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Columbia County Resource Guide For Families With Children With Special Health Care Needs November 2002 (Corrections 5.2003)

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Page 1: Version 2 Columbia County Resource Guide for …caweb.madisoncollege.edu/Instructors/Samples/asomura/web...Deb Catenacci, Program Director 143 North Main Street Pardeeville, WI 53954

Columbia County Resource Guide For Families With Children

With Special Health Care Needs

November 2002 (Corrections 5.2003)

Page 2: Version 2 Columbia County Resource Guide for …caweb.madisoncollege.edu/Instructors/Samples/asomura/web...Deb Catenacci, Program Director 143 North Main Street Pardeeville, WI 53954

Contents Introduction Child Care and Respite Child Development and Social Interaction Community Services and Resources Dental Care Education Health Benefits and Financial Resources Health Care Housing Legal Services Mental Health Services Nutrition Services Parenting and Family Concerns Parent-to-Parent and Social Support Recreation Transportation Vocational Services and Resources Please note that the Columbia County Department of Health & Human Services does not endorse these agencies, rather supplies this as a resource to the community. Thank you for your interest.

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The Columbia County Department of Health & Human Services, Division of Health, is pleased to provide another updated resource guide through its Children with Special Health Care Needs Service Coordination Project. The purpose of this guide and the Service Coordination Project is to assist families who have a child with special health care needs function at their highest level by increasing awareness of and accessing available resources while working to achieve the Healthy People 2010 goals. Children and youth (birth to 21 years) with special health care needs are those who have or are at increased risk for a chronic physical, developmental, behavioral, or emotional condition and who also require health and related services of a type or amount beyond that required by children generally.

Parents having or providers serving children with special health care needs may make a referral to the Columbia County Division of Health. A public health nurse will talk with the family. The nurse may provide support, information, referral and coordination of follow up services. Together they will create a plan and begin service coordination. Valerie Hon, R.N., B.S. Public Health Nurse 608.742.9729

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The Foundation of the Service Coordination Project: The Maternal and Child Health Bureau’s mission is to provide national leadership and to work in partnership with States, communities, public-private partners, and families to strengthen the maternal and child health (MCH). The MCH population includes all of America’s pregnant women, infants, children, adolescents, and their families—including women of reproductive age, fathers, and children with special health care needs. The Division of Services for Children with Special Health Care Needs is one of five divisions of the Health Resources and Services Administration’s (HRSA) Maternal and Child Health Bureau (MCHB). It plays a national leadership role in the development and implementation of comprehensive, community-based, family-centered, culturally competent, coordinated systems of care for children with special health care needs (CSHCN) and their families.

Children with special health care needs are those who have or are at increased risk for a chronic physical, developmental, behavioral, or emotional condition and who also require health and related services of a type or amount beyond that required by children generally.

Through its programs and leadership, the Division works to achieve six critical systems outcomes set out in the “National Agenda for Children with Special Health Care Needs” (1998) and incorporated into Healthy People 2010. The Key Systems Outcomes

1. All children with special health care needs will receive coordinated ongoing comprehensive care within a medical home.

2. All families of children with special health care needs will have adequate private and/or public insurance to pay for the services they need.

3. All children will be screened early and continuously for special health needs. 4. Services for children with special health care needs and their families will get

organized in ways that families can use them easily. 5. Families of children with special health care needs will partner in decision-making at

all levels and will be satisfied with the services they receive. 6. All youth with special health care needs will receive the services necessary to make

appropriate transitions to adult health care, work, and independence. To reach these goals, the Columbia County Division of Health offers families with children with special health care needs, birth through 21 years, the opportunity of a public health nurse to assist them in identifying needs, setting up a plan and providing service coordination.

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Child Care and Respite Child Care Assistance program/Wisconsin Shares

Columbia County Economic Support 608.742.9227 http://www.dwd.state.wi.us/dws/programs/childcare/wishares/eligibility.htm

This program provides financial assistance to low-income parents on a sliding scale based primarily on income. Payments are made to child care providers chosen by the parent. This website briefly discusses eligibility and encourages parents to apply if they think they might qualify.

Certified and Licensed Day Care Providers 711 E. Cook Street

Portage, WI 53901 608.742.9227

A listing of certified and licensed day care providers within Columbia County is available from the Department of Health and Human Services at Central Intake. It can be mailed or you may stop in and pick up a copy. http://www.dhfs.state.wi.us/rl_dcfs/INDEX.HTM (Day care licensing and regulating information.)

4-C (Community Coordinated Child Care, Inc.) www.4-c.org 5 Odana Court Madison, WI 1.800.750.5437

The mission of Community Coordinated Child Care is to advocate for the well being of children in child care and to assist their parents, and the providers who care for their children, in creating quality child care.

Inclusion

What is Inclusion? Inclusion supports the right of all children, regardless of their diverse abilities to participate actively in natural settings within their communities.

"The goal of inclusion is to enhance children’s abilities to help them reach their true potential, and to offer a healthy and nurturing educational environment for all children. In such an environment, children are accepted for who they are, not what they are able to do, and those with special needs develop and excel along with their peers."

Inclusive care laws/resources Child Care Resource & Referral Network www.wisconsinccrr.org

1.888.713.5437 This statewide network assists child care programs in linking to resources and other programs available for children with or without disabilities.

Wisconsin Child Care Improvement Project www.wccip.org 1.800.366.3556

Technical advisors are on call 8:00 a.m. – 4:00 p.m. They can direct you to resources in your community or nearby.

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Wisconsin Child Care Information Center www.dpi.state.wi.us/dpi/dltcl/rll/ccic 1.800.362.7353

Free lending library for child care professionals. Videos, books and other disability-related resources can be mailed to child care providers and instructors.

Child Care Law Center http://www.childcarelaw.org/children_with_disabilities.cfm

CCLC publishes materials for parents and providers explaining the law, offers training, and serves as a technical resource on child care and disability issues.

Cooperative Extension System’s National Network for Child Care http://www.nncc.org/Diversity/specneed.page.html

Our goal is to share knowledge about children and child care from the vast resources of the landgrant universities with parents, professionals, practitioners, and the general public. We network with committed individuals around the country to bring you practical information and resources that will be useful to you in your everyday work with children.

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Respite What is Respite? Respite is temporary, short-term relief provided to families and caregivers to give them a break from the extraordinary demands of ongoing care for an individual with special needs.

Funding for Respite can include, but is not limited to: COP, CIP, the Family Support Program, Alzheimer’s funding, Lifespan grants or private pay to name a few.

South Central Respite, Inc. Deb Catenacci, Program Director 143 North Main Street

Pardeeville, WI 53954 608.429.3439 Email: [email protected]

This is a supportive service that provides short-term, intermittent relief to those caring for a dependent child or adult.

REM Wisconsin, Inc. http://www.reminc.com

311 East Wisconsin St. Suite 106 Portage WI 53901 608.745.0585

Respite and crisis services delivered to meet the short-term needs of individuals and families in their own home or community setting.

The Respite Care Association of Wisconsin http://www.respitecarewi.org

6320 Monona Drive Suite 313 Madison, WI 53716 608.222.2033 or 1.877.260.9207 (toll-free) 608.222.2034 (fax) Email: [email protected]

The Respite Care Association of Wisconsin (RCAW) promotes and supports through education, advocacy, and public awareness, a statewide quality respite and crisis care system.

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Child Development and Social Interaction Birth to Three Program http://www.dhfs.state.wi.us/bdds/b3.htm Columbia County Division of Children and Family 608/742-9227

The Birth to Three Program is a service to assist families in supporting their child’s development. This program is available for children birth to 3 years of age experiencing difficulties with thinking or learning skills, movement skills, talking and understanding skills, feeding, daily living skills, interactions, and play skills or for children with a diagnosed medical, physical or mental condition that may affect their development. Services are provided in the home or other agreed upon location. The Columbia County Birth-3 program is based on a transdisciplinary, strengths-based, family-centered philosophy.

Portage Even Start Family Literacy Program www.portageproject.org/evenstart Clough Building 904 DeWitt Street Portage, WI 53901 608/745-0047

This program is designed to offer Education and family enhancement through: adult basic education, family life workshops, computer training, Parent And Child Together (PACT) time, FAST program, children’s education, and home visiting.

Head Start/Early Head Start Renewal Unlimited, Inc. http://www.renewalunlimited.net/ Head Start Program 2900 Red Fox Run Portage, WI 53901 608/742-5329 or 800/344-7543

Serves children from birth to age 5, pregnant women, and their families to increase the school readiness of young children in low-income families. Parents are the backbone of the Head Start program. They volunteer in the program so they can be a part of their child’s development. Parents have direct involvement in planning through monthly parent meetings and the Policy Council. They participate in the activities they have helped put together. Also, there are opportunities for parents to attend workshops and trainings.

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Family Resource Center http://www.renewalunlimited.net/columbia_county_frc.htm 2946 Red Fox Run

Portage, WI 53901 608/742-8482 or 800/325-5505

This is a place where families can come to have fun, learn and grow. Programs include: playgroups, toy and resource lending library, family life workshops, parenting support, etc… All services are free and are provided in a warm friendly environment. Staff are available to answer questions or provide resources to help families with many of the issues we all face raising children. A quarterly newsletter tells of all current activities. Ask to be added to the mailing list. The FRC offers Internet access to look up parenting related information. Call ahead to reserve a time.

