usnewspediatricsurvey.rti.org · Web viewFocusing on patients treated by your Pediatric Pulmonology Program who have asthma (see code list for principal diagnoses), please provide

SECTION J: PEDIATRIC PULMONOLOGY

J1. Do you have a Pediatric Pulmonology program?

Yes – Go to Question J2 No – Skip to Section K

When responding to questions in this section, your hospital must consult with the chief of service (or equivalent) of your Pediatric Pulmonology program to ensure that answers are accurate and consistent with both the care delivered and the intent of the survey.

As data are reviewed, U.S. News may have questions about responses to individual questions or about an entire submission. To ensure communication with the appropriate clinical leader, please provide the following information about the chief of service (or equivalent) for your Pediatric Pulmonology program.

Full name:

Title:

Email:

Preferred phone:

REQUIRED: IF NAME, TITLE, EMAIL, OR PHONE=BLANK, DISPLAY: “A response is required for [Name/Title/Email/Phone] prior to submitting the survey. Click “OK” to continue with the survey and answer this question later. Click “Cancel” to provide a response to this question now.”

Last updated: 1/3/2018

J2. Please indicate the total number of attending/on-staff physicians (excluding fellows)1 who are currently members of the medical staff in your Pediatric Pulmonology program in the following categories. For each category, please also indicate the total number of full-time equivalents (FTEs)2 devoted to clinical care. [If none, please enter 0.]

Total Physicians

Clinical FTEs

a. Pediatric pulmonologists (include only board-certified/board-eligible by the American Board of Pediatrics with subspecialty certification in pediatric pulmonology)

________ ________

b.

Pediatric sleep medicine physicians (include only board-certified/board-eligible by the American Board of Pediatricswith subspecialty certification in sleep medicine)

________ ________

c. Other attending/on-staff physicians (include all other attending/on-staff physicians who are not subspecialty certified in pediatric pulmonology or sleep medicine)

________ ________

VALIDATE: IF J2x1 IS NOT A WHOLE NUMBER, DISPLAY: “J2x (Total Physicians): Please enter a whole number (no decimals).”

Note: The preceding questions are used to determine eligibility for Pediatric Pulmonology. If you leave any part of these questions blank, your hospital will be considered ineligible for the rankings in Pediatric Pulmonology.

J3. Please indicate the total number of nurse practitioners and physician assistants who work in or directly support your Pediatric Pulmonology program. For each category, please indicate the total number of full-time equivalents (FTEs)3 devoted to clinical care. [If none, please enter 0.]

Total Staff

Clinical FTEs

a. Nurse practitioners ________ ________b. Physician assistants ________ ________

VALIDATE: IF J3x1 IS NOT A WHOLE NUMBER, DISPLAY: “J3x (Total Staff): Please enter a whole number (no decimals).”

1 Attending/on-staff physicians include those who have completed their training in their particular medical specialty, are actively providing clinical care to patients, and are currently considered a member of the “medical staff” at the hospital. This may include physicians employed by the hospital, an affiliated university, or some other entity as long as the physician is considered part of the medical staff at the hospital.2 To calculate physician clinical FTEs, please take the percentage of typical clinical effort that a physician provides to the program and divide by 100. This resulting decimal will be the clinical FTE for this physician. For example, Dr. A spends 75% of his time in clinical care and 25% in research; the clinical FTE for Dr. A would be 0.75 FTE (i.e., 75/100=0.75).3 To calculate nurse practitioner and physician assistant clinical FTEs, please take the percentage of typical clinical effort that a NP or PA provides to the program and divide by 100. This resulting decimal will be the clinical FTE. For example, NP Smith spends 65% of her time in clinical care and 35% in administrative activities; the clinical FTE for NP Smith would be 0.65 FTE (i.e., 65/100=0.65).


J4. Please indicate the number of clinical nurse (RN) FTEs4 who work in or directly support your Pediatric Pulmonology program. [If none, please enter 0.]

________ RNs (inpatient and outpatient)

J5. Did your Pediatric Pulmonology outpatient program have access to each of the following clinical staff in the last calendar year? [If none, please enter 0.]

