USA
Lucile Packard Children’s Hospital, Stanford, Palo
Alto, USA
Professor, Dept. of Orthopaedics Surgery, School of
Medicine, Stanford Univ., USA
Lucile Packard Children’s Hospital, Stanford, Palo
Alto, USA
Discussions09:45 -- 09:55
(10 min)09:50 -- 10:00
(10 min)Discussions
Wellness Concerns for the OI Child and Adult
Dr. Jay R. Shapiro
09:55 -- 10:25
(30 min)
10:00 -- 10:40
(40 min)
Osteogenesis Imperfecta:
Current Research and Treatment
Dr. Jay R. Shapiro
OI Program Director, Kennedy Krieger Inst., Johns
Hopkins, USA
Professor, Dept. of Physical Medicine and
Johns Hopkins Univ., USA 10:25 -- 10:35
(10 min)
Break10:35 -- 10:45
(10 min)10:40 -- 10:50
(10 min)Discussions
Clinical and Overview of Osteogenesis
Imperfecta (OI) – Taiwan Experience
Dr. Shuan-Pei Lin 10:45 -- 11:00
(15 min)10:50 -- 11:00
(10 min) Break
11:00 -- 11:10
(10 min)
OI Registry Manager, Bone and Osteogenesis
Imperfecta Dept., Kennedy Krieger Inst., Johns
Hopkins, USA
OI Scoliosis Treatments – Taiwan ExperienceDr. Kuan-Wen Wu 11:10 -- 11:25
(15 min)
Dept. of Pediatrics, Mackay Memorial Hospital,
Taiwan
11:00 -- 11:20
(20 min)The Osteogenesis Imperfecta (OI) Registry
Dr. Caden Feng-Shu snoissucsiDnennerB
11:25 -- 11:35
(10 min)
11:30 -- 11:55
(25 min)
Impact of Rare Disease and
Orphan Drug Act for OI
Ms. Kuan-Ju Chen
Panel Discussions
US and Taiwan OI Medical
11:35 -- 12:20
(45 min)
11:20 -- 11:30
(10 min)Discussions Dept. of Orthopedics surgery, Nat'l Taiwan Univ.
Hospital, TaiwanDiscussions
Deputy Director, TFRD, Taiwan
11:55 -- 12:20
(25 min)Taiwan OI Overview
Mr. Jian Chi Chen
Former Secretary General, TOIA, Taiwan
Closing Remarks
B1 Level, North Gate, Far Eastern Plaza Hotel, Taipei
12:20 -- 12:35
(15 min)
12:35 -- 14:00
(85 min)
Lunch & Members Talent Show
B1 Level, North Gate, Far Eastern Plaza Hotel, Taipei
Lunch
B1 Level, North Gate, Far Eastern Plaza Hotel, Taipei
12:35 -- 14:00
(85 min)
12:20 -- 12:35
(15 min)Panel Q & A
14:00 -- 14:10
(10 min)Scholarship Awards 14:00 -- 14:10
14:10 -- 15:40
(90 min)Medical 14:10 -- 15:40
18:30 -- 20:00
(90 min)
Banquet
6F, Shang Place, Far Eastern Plaza Hotel, Taipei(Private
18:30 -- 20:00
15:40 -- 16:00
(20 min) Break 15:40 -- 16:00
Members Annual
16:30-- 18:30 16:30-- 18:30
08:00 -- 08:30 08:00 -- 08:30
08:30 -- 09:00 08:30 -- 09:00
16:00 -- 16:30
(30 )16:00 -- 16:30
/
2011
B1
5 21 / 5 22 /
09:00 -- 09:10
(10 )
/
/
09:00 -- 09:15
(15 )
09:10 -- 09:50
(40 )
09:15 -- 09:45
(30 )
( )
09:45 -- 09:55
(10 )09:50 -- 10:00
(10 )
09:55 -- 10:25
(30 )
10:00 -- 10:40
(40 )
10:25 -- 10:35
(10 )
10:35 -- 10:45
(10 )10:40 -- 10:50
(10 )10:45 -- 11:00
(15 )10:50 -- 11:00
(10 )
11:00 -- 11:10
(10 )
11:10 -- 11:25
(15 )
11:00 -- 11:20
(20 )
11:25 -- 11:35
(10 )
11:30 -- 11:55
(25 )
11:35 -- 12:20
(45 )
11:20 -- 11:30
(10 )
11:55 -- 12:20
(25 )
12:20 -- 12:35
(15 )
12:35 -- 14:00
(85 )
12:35 -- 14:00
(85 )
12:20 -- 12:35
(15 )
14:00 -- 14:10
(10 )14:00 -- 14:10
14:10 -- 15:40
