· Web viewBaxter, Christopher. (2012). Three years later, State police admit to using unreasonable force on NJ man's disabled son. [Online newspaper article with video]. Video 1:

PSRT 4271: The Family Role In RehabilitationCourse Class Schedule and Reading List (v.3.5)

Last updated: July 29, 2012. Subject to further updating.

(Adapted from Muhlbauer’s Six Phases of a Family’s Journey)Questions: T.H. Pyle, t. 609-658-2008, e. [email protected]

Unit & Date Subject Topics Readings(Required readings in

bold. Others are recommended.)

Web/Project Activity Class Activity

Phase One: Clouds GatherWeek 1:May 27 to Jun 2

Class: Thu, May 31

The New Reality: Aspects of Illness

Course Framework: The Phases of a Family Journey

What is SMI?What are its effects?What is illness like? Who is involved?

History of Mental Illness

History of Schizophrenia

Etiology of SZ:Psychological?Biological?Environmental?Societal?

Mind vs. Brain: “symbols” vs. “synapses”

How to Read a Research Article for This Class

(Finkle, 2004), 2 pp. 1st web assignment: Welcome to Moodle [Practice Session], due Thu, Jun 7.

Introductions and Preliminaries

Video: True Life: I Have Schizophrenia (MTV, 2008).

Introduction to the Six Phases of the Journey (Muhlbauer, 2002)

How to Read a Research Article for This Class

Week 2:Jun 3 to 9

History of The System and Its Perception of the Family

How did and does psychiatry view the family? Why?

Overview:

(Power & Dell Orto,

Prepare for 3rd Web assignment: attend, evaluate, post on

Unit & Date Subject Topics Readings(Required readings in bold. Others are recommended.)

Web/Project Activity Class

Thu, Jun 7“Schizophrenogenic mother”

“Double bind”

”Expressed emotion”

How are these views evolving? Why?

What challenges remain?

2004), chapter 1, 27 pp.

(Swarbrick, 2009)

Family “Journey” Phases:

(Muhlbauer, 2002), 14 pp.

Psychiatry History:

(Atkinson & Coia, 1995), p. 1-22 only.

(Royal College of Psychiatry, 2010) [10 minute video]

Schizophrenia:

(Moss-Coane, 2009b) [15 min. video: What is schizophrenia?]

(Kyziridis, 2005), 6 pp.

(DeDisto, Harding, McCormick, Ashikaga, & Brooks, 1995), 5 pp.

(Harding & Zahniser, 1994), 6 pp.

History of Etiology Theories:

(Fromm-Reichmann, 1948), 10 pp.

(Bateson, Haley, & Weakland, 1956), 16 pp.

Psychoeducation Group visit. Others to comment online. Due, Jul 19.



(Hartwell, 1996), 16 pp.

(Neill, 1990)

Institutional and Community Based Treatment History:

(Geller, 2000), 17 pp.

(Cutler, Bevilacqua, & McFarland, 2003), 16 pp.

(Drake, Green, Mueser, & Goldman, 2003), 10 pp.

Week 3:Jun 10 – 16

Thu, Jun 14

What Is Family? Complexity TheoryClosed and Open Systems General Systems TheoryFamily Systems Theory

What Is A Family System?What Is A Medical System?Tension between the Sciences: Psychiatry vs. Family Therapy

General Systems:

(Boulding, 1956), 12 pp.

Family Systems:

(Bavelas & Segal, 1982), 5 pp.

(J. Brown, 1999) [Bowen System], 9 pp.

(Auerswald, 1987)

(Rabstejnek, n.d.)

(Fingerman & Berman, 2000) [Gerontology; good review of family systems theory], 24 pp.

(As an informal, informational, non-academically sanctioned source, also skim: “Family Therapy” on Wikipedia)

Class interview and discussion with Professor Amy Spagnolo, Department of Psychiatric Rehabilitation, UMDNJ (Kean ’00)



Phase Two: StormWeek 4:Jun 17 to 23

Thu, Jun 21

The Family’s Crisis Moment

What does a psychiatric crisis look and feel like?

How does it confront and affect a family?

How does the system respond?

(Clarke & Winsor, 2010), 6 pp.

Video: Bellevue Inside Out (DeLeo, 2001), 75 mins.

Video clip from Bellevue Inside Out [5 minutes]

Guest Speaker: Crisis Response Team Manager [Invited: Mr. Ravi Majarajh, Supervisor, Middlesex County Screening Center, UMDNJ Behavioral Health Services, Piscataway, NJ]

Impact on Families and Providers

What are the effects on families and their individual members?

Through what phases does a family in the maelstrom of mental illness pass?

What difficulties do providers have working with families?

Families:

(Power & Dell Orto, 2004), Chapter 3, 19 pp.

(Moss-Coane, 2009a): Schizophrenia, The Family, and Society (15 minute video)

(Atkinson & Coia, 1995), p. 23-44 only.

(Jones, 2004) [Loss and Ambivalence], 15 pp.

(Karp & Tanarugsachock, 2000), 19 pp.

Mothers:

(Copeland & Heilemann, 2011), 11 pp.

(Johansson, Anderzen-Carlsson, Åhlin, & Andershed, 2010) [Sweden]



Fathers:

(Wiens & Daniluk, 2009), 8 pp.

