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The Lifeboat South & West Cornwall Branch Monthly Magazine May your hopes, dreams and wishes come true in 2014 January 2014

The South & West Cornwall Branch of The MS Society December 2013 Magazine "The Lifeboat"

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The end of December 2013 is here and here is the 1st edition for 2014, of "The Lifeboat". This month the latest news on how Researchers discovers small DNA differences in people with MS. TB vaccine potential to reduce MS activity investigated. Page 4 NICE confirms new oral treatment for MS on NHS. Celebrities and artists back MS Society’s online auction. Also the November Carers lunch at The Victoria Inn, Threemilestone, Truro and Christmas lunch at The Falmouth Hotel. Plus South & West Cornwall branch Christmas lunch at The Membly Hall Hotel, Falmouth attended by over eighty Members with Family and Friends. Page 7:- Read-A-Thon news and the Schools Awareness DVD project. Laona’s page:- "After all the fear, anger, despair and grief of diagnosis I sit here and realise that my life now in many ways is better. MS is life changing but something life changing can give you a special sort of strength." - A must read for anyone affected or newly diagnosed.

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Page 1: The South & West Cornwall Branch of The MS Society December 2013 Magazine "The Lifeboat"

The

Lifeboat

South & West Cornwall

Branch

Monthly Magazine

May your hopes, dreams and wishes come true in 2014

January 2014

Page 2: The South & West Cornwall Branch of The MS Society December 2013 Magazine "The Lifeboat"

1

Page 11 Laona’s page Page 12 December carers lunch at the

Victoria Inn Threemilestone

Page 13 19th January—Meeting at the

Tregenna Castle Hotel, St Ives

Pre Valentine 1940’s night Page 14 cabaret evening Page 15 Rabbit stew

Sweet revenge Page 16 Youth group Page 17 Young MS and Friends Page 18 Events Page 19 Information page

Inside the Lifeboat

this month MS News

Page 3 Researchers discovers small DNA

differences in people with MS

TB vaccine’s potential to reduce

MS activity investigated

Page 4 NICE confirms new oral treatment

for MS on NHS

Celebrities and artists back MS

Society’s online auction Page 5 I remember the cheese of my

childhood,

Thought of the month Page 6 November Carers Christmas lunch

South & West Cornwall branch

Christmas lunch Page 7 Read-A-Thon news.

Schools Awareness DVD

Page 8 Sunshine and Showers TRURO

Mr & Mrs Chapman at the Hall for

Cornwall Page 9/10 Quiz page

Cover picture

This months cover picture gave me a

problem, I designed two covers and

couldn’t decide which one to use so I

have shown the other option here on the

left.

I wanted to create a picture of fantasy so

that we could imagine the realisation of

our hopes and dreams for the future but

as usual I drifted from the subject slightly.

Its looking at so many beautiful pictures

and then trying to choose just one, its

impossible.

Page 3: The South & West Cornwall Branch of The MS Society December 2013 Magazine "The Lifeboat"

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Chairman’s Report

Editors Note

Hi Everyone,

With Christmas

out of the way I

expect like me

you make new year resolutions which don't last very long.

This month is an important month for the

new members from the West Cornwall area

who have joined us. Together we can and

will allow all our members to enjoy all the

benefits of being in our branch irrespective

of where you live.

I would like to remind you that my wife

Lindsay enjoys the extra care that a

'Personalized Budget' can offer , over the

packages some of you have, when you are

serviced by an agency. When Lin and I

used to use an agency we had twelve and

a half hours a week at a cost to the council

of over £2000 a month. With the same

figure, we are now able to enjoy employing

four Personal Assistants who together give

us in excess of fifty hours a week.

The running of the scheme is not an

onerous one because we use Disability

Cornwall to do all the paper work. This they

do for a charge of £30.00 a month.

Should anyone want to know more. please

get in touch and I will certainly help and

advice you.

Finally don't forget the Annual General

Meeting of which details can be found in

the magazine .

One last thing , I am still trying to find a

recipe for Rabbit pie. So watch out Jasper!

MikeMikeMikeMike

Hello Everyone

The start of the year is

always an exciting time,

looking forward to

new developments.

This new year is no

exception with all our

activities taking place and new ventures

over the horizon.

The transfer of members from West

Cornwall will bring new challenges both in

the supply of services and the financial

implications of 60 or more new members

who will need our services in the far west. I am hoping that the meeting on the 19th

January will be well attended so that we

can start to develop services that meet the

needs of our members in a way that is

practical and cost effective. It is also

important that we put in place the correct

management procedures in order to

maintain continuity and standards, so I

would urge you to attend on the 19th.

More good news is the new member of the

Young MS and Friends Group, Laura Ward

who I am sure will make a valuable

contribution.

More activities this year with the 1940’s

night on the 1st February and the Cabaret

on the 1st of March, not forgetting the now

monthly carers lunch being held in different

parts of the county. If you are 18—35 you can join the Young

MS and Friends Group on the 31st January,

all these events are in this month edition. I must thank all those who came to the

Christmas lunch, it was so good to actually

see the people that we communicate with.

