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Welcome To EPIS 2017 Presenters: David Palacios, Novartis, Switzerland Christoph Thalheim, EMSP, Belgium Elena Ruiz de la Torre, EHA, Spain

Welcome To EPIS 2017 · Welcome To EPIS 2017 Presenters: David Palacios, Novartis, Switzerland Christoph Thalheim, EMSP, Belgium Elena Ruiz de la Torre, EHA, Spain

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Page 1: Welcome To EPIS 2017 · Welcome To EPIS 2017 Presenters: David Palacios, Novartis, Switzerland Christoph Thalheim, EMSP, Belgium Elena Ruiz de la Torre, EHA, Spain

Welcome To EPIS 2017

Presenters: David Palacios, Novartis, Switzerland

Christoph Thalheim, EMSP, Belgium

Elena Ruiz de la Torre, EHA, Spain

Page 2: Welcome To EPIS 2017 · Welcome To EPIS 2017 Presenters: David Palacios, Novartis, Switzerland Christoph Thalheim, EMSP, Belgium Elena Ruiz de la Torre, EHA, Spain

Communications & Advocacy

Unique expertise and experiences

Page 3: Welcome To EPIS 2017 · Welcome To EPIS 2017 Presenters: David Palacios, Novartis, Switzerland Christoph Thalheim, EMSP, Belgium Elena Ruiz de la Torre, EHA, Spain

Communications & Advocacy

Open and transparent

Page 4: Welcome To EPIS 2017 · Welcome To EPIS 2017 Presenters: David Palacios, Novartis, Switzerland Christoph Thalheim, EMSP, Belgium Elena Ruiz de la Torre, EHA, Spain

Communications & Advocacy

Mutual respect and trust

Page 5: Welcome To EPIS 2017 · Welcome To EPIS 2017 Presenters: David Palacios, Novartis, Switzerland Christoph Thalheim, EMSP, Belgium Elena Ruiz de la Torre, EHA, Spain

Communications & Advocacy

• Respecting and understanding

the patient community

perspective

• Expanding access to our

medicines

• Conducting responsible clinical

trials

• Recognizing the importance of

transparency and reporting

Delivered by actions and reflected in our

‘Commitment to Patients & Caregivers’ “

Page 6: Welcome To EPIS 2017 · Welcome To EPIS 2017 Presenters: David Palacios, Novartis, Switzerland Christoph Thalheim, EMSP, Belgium Elena Ruiz de la Torre, EHA, Spain

Thank you

Page 7: Welcome To EPIS 2017 · Welcome To EPIS 2017 Presenters: David Palacios, Novartis, Switzerland Christoph Thalheim, EMSP, Belgium Elena Ruiz de la Torre, EHA, Spain

Christoph Thalheim

EMSP, Belgium

Page 8: Welcome To EPIS 2017 · Welcome To EPIS 2017 Presenters: David Palacios, Novartis, Switzerland Christoph Thalheim, EMSP, Belgium Elena Ruiz de la Torre, EHA, Spain

What we hope to achieve today

• Understand better how developments in digital

technologies are revolutionising healthcare and helping

give patients a stronger voice in healthcare decision-

making

• Work together to come up with ideas on how to break

down resistance to accepting the value of the patient

voice

• Agree which ideas have the greatest chance of success

Page 9: Welcome To EPIS 2017 · Welcome To EPIS 2017 Presenters: David Palacios, Novartis, Switzerland Christoph Thalheim, EMSP, Belgium Elena Ruiz de la Torre, EHA, Spain

Patient involvement is key across the

medicines lifecycle

Input into clinical trials

Feedback on informed consent

and patient materialsProvide insights into the total costs

of living with a disease

Gather evidence of

real-world experience

on treatmentProvide input into

regulatory discussions

Advocate for optimal

treatment and care

Provide insights into value of a

medicine from a patient perspective

Page 10: Welcome To EPIS 2017 · Welcome To EPIS 2017 Presenters: David Palacios, Novartis, Switzerland Christoph Thalheim, EMSP, Belgium Elena Ruiz de la Torre, EHA, Spain