Siblings:

(Lukens, Thorning, & Lohrer, 2002), 8 pp.

Grandparents:

(Seeman, 2009)

Providers:

(Kim & Salyers, 2008)

Phase Three: UnmooredWeek 5:Jun 24 to 30

Thu, Jun 28

Special Topics: Grief, Burden, Stigma, Violence

Grief:

What are the elements of family grief?

How does grief differ between the loss of loved one to death and to mental illness?

Theory of chronic sorrow.

How can and should providers respond?

(Mohr & Regan-Kubinski, 2001), 8 pp.

(Eakes, Burke, & Hainsworth, 1998)

2nd Web assignment: source, summarize, discuss article on Family Burden. Due Thu, Jul 5.

TERM PAPER AND PRESENTATION: Family Experience Interview Assignment:Assignment posted. Families assigned.Interview completion: Thu., Jul. 12First Draft: Thu,, Jul. 19Final Submission: Thu, Jul. 26Student Presentations: Thu., Aug. 2

Video: AACT-NOW 2009 Conference [6 minutes] (NAMI New Jersey, 2009)

Burden: (Cook, Cohler, Pickett, & Beeler, 1997) [Social

Speaker: Mr. Louis Ferrarro, President, and



Subjective burden?Objective burden?

How to address it?

Time], 6 pp.

(Doornbos, 2001) [24-7-52], 14 pp.

(H. Lefley, 1989)

others from Concerned Families of Greystone (in a class at Greystone Psychiatric Hospital).

Stigma:

Kinds of stigma

Manifestations

Effects of stigma

(Gray, 2002) [In psychiatry]

(Heflinger & Hinshaw, 2010), 7 pp.

(Larson & Corrigan, 2008), 4 pp.

Violence:

Family members as victims of domestic violence by a loved one

Loved ones as victims of excessive police force

Families’ reactions

(Vaddadi, Gilleard, & Fryer, 2002), 7 pp.

(Pyle, 2012) [33 min. and 5 min. videos about Kelly Thomas death]

(Baxter, 2012) [4 min. and 5 min. videos about NJ police]

(Ponto, 2012) [10 min. video about Laura Wilcox murder]

Week 6:Jul 1 to 7

Thu, Jul 5

Special Topic: Expressed Emotion

What is Expressed Emotion?

What is the cause of EE?

How is it addressed?

What is the family’s role and responsibility?

Is EE in case managers a

Overview:

(H. P. Lefley, 2009), Chapter 8, 15 pp.

Expressed emotion:

(G. W. Brown, Birley, & Wing, 1972), 17 pp.

(Hatfield, Spaniol, & Zipple, 1987), 5 pp.

MID TERM EXAM on the web. DUE, Mon, Jul 10.

TERM PAPER AND PRESENTATION: Family Experience Interview Assignment:Interview completion: Thu., Jul. 12First Draft: Thu,, Jul. 19Final Submission:

Video: Out of the Shadow (Smiley, 2005), 75 mins.



problem?(Hooley, 2004), 3 pp.

(Pharoah, Mari, Rathbone, & W., 2006) [Cochrane Review], 17 pp.

(Solomon, Alexander, & Uhl, 2010) [case managers], 8 pp.

(McDonagh, 2005)

Thu, Jul. 26.Student Presentations: Thu., Aug. 2

Special Topic: Ethnic and cultural considerations

A five-stage process model for Asian American families

Latino responses to family psychoeducation forSchizophrenia

Comparing rich and poor country responses

(Sauceda, 2011), 13 pp.

(Tyson & Flaskerud, 2009), 2 pp.

Response: Dealing with The System

System 101.

What are the barriers to family care in mental health?

(Power & Dell Orto, 2004), Chapter 8, 15 pp.

(Pyle, 2009), 2 pp.

(Jensen, 2004), 8 pp.

(Rose, Mallinson, & Walton-Moss, 2004), 8 pp.

(Askey, Holmshaw, Gamble, & Gray, 2009), 17 pp.

Phase Four: StabilizationWeek 7:Jul 8 to 14

Regaining equilibrium Returning to a new normality

Overview:

(Power & Dell Orto,

TERM PAPER AND PRESENTATION: Family Experience Interview



Thu, Jul 12 Coping, Burden, Resiliency, Social Support,

2004), Chapters 6 and 7

(H. P. Lefley, 2009), Chapters 2, 4, and 5

(Rose, Mallinson, & Walton-Moss, 2002)

(Saunders, 2003)

Assignment:Interview completion: DUE, Thu., Jul 12First Draft: Thu,, Jul. 19Final Submission: Thu, Jul. 26.Student Presentations: Thu., Aug. 2

Modality: Assertive Community Treatment and Families

(Chen, 2008)

Modality: Family Psychoeducation

What is family psychoeducation?

What forms can it take?

What are its recommended elements?

What are its objectives and standards?

(Lucksted, McFarlane, Downing, Dixon, & Adams, 2012), 15 pp.

(Bae & Kung, 2000), 7 pp.

(SAMHSA, 2009)

(Dixon et al., 2010) [PORT], 15 pp.