As always with editors notes I seem to run

out of space so I may have a page in next

months Lifeboat so that I can talk more

about the future and the ideas for the

branch.

Max Bridges and Mike May are working on

our new website so watch this space!

Happy new year, MMMMaaaallllccccoooollllmmmm

Page 4: The South & West Cornwall Branch of The MS Society December 2013 Magazine "The Lifeboat"

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News from the MS National Centre

A small study, published this week in the

journal Neurology, has demonstrated the

successful use of a vaccination to reduce

MS activity in people who had experienced

a first MS-like attack.

Researchers studied MRI scans and found

a reduction in MS activity (lesions appearing

on an MRI scan) in people who were given

the Bacille Calmette-Guerin (BCG)

vaccination compared to people who were

given a placebovaccination. The BCG

vaccination can be given to people in the

UK at risk of tuberculosis.

This reduction in MRI activity (which is

known to correlate with relapse rate)

indicates that the vaccination could delay

the onset of being diagnosed with MS.

The study

Researchers in Italy studied 73 people who

had experienced a first MS-like attack (also

known as clinically isolated syndrome; CIS).

At the start of the trial, participants were

given either a vaccination (33 people) or a

placebo (40 people), and monitored for six

months with monthly MRI scans.

The participants were then all given

beta-interferon for a further year, before

taking whichever disease-modifying

treatment they decided on with

theirneurologist. After this, they were

studied for up to five years.

Validation needed

Dr Susan Kohlhaas, head of biomedical

This week,

researchers in New

York have published

the results of a

project studying

small structural DNA

changes (termed ‘modifications’) in the

brains of people with MS.

They discovered subtle differences in DNA

modifications in the brains of people with

MS compared to the brains of people

without MS. This means there can be

differences in the activity level of certain

genes in people with MS.

Differences in myelin-making cells

Genes that help myelin-making cells

(oligodendrocytes) survive were found to

have different modifications and appeared

less active in the brains of people who have

MS.

Clues to MS cause

We already know that the environment can

affect or modify our genes. These small

differences in DNA modifications could lead

to clues about how the environment might

interact with genes to influence the

likelihood of someone developing MS.

This research was published in Nature

Neuroscience and conducted by

researchers in New York using samples

from MS Society Tissue Bank.

Dr Susan Kohlhaas, Head of Biomedical

Research at the MS Society, said:

“Understanding more about changes to

Researchers discovers small DNA

differences in people with MS

molecules in the brain in MS is important to

help us learn more about the underlying

cause, and to find ways to treat or one day

even prevent the condition.

“This is the first study to find differences in

DNA modifications in people with MS, and

we are delighted that samples from the MS

Society Tissue Bank contributed to making

it possible. We look forward to seeing

further developments in this new area of

MS research.”

TB vaccine’s potential to reduce MS

activity investigated

Page 5: The South & West Cornwall Branch of The MS Society December 2013 Magazine "The Lifeboat"

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NICE have confirmed Aubagio

(aka teriflunomide) should be prescribed on

the NHS in England and Wales as a ‘first

line therapy’ for people withrelapsing

remitting MS.

It's a reversal from the previous

decision given by the health advisory body

in September, which the MS Society

campaigned against.

Freely available on NHS

The decision means that the drug should

soon be freely prescribed to anyone who

might benefit and is considered an

alternative to beta-interferontreatments.

NICE have not recommended the treatment

for those with highly active or rapidly

evolving relapsing remitting MS (for whom

other treatments are available).

Aubagio is a daily pill and only the second

oral therapy to be confirmed for use on the

NHS, after Gilenya, but the first to be

offered to patients as a first treatment

option.

Our view

Nick Rijke, Director for Policy & Research at

the MS Society, said: “This is very good

news for people with relapsing forms of

MS. 90% of people with MS want an

alternative to treatments by regular injection

and now, at last, there is a first line

treatment option available. Teriflunomide

offers a similar treatment effect to the

current injectable therapies, but for many

people will be much easier to live with

because it's a pill.”

Available from 2014

research at the MS Society said:

“It’s really encouraging to see positive

results from this small trial, but they’ll need

validating in larger and longer-term studies

before we know if the BCG vaccination can

reduce the risk of someone developing MS.

“Ultimately, the chance to take a safe and

effective preventative treatment after a first

MS-like attack would be a huge step

forward.”

NICE confirms new oral treatment for MS

on NHS

In line with normal NICE procedure this

decision is now open to appeal. But if there

are no setbacks, then from around April

2014 hospitals and NHS Trusts will be

legally obliged to prescribe Aubagio to all

patients who choose to take it and are

deemed eligible by a neurologist.

The Scottish Medicines Consortium and

Northern Ireland’s drugs regulatory bodies

will consider the treatment separately for

patients there.

