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Co-Chairs: Helen Hurst and James Burton Programme Planning Committee: Harriet Williams, Paula Ormandy, Maarten Taal, Karen Jenkins, Ken Farrington, Louise Wells, Simon Ball, Roger Moore, Mick Kumwenda, Fiona Loud, Neluka Weerasooriya, Emily Horwill, Rob Lewis, Sharlene Greenwood, Alice Higgins

Wednesday 26th April

09:00 – 09:30

EMCC Registration and coffee for RNG members only

09:30 – 10:15

EMCC BDA Renal Specialist Group AGM (RNG members only)

10:30 – 12:00

EMCC

RNG Shared learning - facilitated discussion 1 and 2 Choice of topics: (You will be asked to choose 4 out of the following topics for discussion during these sessions)

Dietetic services to MDT low clearance clinic

Dialysis biochemistry review meetings

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Moving forward with patient resources – who is using what (internet and app resources)

Renal dietetic team leaders/managers challenges and threats to dietetic funding

MDT patient management eg joint physio and dietetic weight management clinics

Use of nutrition screening tools

Doing dietetic audit and research as part of your clinical role

Patient and public in improving dietetic services and research ideas

12:00 -13:00

Exhibition Hall Registration for all BRS conference delegates Exhibition open – Lunch available

13:00-14:00

Plenary Room Conference Opening Chair: Maarten Taal and Simon Ball Developing services to improve care – why other people resist your brilliant ideas and change, and what to do about them! Speaker - Steve Andrews: Associate Director Leadership & Change, East & North Hertfordshire NHS Trust

14:00-15:30

Plenary Room CPD: Patient Involvement Focus on the ‘How to’ get patients involved Positives and negatives Facilitator: Rick Fielding Speakers - Prof Martin Wilkie and patient

Studio 1 Industry Sponsored Symposium Polycystic Kidney Disease Sponsored by Otsuka

Studio 2 Industry Sponsored Symposium Patient adherence in chronic kidney disease: Addressing the key challenges in clinical practice

EMCC RNG Shared learning - facilitated discussion 3 and 4 Choice of topics:

Dietetic services to MDT low clearance clinic

Dialysis biochemistry review meetings

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representative Brian Gracey - Patient Representative Experience of Contributing to Service Design Cassie Brzoza - Patient Representative Feeling Empowered and Being Part of a Research Patient group Group Discussion

. Learning Outcomes:

To understand the value of patient participation to improve patient experience and clinical outcomes

To learn how to engage individuals and patient groups to participate in their care

To know how to work with patient groups to improve clinical services

Sponsored by Vifor Fresenius Medical Care Renal Pharma UK Ltd

Moving forward with patient resources – who is using what (internet and app resources)

Renal dietetic team leaders/managers challenges and threats to dietetic funding

MDT patient management e.g. joint physio and dietetic weight management clinics

Use of nutrition screening tools

Doing dietetic audit and research as part of your clinical role

Patient and public in improving dietetic services and research ideas

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15:30-16:00

Exhibition Hall Coffee Break

16:00 – 17:30

Plenary Room Delivering the Research Strategy

Chairs: Paula Ormandy and Phil Kalra

Improving the structure of UK Renal Research with collaborative partnerships

Speaker - Phil Kalra: UKKRC Chair, Consultant Nephrologist, Salford Royal Hospitals NHS trust

Developing MDT research capability, networks and patient participation Speaker - Paula Ormandy: BRS Vice President Research, Professor, University of Salford Bridging the Gap - Improving research delivery and accelerating

Studio 1 Industry Sponsored Symposium

Growing a home dialysis programme: are there inequalities in the choice of treatments and systems?

Why so few patients receive Home HD today?

