Upload
others
View
3
Download
0
Embed Size (px)
Citation preview
Tami Goldsmith
Disclosures
I received no compensation, financial or otherwise, for today’s presentation.
Luke “Pooch” Goldsmith Down Syndrome 1983
Celiac Disease 2003
Hypothyroidism 2003
Osteopenia 2007
Seizure Disorder 2010
Sleep Apnea 2013
Osteoporosis 2014
Non-responsive Celiac Disease 2015
Cholesteatoma 2016
Teeth are falling out 2016
My Conversation With Myself
Be Thankful it’s not WORSE
Muster up a POSITIVE attitude
Symptoms to Diagnosis – Didn’t happen OVERNIGHT
Diagnosis to Relative SUCCESS –This won’t happen
overnight
Sit back – take a deep BREATH – look around our home
– and
MAKE OUR PLAN!
. . . is your best lifeline!
Advanced
Preparation. . .
My First Steps 1. CLEAN the kitchen
2. Separate the GLUTEN from the Gluten Free
3. Inventory all HUMANS in our home
4. Make sure EVERYONE has food security
5. Re-stock fridge, freezer, pantry and LABEL
What I’ve Learned From Our Kids
… Home is their SAFE, SOFT, LANDING PLACE
Toddlers to Teenagers
Toddlers We direct EVERY aspect of their lives
Home
Preschool
Daycare
Mealtime
Nighttime
Social time
Medical time
Be UPBEAT AND POSITIVE to minimize the negatives of the gluten-free diet
EARLY READERS Introduce INTERACTIVE approach
Grocery store scavenger hunt with a few FRIENDS
Remember: They are innocent and deeply curious-Perfect time to make a great and positive impression
The good news is—They still really like us! We’re still COOL! Make it really FUN!
COLLABORATE with teachers and other parents
Luke’s Fasano Feast board game, age appropriate for Early Readers
PRE-TEENS Introduce UNIQUE methodologies
Age-appropriate/PARENT-APPROVED GF Apps
Interactive APPS—Pinterest, Snapchat, Others?
Invite FRIENDS into home and COOK TOGETHER
CREATE home environment with TOOLS and PRODUCTS to feed themselves
PRACTICE eating out: Restaurants, Fast-food Joints, Other People’s Homes
Give your child a chance to SHINE
Have Fasano Feast, Will Travel . . .
. . . Life’s a
Beach!
TEENAGERS!
Treat them like young adults
TEACH-LEARN-EMPOWER with good, safe choices
Learn the consequences
Be prepared to NEGOTIATE; NO GLUTEN is only non-negotiable
Invite them to plan menus, food shop, and COOK
PRACTICE, PRACTICE, PRACTICE
Fasano Feast Fan and
Founder of the “Fasano Diet”
Why Is Pooch Smiling?
HUMOR: Your Saving Grace
Things to REMEMBER Note to the Chef: 5 Senses and Theme Nights
Our Doctors and Dieticians provide the SCIENCE We provide the ART
Don’t Settle for Limping Along LAUGH Out Loud
Attitude is EVERYTHING Non-Edible REWARD
Pooch’s Journey Continues . . . With Sam on Board . . .