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What Does Research Tell Us About Self- Determination and Self Direction Services? International Conference on Self-Determination Kevin J. Mahoney May 4, 2009

What Does Research Tell Us About Self-Determination and Self Direction Services?

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What Does Research Tell Us About Self-Determination and Self Direction Services?. International Conference on Self-Determination Kevin J. Mahoney May 4, 2009. Receiving Paid Assistance at 9 Months. Non-Elderly Adults. Percent. Children. Elderly Adults. **. **. **. **. **. **. - PowerPoint PPT Presentation

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Page 1: What Does Research Tell Us About Self-Determination and Self Direction Services?

What Does Research Tell Us About Self-Determination and Self Direction Services? International Conference

on Self-Determination

Kevin J. MahoneyMay 4, 2009

Page 2: What Does Research Tell Us About Self-Determination and Self Direction Services?

2

Receiving Paid Assistance at 9 Months

95

76

92 94 94 94

80

68 64

79 79

65

91

82

0

20

40

60

80

100

Non-Elderly Adults

*, ** Significantly different from control group at .05, .01 level, respectively.

Percent

T C AR

Elderly Adults Children

T C FL

T C NJ

T C AR

T C FL

T C NJ

T C FL

**** ** **

****

Page 3: What Does Research Tell Us About Self-Determination and Self Direction Services?

3

Very Satisfied with Overall Care Arrangements

68

505657

68

52

71

27

54

42

35 37

4748

0

10

20

30

40

50

60

70

80 Non-Elderly Adults

*, ** Significantly different from control group at .05, .01 level, respectively.

Percent

T C AR

Elderly Adults Children

T C FL

T C NJ

T C AR

T C FL

T C NJ

T C FL

**

**** **

****

Page 4: What Does Research Tell Us About Self-Determination and Self Direction Services?

4

Had an Unmet Need for Help with Personal Care

41

34

55

37

47

58

4543

3633

4446

2726

0

10

20

30

40

50

60Non-Elderly Adults

*, ** Significantly different from control group at .05, .01 level, respectively.

Percent

T C AR

Elderly Adults Children

T C FL

T C NJ

T C AR

T C FL

T C NJ

T C FL

**

**

**

*

*

Page 5: What Does Research Tell Us About Self-Determination and Self Direction Services?

5

Contractures Developed or Worsened

26

14

2022

27

13

9

2018

16

9

2528

25

0

10

20

30

40 Non-Elderly Adults

*, ** Significantly different from control group at .05, .01 level, respectively.

Percent

T C AR

Elderly Adults Children

T C FL

T C NJ

T C AR

T C FL

T C NJ

T C FL

**

**

Page 6: What Does Research Tell Us About Self-Determination and Self Direction Services?

6

Very Satisfied with Way Spending Life These Days

43

64

38

56

36

4752

29

23

50

21

37

2825

0

20

40

60

80 Non-Elderly Adults

*, ** Significantly different from control group at .05, .01 level, respectively.

Percent

T C AR

Elderly Adults Children

T C FL

T C NJ

T C AR

T C FL

T C NJ

T C FL

****

**

****

**

*

Page 7: What Does Research Tell Us About Self-Determination and Self Direction Services?

7

Informal Caregivers Very Satisfied with Overall Care

*,**,*** Significantly different from control group at .10 (*), .05 (**), or .01 (***) level.

4852

4243

30 32

22

0

20

40

60

PercentAdults Children

T T T TC C C C

AR FL NJ FL

***

******

***

Page 8: What Does Research Tell Us About Self-Determination and Self Direction Services?

8

Effects on Medicaid PCS/HCBS Expenditures—Year 1

Significantly higher for treatment group in each state

In Arkansas and New Jersey, mainly because control group received substantially less care than authorized

In Florida, mainly because children and adults with developmental disabilities got larger benefit increases after assigned to treatment group

Page 9: What Does Research Tell Us About Self-Determination and Self Direction Services?

9

Effects on non-PCS Medicaid Expenditures

Other Medicaid costs moderately lower for treatment group in each age group in all three states

The best example: In Arkansas, compared to control group,

treatment group had 40% fewer admissions to nursing facilities in second year

Page 10: What Does Research Tell Us About Self-Determination and Self Direction Services?

10

Effect on Total Medicaid Costs

In Arkansas, no significant difference by end of year two Reductions in nursing facilities and other waiver

costs off-set increase in personal care costs

In New Jersey and Florida, costs up 8-12%, but states learned how to control costs

Higher costs in Arkansas and New Jersey due to failure of traditional system

Page 11: What Does Research Tell Us About Self-Determination and Self Direction Services?

11

Lessons Learned from the Replication States Implementing Self-Direction Programs

with Flexible Individual Budgets: Lessons Learned from the Cash & Counseling Replication States

Available on the Cash & Counseling homepage: www.cashandcounseling.org

Page 12: What Does Research Tell Us About Self-Determination and Self Direction Services?

12

Final Results from Arkansas’ 10 Years of Experience Under a 1115 Waiver Cost are 13.8% higher than if agency

delivered $6,728,320.87, including administrative cost

of $2,874,400.00) However, 89.4% more care was delivered

through the consumer-directed model If the agency were to deliver this same

quantity of services, it would have increased the agency personal care expenditures by $33,935,955.31