Speaker: Dr Sunita Nair - Consultant Nephrologist - Shrewsbury and Telford Hospital NHS Trust

Objectives:

Demonstrate that renal professionals and patients may prefer a home dialysis option but still, only a minority

Studio 2 Industry Sponsored Symposium The challenges of hyperphosphataemia management Speakers TBC The aim of this session is to present new evidence on the management of hyperphosphataemia. To present what non adherence means to different HCPs (Pharmacist, Dietitian, Doctor) Sponsored by Vifor Fresenius Medical Care Renal Pharma UK Ltd

EMCC Share main ideas and learning points: how can the RNG help to move these ideas forward Group facilitator: Harriet Williams, Chair of the RNG

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access to treatment through partnership working

Speaker - Michael Nation: Development Director, Kidney Research UK

Identifying variation and supporting research with UK Renal Registry data examples

Speaker - Stephanie MacNeill: Research Fellow in Medical Statistics, UK Renal Registry, University of Bristol KQuIP update – Research for Quality Improvement Speaker - Louise Wells: Co-Chair KQuIP, BRS Vice President Clinical Development, Advanced Clinical Specialist Renal Dietitian, York Teaching Hospital NHS Foundation Trust

Exemplars of successful

of patients in the UK and in Europe are really offered HHD or PD

Show PD is stable but home dialysis can grow with Home HD

Identify some the barriers to sending patients home

Show that the economics of home dialysis are favourable to in centre

Can technology facilitate patient choice for Home HD?

Speaker - Dr Shashidhar Cherukuri: Clinical Director - Cross Hospital, The Royal Wolverhampton NHS Trust

Objectives:

Show traditional hd

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projects machines can be used at home but may not address identified barriers

Show that recent technology can address many of these barriers

Show that introduction of recent technology in uk and other countries could restart home hd programmes

Next technologies coming may continue to transform home dialysis

Why should more patients be given the choice of home HD?

Speaker - Janet Walker: Lead HHD nurse at Salford, Salford Royal NHS

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Foundation Trust.

Objectives:

Review the clinical benefits of more frequent and/or nocturnal hd

Demonstrate that large selection criteria can be applied to offer hhd

Share patient examples

How Home HD fits into our family life

Speaker - Giulietta Whitmore: Nxstage Patient

Objectives:

Show how important it is for a patient to be informed and to chose HHD therapy

Demonstrate that home dialysis can fit

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in a patient life and transform the burden of the disease

Show therapy needs to be adjusted not only to the patient but also to the daily life of a family

Sponsored by NxStage Medical

17.30-19.00

Exhibition Hall Welcome Reception in Exhibition (all) Speakers’ Dinner 19:30-21:30 – (Invited attendees)

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Thursday 27th April

07.00 REGISTRATION

07.45-08.45

Studio 1 Industry Sponsored Symposium TBC

Studio 2 Industry Sponsored Symposium

TBC

9.00 – 10.30

Plenary Room Keynote Address Chairs: Helen Hurst and James Burton Transforming the patient experience by bridging the inequality divide within the NHS Speaker - Ruth Passman: Deputy Director and Lead for Equality and Health Inequalities, NHS England Oral Abstract Presentations O01 - Acute Kidney Injury days or time to recovery a novel sensitive metric for AKI improvement Prasanna Hanumapura: Central Manchester Foundation Trust O02 - Socioeconomic Inequalities in community and hospital-acquired AKI Hilda Hounkpatin: University of Southampton O03 - Unequal access to home therapies for ethnic minority groups and people living in socially deprived Areas: Results from UK Renal Registry Matthew Tabinor: Royal Stoke University Hospital

10.30 -

Exhibition Coffee Break

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11.05

11.05 - 12.35

Moving Care Closer to Patients Chairs: Tanya Barnes and Paula Ormandy Improving access to home therapies Speaker - Natalie Borman: Consultant Nephrologist, Portsmouth Shared care Speaker - Martin Wilkie: Consultant Nephrologist, Sheffield Teaching Hospitals On my way home: delivering dialysis in primary care Speaker - James Burton: Honorary Consultant Nephrologist, University Hospitals of

CPD: Access to Vascular Access Facilitators: Nicola Thomas, Katie Fielding, Jacqueline Ross and Kristine Paule Learning Outcomes:

To understand the underlying anatomy and physiology of VA

To critically discuss the complications associated with VA and how to prevent these complications, especially examining best practice in cannulation of AVF / AVG

Introducing Creativity in Patient Care Supported by the Renal Nutrition Group Chairs: Fiona Willingham and Harriet Williams BP Management beyond the clinical: a community approach to salt reduction in a Bangladeshi population Speaker - Dr Ione de Brito-Ashurst: Royal Brompton Hospital Oral Abstract Presentations O07 - A Quality Improvement Project To Assess If Innovative Intensive Phosphate