UW-Extension Columbia County www.uwex.edu/ces/cty/columbia Annex Building 120 W. Conant Street Portage, WI 53901 608/742-9680

Family Living, 4-H/Youth Development, Community, Natural Resources & Economic Development and Agriculture/Agribusiness

A wealth of information based on University of Wisconsin research. Information on almost any topic is available.

The Arc of Columbia County 711 E. Cook Street Portage, WI 53901 608/742-9204

A non-profit corporation provides services to persons with developmental disabilities throughout Columbia County.

Access To Independence, Inc. http://www.AccesstoInd.org

2345 Atwood Avenue Madison, WI 53704-5602 608/242-8484 or 800/362-9877 TTY 608/242-8485

A private, non-profit Independent Living Center (ILC), part of a nationwide network of resource centers promoting independence and self-determination for people with all types of disabilities. ILCs are consumer-controlled, with a majority of Board and agency staff made up of people with disabilities.

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Youth Leadership Forum http://www.uww.edu/conteduc/ylf/index.html UW Whitewater Disabled Student Services 800 West Main Street Roseman 1004 Whitewater, WI 53190 262.472.1492 Voice 262.472.4711 TTY

The YLF will train and facilitate youths with disabilities to become leaders and develop life long skills. For high school juniors and seniors with disabilities

Transition is addressed in the Education section.

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Community Services and Resources Wisconsin First Step www.mch-hotlines.org 800/642-7837 Voice/TTY

Statewide information and referral service dedicated to helping families and professionals find resources for children birth to 21 years with special needs.

Waisman Resource Center for Children with Special Health Care Needs http://www.waisman.wisc.edu/cedd/indexfr.html

Room S101F 1500 Highland Avenue Madison, WI 53705-2280 608/263-5890 or 800/532-3321

The Regional CSHCN Centers are part of a Statewide CSHCN Network that provides free and confidential assistance to parents of children with special health care needs and providers. A link to The Family Resource Room http://www.waisman.wisc.edu/projectsfr.html. A link to the Community Inclusion Programs http://www.waisman.wisc.edu/cedd/indexfr.html

Columbia County Health & Human Services Department Division of Health http://www.co.columbia.wi.us/dept/health/spec_child.asp

711 E. Cook Street, Suite 108 Portage, Wisconsin 53901 608.742.9227

Parents and/or providers having children with special health care needs may make a referral to the Division of Health. A public health nurse will talk with the family. The nurse may provide support, information, referral and coordination of follow up services. Together they will create a plan and begin service coordination. More information is also available under Health Care Section.

Wisconsin Lifeline & Link-Up http://psc.wi.gov/consumer/telecom/document/brochure/4027.pdf

The Lifeline program reduces monthly phone charges for income-eligible households. The Link-Up program waives local phone connection charges for new service or service that is moved from one residence to another. Eligible customers must be in a household that receives benefits from: Wisconsin Works or W-2, Medical Assistance, Supplemental Security Income (SSI), Food Stamps, Low Income Home Energy Assistance Program (LIHEAP), WI Homestead Tax Credit, or BadgerCare. To apply, contact your local telephone company and say you want to apply for the Lifeline or Link-Up assistance for Wisconsin residents. The phone company will verify that you are eligible.

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Child Alert http://www.dhfs.state.wi.us/DPH_EMSIP/InjuryPrevention/emsc/index.htm#Child%20Alert%20Program

An emergency response program for children with special health care needs. The Child Alert Program is designed to help parents and guardians assure that their children and youth with special health needs get the best possible emergency care from their community emergency medical service providers. Families enroll their children with special health care needs utilizing the Emergency Information Form (EIF) adopted recently by the American College of Emergency Physicians and the American Academy of Pediatrics. Confidentiality of the information will be assured with the EIF being distributed only to care providers who would be involved in the emergency response of an enrolled child. Ask for a brochure to enroll you child.

Columbia County Sheriff’s Department and the 911 Emergency Center

The dispatch center E911 system allows the dispatchers to direct personnel to the scene more effectively. The TDD phone is for hearing impaired persons and can be reached by dialing 608-742-4160. The dispatch center handles all county calls as well as the calls for nine municipalities in Columbia County.

Wisconsin Relay System (WRS) www.hamilton.net/relay/wi/

WRS is a telephone transmission system designed to give persons with hearing and or speech disabilities “functionally equivalent” access to the telephone network. Currently, WRS relays telephone conversations between persons using text telephones (TTY’s) and persons who use conventional phones. The WRS is provided by Hamilton Telecommunications under contract to the Wisconsin Department of Administration. Open 24 hours per day, 7 days a week, 365 days a year. Calls are confidential. One participant must be from Wisconsin. Local calls are free. Long distance charges apply for any long distance phone calls.

Using TTY, VCO or HCO: Dial the Wisconsin Relay System’s toll free TTY access number:

800/947-3529 By (Voice) Telephone: Dial the Wisconsin Relay System’s toll free “Voice” access number: 800/947-6644 Bureau for Deaf and Hard of Hearing www.dhfs.state.wi.us/sensory 608.266.3118 Voice/TTY

Provides information, referral to available resources, offers support and training. Available for the deaf, deaf blind, hard of hearing, and providers. Telecommunications Equipment Purchase Plan (TEPP) for financial assistance with buying equipment.

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American Sign Language Class and Interpreting Information Bette Mentz-Powell 608/267-3800 Email: [email protected] Deaf Mentor Project Center for the Deaf and Hard of Hearing 262.790.1040 Voice/Front desk 262.790.0584 TTY/Front desk [email protected]

The project is designed to increase the family’s ability to communicate with their deaf child, provides parents with opportunities to identify their child’s communication attempts and evaluate their child’s strengths in communicating, increase parent’s appreciation for and understanding of American Sign Language, Deaf Culture, and the Deaf Community, promote the family’s development of American Sign Language, using a Bilingual-Bicultural Approach.

Cochlear Implant Club of Wisconsin Carol Burns, President 119 Oconomowoc Square Oconomowoc, WI 53066 262.267.9621 Voice (work) or 262.832.6332 (home) [email protected] Wisconsin Association of the Deaf (WAD) www.wi-deaf.org 414.607.3297 TTY [email protected]

Shore to Shore 2120 Fordem Avenue Madison, WI 53704 608.241.5150 voice [email protected]

Shore to Shore is a program of parents and children working to promote English and Sign Language in all family members. Communication in the family is the foundation of academic literacy and emotional development.

Deaf children and their Deaf siblings are the sign experts in the family on one shore. Hearing parents and hearing siblings are the English experts in the family on the other shore. Each individual has unique gifts that help build a strong family bridge between each shore. We will create an environment that empowers parents and children to feel good about themselves.

Shore to Shore West meets in Spring Green. Contact Connie Stevens at (608) 588-9101 (voice) or [email protected]

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Braille Library Services Jane Charlton 608/266-3111 Email: [email protected] Wisconsin Council for the Blind 800/783-5213 Rehabilitation information, canes, assistive devices, and advocacy. American Anorexia Bulimia Association www.aabainc.org

212/575-6200 National Association of Anorexia Nervosa and Associated Disorders www.anad.org

847/831-3438

National Information Center for Children and Youth with Disabilities www.nichcy.org 800/685-0285 American Academy of Allergy, Asthma and Immunology www.aaaai.org 800/822-2762 National Institute of Allergy and Infectious Diseases www.niaid.hih.gov 301/496-5717

Spina Bifida Association of America Hotline www.SBAA.org 800/621-3141 Cleft Palate Foundation of America www.cleftline.org 800/242-5338

Provides 24 hour information hotline, referrals to teams, educational materials, and fact sheets.

Children’s Craniofacial Association www.ccakids 800/535-3643

Annual family retreat, packet of information for families, some financial help for food, travel and lodging for health care, and emotional support.

The Smile Train www.smiletrain.org 800/543-7645

A comprehensive approach to the problem of clefts provides free surgery for children, training of doctors and research to find a cure.

The Magic Foundation for Children’s Growth 800/362-4423 Growth disorders information.

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The Genetic and Rare Disease Information Center 1.800.205.2311 Voice 1.888.205.3223 TTY E mail [email protected]

An information center dedicated to providing free and immediate access to information specialists who can provide information to families and patients on genetic and rare diseases.

National Organization for Rare Disorders (NORD)

800/999-6673

Epilepsy Foundation of South Central Wisconsin 608/833-8888 Voice/TDD 800/657-4929 Voice/TDD

Epilepsy education and prevention programs, current, accurate information, and counseling & case management opportunities for people with epilepsy. Support Group meets the 2nd Wednesday each month at the Portage Public Library, W. Edgewater Street, Portage, WI.

Arthritis Foundation-Wisconsin Chapter, Southwestern District Office 608/221-9800 or 800/242-9945 608/221-9696 (fax)

Information and referral line, support groups, advocacy services, arthritis literature, speakers bureau, audio-visual resource library, juvenile arthritis programs, land & water exercise programs, professional educational offerings, financial planning information, S.A.I.L. (support arthritis independent living) and Camp M.A.S.H. for kids.

