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THE AUTISM GUIDE: The Only Guide you will ever need
autism treatments, methods, organizations and approaches from Around the World Updated every 6 months!
LASTEST UPDATE : January 2015
FEATURING:
Organizations: Autism Organizations – some well known, some not - all helpful to families and teachers.
Approaches: Behavioral, Educational, and Psychological
CAM Therapies: Aromatherapy, Hyperbaric, Vision, Music, Art, Equine, Massage, biofeedback, holistic, diet
Treatment: Speech, OT, PT, Sensory Integration, Auditory Integration
Parent Organizations: Support, Advocacy, safety issues
Over 14 Pages and updated every 6 months or sooner!
Compiled and Edited by:
Sally J. Colletti
Advocates For Autism, NY Copyright 2013
2
Copyright, 2013, 2014, 2015 All rights reserved – Reprints only with permission:
Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com
APPROACHES - BEHAVIORAL, EDUCATIONAL, PSYCHOLOGICAL
The Incredible 5-Point Scale www.5pointscale.com
E-mail either Kari or Mitzi at:
[email protected] or [email protected]
Applied Behavioral Analysis
550 West Centre Avenue, Suite 1 Portage, MI 49024
(269) 492-9310
www.abainternational .org
Center for Autism Spectrum Disorders
Institute for Child Development
Dr. Raymond G. Romanczyk Binghamton University campus
4400 Vestal Parkway, Vestal NY, 13850
http://icd.binghamton.edu
Autism Treatment Center of America
www.autismtreatmentcenter.org
1-877-766-7473 or outside the U.S. at 001-413-229-2100
The Miller Method www.millermethod.org
LCDC, Inc.
154 Wells Avenue, Suite 5
Newton, MA 02459
USA Tel: (800) 218-LCDC (5232) or (617) 965 0045
E-mail: [email protected]
DIR/Floortime Model
Stanley I. Greenspan, M.D.
7201 Glenbrook Road
Bethesda, Maryland 20814
(301) 657-2348
www.stanleygreenspan.com
TEACCH – Treatment and Education of Autistic and Communication Handicapped Children
For general information about the TEACCH Program, please contact
www.teacch.com
Relationship Development Intervention
4130 Bellaire Boulevard suite 210
Houston, Texas 77025
Toll-Free: 866.378.6405
www.rdiconnect.com
Integrated Self-Advocacy Cirriculum
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Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com
Valerie Paradiz, PhD
4182 Adams Avenue, San Diego, CA 92116
Tel: (619) 961-7210 || Fax: (619) 563-6840
Email: [email protected]
Social Stories™ – Carol Gray 4123 Embassy Dr. SE
Kentwood, MI 49546
616.954.9747
Fax: 616.954.9749
www.thegraycenter.org
Jed Baker, Ph.D. 29 Collinwood Road
Maplewood, New Jersey 07040
www.jedbaker.com
Tony Attwood, Ph.D.
The Asperger's Syndrome Clinic
PO Box 224
Petrie QLD 4502
Australia
Phone: (61) 7 3285 7888
Valerie Paradiz, Ph.D.
