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TOWARDS EXCELLENCE IN PALLIATIVE CARE Resource Document to Assist Completion of Specialist Palliative Care Quality Assessment and Improvement (QA+I) Workbooks National Clinical Programme for Palliative Care, Clinical Strategy and Programmes Division

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Page 1: TOWARDS EXCELLENCE IN PALLIATIVE CARE Resource … · National Social Inclusion Office and the Interpreters in Palliative Care ... Health promoting palliative care is a new concept

TOWARDS EXCELLENCE IN PALLIATIVE CARE

Resource Document to Assist Completion of Specialist Palliative Care Quality Assessment

and Improvement (QA+I) Workbooks

National Clinical Programme for Palliative Care, Clinical Strategy and Programmes Division

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The QA+I Workbooks for specialist palliative care services support the

implementation of the National Standards for Safer Better Healthcare. This resource

document, developed by the National Clinical Programme for Palliative Care, has

been designed to provide practical information to specialist palliative care (SPC)

service when completing the workbooks. The workbooks can be accessed in the

resources section on the programme website.

The document provides background information on a variety of topics relevant to the

QA+I process, and signposts the reader to websites and documents that may assist

with the process of evidence development and implementation. It is designed to be

used as a practical repository, indexed in alphabetical order with space to add and

update information so that the resource can grow and remain current. All links are

active at the time of launch but are not intended as a definitive list but an addition to

other national and international evidence under consideration by services. It is

recommended that this document is also used in conjunction with the other resource

documents developed by the Programme.

We welcome suggestions to improve and augment the Resource File and encourage

you to contact the Programme Manager for the National Clinical Programme for

Palliative Care [email protected] and [email protected] with your

submission.

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Table of Contents A 5

Annual Controls Assurance Alerts Alert: High Alert Medications Adverse Event All Ireland Institute of Hospice and Palliative Care

B 6 C 7

Care Pathway Children Clinical Audit Communication Competence Complaints Compstat Continuing Professional Development Consent Continuity of Care Co-ordination of Care Culture

D 9 Do Not Attempt Resuscitation (DNAR)

E 10 Early Warning Score Environmental Walkabout Observation

F 11 G 12

Governance H 13

Healthcare Records Management Health Promoting Palliative Care Human Resources

I 15 Incident Information Governance Integrated Care ISO9001:2008 Quality Management Systems Certification Irish Association of Palliative Care Irish Cancer Society Irish Hospice Foundation

J 17 K 18

Key Performance Indicators L 19

Identified Lead healthcare Professional M 20

(Palliative Care) Medicine Information Medication Safety High Alert Medications Minimum Data Set Most Responsible Physician

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N 22 National Adverse Event Management System (formally STARSWEB)

National Advocacy Unit National Healthcare Charter Never Events

O 24 Open Disclosure

P 25 Palliative Care Service Delivery Model Palliative Medicine Information Service Performance review Person-Centred Care Policy Prevention and Control of Healthcare Associated Infections Productive Ward Initiative Protective Disclosure Policy

Q 28 Quality Improvement Interventions in Palliative Care Quality Profile Quality and Safety Walk Rounds Quality and Safety Prompts for Multidisciplinary Teams

R 30 Rapid Discharge Planning Risk Assessment and Management

S 31 Safety Statement Service User

National Advocacy Unit Speak to Me and Understand Me Your Service Your Say Health Inequalities Framework Responding to Elder Abuse The National Centre for the Protection of Older People

T 31 U 35 V 36 W 37

Work Related Stress X 38 Y 39 Z 40

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A

Annual Controls Assurance Statement As part of the HSE annual review of the effectiveness of the system of internal controls, all staff at Grade V111 (or equivalent) level and above are required to complete a Controls Assurance Statement, attesting to the existence and operation of controls which are in place in their area of responsibility. These forms are made available through the HSE annually and staff are notified usually towards the end of the year.

Alerts The Health Products Regulatory Authority (HPRA) (formally known as the IMB) role is to protect and enhance public and animal health by regulating medicines, medical devices and other health products and issue alerts and safety notices. Further information about the HPRA can be found on www.hpra.ie Irish Medication Safety Network also issues alerts and safety notices.

Alert: High Alert Medications High alert medications are drugs that bear a heightened risk of causing significant hard to service user when they are used in error. www.ismp.org/tools/highalertmedications www.imsn.ie www.ihi.org

Adverse Event An adverse event is an incident which results in harm to a service user (HIQA, 2012). See also National Adverse Events Management System .

