2
A Costly Health System Failure
• Avoidable Hospital Admissions 2x more likely for asthma and diabetes in US vs. average of 30 developed countries in Organization for Economic Cooperation and Development
“The United States does not do well in preventing costly hospital admissions for chronic conditions, such as asthma or complications from diabetes, which should normally be managed through proper primary care.”
(Organization for Economic Cooperation and Development. Expensive healthcare is not always the best healthcare, says OECD’s Health at a Glance [Internet]. Paris: OECD; 2009 Aug [cited 2010 Jan 3)]).
vs.
3
Determinants of Health and Their Contribution to Premature Death
Schroeder, NEJM 357; 12
15%
5%
10%
40%
30% SocialEnvironmentalMedicalBehavioralGenetic
4
Patient–Driven Care
• “Others have struggled to find a proper definition of patient-centeredness. Three useful maxims that I have encountered are these:” – “The needs of the patient come first.”– “Nothing about me without me.”– “Every patient is the only patient.”
Donald M. Berwick, What 'Patient-Centered' Should Mean: Confessions Of An Extremist Health Affairs, 28, no.4 (2009):w555-w565
• New definition: Patients largely produce their own outcomes!
5
Behavior Change is Key…
6
Why Do Our Patients Struggle?
(“strong” endorsements by physicians)
poor self-discipline 53.2%
poor will-power 50.0%
not scared enough 36.9%
not intelligent enough 16.3%
Polonsky, Boswell and Edelman, 1996
7
Unachievable Self-Care Plans
• Unclear- “I’m supposed to start exercising.”
• Unrealistic- “My doctor told me to lose 10 lbs before the
next visit.”- “Taking care of my diabetes means I’m
supposed to eat perfectly and never cheat.”
8
The Overarching Approach
The patient must… BELIEVE SELF-MANAGEMENT IS
WORTHWHILE: The patient must feel there is hope and benefit in doing a good job (GOALS)
KNOW WHAT TO DO: The patient must have a clear and achievable plan for self-management (ACTION PLANS)
9
Time to Practice (1)
• Pair-up• Choose roles (one person be the provider, one person be
the patient). – You will get to switch roles
• 5 minutes for each section• Not “role-playing” – pick something real from your life• Follow instructions closely
10
Persuasion Techniques
• Agree that patient should make the change• Explain why the change is important• Warn of consequences of not changing• Advise patient how to change• Reassure patient that change is possible• Disagree if patient argues against change• Tell the patient what to do• Give examples of others (other patients, peers,
celebrities) who have made similar healthy changes
11
How did that feel?
12
“Why wouldn’t a person with a chronic condition do everything in their power to live long and feel well?”
13
14
15
WHAT DOESN’T WORK
• Labeling patient as “unmotivated,” “unwilling to change,” or “non-compliant”
• Taking sides in the patient’s ambivalence- Giving advice- Transmitting knowledge unasked- Threatening bad outcomes
- “you’ll go blind if you don’t do what I tell you.”
- Urging more willpower “- if you would just try harder…”
• Caring more than the patient…
16
17
Unachievable Self-Care Plans
• Unclear- “I’m supposed to start exercising.”
• Unrealistic- “My doctor told me to lose 10 lbs before the
next visit.”- “Taking care of my diabetes means I’m
supposed to eat perfectly and never cheat.”
18
The Overarching Approach
GOALS: BELIEVE SELF-MANAGEMENT IS WORTHWHILE: The patient must feel there is hope and benefit in doing a good job.
19
FACTS AND FICTIONS
1. Diabetes is the leading cause of adult blindness, amputations and kidney failure. True or false?
________________________________________A. False. Poorly controlled diabetes is
the leading cause of adult blindness, amputations and kidney failure.
20
Feelings Can Fuel Change
What are the patient’s feelings? Think of a patient you’ve seen recently Have you ever asked how he/she feels about
his/her diabetes? What “bugs” that person the most about his/her
diabetes??? What is working for that person in their current
lifestyle? (what is the function in the “dysfunction”)
ASK! (then listen)
21
Behavior Change Strategies
1. Begin with your patient’s interests• Agenda must be personally meaningful for
the patient• Start with questions, not information:
• “What questions should we make sure to address today?”
• “What’s been driving you crazy about your chronic condition?”