Yes Noa. Respiratory therapists

○ ○

b. Social workers ○ ○

c. Dieticians ○ ○

d. Physical therapists ○ ○

e. Psychiatrists or Psychologists ○ ○

J6. Does your Pediatric Pulmonology Program screen all pulmonology patients for tobacco smoke exposure and actively counsel family members who smoke or refer them to tobacco cessation programs or treatment?

Yes No

J6.1 Does your hospital have care pathways (i.e., written consensus protocols) created by your Pediatric Pulmonology program or other hospital programs for inpatient management of any the following conditions?

Yes Noa. Asthma exacerbations

○ ○

b. Bronchiolitis ○ ○

c. Croup ○ ○

d. Cystic fibrosis ○ ○

e. Uncomplicated Pneumonia ○ ○

f. Complicated Pneumonia (e.g., pleural effusion, empyema) ○ ○

g. Initiation of tracheostomy or home ventilator support ○ ○

h. Patients with tracheostomy or ventilator support who are readmitted ○ ○

i. Pneumothorax care pathway ○ ○

4 Calculate nurse (RN) clinical FTEs based on total paid hours for the period of review divided by 2080.


j. Acute chest syndrome ○ ○


Asthma

J7. Does your Hospital have a program with dedicated staff (0.5 or more FTEs), designed to identify and treat patients who have severe, high risk, difficult to control or life-threatening asthma?

Yes – Go to Question J8 No – Skip to Question J9

J8. Does your Pediatric Pulmonology Program have a written protocol for evaluation of patients with severe asthma, including screening for complications of systemic steroid use?

Yes No

J8.1 Does your Pediatric Pulmonology program monitor medication adherence in severe asthma patients?

Yes No

J8.2 Did your Pediatric Pulmonology outpatient program have access to at least 1.0 FTEs5 of Certified Asthma Educators (AE-C) in the last calendar year?

Yes No

J9. Does your Pediatric Pulmonology Program have access to a thorough on-site assessment of patients’ home environments and offer guidance for reducing exposures that contribute to asthma?

Yes No

5 Calculate staff clinical FTEs based on total paid hours for the period of review divided by 2080.


J10. Focusing on patients treated by your Pediatric Pulmonology Program who have asthma (see code list for principal diagnoses), please provide counts for each of the following from the last calendar year. [If none, please enter 0.]

Unique Patients

a. Number of unique outpatients treated by your Pediatric Pulmonology Program6 with a diagnosis of asthma ________

b.

Number of unique outpatients (from J10a) who were later admitted to your hospital (excluding observation) for care related to their asthma ________

c. Number of unique inpatients (from J10b) who have a follow-up appointment with one of your specialty providers (e.g., allergist or pulmonologist) within 30 days of discharge ________

d.

Number of unique outpatients (from J10a) who were eligible to be tracked using the standardized, validated questionnaire (ACT, ATAQ, TRACK, etc.) employed by your hospital. (For hospitals using the ACT or ATAQ, patients > 4 years of age are eligible; for hospitals using the TRACK, all patients are eligible.) ________

e. Number of unique outpatients (from J10d) who had a documented assessment of asthma control7 using a standardized, validated questionnaire (ACT, ATAQ, TRACK, etc.) ________

VALIDATE: IF J10x IS NOT A WHOLE NUMBERS, DISPLAY: “J10x: Please enter a whole number (no decimals).”IF J10x IS BLANK, DISPLAY: “J10x: If none, please enter 0.”IF J10b > J10a, DISPLAY: “J10b (unique outpatients later admitted) cannot be greater than J10a (unique outpatients).”IF J10c > J10b, DISPLAY: “J10c (unique inpatients with follow-up appointment) cannot be greater than J10b (unique outpatients later admitted).”IF J10d > J10a, DISPLAY: “J10d (unique outpatients eligible to be tracked) cannot be greater than J10a (unique outpatients).”IF J10e > J10d, DISPLAY: “J10e (unique outpatients with documented assessment) cannot be greater than J10d (unique outpatients eligible to be tracked).”

6 Include patients treated by an allergist or a pulmonologist, or advanced practitioner (i.e., PA/NP) from your Pediatric Pulmonary program.7A copy of the ACT instrument is available at http://www.asthma.com/resources/asthma-control-test.html.