All Ireland Institute of Hospice and Palliative Care The All Ireland Institute of Hospice and Palliative Care through its collaborative approach promotes strategic, evidence based contributions to the policy and practice environment across the island of Ireland www.aiihpc.org

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B

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C

Care Pathway It is a multidisciplinary care plan that outlines the main clinical interventions undertaken by difference healthcare professionals in the care of service users with a specific condition or set of symptoms (Health Information and Quality Authority,(2012) National Standards for Safer Better Healthcare) www.hiqa.ie

Children Health Service Executive (2011) Children First: National Guidance for the Protection and Welfare of Children. Department of Children and Youth Affairs (2011) Children First: National Guidance for the Protection and Welfare of Children. Department Children and Youth Affairs. Government Publications. www.dcya.gov.ie

Clinical Audit Clinical audit is the systematic review and evaluation of current practice against research based standards with a view to improving clinical care for service users. Health Service Executive (2014) A Practical Guide to Clinical Audit

Communuication Speak to Me and Understand Me Speak to Me and Understand Me are two mobile apps developed by the Communicate Your Health Partnership. The partnership comprises of the HSE National Social Inclusion Office and the Interpreters in Palliative Care ‘On Speaking Terms – Matters of Life and Death’ development project. Speak to Me and Understand Me mobile apps links:

Competence

Competence development takes into account the incremental nature of knowledge attainment for skills based on experience and education. It also provides a basis for the development of clinical knowledge and career progression in health and social care. Ryan, K., Connolly, M., Charnley, K., Ainscough, M., Crinion, J., Hayden, C., Keegan, O., Larkin, P., Lynch, M., McEvoy, D., McQuillan, R., O’Donoghue, L., O’Hanlon, M., Reaper-Reynolds, S., Regan, J., Rowe, D., Wynne, M. Palliative Care Competence Framework Steering Group. (2014) Palliative Care Competence Framework. Dublin: Health Service Executive. www.hse.ie/palliativecareprogramme

Complaints Health Service Executive (2009) Your Service Your Say – HSE Complaints Policy and Procedure Manual. Health Service Executive (2010-2012) HSE Health Inequalities Framework.

Compstat CompStat is the foundation of the operational performance measurement and

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reporting process within the HSE. It is available to both statutory and voluntary agency information managers and clinical/management teams, as well as corporate users. www.healthatlasireland.ie

Continuing Professional Development Personal development plans and personal learning plans are part of the concept of continuing professional development.

Consent Consent is the giving of permission or agreement for an intervention, receipt or use of a service or participation in research following a process of communication about the proposed intervention. Informed consent is the voluntary authorisation by a service user with full comprehension of the risks and benefits involved for any medical treatment or intervention provision of personal care, participation in research projects and provision of the service users personalised information to a third party. Health Service Executive (2013) National Consent Policy Quality Profile. Dublin: HSE Publications. www.hse.ie Health Service Executive (2014) National Consent Policy. HSE Publications. www.hse.ie

Continuity Of Care Continuity of care is a process involving the service user and service providers where they are engaged in the ongoing management of healthcare towards an agreed goal.

Coordination Of Care Coordination of care within and between services takes account of service users needs and preferences (Health Information and Quality Authority (2012) National Standards for Safer Better Healthcare) www.hiqa.ie

Culture Culture according to Schein (2004) is associated with distinctive norms that manifest specific values, beliefs and assumptions within a workplace. Schein, E.H. (2004) Organisational Culture and Leadership. (3rd Ed). San Francisco: Jossey-Bass.

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D

Do Not Attempt Resuscitation (Dnar) A do not attempt resuscitation (DNAR) order is a written order stating that resuscitation should not be attempted if an individual suffers a cardiac or respiratory arrest. Health Service Executive (2014) National Consent Policy. HSE Publications. www.hse.ie

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E

Early Warning Score The early warning score categorises the severity of patients’ illness through the: • EARLY detection of patient deterioration

• Use of a structured COMMUNICATION tool (ISBAR)

• Promote an early medical review, prompted by specific TRIGGER points

• Use a definitive ESCALATION plan

See the Acute Medicine Programme for more information http://www.hse.ie/go/nationalearlywarningscore/

Department of Health (2013) National Early Warning Score. The Stationary Office Government Publications. www.health.gov.ie

Environmental Walkabout Observation

The purpose of conducting an environmental observation is to allow the healthcare team to explore how person-centred the environment is for service users and how effective it is for to work in (HSE, 2010). The observation is conducted with the perspective of the service user in mind as well as staff. It is used to inform alterations /changes to the environment to benefit service users and staff. Health Service Executive (2010) The implementation of a model of person-centred practice in older person settings in Ireland. Health Service Publication.