Inequalities and Barriers to Accessing Renal Psychosocial Provision Supported by Renal Psychologists Network, Renal Social Workers and Renal Psychological Services Groups Chairs: Emma Coyne and Amanda Bevin Mapping of current renal psychosocial provision in UK Speaker - Emma Coyne: Consultant Clinical Psychologist, Nottingham University Hospitals NHS Trust Barriers and how they may be overcome in practise to ensure person centred care -

Workshop Finding your future in research Chairs: Helen Hurst and Kate McCarthy With representatives from CLAHRC: Carrie Hunt Research Fellow HEE: Bill Campbell Assistant Director KRUK: Elaine Davies Research Director BRS: Research Committee NIHR: Kieran Lee, Senior Programme Manager Aims:

Representatives describing pathways into research

Find out ‘what’s available’

Learn from those

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Leicester NHS Trust Oral Abstract Presentations O04 - Empowering patients: A 12 Month pilot transformation project for home, self and shared-care haemodialysis John Woods: Central Manchester Foundation Trust O05 - Home dialysis roadshow pilots - A partnership between dialysis units, patients and industry Fiona Loud: British Kidney Patient Association O06 - Provision of in-centre haemodialysis respite sessions for home haemodialysis

To examine best practice for assessment, monitoring and surveillance of AVF / AVG

Dietary Education Can Help Reduce Phosphate Levels To The Recommended Range In A Haemodialysis Population Eileen Duff: Queen Alexandra Hospital O08 - Handgrip strength index predicts survival in haemodialysis patients Tina Dilloway: Imperial College Renal & Transplant Centre, Hammersmith Hospital O40 - Handgrip strength assessment in renal inpatients and evaluation of new UK reference data for clinical application Helena Jackson, St George's University Hospital

case studies. Speakers: Gillian Chumbley, Psychotherapist/ Renal Counsellor, Cambridge University Hospitals NHS Foundation Trust, Jeff Cove: Consultant Clinical Psychologist, Royal Free London and Margaret Eyre: Renal Social Worker, City of York Council Addressing the inequalities in psychosocial service provision: what needs to change? Speaker: Amanda Bevin, Renal Counsellor, Kent & Canterbury Hospitals.

who have done it

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patients Trina Poleon: Queen Elizabeth Hospital, Birmingham

12.35 - 13.20

Exhibition Hall LUNCH

13.00-13.30

Workshop Writing for Publication Journal of Kidney Care

Facilitators: Karen Jenkins, Natasha Devan and Peter Ellis

13.20 - 14.20

Exhibition Hall MODERATED POSTER SESSION

14.30 - 16.00

Plenary Room Plenary Session Chairs: Ken Farrington and Andrea Devaney The National Picture of Care for Older People ‘Making it All Our Business’ Speaker - Martin Vernon: National Clinical Director for Older People and Person Centred Integrated Care Mallick Lecture Keep Calm and Ask the Renal Pharmacist Speaker - Caroline Ashley: Lead Pharmacist Renal Services, Royal Free London NHS Foundation Implementation of the European Guidelines for CKD in Older People Speaker - Ken Farrington: Consultant Nephrologist, Lister Hospital

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Oral Abstract Presentation: O09 - Decision-making for people with dementia and advanced kidney disease: qualitative findings from the conservative kidney management assessment of practice patterns study Shona Methven: North Bristol NHS Trust

16.00 - 16.30

Exhibition Hall Coffee Break

16.35 - 18.05

Partnership with patients: the inequality agenda Chairs: Louise Wells and Fiona Loud Kidney Health: Delivering Excellence Achievement through collaboration Speaker - Fiona Loud: Co-chair Kidney Health Partnership and BKPA Embedding patient reported experience into future QI Speakers - Paul Bristow: Director of Marketing and

Access to the best end of life care for kidney patients Chair: Edwina Brown and Mick Kumwenda Supporting patients withdrawing from dialysis Speaker - TBC

Oral Abstract Presentations O10 - Haemodialysis patients' understanding and preferences regarding advanced care planning Casey Murray: St

