DiabetesMine Patient Voices Survey
A Patient-Led Initiative to Improve Tools & Care
Nov. 15, 2013
Patient Voices Respondents: by Diabetes Type
N=796
Type 1Type 2 (No insulin)Type 2 (Taking insulin)Caregiver of a child with diabetesOther
©2013 DiabetesMine Patient Voices Survey
Learnings Summary
1. Outcome Priorities are not aligned (i.e. not patient-driven)
2. Cost/ Insurance Access is a huge barrier 3. Adherence/ Compliance is significantly
impacted by design factors
©2013 DiabetesMine Patient Voices Survey
Priorities Not Aligned
©2013 DiabetesMine Patient Voices Survey
What Quality of Life Improvements Are Most Important?
Feel less alone
Fewer shots
Fewer finger pricks
Improvement in mental state
Less daily hassle
Feel in control of my own care
Fewer glucose highs/lows
0 100 200 300 400 500 600 700
Very ImportantExtremely Important
N=654
©2013 DiabetesMine Patient Voices Survey
I Want…
“More consistency, fewer blood glucose spikes and lows”
“A complication-free lifespan”
“Better quality of life”
©2013 DiabetesMine Patient Voices Survey
Outcome Measures That Insurers Should Focus On
Other quality of life measures
Medication records
Mental health assesments
Fewer hospital visits
Improvements in daily glucose results
Frequency/severity of complications
Improvements in A1C
0 50 100 150 200 250 300 350 400
Very UsefulUseful
©2013 DiabetesMine Patient Voices Survey
N=487
Access is a Barrier
©2013 DiabetesMine Patient Voices Survey
Influence of Insuranceon Diabetes Technology Choices
N=705
Extremely/very influential Somewhat/Slightly In-fluentialNot at all influential
©2013 DiabetesMine Patient Voices Survey
Biggest Frustrations with Current Diabetes Tools
N=649
©2013 DiabetesMine Patient Voices Survey
Too hard to use
Doesn't improve control
Complicate my life
Unappealing/uncomfortable
Too much hassle
Too expensive
0 100 200 300 400 500
AgreeStrongly Agree
Biggest Drawbacks of a CGM
Out of pocket costs too highTime investmentAnnoying alarmsUncomfortable to wearNeed easier way to ana-lyze
N=630
©2013 DiabetesMine Patient Voices Survey
“I’d like to get more accurate devices, at better prices”
©2013 DiabetesMine Patient Voices Survey
Unworkable Tools
©2013 DiabetesMine Patient Voices Survey
Frequency of Downloading Data from Monitoring Devices
Never Less than
once a month
Once a month 2-3
times a month
Weekly
0
50
100
150
200
250
300
From my finger stick meterFrom my CGM
N=657
©2013 DiabetesMine Patient Voices Survey
Use of Diabetes Logging Software or Mobile Apps
Often (once a month or more)Sometimes (every few months)Rarely (a few times per year)Only before a doctor's appointmentNever
N=639
©2013 DiabetesMine Patient Voices Survey
Use of Smartphone Apps for Diabetes Care
Diet/food ap
p
Exerci
se tr
ackin
g app
Glucose
logg
ing apps
Other
04080
120160200
N=589
N=589
©2013 DiabetesMine Patient Voices Survey
“I hate it that… interfaces aren’t user-friendly”
©2013 DiabetesMine Patient Voices Survey
“… results aren’t accurate enough to rely on.”
©2013 DiabetesMine Patient Voices Survey
“… neither software nor hardware work together – and are not integrated with Mac and iOs.”
©2013 DiabetesMine Patient Voices Survey
“Vendors should quit with the proprietary shenanigans and make technology that will actually help patients and give them access
to their own medical information!”
©2013 DiabetesMine Patient Voices Survey
Changes Needed to Make Diabetes Logging Data Valuable to Patients
Guaranteed doctor/CDE would review and discuss
Better ability to view/share data
If all data was in one place
If program could suggest a plan of action
If program spotted trends
0 100 200 300 400 500
AgreeStrongly Agree
©2013 DiabetesMine Patient Voices Survey
N=551
What Patients Want
©2013 DiabetesMine Patient Voices Survey
What Would Most Motivate You to Put Extra Effort Into D-Management?
"Gamification"
Working in a group/team
Having a diabetes mentor
Incentive program
Positive feedback
0 50 100 150 200 250 300 350 400
LikelyVery Likely
N=609
©2013 DiabetesMine Patient Voices Survey
“I’d like to receive positive feedback for my efforts to control glucose levels regardless of the results.”
©2013 DiabetesMine Patient Voices Survey
“I’d like to have a system that holds patients accountable, while
assisting me to make treatment adjustments in a timely manner.”
©2013 DiabetesMine Patient Voices Survey
“I want to free up brain cells, with less D-math — and tools designed
to not look like a scary medical device, which would also help with
the emotional/social issues.”
“To get there I need affordable, comfortable, discrete, and accurate
devices that minimize hassle.”
©2013 DiabetesMine Patient Voices Survey