Wisconsin Autism Society www.autism-society.org Autism Society of America 800/328-8476 Autism Society of Wisconsin www.asw4autism.org 1.888.428.8476 (WI only) or 920.993.0279 Cystic Fibrosis Foundation 800/344-4823 Dyslexia Foundation of America 800/332-1000 American Association of Mental Retardation www.aamr.org 202/387-1968 or 800/424-3688

Disabled Sports USA www.dsusa.org 301/217-0960

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American Athletic Association of the Deaf (AAAD) 1052 Darling Street

Ogden, UT 84403 National Sports Center for the Disabled www.nscd.org 970/726-1540 National Recreation and Park Association www.nrpa.org 703/858-0784 Shape Up America! www.shapeup.org 800/946-8098 United Cerebral Palsy of Greater Dane County http://www.ucpa.org/main.cfm/152 1502 Greenway Cross Madison, WI 53713 608-273-4434

Family Village www.familyvillage.wisc.edu Provided by the Waisman Center at the University of Wisconsin-Madison.

A list of useful web sites for parents of children with special health care needs. www.familyvillage.wisc.edu/websites.html The list was designed to give parents a starting point for their exploration of the World Wide Web. It is not intended to be a comprehensive list.

Wisconsin Council on Developmental Disabilities www.wcdd.org 608.266.7826 Voice 608.266.6660 TTY

The Council is dedicated to improving the independence, productivity, and integration of people with developmental disabilities.

DAWN (Disability Advocates: Wisconsin Network) www.dawninfo.org DAWN is a statewide grassroots cross-disability advocacy network of people who want to work for change in the legislation, programs and systems affecting people with disabilities.

Family Voices www.familyvoices.org 1.888.835.5669

Families and friends speaking on behalf of children with special health care needs.

KASA/Family Voices (Kids As Self Advocates) http://www.fvkasa.org 773.465.3200

KASA is a national, grassroots network of youth with special needs and our friends, speaking on behalf of ourselves.

National Child Abuse Hotline 800-422-4453

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Down Syndrome Association of Wisconsin www.dsaw.org 9401 W. Beloit Rd., Suite 112 Milwaukee, WI 53227-4357 414.327.3729 or 1.866.327.3729

National Multiple Sclerosis Society 800/624-8236 Parents of Preemies http://www2.medsch.wisc.edu/childrenshosp/parents_of_preemies/ Information in English and Spanish. Internal Revenue Service www.irs.gov 800/452-9100 Legislative Hotline 800/362-9472

Leave a message for your Senator and Representative about issues you feel are important.

Toll Free Numbers

800/555-1212 The toll free information operator. Call if you need other toll free numbers not listed here.

Computers Wisconsin’s Computer Recycling Program www.doc.state.wi.us Bureau of Correctional Enterprises Computer Recycling Project 3099 E. Washington Ave. Madison, WI 53704 608.240.5237

Refurbished and or upgraded computers are made available, for a small fee, to governmental agencies and nonprofit organizations. The computers must be used for educational or training purposes only. (Not for administration usage.) Contact them about getting a computer and or donating a computer.

Northwoods Computers Portage, WI 53901 608.742.7114

Pentium computers available for purchase at very low prices. Some upgrades available.

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Local Libraries Not only do libraries offer a variety of services like book lending, periodicals, daily papers, children’s programs, they also offer free access to the Internet. Read on to learn more about your library’s Internet access options.

Angie W. Cox Public Library 119 N. Main Street Pardeeville, WI 53954 608/429-2354 608/429-4308 (fax)

Internet access is available on first come, first served basis. Other library services also available. The computer used to access the Internet is specially adapted for use by persons with disabilities.

Columbus Public Library 223 W. James Street Columbus, WI 53925 920/623-5910

Internet access is available by reservation or on a walk in basis, if not reserved. Other library services also available. The computer used to access the Internet is specially adapted for use by persons with disabilities.

Hutchinson Memorial Library 228 N. High Street Randolph, WI 920/326-4640

Internet access is available by reservation or on a walk in basis, if not reserved. Other library services also available.

Jane Morgan Memorial Library 109 W. Edgewater Street Cambria, WI 920/348-4030

Internet access is available by reservation or on a walk in basis, if not reserved. Other library services also available.

Kilbourn Public Library 620 Elm Street Wisconsin Dells, WI 53965 608/254-2146

Internet access is available on first come, first served basis. A library card is required for Internet users. Other library services also available. The computer used to access the Internet is specially adapted for use by persons with disabilities.

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Lodi Women’s Club Public Library 130 Lodi Street Lodi, WI 53555 608/592-4130

Internet access is available by reservation or on a walk in basis, if not reserved. Other library services also available. The computer used to access the Internet is specially adapted for use by persons with disabilities.

Portage Public Library 253 W. Edgewater Street Portage, WI 53901 608/742-4959

Internet access is available by reservation or on a walk in basis, if not reserved. Other library services also available.

Poynette Public Library 118 N. Main Street Poynette, WI 53955 608/635-7577

Internet access is available by reservation or on a walk in basis, if not reserved. Other library services also available. The computer used to access the Internet is specially adapted for use by persons with disabilities.

Rio Community Library 324 W. Lyons Street Rio, WI 53960 920/992-3206

Internet access is available by reservation or on a walk in basis, if not reserved. Other library services also available. The computer used to access the Internet is specially adapted for use by persons with disabilities.

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Dental Care Ronald McDonald Care Van

http://www.uwhospital.org/shells/levels3-4/childrens/RMCareMobile.asp Renewal Unlimited, Inc. 608/742-5329 or 1-800-344-7543

Preventive and restorative dental care. This is a 5 year project. Will serve individuals with Medical Assistance and or no dental insurance. A waiting list may exist, but call now for more information.

Family Health Medical & Dental Clinic 400 S. Town Line Road Wautoma, WI 54982 920/787-5514 or 800/942-5330 Accepts medical assistance or provides services on a sliding fee scale. Madison Area Technical College Dental Hygiene Clinic Downtown Education Center

211 North Carroll Street, Room 501 Madison, WI 53703 608/258-2400

Dental hygiene students provide oral exams, cleanings, fluoride treatments, sealant application, and X-rays. Services are provided for a minimal fee.

Max W. Pohle Dental Clinic at Meriter Hospital 202 S. Park Street Madison, WI 53715

608/267-6500 Accepts Medicaid and some insurance. Full service dental care provided.

Wisconsin Foundation of Dentistry for the Handicapped Donated Dental Services

Julie Wilk, Program Coordinator 414/276-0370 or 888/338-6852

Program serves disabled and elderly people who cannot afford dental treatment.

Find a Dentist in Wisconsin www.chsra.wisc.edu/dentists/search State of Wisconsin Consumer Guide to Health Care

A searchable data base of dentists in Wisconsin. Try a broad search before narrowing it to dentists who accept Medical Assistance for best results.

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Medical Assistance Recipient Services 800/362-3002

Call for a list of dentists who may currently be accepting new patients with MA. Call each dentist to determine current status. Much of the problem with the lack of dentists providing care to people with MA is the poor reimbursement rate they get from the State. Legislative Activity is needed in order to improve the current system for MA Dental reimbursement. In order to contact your legislator, call the Wisconsin Legislative Hotline 800/362-9472. Another problem dentists cite for not participating in MA is failure to keep appointments. Their offices lose money when people fail to come in for a scheduled appointment. If you make an appointment with a dentist, please keep the appointment or call to cancel the appointment.

American Academy of Pediatric Dentistry www.aapd.org 312/337-2169 Medic Alert Foundation www.medicalert.org 800/344-3226

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Education Cooperative Educational Service Agency www.cesa5.k12.wi.us

CESA 5 626 E. Slifer Street Portage, WI 53901 608/742-8811

CESA 5 coordinates a broad range of services and programs for support staff, students, teachers, administrators, board members, parents and the community. CESA 5's goal is to maintain vibrant and responsive educational opportunities for students, teachers, and administrators as we move forward into the next quarter century.

School Districts Cambria-Friesland School District http://www.cambria-friesland.k12.wi.us 410 E. Edgewater Street Cambria, WI 53923 920/348-5548 920/348-5119 (fax) Columbus School District http://www.columbus.k12.wi.us 200 W. School Street Columbus, WI 53925 920/623-5950

Fall River Public Schools http://www.fallriver.k12.wi.us 150 Bradley Street Fall River, WI 53932 902/484-3327 Lodi School District http://www.lodi.k12.wi.us 115 School Street Lodi, WI 53555 608/592-3851 Pardeeville Area Schools http://www.pardeeville.k12.wi.us 120 S. Oak Street Pardeeville, WI 53954 608/429-3666 Portage Community School District http://www.portage.k12.wi.us 904 DeWitt Street Portage, WI 53901 608/742-4879

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Poynette Area Schools http://www.poynette.k12.wi.us 426 Washington Street Poynette, WI 53955 608/635-4347

Randolph School District http://www.portage.k12.wi.us 110 Meadowood Drive Randolph, WI 53956 920/326-2427 920/326-2430 (fax) Rio Schools http://www.rio.k12.wi.us 411 Church Street Rio, WI 53960 920/992-3141 Wisconsin Dells Public Schools http://www.sdwd.k12.wi.us 811 County Road H Wisconsin Dells, WI 53965 608/254-7769 Special Education School Coman W7530 State Road 16 Pardeeville, WI 53954 608/742-2488 Head Start/Early Head Start See listing under Child Development and Social Interaction

Transition What is Transition? The planning process required by schools to prepare students who are 14 and older for the transition from school to the adult world.

WI FACETS www.wifacets.org 877-374-4677

Wisconsin Family Assistance Center for Education, Training & Support, Inc. (WI FACETS) is a nonprofit organization serving Wisconsin children and adults with disabilities, their families and those who support them.