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F

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G

Governance The function of determining the services’ direction, setting objectives and developing policy to guide the service in achieving its stated purpose (HIQA 2008). www.hiqa.ie Health Service Executive (2011) Framework for the Corporate and Financial Governance of the Health Service Executive: Codes of Standards and Behaviour. www.hse.ie Health Service Executive (2009) Framework for the Corporate and Financial Governance of the Health Service Executive: Policy Statement on Fraud. www.hse.ie

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H

Healthcare Records Management Healthcare records management is the systematic and consistent control of all healthcare records throughout their lifecycle. Health Service Executive (2011) Standards and Recommended Practices for Healthcare Records Management. HSE Publications. www.hse.ie Health Service Executive (2010) Code of Practice for Healthcare Records Management Abbreviations. HSE Publications. www.hse.ie Health Service Executive (2007) The National Hospitals Office Code of Practice for Health Care Records Management. Part 5: Retention and Disposal Schedule. HSE Publications. www.hse.ie

Health Promoting Palliative Care Health promoting palliative care is a new concept in palliative care that has emerged over the past decade. It is based on the public health concept of a population approach linking to the World Health Promotion guidelines ‘the Ottawa Charter’: The goals of public health palliative care have been described as:

• Building public policies that support dying, death, loss and grief • Creating supportive environments (in particular social supports) • Strengthening community action • Developing personal skills in these areas • Re-orientating the health system (Kellehear, 1999)

Kellehear, A. (1999) Health-promoting palliative care: Developing a social model for practice. Mortality: Promoting the interdisciplinary study of death and dying. Vol 4, (1). World Health Organisation (2004) Standards for Health Promotion in Hospitals. World Health Organisation (2006) Implementing Health Promotion in Hospitals. Manual and Self-Assessment Forms. Department of Health and Children (2013) Healthy Ireland – A Framework for Improved Health and Wellbeing 2013-2025 http://www.caresearch.com.au/caresearch/tabid/1477/Default.aspx http://www.pallcarevic.asn.au/service-providers/health-promotion/ http://www.compassionatecommunities.ie

Human Resources See HSE HR staff resources Health Service Executive (2009) Dignity at Work Policy for the Health Service. Anti

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Bullying, Harassment and Sexual Harassment Policy and Procedure. Health Service Executive (2009) Employee Wellbeing and Welfare Strategy. Health Service Executive (2005) Trust in Care. http://www.hse.ie/eng/staff/Resources/hrppg/Trust_in_Care.pdf Health Service Executive (2011) HSE Good Faith Reporting Policy. Health Service Executive (2012) HSE Policy on the Treatment Erasures and Sanctions Issued by Regulatory Authorities against HSE Employees. Health Service Executive (2012) Garda Vetting and Assessment of Existing Employees in the Health Service. Health Service Executive (2012) HSE Policy for Lone Working. Health Service Executive (2012) Policy for Prevention and Management of Stress in the Workplace. Health Service Employers Agency (2004) Grievance and Disciplinary Procedures for the Health Service. Health Service Executive (2014) HSE Policy on Annual Certification of Registration of Social Workers with the Social Workers Registration Board at CORU. Health Service Executive (2012) HSE Policy of Certification of Nurses and Midwives with An Bord Altranais. www.nursingboard.ie Medical Professional Competence Scheme

www.medicalcouncil.ie/Information-for-Doctors/Professional-Competence

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I

Incident The HSE definition of an Incident is - an event or circumstance which could have, or

did lead to unintended and/or unnecessary harm (HSE Safety Incident Management

Policy).