Video: Family Psychoeducation: Introductory Video [15 minutes] (New Hampshire-Dartmouth Psychiatric Research Center, 2009)

Review of SAMHSA Family Psychoeducation Toolkit

Modality: Family Consultation

What is family consultation?

What are effective models for it?

(Schmidt & Monaghan, 2012) [about IFSS in NJ], 16 pp.

Presentation: Joyce Benz, Director, Intensive Family Support Services of Union County

Modality: Family Intervention for Dual Disorders (FIDD)

(Mueser & Fox, 2002), 15 pp.

(Mueser et al., 2009)

(Gottlieb, Mueser, & Glynn, 2012)

Modality: Self-care Recognizing co-dependence

Support groups



MID TERM EXAMAvailable from Fri., Jul. 13, 12 noon to Mon., Jul. 16, 1 am)

Phase Five: MasteryWeek 8:Jul 15 to 21

Thu, Jul 19

Special Topic: Finance and Planning

What is a Planned Network Assistance Network?

(Hewitt et al., 2010), 12 pp.

(Obloy & Hutcheson, 2002), 4 pp.

3rd Web assignment: attend, evaluate, post on Psychoeducation Group visit. Others to comment online. Due, Jul 19.

TERM PAPER AND PRESENTATION: Family Experience Interview Assignment:First Draft: DUE, Thu,, Jul. 19Final Submission DUE, Thu, Jul. 26.Student Presentations:Thu., Aug. 2

Modality: Family Education What is family education? (H. P. Lefley, 2009), Chapter 9, 9 pp.

(NAMI, 2011) [Watch 10 minute video and review webpage]

(Dixon et al., 2011), 5 pp.

Guest Speaker: Family Education Specialist [Invited: Marilyn Goldstein, NAMI NJ Family to Family Education Program]

Special Topic: Confidentiality

HIPAA

Advanced Directives

(Marshall & Solomon, 2003), 5 pp.

(Solomon, Molinaro, Mannion, & Cantwell, 2012), 16 pp.

Recommendations for Providers

Is there a workable framework for family involvement in mental health services?

What are providers

(Marshall & Solomon, 2004), 2 pp.

(McGinty, Worthington, & Dennison, 2008) [About DD], 9 pp.



expected or mandated to do?

What can they or should they do?

How far apart are expectations and reality?

How can things be improved?

(Mottaghipour & Bickerton, 2005) [Pyramid of Family Care], 7 pp.

(Spaniol, Zipple, & Lockwood, 1992), 6 pp.

Week 9:Jul 22 to 28

Thu, Jul 26

System Topics: Family Advocacy

The founding of NAMI

Question: Is the public uninformed or misinformed?

Current issues:

Financial:SSI/SSD Levels LimitsResidential: Housing availability Housing supportsEtc.

(Finkle, 2004), 2 pp.

(Alliance for the Mentally Ill of San Mateo County [CA], 1985)

(Lamb & Oliphant, 1978)

(Lamb & Oliphant, 1979)

(Willis, 1982)

(Lamb, Hoffman, Hoffman, & Oliphant, 1986)

TERM PAPER AND PRESENTATION: Family Experience Interview Assignment:Final Submission DUE, Thu, Jul. 26.Student Presentations:Thu., Aug. 2

Video: When Medicine Got It Wrong (K. Cadigan & Murray, 2009), 75mins

Phase Six: TranscendenceWeek 10:Jul 29 to Aug 4

Thu, Aug 2

Response: Family Issues Training for Providers

What do providers need to know about families?

What should medical schools teach their students about families?

Review of UMDNJ Medical School Course Catalogue

(Power & Dell Orto, 2004), Chapter 12

(Riebschleger et al., 2008), 7 pp.

(Schmetzer & Lafuze, 2008), 4 pp.

TERM PAPER AND PRESENTATION: Family Experience Interview Assignment:Student Presentations DUE Thu., Aug. 2

Special Topic: Spirituality The effects of mental illness on families of faith.

(Reeves & Reynolds, 2009), 2 pp.

Video: People Say I’m Crazy (J. Cadigan, 2004),



The use of faith as a family intervention.

The role of spirituality in mental health treatment

(Rogers, Stanford, & Garland, 2012), 10 pp.

(Spaniol, 2002), 2 pp.

60 mins

Week 11:Aug 5 to 11

Thu, Aug 9

FINAL EXAM on the web, Due Mon Aug 13.

Course Catch Up and Review

Student Presentations

References

Alliance for the Mentally Ill of San Mateo County [CA]. (1985). History, 1974-1984.Askey, Ryan, Holmshaw, Janet, Gamble, Catherine, & Gray, Richard. (2009). What do carers of people with psychosis need from

mental health services? Exploring the views of carers, service users and professionals. Journal of Family Therapy, 31(3), 310-331. doi: 10.1111/j.1467-6427.2009.00470.x

Atkinson, Jacqueline M., & Coia, Denise A. (1995). Families coping with schizophrenia: A practitioner's guide to family groups. New York: John Wiley & Sons.

