www.dipex.org

Sue Ziebland

DIPEx Research Group University of Oxford

DIPEx (personal experiences of health and illness)

• An electronic multimedia resource available on the internet www.dipex.org and DVD

• ‘Stand alone’ qualitative interview studies of illness experiences

• Q&As and evidence based information

Andrew’s story

Completed DIPEx sites:• depression prostate cancer bowel cancer

• breast cancer cervical screening breast screening

• testicular cancer lung cancer ovarian cancer

• cervical cancer living with dying epilepsy

• heart failurehypertension heart attack

• chronic pain pregnancy dementia (carers)

• congenital heart disease (parents) antenatal

screening

• RA

DIPEx research methods

• literature and field review, advisory panel • wide sample of people from all over UK - at

different stages and from different backgrounds

• 40-50 interviews at home• unstructured and semi-structured sections• digital video and audio recorded• Ethics approval for broadcasting, teaching

and research

Who uses DIPEx?

• Approx one million hits per month• Patients, their families and the general public• Teachers – medical students, nurses, social science,

research methods and health policy• Researchers (secondary analysis – archive for social

science & history of medicine) • Health professionals & policy makers (what issues are

important to patients) - NICE• Patient representatives (e.g. on committees)

www.youthhealthtalk.org

• teenage cancer • sexual health• diabetes• epilepsy

DIPEx funding( more needed!)

• Ethical funding policy – no advertising on site• Funding for individual ‘conditions’ from health

charities (e.g. ARC, Alzheimer’s Society, Cancer Research UK, BUPA Foundation, BHF, Macmillan) and trusts (e.g. Citrina, Welton and Warburg)

• Department of Health, Section 64, National Screening Committee

• Donations to the DIPEx charity

More information fromThe Website:

www.dipex.org&

DIPEx, University Department of Primary Health Care

Institute of Health SciencesOxford OX3 7LF

Tel + 44 (0) 1865 226672Email: info@dipex.org