Autism Consulting, author
www.valerieparadiz.com
Linda Mood Bell Learning Process
416 Higuera Street
San Luis Obispo, CA 93401
800-233-1819
www.lindamoodbell.com
The Advanced Brain
5748 South Adams Avenue Parkway
Ogden, Utah 84405, United States
Email: [email protected]
Phone: 801-622-5676
Toll Free: 888-228-1798
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Copyright, 2013, 2014, 2015 All rights reserved – Reprints only with permission:
Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com
LANGUAGE/COMMUNICATION
American Speech & Hearing Association National Office
2200 Research Boulevard
Rockville, MD 20850-3289
301-296-5700
www.asha.org
SECRTS- (Social Communication, Emotional Regulation and Transactional Support)
Barry M. Prizant, Ph.D., CCC-SLP PO Box 973
Wilbraham, MA 01095
Phone: (508) 965 - 5705
Fax: (413) 279 – 1361
www.barryprizant.com
Soma® Mukhopadhyay's Rapid Prompting Method HALO PO Box 303399
Austin, TX 78703
Toll-Free: (866) 465-9595
www.halo-soma.org
Spectronicsinoz
PO BOX 88 Rochedale Q 4123
AUSTRALIA
Phone: (07) 3808 6833
Fax: (07) 3808 6108
Email: [email protected]
www.spectronicsinoz.com
Picture Exchange Communication Systems
Available worldwide
1-888-732-7462
www.pecs.com
Facilitated Communication -
350 Huntington Hall
School of Education Syracuse University
Syracuse, NY 13244
315-443-5268
www.inclusioninstitutes.org/fci/
Picture This – (Real Photos)
888-777-0876
www.silverliningmm.com
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DynaVox – Mayer Johnson (ACC Devices with Picture Symbols)
Available in US, UK, CA
2100 Wharton Street
Suite 400
Pittsburgh, PA 15203
866-396-2869
Visual Strategies – Linda Hogdon
QuirkRoberts Publishing
P.O. Box 71
Troy, MI 48099-0071 248-879-2598
www.usevisualstrategies.com
Applied Verbal Behavior
Dr. Vincent Carbone
614 Corporate Way Suite 1
Valley Cottage, NY 10989
845-267-0920
Continued on next page
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Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com
COMPLEMENTARY AND ALTERNATIVE SERVICES (CAM)
The National Center for Complementary Alternative Medicine http://nccam.nih.gov
Autism Research Institute
4182 Adams Avenue San Diego, CA 92116
1-866-366-3361
www.autism.com
Dr Kenneth Bock
Rhinebeck Health Center
(845)-876-7082.
www.rhinebeckhealth.com
Massage Therapy
American Massage Therapy Association
500 Davis Street, Suite 900
Evanston, IL 60201-4695
Toll-Free 1-877-905-2700
Phone 847/864-0123
Fax 847/864-1178
www.amtamassage.org
Aromatherapy
National Association for Holistic Aromatherapy
3327 W. Indian Trail Road PMB 144
Spokane, WA 99208
PH: (509)325-3419 (PST)
FAX: (509) 325-3479
www.naha.org
Hippotherapy – Therapeutic Horseback riding
Southern Tier Alternative Therapies, Inc.
PO Box 1567
Binghamton NY 13902
www.statinc.org
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Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com
Biofeedback
Association of Applied Psychophysiology and Biofeedback, Inc. 10200 West 44th Avenue Suite 304
Wheat Ridge, CO 80033
(800) 477-8892
www.aapb.org
International Stress Management Association (ISMA)
www.isma.org
US: University of Nebraska - Lincoln
135 Mabel Lee Hall
Lincoln, NE 68588-0229 USA
Dietary Approaches and Gastroenterology:
Timothy M. Buie, MD
Associate in Pediatrics, American Board of Pediatrics
Timothy Buie, MD is a pediatric Gastroenterologist at the Lurie Center for Autism, a multidisciplinary program that treats
children, adolescents and adults with autism spectrum and other neurodevelopmental disorders.
Massachusetts General Hospital Phone: 617-726-8705
Or at Lexington: Lurie Center for Autism; Newton: Newton-Wellesley Hospital
The Gluten Free & Casein Free Diet (GF/CF)
The GFCF Diet Support Group
PO Box 1692 Palm Harbor, FL 34683
www.gfcfdiet.com
Talk About Curing Autism – Diet Tips page
http://gfcf-diet.talkaboutcuringautism.org/
Feingold Association of United States and International
554 East Main Street Suite 301
Riverhead, NY 11901
800-321-3287 (U.S. only)
1-631-369-9340 (Eastern Time)
www.feingold.org
Occupational Therapy and Sensory Integration:
American Occupational Therapy Association
4720 Montgomery Lane
PO Box 31220
Bethesda, MD 20824
www.aota.org
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The Spectrum Center
4715 Cordell Avenue, 3rd
Floor
Bethesda, MD 20814
(301) 657-0988
www.spectrumcenter.com
Occupational Therapy Associates
124 Watertown Street
Watertown, MA 02472
www.otawatertown.com
Sensory Integration Global Network – Ayres Sensory Integration ®
www.siglobalnetwork.org/asi.htm
Music Therapy
American Music Therapy Association, Inc. 8455 Colesville Road, Suite 1000
Silver Spring, Maryland 20910, USA
Phone: (301) 589-3300
www.musictherapy.org
Stanley Jordan Music Therapy
This has a full list of all international programs
http://www.stanleyjordan.com/Links/MusicTherapy.html#IntlOrg
Vision Therapy
Vision Help
www.visionhelp.com/autism/
The Optometrists Network ATTN: Rachel Cooper
93 Bedford Street, Suite 5D
New York, NY 10014
www.visiontherapy.org
American Optometric Association
http://www.aoa.org/
9
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Contact: Advocates For Autism, Inc. – Sally J. Colletti www.advocatesforautism.com
College of Optometrists in Vision Development
215 West Garfield Road, Suite 200
Aurora, OH 44202
P 330-995-0718 | 888-268-3770
www.covd.org
Art Therapy:
Listing of Art Therapy Links by Country: www.art-therapy.us/links.htm#International
HippoTherapy/Equine Therapy
American Hippotherapy Association, Inc.
