What we say 2013

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Our key messages for 2013

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  • 1What we say Our key messages for 2013

    mariecurie.org.uk

  • 2 3

    Welcome to the new, improved What we sayThis booklet is to help you get more people engaged with the work of our charity.

    Its filled with key messages and powerful statistics which you can use to bring the Marie Curie story to life for a wide range of audiences.

    So whether youre talking one-to-one, speaking at a meeting, writing a letter or delivering a presentation, this is the place to start.

    Your support in delivering simple and consistent messages about our services will play a vital role in helping us reach more people with terminal illnesses and their families.

    Thank you.

    Marie Curie in a nutshell 4

    Our hospices in a nutshell 6

    Key stats 8

    The cost of our services 20

    Common questions 22

    Marie Curie and Macmillan Nurses 24

    The Big Blue Button 26

    ?

  • 4 5

    Marie Curie in a nutshellNeed to explain exactly what our charity does? Then use one of these descriptions as your starting point. Theyre for most circumstances, apart from when your target audience is based in an area where theres a Marie Curie Hospice.

    Recommended description Given the choice, most of us would want to die at home, surrounded by the people and things we cherish. Marie Curie Cancer Care makes this possible.

    Our nurses give free hands-on care to people with all terminal illnesses in their own homes, and vital emotional support to their loved ones. We allow families to make the most of the precious time they have left together.

    But the sad fact is, every five minutes someone in the UK dies without the care they need at the end of their life. Thats why we urgently need to reach more people and why were counting on your support.

    Use this recommended description as the basis for things like fundraising speeches and presentations.

    Shorter description Marie Curie Cancer Care gives people with all terminal illnesses the choice to die at home. Our nurses provide them and their families with free hands-on care and emotional support, in their own homes, right until the end.

    Longer description Given the choice, most of us would want to die at home, surrounded by the people and things we cherish. Marie Curie Cancer Care makes this possible.

    Our nurses provide free hands-on care for people with all terminal illnesses in their own homes, and vital emotional support for their loved ones. Whether someone has cancer, heart failure, dementia or another disease, we do whatever it takes to make things easier. This could mean relieving their pain, helping them in and out of bed, or just answering those troubling questions.

    We give comfort and take away the fear. We allow families to make the most of the precious time they have left together. And were there day or night, until the very end.

    But the sad fact is, every five minutes someone in the UK dies without the care they need at the end of their life. Thats why we urgently need to reach more people and why were counting on your support. Whether you give your money, time or simply your voice, youll help us make peoples final days as good as they can possibly be.

    Use this short description as the basis for things like event emails where space is tight.

    Use this long description as the basis for things like pitches to companies.

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    Shorter description The Marie Curie Hospice, is here for people with serious illnesses and their families. Whether someone comes in to stay or visits regularly, we give them the excellent care they expect and the best quality of life they could wish for.

    Longer description Given the choice, most of us would want to be cared for at home or in a hospice if we were seriously ill. Marie Curie Cancer Care makes this possible.

    Our hospice here in provides free specialist medical care and therapies for people with serious illnesses, and emotional support for their families, giving them the best possible quality of life. Whether someone has cancer, heart failure, dementia or another disease, they can come here to stay or visit regularly for pain relief, physio, complementary therapies and more. Its a warm, welcoming place where loved ones can be together. And because our hospice works hand in hand with our nurses in the community, we can also help people return to their own homes and be looked after there.

    But the sad fact is, every five minutes someone in the UK dies without the care they need at the end of their life. Thats why we urgently need to reach more people and why were counting on your support. Whether you give your money, time or simply your voice, youll make all the difference to people with serious illnesses in your area.

    Our hospices in a nutshellIs your audience based in an area where theres a Marie Curie Hospice? Do you need to explain the service to them clearly and succinctly? Then use one of these descriptions as your starting point.

    Recommended description Given the choice, most of us would want to be cared for at home or in a hospice if we were seriously ill. Marie Curie Cancer Care makes this possible.

    Our hospice here in provides free specialist medical care for those with serious illnesses, and emotional support for their families, giving them the best possible quality of life. People can come here to stay or visit regularly for pain relief, physio, complementary therapies and more. And because our hospice works hand in hand with our nurses in the community, we can also help people return to their own homes and be looked after there.