The State Claims Agency (SCA) is upgrading the web based system the HSE and

relevant funded services use in order to report incidents to the SCA. This upgraded

system is called the National Incident Management System (NIMS) formerly known

as StarsWeb. NIMS is a confidential highly secure web based system. It is an end to

end risk management tool that will allow the HSE and HSE funded services (where

appropriate) to manage incidents1 throughout the incident lifecycle and identify

emerging trends whilst also fulfilling the legal requirement to report incidents to the

SCA. NIMS was designed in accordance with international and best practice

standards, and legislative requirements to include the Safety, Health and Welfare at

Work Act 2005. The design process involved consultation with subject matter experts

and numerous external stakeholders. http://www.nimlt.hse.ie

Health Service Executive (2014) HSE Safety Incident Management Policy.

Health Service Executive (2012) Guideline for System Analysis and Investigation of

Incidents and Complaints.

Department of Health (2014) HSE Midland Regional Hospital, Portlaoise Perinatal

Deaths (2006 – to date). www.health.gov.ie

Information Governance HIQA (2011) has developed a guide that gives practical information for health and

social care staff around the management of information. The information governance

self-assessment tool is an interactive list of questions to which service providers are

asked to simply answer “yes” or “no to determine their compliance with information

governance requirements and practices. It is a resource to be used by the

management team of organisations for learning and development. It is designed to

highlight areas where urgent action is required and where improvements may be

made.

HIQA have also developed a document titled Guidance on Information Governance

for Health and Social Care Services in Ireland (HIQA 2012). This guidance is aimed

at helping healthcare professionals to improve how the health service handles

service user information, and it provides practical examples on how to help prevent

breaches from happening.

Health Information and Quality Authority (2011) What You Should Know About

Information Governance, A Guide for Health and Social Care Staff.

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Health Information and Quality Authority (2012) Information Governance Self

Assessment Tool. Available on www.hiqa.ie

Integrated Care Integrated care is the “processes, methods and tools” of integration that facilitate

integrated care. Integration involved connecting the healthcare system (acute,

community and primary medical) with other service systems such as long-term care,

education or housing services (Leutz, 1999).

Leutz, W.N. (1999) Five Laws for Integrating Medicaland Social Services: Lessons

from the United States and United Kingdom. Millbank Quarterly Vol 77 (1) 77- 110.

ISO 9001: 2008 Quality Management Systems Certification ISO 9001: 2008 is an internationally recognised quality management system (QMS)

standard. It has been created to help organisations ensure that they meet the needs

of their customers and other stakeholders while also meeting statutory and regulatory

requirements related to the product. Further information is available at:

www.certificationeurope.com/iso-9001-quality-management-certification/

Irish Association of Palliative Care The Irish Association for Palliative Care established in 1993 is an All Ireland body

that aims to promote palliative care nationally and internationally. www.iapc.ie

Irish Cancer Society Since 1963 the Irish Cancer Society has grown into the National Charity for Cancer

Care, the leading provider of all information relating to cancer prevention, detection,

treatment and support. www.cancer.ie

Irish Hospice Foundation The Irish Hospice Foundation is a national charity dedicated to all matters relating to

dying, death and bereavement in Ireland. www.hospicefoundation.ie

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J

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K

Key Performance Indicators Key Performance Indicators (KPIs) are measures of performance that are used by

organisations to measure how well they are performing against targets or

expectations. KPIs measure performance by showing trends to demonstrate that

improvements are being made over time (HIQA, 2013).

Health Information and Quality Authority (2013) Guidance on Developing Key

Performance Indicators and Minimum Datasets to Monitor Data Quality.

www.hiqa.ie

www.pcoc.org.au/

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L

Identified Lead Healthcare Professional The decision regarding the identified lead healthcare professional is made based on

the specialty/healthcare team that a service user is attending or the lead healthcare

professional (usually the consultant in charge) that is responsible and accountable for

the care of the person.

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M

(Palliative Care) Medicine Information The Palliative Meds Info Service is a service providing information for health

professionals on all aspects of drug therapy used in palliative care. This service is

based in the pharmacy department at Our Lady’s Hospice in Harold’s Cross and

responds to enquiries received by telephone or email. Further information can be

found on: Palliative Medicine Information service and email

[email protected]

Medication Safety The Medication Safety Programme is charged with making practical improvements to

the way medicines are managed, to deliver better, more efficient care to service

users and to avoid harm. The Programme is leading on a number of initiatives

including the standardisation of Medication Prescriptions & Administration Records

(MPAR) in acute hospitals (including acute mental health facilities) to minimise

medication errors caused by documentation processes (HSE, 2014). Health Service

Executive (2014) Medication Safety.