Mind the Gap – Tackling rehabilitation inequalities in kidney care Supported by Renal Rehabilitation Group Chairs: Hannah Young and Ellen O’Connor Welcome Hannah Young Renal Rehabilitation Needs in Pre-Dialysis and Transplant Patients Speaker - Ellen O’Connor: Senior Physiotherapist, Kings College London

CPD: Education committee Telemedicine- healthcare in the future? Facilitators: Seema Singh and Kate McCarthy Empowering patients to manage their kidney disease Speaker - Lyndon Johnson, Director Patient knows Best Our experience incorporating digital technology in Respiratory medicine Speaker - Dr Mel

Haemodialysis Chairs: TBC O13 – ‘Statistically Significant’ meaningless to the patient! Daniel March: University of Leicester O14 - A service evaluation of in-centre nocturnal haemodialysis programme in Leicestershire Katherine Hull: John Walls Renal Unit, Leicester O15 - Alternate day in-centre haemodialysis -

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Communications, BKPA and Karen Thomas: Head of Programmes, UK RenPaulal Registry Patient Activation and Patient Reported Outcome Measures - Implementation and benchmarking data from the UKRR Speaker - Rachel Gair: Person Centred Care Facilitator, UK Renal Registry ACE – Acceptance, Choice and Empowerment for pre -dialysis patients: Peer Educator based community project Speakers - Maz Ali: Peer Educator Co-ordinator, Kidney Research UK & Heart of England Foundation Trust (HEFT), Jyoti

George's University Hospitals NHS Trust O11 - Priorities MDT: A single centre experience of complex decision-making in renal patients approaching end of life Elizabeth Mumford: Royal Free Hospital O12 - Quality of life in frail older people with end stage renal disease - How does dialysis compare with conservative kidney care? Osasuyi Iyasere: John Walls Renal Unit, Leicester Debate: Patients with ESRD for conservative care should not be managed by

Rehabilitation of the Renal Inpatient Speaker - Laura Evans An Introduction to Frailty and Rehabilitation in End-Stage Renal Disease Speakers - Hannah Young: NIHR Research Physiotherapist, University Hospitals of Leicester Physiotherapy in Conservative Care- A Functional Challenge Speaker - Lindsey Kilshaw: The Royal Liverpool and Broadgreen University Hospitals NHS Trust Interactive clinical scenarios from a multidisciplinary perspective

Wickremasinghe, Consultant in Respiratory Medicine Telehealth platforms in remote management of Peritoneal dialysis Speaker - Sally Punzalan, Assistant matron Peritoneal Dialysis, Royal London Hospital Learning outcomes

Demonstrate an understanding of telemedicine and the variety of modalities it encompasses

Demonstrate an appreciation for the potential for innovation in healthcare delivery and improving patient experience

Demonstrate an

acceptability to renal patients and staff Janine Hawkins: University of Hertfordshire O16 - Haemodialysis trigger tool: Our experience over 3 Years after implementation Kelly White: Royal Derby Hospital O17 - Initiating haemodialysis twice weekly may protect native kidney function Raja Mohammed Kaja Kamal: Lister Hospital O18 - P-atients Not P-values: Minimum clinically important difference in the Incremental Shuttle Walk Test and Sit-to-Stand tests following 12 Week exercise

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Baharani: Consultant Physician and Nephrologist, Clinical Director, HEFT and Neerja Jain, Health Improvement Project Manager, Kidney Research UK

Nephrologists For - Lynne Russon: Consultant in Palliative Medicine, Leeds Teaching Hospital Against - Rob Lewis: Lead Research Consultant, Portsmouth Hospitals NHS Trust

Delegates will be encouraged to apply the knowledge gained in the session in interactive clinical scenarios and to apply it to their own areas of practice where applicable Summary Ellen O’connor

Learning outcomes:

Have an appreciation of the key barriers to rehabilitation across the CKD trajectory, including patients with frailty.

Develop an awareness of innovative clinical services and ongoing clinical,

understanding of the limitations of technology enabled care

intervention in non-dialysis CKD Thomas Wilkinson: Leicester Kidney Exercise Team

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research and commissioning needs aimed to address any inequalities.

Apply knowledge gained in the session in interactive clinical scenarios and areas of delegates own practice where applicable.