Auerswald, E. H. (1987). Epistemological Confusion in Family Therapy and Research. Family Process, 26(3), 317-330. doi: 10.1111/j.1545-5300.1987.00317.x

Bae, Sung-Woo, & Kung, Winnie Wai-Ming. (2000). Family intervention for Asian Americans with a schizophrenic patient in the family. American Journal of Orthopsychiatry, 70(4), 532-541. doi: 10.1037/h0087789

Bateson, Gregory D. , Haley, Jackson J., & Weakland, John. (1956). Toward a Theory of Schizophrenia. Behavioural Science, 1(4), 251-254.

Bavelas, Janet Beavin, & Segal, Lynn. (1982). Family systems theory: Background and implications. Journal of Communication, 32(3), 99-107.

Baxter, E. A., & Diehl, S. (1998). Emotional stages: Consumers and family members recovering from the trauma of mental illness. Psychiatric Rehabilitation Journal, 21(4).

Baxter, Christopher. (2012). Three years later, State police admit to using unreasonable force on NJ man's disabled son. [Online newspaper article with video]. Video 1: State police video captures troopers punching man repeatedly, longer version. Video 2: Father describes incident that found his son being punched repeatedly by state troopers, Newark Star-Ledger. Retrieved from http://www.nj.com/news/index.ssf/2012/06/a_long_wait_for_justice_three.html.

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Boulding, K. E. . (1956). General systems theory - the skeleton of science. Management Science, 2, 197-208. Brown, G. W., Birley, J. L. T., & Wing, J. K. (1972). Influence of family life on the course of schizophrenic disorders: A replication.

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Cutler, David L., Bevilacqua, Joseph, & McFarland, Bentson H. (2003). Four decades of community mental health: A symphony in four movements. Community Mental Health Journal, 39(5), 381.

DeDisto, M., Harding, C. M., McCormick, R. V., Ashikaga, T., & Brooks, G. W. (1995). The Maine and Vermont three-decade studies of serious mental illness: 2. Longitudinal course comparisons. British Journal of Psychiatry, 167, 338-342.

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Dixon, Lisa B., Dickerson, Faith, Bellack, Alan S., Bennett, Melanie, Dickinson, Dwight, Goldberg, Richard W., . . . Kreyenbuhl, Julie. (2010). The 2009 schizophrenia PORT psychosocial treatment recommendations and summary statements. Schizophrenia Bulletin, 36(1), 48-70. doi: 10.1093/schbul/sbp115

Dixon, Lisa B., Lucksted, Alicia, Medoff, Deborah R., Burland, Joyce, Stewart, Bette, Lehman, Anthony F., . . . Murray-Swank, Aaron. (2011). Outcomes of a randomized study of a peer-taught family-to-family education program for mental illness. Psychiatric Services, 62(6), 591-597. doi: 10.1176/appi.ps.62.6.591

http://www.youtube.com/watch?v=1nVEN1Reeaw

http://www.youtube.com/watch?v=1nVEN1Reeaw

http://www.peoplesayimcrazy.org/%5D



Doornbos, Mary Molewyk. (2001). The 24-7-52 job: Family caregiving for young adults with serious and persistent mental illness. Journal of Family Nursing, 7(4), 328-344. doi: 10.1177/107484070100700402

Drake, Robert E., Green, Alan I., Mueser, Kim T., & Goldman, Howard H. (2003). The history of community mental health treatment and rehabilitation for persons with severe mental illness. Community Mental Health Journal, 39(5), 427-440. doi: 10.1023/a:1025860919277

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Mottaghipour, Yasaman, & Bickerton, Annemaree. (2005). The Pyramid of Family Care: A framework for family involvement with adult mental health services. AeJAMH (Australian e-Journal for the Advancement of Mental Health), 4(3), No Pagination Specified.

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Mueser, Kim T., & Fox, Lindy. (2002). A family intervention program for dual disorders. Community Mental Health Journal, 38(3), 253-270.

Mueser, Kim T., Glynn, Shirley M., Cather, Corinne, Zarate, Roberto, Fox, Lindy, Feldman, James, . . . Clark, Robin E. . (2009). Family intervention for co-occurring substance use and severe psychiatric disorders: Participant characteristics and correlates of initial engagement and more extended exposure in a randomized controlled trial. Addictive Behaviors, 34(10), 867-877.

Muhlbauer, Susan A. (2002). Navigating the storm of mental illness: Phases in the family's journey. Qualitative Health Research, 12(8), 1076-1092.

NAMI. (2011). Family to family education program [webpage]. Arlington, VA: National Alliance on Mental Illness. Retrieved from http://www.nami.org/Template.cfm?Section=Family-to-Family&Template=/TaggedPage/TaggedPageDisplay.cfm&TPLID=4&ContentID=32973.

NAMI New Jersey. (2009). AACT-NOW! Conference [African American Community Takes New Outreach Worldwide]. North Brunswick: NAMI New Jersey [Retrieved from http://www.youtube.com/watch?v=rigeC7COnNc].

Neill, John. (1990). Whatever became of the schizophrenogenic mother? [Article]. American Journal of Psychotherapy, 44(4), 499. New Hampshire-Dartmouth Psychiatric Research Center. (2009). Family psychoeducation: Introductory video. Washington, DC:

Substance Abuse and Mental Health Services Administration. Retrieved from http://www.youtube.com/watch?v=68oBlF_5Aqs.