An Bord Altranais (2007) Guidance to Nurses and Midwives on Medication

Management. Dublin: An Bord Altranais Publication. www.nursingboard.ie

High Alert Medications www.ismp.org/tools/highalertmedications www.ihi.org

Minimum Data Set Minimum Data Set is a set of clearly defined data that is considered to provide

important information on a service. The identification of specific data for collection

facilitates:

The measurement of activities and utilisation of a service.

The management of resources with a view to improving patient care.

Audit and research both nationally and by local services.

Requests by individual services for additional resources.

(Sweeney, 2004).

Sweeney, C. (2004) Proposed Minimum Datasets for Specialist Palliative Care

Services in Ireland. St Patrick’s Hospital/ Marymount Hospice, Cork.

Health Information and Quality Authority (2013) Guidance on Developing Key

Performance Indicators and Minimum Datasets to Monitor Data Quality. www.hiqa.ie

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Most Responsible Physician The physician who has final responsibility and is accountable for the medical care of

a patient.

Health Service Executive (2014) Glossary of Terms. National Clinical Programme for

Palliative Care. Clinical Strategy and Programmes Division. Version 2.

www.hse.ie/palliativecareprogramme

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N

National Adverse Event Management System (Formally Starsweb) The National Adverse Event Management System (NAEMS) is a national web-based

database for the reporting of adverse clinical incidence and ‘near misses’ (HIQA).

The management organisation of the NAEMS is the Clinical Indemnity Scheme

(CIS), State Claims Agency on behalf of the Department of Health. Recording

adverse events and examining why and how they happened is an essential part of

promoting a patient safety culture. It supports investigation and information for

patients and their families, gives services an opportunity to analyse trends and

continuously improve, and informs future planning of health services.

www.hiqa.ie

http://www.stateclaims.ie

National Advocacy Unit The primary role of the national advocacy unit among others is:

To insure the involvement of service users is central to how healthcare services

are designed, delivered and evaluated.

To develop and support implementation of best practice models of customer care

within the health service

To support implementation of the ‘National Healthcare Charter You and Your

Health Service’ which outlines what service users can expect and what their

responsibilities are whenever and wherever they use health services.

Follow this link for more information on the National advocacy unit

National Healthcare Charter The National Healthcare Charter is a statement of commitment by the HSE on

healthcare expectations and responsibilities. It outlines what service users can and

should expect every time that they use health services, and what service providers

can do to help deliver safer and more effective health services in Ireland.

Health Service Executive and Department of Health (2012) National Healthcare

Charter.You and Your Health Service. Kildare: Health Service Executive.

http://www.hse.ie/eng/about/Who/qualityandpatientsafety/

Never Events The term ‘never event’ was first introduced in 2001 by Ken Kizer, MD, Former CEO

of the US National Quality Forum. It particularly refers to concerning medical errors

(such as wrong-site surgery) that should never occur. Over time, this list has been

extended to include significant adverse events that are clearly identifiable, serious

(resulting in death or significant disability) and usually preventable (DoH, 2014).

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Department of Health (2014) HSE Midland Regional Hospital, Portlaoise Perinatal

Deaths (2006-date).

Kizer, K. W. (2001) Establishing Health Care Performance Standards in an Era of

Consumerism. JAMA Vol. 286 1213-1217

Kizer, K.W., Stegun, M.B. (2005) Serious Reportable Adverse Events in Henriksen,

K., Battles, J.B., Marks, E.S et al Advances in Patient Safety : from Research to

Implementation Vol 4 Programs, Tools, and Products) Rockville (MD) Agency for

Healthcare Research and Quality (US) 2005 February.

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O

Open Disclosure Services support an open, timely and consistent approach to communicating with

service users and their families when things go wrong in healthcare. This is called

open disclosure. A national policy and national guidelines on open disclosure with

supporting documents which include a patient information leaflet, a staff support

booklet and a staff briefing guide are available on from the HSE and State Claims

Agency see www.hse.ie/opendisclosure .

Angela Tysall, is the National Lead for the HSE in Open Disclosure, and can be

contacted at HSE Quality Improvement Division

Donegal PCCC Headquarters, St Joseph’s Hospital, Stranorlar, Co. Donegal, Tel:

074 9191774, Email:[email protected]

Open Disclosure Pamphlet May 2015 Open Disclosure Staff Briefing Presentation May 2015

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P

Palliative Care Service Delivery Model A service delivery model (SDM) sets out how a service will integrate and deliver its

service. Each HSE service area is required to set out the service delivery model that

supports the delivery of their care using a nationally agreed SDM if available, or an

evidence based model agreed through service/provider governance structures.

