Slide 1

The Prostate Cancer Symposium An Educational Initiative for Patients and Healthcare Professionals October 6, 2009 An Educational Initiative for Patients and Healthcare Professionals October 6, 2009 Slide 2 Concept Provide access to information and thought leaders to promote best standards of care dual-track format to maximize interaction Provide a faculty of world-class clinicians and researchers who set the standards of care Provide access to information and thought leaders to promote best standards of care dual-track format to maximize interaction Provide a faculty of world-class clinicians and researchers who set the standards of care Slide 3 Meeting Objectives Patients: understand role of biomarkers of diagnosis/progression describe current treatments and emerging drug protocols discuss the importance of effective patient/doctor dialogues Professionals: identify best standards of care Define the impact of treatment on co-morbid conditions Discuss the advances in therapeutic and drug protocols Describe the appropriate use of novel therapies Evaluate the informations applicability to practice management Patients: understand role of biomarkers of diagnosis/progression describe current treatments and emerging drug protocols discuss the importance of effective patient/doctor dialogues Professionals: identify best standards of care Define the impact of treatment on co-morbid conditions Discuss the advances in therapeutic and drug protocols Describe the appropriate use of novel therapies Evaluate the informations applicability to practice management Slide 4 Registered Attendance Patients/spouses, Advocates Targeted - 300; Actual - 120 (on-site): 41% Advocates; 32% Patients; 6% Spouses/Partners; 21% Family/Caregivers follow-on distribution - 164: 29% Advocates; 37% Patients; 18% Spouses/Partners; 16% Family/Caregivers Professionals Doctors: Targeted - 100; Actual - 20 (on-site): Medoncs - 6 Radoncs - 2 Primary Care - 12 Nurses, Public Health Staff; Industry: Targeted - 20; Actual - 17 (on-site) follow-on distribution - 38: Urologists -7; RadOncs - 3; MedOncs - 9; NP/PAs - 8; Medical Centers/Public health agencies - 11 Patients/spouses, Advocates Targeted - 300; Actual - 120 (on-site): 41% Advocates; 32% Patients; 6% Spouses/Partners; 21% Family/Caregivers follow-on distribution - 164: 29% Advocates; 37% Patients; 18% Spouses/Partners; 16% Family/Caregivers Professionals Doctors: Targeted - 100; Actual - 20 (on-site): Medoncs - 6 Radoncs - 2 Primary Care - 12 Nurses, Public Health Staff; Industry: Targeted - 20; Actual - 17 (on-site) follow-on distribution - 38: Urologists -7; RadOncs - 3; MedOncs - 9; NP/PAs - 8; Medical Centers/Public health agencies - 11 Slide 5 Patient Disease Stages Primary Therapy: Surgery - 42%; Radiation - 27%; Active Surveillance - 27%; Drug therapy - 4% Disease progression from primary therapy: 35% - yes; 64% - no; 1% - not sure Current Therapy: Not currently being treated - 82% Hormonal therapy - 8% Chemotherapy - 8% Complementary/Alternative medicine - 2% Previous or current Androgen Deprivation Therapy - 29% Primary Therapy: Surgery - 42%; Radiation - 27%; Active Surveillance - 27%; Drug therapy - 4% Disease progression from primary therapy: 35% - yes; 64% - no; 1% - not sure Current Therapy: Not currently being treated - 82% Hormonal therapy - 8% Chemotherapy - 8% Complementary/Alternative medicine - 2% Previous or current Androgen Deprivation Therapy - 29% Slide 6 Faculty Comments Went well for a first meeting Ian Thompson Captured a heterogeneous audience Natasha Kyprianou Develop a Clinical Trials program Tia Higano; Dan Petrylak Offer as a regional format Brian Stone (multiple comments) Truly excellent conference...great response from both sides of the aisle Andrew Salner Went well for a first meeting Ian Thompson Captured a heterogeneous audience Natasha Kyprianou Develop a Clinical Trials program Tia Higano; Dan Petrylak Offer as a regional format Brian Stone (multiple comments) Truly excellent conference...great response from both sides of the aisle Andrew Salner Slide 7 On-going Concerns Lack of educational efforts Will screening be part of healthcare reform ...men of color MUST take care of themselves the quality of the faculty was over the top more time for advanced disease needed Lack of educational efforts Will screening be part of healthcare reform ...men of color MUST take care of themselves the quality of the faculty was over the top more time for advanced disease needed Slide 8 Listening to the Audience: ARS initiative Slide 9 PSA Controversy Patient/Professional divergences Lack of clear-cut risk communications Risk of advanced stage first diagnosis Hidden impact on co-morbid conditions Patient/Professional divergences Lack of clear-cut risk communications Risk of advanced stage first diagnosis Hidden impact on co-morbid conditions Slide 10 Clinical Trials Dichotomy Dialogue Issues Need for actionable patient information Dialogue Issues Need for actionable patient information Slide 11 Understanding the Barriers Need to deliver actionable professional info Empower the patient to access trials Need to deliver actionable professional info Empower the patient to access trials Slide 12 Leveraging Awareness Heighten drug knowledge for patients and professionals Slide 13 Promote Dialogue Breaking down the barriers to communication Slide 14 The Prostate Net Patient Site www.theprostatenet.org Traffic Stats Traffic since inception September 1996: 5.6 million visits average 7,528 visits/month; average page views/visit 5.73 Monthly Traffic 2009 vs. 2008: up 12.3% Traffic source by category/domain: US patient/family 70.30% US commercial organizations - 6.51 US educational/healthcare/non-profit - 6.39 US Government/military - 1.41 Foreign domains - 15.39 Traffic since inception September 1996: 5.6 million visits average 7,528 visits/month; average page views/visit 5.73 Monthly Traffic 2009 vs. 2008: up 12.3% Traffic source by category/domain: US patient/family 70.30% US commercial organizations - 6.51 US educational/healthcare/non-profit - 6.39 US Government/military - 1.41 Foreign domains - 15.39 Slide 15 Enhancing Awareness Slide 16 Delivering Information Committed Sites for 2010 May 15 - Rutgers School of Public Administration: Prostate Cancer Educational Symposium June 19 - Lombardi Cancer Center: Town Hall on Prostate Cancer July 17 - Clark Atlanta University Clinical Cancer Research Center August 4 - 7: Prostate Cancer Foundation of Australia: Prostate Cancer Symposium August 28 - University of Florida Prostate Cancer Symposium September 11 - Northwestern (Chicago) Prostate SPORE: Pca and Community Outreach October - The Prostate Net: Prostate Cancer Symposium Slide 17 Feedback Mechanisms TPN Website archive of Symposium presentations Structured access to information and ARS Survey Monkey to build information cadre Ability to probe for actionable data Continuing dissemination/response network TPN Website archive of Symposium presentations Structured access to information and ARS Survey Monkey to build information cadre Ability to probe for actionable data Continuing dissemination/response network Slide 18 Thank You! WWW.THEPROSTATENET.ORG www.youtube.com/user/vhsimons/hsimons/ www.facebook.com/vhsiwww.facebook.com/vhsimons http://twitter.com/vhsimonss www.linkedin.com/in/virwww.linkedin.com/in/virgilsimons/ 1.888.477.6763