Transition & The Internet www.familyvillage.wisc.edu/sp/trans.html Internet based transition information.

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Healthy & Ready to Work http://www.waisman.wisc.edu/cedd/indexfr.html For Information and Referral questions about transitions: 1.800.532.3321

An asset based community development project. The Wisconsin Health and Ready to Work (HTTW) project is designed to support youth with special health care needs who are transitioning into the adult world.

Individualized Education Program (IEP) Resources

Special Education in Plain Language http://www.cesa7.k12.wi.us/sped/Parents/plainlanguageindex.htm

A user-friendly handbook on Special Education laws, policies, and practices in Wisconsin.

Wisconsin Council on Developmental Disabilities www.waisman.wisc.edu/index.htmlx 600 Williamson Street Madison, WI 53707-7851

608/266-7826 TDD/TTY 608/266-6660

Parent Education Project of Wisconsin (PEP-WI) http://members.aol.com/pepofwi 2192 South 60th Street West Allis, WI 53219-1568 414/328-5520 TDD 414/328-5525 Wisconsin Coalition for Advocacy www.w-c-a.org 16 North Carroll Street, Suite 400 Madison, WI 53703-2716 608/267-0241 Wisconsin Family Ties www.wifamilyties.org 16 North Carroll Street, Suite 640 Madison, WI 53703 608/267-6888 or 800/422-7145 Wisconsin Statewide Parent-Educator Initiative Building D-2, Mailbox 65 800 Wisconsin Street Eau Claire, WI 54703 1.877.844.4925

Parent Advisory Councils(PAC) are one way for parents to give feedback to educators and administrators on how the whole special education system and process is working within their community. Most school districts in Columbia County have District Parent Liaisons. A local contact is Martha DeYoung, 608.742.8814, Ext. 255.

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Department of Public Instruction (DPI) www.dpi.state.wi.us/dpi/dlsea/een Division for Learning Support: Equity and Advocacy Special Education 800/441-4563 TDD 608/267-2427

For children 5 and older. Early Childhood: Exceptional Educational Needs Programs Department 608/267-9625 or 608/267-9172 or 800/441-4563 For children ages 3-5. Post-Secondary Education

Madison Area Technical College (MATC) Truax Campus www.madison.tec.wi.us/matc/ 3550 Anderson Street Madison, WI 53704 608/246-6100 or 800/322-6282 608/246-6880 (fax)

MATC Portage Campus www.madison.tec.wi.us/matc/ 330 West Collins Street Portage, WI 53901 608/742-2151 MATC Reedsburg Campus www.madison.tec.wi.us/matc/ 300 Alexander Avenue Reedsburg, WI 53959 608/524-4386

UW Baraboo/Sauk County http://www.baraboo.uwc.edu

1006 Connie Road Baraboo, WI 53913 608/356-8351 Post-Secondary Education Resources University of Wisconsin System

Coordinators of Services for Students with Disabilities Any of the UW Colleges

780 Regent St. P.O. Box 8680 Madison, WI 53708-8680 608.262.2001

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DO-IT University of Washington Box 355670 Seattle, WA 98195-5670 206.685.3648 (voice/TTY)

Promotes the use of computer and networking technologies to increase independence, productivity, and participation in education and employment for individuals with disabilities.

College Tuition Assistance U.S. Commission for Scholarship Assistance-College Bound

Supplies the public with over 900 different private scholarship sources. The scholarship list includes the scholarship names, addresses, application deadlines, summaries about the scholarships and the amount the scholarship will pay your child. For information on obtaining these scholarship lists, send a self-addressed, stamped, business size #10 envelope to: The U.S. Commission for Scholarship Assistance, P.O. Box 668, O'Fallon, IL 62269

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Health Benefits and Financial Resources ABC for Health www.abcforhealth.org

Advocacy & Benefits Counseling for Health 152 W. Johnson Street, Suite 206 Madison, Wisconsin 53703-2213 608/261-6939 or 1.800.585.4222

The mission is to provide health care consumers with the information, advocacy tools, legal services, and expert support they need to navigate through America's complex and confusing health care financing system. ABC for Health, Inc., is dedicated to ensuring health care access for children and families, particularly those with special needs or who are at risk.

Medical Assistance www.dhfs.state.wi.us/Medicaid/index.htm

Columbia County Division of Economic Support 608/742-9227 or 800/362-3002 (TTY and translation services available)

This offers health insurance for low-income families. But, many people don’t know they are eligible and don’t apply. If your children are uninsured or under-insured, it’s important to find out if you qualify. Medicaid pays for: prevention services like doctor visits, prenatal care, preventive check-ups; immunizations; vision care, including glasses; prescription drugs; family planning services and supplies; speech therapy; mental health services; medical equipment; hospital care; hearing services, including hearing aids; labs and x-ray services; dental services; transportation to Wisconsin Medicaid services and much more.

Medicaid Purchase Plan www.dhfs.state.wi.us/mapp/index.htm Columbia County Division of Economic Support 608/742-9227 or 800/362-3002 (TTY and translation services available)

Many people with disabilities want to work but worry that doing so could jeopardize their vital health and long term care coverage. The Medicaid Purchase Plan offers people with disabilities who are working or interested in work the opportunity to buy their health care coverage.

Healthy Start www.dhfs.state.wi.us/medicaid1/recpubs/healthystart.htm Columbia County Division of Economic Support

608/742-9227 or 800/722-2295 Maternal and Child Health (MCH) Hotline Healthy Start is part of the Medicaid Program. It pays for medical care for pregnant women, babies and children. It covers most babies until they are one year of age, even if the family’s income goes up. Families with health insurance may apply. If you are under-insured and/or you don’t have health coverage for prenatal care services or the birth of the baby, you may be eligible for Healthy Start. Healthy Start pays for: all doctor visits and hospital costs; prescription drugs; delivery of your baby; health care (including medical, dental, vision, counseling) for pregnant women up to 60 days following delivery; health care (including medical, dental, vision, counseling) for children up to age 19.

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BadgerCare www.dhfs.state.wi.us/badgercare/index.htm Columbia County Division of Economic Support

608/742-9227 or 800/362-3002 (TTY and translation services available) BadgerCare is Wisconsin’s state program to provide health insurance for uninsured working families. To be eligible you must have children under age 19 living with you, your income must be within guideline limits, there is no limit on assets, and you must not be covered by health insurance. By insuring both children and their parents, BadgerCare makes it easier for parents to create a happy and healthy family life. BadgerCare will pay for immunizations, medication prescribed by a doctor, preventive check-ups, dental care, vision care, and much more.

Wisconsin HIRSP www.dhfs.state.wi.us/hirsp/index.htm 608/221-4551 or 800/828-4777

The Wisconsin Health Insurance Risk Sharing Plan offers health insurance to Wisconsin residents who, due to their medical conditions, are anable to find adequate health insurance coverage in the private market.

Katie Beckett www.dhfs.state.wi.us/bdds/kbp.htm Waisman Center Outreach Program Becky Burns or Michelle Schumacher 122 E. Olin Avenue, Suite 100 Madison, WI 53713

608/265-4102 The program is a special eligibility process that allows certain children with long term disabilities or complex medical needs, living at home with their families, to obtain a Wisconsin Medicaid Card. Children, who are not eligible for other Medicaid programs because the income or assets of their parents are too high, may be eligible for Medicaid through the Katie Beckett program, if they meet the eligibility criteria.

Social Security Administration www.ssa.gov 1 North Main Street Portage, Wisconsin 53901

608/742-8817 or 800/772-1213 TDD 800/325-0778

SSI is short for Supplemental Security Income. It pays monthly benefits to people who are 65 or older, or blind, or have a disability and who don’t own much or have a lot of income. Benefits can go to disabled and blind children too. People who get SSI usually get food stamps and Medicaid, too. Medicaid helps pay doctor and hospital bills.

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Developmental Disabilities Services and Programs http://www.dhfs.state.wi.us/bdds/index.htm

The Bureau administers programs which: promote children living with their families, prevent individuals from moving to institutions, and move individuals who have lived in institutions to the community. The common goal is inclusion; that is, people living, working, learning, and playing in communities of their choice.

Community Options Program (COP) http://www.dhfs.state.wi.us/ltc_cop/COP.HTM Columbia County Division of Supported Living

608/742-9227 This helps people who need long term care to stay in their own homes and communities. Its purpose is to provide cost-effective alternatives to expensive care in institutions and nursing homes. People with serious long-term disabilities and elderly people receive funds and assistance to find services they are not able to get through other programs. Based on your needs, services may include: home modification, adaptive equipment, respite care, financial counseling, care management, home health care, personal care, communication aids, residential services and housekeeping.

Community Integration Program (CIP) http://www.dhfs.state.wi.us/bdds/cip.htm Columbia County Division of Supported Living

608/742-9227 A Medicaid funded program to provide community services to persons with developmental disabilities who are relocated from State Centers for the Developmentally Disabled or similar facilities.

Family Support Program http://www.dhfs.state.wi.us/bdds/fsp.htm Columbia County Division of Children and Family 608/742-9227

The Family Support Program is available for families who care for a child (birth to 21 years) with severe disabilities. An assessment of family needs will determine what services and equipment can be funded to ease financial or emotional stress and preserve the family unit.