22
Behavior Change Strategies
1. Begin with your patient’s interests
2. Believe that your patient is motivated to live a long, healthy life• You are both on the same side
23
Behavior Change Strategies
1. Begin with your patient’s interests
2. Believe that your patient is motivated to live a long, healthy life
3. Help your patient determine exactly what they might want to change• Identify and respect ambivalence• Present “the bouquet”
24
Time to Practice (2)
• Switch roles• 5 minutes• Again, no “role playing”• Follow instructions closely
25
The “Journalist” Intervention
1. Zero in on an area for behavior change
2. Get the details• Be a journalist, listen carefully, limit questions
3. Explore relevant beliefs (4 “importance” questions)• “Your current score? Why not lower? Why not
higher? How to bump it up?”
4. Summarize and feed back the total story
DO NOT OFFER ANY HELP OR ADVICE
26
Importance
“How do you feel about exercise now? If ‘0’ was not important, and ‘10” was very important, what number would you give yourself?”
0_________________________________10
not important very important
“You rated exercise importance at 4.”
Why isn’t it a 3? (listen for the benefits)
“And what would it take to make it a 7 (listen for ideas to overcome barriers)a 6 or 7?” (listen for the obstacles)
Rollnick et al, 1999
27
Listen Well and Summarize
“It sounds like you’re inclined in two different directions. On the one hand, you’re somewhat worried about the possible long-term effects of your illness if you don’t manage it well–it’s pretty scary to think about such things. On the other hand, you’re young and you feel fairly healthy most of the time. You enjoy doing what you like to do, eat what you like to eat, and the long-term consequences seem far away. You’re concerned, and at the same time you’re not concerned.”
28
The Overarching Approach
BELIEVE SELF-MANAGEMENT IS WORTHWHILE: The patient must feel there is hope and benefit in doing a good job.
KNOW WHAT TO DO. The patient must have a clear and achievable plan for self-management
29
How did that feel?
30
Behavior Change Strategies
1. Begin with your patient’s interests
2. Believe that your patient is motivated to live a long, healthy life
3. Help your patient determine exactly what they might want to change• Identify and respect ambivalence• Present the bouquet
4. Develop a reasonable, detailed action plan
31
The “Action Plan” Intervention
1. Don’t tell patients what to do2. Negotiate what changes to focus on
blending your expertise and patients’ desires
3. Focus on 1 – 2 concrete actions to startNot attitudes, numbers, or actions to stopNot “lose 5 pounds in 2 weeks” Instead…”Walk briskly 20 minutes 3 x/ week,
Monday, Wednesday and Friday after lunch”
32
The “Action Plan” Intervention
4. Start with changes that are achievableeven if “physiologically silly”
5. Selected actions must be personally meaningful
6. Do the first step right away“What does this mean you’ll do tomorrow
AM?”
33
Implementation Intentions
• Promote cervical cancer screening appointment
• Random assignment to experimental or control procedure (n = 114)
• Control. Lecture about the need for screening
• Experimental. Lecture plus:- “You’re more likely to go for a cervical
smear if you decide when and where you’ll go. Please write in when, where and how you’ll make appointment.”
Sheeran and Orbell, 2000
34
The Power of Implementation
Series1
40
50
60
70
80
90
100
Lecture Lecture plus implementation plan
% a
ttend
ing
scre
enin
g ap
poin
tmen
t
Sheeran and Orbell, 2000
35
How did it feel?
36
Behavior Change Strategies
1. Begin with your patient’s interests
2. Believe that your patient is motivated to live a long, healthy life
3. Help your patient determine exactly what they might want to change
4. Develop a reasonable, detailed action plan
5. Stay alert for common obstacles
37
Patient Self-Management Barriers
1. ……
2. ……
3. ……
4. ……
5. ……
6. ……
7. ……
38
Patient Self-Management Barriers
Social devastation (poverty, homelessness, lack of access to health care services, etc)
Lack of information Cultural disconnect Low functional health literacy Relative lack of life skills Anxiety/disease-specific
distress/depression
39
PAM – what the patient brings to the problem
The Patient Activation Measure® (PAM®) assessment gauges the knowledge, skills and confidence essential to managing one’s own health and healthcare.
Level 1 Level 2 Level 3 Level 4Starting to take a role.
Building knowledge and confidence
Taking action
Maintaining behaviors
40
Address Health Literacy
• Assess patients’ recall or comprehension of recommendations
(aka “close the loop”)• D. "So . . . let's make sure. What
medications are we going to change?" • P. "I think we're going to stop this one (is
it metformin?) . . . and I'm going to take glipizide twice a day. . . I think that's the green one.“
• Develop strategies to overcome this barrier (case management, phone contacts, etc)
Schillinger et al, 2003
41
Take-Home Messages
• Almost everyone would prefer to live a long, healthy life
• Our patients are not unmotivated to self-manage effectively
• The problem is that self-care is tough• Our patients face many obstacles to good
self-care• Simple behavior change strategies are likely
to help