Using Successful

Online Fundraising

Strategies

July 30, 2014

Sponsored by:

Submit Your Questions

Throughout the webinar,

panelists will be taking

questions from the audience

To send in questions, please

use WebEx’s Q&A feature on

the righthand side and direct

your questions to the Host,

Katie Mastro

Please feel free to submit

questions throughout the

presentation

Meet Today’s Panelists:

Molly Lindquist Consano

Annie Mitchell Cure JM Foundation

Bill Strong Gwendolyn Strong Foundation

Daniel Levine Levine Media Group

Moderator:

Molly Lindquist Founder & CEO

What is Consano?

4

Consano is a 501(c)(3) crowdfunding platform for medical research.

An informational hub where individuals can browse a list of vetted

research projects from a variety of

academic institutions.

A simple process which allows

individuals to donate to a specific project

that is most meaningful to them.

An ongoing relationship between donor and researcher

via regular communication.

Visibility to

the value of

the donor’s

contribution

Consano Provides:

www.consano.org

How Does Consano Work?

The 2 Reasons I Created Consano

www.consano.org 6

Other Ways to “Harness the Crowd”

7

Annie Mitchell Social Media Director

Contests & Crowdfunding

Never underestimate the

importance of –

• PREPARATION,

• NETWORKING,

• EMPOWERING

your passionate volunteer base

with helpful resources,

• Say “THANK YOU!” to volunteers

and donors!

Resources

EMPOWERING families and young adult

patients to tell their own #RARE stories

through

• Convenient links

• Sample emails

• Social media integration

• Printable flyers/cards

• Sample press releases

• Sharing ideas

Social Media: What Worked

• Storytelling & Connecting

• “Ask” & Action

• Disease Education

• Photos & Videos

• Convenience

• Quality vs. Quantity

• Saying “Thank You!”

What Didn’t Work

• Flooding social media

• Wrong thinking:

Quantity of posts = quality of

being heard and engagement

• Ignoring SocMed Analytics

Engaging Others

Bill Strong Founder

Voting Contests

2010: Chase Community Giving,

$125,000

2010: Jimmie Johnson "Helmet of

Hope," $30,000

2010: Lionheart Contest, $10,000

2010: Hero Next Door, $5,000

2012: American Giving Awards, 1 in

25 chance at $1M

Pros:

• Generated material funds for our programs

• Raised broad awareness

• Built momentum and excitement within and outside our community

• Built social media base and PR that we continue to leverage

• Opened relationship opportunities

Cons:

• Extremely exhausting and emotionally draining

• “Roman Battle” between NPOs, causes, and communities

• Playing field changed significantly after first generation of contests

• Fun on the way up, not as much on the way down

Voting Contests: Pros & Cons

• Gave a template to navigate early obstacles and build a successful

organization

• Helped us understand what was possible technologically

• Focused on technology that fits within our overall strategy; we’ve

resisted trying to do everything

• But we haven’t been afraid of testing and trying new things

• Don’t rely too heavily on one avenue or technology; adapt to the ever-

changing landscape

• Be honest about your strengths/weaknesses; know when to do it

yourself or partner

• Be relentless; your passion and story is your biggest asset

Startup Experience

• Don’t just invest in tech– invest

in the RIGHT tech

• Constant cost/benefit analysis

• Build or buy or partner or pass?

• There is always a cost to using

“free” services

• Utilize your network to reduce

cost

Invest in Tech?

Branding/Design

NEVER GIVE UP

Next Upcoming RARE Event

2014 RARE Patient Advocacy Summit

September 11th & 12th

Register today at http://globalgenes.org/2014-rare-patient-advocacy-summit/