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Wisconsin Works (W-2) www.dwd.state.wi.us/desw2/wissorks.htm Columbia County Division of Economic Support 711 E. Cook Street Portage, WI 53901

608/742-9227 This program replaces the former AFDC program. W-2 is based on work participation and personal responsibility. Once employed, participants may receive additional W-2 services to help them adjust to their new work environment and build skills that promote career advancement opportunities. Employment supports may include: Job centers, local children’s services networks and community steering committees, child support, Wisconsin Shares child care, Job Access Loans, transportation assistance, health care, and employment skills advancement program.

W-2 Disabilities Hotline

888/400-8455 or 608/250-4044 (Wisconsin Council on Children and Families) The Disabilities Hotline provides assistance to families affected by W-2 that contain either a parent or child with disabilities.

Wisconsin Office of the Commissioner of Insurance http://oci.wi.gov/oci_home.htm 800/236-8517

OCI's mission is to lead the way in informing and protecting the public and responding to its insurance needs. Answers insurance questions and accepts complaints for investigation.

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Health Care Wisconsin Consumer Guide to Health Care

http://www.dhfs.state.wi.us/guide/getting/index.htm A searchable database of health care providers and services in Wisconsin. (Doctors, dentists, podiatrists, home care agencies, hospitals, etc…)

Hospitals Columbus Community Hospital 1515 Park Avenue Columbus, WI 53925 920/623-2200 or 800/549-7511 TDD 920/623-2091

Visiting Specialties: Opthamology, Allergy, Infectious Disease, Urology, Ear, Nose & Throat, Plastic Surgery, Podiatry, and Oncology

Divine Savior Healthcare 1015 Pleasant Street Portage, WI 53901 608/742-4131 or 800/272-9355

TDD/Voice 608/742-6528 Visiting Specialties: Allergy & Immunology, Cardiology, Dermatology, Ear, Nose & Throat, Electromyography, Gastroenterology, Gynecology, Neurology, Neuropsychology, Oncology/Hematology, Orthopedic, Podiatry, Pulmonology, Rheumatology, and Vascular Surgery.

Beaver Dam Community Hospital www.bdch.com 707 S. University Avenue Beaver Dam, WI 53916 920/887-7181 TDD 920/887-4047

Visiting Specialties: Ear, Nose & Throat, Rheumatology, and Allergy.

Reedsburg Area Medical Center 2000 N. Dewey Avenue Reedsburg, WI 53959 608/524-6487

Visiting Specialties: Urology, Oncology, Podiatry, Allergy, Rheumatology, Dermatology, Opthamology, Ears, Nose & Throat, Audiology, and Plastic Surgery.

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St. Clare Hospital & Health Services www.stclare.com 707 14th Street Baraboo, WI 53913 608/356-1400 TDD 608/355-1746

Visiting Specialties: Allergy-Immunology, Endocrinology, Allergy, Audiology, Pediatric Cardiology, Dermatology, ENT, Neurology, Oncology, Plastic Surgery, Rheumatology, Urology, EEG, Pulmonology, Laser Eye Surgery

Sauk Prairie Memorial Hospital 80 1st Street Prairie du Sac, WI 53578 608/643-3311

Visiting Specialties: ENT, Plastic, Reconstructive & Cosmetic surgery, Rheumatology, Urology, Cardiology, Infectious Disease, Neurology, Pulmonology, Allergy, Oncology, and Dermatology.

Mile Bluff Medical Center/Hess Memorial Hospital 1050 Division Street Mauston, WI 608/847-6161 TDD 608/847-5422

Visiting Specialties: Allergy, Cardiology, Ear, Nose & Throat, Gastroenterology, Neurology, OB/Gynecology, Oncology, Opthamology, Orthopedic, Physical Medicine, Pediatrics, Urology, Podiatry, Dermatology, Pulmonary Medicine, and Rheumatology

Adams County Memorial Hospital 402 West Lake Street Friendship, WI 53934-0040 608/339-3331

Visiting Specialties: Cardiology, Ear, Nose & Throat, Opthamology, Orthopedics, Podiatry, Rheumatology, Urology and Audiology.

Meriter www.meriter.com 202 S. Park Street Madison, WI 608/267-6000 TTY 800/947-6644 St. Mary’s Hospital Medical Center www.stmarysmadison.com 707 S. Mills Street Madison, WI 53715-0450 608/251-6100 TTY 608/258-5625

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University of Wisconsin Hospital and Clinics www.uwhospital.org University of Wisconsin Children’s Hospital 600 Highland Avenue

Madison, WI 608/263-6400 or 1.800.824.8924 TTY 800/283-9877 Children’s Hospital of Wisconsin 9000 W. Wisconsin Avenue Wauwatosa, WI 53201 414/266-2000 TTY 800/947-6644

Clinics Cambria Clinic 306 E. Edgewater Street Cambria, WI 53923 920/348-5114 Columbus Clinic 1511 Park Avenue Columbus, WI 53925 920/623-2323 Dells Clinic, SC 1310 Broadway Road Wisconsin Dells, WI 53965 608/253-1171 Divine Savior Healthcare

102 Gillette Street Pardeeville, WI 53954 608/429-2185

Divine Savior Health care 128 Eastridge Dr. Portage, WI 53901 608-745-4598

Family Health Medical and Dental Clinic (fees are on a sliding-fee scale) 400 S. Town Line Road Wautoma, WI 54982 920/787-5514 or 800/942-5330

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The Good Neighbor Clinic of Sauk Prairie, Inc. (No cost health care. Accept donations.)

St. Vincent de Paul Community Resource Center 1906 North Street Prairie du Sac, WI 53578 608.643.4749

Lodi Medical Clinic 601 Clark Street Lodi, WI 53555 608/592-3296

Planned Parenthood of Wisconsin www.plannedparenthoodwi.org (Services offered on a sliding fee scale.)

204 E. Edgewater St. Portage, WI 53901 608.742.1551

Portage Clinic 916 Silver Lake Drive Portage, WI 53901 608/742-7161 Poser Clinic 635 Park Avenue Columbus, WI 53925 920/623-5000

Poynette Family Practice Clinic 237 W. Seward Street Poynette, WI 53955 608/635-4343 Randolph Family Health Clinic 137 E. Cambria Street Randolph, WI 53956 920/326-5303 Rio Health Clinic 106 Lincoln Avenue Rio, WI 53960 920/992-5577

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UW Health-Physicians Plus 1511 Park Avenue Columbus, WI 53925

920/623-5226 UW Health-Portage Community Clinic 1116 W. Prospect Portage, WI 53901 608.742.3004 *New Clinic to open Spring 2003. Hwy CX Portage, WI 53901 608.742.3004 (No phone number change)

UW Health-Randolph Community Clinic 504 S. High Street Randolph, WI 53956 920/326-5060

Public Health Clinic

Columbia County Division of Health www.co.columbia.wi.us/dept/health 711 E. Cook Street, Suite 108 Portage, Wisconsin 53901 608/742-9227

Health Check Clinic Wellness exam(s) emphasizing preventive health for anyone under age 21 with a valid Wisconsin Medical Assistance card. Referrals to other providers as needed.

Well-Baby and Well-Child Clinics Free wellness exam(s), developmental and nutritional assessment for families with limited or no health insurance.

Immunization Clinics Regularly scheduled clinics held throughout the county. Birth parent or legal guardian signature required on State of Wisconsin form. No appointment necessary. Call for more information.

Postpartum and Newborn Health Contact with a public health nurse following the birth of a baby or adoption. The nurse can answer questions about feeding, bowel habits, sleep, behavior, growth and development as well as services available in the community.

Breastfeeding Support There is a certified lactation educator and 2 certified breastfeeding educators on staff to help mothers who are breastfeeding. Please call.

Well Water Testing Free well water testing for bacteria, nitrates and fluoride is available to pregnant women and families with a child less than 1 year of age.

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Fluoride Supplements Fluoride drops and tablets are available for children 6 months through 16 years of age drinking well water or who live in villages with unfluoridated water.

Communicable Disease Control Nurses provide surveillance, investigation, prevention and control of communicable diseases. Tuberculin skin tests, influenza and pneumonia vaccines are available for a fee.

Environmental Health Free capillary blood lead testing for children 1 to 6 years of age by appointment. Provides enforcement of the Columbia County Human Health Hazard ordinance.

Public Health Nurse Intake Nurses are available Monday through Friday, 8:00 A.M. to 4:30 P.M. if you have questions or you would like more information.

Women, Infants and Children (WIC) www.co.columbia.wi.us/dept/health/wic.asp 711 E. Cook Street Portage, Wisconsin 53901 608/742-9254

A supplemental nutrition program for pregnant, postpartum and breastfeeding women, infants and young children. It provides nutrition education, free healthy foods (a $35-$90 value per person each month), breastfeeding information and support, and information on community resources. If your child has MA you should meet the income eligibility requirement.

Specialty Clinics Waisman Center www.waisman.wisc.edu/index.html 1500 Highland Avenue Madison, WI 53705-2280

The Waisman Center is an interdisciplinary research and training facility that is housed within the Graduate School of the University of Wisconsin-Madison. The Waisman Center is not a hospital, nor is it a medical clinic. While several clinics are housed within the Waisman Center, each clinic is organized within one of the research and training programs, and each has its own organizational and administrative structure. When envisioning the Waisman Center, it is more accurate to compare it to an academic and outreach center than it is to compare it to a clinical facility. Individuals are charged for the following services, so inquire if your insurance will cover these visits.