136 Bush Road
Damascus, PA 18415
888.851.4592
www.americanhippotherapyassociation.org
Auditory Integration AIT Institute for Berard Auditory Integration Training (Berard AIT)
Available worldwide www.aitinstitute.org
AIT Resources
Auditory Integration Training (AIT) Services throughout the United States, Australia, Indonesia & Malaysia
P: +1.206.463.5237
25947 Gold Beach Dr. SW
Vashon Island, Washington 98070
www.aitresources.com
Hyperbaric Oxygen Therapy
International Hyperbaric Medical Association
Dr. Kenneth Stoller, Medical Director
4 Brunn School Rd.
40 Santa Fe, NM 87505
Phone: +1 505 955 8560
www.hbotnm.com
The Hyperbaric Therapy Center
Phone: (877) HYPERTC
www.hypertc.com
10
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PARENT/INDIVIDUAL INFORMATION & SUPPORT
The American Epilepsy Outreach Foundation
P.O.Box 31078
Chicago, IL 60631
www.epilepsyoutreach.org
Stephen Shore, Ed.D.
www.autismasperger.net
Autism Support Network
Autism Support Network
Box 1525
Fairfield, CT 06824 (USA)
Tel: (203) 404-4929
SafeMinds
16033 Bolsa Chica St. #104-142
Huntington Beach, CA 92649
Telephone: 404-934-0777
www.safeminds.org
The National Society for Epilepsy
Chesham Lane Chalfont St Peter
Bucks SL9 0RJ
UK
01494 601 300
www.epilepsysociety.org.uk
Epilepsy Action Australia
1300 37 45 37
www.epilepsy.org.au
The Epilepsy Foundation 8301 Professional Place
Landover MD 20785
(800) 332 1000
www.epilepsyfoundation.org
The Autism Society of America
7910 Woodmont Avenue, Suite 300
Bethesda, Maryland 20814-3067
1-800-3-autism
www.autism-society.org
Autism Independent UK www.autismuk.com
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Families for Early Autism Treatment
www.feat.org
USA and Canada
Asperger Syndrome Support (for those with AS in UK)
www.assupportgrouponline.co.uk
Talk About Curing Autism (TACA)
3070 Bristol Street, Suite 340
Costa Mesa CA 92626
949-640-4401
www.talkaboutcuringautism.org
Autism Speaks – USA, UK, Middle East and Australia
2 Park Avenue 11th Floor
New York, NY 10016
Phone: (212) 252-8584
www.autismspeaks.org
National Autism Association
1330 W. Schatz Lane
Nixa, MO 65714
877-622-2884
www.nationalautismassociation.org
Autism Network International
P.O. Box 35448
Syracuse NY 13235-5448
First Signs, Inc.
P.O. Box 358
Merrimac, MA 01860
978- 346-4380
www.firstsigns.org
Ahead with Autism PO Box 599
Riva, MD 2114
410.956.5882
www.aheadwithautism.com
Generation Rescue
1-877-98autism
www.generationrescue.com
Talk Autism
Box 1348
Princeton, NJ 08540
www.talkautism.org
12
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ASPEN – Asperger Syndrome Education Network
9 Aspen Circle
Edison, NJ 08820
Phone: (732) 321-0880
www.aspennj.org
Autism United 100 W. Nicholai Street
Hicksville, NY 11801
www.autismunited.org
INDEPENDENT LIVING
Advocates For Autism
Sally J. Colletti
Twitter, Facebook
www.advocatesforautism.com
Canadian Centre on Disability Studies
56 The Promenade
Winnipeg, Manitoba, CANADA R3B 3H9
Telephone: (204) 287-8411
www.disabilitystudies.ca
TASH
My Life-Going FAR c/o : TASH
1025 Vermont Ave., Suite 300
Washington, DC 20005
Phone: 202-540-9020
www.tash.org
Center for Self Determination
www.centerforself-determination.com
The Marquette Group
www.themarquettegroup.com
13
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SAFETY ISSUES:
4 Paws for Ability
253 Dayton Ave.
Xenia, Ohio 45385
www.4pawsforability.org
Autism Service Dogs of America
4248 Galewood Street
Lake Oswego, Oregon 97035
www.autismservicedogsofamerica.com
Assistance Dogs International
0114 261 7800
www.support-dogs.org.uk/ADUK.htm
Autism Risk Safety Management Mr. Dennis Debbaudt
2338 SE Holland Street
Port St. Lucie FL 34952
772 398-9756
www.autismrisksafetymanagement.com
Online and Print NEWS AND MEDIA
Schafer Autism Report by Lenny Schafer - www.sarnet.org
Autism One Radio - www.autismone.org/radio
Autism Spectrum Quarterly- www.starfishpress.com
Autism Spectrum News - www.mhnews-autism.org
Age of Autism – Editor Dan Olmstead – www.ageofautism.com
Examiner: Sally Colletti
continued on next page
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RESEARCH and TREATMENT CENTERS FOR AUTISM AND EPILEPSY
Mark R. Geier, M.D., Ph.D., FACMG, FACE
Genetic Centers of America The Institute of Chronic Illnesses
14 Redgate Ct., Silver Spring, MD 20905
(301) 989-0548
Clinic for Special Children Dr. Holmes Morton
Specializing in Amish and Mennonite 535 Bunker Hill Road
Strasburg, PA 17579
Phone: 717-687-9407
www.clinicforspecialchildren.org
Hardy Healthcare
Dr. Paul Hardy
62 Derby Street, Suite 3
Hingham, MA 02043
(781) 740-8300
www.hardyhealthcare.com
Manuel Casanova, MD University of Louisville Department of Psychiatry
500 S Preston St Bldg 55A Ste 217
Louisville, Kentucky 40292-1702
502-852-4077
Fernando Miranda, MD
Bright Minds Institute
1199 Bush Street, Suite 350
San Francisco, CA 94109
Phone: (415) 561-6755
www.brightmindsinstitute.com
Boyd Haley, Ph.D.
