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WINTER 2018
A L ZHEI ME R S O CIET Y O F WI NDS O R & E S SEX CO UNT Y NE WS LETT E R
A SPECIAL BREAKFAST
This year, at our 2nd annual World Alzheimer's Day Breakfast, on September 21, we heard from Shannon Manery, who wrote a memoir, depic ng
what it is like living with and caring for someone who has demen a, using her father’s diary as inspira on.
We honoured a remarkable man, Don Martel, who cycled over 7000 kilometers North to South across Canada star ng in Inuvik and ending at Point Pelee Na onal Park. Don raised $20,000 in support of our local programs.
We honoured Marjorie Brown who bravely became the face of this terrible disease to bring awareness and change both locally and provincially. Ms. Brown is now our newest Honourary Director.
UNIFOR Local 195 presented us with a most generous dona on of $10,000 to be used in support of direct client care within our Day Away Program and Respite Care. Program.
Lastly, we awarded, Judy Jenner a very deserving volunteer, the Others Before Self Award. Judy touches the lives of our clients with the gi of her me and talents in our Day Away Program each week.
So many community supporters joined together at The Windsor Club to share World Alzheimer’s Day with us, a day in which Alzheimer’s organiza ons around the world concentrate their efforts on raising awareness about Alzheimer’s disease and other demen as. We hope you will join us next year.
All photos credited to Snapd Windsor
www.windsor.snapd.com
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Sally Benne Pat Soulliere, Board Chair
FROM THE BOARD CHAIR AND CEO Mission
To alleviate the personal and social consequences
of Alzheimer’s disease and other dementias.
Role
The role of the Alzheimer Society of Windsor and Essex County is to collaborate with all levels of the organization and our local community in order to foster excellence in services, education and to
support research.
Vision
A world without Alzheimer’s disease and other dementias.
Board of Directors
Mr. Pat Soulliere, Chair Ms. Karen Hall, Vice Chair Mr. Arvind Arya, Treasurer Mrs. Gay Wrye, Secretary
Ms. Claire Bebbington Mr. Marty Beneteau
Mr. Mike Boyko Mr. Rick Farrow Dr. Sheila Horen Mr. Bill Marcotte
Mrs. Patricia McMahon Ms. Sarah Mushtaq Ms. Marilyn Villalta
Chief Executive Officer
Mrs. Sally Bennett Olczak
Address 2135 Richmond St.
Windsor, ON N8Y 0A1
Telephone 519-974-2220
Fax 519-974-9727
Website AlzheimerWindsor.com
ASWE is partially funded by:
We are excited today to share with you a very recent development towards making much needed change in our society for those living with demen a. On September 5th the Alzheimer Society of Canada officially launch the first‐ever Canadian Charter of Rights for People with Demen a.
This landmark Charter is the culmina on of over a year's work by the Society's Advisory Group of people living with demen a, whose members represent different walks of life from across the country. With the number of Canadians with demen a expected to hit nearly one million in less than 15 years, the Advisory Group set out to define a set of seven explicit rights to give a greater voice and authority to those with demen a.
The Charter will help people with demen a as well as their families challenge situa ons where they experience s gma, are treated unfairly, discriminated against, or are denied access to appropriate care.
Sally Benne Olczak Chief Execu ve Officer
Pat Soulliere Board Chair
The Charter empowers Canadians with demen a to self‐advocate while also ensuring that the people and organiza ons that support them know and protect their rights. These include the right:
to be free from discrimina on of any kind.
to benefit from all of Canada's civic and legal rights.
to par cipate in developing and implemen ng policies that affect their life.
to access support and opportuni es to live as independent and engaged ci zens in their community.
to be informed and supported so they can fully par cipate in decisions affec ng their care and life, from the point of diagnosis to pallia ve and end‐of‐life care.
to expect that professionals involved in all aspects of their care are trained in demen a and human rights and are accountable to uphold these rights.
to access effec ve complaint and appeal procedures when their rights are not protected or respected.
The Alzheimer Society is asking all Canadians to champion this new Charter. The Charter will not only help combat the ongoing s gma associated with demen a, but also help inform a rights‐based approach to the development of services and supports for Canadians with demen a.
CHARTER OF RIGHTS FOR PEOPLE WITH DEMENTIA
Read the full Charter and learn how you can get involved at alzheimer.ca/Charter.
Cold weather is upon us.
If you are worried about keeping your loved one safely warm, a good rule of thumb is to make sure exposed skin is covered. Hats and scarves are key. Make it a point to stay ac ve and warm this winter.