Obloy, Carol, & Hutcheson, Sigrid. (2002). Planned Lifetime Assistance Network: A new service model with promising results. Psychiatric Rehabilitation Journal, 25(4), 409-412.

Pharoah, F., Mari, J., Rathbone, J., & W., Wong. (2006). Family intervention for schizophrenia. Cochrane Database of Systematic Reviews(4). doi: 10.1002/14651858.CD000088.pub2.

http://www.youtube.com/watch?v=68oBlF_5Aqs

http://www.youtube.com/watch?v=68oBlF_5Aqs

http://www.youtube.com/watch?v=rigeC7COnNc%5D

http://www.nami.org/Template.cfm?Section=Family-to-Family&Template=/TaggedPage/TaggedPageDisplay.cfm&TPLID=4&ContentID=32973

http://www.nami.org/Template.cfm?Section=Family-to-Family&Template=/TaggedPage/TaggedPageDisplay.cfm&TPLID=4&ContentID=32973

http://www.mtv.com/videos/true-life-i-have-schizophrenia/1586145/playlist.jhtml

http://medicalnewstoday.healthology.com/hybrid/hybrid-autodetect.aspx?content_id=2716&focus_handle=schizophrenia-information&brand_name=medicalnewstoday%5D

http://medicalnewstoday.healthology.com/hybrid/hybrid-autodetect.aspx?content_id=2716&focus_handle=schizophrenia-information&brand_name=medicalnewstoday%5D

http://medicalnewstoday.healthology.com/hybrid/hybrid-autodetect.aspx?content_id=2717&focus_handle=schizophrenia-living-with&brand_name=medicalnewstoday%5D

http://medicalnewstoday.healthology.com/hybrid/hybrid-autodetect.aspx?content_id=2717&focus_handle=schizophrenia-living-with&brand_name=medicalnewstoday%5D



Ponto, Michelle. (2012). Families speak out 10 years after mental health tragedy [News10 Sacremento television news report about anniversary of Laura Wilcox murder]. Retrieved from http://auburn.news10.net/news/news/91233-families-speak-out-10-years-after-mental-health-tragedy

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experiences and needs of families of individuals with mental illness reflected in medical education guidelines? Academic Psychiatry, 32(119-126).

Rogers, Edward B., Stanford, Matthew, & Garland, Diana R. (2012). The effects of mental illness on families within faith communities. Mental Health, Religion & Culture, 15(3), 301-313. doi: 10.1080/13674676.2011.573474

Rose, Linda E., Mallinson, R. Kevin, & Walton-Moss, Benita. (2002). A grounded theory of families responding to mental illness. Western Journal of Nursing Research, 24(5), 516-536. doi: 10.1177/019394502400446397

Rose, Linda E., Mallinson, R. Kevin, & Walton-Moss, Benita. (2004). Barriers to family care in psychiatric settings. Journal of Nursing Scholarship, 36(1), 39-47. doi: 10.1111/j.1547-5069.2004.04009.x

Royal College of Psychiatry, . (2010). History of psychiatry timeline [video]. London: The Royal College of Psychiatry. Retrieved from http://www.rcpsych.ac.uk/training/students/historyofpsychiatry/psychiatrytimeline.aspx.

SAMHSA. (2009). Family psychoeducation evidence-based practices (EBP) kit. . Rockville, MD: Center for Mental Health Services, Substance Abuse and Mental Health Services Administration, U.S. Department of Health and Human Services. Retrieved from http://store.samhsa.gov/product/Family-Psychoeducation-Evidence-Based-Practices-EBP-KIT/SMA09-4423. .

Sauceda, Mary. (2011). Family Psychoeducation for Latino Populations with Mental Illness Living in the United States [unpublished academic paper]. University of Medicine and Dentistry of New Jersey. Scotch Plains, NJ.

Saunders, Jana C. (2003). Families living with severe mental illness: A literature review. Issues in Mental Health Nursing, 24(2), 175-198. doi: 10.1080/01612840305301

Schmetzer, Alan D., & Lafuze, Joan E. (2008). Overcoming stigma: Involving families in medical student and psychiatric residency education. Academic Psychiatry, 32(2), 127-131. doi: 10.1176/appi.ap.32.2.127

http://store.samhsa.gov/product/Family-Psychoeducation-Evidence-Based-Practices-EBP-KIT/SMA09-4423

http://www.rcpsych.ac.uk/training/students/historyofpsychiatry/psychiatrytimeline.aspx

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http://www.psychodyssey.net/?p=3943

http://www.psychodyssey.net/?page_id=84

http://auburn.news10.net/news/news/91233-families-speak-out-10-years-after-mental-health-tragedy




Schmidt, Lisa, & Monaghan, James. (2012). Intensive Family Support Services: A consultative model of education and support. American Journal of Psychiatric Rehabilitation, 15(1), 26-43. doi: 10.1080/15487768.2012.655226

Seeman, Mary V. (2009). The changing role of mother of the mentally ill: From schizophrenogenic mother to multigenerational caregiver. Psychiatry: Interpersonal and Biological Processes, 72(3), 284-294. doi: 10.1521/psyc.2009.72.3.284

Smiley, Susan. (2005). Out of the shadow [video documentary]. Los Angeles: Vine Street Pictures. [See: http://www.outoftheshadow.com/].

