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Recommendations to improve participation in health promotion program through the NICE Community
Engagement guidance
By Hiba Malek
Professor: Joan J. Paredes i Carbonell
Hiba Malek 1
Hiba Malek 2
MASTER OF PUBLIC HEALTH AND HEALTH MANAGEMENT
UNIVERSITY OF VALENCIA - SPAIN
MASTER THESIS 2014-2015
MASTER DE SALUD PÚBLICA Y GESTIÓN SANITARIA
DE LA UNIVERSITAT DE VALÈNCIA - ESPAÑA
TRABAJO FIN DE MASTER 2014-2015
Recycled paper
Hiba Malek 3
Hiba Malek 4
Acknowledgments
It would not have been possible to write this master thesis without the help and support
of the kind people around me, to only some of whom it is possible to give particular
mention here.
Above all, I would like to thank my principle supervisor, Prof. Joan J. Paredes i Carbonell
whom his help, patience and support helped me to finish this thesis, not to mention his
advice and unsurpassed knowledge and experience in the field of Community health. Also I
have to acknowledge the good support and cooperation of Pilar López Sánchez as the
impact of her participation helped me to move forward in this study.
Many thanks to my family oversees who are the reason of my achievement today. To
my parents with their unconditional love and unlimited support. They guided me through
every step in my life and yet not stopped. To my beloved sisters, for the joy of life and the
unequivocal support throughout.
Special thanks to my husband Nazir for his personal support and his great patience at all
times, thank you from my heart.
At the end, I would like to express my deepest appreciation to the University of Valencia
for giving me the chance to attend this master of Public Health and Health Management.
Also to the professors and my classmates during the master for their support and friendship
over this year. I know now that I have new friends for which I am grateful.
Hiba Malek 5
Hiba Malek 6
Content
ABSTRACT AND KEY WORDS………………………………………………………….………………….……………10
RESUMEN Y PALABRAS CLAVE…………………………………………………………….………………………….11
1. INTRODUCTION……………………………………………………………………………………….………….12
1.1 Health for all…………………………………………………………………………………………..…….12
1.2 Health promotion and its implementation……………………………………………….…..14
1.3 Community engagement in health promotion programs and its importance…16
1.4 NICE guidance…………………………………………………………………………………………….…20
1.5 NICE Public Health guidance 9………………………………………………………………….…..21
1.6 Community Engagement guidance 2008………………………………………………….……22
1.7 Situation in Spain and the application of health promotion programs…………..25
1.8 Mihsalud program in Valencia city……………………………………………………………..…27
2. OBJECTIVES…………………………………………………………………………………………………….……28
3. METHODS………………………………………………………………………………………………………..….28
3.1 Study preparation and planning………………………………………………………………...…29
3.2 Elaboration of the “Draft List”……………………………………………………………………...29
3.3 Focus group preparation and implementation……………………………………….……..34
3.3.1 Participants recruitment…………………………………………………………………....34
3.3.2 The preparation………………………………………………………………………………….35
3.3.3 The implementation…………………………………………………………………………..36
3.3.4 Debriefing session………………………………………………………………………….…..38
3.4 Transcription of the recordings……………………………………………………………………..39
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3.5 Analysis…………………………………………………………………………………………………..……39
4. RESULTS…………………………………………………………………………………………………………...…44
4.1 Reviews of the team of mihsalud program…………………………………………………...44
4.2 Reviews of directors related to mihsalud program…………………………………..……53
4.3 Reviews of the program team and directors related to the program………..……63
4.4 The final report, the “Recommendations List”…………………………………………...…68
5. DISCUSSION…………………………………………………………………………………………………………71
5.1 Limitations……………………………………………………………………………………………..…….75
5.2 Applicability & future lines……………………………………………………………………………75
6. CONCLUSIONS……………………………………………………………………………………………………..76
7. REFRENCES………………………………………………………………………………………………………….78
8. GLOSSARY……………………………………………………………………………………………………………80
8.1 Wider social determinants of health……………………………………………………………..80
8.2 Governance………………………………………………………………………………………………….80
8.3 Health promotion…………………………………………………………………………………………80
8.4 Regeneration………………………………………………………………………………………………..80
8.5 Commissioners and providers……………………………………………………………………….80
8.6 Area-based initiatives……………………………………………………………………………………80
8.7 Neighborhood managers………………………………………………………………………………80
9. APPENDIX
Appendix 1. Draft List in English……………………………………………………………………………………..81
Appendix 2. Draft List in Spanish………………………………………………………………………………….…87
Appendix 3. Focus group discussion in English………………………………………………………………..94
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Appendix 4. Focus group discussion in Spanish……………………………………………………………….95
Appendix 5. Invitation e-mail………………………………………………………………………………………...96
Appendix 6. Meeting guide for the focus group………………………………………………………………98
Appendix 7. The presentation for the focus groups…………………………………………..…………102
Appendix 8. Consent form…………………………………………………………………………………………….108
Appendix 9. Debriefing session 1……………………………………………………………………………….…111
Appendix 10. Debriefing session 2…………………………………………………………………………………112
Appendix 11. Focus group transcription 1……………………………………………………………………..113
Appendix 12. Focus group transcription 2………………………………………………………………….….122
INDEX OF TABLES
Table 1. Sign-in Sheet……………………………………………………………………………………………..………36
Table 2. Profile of participants…………………………………………………………………………..……………38
Table 3. The aspects of these recommendations that are being applied to mihsalud
program………………………………………………………………………………………………………………………….39
Table 4. The aspects of these recommendations that are not being applied to mihsalud
program………………………………………………………………………………………………………………………….41
Table 5. Aspects that cannot be applied in the mihsalud program right now……………..……43
Table 6. The study applicability to other health program………………………….…………………….43
Table 7. Reviews of mihsalud team program on the implementation of the
recommendations of NICE guidance- Community Engagement 2008…………………………..….47
Table 8. Reviews of the mihsalud team program on the applicability of the
recommendations to other health promotion programs…………………………………………….…..53
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Table 9. Reviews of directors involved in mihsalud program on the implementation of the
recommendations of the NICE guidance- Community Engagement 2008…………………………56
Table 10. Reviews of the directors on the applicability of the recommendations to other
health promotion programs……………………………………………………………………………………….…..62
Table 11. Degree of compliance with the recommendations of the NICE guidance-
Community Engagement 2008, in the reviews of the program team and directors
involved………………………………………………………………………………………………………………………….65
FIGURES
Figure 1. The interaction determinants of health…………………………………………………………….13
Figure 2. Pathways from community participation, empowerment and control to health
improvement………………………………………………………………………………………………………….……..17
Figure 3. Logic model………………………………………………………………………………………………………19
Figure 4. Community engagement overview…………………………………………………………………..24
Hiba Malek 10
Abstract
Objective: Elaborate the final report "Recommendations List" by integrating the
recommendations of NICE guidance- Community Engagement 2008 in mihsalud program in
the Public Health Center of Valencia. The list of recommendations will have effect on how to
increase the community participation in health promotion activities and make the program
ready for this change.
Methods: The design of the study arises as a qualitative descriptive study using content
analysis. The method that was applied is a focus group method. Two focus groups were
conducted, the first one with 6 health workers and the second with 6 directors related
directly and indirectly to mihsalud. The discussion was recorded, transcribed and then
analyzed according to 3 categories: recommendations that are incorporated to mihsalud,
are not incorporated or cannot be applied now. “Recommendations list” was elaborated to
increase community engagement.
Results: According to the opinions of the program team and directors in the two focus
groups we found that mihsalud follows NICE recommendations in most of its parts. In
infrastructure and approaches, the program is incorporating most of the recommendations.
In prerequisites for success and evaluation, the program needs improvements to be able to
meet the full recommendations. There is only one weakness in the program where it affects
its sustainability, is lacking of long-term investment. “Recommendations list” was
elaborated with 7 internal recommendations to enhance the structure of the program and 7
external recommendations to ensure sustainability and more spreading of the program.
Conclusion: The elaboration of the “Recommendations list” and implement it in the
mihsalud program will let the program reach more vulnerable population and increase
community engagement in the program.
Key words: Community engagement, community participation, health promotion, wellbeing
and participation.
Word count: 18409 words.
Hiba Malek 11
Resumen
Objetivo: Elaborar el informe final "Lista de recomendaciones" mediante la integración de
las recomendaciones de la guía NICE de Participación Comunitaria de 2008 en el programa
mihsalud del Centro de Salud Pública de Valencia. La lista de recomendaciones tendrá un
efecto sobre la forma de aumentar la participación de la comunidad en las actividades de
promoción de la salud y hacer que el programa esté preparado para este cambio.
Métodos: Se plantea un estudio descriptivo cualitativo mediante análisis de contenido. El
método que se aplicó es un método de grupo focal. Se realizaron dos grupos focales, el
primero con 6 profesionales y la segunda con 6 directivos relacionados directa e
indirectamente con mihsalud. La discusión fue grabada, transcrita y analizada según 3
categorías: recomendaciones que se incorporan en el programa, no se incorporan o no se
puede aplicar ahora. Finalmente, se elaboró la “Lista de recomendaciones” para aumentar
la participación de la comunidad.
Resultados: De acuerdo con las opiniones del equipo del programa y los directores en los
dos grupos se encontró que mihsalud sigue las recomendaciones de la guía NICE en la gran
parte de sus apartados. En infraestructura y enfoques, el programa incorpora gran parte de
las recomendaciones. En pre-requisitos para el éxito y la evaluación, el programa necesita
mejoras para poder cumplir con todas las recomendaciones. Sólo hay una debilidad en el
programa que afecta a su sostenibilidad: la falta de inversión a largo plazo. "Lista de
recomendaciones" fue elaborado con 7 recomendaciones internas para mejorar la
estructura del programa y 7 recomendaciones externos para garantizar la sostenibilidad y
una alta difusión del programa.
Conclusión: Implementar la "Lista de recomendaciones" en el programa mihsalud permitirá
que el programa llegue a la población más vulnerable y aumentará la participación de la
comunidad en el programa.
Palabras clave: Compromiso comunitario, participación comunitaria, promoción de la salud,
el bienestar y la participación.
Recuento de palabras: 18409 palabras.
Hiba Malek 12
1. Introduction
1.1 Health for all
The right to health as a basic human was first proclaimed in 1948 in the preamble of
World Health Organization (WHO) constitution. Therefore, the WHO issued a document
“Health 2020” in 2012 where it is goals are to significantly improve the health and well-
being of populations, reduce health inequalities, strengthen public health and ensure
people-centered health systems that are universal, sustainable, equitable and of high
quality1-2.
Due of everyone has a role in creating a supportive environment for health, there were
a growing expectations for a new public health movement around the world. Therefore, in
1986 and as a response to this movement the first International Conference on health
promotion was held in Ottawa, Canada. The aim of this conference was to continue to
identify actions to achieve the objectives of WHO “Health for all” by the year 2000 and to
set the strategies and programs for health promotion that should be adapted to local needs
and countries, taking into account the different social, cultural and economic systems1.
Health 2020 is based on a strong value base which is reaching the highest attainable
standard of health, for that the present generation should not compromise the environment
of subsequent generations2. So when we say everyone should take responsibility to achieve
this goal it means that people from all walks of life are involved in this process, like families
and communities, professional and social groups. Moreover, all relevant government
sectors like trade, education, industry and finance. All those sections need to give important
consideration to health as an essential factor during their policy formulation for the pursuit
of health1.
As “Health for all” aims to reduce inequalities and improve health and well-being. We
will talk first about the equity in health which means fairness and the needs of people guide
the distribution of opportunities for welfare3. The social and economic inequalities,
transmitted to subsequent generations, result in the indefensible persistence of health
inequalities. Therefore, improving health equity, including both intergenerational inequity
and transmission of inequity, is at the core of Health 2020. The strategies for health equity
Hiba Malek 13
and sustainable development should come together, recognizing the links between social
and economic environments and intergenerational equity2. Second, health and well-being
are public goods and assets for human development and of vital concern to the lives of
every person. Good health for the individual is a dynamic state of physical, mental and social
well-being. It is much more than just the absence of illness or infirmity. Good health for
communities is a resource and capacity that can contribute to achieving strong, dynamic
and creative societies2.
In the figure 1 we can see the classic and well-known model about the determinants of
health. It helps illustrate the interrelationships between the different determinants of
health, recognizing that it is important to consider both the factors that directly influence
individual and community behavior, and the important wider social determinants. The social
determinants are especially important to address because not only can they directly
influence health (such as the effects of poor housing or sanitation) but they also influence
the genuine options and choices people have and their life chances, which in turn affect
their personal decisions, choices and lifestyles2. According to the "Review of social
determinants and the health divide" in the WHO, action is needed on the social
determinants of health, across the life-course to achieve greater health equity and protect
future generations4.
Figure 1. The interaction determinants of health4
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The social determinants of health are very important to address and to talk about
because they reveal the conditions in which people are born, grow, live, work and age,
which they are the key determinants of health equity4.
In order to achieve the Health 2020, the Commission on Social Determinants of Health
set out four priority areas of action that are: investing in health and empowering people,
tackling Europe’s major health challenges of no communicable and communicable diseases,
strengthening people-centered health systems and supportive environments2. Also we
should improve the conditions of daily life in which people are born, live, work and age,
tackle the inequitable distribution of power, money and resources globally, nationally and
locally and develop a workforce that is trained in the social determinants of health to raise
public awareness about this domain which will help to attain a fundamental human right of
the highest standard of health2.
1.2 Health promotion and its implementation
The global definition of health promotion is: the process of enabling people to increase
control over their health and improve it. It is not just the responsibility of health sector, but
goes beyond healthy lifestyles to well-being. Health seen as a recourse for everyday life, not
the objective of living1-3. Furthermore, good health is a major resource for social, economic
and personal development, and important for the quality of life. Therefore, all the factors of
life like environmental, behavioral and biological etc., have a role in improving human
health or worsening it. Health promotion aims to make these factors favorable, through
advocacy for health1.
No doubt that health promotion is widely accepted as a fundamental approach to the
practice of public health and it should lead to improve the health of people and the
environment where they live so our efforts should be directed toward the place where they
are generated5. There should be a joint efforts of all social and productive actors to achieve
health counting on the responsibility of each person in his individual level to take care of his
health and the health of the surroundings and work with communities to set actions and
objectives to maintain a high level of living conditions.
Hiba Malek 15
The Ottawa Charter identifies health promotion action areas as building a healthy public
policy, create supportive environment, strengthen community actions, develop personal
skills, reorient health services and moving into future1. The intervention in those areas will
help to create healthier environments, besides being an area that attracts participation of
individuals and groups because it deals with the needs of communities and will lead to
protect health and to strengthen it by increasing the maximum level of quality of life5.
Without compromising the protection of the nature, build safe environments and the
conservation of natural resources that must be addressed in any health promotion strategy
and activities1.
As we mentioned before that health equality is an important element of public health
and it should be included in any health promotion plan. Besides, the health inequalities are
not exclusively biological in origin but it is also the consequence of human activity so we
should be careful about this point and because they arise as a consequence of human
actions, they can be changed if the causes are changed6. Also we should consider that
women and men should become equal partners in each phase of planning, implementation
and evaluation of health promotion activities1. In addition, according to the NICE public
health guidance, there are two important legal concepts when considering equality:
relevance and proportionality. Relevance assesses how much an issue affects equality.
Proportionality assesses an appropriate outcome. The weight given to equality in a function
should be proportionate to its relevance for that function6. The intervention in health
promotion might have different outcomes: it might improve the health of people in
different groups to the same degree, so that any differences in health between those groups
will remain after the intervention and it may be more effective in one group than in
another. If it is more effective in the more disadvantaged group, the net outcome will be a
reduction in inequity. If it is more effective in the less disadvantaged group, the net
outcome will be an increase in health inequity. At the end, the ideal outcome is to benefit all
groups at the same level and reducing health inequalities6.
As health promotion activities are towards individuals in particular and communities in
general, the community engagement and development is essential to enhance self-help and
social support to develop flexible systems. This requires full and continuous access to
information and learning opportunities, as well as finding a new ways of financial support
Hiba Malek 16
(Funding)1. The health education has serious methodological bases, involving increasing
social awareness about the culture of community participation and empowers groups so
they can make changes in their behavior5 and it will be a great idea to integrate health
education in schools, home, work and community settings. Also the role of the health sector
must move increasingly in a health promotion direction, as well as changes in professional
education and training1.
1.3 Community engagement in health promotion programs and its importance
At the beginning, we have to draw attention to two important definitions: community
engagement and community activity.
Community engagement is “the process of getting communities involved in decisions
that affect them. This includes the planning, development and management of services, as
well as activities which aim to improve health or reduce health inequalities” (Popay 2006)7.
Community activity is "any activity, intervention and performance with participation
groups, have characteristics, needs or common interests and aimed at promoting health,
increasing quality of life and social welfare, enhancing the capacity of the individuals and
groups to approach their own problems, demands or needs"8.
According to the Ottawa Charter1, health promotion works through concrete community
actions in setting priorities and making decisions, planning strategies and implementing
them to achieve better health based on a lot of factors that are used to define communities
(geography, culture and social stratification). Also it mentioned the importance of the
participation of professionals as stakeholders in setting health agenda of activities. Also to
combine individual and collective efforts like the government, society and nongovernmental
organization in pursuing of the target “Health for all” to improve health and well-being4. All
these parts should be joined in an equal partnership1 to get benefit from the variety of
approaches that could be used, including neighborhood committees and forums,
community champions and the collaborative methodology used in initiatives. Although
these approaches have been in existence for several decades, many factors prevent them
from being implemented effectively, including the dominance of professional culture and
lack of professional training for the staff working in public services2. While designing these
Hiba Malek 17
approaches, it is very important to design policies that act across the whole social health
gradient that exist between people and communities, as well as addressing the needs of
people at the bottom and those who are most vulnerable4.
According to the NICE guidance- Community Engagement 2008, a number of national
strategies and targets aiming to improve health and well-being and reduce health
inequalities highlight the importance of involving local communities in health-related
activities, particularly those experiencing disadvantage7. In the figure 2 we can see some
pathways from community participation, empowerment and control to health
improvement.
Figure 2. Pathways from community participation, empowerment and control to health
improvement7
Hiba Malek 18
Community engagement interventions are effective across a wide range of contexts and
using a variety of mechanisms, it has a positive impact on health behaviors, health
consequences and requires resources (financial, time, equipment and people). Those
involved need to understand and agree in advance what will be needed to ensure the long-
term sustainability of the intervention. Also the evaluation of the intervention should place
greater emphasis on long-term outcomes and reporting costs and resources data7-9. In
addition, there is insufficient evidence regarding the long-term outcomes and indirect
beneficiaries to determine whether one particular model of community engagement is likely
to be more effective than any other, and there is weak but inconsistent evidence that
community engagement interventions are cost-effective9. Furthermore, the NICE guidance-
Community Engagement 2008 addressed that the community interventions may result in
additional cost regarding the actions that come with it like, training and development for
the individuals, provision of Braille and loop systems and crèche facilities and carrying out
research and consultation work etc7.
According to the NICE public health guidance, the logic model in the figure 3 focuses on
a range of community engagement roles and activities that aim to improve health and well-
being. It sets out the conceptual link between local community engagement interventions,
the immediate service delivery outcomes and other intermediate outcomes that effect on
health, such as empowerment and social cohesion. Not forget to mention that the primary
purpose of an intervention may be community engagement rather than health
improvement. The model highlights how local funding, resources and other factors influence
intervention delivery and outcomes10.
Hiba Malek 19
Figure 3. Logic model10
In a rapid review of evidence on the impact of community engagement, the evidence
shows that it is difficult to attribute specific benefits to one approach or method in
improving the social determinants of health11. We will demonstrate some of the evidence
on the effectiveness of the community engagement intervention:
Community engagement may have a positive impact on residents’ perceptions of
crime and on community involvement in service delivery.
It may have a positive impact on ‘bonding’ and ‘bridging’ social capital and social
cohesion.
Initiatives that aim to promote community engagement can successfully recruit new
volunteers and establish better links with wider communities. It also has a positive
impact on the way residents of the intervention areas feel about their areas that
leads to improve their quality of life.