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Biochemical Genetics Clinic 608/263-5981

Serves people who have suspected or known hereditary metabolic disease, such as PKU. Services include initial diagnostic/confirmatory services and longitudinal care, including nutritional supervision. This clinic is one component of the Wisconsin Newborn Screening Program.

Cerebral Palsy Clinic 608/263-7335

Children who have cerebral palsy or other neurodevelopmental problems receive comprehensive evaluation, long-term treatment, follow along care and reevaluation by the core interdisciplinary staff along with medical specialists.

Developmental Disabilities Clinic 608/263-5815

The clinic offers diagnostic and assessment services to persons who have, or are suspected of having developmental problems, including developmental delays, disorders of communication, motor, or social-emotional development.

Genetics Clinic 608/262-2507

Within this clinic, there are many programs. The General Genetics Clinic, which includes the Sensory Deficits Clinic (deafness and blindness) and the Bone Dysplasia Clinic (disorders of bone growth), functions principally in diagnosing the cause of complex processes. A stillbirth assessment service is available. Contact Peggy Draeger, 608/262-6228.

Pediatric Neurology Clinic 608/263-6420

The goals of this clinic are to diagnose and treat neurological problems including epilepsy, headaches, movement disorders, muscular disease, and nerve problems.

Communication Aids and Systems Clinic 608/263-2522

The clinic functions as a regional assistive technology center that provides alternative communication and computer access services.

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St. Mary’s Hospital Medical Center Specialty Clinics Surgery and Care Center 800 South Brooks Street Madison, WI 53715 Apnea Management Clinic 608/255-1226

This is designed to provide ongoing comprehensive follow-up and support to the family of an infant with apnea requiring the use of a home apnea monitor.

Attention Deficit Disorder Clinic 608/259-3545

This clinic was established to provide diagnostic, treatment and consultation to children with suspected attention disorders.

Hydrocephalus and Spina Bifida Clinic 608/259-3545

The clinic is designed to care for hydrocephalic children, children with myelomenigocele, and children with different types of congenital abnormalities and spinal injuries.

Neonatal Follow-up Clinic 608/255-1226

This is a follow-up clinic for children that were patients of the Infant Intensive Care Unit. Its purpose is to assess your child’s overall health and development and to make any necessary recommendations.

Pediatric Assessment Clinic 608/259-3545

The clinic serves children whose development is of concern to their family or physician. Evaluations of the child’s abilities may include gross and fine motor skills, language, cognition, visual perception and sensation.

Pediatric Cardiology Clinic 608/255-1226

This clinic is designed to provide diagnostic and medical services as well as treatment for children with suspected, potential, and or diagnosed cardiac conditions.

Pediatric Feeding Clinic 608/259-3545

This is an interdisciplinary team specializing in the management of children whose feeding, swallowing or digestive problems present serious threats to their ability to obtain adequate nutrition.

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Meriter’s Developmental Follow Up Clinic Pat Grunwald 608.267.6639

This clinic offers 3 levels of care. Developmental Consultation Clinic for children birth to 3 years. Developmental Screening Clinic for children at low to moderate risk birth to 3 years. Developmental Assessment Clinic for children birth to 12 years.

Meriter utilizes many of the specialty clinics at UW Hospital, Madison. UW Hospital Clinic Specialties

http://www.uwhospital.org/shells/levels3-4/clinics/s-specialty_clinics.asp Please see this website for details as UW has over 80 specialty clinics!

Home Health Care

(Those who serve all or part of Columbia County)

Hillside Home Health Care 709 S. University Avenue Beaver Dam, WI 53916 920/887-4050

Home Health United Visiting Nurse Service 611 E. Wisconsin Street Portage, WI 53901 608/742-6583 or 800/924-2273 Divine Savior Healthcare Home Care 128 Eastridge Portage, WI 53901 608/745-6400 Homeward Bound of Sauk County 1360 Jefferson Baraboo, WI 53913 608/356-4666 REM Health of Wisconsin 1007 Washington Avenue Baraboo, WI 53913 608/356-7570

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Home Medical Equipment and Supply Companies Wilz Drug and Home Health Care 608/742-3545

Home Health United

800/660-3420 Walgreen’s Health Initiatives 608/256-1212 or 800/297-8346

Homestretch Medical Equipment 1 S. Park St Madison, WI 608/287-2424

Breast pump information in Nutrition section. Therapy Services** Rehab Resources Beaver Dam, WI 53916 920.885.4750 or 920.885.0680

Provide center-based or home-based speech, physical or occupational therapy services.

Dance/Movement Therapy The Hancock Center for Movement Arts & Therapies, Inc. http://userpages.chorus.net/hancock

608.251.0908 Dance/movement therapy is a form of psychotherapy, which incorporates creative and expressive movement. This process provides an integrated experience of body, mind and spirit. Dance/movement therapy helps develop healthy self image, communication skills and emotional stability.

Free S.P.I.R.I.T. Riders, Inc. www.freespititriders.org P.O. Box 1291 Fond du Lac, WI 54936-1291 920.924.8608

This is a non-profit organization committed to enriching the lives of children and adults with disabilities through safe therapeutic interaction with horses. The purpose is to provide active therapy. To provide a valuable experience that is enjoyable though challenging. To promote the rehabilitation of individuals with physical, psychological and learning disabilities through equine-facilitated activities.

Medic Alert Foundation 800/344-3226 ** Also inquire with home care agencies, hospitals and clinics.

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Housing and Environment Central Wisconsin Community Action Council, Inc. http://www.wiscap.org/

205 East Lake Avenue Lake Delton, WI 53940

608/254-8353 Or in Columbia County Central Wisconsin CAC 203 DeWitt Street Portage, WI 53901 608/742-3320

Offers assistance with housing, crisis emergency shelter, transitional housing assistance and case management for homeless people. The GAP program provides emergency shelter for homeless individuals and families.

The Tenant Resource Center http://trc.studentorg.wisc.edu/

1202 Williamson Street, Suite A Madison, WI 53703 608.257.0006

This organization is dedicated to promoting positive relations between rental housing consumers and providers throughout Wisconsin. By providing information about rental rights and responsibilities, and access to conflict resolution, we empower the community to obtain and maintain quality affordable housing. If you need an interpreter, materials in alternate formats or other accommodations to access our services, call the TRC administrative office at (608) 257-0143.

Wisconsin Home Energy Assistance Program http://heat.doa.state.wi.us/liheap/index2.asp Energy Services for Columbia County 311 E. Wisconsin Street, Room 103 Portage, WI 53901 608/742-4088 Appointments 1.800.506.5596

Offers once per year grants to help offset the cost of home heating. Other services may be available for furnace repair and or replacement and emergency heating services. Call for current income guidelines and or to set up an appointment.

Columbia County Division of Health http://www.co.columbia.wi.us/dept/health/default.asp

608/742-9227 Information available on sources of lead exposure and prevention techniques, well water testing, and other environmental topics.

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Access To Independence, Inc. http://www.AccesstoInd.org 2345 Atwood Avenue Madison, WI 53704-5602 608/242-8484 or 800/362-9877 TTY 608/242-8485

We are a private, non-profit Independent Living Center (ILC), part of a nationwide network of resource centers promoting independence and self-determination for people with all types of disabilities ILCs are consumer-controlled, with a majority of Board and agency staff made up of people with disabilities.

Columbia County Emergency Management Tim Carlin, Director 608/742-4166

In cases of natural disasters, this department coordinates the efforts to get people a safe place to stay and community clean up.

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Legal Services and Resources Americans with Disabilities Act Resources Wisconsin Coalition for Advocacy http://www.w-c-a.org 800/928-8778 U.S. Department of Justice, ADA Information Line 800/514-0301 TDD 800/514-0383

Center for Public Representation P.O. Box 260049 Madison, WI 53726-0049 608/251-4008

A non-profit public interest law firm providing advocacy, research, and training on issues which concern consumers, children, low-income groups, people with disabilities, and de-institutionalized persons.

Legal Action of Wisconsin www.legalaction.org 31 South Mills Street P.O. Box 259686 Madison, WI 53725-9686 608.256.3304 or 1.800.362.3904

Legal advice and or representation in the following areas: social security, SSI, county welfare, food stamps, public benefits, consumer, family, migrant and public housing.

Issue to consider: have someone designated as your dependent child’s guardian in case of an unexpected death or severe illness.

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Mental Health Services Aspen Family Counseling 625 E. Slifer Street Portage, WI 53901 608/742-5020 Pauquette Center 2901 Hunters Trail Portage, WI 53901 608/742-5518

Confidential counseling services and Alcohol & Drug Abuse Services by therapists and or psychiatrist. Community Support Program (CSP): comprehensive program for individuals with severe mental illness. 608/742-5518

Counseling & Psychotherapy Associates of Poynette 415 N. Main Street Poynette, WI 53955 608/635-2146 or 800/261-9297

Lutheran Social Services http://www.lsswis.org/ 311 E. Wisconsin Street (Cochrane Court) Portage, WI 53901 608/742-4244 Catholic Charities, Inc. http://www.catholiccharitymadison.org/programs.asp#top 608.821.3100 Mendota Mental Health Institute http://www.dhfs.state.wi.us/MH_Mendota/ 301 Troy Drive Madison, WI 53704 608/243-2500

Wisconsin United for Mental Health http://www.wimentalhealth.org 1.866.948.6483

The group is launching a long-term education and public awareness effort to help people understand that mental illness is a real, common and treatable disease and help erase the stigma associated with it.