Solomon, Phyllis, Alexander, Leslie, & Uhl, Stacey. (2010). The relationship of case managers’ expressed emotion to clients’ outcomes. Social Psychiatry and Psychiatric Epidemiology, 45(2), 165-174. doi: 10.1007/s00127-009-0051-3

Solomon, Phyllis, Molinaro, Max, Mannion, Edie, & Cantwell, Kathleen. (2012). Confidentiality policies and practices in regard to family involvement: Does training make a difference? American Journal of Psychiatric Rehabilitation, 15(1), 97-115. doi: 10.1080/15487768.2012.655648

Spaniol, LeRoy. (2002). Spirituality and connectedness. Psychiatric Rehabilitation Journal, 25(4), 321-322. Spaniol, L., & Zipple, A. M. (1994). The family recovery process. Journal of California Alliance for the Mentally Ill, 5(2), 57-59.Spaniol, LeRoy, Zipple, Anthony M., & Lockwood, Doris. (1992). The role of the family in psychiatric rehabilitation. Schizophrenia

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Journal of Social Psychiatry, 48(2), 149-155. doi: 10.1177/002076402128783208Wiens, Sandra E., & Daniluk, Judith C. (2009). Love, loss, and learning: The experiences of fathers who have children diagnosed with

schizophrenia. Journal of Counseling and Development, 87, 339-348. Willis, Mary Jean. (1982). The impact of schizophrenia on families: One mother's point of view. Schizophrenia Bulletin, 8(4).

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Web/Project Activity

Brown, J. (1999). Bowen family systems theory and practice: Illustration and critique. Australian & New Zealand Family Therapy, 20 (2), 94-103.

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Cadigan, Katie, & Murray, Laura. (2009). When medicine got it wrong [Documentary Film]: imageReal Pictures, KQED & the Independent Television Service (TVS), with funding by the Corporation for Public Broadcasting.

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Dixon, Lisa B., Dickerson, Faith, Bellack, Alan S., Bennett, Melanie, Dickinson, Dwight, Goldberg, Richard W., . . . Kreyenbuhl, Julie. (2010). The 2009 schizophrenia PORT psychosocial treatment recommendations and summary statements. Schizophrenia Bulletin, 36 (1), 48-70. doi: 10.1093/schbul/sbp115

Dixon, Lisa B., Lucksted, Alicia, Medoff, Deborah R., Burland, Joyce, Stewart, Bette, Lehman, Anthony F., . . . Murray-Swank, Aaron. (2011). Outcomes of a randomized study of a peer-taught Family-to-Family Education Program for mental illness. Psychiatric Services, 62 (6), 591-597. doi: 10.1176/appi.ps.62.6.591

Doornbos, M. M. (2001). The 24-7-52 job: Family caregiving for young adults with serious and persistent mental illness. Journal of Family Nursing, 7 (4), 328-344. doi: 10.1177/107484070100700402

Drake, R. E., Green, A. I., Mueser, K. T., & Goldman, H. H. (2003). The history of community mental health treatment and rehabilitation for persons with severe mental illness. Community Mental Health Journal, 39 (5), 427-440. doi: 10.1023/a:1025860919277

Fingerman, K. L., & Berman, E. (2000). Applications of family systems theory to the study of adulthood. International Journal of Aging and Human Development, 51 (1), 5-29.

Finkle, Linda. (2004). Families: The forgotten resource for individuals with mental illness. Journal of Child and Adolescent Psychiatric Nursing, 17 (1), 3-4. doi: 10.1111/j.1744- 6171.2004.00003.x

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Geller, J. L. (2000). The last half-century of psychiatric services as reflected in psychiatric services. [Historical ArticleReview]. Psychiatric Services, 51 (1), 41-67.

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Hewitt, Amy, Lightfoot, Elizabeth, Bogenshutz, Matthew, McCormick, Katey, Sedlezky, Lori, & Doljanac, Robert. (2010). Parental caregivers’ desires for lifetime assistance planning for future supports for their children with intellectual and developmental disabilities. Journal of Family Social Work, 13 , 420-434.

Hooley, Jill M. (2004). Do psychiatric patients do better clinically if they live with certain kinds of families? Current Directions in Psychological Science, 13 (5), 202-205. doi: 10.1111/j.0963-7214.2004.00308.x

Jensen, Linda E. (2004). Mental Health Care Experiences: Listening to Families. Journal of the American Psychiatric Nurses Association, 10 (1), 33-41. doi: 10.1177/1078390303262054



Johansson, A., Anderzen-Carlsson, A., Åhlin, A., & Andershed, B. (2010). Mothers’ everyday experiences of having an adult child who suffers from long-term mental illness. Issues in Mental Health Nursing, 31 (11), 692-699. doi: doi:10.3109/01612840.2010.515768

Jones, D. W. (2004). Families and serious mental illness: Working with loss and ambivalence. British Journal of Social Work, 34 (7), 961-979. doi: 10.1093/bjsw/bch123

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Lamb, H. Richard, & Oliphant, Eve. (1979). Parents of schizophrenics: Advocates for the mentally ill. New Directions for Mental Health Services, 1979 (2), 85-92. doi: 10.1002/yd.23319790210

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http://www.psychodyssey.net/wp-content/uploads/2012/05/Family-Burden-and-Family-Stigma-in-Major-Mental-Illness.pdf



Lucksted, Alicia, McFarlane, William, Downing, Donna, Dixon, Lisa, & Adams, Curtis. (2012). Recent developments in family psychoeducation as an evidence ‐ based practice. Journal of Marital and Family Therapy, 38 (1), 101-121. doi: 10.1111/j.1752-0606.2011.00256.x

Lukens, E. P. , Thorning, H., & Lohrer, S. P. (2002). How siblings of those with severe mental illness perceive services and support. Journal of Psychiatric Practice, 8 (6), 354-364.