CAREGIVER TIP
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GIVING A VOICE TO THOSE AFFECTED BY DEMENTIA
THE ALZHEIMER SOCIETY ACTION SUMMIT OUR LOCAL VOICE!
On Wednesday, October 3rd, 2018, the Alzheimer Society of Ontario hosted the Alzheimer Society Ac on Summit in Toronto.
Educa on and Support Coordinator Andy Berthiaume was fortunate to travel to the summit with two very special people – June and Cleveland MaGee.
The Ac on Summit was a great opportunity for people with lived experience and local Society staff
from across the province to come together to discuss the issues and priori es that ma er most.
We are proud to say that with more than 40 people with lived experience were in a endance for the Summit. Those with lived experience officially outnumbered staff presence that day!
The strong lived experience voice was invaluable to the conversa ons of the day and will allow us to move toward advocacy priori es that are responsive to the challenges and needs of those impacted most ‐ people living with demen a and care partners: people like June and Cleveland.
Thanks again to June and Cleveland for a ending the summit and providing their insights and feedback.
# # #
Tom Noble has been a volunteer at the Alzheimer Society since 2009. Tom decided to volunteer with the organiza on a er both he and his late wife Janet were supported by our services.
“I volunteer to give back and it makes me feel great. The services and staff at the Alzheimer Society are phenomenal and do great things within the community.”
Thank you Tom for all you do.
DINING WITH DEMENTIA: A FUN NEW PROGRAM
We have exci ng news!
The Caesars Windsor Cares program has donated $5,000.00 to enable us to launch Alzheimer Society Windsor‐Essex’s Dining with Demen a Lunch Series program.
Lunches will be scheduled at local restaurants twice a month, one in Windsor and the other will be in the county.
These lunches will be ‘demen a friendly’ – they will take place in quiet, relaxing places, and servers will be trained to provide a friendly customer service experience.
NEW PROGRAM COMING SOON!
Menus will be redesigned for simplicity. A guest speaker will be scheduled to speak at each lunch about a specific topic. Topics will include wellness, financial planning and other important demen a‐related subjects.
Dates and loca ons for the lunches will be communicated in the next few months.
We would like to thank Caesars Windsor Cares again for the wonderful dona on to launch this series.
Kingsville second Wednesday of each month. Windsor last Wednesday of each month.
1:00 p.m. - 3:00 p.m.
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FUND DEVELOPMENT AND COMMUNITY ENGAGEMENT
NOVEMBER IS MAKE A WILL MONTH. With the rising de of demen a and other brain related diseases, it is crucial that Canadians complete a valid and up‐to‐date Will and Powers of A orney for Property and Personal Care before any poten al capacity issues arise. We are urging everyone to complete their Will and Powers of A orney.
With demen a on the rise it is staggering to know that:
Over 70% of Canadians do not have Powers of A orney for Care and Property.
Over 50% of Canadians do not have a Will.
Only about 15% of those who do a Will leave a charitable gi in their estate plans ‐ despite this being an excellent way to save tax.
At the Alzheimer Society of Windsor & Essex we believe that comple ng your Will and Powers of A orney makes you a Super Hero. Why? Because by doing your Will and including a charitable gi to the Alzheimer Society you can:
protect those you care about
protect your hard‐earned assets
save tax (and who doesn’t want to save tax?)
gain peace of mind
Want to learn more and be a Super Hero?
Get into ac on ‐ contact Peggy Winch and ask for our free Super Hero Estate Planner & Guide today. Call 519 ‐974 ‐2220 ext. 225.
We hope you will join us at one of our events!
JANUARY I S ALZHE IMER AWARENESS MONTH
WED
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The Caboto Club Charity Pasta Night! Why cook when you can eat out for a cause?
4:00p.m. ‐ 7:00p.m. | 2175 Parent Ave. Windsor
$10 ‐ Adults | $9 ‐ Seniors | $7 ‐ Kids 5 – 12 $11 ‐ take out
FRI
18 WED
9 Memory Café ‐ Kingsville A Coffee Shop environment for persons with demen a and their care partners. 1:00p.m.‐3:00p.m. | No registra on necessary Kingsville Community Centre 1860 Division RD North, Kingsville
WED
30
Memory Café ‐ Windsor As part of the usual Memory Café, a special presenta on on Leaving a Legacy & Estate Planning will be offered. All are invited! 1:00p.m.—3:00p.m. | Ojibway Nature Centre
This annual event has become the largest trivia event in Southwestern Ontario and the largest live quiz fundraiser in North America. Call for ckets 519‐974‐2220 ext. 225.
Voted last years Biz X Most Wonderful Event of the year.
TEAM of 8 ‐ $360.00