Typically a Specialist Palliative Care SDM would provide a framework for palliative

care service providers (primary and specialist) to work together for the benefit of

service users and their families. It would also include:

How it provides for of a comprehensive assessment of the service user’s

palliative care needs and the needs of the family

Determine a plan of care

Improved co-ordination and collaboration between primary and specialist

providers

Reduced duplication Role clarity

http://www.dhhs.tas.gov.au/palliativecare/health_professionals/model_of_care www.pcoc.org.au/ Palliative Care Australia (2005) Standards for Providing Palliative Care for All Australians. www.pallcare.org.au Canadian Hospice Palliative Care Association (2002) A Model to Guide Hospice Palliative Care: based on national principles and norms of practice. Ontario: Canadian Hospice Palliative Care Association Department of Health and Children (2001) Report of the National Advisory Committee on Palliative Care. Dublin: Department of Health Publications. Department of Health and Children (2005) Design Guidelines for Specialist Palliative Care Settings. Dublin: Department of Health Publications.

Palliative Medicine Information Service The Palliative Medicine Information service is a service providing information for

health professionals on all aspects of drug therapy used in palliative care. This

service is based in the pharmacy department at Our Lady’s Hospice in Harold’s

Cross and responds to enquiries received by telephone or email. Further information

can be found on: Palliative Medicine Information service and email

[email protected]

Performance Review A yearly performance review is an individual or team based performance approach as part of an overall performance management review.

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Person-Centred Care

“Person-centred care and support places service users at the centre of all that the

service does. It does this by advocating for the needs of service users, protecting

their rights, respecting their values, preferences and diversity and actively involving

them in the provision of care. Person-centred care and support promotes kindness,

consideration and respect for service users’ dignity, privacy and autonomy” (Health

Information and Quality Authority, (2012, pp19).

The principles of person-centred care are based on treating people as individuals;

respecting their rights as persons; building mutual trust and understanding, and

developing therapeutic relationships (McCormack and McCance, 2010).

McCormack, B., McCance, T. (2010) Person-centred Nursing. Theory and Practice.

Oxford: Wiley-Blackwell.

www.effectivehealthcare.ahrq.gov http://hdl.handle.net/10147/115689 http://www.patient-centeredcare.org http://www.health.org.uk/areas-of-work/topics/person-centred-care/ http://www.evidenceintopractice.scot.nhs.uk/Default.aspx http://www.wanderingnetwork.co.uk/

Policy A policy is a written operational statement of intent which helps staff make appropriate decisions and take actions, consistent with the aims of the service provider, and in the best interest of service users.

Prevention and Control of Healthcare Associated Infections Healthcare associated infections (HCAIs) are infections, such as MRSA (Methicillin-resistant Staphylococcus aureus), that patients may acquire during the course of receiving treatment for other conditions within a healthcare setting. The ongoing reduction of HCAI rates is one of the most important challenges facing health and social care services (HIQA, 2009). Reducing these infections is vital to improve the quality and safety of care for people who use the health and social care services. Tools and guidance that may assist you in your facility can be found at the links below:

HIQA PCHCAI standards (2009)

Health Service Executive (2013) Decontamination of Reusable Invasive Medical Devices Programme.

Community Infection Control Guidelines (2011)

WHO Hand Hygiene Guidelines: Outpatient and home-based care and long term care facilities (2012)

The following guidelines are available on the HPSC website at

MRSA Guidelines (2013)

Multi-drug resistant organisms, excluding MRSA guidelines (2013)

Prevention of Catheter-Associated UTI (2011)

Diagnosis & Management of UTI in residents of LTCF (2011)

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Prevention of Intravascular Catheter Infection (2010)

C. difficile infection (2013)

National guidelines on the management of outbreaks of norovirus infection (2003)

Antimicrobial prescribing for primary care (2013) Immunisation Guidelines for Ireland (2013) Public Health Guidance on Prevention & Management of Influenza Outbreaks in Residential Care Facilities (2013-2014) Links to HALT Reports 2010, 2011 & 2013

Productive Ward Initiative The Productive Ward: Releasing Time to Care ™ is a quality improvement initiative with the aim of empowering front line staff to drive forward improvements in health services through redesigning and streamlining the way staff and services deliver care with an emphasis on patient safety. For more detail see http://www.hse.ie/productiveward

Protective Disclosure Policy Section 103 of the Health Act 2007, which came into operation on 1st March 2009, provides for the making of protected disclosures by health service employees. If an employee reports a workplace concern in good faith and on reasonable grounds in accordance with the procedures outlined in the legislation it will be treated as a “protected disclosure”(HSE, 2009). Follow the link for more information on protective disclosure.