Please note that J11 and J12 have been reordered for the 2018-19 survey.

J11. How many unique inpatients (excluding observation patients) had a principal diagnosis of asthma and how many of those patients were readmitted to the hospital to address an exacerbation of asthma-related symptoms within 7 days of discharge? [If none, please enter 0.]

________Unique inpatients________Number of readmitted patients

VALIDATE: IF J11x IS NOT A WHOLE NUMBER, DISPLAY: “J11x: Please enter a whole number (no decimals).”If J11b > J11a, DISPLAY: “J11: Patients readmitted cannot be greater than unique inpatients.”IF J11x IS BLANK, DISPLAY: “J11x: If none, please enter 0.”

J12. In the last calendar year, what was the mean length of stay (LOS) for inpatients with the principal diagnosis of asthma (from question J11) in your institution? [Provide your answer in days to 1 decimal place (e.g., 3.2 days).]

________ Inpatient Mean LOS

J13. Moved to J6.1.

J14. Does your hospital track seasonal influenza vaccination of asthma patients (see code list) being treated by your Pediatric Pulmonology program?


J15. Of the total vaccine eligible8 asthma patients (see code list) being treated by your Pediatric Pulmonology program between October 1, and December 31, 2017, what percentage received seasonal influenza vaccine (at your facility or elsewhere) during that time period or earlier that season?

________%

WARNING: IF J14=1 AND J15 = BLANK, DISPLAY: “J15: Please enter a value or answer No to J14.”

VALIDATE: 0 ≤ J15 ≤ 100. ELSE DISPLAY: “J15: Please enter a numeric value between 0 and 100.”

8 Vaccine eligible is defined as > 6 months of age, without medical contraindication, and seen during the period listed above. Patients who refused vaccine should be included in the denominator of “total vaccine eligible” patients.


Cystic Fibrosis

J16. Does your Pediatric Pulmonology program have a Cystic Fibrosis center at your hospital that is accredited by the Cystic Fibrosis Foundation?

Yes No

J17. Does your Cystic Fibrosis center have a dedicated gastroenterologist, endocrinologist, and psychiatrist or psychologist attending clinic or participating in a periodic summary conference to discuss individual patient care plans?

Yes Noa. Gastroenterologist ○ ○b.

Endocrinologist ○ ○

c. Psychiatrist/Psychologist ○ ○

J18. Does your hospital track seasonal influenza vaccination of CF patients (see code list) being treated by your Pediatric Pulmonology program?

Yes – Go to J19 No – Skip to J21

J19. Of the total vaccine eligible9 CF patients (see code list) being treated by your Pediatric Pulmonology program between October 1, and December 31, 2017, what percentage received seasonal influenza vaccine (at your hospital or elsewhere) during that time period or earlier that season?

________%

WARNING: IF J18=1 AND J19 = BLANK, DISPLAY: “J19: Please enter a value or answer No to J18.”


J20. Question deleted from Pediatric Hospital Survey.

J21. For infants 0-3 months of age tested by pilocarpine iontophoresis (sweat test) for cystic fibrosis in the last calendar year, did your Pediatric Pulmonology program meet the benchmark of less than 10% quantity not sufficient? [For programs that have conducted this test with fewer than 30 patients in the past year, please calculate based on the last 30 patients tested. Programs that have tested more than 30 patients should answer in terms of the total population tested in the past year.]

Yes No



J22. For infants and children over 3 months of age tested by pilocarpine iontophoresis (sweat test) for cystic fibrosis in the last calendar year, did your Pediatric Pulmonology program meet the benchmark of less than 5% quantity not sufficient? [For programs that have conducted this test with fewer than 30 patients in the past year, please calculate based on the last 30 patients tested. Programs that have tested more than 30 patients should answer in terms of the total population tested in the past year.]