Celebrities and artists back MS Society’s

online auction

To mark the MS

Society’s 60th birthday,

celebrities and artists have

been designing unique

cards for the MS Society

to auction on eBay. The money raised will

fund research. Famous names supporting

‘Cards for a Cause’ include Sir Roger

Moore, Jamie Oliver, Olympic Gold

medallist Sir Ben Ainslie, Sir Ranulph

Fiennes, Richard E Grant, Downton

Abbey’s Hugh Bonneville, Janis Winehouse,

Alan Shearer, Sir Chris Hoy, Lorraine Kelly,

Laurence Llewellyn-Bowen, author Sophie

Kinsella, Oritsé Williams from JLS and Holly

Johnson from Frankie Goes to Hollywood.

You can bid for the cards by visiting eBay

from 2 December:

www.ebay.co.uk/usr/mssocietyuk

Raise money and awareness The auction

launches on eBay on Monday 2 December,

the date of the MS Society’s 60th

anniversary, and will be live for 10 days.

The aim is to raise money and awareness in

the charity’s 60th year. All the money will be

spent on the MS Society’s pioneering

research programme.

Incredibly grateful Michelle Mitchell is the

Chief Executive of the MS Society:

“We’re incredibly grateful to all the

celebrities and famous names who’ve

taken the time to design a card for the MS

Society’s Cards for a Cause auction.

“Every penny raised will go towards our

innovative research programme.

Page 6: The South & West Cornwall Branch of The MS Society December 2013 Magazine "The Lifeboat"

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I remember the cheese of my childhood,

And the bread that we cut with a knife,

When the children helped with the

housework, and the man went to work not

the wife.

The cheese never needed a fridge, and the

bread was so crusty and hot.

The children were seldom unhappy

and the wife was content with her lot.

I remember the milk from the bottle,

with the yummy cream on the top.

Our dinner came hot from the oven,

and not from the fridge; in the shop.

The kids were a lot more contented,

they didn't need money for kicks,

Just a game with their mates in the road,

and sometimes the Saturday flicks.

I remember the shop on the corner,

Where a pen'orth of sweets was sold.

Do you think I'm a bit too nostalgic?

Or is it....I'm just getting old?

I remember the 'loo' was the lav,

and the bogy man came in the night,

It wasn't the least bit funny going "out

back" with no light.

The interesting items we perused,

from the newspapers cut into squares,

and hung on a peg in the loo,

It took little to keep us amused.

The clothes were boiled in the copper,

with plenty of rich foamy suds.

But the ironing seemed never ending

as Mum pressed everyone's 'duds'.

I remember the slap on my backside,

and the taste of soap if I swore

Anorexia and diets weren't heard of

and we hadn't much choice what we wore.

Do you think that bruised our ego?

Or our initiative was destroyed?

We ate what was put on the table

And I think life was better enjoyed.

Judy Reed

Sent in by Judy Reed

January 2014

Christmas 2013 is gone. I hope

you managed to rest after all

the effort you put into it! It’s

over for now and we are all

looking forward to the New Year. At least I

am and I do hope you are – let’s start 2014

full of optimism that the world will be a

better place by next Christmas.

Resolutions? Let’s not talk about them

today. Perhaps in a couple of weeks when

they are forgotten and we can laugh about

the big plans for a slimmer, fitter body we

envisaged, and just enjoy that box of

chocolates we tried to hide at the back of

the cupboard. You know you will only find it

again when you start the spring cleaning,

don’t you! There’s a thought, spring cleaning – no, let’s not think about that yet – plenty of time for that. Later this year will see the centenary of the

start of WW1 , or ‘The Great War’ as it was

originally thought of. I don’t expect there

were many who could have imagined there

would be another world war so soon.

Although there are some centenarians who

would have been children at that first awful

time, we will probably have to rely on the

memories they can recall from what they

have been told, and I’m sure there will be

parades up and down the country to

commemorate the occasion. We really

must never forget.

I’ll sign off with this thought, just

wishing you a happy New Year,

with a prayer for peace not only

around the world but in every

household this Lifeboat enters and

thanking you for reading these

ramblings month by month.

Ros

Thought of the month

Page 7: The South & West Cornwall Branch of The MS Society December 2013 Magazine "The Lifeboat"

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November Carers Christmas lunch

Carers

Christmas

lunch at the

Falmouth

Hotel

The carers enjoyed

their Christmas

lunch but I heard

that there were no

spouts!!

South & West Cornwall branch

Christmas lunch

The branch Christmas lunch was hosted by

the Membly Hall Hotel, Falmouth.

The lunch was very well attended with

over 80 people enjoyed their Christmas

meal, of course father Christmas was there

again this year.

We compliment the chef and thank the staff

for a lovely time.

We look forward to next year

Page 8: The South & West Cornwall Branch of The MS Society December 2013 Magazine "The Lifeboat"

Read-A-Thon news

7

The November Read-A-Thon has now finished and we

are waiting for the results to come in this month but all

indications are that more have taken part in each school

participating in this round.

I can’t thank the schools enough for their unbelievable

co-operation. When the final results are in I will publish

them in our magazine

Schools Awareness DVD

These are most of the students

working on the Schools

Awareness DVD.

Mike May and I have been filming

for some time now and hope to be

finished by the end of January

The DVD is about bringing awareness to

schools with regard to MS and how people

are affected by the condition.