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NAMI Dane County (National Alliance for the Mentally Ill) http://userpages.chorus.net/amidane/ or www.namiwisonsin.org 2059 Atwood Ave. Madison, WI 53704 608.249.7188

This is a support, education, and advocacy group dedicated to the improvement of the quality of life of those whose lives are affected by mental illness.

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Nutrition Services WIC Women, Infants and Children (WIC) http://www.dhfs.state.wi.us/WIC/index.htm

711 E. Cook Street http://www.co.columbia.wi.us/dept/health/wic.asp Portage, Wisconsin 53901 608.742.9254

A USDA sponsored supplemental nutrition program for pregnant, postpartum and breastfeeding women, infants and children less than 5 years old. It provides nutrition education, free healthy foods (a $35-$90 value per person each month), breastfeeding information and support, and information on community resources. A child receiving Medical Assistance (Katie Beckett) is also eligible for WIC, even if the family’s income is above the WIC guidelines. Call WIC to ask if others in the family receiving MA would be eligible. Breast pumps may be available to mothers who are breastfeeding, at no charge.

Nutrition Services for Children with Special Health Care Needs http://www.dhfs.state.wi.us/DPH_BFCH/cshcn/nutrition.htm Wisconsin DHFS, Division of Public Health, Nutrition Section

CSHCN Nutrition Consultant 608.267.9194

Children with special health care needs are vulnerable to nutrition-related problems. They require early nutrition screening. Several nutrition-related problems are of concern for children with special health care needs. When nutrition-related problems are identified, the child should be referred to a qualified Registered Dietitian (RD) to provide Medical Nutrition Therapy (MNT). Visit the web site or call for further details. A Directory of Dieticians serving CSHCN is available by mail and a list of potential sources for reimbursement and or provides nutrition services.

School Lunch Program/reduced meals Contact your child’s school district. http://www.fns.usda.gov/cnd/care/ProgramBasics/IEGs/State.htm

This program provides nutritionally balanced, low-cost or free lunches to children. Income eligibility limits apply.

Summer Food Service Program www.dpi.state.wi.us/dpi/dfm/fns/sfsp1.html

The Summer Food Service Program provides free meals to low-income children during school vacations. Those eligible are children and teenagers 18 years and younger (or anyone attending a school program for people with disabilities up to age 21). All meals are free.

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Breast Pump Resources Columbia County WIC 608.742.9254 Divine Savior Hospital, OB Department

Contact: Kathy Bulgrin Portage, WI 608/742-4131

Hall Pharmacy 803 Water Street Sauk City, WI 608/643-3717

Home Health Medical Equipment

4601 Hammersley Road Madison, WI 800/660-3420

Homestretch Medical Equipment 1 S. Park St Madison, WI 608/287-2424

St. Mary’s Hospital Medical Center 608/258-6474

UW Regional Services 608/263-7040

Wisconsin Nutrition Education Program

Becky Gutzman Nutrition Education Coordinator UW-Extension Columbia County 120 W. Conant Street, P.O. Box 567 Portage, WI 53901 608/742-9693

The goal of the program is to provide nutrition education to eligible families across the state. The target audience is for those who receive or are eligible to receive food stamps. Learn how to choose a healthful diet based on the Dietary Guidelines for Americans and the Food Guide Pyramid, purchase and prepare healthful food and keep it safe to eat, and increase your food security by developing a spending and savings plan, and learning to live within that plan.

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SHARE www.sharewi.org P.O. Box 403 Butler, WI 53007 800/548-2124

SHARE – like a giant food coop-and something more . . . SHARE is a not-for-profit organization that builds and strengthens the community through volunteer service and helping people save money on food. SHARE is Self-Help and Resource Exchange – powered by the people who participate.

Food Pantries Columbia County Health and Human Services

Central Intake 607.742.9227

If you are in need of food, contact Central Intake to be connected to a local food pantry.

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Parenting and Family Concerns Family Resource Center http://www.renewalunlimited.net/columbia_county_frc.htm 608/742-8482 or 800/325-5505

See listing under Child Development.

UW-Extension Columbia County www.uwex.edu/ces/cty/columbia Annex Building 120 W. Conant Street Portage, WI 53901 608/742-9680

The UW-Extension has developed excellent newsletters for parents with infants and young children entitled Parenting the First Year, Second Year and Third Year. The child development experts tell you how your baby changes during each month of the first year and during toddlerhood. You may visit the UW-Extension Parenting home page:www.uwex.edu/ces/flp/parenting. Other information available on Family Living, 4-H/Youth Development, Community, Natural Resources & Economic Development and Agriculture/Agribusiness.

Head Start/Early Head Start Renewal Unlimited, Inc. http://www.renewalunlimited.net/ Head Start Program 2900 Red Fox Run Portage, WI 53901 608/742-5329 or 800/344-7543

Serves children from birth to age 5, pregnant women, and their families to increase the school readiness of young children in low-income families. Parents are the backbone of the Head Start program. They volunteer in the program so they can be a part of their child’s development. Parents have direct involvement in planning through monthly parent meetings and the Policy Council. They participate in the activities they have helped put together. Also, there are opportunities for parents to attend workshops and trainings.

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Parent-to-Parent and Social Supports County Parent Liaison (CPL) 608/742-9227

Serves as a point of contact between the Waisman Regional Center for CSHCN, local public health departments and other collaborators including families of a child with special health care needs living in Columbia County. Contact the Columbia County Division of Health for CPL name and phone number.

Waisman Resource Center for Children with Special Health Care Needs http://www.waisman.wisc.edu/cedd/indexfr.html

Room S101F 1500 Highland Avenue Madison, WI 53705-2280 608/263-5890 or 800/532-3321

The Regional CSHCN Centers are part of a Statewide CSHCN Network that provides free and confidential assistance to parents of children with special health care needs and providers. A link to The Family Resource Room http://www.waisman.wisc.edu/projectsfr.html. A link to the Community Inclusion Programs http://www.waisman.wisc.edu/cedd/indexfr.html

Parents as Leaders (PALS) Waisman Center, A103 1500 Highland Avenue Madison, WI 53705-2280

PALS is a group of parents and other caregivers who meet together five times during a year to learn about resources, learn more about leadership and advocacy roles for parents in Birth to Six, explore topics of interest to group members, meet some of the key people who make the policies and run the programs that affect children with special needs and their families in Wisconsin.

Parents in Partnership (PIP) Martha DeYoung, CESA #5 Wisconsin Statewide Parent-Educator Initiative (WSPEI) P.O. Box 564 Portage, WI 53901 608.742-8811 or 1.800.862.3725, ext. 255

PIP is a group of parents and caregivers of children with special needs who are 6-14 years old. The program meets for 5 sessions. It is an opportunity to develop leadership skills, improve parent-professional partnerships, and join a network of parents.

Family Resource Center http://www.renewalunlimited.net/columbia_county_frc.htm

608/742-8482 or 800/325-5505 See listing under Child Development.

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Pacer Center http://www.pacer.org 1.800.537.2237 952.838.0190 TTY

The mission of PACER Center is to expand opportunities and enhance the quality of life of children and young adults with disabilities and their families, based on the concept of parents helping parents.

Columbia County Division of Health 608/742-9227

Public health nurses are available to assist families to access resources and provide teaching on healthy behaviors. May answer questions about child development, feeding, bowel habits, etc…

Support Groups Epilepsy Support Group

Meets the 2nd Wednesday of each month at 7:00 p.m. at the Portage Library. Bert Doyle, facilitator. Open to any age. Bring a friend if you’d like.

Madison Area Mothers of Multiples http://www.madisonmultiples.com 1.866.788.MOMS (6667)

The Madison Area MOMs is a non-profit support group for families with multiples. Many of the members have multiples (twins, triplets, quads or more!) as well as single birth children. If you are expecting, have given birth to, or adopted or are a guardian of multiple birth children, then this club is for you. Monthly meetings, newsletters, speakers, family outings, resales and information.

Post Adoption Resource Center A Catholic Charities program. See listing under Mental Health section.

MUMS (Mothers United for Moral Support) www.netnet.net/mums/ 877/336-5333

Wisconsin based national parent network for families of children with special needs.

Disabilities Awareness Bibliographies

http://www.iidc.indiana.edu/cedir/bibs.html http://www.portageproject.org//BOOKLST/INDEX.HTM Book lists for a variety of disability/ability topics.

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Recreation Camps Angel on My Shoulder www.angelonmyshoulder.org

Camp Angel/Teen Angel 1611 Pine Tree Lane St. Germain, WI 54558 715/542-3065 or 800/860-3431

A camp for kids experiencing cancer through a loved one. Camp Angel is for ages 8-12 years. Camp Teen Angel is for kids ages 13, 14 and 15.

Easter Seals Wisconsin www.wi-easterseals.org Camp Wawbeek

101 Nob Hill Road, Suite 301 Madison, WI 53713 800/422-2324 or 608/277-8288 TTY 608/277-8031

Kids and adults with disabilities have the opportunity to take part in an exciting camp experience that promotes independence for people with disabilities in a fully accessible environment that meets their needs! Easter Seals Camp Wawbeek increases campers’ self-esteem and independence.