(90 )14:10 -- 15:40
18:30 -- 20:00
(90 )18:30 -- 20:00
15:40 -- 16:00
(20 )15:40 -- 16:00
16:30-- 18:30 16:30-- 18:30
May 21st - 22nd, 2011
Taipei, Taiwan
Symposium-US and Taiwaneogenesis mperfecta
26 27
Moderators &
Invited Speakers
-US and Taiwanesis mperfecta
28 29
-US and Taiwanesis mperfecta
30 31
-US and Taiwanesis mperfecta
32 33
-US and Taiwanesis mperfecta
34 35
-US and Taiwanesis mperfecta
36 37
-US and Taiwanesis mperfecta
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-US and Taiwanesis mperfecta
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-US and Taiwanesis mperfecta
42 43
-US and Taiwanesis mperfecta
44 45
-US and Taiwanesis mperfecta
46 47
-US and Taiwanesis mperfecta
48 49
May 21st - 22nd, 2011
Taipei, Taiwan
Symposium-US and Taiwaneogenesis mperfecta
May 21, 2011
50 51
-US and Taiwanesis mperfecta
52 53
-US and Taiwanesis mperfecta
54 55
-US and Taiwanesis mperfecta
56 57
-US and Taiwanesis mperfecta
56 57
-US and Taiwanesis mperfecta
60 61
-US and Taiwanesis mperfecta
62 63
-US and Taiwanesis mperfecta
64 65
-US and Taiwanesis mperfecta
66 67
-US and Taiwanesis mperfecta
68 69
May 21st - 22nd, 2011
Taipei, Taiwan
Symposium-US and Taiwaneogenesis mperfecta
May 22, 2011
70 71
-US and Taiwanesis mperfecta
72 73
-US and Taiwanesis mperfecta
74 75
-US and Taiwanesis mperfecta
76 77
-US and Taiwanesis mperfecta
78 79
-US and Taiwanesis mperfecta
80 81
-US and Taiwanesis mperfecta
82 83
-US and Taiwanesis mperfecta
84 85
-US and Taiwanesis mperfecta
86 87
-US and Taiwanesis mperfecta
88 89
May 21st - 22nd, 2011
Taipei, Taiwan
Symposium-US and Taiwaneogenesis mperfecta
90 91
-US and Taiwanesis mperfecta
92 93
-US and Taiwanesis mperfecta
94 95
-US and Taiwanesis mperfecta
96 97
-US and Taiwanesis mperfecta
98 99
-US and Taiwanesis mperfecta
100 101
-US and Taiwanesis mperfecta
102 103
May 21st - 22nd, 2011
Taipei, Taiwan
Symposium-US and Taiwaneogenesis mperfecta
2011 5 21
104 105
-US and Taiwanesis mperfecta
106 107
-US and Taiwanesis mperfecta
108 109
-US and Taiwanesis mperfecta
110 111
-US and Taiwanesis mperfecta
112 113
-US and Taiwanesis mperfecta
114 115
-US and Taiwanesis mperfecta
116 117
-US and Taiwanesis mperfecta
118 119
-US and Taiwanesis mperfecta
120 121
-US and Taiwanesis mperfecta
122 123
-US and Taiwanesis mperfecta
124 125
May 21st - 22nd, 2011
Taipei, Taiwan
Symposium-US and Taiwaneogenesis mperfecta
2011 5 22
126 127
-US and Taiwanesis mperfecta
128 129
-US and Taiwanesis mperfecta
130 131
-US and Taiwanesis mperfecta
132 133
-US and Taiwanesis mperfecta
134 135
-US and Taiwanesis mperfecta
136 137
-US and Taiwanesis mperfecta
138 139
-US and Taiwanesis mperfecta
140 141
-US and Taiwanesis mperfecta
142 143
-US and Taiwanesis mperfecta
144 145
May 21st - 22nd, 2011
Taipei, Taiwan
Symposium-US and Taiwaneogenesis mperfecta
Taiwan Osteogenesis Imperfecta Association
146 147
148
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