Our thanks go to Cape Cornwall School

who have had us trampling over their

library for several weeks now

Read-A-Thon DVD

Our next DVD is related to the MS

Read-A-Thon, and we look forward to

working with these student again.

We thank them for their input although

there were more out takes than wraps

they are really doing well.

Our thanks also go to Mrs Megan Nelhams

the school librarian (seen in the picture

above left) for her support and

commitment, not forgetting Emily Hill and

Julie Nash Head Teacher for without them

the project would not be possible.

I will keep you informed of progress.

Cape Cornwall School news desk

Page 9: The South & West Cornwall Branch of The MS Society December 2013 Magazine "The Lifeboat"

8

Sunshine and

Showers TRURO

Self help support

group for Service

users and Carers

are re launching on

the16th January

on Thursdays

from 1:30 - 3:30

then every other

Thursday.

We go ten pin bowling at Truro Bowling

alley, there is parking for disabled and our

group is open to Carers as well who may

benefit from a fun afternoon out within the

community.

We are a mixed group of adults who mostly

suffer from some kind of chronic long term

mental or physical illness and we all

support each other to help each other in

this difficult time of cuts to the NHS and

services.

The group is run by members and

volunteers and we all chip in to make sure

everyone has a nice time. We recently also

got nominated for an award for "Best

Community Activity" by the Voluntary

Services Forum.

We also had a lovely write up by time to

change and here is the link for anyone who

would like more info on Sunshine and

Showers:

www.time-to

change.org.uk/champions/peer-support-

truro

We would like to grow our support group

and from it hope that people will be able to

form friendships and gain support from

people within the community who are also

feeling the NHS cuts to services.

We have been running 18 months now and

have 3 full time volunteers, one gentleman

who had a stroke, myself who has

Fibromyalgia / Suspected MS and our

Treasurer is also disabled so we are very

empathic to the situations our members

face.

We can also sign post and offer a lending

ear should a person need a little

encouragement with the bowling. Or they

can just come along for a cup of tea !!

Claire Jones

Founder / Volunteer Group Leader

Sunshine & Showers (SAS) Mental Health

Cornwall

www.sunshineandshowers.co.uk

Facebook: Sunshine and Showers Positive

Mental Health

Mr & Mrs Chapman at the Hall for

Cornwall

Richard and Amanda Chapman ran a stall

at the Hall for Cornwall in aid of the South

& West Cornwall branch, we thank them

for their fund raising effort through 2013.

May they keep up the good work!

Page 10: The South & West Cornwall Branch of The MS Society December 2013 Magazine "The Lifeboat"

9

January quizJanuary quizJanuary quizJanuary quiz December Quiz answersDecember Quiz answersDecember Quiz answersDecember Quiz answers

Target

£2,000.00

Actual

to date £950

Money Boxes

9

This quiz is all about animals 1 What is the name of the bushy fur

around a male lions neck?

2 Why do zebras have stripes

3 Which monkey has been known to use

stones and sticks as tools?

4 What is a Philippine spotted deer also

named?

5 What frog family is the Trinidad stream

frog a member of?

6 What is the name for a family of

meerkats?

7 What sound does an otter make?

8 How long is a kinkajou's tongue?

Happy birthday to:

2nd Mrs J Revell

Christopher Smith

4th Cynthia Shrubb

Nicola Stevens

15th Joy Rushton

19th Allen Sargent

25th Betty Alderton

28th Ellen May

Can you spot the 12 differences

1 I saw mummy kissing Santa Claus

2 The First Noel

3 Away in a manger

4 Rudolf

5 Walking in a Winter Wonderland

6 Blue Christmas

7 Calypso Carol

8 Once in Royal David’s City

Page 11: The South & West Cornwall Branch of The MS Society December 2013 Magazine "The Lifeboat"

What’s this mystery object?

10

AcrossAcrossAcrossAcross

1111 Hoodwink (4)

3333 Helicopters, colloquially (8)

9999 Endurance (7)

10101010 Bognor ___ (5)

11111111 Precipitous (5)

12121212 Make sorrowful (6)

14141414 Natural tooth covering (6)

16161616 Haphazard (6)

19191919 In-crowd (6)

21212121 Call upon (5)

24242424 Male honey-bee (5)

25252525 Assassinated US president (7)

26262626 Imperil (8)

27272727 Conspiracy (4)

DownDownDownDown

1111 Catastrophe (8)

2222 Situation (5)

4444 Ashore (anag.) (6)

5555 Trimmed, peeled (5)

6666 Intellectual (7)

7777 Cummerbund (4)

8888 Uncomplicated (6)

13131313 Violet gemstone (8)

15151515 Taking everything into

account (3,4)

17171717 Period before Christmas (6)

18181818 Harass a speaker (6)

20202020 Female ruler (5)

22222222 Take unlawfully (5)

23232323 Tool used to cut and shape

wood (4)

Answers to December crossword

January crossword

Page 12: The South & West Cornwall Branch of The MS Society December 2013 Magazine "The Lifeboat"

11

So it is 2014. The post Christmas

slump has been and gone, the feelings of

guilt over all the excess are all but forgotten

and New Year resolutions are yet to be

broken. But before 2013 is a distant

memory and plans for 2014 get under way,

I think there is something more important to

do. As the end of the year approached I

found myself reflecting on all that has

happened in the past year and how one

year can change not just your life but your

whole perspective. After all the fear, anger,

despair and grief of diagnosis I sit here and

realise that my life now in many ways is

better. MS is life changing but something

life changing can give you a special sort of

strength, even though at times I felt I was

barely holding it together. It also gives you

purpose and clarity. It has the incredible

ability to ground and define.