American Lung Association of Wisconsin www.lungwisconsin.org Camp Wikidas

150 S. Sunny Slope Road, Suite 105 Brookfield, WI 53005-4857 262/782-7833 or 800/586-4872

This is a camp for children ages 8-13 with asthma. Children must be on daily asthma medication to attend camp.

Wisconsin Lions Camp www.wisconsinlionscamp.com 3834 County road A Rosholt, WI 54473 715/677-4761 TTY 715/677-6999

Summer camp programs for blind and visually impaired children ages 6-17, deaf and hard of hearing children ages 6-17, cognitively disabled children ages 9-17, children with diabetes ages 8-15, and separate adult resort programs for blind and visually impaired and deaf and hard of hearing persons ages 18 and older.

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Epilepsy Foundation South Central Wisconsin 7617 Mineral Point Road Madison, WI 53717-1623 608/833-8888 or 800/657-4929

Summer camp for kids with epilepsy is a safe, fun, overnight camping experience for children, eight to fifteen, with a primary diagnosis of epilepsy. Camp promotes independence and self-esteem.

Arthritis Foundation Chapter Office www.arthritis.org Camp M.A.S.H. for Kids (make arthritis stop hurting) 8556 W. National Avenue West Allis, WI 53227 414/321-3933 or 800/242-9945

Camp for kids ages 9-17 who have some form of juvenile arthritis. Experienced professional and recreational staff provide recreational activities such as swimming, arts and crafts, dances, comedy skits, games, sing-alongs, cookouts and education programs.

UW-Whitewater Wheelchair Athletics and Recreation http://www.uww.edu/staffair/recsport/wheelchair/summer-camps.htm

Sports Camp or Basketball Camp Tracy Chynoweth 262.472.3169 or 262.472.1145

Camps for kids 8-18, who have a mobility impairment as their primary disability. All levels of mobility are encouraged. Individuals should have the willingness and ability to try several sports using adaptive equipment and rules. The one prerequisite is a good mental attitude.

Fairs Columbia County Fair www.co.columbia.wi.us/news/fair/fair.asp

Veterans Memorial Field Portage, WI 53901

Held annually in mid-July. Junior and open class divisions. Watch the Shopper Stopper for entry forms in late spring.

Lodi Ag Fair Fair St. Lodi, WI 53555 Held in early July. Junior and open class divisions.

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Wisconsin State Fair www.wsfp.state.wi.us P.O. Box 14990 West Allis, WI 53214-0990 414/266-7000 or 800/884-FAIR (recorded information line) 800/796-2460 (Grandstand tickets)

Fairgoers with disabilities and senior citizens receive a discounted admission price of $5 (at the gate). Or Advance Tickets may be purchased at a reduced rate for adults and youth.

Recreation Programs Wheelchair Recreation Program Access to Independence, Inc. 2345 Atwood Avenue Madison, WI 53704 608.242.8484 or 1.800.362.9877 Voice 608.242.8485 TTY

A sports and recreation program for children with physical disabilities who use wheelchairs. The hope is that these opportunities will enable them to develop self confidence, independence and to enhance their abilities to be strong, productive, healthy participants in their community.

Special Olympics Wisconsin www.wiso.org South Central Area 6 (Includes Columbia County) 5900 Monona Drive, Suite 403 Madison, WI 53716 608.221.2900 or 1.800.679.6751

The mission is to provide a year-round sports training and athletic competition in a variety of Olympic-type sports for persons eight years of age and older with cognitive disabilities, giving them continuing opportunities to develop physical fitness, demonstrate courage, experience joy and participate in the sharing of gifts, skills and friendship with their families, other Special Olympics athletes and their community.

Area swimming pools Baraboo Pool 320 South Blvd Baraboo, WI 53913 608/355-2764 Cambria Park Swimming Pool 102 Tarrant Drive Cambria, WI 920/348-6190

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Columbus Aquatic Center Fireman’s Park

1049 Park Avenue Columbus, WI 53925 920/623-5920 Fall River Pool 150 Bradley Street Fall River, WI 53932 920/484-3326 Lodi Area Pool Fair Street Lodi, WI 53555 608/592-3247 Portage Swimming Pool Julia Rusch School 117 W. Franklin Street Portage, WI 53901 608/742-2004 Poynette Swimming Pool 108 N. Cleveland Street Poynette, WI 53955 608/635-4345 Randolph Swimming Pool 255 2nd Street Randolph, WI 920/326-4636 Wisconsin Dells Municipal Pool 608/254-2238

Parks with animals Ochsner Park Zoo http://www.saukcounty.com/ochsner.htm 903 Park Street Baraboo, WI 53913 608/355-2767 MacKenzie Environmental Center http://www.naturenet.com/mackenzie/ W7303 County Road CS & Q Poynette, WI 53955 608/635-8110

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Henry Vilas Zoo http://www.vilaszoo.org 702 S. Randall Avenue Madison, WI 608/266-4732

Fishing Fishing Has No Boundaries, Inc.

P.O. Box 175 Hayward, WI 54843 1.800.243.3462

FHNB events focus on educational fishing, providing persons with disabilities the opportunity to fish. Events are now held throughout the State.

Hunting and Fishing Permits for People with Disabilities Wisconsin Department of Natural Resources www.dnr.state.wi.us/org/land/wildlife/HUNT/Disability.pdf

Disabled fishing license for $7. See web page for eligible disabilities. Other hunting options also listed in the web-based document. Please see for details.

Bed and Breakfast Welcome H.O.M.E. Bed and Breakfast http://hnet.net/~welcomehome P.O. Box 333 4260 W. Hawthorne Drive (Hwy Y) Newburg, WI 53060 262.675.2525

The “Come As You Are” place. Visit a unique wheelchair accessible country home midway between Port Washington and West Bend in southeastern Wisconsin. Welcome, H.O.M.E.-House Of Modification Examples is more than a house. It’s a bed and breakfast. Built to be enjoyed by everyone, regardless of ability or disability.

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Transportation Medical Vans Midstate Medical Express Tom Watson 800-463-3826

All vans are equipped with a wheel chair lift. Accept Medicaid reimbursement for transport. Call to arrange transportation as far in advance as possible. Form with physician signature may be required.

Raymond Medical Transport 800-833-7976

Vans are equipped to accommodate wheel chairs. Accept Medicaid reimbursement for transport. Call to arrange transportation as far in advance as possible. Form with physician signature may be required.

Cab services City Cab Co 1717 Jones Portage, WI 53901 608-742-6669 A Touch of Class 421 N. Ludington Street Columbus, WI 53925 920/623-2804

Van Service Columbia County Commission on Aging 608.742-9213

The COA may be another source of transportation that is either billed to Medicaid or paid for privately by its customers. Please call to see if this would be an option for your situation.

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Medical Assistance transportation reimbursement Columbia County Economic Support

Julie Crawford Medical Mileage Specialist 608/742-9711

Medical Assistance offers mileage reimbursement to and from medical appointments if you receive services that are billed to Medical Assistance (including BadgerCare, Katie Beckett, Healthy Start or SSI-related Medical Assistance). Please contact Julie with questions or to make arrangements prior to your scheduled appointment. If she is unavailable, leave a message with the name of the person covered by Medical Assistance, where they are going for medical care, the date of the appointment, and a number for Julie to contact you at. (For people who have not used this before, please include a social security number). The mileage reimbursement is paid out, in the form of a check to you, once per month.

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Vocational Services/Resources Columbia County Health & Human Services 711 E. Cook Street Portage, WI 53901 608/742-9227 TTY 608/742-9229

Services for the developmentally disabled person in Columbia County are coordinated by a case manager/service coordinator, who assists the person and the family or guardian, in assessing the needs and arranging for ongoing services. Opportunities for Sheltered WorkShop and supported employment services are available through contract service agencies. Referrals of developmentally disabled people by their case manager are made to various providers and assessments of needs and abilities determine the services offered. Supported employment consists of placement in community jobs with supportive services, training and follow-up.

Northwoods Inc. of Wisconsin N6510 Hwy 51 South Portage, WI 53901 608/742-7114 Serves developmentally disabled adults, elderly and the frail elderly.

Provides work skills training, service coordination, OT, PT, and independent living skills; vocational testing; job placement services; supported employment. Works in conjunction with the Columbia County Division of Supported Living.

Department of Workforce Development www.dwd.state.wi.us 201 E. Washington Avenue Madison, WI 53702 608/266-3131 TTY 608/267-0477

The Department’s primary responsibilities include providing job services, training and employment assistance to people looking for work, at the same time as it works with employers on finding the necessary workers to fill current job openings.

Department of Vocational Rehabilitation www.dwd.state.wi.us/dvr/ 800/422-3477 608/243-5680 (fax) Email [email protected]

This program is designed to obtain, maintain, and improve employment for people with disabilities by working with Vocational Rehabilitation consumers, employers, and other partners.

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Columbia County Job Center http://www.ccjc-wi.org/ 717 E. Cook Street Portage, WI 53901 608.742.4181

Employers and job seekers are able to use the resources of the Job Center during business hours, Monday - Friday, 8:00am - 4:30pm.

National Collaborative on Workforce and Disability for Youth http://www.ncwd-youth.info/ Navigating the road to work. Making the connection between youth with disabilities and employment. The National Collaborative on Workforce and Disability for Youth (NCWD/Youth) assists state and local workforce development systems to better serve youth with disabilities.