19.30 BANQUETING HALL - EAST MIDLANDS CONFERENCE CENTRE

CONFERENCE DINNER 19:30 – Drinks Reception 20:00 – Take Seats for Dinner 01:00 – Carriages Dress code: Smart – Black tie optional

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Friday 28th April

07.30 REGISTRATION & COFFEE

07.45 - 08.45

Studio 1 Industry Sponsored Symposium TBC

Studio 2 Industry Sponsored Symposium TBC

9.00 - 10.30

Plenary Room Plenary Session Chairs: Karen Jenkins and Sharlene Greenwood Should I just toughen up? How to deal with anti-science Speaker - Esther Crawley: NIHR Senior Research Fellow, University of Bristol Jane MacDonald Lecture Leading the UK Renal Registry through changing times

Speaker - Ron Cullen: Director, UK Renal Registry Oral Abstract Presentations O19 - The impact of Cystatin C-based estimates of glomerular filtration rate on chronic kidney disease diagnosis in Primary Care Adam Shardlow: Royal Derby Hospital O20 - The prevalence of lower level emotional and psychological support needs in patients with end stage renal disease: Results from a multi-centre patient survey Sarah Damery: University of Birmingham

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O21 - Validation of the UKRR/BKPA chronic kidney disease Patient Reported Experience Measure (CKD PREM) Janine Hawkins: University of Hertfordshire

10.30 - 11.30

Exhibition Hall Coffee Break MODERATED POSTER SESSION

11.30 – 13.00

BRS / BKPA Research Forum Chairs: Paula Ormandy and Fiona Loud Donna Lamping lecture Renal exercise research: Are we there yet? Speaker - Sharlene Greenwood: Lead Renal Physiotherapist, Kings College Hospital Prescribing patterns at time of AKI and long term outcomes: results from the ARID study. Speaker - Sue Shaw: Renal Pharmacist, Royal Derby Hospital The Renal Inpatient Nutrition

Putting transplant first: theory into practice - Supported by the BTS Chairs: Lisa Burnapp and Richard Baker Creating the future: building capacity for transplantation Speaker - Richard Baker: Consultant Nephrologist, Leeds University Hospital Debate This house believes that the quality of deceased donor organs currently available belies the dictum that ‘transplant first’ is the best choice for every patient

Development, implementation and evaluation of a community kidney service Chairs: Kathryn Griffith and Karen Jenkins Setting up and delivering the service Speakers - Neil Ashman: Nephrologist, Barts Health and Sec Hoong: Project Manager, Barts Health Primary pare perspective including development of the trigger tool Speakers - Sally Hull Staff and Patient Education Speakers - Helen Rainey and

Peritoneal dialysis update Chair: Simon Davies and Linsey Worsey Tailoring PD to the needs of the Older Patients Speaker - Edwina Brown: Consultant Nephrologist, Imperial College London PDOPPS update Speaker - Martin Wilkie: Consultant Nephrologist, Sheffield Teaching Hospitals The Challenges of managing and sustaining a large PD program Speaker - Sally Punzalan: Assistant Matron, Royal London Hospitals

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Screening Tool (iNUT): A Multicentre Validation Study Speaker - Helena Jackson: Renal Dietitian, St Georges University Hospital NHS Foundation Trust Would you give a kidney to a stranger? Altruism in a social context Speaker - Annie Mitchell: Clinical Director, School of Psychology, University of Plymouth Body Habitus, Physical Activity and Dialysis Requirement Speaker - Sivakumar Sridharan: Acting Consultant Nephrologist, Lister Hospital

For - Derek Manas, Professor of Surgery, Newcastle Against - Simon Ball, Consultant nephrologist, Queen Elizabeth Hospital, Birmingham Case study: Living donor kidney transplantation: imaginative sharing of kidneys how far can we go? Speakers - Aisling Courtney: Consultant Nephrologist, Belfast and Jen Lumsdaine: Living Donor Coordinator, NHS Lothian Oral Abstract Presentations O22 - A designated young adult service with a youth worker increases engagement of teenagers and young adults with kidney transplants and advanced renal failure, and impacts favourably on clinical