I am definitely not the person I was, in more

ways than one, although I seem to have

retained all of my annoying traits!. No, I am

now more focused, more settled and in

many ways happier. I feel like I have finally

found myself and what is really important to

me, I feel a sense of completeness that

wasn't there before. Yes at the beginning I

mostly felt like a ticking time bomb,

envisaging a restricted and gloomy future

full of all the worst case scenarios, ready

to throw sensibility and caution aside in fear

of a future where I was no longer able or

capable, better do it now before it's too

late !.

Laona’s page Luckily those thoughts and feelings have

run their course, yes I have the odd blip but

mostly I am focused on today and that is

how I want it to be and how it should be,

enjoying, appreciating and making the most

of the now with my Husband, whose love

and constant support has got me here

and my family and friends.

So now you have said goodbye to 2013

and welcomed in 2014, take time now and

again to celebrate the now with those who

mean the most. For me when I want to

celebrate I want to cook and I want it to

be something special, it doesn't have to

be a culinary masterpiece, it just has to be

delicious!. So maybe I can tempt you with a

course from my winter celebration dinner, a

venison, apricot and pickled walnut

casserole, easy to double up, prepare in

advance and reheat on the day and

definitely delicious !.

Who knows what the future holds but I wish

you all a Happy and Healthier 2014 !.

Venison, apricot and pickled walnut

casserole

1 kg diced venison

100g pancetta, optional

1 x jar pickled walnuts, drained and halved

100g dried apricots

2 onions, diced

3 cloves garlic, crushed

300g shallots, peeled and left whole

375ml red wine

75 ml port

1/2 chicken stock cube

2 tsp tomato puree

2 sprigs thyme

2 bay leaves

2 strips orange peel

2 tbsp chopped parsley

1tbsp cornflour

4 tbsp olive oil

black pepper

Oven 150C/300F/gas 2

Serves 5 - 6

Page 13: The South & West Cornwall Branch of The MS Society December 2013 Magazine "The Lifeboat"

12

Heat 1 tbsp of oil until very hot in a large

pan and brown half of the venison, transfer

to a casserole dish and repeat with the

remaining meat.

Add another tablespoon of oil to the pan

and fry the pancetta, if using. Remove with

a slotted spoon and transfer to the

casserole. Add the shallots to the pan and

cook over a medium/high heat until they

colour and add to the meat along with the

apricots, thyme, bay leaves and orange

peel.

Heat the remaining oil and gently fry the

onions until they soften, add the garlic and

cook for a couple of minutes more. Stir

in the cornflour and cook for a minute

then add the red wine, tomato puree and

crumble in the stock cube. Bring to the boil,

stirring continuously until the sauce has

thickened. If the sauce seems a little too

thick add a drop more wine or water,

season with some black pepper, then pour

into the casserole and mix well.

Place a damp piece of baking parchment

over the meat before covering with a lid.

Cook for 1 hour and 45 minutes, remove

from the oven and stir in the port and

pickled walnuts. Return to the oven and

cook for another 45 minutes, or until the

meat is tender.

Garnish with some chopped parsley before

serving.

Nothing moves me anymore

(only cardboard boxes)

A blue moment feeling my guitar sing

hot—rod wheels sail in the summer breeze sea

A Persian cat in a blue coat of arms-howl’in

music talk and music swing mister music man

the streets where people sleep in

cardboard boxes

A wind wood forest with pink paper blues

microphone sound in an elephant cry

black panther gold fish bowl experience

red rambling ram jam streets with pea green soup

the streets where people sleep in

cardboard boxes

Father and daughter in a blue sock sucking on

ambrose and custard ice cream whizz...with

black flamingo rhubarb and blueberry pie

tangerine marshmallows eating marmalade people

the streets where people sleep in

cardboard boxes

Howl’in wolves cry in bring on back the blues

where a fat cat sat on a pink crescent moon

talking in his head, your soul goes with you

a rainbow bridge where people never cry..

the streets where people sleep in

cardboard boxes

Susan Creese

December carers lunch at the Victoria Inn Threemilestone

Sent in by Susan Creese

The next carers lunch is on the 16th Jan. at the Premier Inn, Camborne which is on the

Camborne West turn off from the A30 (also called the Trevithick Inn). Book now!