There is resistance to accepting the patient

voice across the medicines lifecycle

Page 11: Welcome To EPIS 2017 · Welcome To EPIS 2017 Presenters: David Palacios, Novartis, Switzerland Christoph Thalheim, EMSP, Belgium Elena Ruiz de la Torre, EHA, Spain

We need to work together to break down

this resistance

xx

x

Page 12: Welcome To EPIS 2017 · Welcome To EPIS 2017 Presenters: David Palacios, Novartis, Switzerland Christoph Thalheim, EMSP, Belgium Elena Ruiz de la Torre, EHA, Spain

EPIS members at the central hub

Raj

Mahapatra

ASIF

Nicola

Bedlington

EPF

Christina

Fasser

Retina

International

Neil

Johnson

CROÍ

Susanna

Palkonen

EFA

David

Palacios

Novartis Pharma AG

Christoph

Thalheim

EMSP

Elena Ruiz

de la Torre

EHA

Page 13: Welcome To EPIS 2017 · Welcome To EPIS 2017 Presenters: David Palacios, Novartis, Switzerland Christoph Thalheim, EMSP, Belgium Elena Ruiz de la Torre, EHA, Spain

EPIS members at the regional hubs

FRANCE ITALYGERMANY

Birgit Bauer

EMSP

Ottfrid Hillmann

EUROPSO

Giuseppe de Carlo

EFA

Denis Costello

EURORDIS

Page 14: Welcome To EPIS 2017 · Welcome To EPIS 2017 Presenters: David Palacios, Novartis, Switzerland Christoph Thalheim, EMSP, Belgium Elena Ruiz de la Torre, EHA, Spain

Realising the potential of digital

technologies: Innovative multisite format

Portugal

Germany

Spain

Italy

France

Norway Austria

Switzerland

Sweden

Hungary

Croatia

Finland

Czech

Republic

IRELANDBosnia and

Herzegovina,

Croatia,

Serbia and

Montenegro

Netherlands

…and more!

Page 15: Welcome To EPIS 2017 · Welcome To EPIS 2017 Presenters: David Palacios, Novartis, Switzerland Christoph Thalheim, EMSP, Belgium Elena Ruiz de la Torre, EHA, Spain

… And welcome to our

livestream viewers from

across Europe!

Page 16: Welcome To EPIS 2017 · Welcome To EPIS 2017 Presenters: David Palacios, Novartis, Switzerland Christoph Thalheim, EMSP, Belgium Elena Ruiz de la Torre, EHA, Spain

Elena Ruiz de la Torre

EHA, Spain

Page 17: Welcome To EPIS 2017 · Welcome To EPIS 2017 Presenters: David Palacios, Novartis, Switzerland Christoph Thalheim, EMSP, Belgium Elena Ruiz de la Torre, EHA, Spain

Agenda

Science fiction in healthcare

Digital reinvention: Rethinking healthcare

Setting the scene: Overcoming resistance to accepting

the value of the patient voice – exploring differing

perspectives

Ideathon

EPIS vote on SMART solution

Presentation of the most promising ideas

Page 18: Welcome To EPIS 2017 · Welcome To EPIS 2017 Presenters: David Palacios, Novartis, Switzerland Christoph Thalheim, EMSP, Belgium Elena Ruiz de la Torre, EHA, Spain

Join the Conversation!

#EPIS2017

Ask questions and

connect with other attendees

across Europe

?

Page 19: Welcome To EPIS 2017 · Welcome To EPIS 2017 Presenters: David Palacios, Novartis, Switzerland Christoph Thalheim, EMSP, Belgium Elena Ruiz de la Torre, EHA, Spain

Follow the Conversation

www.EPIS2017.com EPIS NEWSFEED

Page 20: Welcome To EPIS 2017 · Welcome To EPIS 2017 Presenters: David Palacios, Novartis, Switzerland Christoph Thalheim, EMSP, Belgium Elena Ruiz de la Torre, EHA, Spain

Housekeeping

Mobile devices to silent

Page 21: Welcome To EPIS 2017 · Welcome To EPIS 2017 Presenters: David Palacios, Novartis, Switzerland Christoph Thalheim, EMSP, Belgium Elena Ruiz de la Torre, EHA, Spain

We wish you an inspiring and productive meeting