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Quality Improvement Interventions in Palliative Care Quality improvement interventions in palliative care are targeted improvements for service users with life-limiting conditions. These improvements are conducted within or linked to the health care system and have at least some elements of system change, or intended change in how the system will interact with the service user and family. Examples of targets include service user and family satisfaction of palliative care; service user and family perceptions of palliative care; symptoms management and quality of care measures; grief and bereavement support; service access and health care utilisation. National Consensus Project (2009) Quality Palliative Care Clinical Practice Guidelines for Quality Palliative Care (2nd ed). Pittsburgh, US: National Consensus Project. Hospice New Zealand (2012) Standards for Palliative Care. Quality Review Programme and Guide. Wellington: Hospice New Zealand. www.hospice.org.nz

Health Service Executive (South) (2012) Towards Excellence in Palliative Care – Self Assessment Tool. Department of Health and Children (2008) Building a Culture of Patient Safety. Report of the Commission on Patient Safety and Quality Assurance. The Stationary Office Government Publications. Health Service Executive 2014) National Clinical Programme for Palliative Care: Towards Excellence in Palliative Care Quality Assessment and Improvement Workbooks.

Quality Profile A quality profile provides an overview of the quality of healthcare a service is providing. Qualitative and quantitative information is derived from a variety of sources e.g. regulatory bodies, professional bodies, routine data collection, and audit and feedback from service users and staff. HIQA (2012). Health Information and Quality Authority (2012) National Standards for Safer Better Healthcare. Published by HIQA.

Quality And Safety Walk Rounds These service user safety walk rounds are a way of insuring that senior managers can build relationships and trust so they are informed and can exchange views, regarding the safety concerns of units/teams. They provide an opportunity for frontline staff to identify and discuss their safety concerns. They are also a way of demonstrating visible commitment by listening to and supporting staff when issues of safety are raised. Walk rounds can be instrumental in developing an open culture where the safety of patients is seen as the priority of the organisation. Health Service Executive (2013) Quality and Safety Walk Rounds Tool Kit. HSE Publication. See

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http://www.hse.ie/eng/about/Who/qualityandpatientsafety/Clinical_Governance/

Quality and Safety Prompts For Multidisciplinary Teams The quality and safety prompts are guiding principles for quality and safety. They can be used as a guide for action on quality and safety using the Plan, Do, Study, Act (PDSA) cycle. The prompts guide local team discussion on quality and safety with a focus on creating the environment and culture where excellence is embraced and can flourish with strong multidisciplinary team collaboration (HSE, 2013). Health Service Executive (2013) Quality and Patient Safety – QPS Intranet Content: http://www.hse.ie/eng/about/qps/

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Rapid Discharge Planning The aim of the rapid discharge planning guidance is to facilitate, smooth and seamless transition of care from hospital to community for persons who have expressed a wish to die at home. This document acts as a supplement to the Health Service Executive (HSE) National Integrated Care Guidance (HSE, 2014). Rapid Discharge Planning is driven by the wishes of the person and the carer and should be used in circumstances when a clinical situation has changed and there is an urgent request to enable the person to die at home. The National Clinical Programme for Palliative Care (2013) has produced a guidance document for rapid discharge planning which can be found on the programme website: www.hse.ie/palliativecareprogramme Health Service Executive (2013) National Rapid Discharge Guidance for Patients Who Wish to Die at Home. National Clinical Programme for Palliative Care. www.hse.ie/palliativecareprogramme Health Service Executive (2014) Integrated Care Guidance: A Practical Guide to Discharge and Transfer from Hospital. National Integrated Care Advisory Group. HSE Publications. Health Service Executive (2014) Integrated Care Guidance. A practical guide to discharge and transfer from hospital, 9 step check list. National Integrated Care Advisory Group.