Page 14: The South & West Cornwall Branch of The MS Society December 2013 Magazine "The Lifeboat"

13 5 5 13

This meeting is to discuss the future

services provided by the South & West

Cornwall branch following the transfer of

West Cornwall members to South

Cornwall.

The Agenda:

12.00 Assemble

12.30 A light lunch

1.00 Presentation about South & West

Cornwall branch.

1.30 Open forum:

What services do our members

want?

How can they be delivered?

How can we improve our

services?

The Financial implications.

3.00 pm sum up If you wish to attend this meeting please

call Malcolm 01209 860754 or email

[email protected] The meeting is open to all members and

carers, however a lack of response will

result in cancellation and a missed

opportunity to have your say in the future

services provided by your branch.

Important noticeImportant noticeImportant noticeImportant notice It has been brought to our notice that

vouchers have been issued and are being

used for hydrotherapy in the west.

The Harbourside physiotherapy centre has

not yet been authorised to accept these

vouchers and until we have carried the

necessary checks we cannot issue

vouchers for this facility

The object of the meeting on the 19th

January is to discuss our requirements and

services, then put the necessary

management procedures in place.

I am hoping that we have resolved this

problem before this issue goes to press.

Please attend the meeting so that we can

take logical steps to provide the required

services.

19th January—Meeting at the Tregenna

Castle Hotel, St Ives

Yes! back by popular demand we are

holding another 1940’s night on the 1st

February 2014.

We want to fill the hall with a 1940’s

atmosphere, lots of dancing, good

company and a great time.

Dress up in your best 1940’s outfit and

enjoy the evening.

Its only £5.00 which includes a pasty

supper and there’s great music from

the Fire ’n’ Ice 1940’s disco.

Call: 01209 860754 for tickets.

Pre Valentine 1940’s night

Page 15: The South & West Cornwall Branch of The MS Society December 2013 Magazine "The Lifeboat"

Information

A cabaret evening with

Your name and address (printed)

……………………………………………………………………………………………...

………………………………………………………………………………………………… Dietary requirements

………………………………………………………………………………………………... I would like tickets for the Fire ‘n’ Ice Cabaret on 1st March 2014

Please indicate number of wheel chair spaces required: - Number

None

The next Fire ‘n’ Ice Cabaret is on the 1st March 2014, and is being hosted by

the Tregenna Castle Hotel, St Ives. The evening is open to all and will consist of

a meal and entertainment. So ring your friends and get your tickets booked to

avoid disappointment. Other branches are welcome to attend.

The Details :

Date: To be held on a Saturday 1st March 2014.

Venue: Tregenna Castle Hotel, St Ives The Meal: Two course meal, Roast Beef with dessert (Vegetarian option).

Programme: 7.00 for 7.30 Meal

Entertainment from 9.00pm till at least 11.00pm

Entertainment: Fire ‘n’ Ice - popular Duo, plus a star guest Raffle in aid of MS plus Lucky ticket draw.

Total Price: Free for people with MS

£5.00 for carers

£10.00 for all others, All are welcome A special rate of £45.00 per person bed & breakfast is available, quote Fire ‘n’

Ice when booking. If you wish to attend please complete the return slip below and send it with

your remittance to:-

Malcolm Glister

Whispering winds

Crellow Hill, Stithians

Nr Truro Cornwall TR3 7AQ

Tel 01209 860754

Email: [email protected]

Please make cheques and orders payable to MSS

Society (do not send cash). You will receive confirmation of purchase and the

tickets will be held on the door for you on arrival unless you state otherwise.

14

Page 16: The South & West Cornwall Branch of The MS Society December 2013 Magazine "The Lifeboat"

15 15

Ingredients

• 140g prunes

• 50ml brandy

• 50g soft brown sugar

• 2 rabbits, jointed

• plain flour, for dusting

• 1 tbsp vegetable oil

• 3 rashers smoked streaky bacon, sliced

into thin strips

• 2 carrots, chopped

• 1 onion, chopped

• 2 celery sticks, chopped

• 1 garlic clove, crushed

• 2 thyme sprigs

• 1 bay leaf

• 150ml red wine, the best you can afford

• 250ml chicken stock

chopped parsley and wild rice, to serve

MethodMethodMethodMethod

1. Heat oven to 150C/130C fan/gas 2. Put

the prunes in a bowl with the brandy and

brown sugar, stir, then set aside to soak.

2. Dust the rabbit in the flour. Heat the oil in

a large flameproof dish and brown the

rabbit all over until golden – you may have

to do this in batches. Set the rabbit aside.

Add the bacon, vegetables, garlic and

herbs to the dish and fry for 5 mins until

starting to colour.

3. Pour in the red wine and scrape all the

goodness off the bottom of the dish. Add

the chicken stock and put the rabbit back

in the dish with the boozy prunes, then

cover and cook for 2 hrs, stirring

occasionally, until the rabbit is totally tender.

Serve scattered with parsley and wild rice

on the side

Rabbit stew

Help!!

somebody

save me

from the

cooking pot

Sweet revenge

Mmmmmmmmmmmmmmm looking tasty,

I wonder if this is one of those Mike George

descendants?