    But the sad fact is, every five minutes someone in the UK dies without the care they need at the end of their life. Thats why we urgently need to reach more people and why were counting on your support.

    Use this recommended description as the basis for things like fundraising speeches and presentations.

    Use this short description as the basis for things like website pages where space is tight.

    Use this long description as the basis for things like leaflets.

  • 8 9

    You can find more details, graphs and slides about all our key stats on the Big Blue Button on our intranet.

    63%

    of people would want to die in the comfort of their own homes.

    Research shows that given the choice

    Key stats

    Source: Local Preferences and Place of Death in Regions within England 2010, National End of Life Care Intelligence Network

    For more information on this stat, see the Big Blue Button. Fact: About 92,000 people who need palliative care each year in England dont get any. This equates to about 110,000 people across the UK. Source: Palliative Care Funding Review

    Every 5 minutesEvery 5 minutes

    someone in the UK dies without the care they need at the end of their life.

    Marie Curie Cancer Care.Fact: About 92,000 people who need palliative care each year in England dont get anySource: Palliative Care Funding Review. This equates to about 110,000 people across the UK.Q743

    someone in the UK dies without the care they need at the end of their life.

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    Across the UK today

    55%

    of people die in hospital the place many of us say wed least want to be.

    Source: Office National Statistics (ONS), General Register Office (GRO) and Northern Ireland Statistics and Research Agency (NISRA) place of death statistics for 2008-2010

    Source: The impact of the Marie Curie Nursing Service on place of death and hospital use at end of life, Chitnis et al, November 2012, Nuffield Trust

    7 out of 10 people

    cared for by Marie Curie Nurses die in their own homes.

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    9 out of 10 people

    cared for by Marie Curie Nurses die in their own home, a care home or a hospice.

    Source: The impact of the Marie Curie Nursing Service on place of death and hospital use at end of life, Chitnis et al, November 2012, Nuffield Trust

    Source: The impact of the Marie Curie Nursing Service on place of death and hospital use at end of life, Chitnis et al, November 2012, Nuffield Trust

    to be admitted to hospital in an emergency at the end of their lives.

    3x less likelyPeople who are cared for by Marie Curie Nurses are

    Key stats: hospital admissions and costs

    People who are cared for by Marie Curie Nurses are

    3x less likelyto be admitted to hospital in an emergency at the end of their lives

    When someone is cared for at home by Marie Curie Nurses it saves the NHS an average of

    1,140in hospital costs

    Q743 Marie Curie Cancer Care.

    Source: The impact of the Marie Curie Nursing Service on place of death and hospital use at end of life, Chitnis et al, November 2012, Nueld Trust.

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    There are 2,000 Marie Curie Nurses out in the community covering

    96%of the UKs population

    Source: The impact of the Marie Curie Nursing Service on place of death and hospital use at end of life, Chitnis et al, November 2012, Nuffield Trust*Please note, this is not an overall saving for the NHS. See the Big Blue Button for more info.

    Source: Marie Curie Cancer Care populations of health organisations which have a contract with the Marie Curie Nursing Service

    When someone is cared for at home by Marie Curie Nurses, it saves the NHS an average of

    1,140in hospital costs.*

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    25%

    of the total

    We care for people with all terminal illnesses at the end of their lives. The number of Marie Curie Nursing Service patients who have a diagnosis other than cancer now makes up as much as

    Source: The impact of the Marie Curie Nursing Service on place of death and hospital use at end of life, Chitnis et al, November 2012, Nuffield Trust

    Source: Marie Curie Cancer Care

    Cancer Heart failure

    Chronic obstructive

    airway diseaseDementia

    The most common

    illnesses that Marie Curie

    patients have are...

  • 18 19

    Key stats: providing care and the cost of our services

    25%of the total

    We care for people with all terminal illnesses at the end of their lives. The number of Marie Curie Nursing Service patients who have a diagnosis other than cancer now

    makes up as much as

    This year (2012/13) we expect to care for

    435pays for someone with a terminal

    illness to stay in a Marie Curie

    Hospice for 24 hours, so they can

    receive the hands-on care

    they need in their final days

    5pays for 20 bereavement booklets for young people whove lost

    someone close to them

    20pays for a Marie Curie Nurse to

    look after someone with a terminal illness for one hour, in the comfort of their own home

    4,760will cover the cost of Marie Curies entire nursing service across the UK for one hour

    35pays for a slide sheet, used by Marie Curie

    Nurses to move terminally ill

    people safely in bed

    130pays for someone with a terminal illness to attend Day Therapy at a

    Marie Curie Hospice,

    benefitting from gentle exercise, an art class and more

    180pays for a Marie Curie Nurse to

    look aftersomeone with a terminal illness

    for a full nine-hour shift, in the comfort of their own home

    19,000pays for a Marie Curie Nurse to care for people with terminal illnesses for a whole year

    7,800people with terminal illnesses

    through our 9 hospices

    28,000people with terminal illnesses at home

    Marie Curie Cancer Care. Q743Source: Marie Curie Cancer Care

    .

    Source: Marie Curie Cancer CareSource: The impact of the Marie Curie Nursing Service on place of death and hospital use at end of life, Chitnis et al, November 2012, Nueld Trust

    Source: Where people die (1974-2030): past trends, future projections and implications for care, Palliative Medicine 2008; 22: 33-41, Barbara Gomes and Irene J Higginson, Cicely Saunders International/Department of Palliatives Care, Policy and Rehabilitation, Kings College, London

    Source: Marie Curie Cancer Care

    17%

    Over the next 20 years the

    number of deaths in England and

    Wales will rise by

  • 20 21

    19,000 pays for a Marie Curie Nurse to care for people with terminal illnesses for a whole year.

    4,460 will cover the cost of Marie Curies entire nursing service across the UK for one hour.

    435 pays for someone with a terminal illness to stay in a Marie Curie Hospice for 24 hours, so they can receive the hands-on care they need in their final days.

    180 pays for a Marie Curie Nurse to look after someone with a terminal illness for a full nine-hour shift, in the comfort of their own home.

    20 pays for a Marie Curie Nurse to look after someone with a terminal illness for one hour, in the comfort of their own home.

    5 pays for 20 bereavement booklets for young people whove lost someone close to them.

    The cost of our services

    35 pays for a slide sheet, used by Marie Curie Nurses to move terminally ill people safely in bed.

    130 pays for someone with a terminal illness to attend Day Therapy at a Marie Curie Hospice, benefitting from gentle exercise, an art class and more.

  • 22 23

    ?Common questionsHow much of Marie Curies funding comes from the NHS? We pay 50 per cent of the cost of running our nursing service, and 60 per cent of the cost of operating our nine hospices. The NHS covers the remainder.

    Is there a charge for Marie Curies services? No. All our services are completely free for people with terminal illnesses and their families.

    How do you get support from a Marie Curie Nurse or Hospice? Someone with a terminal illness, or a loved one, can request support from Marie Curie through their GP, district nurse, hospital nurse or consultant.

    Do we do any research? Yes. Our teams research better ways of delivering palliative care to people with terminal illnesses.

    How much does Marie Curie spend on admin? From every 1 someone gives us, we spend more than 68p directly on care for people with terminal illnesses and research into better ways of supporting them. The remainder helps us raise the next 1.

    How can I find out more about Marie Curie? Head to mariecurie.org.uk or call us free on 0800 716 146.

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    If someone asks the difference between a Marie Curie Nurse and a Macmillan Nurse, please refer to the information here. Always answer in a positive way which recognises that both types of nurses are just as valuable in their own right.

    Macmillan Nurses support people with cancer, while Marie Curie Nurses care for those with all terminal illnesses including cancer. Our nurses look after people in their own homes, usually in the final weeks or days of their lives. Macmillan Nurses offer advice and information to those with cancer from the time they are diagnosed onwards.

    PS Please bear in mind that Macmillan Cancer Support offers other services besides nursing care in the community.

    Who they nurse

    What they offer

    When they visit patients

    Who funds them

    Who they nurse

    What they offer

    When they visit patients

    Who funds them

    Marie Curie NursesPeople with cancer

    Advice and information to people with cancer, from the time theyre diagnosed. Emotional support for families

    Usually for 1 hour at a time

    100% NHS after initial funding (up to 3 years) by Macmillan

    People with all terminal illnesses

    Hands-on care to people with terminal illnesses in their homes, usually in the final weeks/days of their lives. Emotional support for the whole family

    Usually for 9 hours overnight or 36 hours in the day/evening

    Approximately 50% Marie Curie, 50% NHS

    and Macmillan Nurses

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    The Big Blue Button Want a handy glossary o...