Risk Assessment And Management The HSE recognises the importance of risk management as an essential process for the delivery of quality and safe services. Risk Management is the planned and systematic approach to identifying, evaluating and responding to risks and providing assurances that responses are effective. Risk Management is a key element of good governance and underpins the ability to provide safe and effective care to our service users; it refers to strategies that reduce the possibility of a loss or harm. It consists of proactive and reactive components. Proactive components include activities to prevent adverse impacts, and reactive components include actions in response to adverse events. The HSE has in place a comprehensive integrated risk management policy with related procedures and tools available on the HSE website (www.hse.ie). Health Service Executive (2011) Risk Management in the HSE. An Information Handbook Health Service Executive (2011) Risk Assessment Tool and Guidance. Health Service Executive (2009) Developing and Populating a Risk Register. Best Practice Guidance.

Irish Standard (2009) ISO 31000 Risk Management – Principles and Guidelines. www.nsai.ie

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Safety Statement A Safety Statement is a written programme in which an organisation specifies the manner in which the safety, health & welfare at work of its employees and others affected by its activities shall be secured and managed. The Safety Statement is based on the identification of hazards and the assessment of risk. Safety, Health and Welfare at Work Act, (2005). www.irishstatutebook.ie/2005/en/act/pub/0010/ Health Service Executive (2008) Best Practice Guidance for Developing a Site Specific Safety Statement. Health Service Executive (2012) Garda Vetting and Assessment of Existing Employees in the Health Service. www.hse.ie Health Service Executive (2012) HSE Policy for Lone Working. www.hse.ie Health Service Executive (2012) Responding to Allegations of Elder Abuse. HSE Elder Abuse Policy. Department of Health and Children (2008) Building a Culture of Patient Safety. Report of the Commission on Patient Safety and Quality Assurance. The Stationary Office Government Publications. www.health.gov.ie

Service User Throughout the National Standards and guidance the term service users is used. The term service user includes:

people who use healthcare services

their parents, guardians, carers and family

their nominated advocates

potential users of healthcare services. The term ‘service user’ is used in general throughout this document but occasionally the term patient is used where it is more appropriate. Reference to service users does not include service providers who use services on behalf of their patients, for example, general practitioners using diagnostic laboratory services (HIQA, 2012). Health Information and Quality Authority (2012) National Standards for Safer Better Healthcare. Dublin: Health Information and Quality Authority. www.hiqa.ie Department of Children and Youth Affairs (2011) Children First: National Guidance for the Protection and Welfare of Children. Department Children and Youth Affairs. Government Publications. www.dcya.gov.ie Health Service Executive (2005) Trust in Care.

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National Advocacy Unit The primary role of the national advocacy unit among others is:

To insure the involvement of service users is central to how healthcare services are designed, delivered and evaluated.

To develop and support implementation of best practice models of customer care within the health service

To support implementation of the ‘National Healthcare Charter You and Your Health Service’ which outlines what service users can expect and what their responsibilities are whenever and wherever they use health services.

http://www.hse.ie/eng/services/yourhealthservice/contact/National/

Speak to Me and Understand Me Speak to Me and Understand Me are two mobile apps developed by the Communicate Your Health Partnership. The partnership comprises of the HSE National Social Inclusion Office and the Interpreters in Palliative Care ‘On Speaking Terms – Matters of Life and Death’ development project. Speak to Me and Understand Me mobile apps

Your Service Your Say Your Service Your Say is a guide to the HSE Feedback Policy. This guide outlines how the HSE will listen to and act on the feedback received from the people using the services. Health Service Executive (2009) Your Service Your Say – HSE Complaints Policy and Procedure Manual. Kildare: HSE www.hse.ie

Health Inequalities Framework The Department of Health and Children has developed a number of policies with an important health inequality dimension Health Service Executive (2010-2012) HSE Health Inequalities Framework.

Responding to Elder Abuse Health Service Executive (2012) Responding to Allegations of Elder Abuse. HSE Elder Abuse Policy.

The National Centre for the Protection of Older People www.ncpop.ie

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Work Related Stress The HSE have developed a policy titles Policy for the Prevention and Management of Stress in the Workplace. The policy sets out a framework with the aim of identifying and reducing workplace stress. The state agency with responsibility for promoting health and safety at work in Ireland is the Health and Safety Authority (HSA). The HSA has published: Work Related Stress – A Guide for Employers and Work Related Stress – Information Sheet for Employees. Further information on employer and employee policies can be found on www.hsa.ie

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Z