As Jasper is a friend of mine, here's the

message. Take Jasper out the pot or the budgie gets

it.

Tune in next month to see if Jasper

escapes the pot and the budgie flies away.

Meanwhile cook a different rabbit, doesn’t

it look good.

Page 17: The South & West Cornwall Branch of The MS Society December 2013 Magazine "The Lifeboat"

16 16

South Cornwall branch

MS Youth Group West

“Making Sense”

JJJJaaaassssppppeeeerrrr

Well Christmas is now over and in the lead

up, members of your MS youth group were

all very busy with school plays, Jamie

playing in a guitar ensemble in church and

Ben playing with Pendeen Silver Band in

their big Christmas concert.

Our youngest member Jack celebrated his

3rd birthday on December 21st and had a

fantastic day. Belated birthday wishes Jack,

from all members and Jasper!!!

Keep reading 'The Lifeboat', to find out

what other adventures the youth group are

up to. Jamie will be watching Premier

League Darts again in March. Megan and

Lauren will be off to Wembley in June to

see One Direction with Megan’s mum Paula

and Nikki (who will be taking ear plugs) and

Ben has a week camping with his school.

We hope to arrange more fund raising

events including a coffee morning and

maybe another table top sale or craft fayre.

Your monthly Lifeboat will keep you

informed.

Until next month, Megan, Jamie, Lauren,

Ben, Jack, Anna, Nikki and even Jasper

(who has taken time out from tea making)

wish you all a Very Happy New Year!!!!

Nikki xx

My London trip On Wednesday the

6th of November at

6.00am I got on a train

to go to London, It took

6 hours.

The train was a bit

boring but we

had some things to

entertain us, when we got to London we

went to our hotel rooms. We stayed in the

Cardiff hotel, in rooms or 3 or 4. After we

did some sight seeing and when we fin-

ished we went on the London eye.

The eye was very

good we saw lots of

nice sights and things.

Next we went to a

restaurant called

Garfunkel's. I had

sausage mash and beans. When we had

finished we went to watch Charlie and the

chocolate factory. It was very good,

my favourite was miketevee [luca Toomey]

because he is a very good acrobat and

gymnast, he is also a very good actor.

After the show we went back to the hotel.

The next morning after breakfast we went

back to our rooms to get our stuff ready

and played some games. We did some

more sight seeing.

At about 2.00 we

went to the house

of parliaments. We

went into the

houses of

commons and

houses of lords and we got to meet

Andrew George. He answered some of our

questions. When he was younger he

wanted to be a spaceman. After that we

went to a restaurant called ask it was really

nice. I had pepperoni pizza. When we had

finished, it was time to get the train all the

way home. I had a really great time! Lauren

Thanks Lauren for your

article on your trip to

London, it must have been

exciting.

Has anyone else out there

been on a trip that we

could hear about, why not write in to the

editor and tell us about your school trips

with lots of pictures if possible.

Or just give us a story about something

you have done, we could run a

competition. Do it Now!!

Page 18: The South & West Cornwall Branch of The MS Society December 2013 Magazine "The Lifeboat"

17

Young MS and Friends Group

The Young MS & Friends group are

developing their activities with a view to

launching a programme of events in the

new year.

We welcome the arrival of Laura Ward a

new member, Laura is from Belfast and

makes a great addition to the team.

A Young MS and friends social event for

people aged between 18 and 35 has been

arranged for Friday the 31st January 2014

at the Victoria Inn, Threemilestone,

Nr Truro.

7.00 pm start, come and have a chat,

something to eat and just chill out.

Call 07724205006 to book your place

Look out for the posters and brochure to

be launched in the new year

Young MS and Friends

Group

At the Victoria Inn

Are you aged between

18 and 35

The First social event held by the Young MS Group is

to be held at the Victoria Inn, Threemilestone on the

31st January 2014. 7.00 pm arrival, the evening will be funded by the

South & West Cornwall branch so if you fit the age

group come and have a meal with the Young MS

team and talk about what they can offer you and

what you would like to see for young people with MS

in Cornwall.

Page 19: The South & West Cornwall Branch of The MS Society December 2013 Magazine "The Lifeboat"

18

Events taking place at Merlin MS Centre

Sign up is open for the Grand Canyon Sign up is open for the Grand Canyon Sign up is open for the Grand Canyon Sign up is open for the Grand Canyon

TrekTrekTrekTrek---- 10101010thththth----17171717thththth May 2014 Trek.May 2014 Trek.May 2014 Trek.May 2014 Trek. Are you

ready to experience the breath taking

beauty of the Grand Canyon whilst raising

money for the Merlin Ms Centre?

With a year to fundraising you have plenty

of time to join us for this trek of a lifetime.

Contact the centre for more information

01726 885530. Looking for collectorsLooking for collectorsLooking for collectorsLooking for collectors

Merlin MS Centre are looking for willing and

friendly volunteers to help with their

supermarket collection days throughout the

year and throughout the county. If you think

you can spare an hour or two to help then

please get in touch with the centre on

01726 885530.

Tel: 01726 885530

South & West Cornwall

Branch events 2014

JasperJasperJasperJasper

19th January—Members meeting at

Tregenna Castle Hotel, St Ives 12.00 till

3.00pm

16th January—The next carers lunch at the

Premier Inn, Camborne which is on the

Camborne West turn off from the A30 (also

called the Trevithick Inn).

please, if you are going confirm with

Karen on 01872 274188.

31st January—Young MS and Friends

Group social event at the Victoria Inn

Threemilestone

1st February—1940’s night at

Perranaworthal village hall

8th February—Annual Meeting at the

Carnon Inn, Carnon downs Nr Truro

1st March—An evening with

Fire ‘n’ Ice cabaret at the

Tregenna Castle Hotel, St Ives

Watch this space for future events, for more

information call Malcolm: 01209 860754

All branches are welcome to attend South &

West Cornwall events, we would be pleased

to see you.

I’m opening a gym called,

“resolutions”. It will have exercise

equipment for the first two weeks

and then turn into a bar for the

rest of the year.

Anyone can join!!

My new project

Page 20: The South & West Cornwall Branch of The MS Society December 2013 Magazine "The Lifeboat"

Branch contact details:Branch contact details:Branch contact details:Branch contact details:

Whispering Winds

Crellow Hill

Stithians

Nr Truro

Cornwall

TR3 7AQ

Tel: 01872 274911

www.mssociety.org.uk/southcornwall Satellite eventsSatellite eventsSatellite eventsSatellite events Last Monday of each month: Last Monday of each month: Last Monday of each month: Last Monday of each month:

Helston & Lizard Group meeting:

Wheal Dream Restaurant, Helston

from 11.00am to approx 2.00pm.

Lunch at discounted rate. Every Thursday: Every Thursday: Every Thursday: Every Thursday:

Yoga at the Well Being Centre,

Nance Lane, Churchtown,

Illogan. 11.00am to 12.15pm. with

Carolyn Smith by appointment only. Every third Thursday of each monthEvery third Thursday of each monthEvery third Thursday of each monthEvery third Thursday of each month

Carers meeting at Mike George’s Useful contacts:Useful contacts:Useful contacts:Useful contacts:

MS National Centre: 02084 380 700

MS Helpline: 0808 800 8000

Care Direct: 0800 444 000

NHS Direct: 0845 4647

Editors Contact detailsEditors Contact detailsEditors Contact detailsEditors Contact details:

To send in articles or comments.

Malcolm Glister

Whispering Winds, Crellow Hill,

Stithians, Nr Truro,

Cornwall, TR3 7AQ

South & West Cornwall Branch Information

Need help or advice, call our

support number 01872 274911

All views expressed in this publication are individual and not necessarily the view or policy of the charity and its supporters.

Multiple Sclerosis Society Registered charity nos. 1139257 / SC041990

Registered as a limited company in England and Wales 07451571

Chairman: Chairman: Chairman: Chairman: Mike George

Telephone: 01872 862031

email: [email protected]

Treasurer: Treasurer: Treasurer: Treasurer: Hilary Merton

Telephone: 01872 863896

email: [email protected]

Address: 7 Agar Meadows, Carnon Downs, Truro,

TR3 6HS.

Voucher Admin Officer: Voucher Admin Officer: Voucher Admin Officer: Voucher Admin Officer: Christine Sargent

Telephone: 01209 315386

email: [email protected]

Secretary: Secretary: Secretary: Secretary: Richard Stevens

Telephone: 01736 360551

email: [email protected]

M S Support : M S Support : M S Support : M S Support :

Telephone: 01872 274911

Carer’s Officer: Carer’s Officer: Carer’s Officer: Carer’s Officer:

Karen Moore

Telephone 01872 274188

Branch Profile manager and Magazine Editor: Branch Profile manager and Magazine Editor: Branch Profile manager and Magazine Editor: Branch Profile manager and Magazine Editor:

Malcolm Glister

Telephone: 01209 860754

email: [email protected]

Branch Web manager: Branch Web manager: Branch Web manager: Branch Web manager: Mike May

Telephone: 01872 272 957

email: [email protected]

Membership: Membership: Membership: Membership: Betty Alderton

Telephone: 01872 270901

email: [email protected]

Minute Secretary: Minute Secretary: Minute Secretary: Minute Secretary: Moe Fisher

email: [email protected]

Branch Safety Officer and Youth Team: Branch Safety Officer and Youth Team: Branch Safety Officer and Youth Team: Branch Safety Officer and Youth Team: Nikki Jenkin

Telephone: 01736 787089

email: [email protected]

Events CoEvents CoEvents CoEvents Co----ordinator: ordinator: ordinator: ordinator: Malcolm Glister

Telephone: 01209 860754

email: [email protected]

Fund Raising Officer: Fund Raising Officer: Fund Raising Officer: Fund Raising Officer: Marlene Stevens

Telephone: 01736 360551

email: [email protected]

Young MS & Friends Young MS & Friends Young MS & Friends Young MS & Friends Lauren & Alex

[email protected]