Understanding dementia among UK Bangladeshi

NICE clinical guideline 42

PhD Student: Muhammad Hossain

Supervisors: Dr Ann Dewey, Dr Yohai Hakak, Dr Karan Jutlla

Outline of talk• Aims and objectives• Research questions• Background and context• Gap in the literature• Research design• Qualitative synthesis• Semi-structured in-depth interviews• Progress so far• Things still to do

Aims and objectives

Part one:•Qualitative research synthesis•Explore South Asian people’s experience•Explore informal and formal carers views

Part two:•Explore Bangladeshi people’s experience•Explore the cultural and religious issues

Research questions

• What are the understanding of dementia among Bangladeshi people with and without dementia?

• Attitudes among families and carers

• Barriers to diagnosis

• Barriers to communication

• Improving practice

Background and context

Number of people with dementia in the UKAt present 821,884 people

By 2025 1 million people

By 2051 1,735,087 people

•11, 000 to 15, 000 estimated people with dementia from BME groups

•No estimated numbers from South Asian groups•Predicted the numbers will rise quickly

Gap in the literature

• More US based studies than UK

• A hidden problem for a hidden population

• Few UK based studies among South Asian

• Generalization

• No studies among Bangladeshis

Research design

Part one overview:

Meta-aggregation: A pragmatic approach

•Comprehensive search of the literature•QARI appraisal tool•Gaps in the literature•Lines of action

Research design

Part one overview (continued):

• Focussed research question using the acronym

PICO

• Develop Search Strategy

• Searching for the Evidence

• Selecting Studies

• Critically Appraising Studies

• Data Extraction

• Data Synthesis

Research design(continued)

Part two overview:

Primary research- Qualitative research

•Data collection: Semi-structure interviews•Sampling•Recruitment•Data analysis

Progress so far

•Review protocol written

•Comprehensive literature search

•EPPI-Reviewer 4 database setup

•Made contacts with potential collaborators

•Presented research poster in several seminars

and conferences including ESRC in the UK

Things still to do

•Ethics approval

•Qualitative interviewing training

If you would like to take part, please contact us:

Muhammad.Hossain@port.ac.uk

Tel: +44 (0)23 9284 4461 

This Project will finish by 2016.

Thank you!