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Calouste Gulbenkian Foundation
Taking Care of CarersProject
Dementia: Major public health and social challenge
Affecting 35 million persons worldwide
Forecast: 70 million in 2030 and 115 million in 2050
Europe: 7 million
Increasing demand of dedicated healthcare services
Recognition of the decisive role of informal carers and
residential care services
Taking Care of CarersProject (2009-2013)
Main Objectives:
- Promote specialized answers to
support the informal caregivers of
patients with Alzheimer's dementia;
- Develop integrative social and
health services that are sensitive to
the needs of informal caregivers;
The geographical extension…
“Entre Douro e Vouga” (EDV) Region
5 municipalities: Arouca
Santa Maria da Feira
S. João da Madeira
Oliveira de Azeméis
Vale de Cambra
Urban and rural context
80 Parishes; 861.4 Km2 total area
283.740 inhabitants
Taking Care of CarersProject (2009-2013)
Promoting Institution:
Centro de Assistência Social à Terceira Idade e Infânciade Sanguêdo (CASTIIS)
Promoting Institution:
Centro de Assistência Social à Terceira Idade e Infânciade Sanguêdo (CASTIIS)
Co-promoting Institutions:
Santa Maria da Feira Municipality
Co-promoting Institutions:
Santa Maria da Feira Municipality
Research and Education Unit on Ageing (UNIFAI)Research and Education Unit on Ageing (UNIFAI)
Financing:
Directorate-General of Health
Fundação Calouste Gulbenkian
Financing:
Directorate-General of Health
Fundação Calouste Gulbenkian
Other Partnerships: (25 formal partnerships)
- Municipalities
- Health Center
- EDV Region Hospital
- ONG´s
- Others
Profissionals: 43
- social, health, educational and legal areas
Other Partnerships: (25 formal partnerships)
- Municipalities
- Health Center
- EDV Region Hospital
- ONG´s
- Others
Profissionals: 43
- social, health, educational and legal areas
The Region’s Social and Health situation (diagnosis)
Social: Older individuals as a vulnerable group, lacking specific support in
several areas.
Health: Lack of mental health services for this population and their
caregivers, particularly for dementia and stroke situations
Need of Integrated Community Support
Background
Line 1_ Psychoeducational intervention
Line 2_ Formal caregivers: training and providing a pool of caregivers
Line 3_ Local Volunteering networks: training and providing a pool of
volunteers
Line 4_ Respite Care Services
Line 5_ Discussion
Complementary Line_ Informal Caregivers Profile in EDV Region
Taking Care of CarersProject (2009-2013)
Line 1_ Psychoeducational intervention
Design, scientific validation and publishing psychoeducational program in
AD: “Alzheimer disease manual – Psychoeducational Program
for/to Informal Caregivers” (May 2013)
37 groups
288 informal caregivers
67 care receivers
GAM (mutual support group): 1 x municipality
Taking Care of CarersProject - Results
Taking Care of CarersProject - Results
Line 2_ Formal caregivers: training and providing a pool of
caregivers
42 formal caregivers in training
Providing a pool of caregivers
Line 3_ Local Volunteering networks: training and providing a
pool of volunteers
12 volunteers in training
Providing a pool of caregivers
Support psychoeducational intervention
groups and mutual support groups
Taking Care of CarersProject - Results
Line 4_ Respite Care Services
Diagnostic of Respite Care Services – residential respite care
services: description of services in the EDV Region
Line 5_ Discussion Site, newsletters 97 dissemination and promotion actions
104 seniors
283 professionals
435 students
Taking Care of CarersProject (2009-2013)
Sta. Maria da Feira
This project was based in sustainability and
continuity of the services:
psycheducational groups and mutual support
groups still ongoing in each municipality –
participation of the partners and stakeholders
The success, impact and importance of this
project, both in terms of informal caregivers and
the community, are the result of the commitment
and complementarity actions and resources
from the different partners and stakeholders
involved.
The success, impact and importance of this
project, both in terms of informal caregivers and
the community, are the result of the commitment
and complementarity actions and resources
from the different partners and stakeholders
involved.
Taking Care of CarersProject - Results
Economic Analysis (preliminary results)
Costs of Dementia Care Services: 4000€ - 12.000€ / per year
Reduction of costs based on the decrease of hospital care
demand
10 – 30% positive impact (less 1.500€ - 4.000€)