Community engagement may have a positive impact on community empowerment
in the areas of capacity building, skills and knowledge development.
Hiba Malek 20
In our study, we are using one of the methodology for active participation from the
individuals, which is the focus groups that used to explore the opinions, knowledge,
perceptions, and concerns of individuals in regard to a particular topic. All our participants
have some knowledge and experience with mihsalud program and health promotion
activities. The focus group is good for in-depth exploration of people’s views on a subject
including their likes and dislikes and it is a very important methodology regarding the
investigation in community engagement studies9.
1.4 NICE guidance
NICE is the abbreviation of the National Institute for Health and Clinical Excellence. It is
responsibility standing for developing national guidance and advice to improve health and
social care. The NICE was established in 1999 in England to ensure that the most clinically
and cost effective drugs and treatments were made widely available to the National Health
Service (NHS). The guidance helps health, public health and social care professionals deliver
the best possible care based on the best available evidence and its recommendations are
systematically-developed based on the best available evidences also12.
All the NICE guidance are easy to access because the NICE committee wants to provide
advice and support to the public and everyone wants to get benefit of it. This service from
NICE aims to improve health care and encourages a quality and safety focused approach, in
which commissioners and providers use NICE guidance and other NICE-accredited sources to
improve outcomes12.
In addition to that, NICE is helping to raise standards of health care around the world by
establishing the NICE International in 2008. Therefore it is very useful and time-saving to
depend on the NICE guidance and its standards to develop guidance in Spain as well as to
improve the programs of health promotion. NICE international is offering advice to
governments and governmental agencies overseas and provides facilitation of knowledge
transfer among decision-makers across countries such as through international meetings.
This service helps building capacity for assessing and interpreting evidence to inform health
policy and on designing and using methods and processes to apply this capacity to their
local country setting13.
Hiba Malek 21
The NICE guidance are being developed methodologically by the independent advisory
committees throughout a wealth of scientific methodology to help underpin and inform the
committees’ decisions and recommendations. Although this science is constantly evolving
but the committees always ensure that NICE stays at the forefront of this challenging field.
This includes internationally recognized scientific methods for evaluating and comparing the
benefits and cost-effectiveness of different form of practice12.
1.5 NICE Public Health guidance 9
NICE guidance takes number of forms which are varied between different health
domains. One of them specialized in public health. The NICE public health guidance is
developed using different methodologies and approaches that can incorporate these
different types of knowledge and evidence at various stages through spectrum of sources to
see if it meets equality and diversity criteria6. The sources include:
organizations
practitioners
the policy community, gained from the wider policy context research, gathered
systematically with a planned design
service users.
In order to develop a public health guidance, NICE depends on a conceptual framework
for public health of values and principles. This comprises 4 vectors – population,
environment, society and organizations – linked to human behavior. These vectors interact
with the human behavior via causal pathways to determine the health of individuals and
populations. For example, patterns of illness can occur in whole populations or
subpopulations. Both illnesses and the resulting patterns have causes6.
Public health guidance is aimed at population, community, organizational, group, family
or individual level, as appropriate. It is also important to develop recommendations and
methods based on the balance between the estimated cost of each intervention and the
expected health benefits, therefore the Public Health Advisory Committee (PHAC) is
Hiba Malek 22
required to make decisions informed by the best available evidence of both effectiveness
and cost effectiveness6.
The process of developing recommendations is not easy and it needs a lot of meeting
sessions including arguments in order to have a good recommendations that meets all the
criteria of the (PHAC). The recommendations should be clear and practical, which means are
easy to understand and can be implemented. They should respect the social value
judgements and reflect the views and experiences of both those being advised to take
action (healthcare professionals) and the people who might be affected by that action (the
target population and their families). Finally, not forget to mention to take account of
relevant theories of public health and informed by the most appropriate and available both
scientific and other evidence. These characteristics of the recommendations are vital in
order to create the “Recommendations List” at the end of this study. In addition we will be
considering that recommendations should not be made on the basis of the total cost or the
resource impact of implementing them. So if the evidence suggests that an intervention
provides health benefits and the cost per person of doing so is acceptable it should be
recommended, even if it would be expensive to implement across the whole population6.
1.6 Community Engagement guidance 2008
In this study we will focus on one of the NICE public health guidance which is
Community Engagement guidance that was issued in February 2008. This guidance aims to
support those working with communities and involved in decisions on health improvement
that affect them. It was elaborated for people working in the NHS and other sectors who
have direct or indirect role in community engagement including those working in local
authorities and the community, voluntary and private sectors7, and following these
recommendations can help these sectors to reduce variations in practice12.
The Community Engagement guidance is currently being updated and its anticipated
publication date is on February 2016, until then the guidance of 2008 is the adopted one.
The updated guidance approaches to improve health and reduce health inequalities10.
Hiba Malek 23
In the figure 4 we can see a diagram about the community engagement overview
elaborated by NICE pathway14. It gives us a view about the steps that should be followed to
reach an effective engagement and participation from the community. The steps are:
1- Community engagement.
2- Evaluation: it should be done in collaboration with the target community and involve
them in setting the objectives and in the planning phase. This should be done before
the activity is introduced.
3- Develop national, regional and local policy: finding new ways and also taking account
of existing community activities and past experiences.
4- Develop long-term initiatives: the community engagement activities have a long-
term nature and are incremental. This will ensure the efficacy of the outcomes and
main goal of sustainability.
5- Build on the local community’s strength and provide training and resources.
6- Work in partnership: all those involve in health promotion activities should be
related to address the wider social determinants of health (Glossary 1). This will help
to increase knowledge of and communication between the sectors (government,
volunteers and community organizations)14.
7- Approaches: this may be done by build mutual trust and respect, identify changes
needed within organizations, agree on level of engagement and power and the
initiatives whether the new or the existing ones15.
Hiba Malek 24
Figure 4. Community engagement overview14
As we mentioned before NICE is trying to involve social value judgments while
developing the recommendations in order to reflect the value of the society12 and based on
the evidence, this guidance looks at how communities can be effectively involved in the
planning, including priority setting and resource allocation, designing, delivery and
governance (Glossary 2) of:
Health promotion (Glossary 3) activities
Activities and initiatives to address the wider social determinants of health7.
The Community Engagement guidance 2008 that we rely on in this study contains
twelve important recommendations divided into four themes and these recommendations
can be used to improve and strengthen the concept of community engagement, develop a
sense of commitment in the individuals towards the society and daily-life health activities
and gives the professionals and health workers a good help when preparing and planning for
Hiba Malek 25
health promotion programs and activities. In addition, the Program Development Group
PDG believes that the recommendations promote a consistent approach to community
engagement and acknowledges that community engagement approaches could be used to
tackle a range of issues with different communities (not just regeneration (Glossary 4)). The
PDG has also based the recommendations on a number of program theory and evaluation
principles7.
Recommendations of the Community Engagement guidance 2008:
The recommendations present the ideal scenario for effective community engagement.
They cover four important themes:
Prerequisites for success: including policy development (5 recommendations).
Infrastructure: to support practice on the ground (3 recommendations).
Approaches: to support and increase levels of community engagement (3
recommendations).
Evaluation (1 recommendation).
1.7 Situation in Spain and the application of health promotion program
Now in Spain there is no guidelines for community engagement in health promotion
programs, but there is other guidelines specialized in the Clinical Practice Guidelines (CPG)
which are a set of recommendations based on a systematic review of the evidence and the
assessment of risks and benefits of different alternatives in order to optimize health care to
patients. The GPC have the potential to reduce variability and improve clinical practice16.
However, in Spain, while it is the opposite somewhere else, the main idea is that the
public health is a branch of medicine, but also they found that the integration of community
activities to promote health, which called in Spain “las actividades comunitarias de
promoción de la salud” (ACPS), will make a difference according to a study that aimed to
discover if the community health programs really work or not17. Also they found that the
evaluation of the ACPS must be consistent and take into account the particularities of
community activities and aspects related to the impact and results. It will be effective to use
the quantitative and qualitative research in the evaluation of the ACPS. Furthermore, it was
Hiba Malek 26
mentioned in the study as a justification of this poor implementation of ACPS in the context
of primary health care is the lack of evidence for such interventions compared to other
biomedical marking content that do have. For example, certain lines of biomedical research
have considerable support from the pharmaceutical industry. Meanwhile, The ACPS hardly
ever will be financed by these companies in the same proportion17. Consequently, the lack
of funding and support for such kind of activities in Spain has a negative impact on any
activities or program directed to promote health and engage the community, because it will
lack the stability of the program and long-term planning benefits.
There is another intervention in Spain to reduce health inequalities implemented by the
Commission to Reduce Social Inequalities in Health that was established in 2008. The
commission should develop proposal for interventions to reduce health inequalities. In May
2010, the Commission presented the document “Moving toward equity: a proposal for
policies and interventions to reduce social inequalities in health in Spain”. The document
listed a total of 166 recommendations, these recommendations highlight that health
inequalities cannot be reduced without a commitment to promote health and equity in all
policies and to move toward a fairer society. In addition the proportion of people who
perceive there health as fair is very poor and it is higher among women than in men and
increases gradually from the middle classes to the most disadvantaged, so that the effects of
inequality are not confined to a small group of vulnerable people, but the entire population,
therefore at the national level, the Ministry of Health and Social Policy has defined the
reduction of inequalities as one of its priorities and this objective requires a real
commitment to promote health in all policies18.
In Spain there are some interventions in the community regarding the primary care.
Working Group on Primary Care Community Oriented. A website Describes basic
information about the group and its activities, and provides access to bibliographic
information and links to pages of evidence in the context of Community
intervention.
Program of Community Activities in Primary Care (PACAP). It is a program of the
initiative developed in the mid-nineties from the Spanish Society of family and
community Medicine, with the aim of promoting community activities in primary
Hiba Malek 27
care. Within the PACAP there is the Network of Community Activities (RAC) that
allows the exchange of community experiences between all the regions of Spain and
other countries.
The Information System Promotion and Health Education (SIPES) is created under
the Inter-territorial Council of the National Health System to provide information on
the actions of health promotion operating in the different regions. It is in early stages
of development.
1.8 Mihsalud program in Valencia city
In this study, we are focusing on one of the health promotion programs in Valencia,
which is the mihsalud program (Women, Children and Men health building). It is a program
of social mobilization and high diffusion in urban environments (outreach) aimed to
promote health in situations of high vulnerability in the city of Valencia. The program
conducted by the Center of Public Health (CSPV) in Valencia city in collaboration with the
ACOEC (Association of Cooperation between Communities)19.
Mihsalud started in 2006 from the Public Health Centre in Valencia. Initially the activities
of the program were prioritized toward Latin American immigrants, but today the program
and the interventions that it does are trying to reach every person in a vulnerable situation
in the city of Valencia. From the perspective of positive health, the program aims to increase
the capacities of people and achieve greater autonomy and responsibility in the control of
health. It is to developed capabilities on the purpose to reduce inequalities and promote
equity through peer education model for health assets, intercultural mediation, gender,
professionals training in cultural competence and diversity care and social action19-20.
Since its launch, the program is carrying out various actions to address the main
problems and to solve them. Some of these actions are: workshops, health promotion,
trainings, and health workers trainings by energizing the territory processing maps and
activation of several information points in the departments of health of the city19-20.
2. Objectives
Hiba Malek 28
The general objective of this study is to elaborate the final report "Recommendations
List" from the recommendations of NICE guideline- Community Engagement 2008 to
implement it to mihsalud program. The list of recommendations will improve the program
by raising the level of readiness to be able to effect the community behavior to be more
engaged in health promotion activities.
Specific objectives are:
1. To extract the "Draft list" after reading the Community Engagement guidance and
mihsalud documents.
2. To take the opinions of professionals and health workers related to mihsalud
program about the applicability of the "Draft List" to mihsalud program and what
they have to add based on their experience in the programs they perform and in the
field.
3. To identify the recommendations of NICE that are incorporated in mihsalud and the
ones that are not incorporated.
4. To identify if there are recommendations not applicable for now.
5. To identify the differences between the opinions of the technical group and the
group of professionals.
6. To elaborate the final report "Recommendations List" that is based on the opinions
in the focus groups, and if it could be applied to other health promotion programs in
the Comunidad Valenciana.
3. Methods
The design of the study arises as a qualitative descriptive study using content analysis.
The method that was applied is a focus group method including professionals and health
workers in the Public Health Centers of Valencia in order to elaborate the final report
“Recommendations List”.
Hiba Malek 29
The team responsible of this study consists of:
- The author of this study is a pharmacist with a bachelor degree in pharmacy and now is
doing the master of Public Health and Health Management in the University of Valencia and
she will be the moderator of the focus groups.
- The professor of this study is a public health physician in the Public Health Centre of
Valencia, also he is an associate professor at the University of Valencia and a researcher
collaborator with FISABIO.
- Pilar López Sánchez is a public health nurse in the Public Health Centre of Valencia, she will
be the facilitator and the note-taker of the focus groups.
3.1 Study preparation and planning
The objective of this phase is to get all the relevant scientific information and to find all
the documents, papers and articles needed in English and Spanish language related to the
NICE guidance-Community engagement, health promotion programs and mihsalud program.
Then to start planning for the structure of the study and how to proceed with the other
phases.
The preparation phase was carried out during the months of February and March, 2015.
3.2 Elaboration of the "Draft List"
The objective of this phase is to read the Community engagement7 2008 and its updates
201410. Then reading the mihsalud program which is a crucial step in the process in order to
come up with list of recommendations called the "Draft List" and to write the questions of
the discussion for the focus groups. The goal of this list is to present it to the participants of
the focus groups who will read it and answer the questions through the discussion.
The preparation of the "Draft List" was in English language (Appendix 1) then it was
translated to the Spanish (Appendix 2) because all the participants are from Spain, therefore
it is better to conduct the meetings in Spanish language along with all the papers needed in
Hiba Malek 30
order to prevent the misunderstanding, to maintain a good context for the meeting and to
save time.
The case was the same with the questions and for the same reasons mentioned above,
the questions was prepared in English language (Appendix 3) then it was translated to
Spanish (Appendix 4).
According to the Qualitative Research Methods: A DATA COLLECTOR’S FIELD GUIDE21,
they indicated that in qualitative method research like the focus groups discussion the
questions should be open-ended questions, that is, questions that require an in-depth
response rather than a single phrase or simple “yes” or “no” answer.
The stage of the elaboration of the "Draft List" and questions was carried out during the
month of April 2015.
Draft List
The Draft list is an extract from reading the Community Engagement guidance 2008, its
updates 2014 and mihsalud program. It is an illustrations for recommendations that can be
used to improve and strengthen the concept of community engagement, develop a sense of
commitment in the individuals towards the society and daily-life health activities that may
lead to healthier life style. It will be used as a material source for discussion in two focus
groups in order to elaborate the final report “Recommendations list”.
Recommendations of the Community Engagement guidance 2008:
The recommendations present the ideal scenario for effective community engagement.
They cover four important themes:
Prerequisites for success: including policy development (5 recommendations).
Infrastructure: to support practice on the ground (3 recommendations).
Approaches: to support and increase levels of community engagement (3
recommendations).
Hiba Malek 31
Evaluation (1 recommendation).
The recommendations considered the evidence of effectiveness and cost effectiveness.
According to the studies reviewed, the scientific evidence considered to be effective to
encourage community participation.
Community engagement is a sustainable goal and it’s a long-term practice that may lead
to a better life for the community in specific and the society in general to achieve the goal
“Health for everyone”
The guidance6 define Sustainability as the long-term health and vitality – cultural,
economic, environmental and social – of a community.
Main beneficiaries:
Communities and groups with distinct health needs.
Communities that experience difficulties accessing health services or have health
problems caused by their social circumstances.
People living in disadvantaged areas, including those living in social housing.
Who should take actions?
1. Those involved in the planning (including coordination), design, funding and
evaluation of national, regional and local policy initiatives.
2. Providers and commissioners (Glossary 5) in public sector organizations, local
authorities (including officers and elected members) and the voluntary sector who
seek to involve communities in planning (including priority setting and funding),
designing, delivering, improving, managing and the governance of:
- Health promotion activities.
- Activities which aim to address the wider social determinants of health.
- Area-based initiatives.
Hiba Malek 32
3. Members of community organizations and groups and community representatives
involved in the above.
Prerequisites for effective community engagement
1. Policy development: plan, design and coordinate activities (including area-based
activities (Glossary 6) that incorporate all the community components and
organizations and take account of existing activities.
2. Long term investment: align long-term approach with local priorities. Identify the
funding resource and the lines for accountability. Set realistic timescale. Build on
past experiences. Clearly state the intended outcomes of the activities.
3. Organizational and cultural change: identify how the culture of public sector
organizations supports or prevents community engagement. Diversity training.
Manage conflicts between communities and the agencies that serve them.
4. Levels of engagement and power: negotiate and agree with all relevant parties how
power will be distributed and state the responsibilities. Recognize local diversity and
let community members decide how willing and able they are to participate. Avoid
technical and professional jargon. Feedback mechanisms.
5. Mutual trust and respect: assess the broad and specific health needs of the
community (under-respected groups). Tailor the approach used.
Infrastructure
6. Training and resources: develop and build on the local community’s strengths and
assets. Provide opportunities and resources for networking. Identify funding sources
for training. Work with NGOs, volunteers. Provide accessible meeting spaces and
equipment. Train individuals from the community to act as mentors.
7. Partnership working: develop statements of partnership working for all those
involved in activities. This will help increase knowledge and improve the
opportunities for joint working and/or consultation on service provision.
Hiba Malek 33
8. Area-based initiatives: encourage local people to be involved in the organization and
by recognizing and developing their skills. Involve communities in decision-making to
have the power to influence decisions.
Approaches
9. Community members as agents of change: recruit local people to plan, design and
deliver activities to improve health. Encourage local communities to form a group of
‘agents of change’. Work with neighborhood managers (Glossary 7) to ensure the
community’s views are heard.
10. Community workshops: run community workshops (art, health, etc.) to identify local
needs and maintain a high level of local participation in health promotion activities
(co-managed by professionals and community members).
11. Resident consultancy: draw on the skills and experience of people with previous
experience of regeneration (Glossary 4) activities to improve social cohesion and
general wellbeing. Empower the concept of work ‘with’ rather than ‘for’ the local
community.
Evaluation
Better evaluation processes are needed to improve the quality of evidence and to
increase understanding of how community engagement and the different approaches used
impact on health and social outcomes.
12. Identify and agree the aims of evaluation with members of the target community.
This should be agreed before the activity is introduced.
Involve them in the planning, design and implementation of an evaluation
framework that:
- encourage joint development.
- considers the theory of change required to achieve success
- embraces a mixed method approach
- indicators that help evaluate work, costs and experiences
- identifies the comparators that will be used.
Hiba Malek 34
The questions for the discussion were:
1- How can we integrate these recommendations into the mihsalud program in order to
improve performance and results of the program?
1.1 What you are currently doing in mihsalud program that matches what say NICE
recommendations?
2- What are the aspects that are not being implemented in the program?
2.1 What you are not currently doing in mihsalud program although this covered by the
recommendations of NICE and therefore should incorporate it?
2.2 What you are currently doing in mihsalud program and contrary to what say NICE
recommendations, therefore it should stop doing it?
3- What are the aspects that cannot be applied in the mihsalud program for now?
4- If the recommendations can be applied to mihsalud program, do you think that can be
applied to other health promotion programs or any other health program?
3.3 Focus groups preparation and implementation
Focus groups are a qualitative data collection method effective in helping researchers to
learn about the social norms of a community as well as the range of perspectives that exist
within that community. Because focus groups seek to illuminate group opinion, the method
is well suited for socio-behavioral research that will be used to develop and measure
services that meet the needs of a given population21.
3.3.1 Participants recruitment
Recruitment and selection of the participants in focus groups was done in cooperation
with Joan Paredes and Pilar Sanchez. The recruitment process was through an e-mail
invitation to the 13 participants (Appendix 5) followed by a phone call reminder before each
meeting to ensure their presence.
Hiba Malek 35
Pilar Snachez was the responsible of sending the e-mail at the beginning of May 2015
because she has all the contacts and she is in touch with the participants, and then she did
the follow up with the participants over the phone.
The Profile of the participants who were invited are:
For the focus group number one, they are 7 health workers related directly to the
implementation and development of the program: 2 family nurses, 1 association and 4
health workers who have a leadership role in the community.
For the focus group number two, they are 1 professional related directly to the program
and 6 professionals not related directly to the implementation of the program. They are in
the administratory level and they are directors of public health centers in Valencia:
A director of a public health center in Valencia.
A health promotion Section Chief of a public health center in Valencia.
A director of nursing department at Dr. Peset Hospital in Valencia.
A director of nursing department at Malvarrosa Clinic Hospital in Valencia.
A Head of Basic Area at Pau Salvador Health Centre in Valencia.
A Nursing Coordinator at Fuente de San Luis Health Centre in Valencia.
A Nurse promotor at the Public Health Centre of Valencia.
3.3.2 The preparation
First, we developed a meeting guide to ensure that it will be organized properly and
trying not to forget any step (Appendix 6). Second, we prepared a presentation in Spanish
language (Appendix 7) to demonstrate it before starting the discussion. The presentation
aimed to give the participants a brief information about NICE guidance and its objectives,
Community Engagement guidance 2008 and its recommendations plus it contained the
“Draft List”.
Hiba Malek 36
In order to make the meeting successful, we have prepared the material needed for
every participant and it was distributed in a folder that contains all the documents needed
in the meeting. The documents were prepared in Spanish language.
At the entrance to the meeting, the participants had to fill in the Sign-in sheet that
contains a general information as shown below in table 1.
Table 1. The Sign-in sheet that should be signed by the participants
Sex Age Profession Continuous relation with
community activities
Continuous relation with health
promotion activities
The folder contained:
- Informed consent sheet (Appendix 8)
- The "Draft List" (Page 30)
- The questions of the discussions (Page 34)
Ethical consideration: On every focus group and at the entrance to the meeting, all
participants must sign the informed consent that is written in Spanish language. In this
informed consent the participants were informed that their statements will be recorded and
accept the rules needed to participate in the focus group. The protection of the
confidentiality of the participants will consider the recommendation of the Article 21 of the
Declaration of Helsinki (World Medical Association, 2013)22 and data protection law (Law
15/1999 of 13 December)23.
The preparation for the two focus groups was carried out during the first two weeks of
May 2015.
3.3.3 The implementation
To start our investigation and after inviting all the participants and preparing all the
documents needed for the discussion, we conducted tow focus groups where we decided to
Hiba Malek 37
invite 13 professionals and health workers to the Public health centers of Valencia. Of those
13 invitees, 12 attended the invitation, therefore the percentage of attendees were 92%.
In coordination with Pilar Sanchez, the meeting was held in “La sala de juntas“ of the
Public Health Centre of Valencia. The duration for each meeting was about an hour and a
half. In order to realize those meetings and reach a good coordination, Pilar and I, took over
the roles of “note-taker” and “moderator” of the meetings, respectively.
Focus group number 1 was held on May the 18th and it was formed of 6 participants,
with 1 male and 5 females. The ages of the participants ranged between 23 and 47 years.
Their professions were: 0 Doctors, 2 Nurses, 3 ASBC (Community Based Health Agent) and 1
Health agent. All of the participants have continuous relation with community activities as
much as their continuous relation with health promotion activities. The Health agent is a
member of ACOEC (Asociación para la Cooperación entre comunidades).
Focus group number 2 was held on May the 19th and it was formed of 6 participants,
with 2 males and 4 females. The ages of the participants ranged between 31 and 60 years.
Their professions were: 3 Doctors, 3 Nurses, 0 ASBC (Community Based Health Agent) and 0
Health agent. All of the participants have continuous relation with community activities as
much as their continuous relation with health promotion activities.
The directors are in the management level and they hold the following jobs positions:
A Section Chief of a public health center in Valencia.
A director of nursing department at Dr. Peset Hospital in Valencia.
A director of nursing department at Malvarrosa Clinic Hospital in Valencia.
A head of Basic Area at Pau Salvador Health Centre in Valencia.
A Nursing Coordinator at Fuente de San Luis Health Centre in Valencia.
A Nurse promotor at the Public Health Centre of Valencia.
The table 2 shows the profiles of the participants and composition of the two focus
groups.
Hiba Malek 38
Table 2. Profiles of participants and composition of focus groups
(total number of participants: 12 participants)
item Focus group 1 Focus group 2
Venue Public Health Centre, Valencia Public Health Centre, Valencia
Sex 1 male & 5 Females 2 males & 4 females
Age Between 23 to 47 years Between 31 to 60 years
Doctors 0 3
Nurses 2 3
ASBC* 3 0
Health Agent 1 0
Continuous relation with
community activities
All yes All yes
Continuous relation with health
promotion activities
All yes All yes
*ASBC (Agente de Salud Base Comunitario): Community Based Health Agent
* Health Agent (Agente de Salud): A member of ACOEC (Asociación para la Cooperación
entre comunidades).
At the beginning of the meeting, in the informed consent, the participants were
informed that the meeting will be audio taped because this will help us in realizing proper
analysis of all the data and later on in the transcription stage.
3.3.4 Debriefing session
After each meetings a debriefing session (Appendix 9-10) was carried out between me,
the moderator, and Pilar Sanchez, the note-taker. It is important to have the debriefing
session right after the meeting to expand the notes taken and to log any additional
information about the focus group while it is still fresh in the memory21.
Hiba Malek 39
3.4 Transcription of the recordings
To transcribe the audio recordings, me, the moderator, I had to listen to the tapes and
simultaneously write down everything that was said on the tape. The transcription was done
in Spanish language and it took about three weeks to be done. It was carried out during
June 2015.
The transcription for the first focus group could be found in appendix 11, and for the
second one in appendix 12.
3.5 Analysis
After having all the transcriptions, it was analyzed by a content analysis for the data,
taking into consideration common and different points between the recommendations of
NICE guidance and the mihsalud program. It was done following the below steps:
Coding: in order not to reveal the names of the participants and for confidentiality
purposes, we gave a number as a code for each participants. Doing so will keep the
order of the answers and prevent fell in the bias of information.
Preparing 4 tables (As shown below) to summarize every question and to have a
short clear statement from every participant that would be useful in writing the
results. The numbers in the tables are used to indicate the code that was given to
each participant.
Table 3. What are the aspects of these recommendations that are being applied to mihsalud program
Recommendations/NICE
guidance
What you are currently doing in mihsalud program that matches what say
NICE recommendations?
1- “El planificar designar y coordinar actividades que son los talleres, nos
organizamos antes de ir, tenemos una guía que ofrecemos y también nos
adaptamos a las necesidades que nos puedan surgiendo”.
2- “Evitar la jerga técnica y profesional, incorporar mecanismo de
Hiba Malek 40
Focus Group #1
retroalimentación creo que también se hace. La confianza mutua, adecuar el
enfoque utilizado, evaluar las necesidades de salud generales”.
3- “Respeto a la evaluación se realizan evaluaciones internas con los equipos y
centros de salud pública a parto al año pasado se hice una evaluación externa”.
4- “son la formación de agente de salud en base comunitaria que viene
enfocado estas entre infraestructura e enfoques. La realización de nuestras
fortalezas y activos de la comunidad local mediante del "Rapid upraisel" y el
mapa comunitario”.
5- “Reconocemos la diversidad de las personas y trabajamos con asociaciones y
hacemos talleres en una manera que las personas lo entiendan y se integran”.
6- “En cuanto a la infraestructura por lo mismo sí que se intentar fomentar el
trabajo entre de asociaciones servicios sanitarios y todo eso y se intenta
fomentar que la persona se participe de la propia comunidad que participen de
forma activa. Eso también del enfoque”.
Focus group #2
1- “se está haciendo todo lo relacionado con la infraestructura. Si sé que están
planificando talleres comunitarios y además se tienen en cuenta las personas
que residen en la comunidad”.
2- “uno la planificación la coordinación y el diseño del programa. Dos la
confianza y el respeto mutuo”.
3- “En la parte infraestructura sí que se está actuando los tres requisitos que
indicando y en los enfoques también”.
4- “Yo consideró que el programa que sigue la mayoría de recomendaciones.
Dentro de los prerrequisitos la inversión a corto plazo y dentro de lo que es la
infraestructuras y enfoques sí que la sigue. En evaluación intenta a hacer una
parte”.
5- “Pienso que sí que tienen objetivos a corto plazo sin embargo no tengo muy
claro si las prioridades locales a largo plazo se están cumpliendo”.
6- “El punto tres de la infraestructura como el punto uno de los enfoques creo
que se cumplen con los forros que se realizan mensualmente”.
Hiba Malek 41
Table 4. What are the aspects of these recommendations that are not being applied to mihsalud program
Recommendations/NICE
guidance
What you are not currently doing in
mihsalud program although this
covered by the recommendations of
NICE and therefore should incorporate
it?
What you are currently doing in
mihsalud program and contrary to
what say NICE recommendations,
therefore it should stop doing it?
Focus group #1
1- “la continua del proyecto y una
evaluación externa a lo mejor más
constante”.
1- “no veo nada que vaya en
contra”.
2- “los tiempos del sector público se
adecuan a los necesidades de este
proyecto participativo que le falta
problema burocráticos”.
2- “depender de una entidad
bancaria para que esto continúe”.
3- “La sostenibilidad del programa del
proyecto y que es incluya dentro del
sistema sanitario público”.
3- “sí que debería forma parte del
sistema sanitario público para tener
una continuidad a largo plazo”.
4- “La participación del sector público
para la continuidad del proyecto en
sostenibilidad”.
4- “Lo que se está haciendo es una
financiación a corto plazo que va en
contra”.
5- “la continuidad del programa y que
se incluyen en el sistema sanitario
público”.
5- “Pienso que está todo ordenado”.
6- “La integración del proyecto en la
administración pública también”.
6- “debería incluirse la
administración de una continuidad”.
1- “de la evaluación en la que
identificar y acordar las objetivos de
evaluación con los miembros de la
comunidad del destino creo que eso no
se hace previamente e involucrarlos en
la planificación el diseño y la aplicación
de un marco de evaluación creo que
tampoco se hace”.
1- “no hay nada”.
Hiba Malek 42
Focus group #2
2- “considero que no está completo a
todos los niveles creo que es el punto 4
corresponde a la decisión comunitaria.
Los niveles de participación y poder de
la comunidad actualmente creo que no
está y el desarrollo”.
2- “no encuentro en este momento
ningún punto”.
3- “los enfoques en tercer punto cuando
hay que tener en cuenta la opinión de
personas residentes”.
3- “las indicadores que no se están
trabajando para la evaluación
suficiente y los que están trabajando
para ello no se ha tenido en cuenta
la opinión de la sociedad y la gente
sociales y asociaciones”.
4- “para asegurar esa financiación a
largo plazo”.
4- “es no asegurar la sostenibilidad,
entonces estamos generando unas
falsas expectativas respecto a la
participación”.
5- “En cuanto a los niveles de
participación y el poder creo que falta
algo en cuanto a lo que es la
distribución del poder y la
responsabilidades. Y por último que
sería también con lo mismo seria la
parte de participación local de la
población en el punto 2 y 3 de los
enfoques”.
5- “Yo estoy de acuerdo en que el
único que se tendría que dejar de
hacer es no dejar plan por el futuro
del programa”.
6- “en la parte de prerrequisitos el
punto 2 no se cumple no hay una
inversión a largo plazo en el programa
porque la entidades que financian no
dan esa financiación a largo plazo”.
6- “Yo considero que en contra no
hay nada de ninguno de los puntos
que hay en la guía NICE”.
Hiba Malek 43
Table 5. Aspects that cannot be applied in the mihsalud program right now
Recommendations/NICE
guidance
What are the aspects that cannot be applied in the mihsalud program for
now?
Focus group #1
1- “Pienso que el tema del trabajo con la comunidad que la comunidad se
integre de la plena participación del Proyecto”.
2- “lo que no se hace también es potenciase trabajo “con” en lugar de “por” en
la comunidad local”.
3- “No se puede aplicar actividades a largo plazo por el hecho de la continuidad
que tiene duración de once meses entonces por tanto no podemos ver
resultados ni planificar actividades a largo plazo”.
4- “la participación del sector público por cuestiones políticas para la
continuidad del programa”.
Focus group #2
1- “Creo que en las recomendaciones que tenemos por escrito seria todo
aplicable”.
2- “lo que corresponderían con infraestructura en el punto formación y recursos
por el problema que hay de financiación a largo plazo”.
3- “todo aquello que implica un largo plazo”.
4- “Yo creo que todo es aplicable. No encuentro ningún cosa que no”.
5- “Yo también pienso que todo es aplicable”.
Table 6. Study applicability to other health programs
Recommendations/NICE
guidance
If the recommendations can be applied to mihsalud program, do you think
that can be applied to other health promotion programs or any other health
program?
1- “Pienso que sí”
2- “Sí”
3- “Pienso que estas recomendaciones se pueden aplicar a cualquier otros de
Hiba Malek 44
Focus group #1
los programas dirigidos a promover la salud en la comunidad”
4- “Yo creo que las recomendaciones de este NICE se pueden aplicar a cualquier
programa de promoción de la salud y al centro de salud”
5- “Yo creo que si se puede aplicar a cualquier programa”
6- “Creo que se puede aplicar a otro programa y a cualquier de ella y además
servir para la inauguración de los mismo”
Focus group #2
1- “Sí”
2- “Exactamente igual que si están aplicando al programa mihsalud todas las
recomendaciones son aplicables a cualquier programa de promoción de la
salud en el entorno comunitario”
3-“ Sí, evidentemente es una forma, metodología de estudiar cómo funciona
una programa”
4- “Yo también opino que sí. Creo que se le hiciéremos conseguiríamos trabajar
con más eficiencia y mayor satisfacción personal“
5- “Debería ser sí”
6- “Yo creo que sí también”
The process will conclude with the preparation of a final report the "Recommendations
list" explaining procedures to improve the community engagement in mihsalud program.
4. Results
4.1 Reviews of the team of mihsalud program
To start with the results, we have created the table shown below, which is table 7.
Reviews of mihsalud team program on the implementation of the recommendations of NICE
guidance - Community Engagement 2008. The table summarize the answers to the first
three questions that shown in the discussion in page 34 and it sums up the opinions of
participants in the first focus group. They were 6 participants and they are all young health
workers related directly to the execution of mihsalud. They are the people who work in the
Hiba Malek 45
program, they go to the field and interact with target communities. The table represents
what are the aspects of the 12 recommendations that are being applied and are not being
applied to the program and in addition it shows the aspects that cannot be applied to the
program for now. In the table we have highlighted in bold the opinions that have prevailed
in the answers of the participants and we have also wrote the other opinions of the
participants.
As for the recommendations that match the mihsalud program, regarding the
prerequisites for success there were a consent in the opinion of participants about the
planning, designing and coordinating activities and workshops in advance following a guide
for it. Levels of engagement and power, negotiate and agree with all relevant parties on
how power will be distributed and state the responsibilities. Health needs evaluation and
mutual trust. Work with associations which is a strength point for the program. There is a
high Levels of engagement of all relevant parties how power will be distributed and state
the responsibilities. Recognize local diversity and let community members decide how
willing and able they are to participate. Avoid technical and professional jargon. Feedback
mechanisms are well admitted and organized. There is a good assessment of the health
needs of the community and adaptation of the approaches used with the members of the
community is also being done. Regarding the infrastructure, they work with NGOs and
volunteers, provide accessible meeting spaces and equipment and train individuals from the
community to act as mentors. Another strength point is developing statements of
partnership working for all those involved in activities. Regarding the approaches, almost all
the recommendations are followed in mihsalud program such as recruiting local people to
plan, design and deliver activities to improve health and encouraging local communities to
form a group of ‘agents of change’ which is in Spain called “agente de salud”. Run
community workshops to identify local needs and maintain a high level of local participation
in health promotion activities. Draw on the skills and experience of people with previous
experience of regeneration activities to improve social cohesion and general well-being.
Regarding the evaluation, they are doing internal evaluation organized with the teams and
public health centers, and the last year they did an external evaluation.
As for the recommendations that could join the program, there were shared ideas
between the participants about the importance of finding a multiple resource for funding
Hiba Malek 46
and register the program in the public health sector to give continuity to the program. Not
only the registration but the participation of the public health sector in the program is also
required. Regarding the organizational and cultural change, there should be diversity
training and let the community participate totally in the planning. Another important idea
that let the individuals interact between both themselves and community is to empower the
concept of work ‘with’ rather than ‘for’ the local community.
There is one recommendations that would not be applicable to the program for now,
which is the long-term investment because parts of the program last for eleven months and
the lack of financial support will prevent long-term planning and designing activities.
Hiba Malek 47
Table 7. Reviews of mihsalud team program on the implementation of the recommendations of NICE guidance - Community Engagement 2008.
Recommendations/NICE guidance
What you are currently doing
in mihsalud program that
matches what say NICE
recommendations?
What you are not currently doing
in mihsalud program although
this covered by the
recommendations of NICE and
therefore should incorporate it?
What you are currently doing
in mihsalud program and
contrary to what say NICE
recommendations, therefore
it should stop doing it?
What are the aspects that
cannot be applied to
mihsalud program for now?
Prerequisites for success: including
policy development, 5
recommendations.
1) Policy development: plan, design
and coordinate activities (including
area-based activities that
incorporate all the community
components and organizations and
take account of existing activities.
*1- “El planificar designar y
coordinar actividades que son
los talleres, nos organizamos
antes de ir, tenemos una guía
que ofrecemos y también nos
adaptamos a las necesidades
que nos puedan surgiendo”.
6- “La integración del proyecto
en la administración pública
también”.
2) Long term investment: align long-
term approach with local priorities.
Identify the funding resource and
the lines for accountability. Set
realistic timescale. Build on past
4- “La participación del sector
público para la continuidad del
proyecto en sostenibilidad”.
2- “depender de una entidad
bancaria para que esto
continue”.
3-“Nuestro proyecto tiene
duración de once meses
por tanto no se puede
aplicar actividad a lo
largo plazo”
Hiba Malek 48
experiences. Clearly state the
intended outcomes of the activities.
3) Organizational and cultural
change: identify how the culture of
public sector organizations supports
or prevents community
engagement. Diversity training.
Manage conflicts between
communities and the agencies that
serve them.
5- “trabajamos con
asociaciones y hacemos
talleres en una manera que las
personas lo entiendan y se
integran”.
1-“ Pienso que el tema del trabajo
con la comunidad que la
comunidad se integre de la plena
participacion del proyecto”.
2- “el tema de gestión de la
diversidad los curriculum de los
profesionales de los recursos
sanitario creo que faltaría”
3-“ evidentemente la formación,
la diversidad no existe”
3- “si que debería forma
parte del sistema sanitario
público para tener una
continuidad a largo plazo”.
4) Levels of engagement and power:
negotiate and agree with all
relevant parties how power will be
distributed and state the
responsibilities. Recognize local
diversity and let community
members decide how willing and
able they are to participate. Avoid
technical and professional jargon.
Feedback mechanisms.
2- “Evitar la jerga técnica y
profesional, incorporar
mecanismo de
retroalimentación creo que
también se hace”
1- “algo de si que está
haciendo también es los
deberes de participación y
el poder”
5- “Reconocemos la diversidad
de las personas”
Hiba Malek 49
5) Mutual trust and respect: assess
the broad and specific health needs
of the community (under-respected
groups). Tailor the approach used.
1-“si que hay una
evaluación de las
necesidades”
2- “La confianza mutua,
adecuar el enfoque utilizado,
evaluar las necesidades de
salud generals”
Infrastructure: to support practice
on the ground, 3 recommendations.
6) Training and resources: develop
and build on the local community’s
strengths and assets. Provide
opportunities and resources for
networking. Identify funding sources
for training. Work with NGOs,
volunteers. Provide accessible
meeting spaces and equipment.
Train individuals from the
community to act as mentors.
6- “En cuanto a la
infraestructura por lo mismo si
que se intenta
fomentar el trabajo entre de
asociaciones servicios
sanitarios y todo eso y se
intenta fomentar que la
persona se participe de la
propia comunidad que
participen de forma activa.
Eso también del enfoque”.
7) Partnership working: develop
statements of partnership working
for all those involved in activities.
This will help increase knowledge
1- “Pues trabajar de
manera conjunta buena
asociación promovemos
todo el trabajo en red si
Hiba Malek 50
and improve the opportunities for
joint working and/or consultation
on service provision.
que es uno de los puntos
fuertes de este proyecto
esta promoción del trabajo
en red”
8) Area-based initiatives: encourage
local people to be involved in the
organization and by recognizing and
developing their skills. Involve
communities in decision-making to
have the power to influence
decisions.
Approaches: to support and
increase levels of community
engagement, 3 recommendations.
9) Community members as agents
of change: recruit local people to
plan, design and deliver activities to
improve health. Encourage local
communities to form a group of
‘agents of change’. Work with
neighborhood managers to ensure
the community’s views are heard.
4- “son la formación de agente
de salud en base comunitaria
que viene enfocado estas
entre infraestructura e
enfoques. La realización de
nuestras fortalezas y activos
de la comunidad local
mediante del "Rapid upraisel"
y el mapa comunitario”
1- “remiembro de la
comunidad como agentes
de cambio hecho antes
Hiba Malek 51
como el curso de agente
salud”
10) Community workshops: run
community workshops (art, health,
etc.) to identify local needs and
maintain a high level of local
participation in health promotion
activities (co-managed by
professionals and community
members)
1- “Los talleres
comunitarios también creo
que se llevan acabo bien en
salud y sobre todo”
11) Resident consultancy: draw on
the skills and experience of people
with previous experience of
regeneration activities to improve
social cohesion and general
wellbeing. Empower the concept of
work ‘with’ rather than ‘for’ the
local community
6-“ se intenta fomentar que
la persona se participe de la
propia comunidad que
participen de forma activa”
2- “lo que no se hace también es
potenciase trabajo “con” en lugar
de “por” en la comunidad local”.
Evaluation: 1 recommendation.
12) Identify and agree the aims of
evaluation with members of the
target community. This should be
agreed before the activity is
3- “Respeto a la evaluación se
realizan evaluaciones
internas con los equipos y
centros de salud pública a
parto al año pasado se hice
1-“ una evaluación externa a
lo mejor más constante”
Hiba Malek 52
introduced.
Involve them in the planning, design
and implementation of an
evaluation framework that: -
encourages joint development
- considers the theory of change
required to achieve success
- embraces a mixed method
approach
- indicators that help evaluate work,
costs and experiences
- identifies the comparators that will
be used.
una evaluación externa”.
* The numbers are used to indicate the code that was given to each participant in the focus group
Hiba Malek 53
The forth question that talks about the applicability of the recommendations to other
health promotion programs, all the participants agreed on the same answer which is "Yes".
In general, they all said that if the recommendations are applicable to mihsalud program
then they are for sure applicable to other programs in Valencia City. One of the participants
said that as the recommendations are beneficial to this program then it can be beneficial to
any program that includes community participation in health promotion programs. All the
answers were direct without providing any other argument about this question. In the table
below we are providing summarize for the answers to the forth question.
Table 8. Reviews of the mihsalud team program on the applicability of the recommendations to
other health promotion programs.
If the recommendations can be applied to mihsalud program, do you think that can be applied to
other health promotion programs or any other health program?
*1- “Pienso que sí”
2- “Sí”
3- “Pienso que estas recomendaciones se pueden aplicar a cualquier otros de los programas
dirigidos a promover la salud en la comunidad”
4- “Yo creo que las recomendaciones de este NICE se pueden aplicar a cualquier programa de
promoción de la salud y al centro de salud”
5- “Yo creo que si se puede aplicar a cualquier programa”
6- “Creo que se puede aplicar a otro programa y a cualquier de ella y además servir para la
inauguración de los mismo”
* The numbers are used to indicate the code that was given to each participant in the focus
group.
4.2 Reviews of the directors related to mihsalud program
For the second focus group, we have done the same table that shown below, which is
table 9. Reviews of directors involved in mihsalud program on the implementation of the
recommendations of NICE guidance - Community Engagement 2008. The table summarize
the answers to the first three questions that shown in the discussion in page 34 and it sums
up the opinions of the participants in the second focus group. They were 6 participants and
they are directors related to mihsalud. The table represents what are the aspects of the 12
Hiba Malek 54
recommendations that are being applied and are not being applied to the program and in
addition it shows the aspects that cannot be applied in the program for now. In the table we
have highlighted in bold the opinions that have prevailed in the answers of the participants
and we have also wrote the other opinions of the participants.
As for the recommendations that match the program, regarding the prerequisites for
success, all the points are met more or less especially the planning, designing and
coordinating of activities. The short-term investment, diversity training, mutual trust and
respect also performed. Regarding the infrastructure, almost all the points are met based on
the opinions of the participants especially designing community workshops, depending on
the local community’s strengths and assets, working with NGOs and associations. For
examples, there are forums that are held on a weekly basis to encourage local people to be
involved in the organization and developing of their skills. Regarding the approaches,
forming “agente de salud” which is “agents of change” and depending on the preexistent
skills and individuals who live in the community. Regarding the evaluation, there is an
opinion saying that we are doing an evaluation or we are trying to do an evaluation.
As for the recommendations that could join the program, it would be more useful to
identify funding resources to be able to align long-term approach with local priorities,
establish a diversity training and manage conflicts between communities and agencies that
serve them. The sustainability of the program is a must. The fourth point from prerequisite
for success should incorporate it more in the program in terms of distribution of the power
and state the responsibilities. Also the fifth point of mutual trust and respect is missing.
About the area-based initiatives in the infrastructure, encourage local people to be involved
in the organization and developing of their skills, a participant expressed that this is being
done with the population at risk in the community but not with the locals. Referring to
approaches, there are some points that should be added to the program like the
neighborhood manager, the part of local participation of population in the point 2 and 3
from approaches and the third point when we must take into consideration the opinions of
community residents. In the evaluation, to identify and agree on the evaluation objectives
with community members, this is not done previously and involve them in the planning,
designing and implementation of an evaluation framework too. The evaluation indicators
are not taking into account the views of society, the people and social associations.
Hiba Malek 55
As for the recommendations that would not be applicable to the program for now,
everything related to the long-term planning due to the short duration of the program, the
problem that emerged with the lack of financial support on the long-term. This will prevent
the team from building a good structure, conducting a professional training for the people
related with the program and develop the strengths of the local community.
Hiba Malek 56
Table 9. Reviews of directors involved in mihsalud program on the implementation of the recommendations of the NICE guidance - Community Engagement 2008
Recommendations/NICE guidance
What you are currently doing in
mihsalud program that matches
what say NICE recommendations?
What you are not currently
doing in mihsalud program
although this covered by the
recommendations of NICE and
therefore should incorporate it?
What you are currently doing
in mihsalud program and
contrary to what say NICE
recommendations, therefore
it should stop doing it?
What are the aspects that
cannot be applied to mihsalud
program for now?
Prerequisites for success:
including policy development, 5
recommendations.
1) Policy development: plan,
design and coordinate activities
(including area-based activities)
that incorporate all the community
components and organizations
and take account of existing
activities.
*2- “Considero que se está
haciendo uno la planificación la
coordinación y el diseño del
programa”
6- “los prerrequisitos se cumplen
más o menos todos, sobre todo el
punto uno con la planificar diseñar
y coordinar las actividades”
2) Long term investment: align
long-term approach with local
priorities. Identify the funding
resource and the lines for
accountability. Set realistic
4- “Dentro de los prerrequisitos la
inversión a corto plazo”
4- “para asegurar esa
financiación a largo plazo”
4- “es no asegurar la
sostenibilidad, entonces
estamos generando unas
falsas expectativas respecto a
la participación”.
3- “todo aquello que implica
un largo plazo”.
Hiba Malek 57
timescale. Build on past
experiences. Clearly state the
intended outcomes of the
activities.
3) Organizational and cultural
change: identify how the culture of
public sector organizations
supports or prevents community
engagement. Diversity training.
Manage conflicts between
communities and the agencies that
serve them.
5- “La gestión y de conflictos de
comunidades y los organismos
tengo dudas no lo sé con
seguridad”
4) Levels of engagement and
power: negotiate and agree with
all relevant parties how power will
be distributed and state the
responsibilities. Recognize local
diversity and let community
members decide how willing and
able they are to participate. Avoid
technical and professional jargon.
Feedback mechanisms.
5- “En cuanto a la formación a la
diversidad pienso que sí que se
cumple”
2- “considero que no está
completo a todos los niveles
creo que es el punto 4
corresponde a la decisión
comunitaria. Los niveles de
participación y poder de la
comunidad actualmente creo
que no está y el desarrollo”
5- “En cuanto a los niveles de
participación y el poder creo
que falta algo en cuanto a lo
que es la distribución del poder
Hiba Malek 58
y las responsabilidades”
5) Mutual trust and respect: assess
the broad and specific health
needs of the community (under-
respected groups). Tailor the
approach used.
2- “Consideró que se está haciendo,
Dos la confianza y el respeto
mutuo”
6- “el punto cinco de confianza y
respeto porque también se
evalúan las necesidades
comunitarias”
Infrastructure: to support practice
on the ground, 3
recommendations.
6) Training and resources: develop
and build on the local community’s
strengths and assets. Provide
opportunities and resources for
networking. Identify funding
sources for training. Work with
NGOs, volunteers. Provide
accessible meeting spaces and
equipment. Train individuals from
the community to act as mentors.
1- “se está haciendo todo lo
relacionado con la infraestructura.
Si sé que están planificando
talleres comunitarios y además se
tienen en cuenta las personas que
residen en la comunidad”
5- “creo también que se cumple en
el trabajo conjunto en asociación
también”
6- “Respecto a la infraestructura
también creo que se cumplen los
tres. El punto uno se capacita a los
individuos de la comunidad con el
curso de formación acción de los
agentes de salud”
2- “lo que corresponderían con
infraestructura en el punto
formación y recursos por el
problema que hay de
financiación a largo plazo, en
cuanto a la estructura montar
de estructura, de espacios y
sobre todo para formar a todo
lo que corresponde a
desarrollar la fortalezas de la
comunidad local”.
7) Partnership working: develop
statements of partnership working
for all those involved in activities.
6- “El punto dos se trabajan en
manera conjunta con las
asociaciones que es como la forma
Hiba Malek 59
This will help increase knowledge
and improve the opportunities for
joint working and/or consultation
on service provision.
del trabaja del programa”
8) Area-based initiatives:
encourage local people to be
involved in the organization and by
recognizing and developing their
skills. Involve communities in
decision-making to have the
power to influence decisions.
6- “El punto tres de la
infraestructura como el punto uno
de los enfoques creo que se
cumplen con los foros que se
realizan mensualmente y después
los talleres comunitarios también
se cumplen”
5- “creo que las iniciativas
basadas en el territorio dice que
debería animar a la gente de
zona a que participen en la
organización creo que se está
realizando con la población en la
comunidad de riesgo pero no con
la gente de la zona”
Approaches: to support and
increase levels of community
engagement, 3 recommendations.
9) Community members as agents
of change: recruit local people to
plan, design and deliver activities
to improve health. Encourage local
communities to form a group of
‘agents of change’. Work with
neighborhood managers to ensure
the community’s views are heard.
6- “El punto tres de la
infraestructura como el punto uno
de los enfoques creo que se
cumplen con los foros que se
realizan mensualmente”.
1- “Este todo figura la gerente de
barrio que no sé si se recoge en
nuestro territorio”
10) Community workshops: run 1- “Si sé que están planificando 5- “por último que sería también
Hiba Malek 60
community workshops (art, health,
etc.) to identify local needs and
maintain a high level of local
participation in health promotion
activities (co-managed by
professionals and community
members).
talleres comunitarios y además se
tienen en cuenta las personas que
residen en la comunidad”
con lo mismo seria la parte de
participación local de la
población en el punto 2 y 3 de los
enfoques”
11) Resident consultancy: draw on
the skills and experience of people
with previous experience of
regeneration activities to improve
social cohesion and general
wellbeing. Empower the concept
of work ‘with’ rather than ‘for’ the
local community.
3- “los enfoques en tercer punto
cuando hay que tener en cuenta
la opinión de personas
residentes”
Evaluation: 1 recommendation.
12) Identify and agree the aims of
evaluation with members of the
target community. This should be
agreed before the activity is
introduced.
Involve them in the planning,
design and implementation of an
evaluation framework that: -
4- “En evaluación intenta a hacer
una parte”
1- “de la evaluación en la que
identificar y acordar las
objetivos de evaluación con los
miembros de la comunidad del
destino creo que eso no se hace
previamente e involucrarlos en
la planificación el diseño y la
aplicación de un marco de
evaluación creo que tampoco se
3- “las indicadores que no se
están trabajando para la
evaluación suficiente y los que
están trabajando para ello no
se ha tenido en cuenta la
opinión de la sociedad y la
gente sociales y asociaciones”
Hiba Malek 61
encourages joint development
- considers the theory of change
required to achieve success
- embraces a mixed method
approach
- indicators that help evaluate
work, costs and experiences
- identifies the comparators that
will be used.
hace”.
* The numbers are used to indicate the code that was given to each participant in the focus group.
Hiba Malek 62
Regarding the forth question, like in the first group, all the participants agreed on the
same answer which is “Yes”. They all answered based on their experience in other programs
that promote health as well as other activities. They all have a good perspective and life
experience in community-based programs. Therefore due to their wide experience, the
answers were concise and precise with positive consent like one of the answers that was
“Exactamente igual” which means that exactly the same recommendations that are
applicable to mihsalud could be applicable to any health promotion program regarding the
community section. Another participant was very selective with the words while answering
and said that the recommendations are a methodology to study how a program works. In
addition following these recommendations will give a high level of efficiency and personal
satisfaction, based on another participant’s answer.
In the table below we are providing summarize for the answers to the forth question
and to attract the attention we have highlighted the strength words that reflect the strength
of the consensus of opinions with positive approval in answers.
Table 10. Reviews of the directors on the applicability of the recommendations to other health
promotion programs
If the recommendations can be applied to mihsalud program, do you think that can be applied to
other health promotion programs or any other health program?
*1- “Si”
2- “Exactamente igual que si están aplicando al programa mihsalud todas las recomendaciones
son aplicables a cualquier programa de promoción de la salud en el entorno comunitario”
3-“Si, evidentemente es una forma, metodología de estudiar cómo funciona un programa”
4- “Yo también opino que sí. Creo que se le hiciéremos conseguiríamos trabajar con más eficiencia
y mayor satisfacción personal“
5- “Debería ser sí”
6- “Yo creo que si también”
*The numbers are used to indicate the code that was given to each participant in the focus
group.
Hiba Malek 63
4.3 Reviews of the program team and directors related to the program
In this part of the results we are going to combine the answers of the program team and
directors to demonstrate the degree of compliance with the recommendations of NICE
guidance - Community Engagement 2008. We will interpret this degree of compliance
through three levels:
1- Recommendations that are incorporated to mihsalud: from the table it seems that
the recommendations that mostly incorporated to mihsalud program are from the
infrastructure and approaches. The three points of infrastructure are incorporated
such as work with NGOs and volunteers and build on past experiences in the
community. Run community workshops, weekly forum for public and form “agents
of change”. The same case in approaches like identify local needs and active
participation from the people based on their skills. Planning and taking into account
the local residents. In prerequisites for success, also there is a good part of the
recommendations that have been implemented such as working with a guideline and
everything is organized in advanced, work with associations and evaluate the needs
of population, recognize diversity, mutual trust, respect and feedback mechanism.
Regarding evaluation, the program has internal evaluation and only one external
evaluation was done last year.
2- Recommendations that are not incorporated to mihsalud: or we can call it areas of
improvement in the program that should be mostly in prerequisites and in
evaluation. In prerequisites they should register the program in the public sector to
be more involved in the program to ensure its continuity. Although there is a
diversity recognition, but there is no diversity training. Increase the level of
participation from all the community members and distribution of power and
responsibilities. In evaluation, identify and agree the aims of evaluation with
members of the target community in advance and involve them in the planning,
designing and implementation of an evaluation framework. Run a constant external
evaluation and the indicator should take account the opinion of the residents. In
infrastructure, the community workshops should include all the residents of the
Hiba Malek 64
community and not only the population at risk. Finally, in approaches, increase the
work and cooperation with neighborhood managers and take into consideration the
opinion of the community residents, empower the concept of work ‘with’ rather
than ‘for’ the local community.
3- Recommendations that cannot be applied now to mihsalud: luckily, a large number
of the recommendations are already incorporated to mihsalud and the rest of them
can be incorporated too. Only the part related to long-term planning and designing
activities cannot be applied now because of the lack of long-term funding. Actually,
part of the program depends on the support from "Obra Social La Caixa", but it is
only for a short period of time and the team managers should look for other funding
resources to be able to execute the program efficiently. One opinion said that
because of the lack of investment we will not be able to develop and build on the
local community’s strengths and assets, provide sources for training, meeting spaces,
equipment and train individuals from the community to act as mentors.
Hiba Malek 65
Table 11. Degree of compliance with the recommendations of the NICE guidance - Community Engagement 2008, in the reviews of the program team and directors involved.
Recommendations/NICE guidance
What you are currently doing
in mihsalud program that
matches what say NICE
recommendations?
What you are not currently doing
in mihsalud program although this
covered by the recommendations
of NICE and therefore should
incorporate it.
What are the aspects that
cannot be applied in mihsalud
program for now?
Prerequisites for success: including policy development, 5
recommendations.
1) Policy development: plan, design and coordinate activities (including
area-based activities that incorporate all the community components
and organizations and take account of existing activities.
- Everything is organized in
advanced. There is a guideline.
- Plan, design and coordinate
activities is done.
- Register the program in the
Public sector.
2) Long term investment: align long-term approach with local priorities.
Identify the funding resource and the lines for accountability. Set
realistic timescale. Build on past experiences. Clearly state the intended
outcomes of the activities.
- Short-term investment.
- Participation of the public sector
for the continuity of the program.
- look for funding resources to be
able to function on the long-term
- Everything related with long-
term investment can’t be
applied.
3) Organizational and cultural change: identify how the culture of public
sector organizations supports or prevents community engagement.
Diversity training. Manage conflicts between communities and the
agencies that serve them.
- Work with associations.
- Workshops for the people to
participate.
- There is no diversity training and
not all community participate in
the activities.
- manage conflicts between
communities and the people.
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4) Levels of engagement and power: negotiate and agree with all
relevant parties how power will be distributed and state the
responsibilities. Recognize local diversity and let community members
decide how willing and able they are to participate. Avoid technical and
professional jargon. Feedback mechanisms.
- Diversity recognition.
- Avoid technical jargon.
- Feedback mechanism.
- Distribution of power.
- Engagement levels and the
distribution of power and
responsibilities should be better.
5) Mutual trust and respect: assess the broad and specific health needs
of the community (under-respected groups). Tailor the approach used.
- Needs evaluation.
- Mutual trust and respect.
Infrastructure: to support practice on the ground, 3 recommendations.
6) Training and resources: develop and build on the local community’s
strengths and assets. Provide opportunities and resources for
networking. Identify funding sources for training. Work with NGOs,
volunteers. Provide accessible meeting spaces and equipment. Train
individuals from the community to act as mentors.
- Work with NGOs.
- build on past experiences.
- Community workshop.
- Courses “Agente de salud”.
- The lack of long-term
investment can effect
negatively this point.
7) Partnership working: develop statements of partnership working for
all those involved in activities. This will help increase knowledge and
improve the opportunities for joint working and/or consultation on
service provision.
- Working with partnership is an
essential part of the program.
8) Area-based initiatives: encourage local people to be involved in the
organization and by recognizing and developing their skills. Involve
communities in decision-making to have the power to influence
decisions.
- Monthly forums for public and
workshops.
- The workshops are done with
population at risk only and not
with all the population of the
communities.
Approaches: to support and increase levels of community engagement,
3 recommendations.
9) Community members as agents of change: recruit local people to
- This point is done with
forming “agents of change”.
- should work more with the
neighborhood managers.
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plan, design and deliver activities to improve health. Encourage local
communities to form a group of ‘agents of change’. Work with
neighborhood managers to ensure the community’s views are heard.
10) Community workshops: run community workshops (art, health, etc.)
to identify local needs and maintain a high level of local participation in
health promotion activities (co-managed by professionals and
community members).
- Community workshops to
identify local needs.
- Planning and taking into
account the local residents.
- increase the level of local
participation.
11) Resident consultancy: draw on the skills and experience of people
with previous experience of regeneration activities to improve social
cohesion and general wellbeing. Empower the concept of work ‘with’
rather than ‘for’ the local community.
- Active participation from the
people based on their skills.
- Empower the concept of work
‘with’ rather than ‘for’ the local
community.
- Take into consideration the
opinion of the community
residents.
Evaluation: 1 recommendation.
12) Identify and agree the aims of evaluation with members of the
target community. This should be agreed before the activity is
introduced.
Involve them in the planning, design and implementation of an
evaluation framework that: - encourages joint development
- considers the theory of change required to achieve success
- embraces a mixed method approach
- indicators that help evaluate work, costs and experiences
- identifies the comparators that will be used.
- Always conducting internal
evaluation and one external
evaluation last year.
- Constant external evaluation.
- Identify and agree the aims of
evaluation with members of the
target community in advance and
involve them in the planning,
design and implementation of an
evaluation framework.
- The indicator should take account
the opinion of resident.
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Regarding the forth question, both groups coincide on the same positive and optimistic
answer. All the participants answered that yes these recommendations could be applied to
other promotion programs or any other health program in Valencia and in Spain. In
addition, it was obvious in their answers that as long as the recommendations are applicable
to this program then they are applicable to other health promotion programs.
4.4 The final report, the “Recommendations List”
The “Recommendations list” is aiming to improve the participation of the community in
mihsalud and to make the work reflects the needs and priorities of those who will be
affected by the program. After conducting two focus groups and doing the transcription and
results, we can elaborate the list of recommendations. Like we have seen in the results,
there were points where the participants agreed that parts of NICE recommendations have
been already applied to the program, therefore we don’t have to include it in this list. Other
recommendations cannot be applied to the program for now so we can’t include them in
the list either. The rest of the recommendations and what the participants suggest that it
should be included in the program or should be taken into consideration for the next steps
while setting up the strategy of the program, are the foundations that we relied on to build
up this list of recommendations.
Based on the questions from the discussion that were very specific and aimed to collect
the opinion of the participants in details especially the question about the aspects that are
not currently been doing in mihsalud program although they have been covered by the
recommendations of NICE and therefore should incorporate it. We had a series of ideas and
suggestions from the participants, some of them were dominants and some of them were
unique with examples. After reading all the transcriptions we extracted all the ideas that
most suit mihsalud and we turned it into recommendations form. In order to be able to
demonstrate the recommendations, we have divided it into internal and external
recommendations. The two sections are relevant to the structure of the mihsalud program
and easy to understand. The internal recommendations are seven and they refer to what
the directors and health workers can do to improve the program and its structure, planning
phase, quality of people who execute the program, to get more people involved in the
Hiba Malek 69
program and to reach more vulnerable population. Meanwhile the external
recommendations are also seven recommendations that refer to what directors and health
workers can do to give the program more sustainability, to spread it on the public health
sector level and to be able to work on a long-term so the program will be more efficient.
“Recommendations List”:
Internal recommendations:
1- During the preparation of the program, the NICE recommendations should be taken
into account in order to set the general and specific objectives of the program. It
should be reviewed and discussed with the team to see what could fit in the
program guide.
2- One of the principle points in the program consist of doing training for the people to
have more Health Agents (Agentes de Salud) who help in the field. This could be
more efficient if there were a proper training for the professionals at some points.
3- There should be more specific plan to be able to identify the needs of the target
population in general and their health needs in particular. This could be through
community workshops that are designed and tailored to promote health.
Recognition of the territories’ needs and shortages. This must be done in
cooperation with associations, NGOs and other resources that may have more
information about these territories.
4- Make the residents of the community more involved in setting out their objectives
and making decisions. This will make the program reach more number of people in
need.
5- In order to integrate these recommendations to improve the performance of the
program, they should be working on two levels: one at the management level to
ensure long-term maintenance and another at a partnerships level, involving the
participants more in evaluating of results.
6- Specific objective for the program could be: to spread the program by seeking the
involvement of all professionals in the community and the community itself. For
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example, it could help presenting the program in schools that have children from the
vulnerable communities. It is a good way to get to know this program at schools. This
could reach the target community because most vulnerable communities have
children, and the children go to school, then by going to the schools to spread the
program it will reach a large part of the community. In addition at the level of the
high health responsible who are the primary care professionals, they should get
involved in the program to reach more population.
7- Regarding the evaluation in which to identify and agree on the objective of the
evaluation, it should be done previously with the community members and involve
them in planning the design and implementation of an evaluation framework plus
they are not taking into account the views of the society and associations to set the
indicators of the evaluation.
External recommendations:
1- The program is a part of the public health system, therefore it should be registered
and recognized by the public sector. This step will give the program more credibility
and will set lines for accountability.
2- Area-based Initiatives: involve communities in decision-making because they feel
more liberty to express their opinion and to give recommendations that make them
more involved in the program.
3- The sustainability of the program is its weakness point: some activities of the
program like the community territory revitalization last only for eleven months
which is a small period of time, but other activities last more and they are
continuous like forums and Health Agents courses. This will prevent the program
team and directors to set long-term objectives and the plan will be only for a short-
term. Therefore, the participation of the public sector has its impact on the
continuity of the program because not ensuring sustainability will lead to create false
expectations regarding participation.
4- Looking for more funding resources: without the financial aid the program cannot
continue and cannot be efficient. It will help a lot to have more than one sponsor for
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the program because now part of it depends on one bank entity and no one knows if
it will continue for the next year or not. In addition this limitations is not good for the
performance of the team in one part, and at the other part it will effect on the
people who get the services of the program. This should be in coordination with the
public sector.
5- Increase the population awareness about what the program is. The culture of the
community engagement in the health activities does not exist in our society and if
there isn’t a good base and the population failed to understand that part of their
day-to-day life, it will be very difficult for them to understand this intervention.
6- Introduce the mihsalud program to other health departments so they start
implementing it which will help to spread the program and give it more coverage in a
form more complementary.
7- Favoring a culture change in the public organizations, aimed at reaching every
professional at its level of performance. Enhance networking between all
organizations will lead to better coordination and performance.
5. Discussion
At the beginning of the discussion, it is very important to start talking about the two
focus groups that we have conducted. The importance of each group is that they are two
different groups, yet they are complementary. The program team give their opinion based
on their experience of implementing the program on the ground and dealing with people.
They share with them their interests and needs, then they convey the image of the situation
and their information to their supervisors during a weekly meeting. So their opinions are
very important because they emerge from the community itself where the real life is. The
directors of the program are well experienced in the community health field and their
opinions are based on their experience and also on the feedback they get from their teams.
They manage the program in their centers and they can identify its weaknesses and
strengths in a direct and effective wording. So their opinion is so valuables for this study and
it can upgrade the program to a high degree of efficiency.
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It is very important to strengthen the community actions and participation1. We have
seen that the program depends on the community residents in planning, designing and
coordinating the activities in advance which is the essence of the community engagement.
However, this stage should take into consideration all the residents of the community and
not to limit it to a particular category like population at risk. The community development
draws on existing human and material resources, existing personal skills and community
initiatives to enhance self-help and social support, and to develop flexible systems for
strengthening public participation in health matters. This requires full and continuous access
to information and learning opportunities for health, as well as funding support1. Based on a
study about the Community-based participatory research31 (CBPR) on the tribal
communities, the CBPR improves health and reduce health disparities with principles of co-
learning and long-term commitment.
Health promotion is not possible without the community participation24 in all it is
components, not only the residents but also the government, NGOs, associations and
looking for partnerships. Therefore, it is very important to register the program in the public
sector and look for more participation from the governments. Based on a case study of the
University of Brighton’s experience of evaluating such partnerships25, the support from
senior management is vital and the deputy vice-chancellor is part of the audit working group
and there is recognition at institutional level for the full range of the university’s community
partnership work. Achieving the sustainability of mihsalud and its continuity for a long-term
is essential to reach its goals with high level of community participation. So integrating the
public sector and have partnership is one part of the process, the other part is to look for
more funding resources for the program. The success of a health promotion program
depends on a good relationship of the three agents who are the protagonists of the
program. The three agents are:
1- Health administration on which the program depends.
2- Services, where technicians and professionals are there in the community to address
its problems.
3- The associations and the general public. Will be the protagonists of the process. The
process should incorporate both associations and groups formally constituted as
other actors and social leaders24.
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Although the community engagement and interventions might be costly because
participation is specified in a territory and requires instruments and channels that make it
possible24 plus the money spent on trainings and equipment7, but the NICE guidance makes
the best use of money while delivering high-quality care for patients and service users with
the most clinically- and cost-effective treatments available12. There is a study about
community-based health promotion program: Enhance Wellness26 (EW) that helps prevent
disabilities and improves health and functioning in older adults. It assessed the effect of EW
participation on health care costs. The outcomes were decreasing the total costs among EW
participants than nonparticipants, but this difference was not significant.
Health promotion is a continuous process with a beginning but not an end. Participation
is a process, both individually and collectively, in where citizens learn to participate. The
concepts of community activity, health promotion and health education, are used
sometimes as equivalent. The interplay between them is clear and strong which can lead to
confusion24. Mihsalud program provides community workshops, training and monthly
forums to people. Also it recognizes the diversity of each community and each person, but it
doesn’t provide diversity training. It is very important to conduct trainings that are
professional and useful even though it is too easy nowadays to get information through the
internet and social networks that are a place to exchange information and practical advice27.
The training cannot be effective if the participants are forced to participate and to avoid a
wrong participation it could be useful to define the eligibility criteria for a program
participation in a fairly explicit way28. The training for the communities has to be facilitated
in school, home, work and community settings1 which will help spreading the program,
increase the level of participation and the quality of the individuals. Doing so will change the
way the individuals behave toward both each other and communities which will help to
improve health and well-being and decrease health inequalities.
The degree of empowerment of individuals and groups in a community is the key to
move to the level of participation24 and let the individuals be part of the decision making
process is a smart act from the directors to get benefits from their existence skills and
experiences and it is crucial to increase the sense of leadership and responsibilities among
communities, furthermore it would be more beneficial to activate the role of neighborhood
Hiba Malek 74
managers in this process. It is proven in the study of Citizens’ participation in health:
education and shared decision-making27 that the formation of expert patients and training
peer strategies are increasingly being incorporated into the political agendas of public
health because patients may be experts in their own illnesses and managers of their own
health and may thus take more active role in decisions about their health, such as in shared
decision making, as part of initiatives, and as part of evaluation of public health activities
and health services27.
The large part that needs improvement in mihsalud is the evaluation part where they
have an internal evaluation and one external last year. The evaluation of community
engagement activities can focus on short, medium and longer-term outcomes29. Health
education and health promotion programs are complex phenomena which require the
application of multiple methodologies in order to properly understand or evaluate them and
recently qualitative approaches to evaluate community interventions were adopted by an
increasing number of evaluators to help understand and address these complexities. As a
consequence the issue no longer is whether to use quantitative or qualitative methods, but
rather how they can be combined to produce more effective results30. It will be beneficial to
mihsalud conducting such an effective evaluation because it will help to:
improve practice by identifying and articulating lessons, achievements and
benchmarks
contribute to engagement capability development by providing feedback on
performance
present opportunities for further citizen involvement in the evaluation process
contribute to performance monitoring and reporting for public sector
accountability29.
The most important values in community engagement process are integrity coupled
with humility. These values underlie how we present ourselves, and support our goals in
doing this work31 and providing the final report, the “Recommendations list” to improve the
community participation in mihsalud. The recommendations were elaborated based on the
opinion of the participants in the focus groups and taking into consideration what NICE
guidance6 says about writing recommendations.
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5.1 Limitations
The main limitation of this study may be due to the differences in the concept between
NICE guidance that was elaborated to be applied and practiced in England and a health
promotion program (mihsalud) in Valencia. However, the NICE guidance aims to be
international and to be a standard for the healthcare practice worldwide16.
In addition to this point, we have another limitation that is obvious to mention. For now
the Public Health guidance that we have which is Community Engagement guidance is not
new, it was issued in 2008. In this study we applied this guidance to a present program that
is still developing since 2007 which may include some incapability of timing. The new
guidance will be issued in 2016. Until then the 2008 guidance is the adopted one that we
can rely on to conduct a study and to get benefits of its recommendations.
It may be also important to mention that we are not involving all the individuals related
to mihsalud program because of the shortage of time. We have recruited health workers
and managers that are related to the program and we didn’t included a group of its
beneficiaries which may lead to an information and selection bias. We have a small sample
size, but we have overcame this limitation by the quality of people that we have recruited
for the focus groups.
5.2 Applicability & future lines
In this study we covered the recommendations from the point of view of the health
workers and directors who are related directly and indirectly to mihsalud. Their opinion is
very valuable and to measure the recommendations for this program it is good enough to
conduct these two focus groups, although it will be more useful to take the opinion of the
target population. Doing so will cover all the parts that may be related to the program.
In addition all the participants in the discussions expressed their desire to know the
results of the study. So it will be very useful to conduct a meeting in October 2015 for the
participants to present the “Recommendations list” that they should start to apply on
mihsalud and then to conduct a follow up meeting in October 2016 to see if the
recommendations have been applied or not, and if not then why? This step is very
Hiba Malek 76
important to give continuity to the study and to the program as well. Also this study can be
replicated to asses participation in health promotion and preventive programs carried out in
public health centers or primary care centers in Valencia.
As we mentioned before, the Community Engagement guidance was issued in 2008.
Therefore it would be much recommended to do another study when the new version of
the guidance is issued in 2016. To be up-to-date and in line with the new recommendations
from NICE guidance.
6. Conclusion
As a conclusion of this study, it is important to address the most relevant subjects that have
been raised:
1- It is important to start incorporating the community participation in the daily-life health
activities and to improve the community health perspective which may lead to achieving the
goal health for everyone.
2- There is a need to involve local communities in planning, designing and implementing
health related activities, particularly those experiencing disadvantages.
3- We can reach a large number of individuals and expand the target population to let more
people participate in and benefit from health promotion programs like mihsalud and raise
the culture of participation among all the levels of communities.
4- The Community Engagement guidance is very important as a guidance on how to increase
community participation in health promotion programs and depending on this guidance will
raise the standard of healthcare with the most cost effective way13, which is very important
to mihsalud because of the lack of funding.
5- Depend on preexistent skills and initiatives and develop new health professionals in the
community through adequate trainings and workshops. Cooperate with neighborhood
managers to organize activities.
Hiba Malek 77
6- Conduct a constant evaluation and identify the aim of evaluation with the members of
target community in advance, and develop indicators that help evaluate work, cost and
experiences.
7- In this study we have provided a “Recommendation list” on how to improve the
community engagement and participation in mihsalud in order to improve health and well-
being and reduce health inequalities.
8- The fourteen recommendations that we elaborated emerged from the opinions of people
who are well experienced in mihsalud, in particular, and in health promotion activities, in
general. So these opinions are credible and we turned them into recommendations to be
more clear and easy to understand in an organized way.
9- Incorporating these recommendations in mihsalud will increase the participation and
without a doubt, based on the opinion of the professionals, it will be beneficial to apply it to
other programs.
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8. Glossario7
8.1 Wider social determinants of health: The wider social determinants of health
encompass a range of social, economic, cultural and environmental factors known to be
among the worst causes of poor health and inequalities between and within countries.
They may include: unemployment, housing, unsafe workplaces, urban slums,
globalization and lack of access to healthcare.
8.2 Governance: The term governance refers to the overall exercise of power in a
corporate, voluntary or state context. It covers action by executive bodies, assemblies
(for example, national parliaments) and judicial bodies.
8.3 Health promotion: Health promotion comprises non-pharmacological activities that
seek to prevent disease or ill health or improve physical and mental wellbeing. An
example is the provision of advice to help communities reduce accidental injuries.
8.4 Regeneration: Regeneration is the process of improving an area by making changes
to – and investing in – the social, economic and environmental infrastructure. It can also
define action to tackle urban and rural problems in areas which have gone into decline.
8.5 Commissioners and providers: Commissioners may work in PCTs (Primary Care
Trust), local authorities and a range of other organizations. They decide who should
provide services and what form these should take. As part of this role they carry out
needs assessment and service reviews (including seeking feedback from service users),
contracting and procurement. Organizations or departments that provide services are
known as 'providers'. Again, they could be part of a PCT, local authority or another
organization in the community, voluntary and private sectors.
8.6 Area-based initiatives: Area-based Initiatives focus on geographic areas of social or
economic disadvantage. These publicly-funded initiatives aim to improve the quality of
life of residents and their future opportunities. They are managed through regional, sub
regional or local partnerships. Examples include Sure Start and New Deal for
Communities.
8.7 Neighborhood managers: Neighborhood managers offer a single point of contact for
local residents, agencies and businesses. They have the authority to negotiate with
service providers and to negotiate for change both locally and at senior level.
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9. Appendix
Appendix 1. Draft List in English
Recommendations to improve participation in health promotion program in Spain through
the NICE guidance -Community Engagement.
A qualitative descriptive study using content analysis in which focus group technique1
will be used to discuss the Draft List with the participants in order to elaborate the final
report which is the Recommendation List.
The Community Engagement Guidance2 aims to support those working with
communities and involving in decisions on health improvement that affect them in order to
reduce health inequalities and improve health and wellbeing of the individuals in the
society.
Objectives
The general objective of this study is to improve community & social participation in the
mihsalud program by elaborating the report "Recommendations List" taken from the
Community Engagement Guidance and apply it to the mihsalud program in Valencia.
Draft List
The Draft list is an extract from reading the Community Engagement Guidance 2008, its
updates 20143 and mihsalud program. It is an illustrations for recommendations that can be
used to improve and strengthen the concept of community engagement, develop a sense of
commitment in the individuals towards the society and daily-life health activities that may
lead to healthier life style. It will be used as a material source for discussion in 2 focus
groups in order to elaborate the final report: the Recommendation list.
Recommendations:
The recommendations present the ideal scenario for effective community engagement.
They cover four important themes:
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Prerequisites for success: including policy development (5 recommendations)
Infrastructure: to support practice on the ground (3 recommendations)
Approaches: to support and increase levels of community engagement (3
recommendations)
Evaluation (1 recommendation).
The recommendations considered the evidence of effectiveness and cost effectiveness.
According to the studies reviewed, the scientific evidence considered to be effective to
encourage community participation.
Community engagement is a sustainable goal and it’s a long-term practice that may lead
to a better life for the community in specific and the society in general to achieve the goal
“Health for everyone”
The guidance define Sustainability as the long-term health and vitality – cultural,
economic, environmental and social – of a community.
Main beneficiaries:
Communities and groups with distinct health needs
Communities that experience difficulties accessing health services or have health
problems caused by their social circumstances
People living in disadvantaged areas, including those living in social housing.
Who should take actions?
1. Those involved in the planning (including coordination), design, funding and
evaluation of national, regional and local policy initiatives.
2. Providers and commissioners in public sector organizations, local authorities
(including officers and elected members) and the voluntary sector who seek to
involve communities in planning (including priority setting and funding), designing,
delivering, improving, managing and the governance of:
a. Health promotion activities
Hiba Malek 83
b. Activities which aim to address the wider social determinants of health
c. Area-based initiatives.
3. Members of community organizations and groups and community representatives
involved in the above.
Prerequisites for effective community engagement
1. Policy development: plan, design and coordinate activities (including area-based
activities) that incorporate all the community components and organizations and
take account of existing activities.
2. Long term investment: align long-term approach with local priorities. Identify the
funding resource and the lines for accountability. Set realistic timescale. Build on
past experiences. Clearly state the intended outcomes of the activities.
3. Organizational and cultural change: identify how the culture of public sector
organizations supports or prevents community engagement. Diversity training.
Manage conflicts between communities and the agencies that serve them.
4. Levels of engagement and power: negotiate and agree with all relevant parties how
power will be distributed and state the responsibilities. Recognize local diversity and
let community members decide how willing and able they are to participate. Avoid
technical and professional jargon. Feedback mechanisms.
5. Mutual trust and respect: assess the broad and specific health needs of the
community (under-respected groups). Tailor the approach used.
Infrastructure
6. Training and resources: develop and build on the local community’s strengths and
assets. Provide opportunities and resources for networking. Identify funding sources
for training. Work with NGOs, volunteers. Provide accessible meeting spaces and
equipment. Train individuals from the community to act as mentors.
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7. Partnership working: develop statements of partnership working for all those
involved in activities. This will help increase knowledge and improve the
opportunities for joint working and/or consultation on service provision
8. Area-based initiatives: encourage local people to be involved in the organization and
by recognizing and developing their skills. Involve communities in decision-making to
have the power to influence decisions.
Approaches
9. Community members as agents of change: recruit local people to plan, design and
deliver activities to improve health. Encourage local communities to form a group of
‘agents of change’. Work with neighborhood managers to ensure the community’s
views are heard.
10. Community workshops: run community workshops (art, health, etc.) to identify local
needs and maintain a high level of local participation in health promotion activities
(co-managed by professionals and community members).
11. Resident consultancy: draw on the skills and experience of people with previous
experience of regeneration activities to improve social cohesion and general
wellbeing. Empower the concept of work ‘with’ rather than ‘for’ the local
community.
Evaluation
Better evaluation processes are needed to improve the quality of evidence and to
increase understanding of how community engagement and the different approaches used
impact on health and social outcomes.
12. Identify and agree the aims of evaluation with members of the target community.
This should be agreed before the activity is introduced
Involve them in the planning, design and implementation of an evaluation
framework that:
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- encourages joint development
- considers the theory of change required to achieve success
- embraces a mixed method approach
- indicators that help evaluate work, costs and experiences
- identifies the comparators that will be used.
Cost & Savings:
The guidance is unlikely to result in a significant shift in the use of NHS resources.
However, recommendations on the following may result in additional costs:
1- Training and development
2- Employing agents of change, either paid or voluntary
3- Evaluation of community engagement activities
4- Provision of Braille and loop systems and crèche facilities.
5- Carrying out research and consultation work
Glossary
Commissioners and providers: Commissioners may work in PCTs (Primary Care Trust), local
authorities and a range of other organizations. They decide who should provide services and
what form these should take. As part of this role they carry out needs assessment and
service reviews (including seeking feedback from service users), contracting and
procurement. Organizations or departments that provide services are known as 'providers'.
Again, they could be part of a PCT, local authority or another organization in the community,
voluntary and private sectors.
Area-based initiatives: Area-based Initiatives focus on geographic areas of social or
economic disadvantage. These publicly-funded initiatives aim to improve the quality of life
of residents and their future opportunities. They are managed through regional, sub
regional or local partnerships. Examples include Sure Start and New Deal for Communities.
Hiba Malek 86
Neighborhood managers: neighborhood managers offer a single point of contact for local
residents, agencies and businesses. They have the authority to negotiate with service
providers and to negotiate for change both locally and at senior level.
Regeneration: regeneration is the process of improving an area by making changes to – and
investing in – the social, economic and environmental infrastructure. It can also define
action to tackle urban and rural problems in areas which have gone into decline.
References
1- Mack N, Woodsong C, MacQueen KM, Guest G, Namey E. Methods : Methods [Internet]. Occasional
Paper Royal College Of General Practitioners. 2002. 4 p. Available from:
http://eprints.soton.ac.uk/170017/
2- Sustainable Cities Institute. Community Engagement. Natl Leag Cities [Internet]. 2012;(April 2009).
Available from:
http://www.sustainablecitiesinstitute.org/view/page.basic/class/tag.topic/community_engagement
3- Programme IP. National Institute for Health and Care Excellence. 2012;1–38.
Hiba Malek 87
Appendix 2. Draft List in Spanish
Recomendaciones para mejorar la participación en un programa de promoción de la salud
en España a través de la guía NICE de Participación Comunitaria
La Guía NICE de Participación Comunitaria1 tiene como objetivo apoyar a las personas
que trabajan con las comunidades tratando de involucrarlas en las decisiones sobre la
mejora de la salud que les afectan con el fin de reducir las desigualdades en salud y mejorar
la salud y el bienestar de los individuos en la sociedad.
Se plantea un estudio descriptivo cualitativo que utilizara el análisis de contenido a
través de la técnica de grupo focal2 para discutir el "Draft list" o “Propuesta de
recomendaciones” de la guía con el fin de elaborar un informe final, que será la
"Recommendations list" o “Recomendaciones para mejorar la participación comunitaria en
un programa de salud”.
Objetivo
El objetivo general de este estudio es mejorar la participación comunitaria y social en el
programa mihsalud a partir de la elaboración del informe "Recommendations list" resultado
de aplicar la Guía NICE de participación Comunitaria1 a este programa.
Draft List o “Propuesta de Recomendaciones”
La Draft List o “Propuesta de Recomendaciones” es un extracto de la lectura de la Guía
NICE de participación Comunitaria de 2008, sus actualizaciones de 20143 y el programa
mihsalud. Es un ejemplo de que tipo de recomendaciones pueden ser utilizadas para
mejorar y fortalecer el concepto de participación comunitaria, desarrollar un sentido de
compromiso en los individuos hacia la sociedad y con las actividades de salud de la vida
diaria que pueden conducir a un estilo de vida más saludable. Será utilizado como fuente de
material para la discusión en 2 grupos focales y elaborar el informe final:
"Recommendations list" o “Recomendaciones para mejorar la participación comunitaria en
un programa de salud”.
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Las Recomendaciones:
Las recomendaciones presentan el escenario ideal para la participación efectiva de la
comunidad. Abarcan cuatro temas importantes:
Prerrequisitos para el éxito: incluyendo el desarrollo de políticas (5
recomendaciones)
Infraestructura: apoyar la práctica sobre el terreno (3 recomendaciones)
Enfoques: apoyar y aumentar los niveles de participación de la comunidad (3
recomendaciones)
Evaluación (1 recomendación).
Las recomendaciones consideran la evidencia de la eficacia y su coste-efectividad. Según
los estudios revisados, la evidencia científica considera que cada una de estas
recomendaciones es eficaz para fomentar la participación de la comunidad.
La participación comunitaria es un objetivo sostenible y es una práctica a largo plazo
que puede conducir, específicamente, a una vida mejor para la comunidad y, en general,
para la sociedad, avanzando hacia la meta de "Salud para todos".
La guía define sostenibilidad como la salud a largo plazo y la vitalidad - cultural,
económica, ambiental y social - de una comunidad.
Principales Beneficiarios:
Las comunidades y grupos con distintas necesidades de salud
Las comunidades que experimentan dificultades de acceso a servicios de salud o que
tienen problemas de salud causados por sus circunstancias sociales
Las personas que viven en zonas desfavorecidas, incluidas las que viven en viviendas
sociales.
¿Quién debe actuar?
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1. Las personas involucradas en la planificación (incluida la coordinación), el diseño, la
financiación y la evaluación de las iniciativas de políticas nacionales, regionales y
locales.
2. Los proveedores y los comisionados en las organizaciones del sector público,
autoridades locales (incluyendo funcionarios y miembros electos) y el sector del
voluntariado que buscan involucrar a las comunidades en la planificación (incluido el
establecimiento de prioridades y la financiación), el diseño, la entrega, la mejora, la
gestión y la gobernanza de:
- Actividades de promoción de la Salud
- Actividades que tienen como objetivo abordar más los determinantes sociales
de la salud
- Iniciativas basadas en el territorio
3. Los miembros de las organizaciones comunitarias y los grupos y representantes de la
comunidad que participan en los anteriores.
"Draft list" o “Propuesta de recomendaciones” extraídas de la guía NICE:
Prerrequisitos para el éxito de la participación:
1. Desarrollo de políticas: planificar, diseñar y coordinar las actividades (incluidas las
actividades basadas en el territorio) que incorporan todos los componentes y
organizaciones de la comunidad y tengan en cuenta las actividades existentes.
2. La inversión a largo plazo: alinear un enfoque a largo plazo con las prioridades
locales. Identificar los recursos de financiación y las líneas de rendición de cuentas.
Establecer plazos realistas. Basarse en experiencias pasadas. Indicar claramente los
resultados esperados de las actividades.
3. El cambio organizacional y cultural: identificar cómo la cultura de las organizaciones
del sector público apoya o impide la participación comunitaria. Formación sobre la
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diversidad. Gestionar conflictos entre las comunidades y los organismos que les
sirven.
4. Los niveles de participación y el poder: negociar y ponerse de acuerdo con todas las
partes pertinentes de cómo se distribuye el poder y las responsabilidades. Reconocer
la diversidad local y dejar que las y los miembros de la comunidad decidan cómo
quieren y pueden participar. Evitar la jerga técnica y profesional. Incorporar
mecanismos de retroalimentación
5. La confianza mutua y el respeto: evaluar las necesidades de salud generales y
específicas de la comunidad (a partir del respeto a los diversos grupos existentes).
Adecuar el enfoque utilizado.
Infraestructura
6. Formación y recursos: desarrollar y construir sobre las fortalezas y activos de la
comunidad local. Proporcionar oportunidades y recursos para la creación de redes.
Identificar las fuentes de financiación para la formación. Trabajar con las ONG, el
voluntariado. Proporcionar espacios de encuentro accesibles y equipos. Capacitar a
individuos de la comunidad para actuar como mentores.
7. Trabajar de manera conjunta o en asociación: desarrollar formas de trabajo conjunto
para todos los que participan en las actividades. Esto ayudará a aumentar el
conocimiento y mejorar las oportunidades de trabajo conjunto y/o consulta sobre la
prestación de servicios.
8. Iniciativas basadas en el territorio: animar a la gente de la zona para que participen
en la organización a través de reconocer y desarrollar sus habilidades. Involucrar a
las comunidades en la toma de decisiones para poder de influir en las decisiones.
Enfoques
9. Miembros de la comunidad como agentes de cambio: reclutar a gente del ámbito
local para planificar, diseñar y ofrecer actividades para mejorar la salud. Animar a las
Hiba Malek 91
comunidades locales para formar grupos de 'agentes de cambio'. Trabajar con los
gerentes de barrio, área, etc. para asegurar que las opiniones de la comunidad son
escuchadas.
10. Talleres comunitarios: ejecutar talleres comunitarios (arte, salud, etc.) para
identificar las necesidades locales y mantener un alto nivel de participación local en
las actividades de promoción de la salud (cogestionadas por profesionales y
miembros de la comunidad).
11. Tener en cuenta la opinión de las personas residentes: aprovechar los conocimientos
y la experiencia de las personas con experiencia previa en actividades de
regeneración para mejorar la cohesión social y el bienestar general. Potenciar el
concepto de trabajo "con" en lugar de "por" la comunidad local.
Evaluación
Se necesitan mejores procesos de evaluación para mejorar la calidad de las experiencias
y para aumentar la comprensión de cómo la participación de la comunidad y los diferentes
enfoques utilizados impactan en los resultados sanitarios y sociales.
12. Identificar y acordar los objetivos de la evaluación con los miembros de la
comunidad de destino. Esto debe ser acordado antes de introducir la actividad.
Involucrarlos en la planificación, el diseño y la aplicación de un marco de evaluación
que:
- anime el desarrollo conjunto
- considere la teoría del cambio necesario para lograr el éxito
- contemple un enfoque mixto de la metodología
- incorpore indicadores que ayuden a evaluar el trabajo, costes y experiencias
- identifique los criterios de comparación que se utilizarán.
Hiba Malek 92
Costes y ahorros
La guía es poco probable que provoque un cambio significativo en el uso de los recursos
del NHS (Sistema Nacional de Salud). Sin embargo, las recomendaciones pueden
representar costes adicionales en:
1- Formación y desarrollo
2- Utilización de agentes de cambio, ya sean remunerados o voluntarios
3- Evaluación de las actividades de participación comunitaria
4- Provisión de sistemas de Braille, lenguaje de signos y servicios de guardería
5- Realización de investigaciones y trabajo de consultoría
Glosario
Comisionados y proveedores: Los comisionados pueden trabajar en los PCTs (Primary Care
Trust), autoridades locales y otras organizaciones. Ellos deciden quién debe proporcionar
servicios y qué forma deben tomar éstos. Como parte de este papel, llevan a cabo la
evaluación de las necesidades y opiniones sobre un servicio (incluyendo la búsqueda de
retroalimentación de los usuarios de los servicios), la contratación y las adquisiciones. Las
organizaciones o departamentos que prestan servicios son conocidos como 'proveedores'.
Una vez más, podrían ser parte de un PCT, la autoridad local u otra organización en la
comunidad, voluntarios y sectores privados.
Iniciativas basadas en el territorio: Se centran en áreas geográficas de desventaja social o
económica. Estas iniciativas financiadas con fondos públicos tienen como objetivo mejorar
la calidad de vida de los residentes y sus oportunidades futuras. Ellos son gestionados a
través de asociaciones regionales o locales. Los ejemplos incluyen Sure Start y New Deal for
Communities.
Gerentes de barrio: Las o los gerentes de barrio ofrecen un único punto de contacto para
los residentes locales, los organismos y las empresas. Tienen la autoridad para negociar con
Hiba Malek 93
los proveedores de servicios y negociar para el cambio tanto a nivel local como a nivel
superior.
Regeneración: La regeneración es el proceso de mejorar una área haciendo cambios en - o
invirtiendo en- la infraestructura social, económica y ambiental. También puede definir
actuaciones para hacer frente a los problemas urbanos y rurales en áreas que han entrado
en declive.
Referencias
1- Sustainable Cities Institute. Community Engagement. Natl Leag Cities [Internet]. 2012;(April 2009).
Available from:
http://www.sustainablecitiesinstitute.org/view/page.basic/class/tag.topic/community_engagement
2- Mack N, Woodsong C, MacQueen KM, Guest G, Namey E. Methods : Methods [Internet]. Occasional
Paper Royal College Of General Practitioners. 2002. 4 p. Available from:
http://eprints.soton.ac.uk/170017/
3- Programme IP. National Institute for Health and Care Excellence. 2012; 1–38.
Hiba Malek 94
Appendix 3. Focus group discussion in English
Discussion
1- How can we integrate these recommendations into mihsalud program in order to
improve performance and results of the program?
1.1 What you are currently doing in mihsalud program that matches what say NICE
recommendations?
2- What are the aspects that are not being implemented in the program?
2.1 What you are not currently doing in mihsalud program although this covered by the
recommendations of NICE and therefore should incorporate it?
2.2 What you are currently doing in mihsalud program and contrary to what say NICE
recommendations, therefore it should stop doing it?
3- What are the aspects that cannot be applied in mihsalud program for now?
4- If the recommendations can be applied to mihsalud program, do you think that can be
applied to other health promotion programs or any other health program?
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Appendix 4. Focus group discussion in Spanish
Discusión
1. ¿Cómo podemos integrar estas recomendaciones al programa mihsalud con el fin de
mejorar el rendimiento y los resultados del programa?
1.1 Lo que SI se está haciendo actualmente en el programa mihsalud que coincide
con lo que dicen las recomendaciones de NICE
2. ¿Cuáles son los aspectos que NO se están aplicando en el programa?
2.1 Lo que NO se está haciendo actualmente en el programa mihsalud aunque SI
este contemplado en las recomendaciones de NICE y por lo tanto, se debería de
incorporar.
2.2Lo que SI se está haciendo actualmente en el programa mihsalud y va EN CONTRA
a lo que dicen las recomendaciones de NICE y por la tanto, se debería dejar de hacer.
3. ¿Cuáles son los aspectos que NO se pueden aplicar en el programa mihsalud en estos
momentos?
4. Si las recomendaciones se pueden aplicar al programa mihsalud, ¿Crees que se
pueden aplicar a otros programas de promoción de la salud o cualquier programa de
salud?
Hiba Malek 96
Appendix 5. Invitation e-mail
evaluacion de la participación comunitaria en el programa mihsalud
Pilar López Sanchez
May 5
CC
Desde el Centro de Salud Pública de Valencia, nos gustaría invitaros a una reunión que tendremos el
próximo martes 19 de mayo, de 12 a 14 horas, aquí en nuestro centro, para evaluar la participación
comunitaria en el programa mihsalud y en general en otros programas de salud desde la evidencia.
La reunión será moderada por Hiba Malek y forma parte de la tesina del master de salud púbilca de la
Universitat de Valencia que está realizando.
Pensamos que es una oportunidad para encontrarnos, compartir nuestra experiencia en relación al
programa mihsalud y aprender nuevas cosas sobre evidencia y participación.
Un saludo y os esperamos,
Mª Pilar López Sánchez
Enfermera de Salud Pública
Centro de Salud Pública de Valencia
Consellería de Sanidad
Ciudad Administrativa 9 de Octubre
C/ Castan Tobeñas, 77- Torre B, planta -1
Hiba Malek 97
46018 Valencia
Teléfono 96 1. 24 .80. 83
CONFIDENCIALIDAD: El contenido de este mensaje y el de cualquier documentación anexa es confidencial y
va dirigido únicamente al destinatario del mismo. Si usted no es el destinatario, le solicitamos que nos lo
indique, no comunique su contenido a terceros y proceda a su destrucción.
CONFIDENCIALITAT: El contingut d’este missatge i el de qualsevol documentación annexa és confidencial i
va dirigir únicamente al destinatari. Si vosté no és el desintari, li demanem que ens ho indique, no
comunique el seu contingut a tercers i destruïsca’l.
Hiba Malek 98
Appendix 6. Meeting guide for the focus group
Focus Group Guide
Moderator (M): Note-taker:
Date:
Participant #:
Venue: Public Health Centre of Valencia
Consent form
Consent form for focus group participants are completed in advance on the entrance to
the meeting room (Appendix 8) by all those seeking to participate. Organizers and
facilitators should use it to make sure participants understand the information in the
Consent forms.
1- Introduction:
Moderator: Bienvenido, Gracias por venir a nuestro grupo de discusión. Mi nombre es Hiba y
este es mi colega -------.
Pass on the Sign-In Sheet with a few quick demographic questions (age, gender, cadre, and
years at this facility) around to the group while I’m introducing the focus group.
M: Gracias por aceptar participar usted. Nos interesa mucho conocer su opinión valiosa
sobre cómo guía participación comunitaria puede ser útil para mejorar la participación de la
comunidad en el programa mihsalud. La información que nos proporciona es
completamente confidencial, y no vamos a asociar su nombre con todo lo que diga en el
grupo focal. Nos gustaría grabar los grupos focales para que podamos asegurarnos de
capturar los pensamientos, opiniones e ideas que escuchar del grupo. No hay nombres se
Hiba Malek 99
unen a los grupos focales y las grabaciones serán destruidos tan pronto como se transcriben.
Entendemos lo importante que es que esta información se mantiene como privado y
confidencial. Vamos a pedir a los participantes a respetar la confidencialidad de los demás.
Ahora me gustaría preguntar a cada uno de ustedes a presentarse y lo que hace?
¿Por cuánto tiempo ha estado en este trabajo?
2- Explanation of the process:
El moderador podrá pedir al grupo si alguien ha participado en un grupo focal antes y se
explicará que los grupos focales se están utilizando cada vez más a menudo en la salud y
servicios humanos de investigación.
About focus groups
We learn from you (positive and negative)
Not trying to achieve consensus, we’re gathering information
3- Logistics:
M: la discusión tendrá una duración de aproximadamente una hora y media, por favor
siéntase libre para moverse, para ir al baño y salida.
Materials and supplies for focus groups:
1. 3 Sign-in sheets
2. Consent forms (one copy for participants, one copy for the team)
3. Pens & notebook for the moderator and the note-taker
4. 1 tape recorder with multiple cassettes tapes and spare batteries
5. Focus Group Guide for Facilitator
6. Recommendation sheet which is summary for the community engagement guidance
in English. One copy for each participant.
Hiba Malek 100
7. "Draft list" sheet in Spanish language. One copy for each participant.
Reglas básica:
El moderador pedirá al grupo que sugiera algunas reglas básicas. Después lo hacen, el
moderador debe asegurarse de lo siguiente están en la lista:
• Todos deben participar.
• La información proporcionada en el grupo focal debe ser confidencial
• Permanecer con el grupo y por favor no tener conversaciones laterales
• Apagar los teléfonos celulares si es posible
• Diviértete
4- Turn on the Tape Recorder
5- Discussion:
At the beginning of the discussion, the moderator should make sure that the participants
understand every recommendation and the following question, then gives them time to
think before answering the questions and doesn’t move too quickly.
M: Vamos a empezar la discusión por una pequeña presentación sobre el estudio, entonces
vamos a empezar con el proyecto de lista que queremos que la discusión sea sobre.
Queremos que escucha con atención a cada recomendación y de acuerdo a su experiencia
como profesional que le gustaría llevar a su opinión con respecto a las siguientes preguntas:
Discusión
1. ¿Cómo podemos integrar estas recomendaciones al programa mihsalud con el fin de
mejorar el rendimiento y los resultados del programa?
1.1Lo que SI se está haciendo actualmente en el programa mihsalud que coincide
con lo que dicen las recomendaciones de NICE
Hiba Malek 101
2. ¿Cuáles son los aspectos que NO se están aplicando en el programa?
2.1 Lo que NO se está haciendo actualmente en el programa mihsalud aunque SI
este contemplado en las recomendaciones de NICE y por lo tanto, se debería de
incorporar.
2.2Lo que SI se está haciendo actualmente en el programa mihsalud y va EN CONTRA
a lo que dicen las recomendaciones de NICE y por la tanto, se debería dejar de hacer.
3. ¿Cuáles son los aspectos que NO se pueden aplicar en el programa mihsalud en estos
momentos?
4. Si las recomendaciones se pueden aplicar al programa mihsalud, ¿Crees que se
pueden aplicar a otros programas de promoción de la salud o cualquier programa de
salud?
Categories: Community engagement, Community participation, health promotion, wellbeing
and participation.
6- Closure
M: ¿Hay alguna otra información acerca de su experiencia con este campo que crea que
puede ser útil para mí saber?
Muchas gracias por venir y compartir sus pensamientos y opiniones con nosotros. Su tiempo
es apreciado y sus comentarios han sido de gran ayuda.
Hiba Malek 102
Appendix 7. The presentation for the focus group
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Appendix 8. Consent form
HOJA INFORMATIVA Y CONSENTIMIENTO INFORMADO
Nombre del participante: __________________________________________
Nos gustaría invitarle a participar en el estudio de investigación que se ha estado
haciendo para el master de Salud Pública y Gestión Sanitaria de la Universidad de Valencia.
El equipo del estudio está formado por Hiba Malek farmacéutica y alumna del master, Joan
J. Paredes Carbonell, tutor del presente proyecto y que trabaja como médico de salud
pública del Centro de Salud Pública de Valencia e investigador colaborador de FISABIO y
Pilar López Sánchez que trabaja como enfermera de salud pública del Centro de Salud
Pública de Valencia
Objetivo del estudio:
El objetivo general de este estudio es mejorar la participación comunitaria y social en el
programa mihsalud elaborando el informe "Recommendation List", a partir de la
Community Engagement guidance y aplicándolo al programa mihsalud en Valencia.
La "Recommendation List" podría utilizarse para mejorar y potenciar el concepto de
participación de la comunidad, desarrollar un sentido de compromiso de los individuos hacia
la sociedad y de las actividades de salud de la vida diaria que pueden dar lugar a un estilo de
vida más saludable.
Consentimiento informado
Entiendo, ante todo, que la participación en este estudio es completamente voluntaria.
Si decido participar en el estudio deberé contestar algunas cuestiones por el equipo de
investigación. Dicha actividad se realizará el día ___ del mes de _____ en la sala __ del
Hiba Malek 109
Centro de Salud Pública de Valencia a las ___ horas. Se realizarán un grupo focal durante
una hora y media aproximadamente. El equipo de investigación estará presente durante
toda la actividad. La información obtenida quedará registrada en una grabadora de sonido y
en el cuaderno de campo que estará tomando algún miembro del equipo investigador.
Confidencialidad:
Todos los datos y la información que proporcione durante el estudio, serán tratados con
total confidencialidad. Las grabaciones de audio, así como los datos recabados en el
cuaderno de campo, serán de uso exclusivo para los investigadores. Cualquier información
que pueda identificarle por su nombre no será compartida con nadie fuera del equipo
investigador. No se le podrá identificar en ninguna de las publicaciones que se pudieran
llegar a realizar como fruto de la presente investigación.
Todos los datos personales y los archivos sonoros y escritos obtenidos serán
incorporados a un sistema de archivos encriptado que quedará bajo la custodia del equipo
investigador, que garantizará la confidencialidad de los mismos, pudiendo los afectados
ejercer su derecho al acceso, cancelación u oposición en el momento en que consideren
oportuno, dirigiéndose a la siguiente dirección:
Centro de Salud Pública de Valencia
Ciudad Administrativa 9 de Octubre
Edificio B, planta B, -1
C/ Castan Tobeñas, 77. 46018 València
Tel. 961-248069
Abandono del estudio:
Entiendo que soy libre de abandonar el estudio en cualquier momento, puesto que mi
participación en este estudio es voluntaria.
El equipo de investigación del estudio le agradece de antemano su tiempo y dedicación.
Hiba Malek 110
¿Ha leído la hoja informativa? SI / NO
¿Ha tenido la oportunidad de hacer preguntas y aclarar todas aquellas dudas que tenga
sobre el estudio? SI / NO
¿Ha recibido respuestas satisfactorias a todas sus preguntas? SI / NO
¿Entiende que es libre de dejar el estudio en cualquier momento? SI / NO
¿Está de acuerdo en participar en el estudio? SI / NO
Valencia, a ______________ de ____________ de ____________
Nombre y apellidos del participante. Firma
Nombre y apellidos del equipo investigador. Firma
Hiba Malek 111
Appendix 9. Debriefing session 1
Focus Group Debriefing Form
Archival #: 1
Sita: Centro de Salud Pública, Valencia
Number of participants: 6 participants Moderator: Hiba Malek
Date: 18- May- 2015 Note-Taker: Pilar López Sanchez
- Hiba presente Sonia.
- Pide el consentimiento para realizar el grupo focal.
- hay 6 participantes.
- Hiba explique que es el guía NICE y el guía de Community Engagement que tiene 12 recomendaciones.
- Explique los grupos focales.
- Se hace una lectura de las recomendaciones para que se entiende antes de comenzar la discusión.
- Se eliminan las dudas.
- Comienza el grupo focal.
Cada participante ha dado su opinión.
Hiba Malek 112
Appendix 10. Debriefing session 2
Focus Group Debriefing Form
Archival #: 2
Sita: Centro de Salud Pública, Valencia
Number of participants: 6 Moderator: Hiba Malek
Date: 19- May- 2015 Note-Taker: Pilar López Sanchez
- Grupo focal con directores de Centros sanitarios y coordinadores de centros que conocen el programa mihsalud.
- Cada participante presenta.
- Hiba presente su trabajo y le explique después se leen las preguntas y la lista de recomendaciones. Se deja un tiempo para
preparar.
- A continuación comienza el grupo focal a 13h.
-Concluye 13:30h.
Hiba Malek 113
Appendix 11. Focus group transcription 1
Focus Group Transcript
Archival #: 1
Sita: Centro de Salud Pública, Valencia
Number of participants: 6 participants
Date: 18- May- 2015 Moderator: Hiba Malek
Start: 12 p.m. End: 1:30 p.m. Note-Taker: Pilar López Sanchez
Pregunta 1:
¿Cómo podemos integrar estas recomendaciones al programa mihsalud con el fin de
mejorar el rendimiento y los resultados del programa?
1- Podemos integrarlas en el primer mes de formación. Podemos establecer unos días para
ver cuales, para coger los estos prerrequisitos que hemos visto hoy y ver cuáles lo más
importante y a cuáles deberíamos llegar como objetivo principal, no como, a partir de esto
tener una meta. La meta para mi seria el trabajo con la comunidad, el integrarlos y hacerlos
las actividades muchas veces vamos, proponemos un tema y nos faltaría escuchar o que
proponer que vengan ellos también con nosotros hacer los talleres que sí que hay ciertas
personas de la comunidad que están formando para poder desde centro hacer la educación
igual-igual que es lo que también tratas de este proyecto. Pero a veces sí que desde mi punto
de vista pienso que nos falta ese compañerismo con las, con sector, un punto más más
personal para saber cómo hacer los talleres.
2- En la primera de prerrequisitos para el éxito de la participación creo que el punto uno sí, sí
que se da. El punto número dos que habla sobre el tema de largo plazo no se da justamente
en este programa mihsalud porque se va dando anualmente en este caso fue 2014 y ahora
2015 y no sabemos y 2016 y sucesivos años se van a dar desafortunadamente porque no
está implementado dentro de la salud, centro de la salud pública de Valencia , no tiene como
algo fijo ni siquiera lo ven los centros de salud o le están empezando a ver, hay una ONG que
Hiba Malek 114
lo está financiando pero no lo he financiado porque ella puede si, sino porque hay otra ONG
u otra entidad bancaria que la que da el dinero. Entonces cuando esta entidad bancaria veía
que esto no va ya esta se termine el proyecto entonces todo el trabajo que estamos
haciendo, bueno, muy bien hecho está, pero quedar allí. Entonces no habrá continuidad. La
sostenibilidad es el punto flaco y fuerte que este programa tiene. Es eso. En cuanto al
cambio organizacional creo que falta por parte de sector público impide la participación
comunitaria. Supongo que no es de manera que lo hace porque si, sino porque su, sus
estamentos cómo está su manera organizacional en este caso la Generalitat valenciana o
sanidad no fomenta, no fomenta ese vínculo a participación en centro de salud barrio
asociaciones. Y creo que lo se está generando a través de mihsalud es eso. Intentar hacer
red, entra-asociaciones, centro de salud, la gente, la barro. Pero vuelvo a decir como no hay
sostenibilidad de este programa eso quedara en el aire o puede ser en el caso del
apartamento diez que hay un centro de salud fuente de san Luis que se está empezando a
querer enganchar pero claro eso se da tiempo como tiempo desafortunadamente nosotros
tenemos limitado hasta 2015 no lo sabemos. Luego niveles de participación si hay, hay
participación sin intenta evitar la jerga técnica y profesional porque se intenta hacer que
esto sea más horizontal a través de la educación entre iguales y el tema de formación sobre
la diversidad, gestionar conflictos entre comunidades y organismos, yo creo que está medias
porque sí que si hace el tema de inter-cualidad o relaciones con otra culturas a través del
tema de la salud y el uso correcto de los servicios, pero gestionar conflictos y todo eso quizás
yo lo he visto en otra comunidades sí que si lo hacen.
3- En cuanto a los prerrequisitos para el éxito de la participación creo que todos los puntos
están llevando acabo excepto el punto 2 que habla del enfoque a largo plazo. Nuestro
proyecto tiene duración de once meses por tanto no se puede aplicar actividad a lo largo
plazo, son a corto plazo y si son realistas como viene aquí. El tema de las organizaciones de
sector público se apoya o impiden a participación comunitaria se trata un proyecto de salud
pública llevado acabo por una ONG, colaboración con entidad bancaria por tanta el respaldo
público, digamos ese reconocimiento público que forme parte del sistema sanitario público
no existe, por tanto ese enfoque créenos que falta, realmente no que sea un proyecto
integrado dentro del marco de la sanidad pública. Tema formación sobre diversidad creo que
falta información sobre la diversidad cuanto, a nivel de los profesionales y todo,
Hiba Malek 115
evidentemente la formación, la diversidad no existe. A veces un poco a lo mejor lo que uno
que puede leer o informarse pero dentro de la formación propio de los profesionales no
existe, es algo o punto que debería existir. En cuanto a la infraestructura todos los puntos se
llevan a cabo. En cuanto al enfoque el tema de los talleres comunitarios, los talleres son
dirigidos a promover la salud, la identificación de las necesidades locales se hace con el
reconocimiento de los territorios y con los informadores clave tanto a nivel asociaciones y los
otros recursos que tiene información. Tú puedes identificar necesidades a población pero no
como tal si no la salud y aparte de allí salen necesidades evidentemente. En cuanto a la
evaluación los objetivos de la evaluación con los miembros de la comunidad están enfocado
dese la comunidad. Los objetivos de la población no están, yo creo que no es parte de la
comunidad, esa, no hay gente de la comunidad que esté participando en esos objetivos
decidiendo cuales son los objetivos de la población. En cuanto a los indicadores si se están
aplicando, todavía están en marcha para poder evaluarlos.
4- Viendo estas recomendaciones creo que son muy importantes pero en algunas de ellas no
podemos influir por en el nivel en el que participamos. Pero algunas están integradas y
pondría un énfasis en la participación de la comunidad en este proyecto. En la permanencia
del programa que solo tiene una duración de once meses, que sería importante la
continuidad para generar una mejora de los resultados. Y también poner énfasis en los
criterios de evaluación que todavía no los tenemos bien, en buen término para poder tener
una retroalimentación favorable y poder seguir hacia adelante.
5- Todas las semanas planificamos y coordinamos actividades en cada territorio que
trabajamos y "silencio".
6- Bueno yo creo que para integrar estas recomendaciones en el programa mihsalud. Creo
que la mayoría o sean que todo el programa contempla las recomendaciones no sé si se
habrá basado en ella o no pero las contempla y sí que ,bueno, que creo que se deberían
como han dicho antes las compañeras se deberían tener en cuenta durante el periodo de
formación a lo mejor igual que se revisan los objetivos generales y específicos del programa
se podría revisar el programa para ver si se ajusta y como se podría ajustar más o menos
este esta guía, no? ya están haciendo, están aplicando a los servicios tanto salud pública que
la lleva el proyecto junto con la asociación y se están intentando implicar cada vez más a los
servicios sanitarios a los directores de los hospitales de la atención primaria y a los centros
Hiba Malek 116
de salud en lo que se está realizando el proyecto. En cuanto a la evaluación, la otra yo creo
que casi todas sí que hay que muchos de los puntos forman parte del objetivo del programa
y en cuanto a la evaluación el único punto que yo creo que se han tenido en cuenta o se han
realizado la evaluación del programa y se está haciendo pero sí que ahora se están
introduciendo los indicadores nuevos que se han hecho, están evaluando ahora una vez que
se ha empezado el proyecto porque ya estamos esperando todavía pero por dificultades
técnicas, no?
Pregunta 1.1:
Lo que si se está haciendo actualmente en el programa mihsalud que coincide con lo que
dicen las recomendaciones de la guía NICE?
1- El planificar designar y coordinar actividades que son los talleres, nos organizamos antes
de ir, tenemos una guía que ofrecemos y también nos adaptamos a las necesidades que nos
puedan surgiendo. Eso sí que esta no es así al tun tun, ordenado y bien hecho estructurado,
después algo de sí que está haciendo también es vale los deberes de participación y el poder:
negociar y ponerse de acuerdo con las partes principales de cómo distribuirse el poder y
responsabilidades, en el grupo mismo en el periodo de formación hicimos como reparto de
tareas a quien responde cada causa, por ejemplo el registro de las conversaciones
informales, visita a puntos informativos, hay aquellas causas que no responden a los agentes
de salud y hay otras causas compartidas con la enfermera y otras que son totalmente de la
enfermera, entonces esa repartición de tareas sí que se da, y también la confianza mutua y
respeto el evaluar a los necesidades de salud, generar específicas de la comunidad. Bueno
vimos el territorio y evaluamos internamente la población, vemos que necesidades pueden
tener más, si es una población muy joven con muchos hijos o a lo mejor pueden tener más
falta de información sobre métodos anticonceptivos adaptando también que sí que hay una
evaluación de las necesidades. En cuanto a temas de infraestructura el capacitar a los
individuos de la comunidad para actuar como mentores para solicitar a curso de agente de
salud que coge forma a los propios líderes de la comunidad podríamos decir paraqué haga
como educadores entre iguales entre sus amigos familia y compañeros. Pues trabajar de
manera conjunta buena asociación promovemos todo el trabajo en red sí que es uno de los
puntos fuertes de este proyecto esta promoción del trabajo en red. Iniciativas basadas en el
territorio, involucrar las comunidades en tomar las decisiones para poder influir en las
Hiba Malek 117
decisiones estas poco a poco cuando ya vas introduciendo de la población en el sector vas
viendo que te puede dar recomendaciones. Pues sí que nos había falta a lo mejor un taller o
información sobre el cuidado del niño para involucrarse en el tema de los talleres. La
participación a lo mejor que más que puede tener. Enfoques, remembro de la comunidad
como agentes de cambio hecho antes como el curso de agente salud eso muy importante
para formar a las gentes como líderes bien formados y capacitarlos para ejercer como tal.
Los talleres comunitarios también creo que se llevan a cabo bien en salud y sobre todo. En el
trabajo "con” la comunidad en vez de "por" la comunidad el hacerlo con ellos, entonces
nosotros no somos un servicios que venimos a darlos tal, si no, os gusta también sí que
participen ellos y que los talleres no los damos nosotros, una charla, si algo técnico y teórico.
Sí que no es algo totalmente dinámico y que ellos van a participar y hacerse protagonistas
ellos de su salud y el tome de confidencia. Después y el tema de evaluación que es algo que
ya hemos comentado antes que no depende de nosotros.
2- Sobre prerrequisitos en la participación, el desarrollo y planificar, diseñar actividades eso
se da. Basadas en el territorio si porque antes de empezar a trabajar en la zona básica de
salud, si el equipo de agente de salud con enfermera hemos recorrido palmo a palmo y se da
ese reconocimiento en el lugar donde vamos a trabajar. El tema de los niveles de
participación sí que también se está dando por esto momento que estaba diciendo,
reconocer la diversidad local, bueno decidan como quieren y pueden participar eso es un
poco a media porque una vez conocido lugar e empezar a hacer contacto con la personas
que tienen capacidad liderazgo le va comentando como es el proyecto pero a su vez es eso
también te dicen sus necesidades, entonces son especia de si algo mas in conjunto, pero ellos
como tal no deciden de directo. Evitar la jerga técnica y profesional, incorporar mecanismo
de retroalimentación creo que también se hace. La confianza mutua, adecuar el enfoque
utilizado, evaluar las necesidades de salud generales, si eso todo tiene que ver porque se
empezó a hacer un trabajo en una zona básica de salud pero reconociéndola. En cuanto a la
infraestructura sí que se trabaja con ONGs se proporcionen pasos de encuentro accesibles y
capacitan a los individuo de la comunidad para actuar a través el curso de agente de salud.
Se trabaja también en forma conjunta con asociaciones se trata de crear esa red de apoyo
entre asociaciones, centro de salud, agente de salud y la comunidad. Iniciativas basadas en
el territorio a la gente en la zona que participen para desarrollar sus habilidades sí que se da.
Hiba Malek 118
El tema de enfoques diseñar planificar actividades también, trabajar con los gerentes del
barrio los líderes comunitarios que nosotros hemos detectado. Talleres comunitarios o
talleres de salud que hacemos si también se dan, se identifica las necesidades porque
cuando vas a las asociaciones o a los sitios y ves y pregunta cuáles son tus usuarios/usuarias,
que tipo de necesidades tienen, eso de dicen. Me gustaría que hable sobre fertilidad
anticonceptivo que hable sobre el sueño.
3- Que está haciendo en coordinación con la guía NICE. El prerrequisitos para participación
están llevando acabo toda las herramientas aquí indicadas excepto el punto 2 que es la
cuestión de largo plazo, en el parte del sector público sí que se apoyan porque ese parte
dentro de los centros de salud el proyecto. El infraestructura todos los puntos indicados
también están llevando a cabo desde el proyecto al igual que el enfoque. Y respeto a la
evaluación se realizan evaluaciones internas con los equipos y centros de salud pública a
parto al año pasado se hice una evaluación externa.
4- En mi opinión lo que dice la guía NICE con respecto a lo que es el proyecto mihsalud creo
que están llevando a cabo la siguiente actividades que son la formación de agente de salud
en base comunitaria que viene enfocado estas entre infraestructura e enfoques. La captación
de recursos con ACUET, el centro de salud y la CAIXA. El trabajo en conjunto con ONGs y
asociaciones para mejorar la participación entre ambos. La participación o el espacio de
encuentro que es el foro de segundo martes. Los gerentes de bario como líderes
comunitarios y lo que es el trabajo del barrio y también captar los miembros de la
comunidad como agentes de cambio y realización de talleres comunitarios en promoción de
la salud. La realización de nuestras fortalezas y activos de la comunidad local mediante del
"Rapid upraisel" y el mapa comunitario.
5- Todas las semanas planificamos y coordinamos actividades e identificamos claramente los
resultados. Reconocemos la diversidad de las personas y trabajamos con asociaciones y
hacemos talleres en una manera que las personas lo entiendan y se integran.
6- En cuanto a los prerrequisitos sí que se dan en cuenta mediante la formación inicial la
reunión de equipo y la reunión de cada departamento. Reconocimiento de territorio
previamente de la gerente del barrio. En cuanto a la infraestructura por lo mismo sí que se
intentar fomentar el trabajo entre de asociaciones servicios sanitarios y todo eso y se intenta
fomentar que la persona se participe de la propia comunidad que participen de forma activa.
Hiba Malek 119
Eso también del enfoque. De la evaluación por lo que hemos dicho antes que se hacen
evaluación interna y una externa y que también proceso introducir de nuevos incitadores.
Pregunta 2:
¿Cuáles son los aspectos que NO se están aplicando en el programa mihsalud?
1- De infraestructura está todo. Enfoques pienso que también. El tema de la continuidad eso
es el básico, eso pienso que es el único que no está ampliando, a parte de la evaluación el
inversión a largo plazo.
2- Lo que no se da creo que sobre todo el punto como dije el proyecto a largo plazo la
sostenibilidad del programa es el punto débil, la participación del sector público al programa
mihsalud no es totalmente fija. En mihsalud que supongo que tendrá que ir construyendo. Y
sobre el tema de gestión de la diversidad los currículos de los profesionales de los recursos
sanitarios creo que faltaría y no sé.
3- Los aspectos que no están aplicando es el largo plazo luego la participación de sectores
públicos el reconocimiento del proyecto dentro que forma parte dentro del sistema sanitario
y la continuidad duración de once meses.
4- Lo que no se está llevando acabo es la inversión a largo plazo para la sostenibilidad del
programa y la participación del sector público al reconocimiento de este proyecto para esta
sostenibilidad.
5- Lo que so se está es la continuidad del programa.
6- Lo que no se está aplicando lo que han dicho mis compañeros la inversión a largo plazo, la
sostenibilidad por el parte pública y lo que comentaban antes de que problema técnicos
están haciendo evaluación interna y externa pero los indicadores sí que están muy
intentando marcarlos para que se evidencia no resultado que está teniendo el programa.
Pregunta 2.1:
¿lo que no se está haciendo actualmente en el programa mihsalud aunque si se esté
contemplando el las recomendaciones de NICE y por lo tanto se debería de incorporar?
1- Como antes lo que no se está haciendo y debería incorporarse es la continua del proyecto
y una evaluación externa a lo mejor más constante.
2- También el punto uno es el mismo lo que debería hacerse que tuve una sostenibilidad. 2
Hiba Malek 120
que lo tiempos del sector público se adecuan a los necesidades de este proyecto participativo
que le falta problema burocráticos.
3- La sostenibilidad del programa del proyecto y que es incluya dentro del sistema sanitario
público.
4- La participación del sector público para la continuidad del proyecto en sostenibilidad.
5- Lo mismo la continuidad del programa y que se incluyen en el sistema sanitario público.
6- La integración del proyecto en la administración pública también.
Pregunta 2.2:
¿Lo que si se está haciendo actualmente en el programa mihsalud y va en contra a lo que
dicen las recomendaciones de NICE y por lo tanto se debería dejar de hacer?
1- Yo pienso que no veo nada que vaya en contra de los establecidos los requisitos para la
participación.
2- También o dar la vuelta lo que dice la compañera 1 lo que no debería ser tal vez es
depender de una entidad bancaria para que esto continúe por lo tanto volvemos a lo mismo
que es el sector pública debería asumir este financiación de este programa. Ponerlo dentro
su bolsa de cartera de servicio.
3- Las recomendaciones de la guía NICE creo que no vaya ninguna en contra si que debería
forma parte del sistema sanitario público para tener una continuidad a largo plazo.
4- Lo que se está haciendo es una financiación a corto plazo que va en contra de las
recomendaciones NICE que debería ser a una planificación a largo plazo para que el proyecto
tenga frutos en el futuro.
5- Pienso que está todo ordenado.
6- Creo que está todo de las recomendaciones solo que debería incluirse la administración de
una continuidad.
Pregunta 3:
¿Cuáles son los aspectos que no se pueden aplicar en el programa mihsalud en estos
momentos?
1- Pienso que el tema del trabajo con la comunidad que la comunidad se integre de la plena
participación del proyecto es un tema que tenemos que trabajar bastante porque es aparte
es una población muy cambiante de las condiciones bastante personales y sociales y
Hiba Malek 121
económicos bastante difíciles que impide también esa plena integración del programa que
dificulta a lo mejor esa participación. Hacer partícipes todavía más en el proyecto.
2- También como ha dicho la compañera falta también esa porque hay un paso primero
conocemos los equipos de salud y luego vamos a ver que necesitas las personas. Tal vez lo
que no se hace también es potenciase trabajo “con” en lugar de “por” en la comunidad local.
3- No se puede aplicar actividades a largo plazo por el hecho de la continuidad que tiene
duración de once meses entonces por tanto no podemos ver resultados ni planificar
actividades a largo plazo.
4- Yo creo que lo que no se puede aplicar al 100% es la participación del sector público por
cuestiones políticas para la continuidad del programa.
5- (no tiene nada a decir)
6- lo que no se puede aplicar a largo plazo la participación de parte de los sectores de tanto
de la población como de centro sanitario eso no ha transmitido cierta dificultado.
Pregunta 4:
Si las recomendaciones se pueden aplicar al programa mihsalud. ¿Crees que se pueden
aplicar a otros programas de promoción de salud o cualquier programa de la salud?
1- Pienso que sí en este programa se puede hacer claro que se puede hacer en otros.
2- Sí como son beneficios para este también pueden ser beneficios para cualquier programa
de participación.
3- Pienso que estas recomendaciones se pueden aplicar a cualquier otro de los programas
dirigidos a promover la salud en la comunidad.
4- Yo creo que las recomendaciones de este NICE se pueden aplicar a cualquier programa de
promoción de la salud y al centro de salud.
5- Yo creo que sí se puede aplicar a cualquier programa.
6- Creo que se puede aplicar a otro programa y a cualquier de ella y además servir para la
inauguración de los mismo.
Hiba Malek 122
Appendix 12. Focus group transcription 2
Focus Group Transcript
Archival #: 2
Sita: Centro de Salud Pública, Valencia
Number of participants: 6
Date: 19- May- 2015 Moderator: Hiba Malek
Start: 12 p.m. End: 1:30 p.m. Note-Taker: Pilar López Sanchez
Pregunta 1:
¿Cómo podemos integrar estas recomendaciones al programa mihsalud con el fin de
mejorar el rendimiento y los resultados del programa?
1- Creo que para mejorar el rendimiento y los resultados del programa deberíamos de hacer
es dar difusión a nivel de la población de lo que es el programa. Creo que en nuestra
sociedad hay poca cultura de intervención comunitaria y si no hay una buena basa, si la
población no consigue entender que forma parte de su día-día es muy difícil que entiendan
esa intervención de repente.
2- Considero que para poder integrar las recomendaciones para mejorar el rendimiento y los
resultados del mismo debería efectivamente que darle más difusión entre los restos de
departamentos e implantar esta misma programa al resto de los departamentos para que se
conociera de forma más complementaria.
3- Para mejorar el rendimiento y el resultados creo que se debería trabajar a dos niveles; uno
a nivel gerencias de administración para garantizar el mantenimiento a largo plazo, y otro a
un nivel más de asociaciones y participantes en los que entren más a la hora de preparar la
programación y evaluación de los resultados.
4- Favoreciendo un cambio de cultura de la organización de lo público, dirigido a trabajo en
red, desde cada profesional, desde su nivel de actuación.
5- Yo creo que con la difusión y buscando la implicación de todos los profesionales de la
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comunidad y de toda la comunidad en sí. Por ejemplo, pienso que se podría trabajar
presentando difundiendo el programa en los colegios que tenemos allí a los niños de la
población vulnerable, y que es una forma dando conocer este programa en un centro
educativo creo que se podrían llegar a un parte de la comunidad afectada, por lo menos la
percepción que yo tengo, es que la mayoría de las comunidades vulnerables tienen niños,
hay siempre niños, y los niños están todos escolarizados, entonces enterándonos a los
colegios para difundir el programa pienso que se puede llegar a un gran parte de la
comunidad. Y luego a nivel de los grandes responsables de salud que al fin acabo son los
profesionales de atención primaria creo que se difunde pero no termina de llegar
información, no sé exactamente porqué, puede ser que no hemos terminado de implicar el
asunto, habría que analizar el porqué.
6- Yo creo que las recomendaciones más o menos ya forman parte del programa, ya están
en el programa, ya se cumplen, pero para ver la mejor rendimiento de los resultados yo creo
que se debería trabajar un poco en los indicadores que se propusieron, evaluarlos y ver los
resultados, que es pendiente.
Pregunta 1.1:
Lo que si se está haciendo actualmente en el programa mihsalud que coincide con lo que
dicen las recomendaciones de la guía NICE?
1- Consideró que se está haciendo todo lo relacionado con la infraestructura. En cuanto a la
formación y recursos a trabajar de manera conjunta con las asociaciones y las iniciativas
basadas en el territorio. También lo que tiene que ver con enfoques. Este todo figura la
gerente de barro que no sé si se recoge en nuestro territorio. Si sé que están planificando
talleres comunitarios y además se tienen en cuenta las personas que residen en la
comunidad.
2- Consideró que se está haciendo actualmente en el programa mihsalud y que coincide con
lo que dice las recomendaciones de NICE, uno la planificación la coordinación y el diseño del
programa. Dos la confianza y el respeto mutuo, consideró que hay aspectos que no se están
aplicando en el programa o es difícil a aplicación. Uno de esos es establecer plazas realistas
para la implementación y desarrollo del programa porque en estos momentos no tenemos
plazos específicos y dependemos de lo que es la cobertera presupuestaria que establece
plazos están en el aire.
Hiba Malek 124
3- Consideró que sí que están realizando en el programa mihsalud es dentro de los
prerrequisitos el desarrollo de las políticas planificación desarrollo coordinación y actuar
como sobre las organizaciones y niveles de participación y confianza mutua. En la parte
infraestructura sí que se está actuando los tres requisitos que indicando y en los enfoques
también.
4- Yo consideró que el programa que sigue la mayoría de recomendaciones. Dentro de los
prerrequisitos la inversión a corto plazo y dentro de lo que es la infraestructuras y enfoques
sí que la sigue. En evaluación intenta a hacer una parte.
5- Yo pienso que lo cumple en la planificación diseño y coordinación de las actividades
aunque creo que se podría mejorar coordinando con colectivos de atención primaria. Pienso
que sí que tienen objetivos a corto plazo sin embargo no tengo muy claro si las prioridades
locales a largo plazo se están cumpliendo. En cuanto a la formación a la diversidad pienso
que sí que se cumple. La gestión y de conflictos de comunidades y los organismos tengo
dudas no lo sé con seguridad. La confianza mutua y el respeto se cumplen. En la
infraestructura en el punto uno creo también que se cumple. En el trabajo conjunto en
asociación también. Desconozco el trabajo con los gerentes del barrio. Sí que se cumplen los
talleres comunitarios. Y desconozco las actividades de regeneración.
6- Yo creo que respecto a los prerrequisitos se cumplen más o menos todos, sobre todo el
punto uno con la planificar diseñar y coordinar las actividades y el punto cinco de confianza y
respeto porque también se evalúan las necesidades comunitarias. Respecto a la
infraestructura también creo que se cumplen los tres. El punto uno se capacita a los
individuos de la comunidad con el curso de formación acción de los agentes de salud. El
punto dos se trabajan en manera conjunta con las asociaciones que es como la forma del
trabaja del programa. El punto tres de la infraestructura como el punto uno de los enfoques
creo que se cumplen con los forros que se realizan mensualmente y después los talleres
comunitarios también se cumplen.
Pregunta 2:
¿Cuáles son los aspectos que NO se están aplicando en el programa mihsalud?
No hay respuestas.
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Pregunta 2.1:
¿Lo que no se está haciendo actualmente en el programa mihsalud aunque si se esté
contemplando el las recomendaciones de NICE y por lo tanto se debería de incorporar?
1- Considero que la inversión a largo plazo no se está realizando y se debería de realizar. Y de
aquí paso a la parte de la evaluación en la que identificar y acordar las objetivos de
evaluación con los miembros de la comunidad del destino creo que eso no se hace
previamente e involucrarlos en la planificación el diseño y la aplicación de un marco de
evaluación creo que tampoco se hace.
2- En cuanto a los aspectos que no se están aplicando al programa coincido también en
establecer los plazos realistas en cuanto a la financiación a largo plazo del programa
actualmente no se está completo. Y Luego considero que no está completo a todos los
niveles creo que es el punto 4 corresponde a la decisión comunitaria. Los niveles de
participación y poder de la comunidad actualmente creo que no está y el desarrollo.
3- Los aspectos que no están aplicando en el programa en cuanto a los prerrequisitos el
segundo punto la inversión a largo plazo no se tiene, cada año se va, la inversión parece algo
concreto y se funciona año año sin saber la que viene y que va a pasar. Tampoco está
cumpliendo toda la parte de evaluación, se están empezando a trabajar en algunos
indicadores pero aún está la cosa bastante, en sus inicios y además luego no está
participando de forma activa a nivel comunitario. Y por el medio que da un punto en el que
genera bastantes dudas que son los enfoques en tercer punto cuando hay que tener en
cuenta la opinión de personas residentes. El inicio del programa fue con gente vulnerable
exactamente residente, en los últimos años cuando se está incorporándose asociaciones de
vecinos y ya como ligadas más territorio concreto no nacer constancia de vulnerabilidad.
4- Respecto a lo que no se está aplicando yo resaltaría la planificación conjunta tanto desde
salud pública con primaria con ayuntamiento con entidades locales para asegurar esa
financiación a largo plazo porque la evolución va dirigida a ese largo plaza. Las actividades
en promoción de salud si cada año vamos esperando pues no aseguramos esa evolución.
5- Yo coincido con mi compañera en que aunque se planifican y se coordinan las actividades
yo creo que no se están haciendo con todos los componentes por lo menos desconozco a mi
nivel si se está haciendo esa coordinación contando con todos los agentes de primaria con
las asociaciones locales y la ayuntamiento, y por lo menos desde mi punto de vista esto sería
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algo que no está cumpliendo puede que esté equivocada. Creo que efectivamente falta una
inversión a largo plazo y creo que es importante. En cuanto a los niveles de participación y el
poder creo que falta algo en cuanto a lo que es la distribución del poder y las
responsabilidades. En la infraestructuras creo que las iniciativas basadas en el territorio dice
que debería animar a la gente de zona a que participen en la organización creo que se está
realizando con la población en la comunidad de riesgo pero no con la gente de la zona no sé
si sería un objetivo a cumplir, entonces como tengo duda no sé si se cumpliría o no. Y por
último que sería también con lo mismo seria la parte de participación local de la población
en el punto 2 y 3 de los enfoques.
6- Al igual que mis compañeros también creo que en la parte de prerrequisitos el punto 2 no
se cumple no hay una inversión a largo plazo en el programa porque la entidades que
financian no dan esa financiación a largo plazo. Después en el punto 3 de enfoques también
creo que no se tienen en cuenta la opinión de las personas residentes o la estructura que
tiene el programa que va a dirigida a gente vulnerable y es más como una gestión del
programa desde arriba que es para impartir conocimiento de salud a la comunidad.
Pregunta 2.2:
¿lo que si se está haciendo actualmente en el programa mihsalud y va en contra a lo que
dicen las recomendaciones de NICE y por lo tanto se debería dejar de hacer?
1- Yo considero que no hay nada que se está haciendo en contra de las recomendaciones de
NICE salgo garantizar el programa a largo plazo.
2- Coincido con mi compañera y no encuentro en este momento ningún punto que se esté
haciendo que vaya en contra las recomendaciones de NICE.
3- Yo no encuentro nada que vaya en contra quizás que no está haciendo exactamente como
dice el NICE y entre ellos los indicadores que no se están trabajando para la evaluación
suficiente y los que están trabajando para ello no se ha tenido en cuenta la opinión de la
sociedad y las gentes sociales y asociaciones.
4- En contra me pienso que es no asegurar la sostenibilidad porque las personas que están
llevando a cabo el programa que implican a las demás personas que hacen que participen no
saben si el año que viene van a continuar, entonces estamos generando unas falsas
expectativas respecto a la participación.
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5- Yo estoy de acuerdo en que el único que se tendría que dejar de hacer es no dejar plan por
el futuro del programa.
6- Yo considero que en contra no hay nada de ninguno de los puntos que hay en la guía NICE.
Pregunta 3:
¿Cuáles son los aspectos que no se pueden aplicar en el programa mihsalud en estos
momentos?
1- Creo que en las recomendaciones que tenemos por escrito seria todo aplicable, no hay
nada que pone en el documento en las recomendaciones de la NICE que a mi entender no se
pueda cumplir, lo que pasa que es un proceso largo y costoso y de cambio cultural y de
políticas sociales y además.
2- Quizás un punto de los cuales no se podrían aplicar en esto momento en el programa
mihsalud con respecto a las recomendaciones de NICE posiblemente fueran lo que
corresponderían con infraestructura en el punto formación y recursos por el problema que
hay de financiación a largo plazo, en cuanto a la estructura montar de estructura, de
espacios y sobre todo para formar a todo lo que corresponde a desarrollar la fortalezas de la
comunidad local.
3- Creo que lo que no se puede aplicar en este momento es todo aquello que implica un largo
plazo, todo lo que es una programación una evaluación que implica largo plazo hay no
podemos entrar.
4- Yo creo que todo es aplicable. No encuentro ningún cosa que no.
5- Yo también pienso que todo es aplicable.
6- Yo pienso que todo es aplicable aunque en estos momentos exactamente por la de la
financiación pues no se podría. Lo que he comentado antes del punto tres de los enfoques
tampoco pero por el diseño del programa, y en cuanto a la evaluación el mismo que aún no
están como aprobaos los indicadores que puedan evaluar el impacto del programa con la
comunidad.
Pregunta 4:
Si las recomendaciones se pueden aplicar al programa mihsalud. ¿Crees que se pueden
aplicar a otros programas de promoción de salud o cualquier programa de la salud?
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1- Sí.
2- Exactamente igual que si están aplicando al programa mihsalud todas las
recomendaciones son aplicables a cualquier programa de promoción de la salud en el
entorno comunitario.
3- Sí, evidentemente es una forma, metodología de estudiar cómo funciona un programa.
Poder aplicar a cualquiera de ellos.
4- Yo también opino que sí. Creo que se le hiciéremos conseguiríamos trabajar con más
eficiencia y mayor satisfacción personal.
5- Debería ser sí.
6- Yo creo que sí también.