Nicola Thomas: Nursing Team Oral Abstract Presentations O37 - A Qualitative Analysis Of Patient And Staff Perceived Advantages, Facilitators And Barriers With Regards To Shared-Care Haemodialysis (SHC)? Elizabeth Garthwaite, Leeds Teaching Hospital O38 - How Supportive Are Clinical Teams To Patients Self-Managing? Rachel Gair, UK Renal Registry O39 - Measurement Properties Of Patient-reported Outcome Measures Used In Patients With Chronic Kidney Disease: A Systematic Review Olalekan Lee Aiyegbusi, University of Birmingham

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outcomes Paul Harden: Oxford Kidney Unit and Transplant Centre O23 - Improving understanding of heath beliefs and immunosuppression adherence in long-term kidney transplant patients through pharmacist-led consultation and medicines optimisation Hayley Wells: Guy's and St. Thomas NHS Foundation Trust

13.00 – 14.00

Exhibition Hall LUNCH & EXHIBITION

14.00 – 15.00

Patient factors in kidney care and transplantation: latest results from the ATTOM study Chairs: Rommel Ravanan and Simon Ball Socio-demographic Barriers to Living Donor Kidney

Understanding inequalities in Kidney Care Chairs: Hugh Rayner and Cathy Johnson How do socioeconomic factors affect dialysis outcomes? Lessons from DOPPS Speaker - Hugh Rayner:

Quality Improvement Chairs: Louise Wells and Rob Lewis Kidney Quality Improvement Partnership (KQuIP)– activity update

Speakers: Louise Wells: Advanced Clinical Specialist

Digital and AKI Oral Abstract session Chair: Helen Hurst and James Burton O24 - Does Gold Standard communication from secondary To primary care following An

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Transplantation Speaker - Diana Wu: Research Fellow, University of Edinburgh Understanding inequity in access to transplantation in the UK Speaker - Rishi Pruthi: Registrar, North Bristol NHS Trust Health Literacy prevalence, associations and outcomes in advanced kidney disease Speaker - Dominic Taylor: Research Fellow (ATTOM study), UK Renal Registry, Bristol “Quality of life and other patient-reported outcomes following kidney transplantation: Insights from ATTOM”. Speaker - Andrea Gibbons: Postdoctoral Research Fellow, Royal Holloway, University of

Consultant Nephrologist, Heart of England NHS Foundation Trust Oral Abstract Presentations - Dialysis O32 - Inequality of dialysis access: lived experiences of people receiving haemodialysis in Nigeria Chidiebere Ekuma, University of Salford O34 - An Interim Analysis of Patient Engagement In The Renal Transplant Clinic Rachel Fraser, Freeman Hospital O35 -Risk prediction for acute kidney injury in acute medical admissions in the UK: the risk study Nicholas Cole, Epson And St Hellier Hospitals NHS Trust

Renal Dietitian, York Teaching Hospital NHS Foundation Trust, Co-Chair KQuIP and Graham Lipkin: Consultant Kidney Specialist, Clinical Vice President of the Renal Association and Co-Chair KQuIP KQuIP – Home therapies Speaker - Richard Fluck: Consultant Renal Physician, Derby Teaching Hospitals NHS Foundation Trust

inpatient's Acute Kidney Injury affect their outcomes at six months? Clemency Nye: Gloucestershire NHS Foundation Trust O25 - Effect of acute kidney injury on chronic kidney disease progression and proteinuria: Baseline results from the ARID Study Nicholas Selby: Royal Derby Hospital O26 - Effect Of weekend admission on mortality associated with severe Acute Kidney Injury in England: A propensity score matched, population-based study – Nitin Kolhe: Royal Derby Hospital O27 - Children and Young people With CKD: exploring views on desirable components for a developmentally appropriate, care-management

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London Alternative approaches to kidney allocation: what do we stand to gain?

Speaker - Bernadette Li: Department of Health Services Research and Policy, London School of Hygiene and Tropical Medicine

O36 - The effect of a 3 month intradialytic exercise programme on the uraemic symptoms and quality of life of patients undergoing maintenance haemodialysis Alysha Careless, University Of Leicester

App Veronica Swallow: University of Leeds O28 - Exploring the use of remote and digital technology to deliver a streamlined dietetic service to haemodialysis patients Tina Dilloway: Imperial College Healthcare NHS Trust O29 - Using IT To 'Nudge' healthcare professional decision-making and improve patient experience in the advanced kidney disease clinic Partha Das: Sussex Kidney Unit

15.00 Close Bus to Station leaving at 15.15