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Marshall, Tina, & Solomon, Phyllis. (2004). Provider contact with families of adults with severe mental illness: Taking a closer look. Family Process, 43 (2), 209-216. doi: 10.1111/j.1545-5300.2004.04302006.x

McGinty, Kaye, Worthington, Ralph, & Dennison, Whitney. (2008). Patient and family advocacy: Working with individuals with comorbid mental illness and developmental disabilities and their families. Psychiatric Quarterly, 79 (3), 193-203. doi: 10.1007/s11126-008-9075-1

Mohr, W. K., & Regan-Kubinski, M. J. (2001). Living in the fallout: Parents’ experiences when their child becomes mentally ill. Archives of Psychiatric Nursing, 15 (2), 69-77. doi: 10.1053/apnu.2001.22406

Moss-Coane, Marty [Interviewer]. (2009a). Schizophrenia, the family, and society [Webcast]. Philadelphia: WHYY.com. Distributed by Medical News Today. [Retrieved from http://medicalnewstoday.healthology.com/hybrid/hybrid-autodetect.aspx?content_id=2717&focus_handle=schizophrenia-living-with&brand_name=medicalnewstoday

Moss-Coane, Marty [Interviewer]. (2009b). Schizophrenia: What is it? [Webcast]. Philadelphia: WHYY.com. Distributed by Medical News Today. [Retrieved from http://medicalnewstoday.healthology.com/hybrid/hybrid-autodetect.aspx?content_id=2716&focus_handle=schizophrenia-information&brand_name=medicalnewstoday

http://medicalnewstoday.healthology.com/hybrid/hybrid-autodetect.aspx?content_id=2716&focus_handle=schizophrenia-information&brand_name=medicalnewstoday





Mottaghipour, Yasaman, & Bickerton, Annemaree. (2005). The Pyramid of Family Care: A framework for family involvement with adult mental health services. AeJAMH (Australian e-Journal for the Advancement of Mental Health), 4 (3), No Pagination Specified.

MTV. (2008). True life: I have schizophrenia [Video program]. New York: Viacom. Retrieved on May 25, 2012 from http://www.mtv.com/videos/true-life-i-have-schizophrenia/1586145/playlist.jhtml.

Mueser, Kim T., & Fox, Lindy. (2002). A family intervention program for dual disorders. Community Mental Health Journal, 38 (3), 253-270.

Muhlbauer, Susan A. (2002). Navigating the storm of mental illness: Phases in the family’s journey. Qualitative Health Research, 12(8), 1076-1092.

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NAMI New Jersey. (2009). AACT-NOW! Conference [African American Community Takes New Outreach Worldwide]. North Brunswick: NAMI New Jersey [Retrieved from http://www.youtube.com/watch?v=rigeC7COnNc].

New Hampshire-Dartmouth Psychiatric Research Center. (2009). Family psychoeducation: Introductory video. Washington, DC: Substance Abuse and Mental Health Services Administration. Retrieved from http://www.youtube.com/watch?v=68oBlF_5Aqs.

Obloy, Carol, & Hutcheson, Sigrid. (2002). Planned Lifetime Assistance Network: A new service model with promising results. Psychiatric Rehabilitation Journal, 25 (4), 409-412.

Pharoah, F., Mari, J., Rathbone, J., & W., Wong. (2006). Family intervention for schizophrenia. Cochrane Database of Systematic Reviews(4). doi: 10.1002/14651858.CD000088.pub2.

Ponto, Michelle. (2012). Families speak out 10 years after mental health tragedy [News10 Sacremento television news report about anniversary of Laura Wilcox murder]. Retrieved



from http://auburn.news10.net/news/news/91233-families-speak-out-10-years-after-mental-health-tragedy

Pyle, Thomas H. (2009). PsychOdyssey 101: The System [webpage]. PsychOdyssey Academy. Princeton, NJ: PsychOdyssey Services. Retrieved from http://www.psychodyssey.net/?page_id=84.

Pyle, Thomas H. (2012). The worst nightmare of every parent in the maelstrom [website article]. Retrieved from http://www.psychodyssey.net/?p=3943.

Reeves, Roy R., & Reynolds, Marti D. (2009). What is the role of spirituality in mental health treatment? Journal of Psychosocial Nursing and Mental Health Services, 47 (3), 8-9. doi: 10.3928/02793695-20090301-05

Riebschleger, Joanne, Scheid, Jeanette, Luz, Clare, Mickus, Maureen, Liszewski, Christine, & Easton, Monaca. (2008). How are the experiences and needs of families of individuals with mental illness reflected in medical education guidelines? Academic Psychiatry, 32 (119-126).