Yes No

J23. For patients seen by your Pediatric Pulmonology program with cystic fibrosis ≥ 10 years of age, not already taking insulin for Cystic Fibrosis Related Diabetes (CFRD), what percentage have completed an oral glucose tolerance test in the last calendar year using a standardized protocol in accordance with the published CFF guidelines?10

________ %


10 CFF guidelines referred to in this question include (1) Moran, A, Brunzell C, Cohen R, Katz M, Marshall BC, Onady G, Robinson KA, Sabadosa KA, Stecenko A, Slovis B, CFRD guidelines committee. Clinical Care Guidelines for Cystic Fibrosis–Related Diabetes: A position statement of the American Diabetes Association and a clinical practice guideline of the Cystic Fibrosis Foundation, endorsed by the Pediatric Endocrine Society. Diabetes Care December 2010 vol. 33 no. 12 2697-2708.


J24. What was the profile of the cystic fibrosis (CF) patients (see code list) seen in your Pediatric Pulmonology program during 2016? (For participants in the CFF Registry, this information should be taken directly from your hospital’s 2016 final year-end report; note that the BMI and FEV metrics should use the risk-adjusted metrics from the report. For hospitals not currently participating in the CFF Registry, please only report the number of CF patients primarily seen at your pediatric program during the last calendar year (J24a) and compliance with established patient guidelines (J24d).) [Please exclude patients who have undergone lung transplantation from your response.]

Valuea. Unique CF patients (birth to 21) seen primarily at your hospital ________ b. Median BMI percentile11 for age for patients 2–19 years of age ________%c. Median FEV1 percent predicted, patients 6–17 years of age ________%d. Percent of children 7-17 years of age who meet the treatment guidelines

for established12 CF patients (at least 4 outpatient visits, 4 cultures, and 2 spirometries during the past calendar year)

________%

e. Median weight-for-length (WFL) percentile for CF patients 0-24 months ________ %

VALIDATE: IF J24a IS NOT A WHOLE NUMBER, DISPLAY: “J24a: Please enter a whole number (no decimals).”0 ≤ J24b ≤ 100. ELSE DISPLAY: “J24b: Please enter a numeric value between 0 and 100.”0 ≤ J24c ≤ 100. ELSE DISPLAY: “J24c: Please enter a numeric value between 0 and 100.”0 ≤ J24d ≤ 100. ELSE DISPLAY: “J24d: Please enter a numeric value between 0 and 100.”0 ≤ J24e ≤ 100. ELSE DISPLAY: “J24e: Please enter a numeric value between 0 and 100.”

J25. Does your Pediatric Pulmonology Program have a formal plan to actively transition CF patients from pediatric care to adult care?

Yes No

Other Respiratory Disorders

J26. How many unique patients with a diagnosis of rare lung disease (see code list) were seen at least once in the inpatient or outpatient setting by your Pediatric Pulmonology program in the last calendar year? [If none, please enter 0.]

________ Unique patients

VALIDATE: IF J26 IS NOT A WHOLE NUMBER, DISPLAY: “J26: Please enter a whole number (no decimals).”

11 This number is the median body mass index (BMI) percentile for patients 2 to 19 years of age with cystic fibrosis seen in your Pediatric Pulmonology program. If available, use the values your hospital has reported to the CFF Registry. 12 Established patients are patients who have been treated at your hospital for at least 12 months.


J27. How many unique patients < 24 months of age with a diagnosis of lung disease of prematurity (see code list) have been followed as outpatients (≥2 visits in the last calendar year) and seen at least once by the pulmonology outpatient clinic? [If none, please enter 0.]



SKIP LOGIC: IF J27=0, SKIP TO J29. ELSE GO TO J27.1.

J27.1 Of the total vaccine eligible13 patients in J27 being treated by your Pediatric Pulmonology program between October 1, and December 31, 2017, what percentage received seasonal influenza vaccine (at your facility or elsewhere) during that time period or earlier that season?

________ %

VALIDATE: 0 ≤ J27.1 ≤ 100. ELSE DISPLAY: “J27.1: Please enter a numeric value between 0 and 100.”

J28. Question removed from the Survey

J29. Please report the number of unique pediatric patients with neuromuscular weakness disorders (see code list) treated in your Pediatric Pulmonology program in the last calendar year. [If none, please enter 0.]

________ Unique patients VALIDATE: IF J29 IS NOT A WHOLE NUMBER, DISPLAY: “J29: Please enter a

whole number (no decimals).”

J30. What percentage of eligible14 patients with neuromuscular weakness disorders (see code list) have had pulmonary function testing (see code list) in the last calendar year?

________%


J31. This question has been removed from the survey.

13 Vaccine eligible is defined as > 6 months of age, without medical contraindication, and seen during the period listed above. Patients who refused vaccine should be included in the denominator of “total vaccine eligible” patients.14 Eligible implies that the patient has the mental and/or physical ability required for the PFT. We recommend that you only count patients 6 years of age or older for this measure as the reproducibility of the PFT with children younger than this is generally not accurate.


J32. Does your Pediatric Pulmonology program have the following dedicated providers attending clinic or participating in a periodic summary conference to discuss individual care plans for patients with neuromuscular weakness disorders (see code list)?

Yes Noa. Pulmonologist ○ ○

b. Physiatrist ○ ○

c. Orthopedist ○ ○

d. Cardiologist ○ ○

e. Neurologist ○ ○

f. Physical therapist ○ ○

g. Psychiatrist/Psychologist ○ ○

h. Dietician ○ ○

i. Social worker ○ ○

J33. Does your hospital track seasonal influenza vaccination of patients with neuromuscular weakness disorders (see code list) being treated by your Pediatric Pulmonology program?

Yes – Go to J34 No – Skip to J35

J34. Of the total vaccine eligible15 patients with neuromuscular weakness disorders (see code list) seen by your Pediatric Pulmonology program between October 1, and December 31, 2017, what percentage received seasonal influenza vaccine (at your hospital or elsewhere) during that time period or earlier that season?

________%

WARNING: IF J33=1 AND J34 = BLANK, DISPLAY: “J34: Please provide a value or answer No to J33.”




Sleep Medicine

J35. Does your hospital offer a sleep center accredited by the American Academy of Sleep Medicine (AASM)?

Yes No

J36. How many 12-channel or 32-channel polysomnographic studies were performed by your hospital in the last calendar year? [If none, please enter 0.]

________ Studies


J37. How many unique pediatric patients followed by your pediatric pulmonology program and seen at least once in the last calendar year use home nocturnal PAP or BiLevel therapy in the outpatient setting for treatment of obstructive sleep apnea or chronic upper airway obstruction (at least one diagnosis from code list and at least one procedure from code list – use ICD 10 PCS or CPT codes but not both)? [If none, please enter 0.]



J38. Does your pediatric pulmonology program have a pediatric sleep disorders clinic that addresses the needs of patients with ventilation or other sleep disorders and manages the patient’s positive airway pressure?

Yes No

Ventilator Dependent Patient s

J39. How many unique pediatric patients with chronic respiratory failure (see code list) at your hospital seen at least once in the last calendar year use non-invasive (mask) positive pressure ventilation (NIPPV) support or diaphragm pacing in your pediatric pulmonology program? [If none, please enter 0.]


VALIDATE: IF J39 IS NOT A WHOLE NUMBER, DISPLAY: “J39: Please enter a whole number (no decimals).”IF J39 IS BLANK, DISPLAY: “If none, please enter 0.”


J40. How many unique pediatric ventilator dependent patients (i.e. patients with chronic respiratory failure who are supported by mechanical ventilation via tracheostomy – see code list) were seen as outpatients at your Pediatric Pulmonology program in the last 3 years? [If none, please enter 0.]

________Unique patients, last 3 years

VALIDATE: IF J40 IS NOT A WHOLE NUMBER, DISPLAY: “J40: Please enter a whole number (no decimals).”IF J40 IS BLANK, DISPLAY: “If none, please enter 0.”

SKIP LOGIC: IF J40=0, SKIP TO J42; ELSE GO TO J41.

J41. Of the ventilator dependent patients from J40 (see code list), how many deaths and/or cardiorespiratory arrests occurred due to accidental obstruction or decannulation of tracheostomy during the last 3 years? [If none, please enter 0.]

________ Deaths/cardiorespiratory arrests inpatient, last 3 years ________ Deaths/cardiorespiratory arrests at home, last 3 years

WARNING: IF (J41 + J41b) > J40, DISPLAY: “Please check your responses. The number of deaths (J41) cannot be greater than the number of unique pediatric ventilator dependent patients (J40).

VALIDATE: IF J41x IS NOT A WHOLE NUMBER, DISPLAY: “J42x: Please enter a whole number (no decimals).”IF J41x IS BLANK, DISPLAY: “If none, please enter 0.”

J42. Does your hospital have a multidisciplinary care team16 to coordinate the care of long-term ventilator-dependent patients?

Yes No

J43. Does your hospital track seasonal influenza vaccination of ventilator dependent patients who are currently being treated by your Pediatric Pulmonology program?


16 The care team should consist of a critical care physician, pulmonologist, physiatrist, respiratory therapist, social worker, and dietician.


J44. Of the total vaccine eligible17 ventilator dependent patients seen by your Pediatric Pulmonology program between October 1, and December 31 2017, what percentage received seasonal influenza vaccine (at your hospital or elsewhere) during that time period or earlier that season?

________%

WARNING: IF J43=Yes AND J44=BLANK, DISPLAY: “J44: Please provide a value for answer no to tracking (J43).


Global Quality Measures and Specialized Services

J45. Has your Pediatric Pulmonology program currently engaged in any of the following activities demonstrating continuous quality improvement?

Yes Noa. Developed and implemented a written plan for program review and

quality improvement ○ ○

b. Determined appropriate data-based performance metrics for the program ○ ○

c. Regularly tracked patient data (e.g., diagnoses, treatment plans, test results, emergency department visits, outpatient visits, current treatment regimens) and other supporting information to measure progress against program performance metrics

○ ○

d. Presented results of your program’s clinical quality performance metrics to your clinical staff on a regular basis ○ ○

e. Participated in one or more quality-of-care or improvement initiatives specific to pediatric respiratory care ○ ○

J45.1. If “yes” to any part of J45, please describe one quality improvement initiative and how it improved the quality of your program in the last calendar year. To receive credit, you must discuss what actions your hospital took as a result of this quality initiative and the impact it had on your program:

J46. Does your Pediatric Pulmonology program offer a United Network for Organ Sharing (UNOS) recognized pediatric lung transplant program? [NOTE: If your hospital is only affiliated with a UNOS lung transplant program, then you should answer no.18]

Yes – Go to Question J46.1 No – Skip to Question J49

17 Vaccine eligible is defined as > 6 months of age, without medical contraindication, and seen during the period listed above. Patients who refused vaccine should be included in the denominator of “total vaccine eligible” patients.18 This is intended to exclude cases of centers that have a referral source for transplantation that is not part of the center. If your center has an affiliation with an adult facility or a parent medical center allowing for transplants to take place essentially there at your center, then you should answer yes to this item.


J46.1 For how many unique pediatric patients (<18 years of age) did your Pediatric Pulmonology program perform lung transplants on in the last 2 calendar years?

________ Patients

VALIDATE: IF J46.1 IS NOT A WHOLE NUMBER, DISPLAY: “J46.1: Please enter a whole number (no decimals).”

J47 Please report your program’s Pediatric (<18) 1-year lung transplant patient survival statistics from Table C15D in your December SRTR report, which includes transplants performed between 7/1/14 and 12/31/16. If any elements of the table from SRTR are blank or listed as N/A, please leave them blank on the survey.

1-year SRTR Measure Table C15D Valuea. Number of transplants evaluated ______________b. Estimated probability of surviving at 1 year (unadjusted) ____________%

J48 Please report your program’s Pediatric (<18) 3-year lung transplant patient survival statistics from Table C16D in your December SRTR report, which includes transplants performed between 1/1/12 and 6/30/14. If any elements of the table from SRTR are blank or listed as N/A, please leave them blank on the survey.

3-year SRTR Measure Table C16D Valuea. Number of transplants evaluated ______________b. Estimated probability of surviving at 3 years (unadjusted) ____________%

J48.1 Please list the name your hospital reports under to SRTR. Also, please note that we will verify the values reported with the SRTR/UNOS reports19 for your hospital. If the SRTR/UNOS values differ from the values reported here, please provide an explanation:

J49. How many bronchoscopy20 and laryngoscopy procedures (see code list) were performed by your pulmonary program in the last calendar year? [If none, please enter 0.]

________ Procedures


19 Verification reports are available here: http://www.srtr.org/csr/current/Centers/TransplantCenters.aspx?organcode=LU. 20 Bronchoscopy is a procedure in which a tube is inserted into the airways, usually through the nose or mouth, to examine the airway for abnormalities such as foreign bodies, bleeding, tumors, or inflammation. While performing bronchoscopy, a practitioner frequently also takes samples from inside the lungs and airways (e.g., biopsies, fluid [i.e., bronchoalveolar lavage], endobronchial brushing) to assess the respiratory health of the patient.


J50. Does your Pediatric Pulmonary program participate in formal programs for the outpatient management of children with the following conditions?

Yes Noa. Sickle cell anemia ○ ○b. Aerodigestive disorders ○ ○c. Craniofacial disorders ○ ○d. Pulmonary hypertension ○ ○

J51. In the past calendar year, how many of the following types of IRB-approved trials, studies, or databases did your Pediatric Pulmonology program participate in: prospective randomized clinical trials, prospective observational studies, and prospective clinical database on patient care? [If none, please enter 0.]

________ Number of trials, studies, or databases


J52. Is your Pediatric Pulmonology Program a member of any of the following research networks?

Yes Noa. Children’s Interstitial Lung Disease (chILD) Foundation research

network ○ ○

b. Therapeutic Development Network of the Cystic Fibrosis Foundation ○ ○c. Certified site for the Severe Asthma Research Program, the Inner-City

Asthma Consortium, or Asthma-Net ○ ○

d. American Lung Association (ALA) Airways Clinical Research Centers (ACRC) ○ ○

e. PCD Foundation Clinical and Research Centers Network ○ ○

J53. Does your Pediatric Pulmonology Program have a protocol for preparing and assisting in the transition of patients from pediatric to adult pulmonology at your hospital or another institution?

Yes No

J54. Does your hospital provide financial support for staff in your Pediatric Pulmonology Program (nurses, respiratory therapists, and social workers) to attend extramural continuing education (such as, but not limited to, the CF conference, or the Muscular Dystrophy Association, Sleep Medicine societies or American Thoracic Society annual meetings)?

Yes No


J55. What is the average “third next available” appointment time for new patients in your Pediatric Pulmonology Program to receive an appointment for an outpatient office visit in the last calendar year? [Calculate using the IHI definition (http://www.ihi.org/resources/pages/measures/thirdnextavailableappointment.aspx) and average over the entire reporting period.]

________ Average days to “third next available” appointment NA, data for “third next available” are not available

J56. Is your pediatric pulmonary program responsible for the interpretation of exercise challenge and bronchoprovocation testing?

Yes No

The following are being collected for information purposes only. They will not be factored into the rankings in 2018-19.

J57. Please indicate whether your Pediatric Pulmonology Program could provide the following information if requested on the 2019-20 survey:

Yes, with no

difficulty

Yes, with some

difficulty

Yes, with great

difficulty Noa. Availability of interventional radiology

image guided catheter treatment for thrombosis of pulmonary emboli

○ ○ ○ ○

b. Availability of interventional radiology image guided catheter treatment for deep venous thrombosis

○ ○ ○ ○

c. Other care pathways including airway foreign body, epiglottitis/tracheitis, inhalation injury

○ ○ ○ ○

d. Availability of a multidisciplinary clinic to assess severe, high risk, difficult to control, or life-threatening asthma

○ ○ ○ ○

e. Availability of bronchial artery embolization for cystic fibrosis (CF) patients

○ ○ ○ ○

f. Availability of specialty care for primary ciliary dyskinesia (PCD) ○ ○ ○ ○

COMMENTS FOR SECTION J:If needed, you may provide clarifications to the responses you provided to the questions asked in this section only. All other comments, suggestions or questions should be sent to [email protected].


http://www.ihi.org/resources/pages/measures/thirdnextavailableappointment.aspx


Documents

usnewspediatricsurvey.rti.org · Web viewFocusing on patients treated by your Pediatric Pulmonology Program who have asthma (see code list for principal diagnoses), please provide