Chairman of Department of Chemistry Kentucky University
(859) 257-2300 x246
http://www.chem.uky.edu/research/haley/
Jim Adams, Ph.D. Arizona State University
PO Box 876006
Tempe, AZ 85287
(480) 965-3316
www.eas.asu.edu/~autism
Allan Sosin, M.D. Institute for Progressive Medicine 4 Hughes #175
Irvine, CA 92618
Telephone: 949-600-5100
Website: www.iprogressivemed.com
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University of Minnesota S. Hossein Fatemi, MD, PhD
321 Church Street SE
Minneapolis, MN 55455
http://www.neurosci.umn.edu/faculty/fatemi.html
University of Texas-Houston Medical School. Richard Frye, MD, PhD
Department of Pediatrics, Division of Neurology
6431 Fannin Street MSB 3.153
Houston, TX 77030
(713) 500-7113
http://ped1.med.uth.tmc.edu/faculty/bio-Frye-Richard.html
Illinois Magnetoencephalography (MEG) Center
Jeffrey Lewine, PhD
847-981-3690 or e-mail [email protected]
The Kilee Patchell-Evans Autism Research Group
University of Western Ontario – Department of Psychology Dr. Derrick MacFabe, Director
1151 Richmond Street
London , Ontario , Canada
N6A 5C2
www.psychology.uwo.ca/autism.htm
Athens Neurological Associates Dr. Jon Poling
1086A Baxter Street
Athens, GA 30606
800-929-9502
www.athensneuro.com/index.html
Center for Excellence in Autism Research Dr. Nancy Minshew
Webster Hall, Suite 300,
3811 O’Hara Street, Pittsburgh, PA 15213
866-647-3436
www.wpic.pitt.edu
Dr. Darold Treffert St. Agnes Hospital
430 E. Division Street
Fond du Lac, WI 54935
(920) 921-9381
The United Mitochondrial Disease Foundation The United Mitochondrial Disease Foundation
8085 Saltsburg Road, Suite 201
Pittsburgh, PA 15239
1-888-317-UMDF (8633)
www.umdf.org
16
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Centers for Autism Treatment in the U.S. as recommended by the National Institute of Health
Research Centers
Mount Sinai School of Medicine (Multigenerational Families and Environmental Risk for Autism
Network)
University of California, Davis (Intervention Effects of Intensity and Delivery Style for Toddlers with
ASD)
University of California, Los Angeles (Adaptive Interventions for Minimally Verbal Children with ASD
in the Community)
University of California, Los Angeles (Autism Genetics: Increasing Representation of Human Diversity)
University of North Carolina at Chapel Hill (A Longitudinal MRI Study of Infants at Risk for Autism)
University of North Carolina at Chapel Hill (Study of Oxytocin in Autism to Improve Reciprocal Social
Behaviors [SOARS-B])
Yale University (Multimodal Developmental Neurogenetics of Females with ASD)
Evaluation and Treatment in addition to the above who also perform evaluations:
Lurie Center/MassGeneral Hospital (Lexington, MA) Contact: Christine Ferrone Phone: (781) 860-1715
Seaver Autism Research Center
Icahn School of Medicine at Mount Sinai
Department of Psychiatry
Box 1668
One Gustave L. Levy Place
Ne Tel: 212-241-0961
New York, NY 10029
University of Pittsburgh Medical Center (Pittsburgh, PA) Contact: Cathy Wolfe Phone: (412) 235-5412 [email protected]
University of Rochester (Rochester, NY)/Gollisano Children's Hospital - ask for Dr. Susan Hyman Contact: Alison Diehl Phone: (585) 275-7701 [email protected]
Children's Hospital of Philadelphia (Philadelphia, PA) Contact: Kathy Pinzone Phone: (267) 426-3023 [email protected]
17
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Cincinnati Children's Hospital Medical Center (Cincinnati, OH) Contact: Terry Mitchell Phone: (513) 636-1665 [email protected]
University of Missouri (Columbia, MO) Contact: Alicia Curran Phone: (573) 884-7544 [email protected]
Nationwide Children's Hospital (Columbus, OH) Contact: Amy Hess Phone: (614) 355-8315 www.nationwidechildrens.org/autism-treatment-network
Arkansas Children's Hospital / UAMS (Little Rock, AR) Contact: Hannah Feild (501) 364-4665 [email protected]
Vanderbilt University Medical School (Nashville, TN) Contact: Nina Harris Phone: (877) ASD-VUMC (273-8862) [email protected]
Children's Hospital of Los Angeles (Los Angeles, CA) Contact: Kathryn Smith Phone: (323) 361-6102 The Center for Autism & Neurodevelopmental Disorders at UC Irvine (Irvine, CA) www.thecenter4autism.org (Santa Ana, CA) Contact: Maureen Dillon, LCSW Phone: (949) 267-040 [email protected]
Toronto ATN Site (Holland Bloorview Kids Rehab, Surrey Place Centre, Hospital for Sick Children) (Toronto, ON, Canada) Contact: Salina Eldon Phone: (416) 925-5141, ext 2270
University of Alberta and Glenrose Rehabilitation Hospital (Edmonton, AB, Canada) Contact person: Barb Traill Phone: (780) 735-8285 [email protected]