Rogers, Edward B., Stanford, Matthew, & Garland, Diana R. (2012). The effects of mental illness on families within faith communities. Mental Health, Religion & Culture, 15 (3), 301-313. doi: 10.1080/13674676.2011.573474

Rose, Linda E., Mallinson, R. Kevin, & Walton-Moss, Benita. (2004). Barriers to Family Care in Psychiatric Settings. Journal of Nursing Scholarship, 36 (1), 39-47. doi: 10.1111/j.1547-5069.2004.04009.x

Rose, Linda, Mallinson, R. Kevin, & Walton-Moss, Benita. (2002). A grounded theory of families responding to mental illness. Western Journal of Nursing Research, 24(5), 516-536. doi: 10.1177/019394502400446397Rose, Linda, Mallinson, R. Kevin, & Walton-Moss, Benita. (2002). A grounded theory of families responding to mental illness. Western Journal of Nursing Research, 24 (5), 516-536. doi: 10.1177/019394502400446397

Royal College of Psychiatry, . (2010). History of psychiatry timeline [video]. London: The Royal College of Psychiatry. Retrieved from http://www.rcpsych.ac.uk/training/students/historyofpsychiatry/psychiatrytimeline.aspx.

http://www.psychodyssey.net/?p=3943





SAMHSA. (2009). Family psychoeducation evidence-based practices (EBP) kit. . Rockville, MD: Center for Mental Health Services, Substance Abuse and Mental Health Services Administration, U.S. Department of Health and Human Services. Retrieved from http://store.samhsa.gov/product/Family-Psychoeducation-Evidence-Based-Practices-EBP-KIT/SMA09-4423. .

Sauceda, Mary. (2011). Family Psychoeducation for Latino Populations with Mental Illness Living in the United States [unpublished academic paper]. University of Medicine and Dentistry of New Jersey. Scotch Plains, NJ.

Saunders, Jana C. (2003). Families living with severe mental illness: A literature review. Issues in Mental Health Nursing, 24 (2), 175-198. doi: 10.1080/01612840305301

Schmetzer, Alan D., & Lafuze, Joan E. (2008). Overcoming stigma: Involving families in medical student and psychiatric residency education. Academic Psychiatry, 32 (2), 127- 131. doi: 10.1176/appi.ap.32.2.127

Schmidt, Lisa, & Monaghan, James. (2012). Intensive Family Support Services: A Consultative Model of Education and Support. American Journal of Psychiatric Rehabilitation, 15 (1), 26-43. doi: 10.1080/15487768.2012.655226

Seeman, M. V. (2009). The Changing Role of Mother of the Mentally Ill: From Schizophrenogenic Mother to Multigenerational Caregiver. Psychiatry: Interpersonal and Biological Processes, 72 (3), 284-294. doi: 10.1521/psyc.2009.72.3.284

Smiley, Susan. (2005). Out of the shadow [video documentary]. Los Angeles: Vine Street Pictures. [See: http://www.outoftheshadow.com/].

Solomon, Phyllis, Alexander, Leslie, & Uhl, Stacey. (2010). The relationship of case managers’ expressed emotion to clients’ outcomes. Social Psychiatry and Psychiatric Epidemiology, 45 (2), 165-174. doi: 10.1007/s00127-009-0051-3

Solomon, Phyllis, Molinaro, Max, Mannion, Edie, & Cantwell, Kathleen. (2012). Confidentiality Policies and Practices in Regard to Family Involvement: Does Training



Make a Difference? American Journal of Psychiatric Rehabilitation, 15 (1), 97-115. doi: 10.1080/15487768.2012.655648

Spaniol, LeRoy. (2002). Spirituality and connectedness. Psychiatric Rehabilitation Journal, 25 (4), 321-322.

Spaniol, L., & Zipple, A. M. (1994). The family recovery process. Journal of California Alliance for the Mentally Ill, 5 (2), 57-59.

Spaniol, LeRoy, Zipple, Anthony M., & Lockwood, Doris. (1992). The role of the family in psychiatric rehabilitation. Schizophrenia Bulletin, 18 (3), 341-348.

Tyson, Sheryl Y., & Flaskerud, Jacquelyn H. (2009). Family and community responses to mental illness. Issues in Mental Health Nursing, 30 (11), 718-719. doi: 10.1080/01612840902916169

Vaddadi, K. S., Gilleard, C., & Fryer, H. (2002). Abuse of carers by relatives with severe mental illness. International Journal of Social Psychiatry, 48 (2), 149-155. doi: 10.1177/002076402128783208

Wiens, S. E., & Daniluk, J. C. (2009). Love, loss, and learning: The experiences of fathers who have children diagnosed with schizophrenia. Journal of Counseling and Development, 87 , 339-348.

http://www.psychodyssey.net/wp-content/uploads/2012/05/The-role-of-the-family.pdf

http://www.psychodyssey.net/wp-content/uploads/2012/05/The-role-of-the-family.pdf

Documents

· Web viewBaxter, Christopher. (2012). Three years later, State police admit to using unreasonable force on NJ man's disabled son. [Online newspaper article with video]. Video 1: