Philippe Pinel Jean Marc Gaspard Itard Samuel Gridley Howe Dorthea Dix Édouard Séguin Carrie Buck
Gunnar Dybwad Elizabeth Boggs John F Kennedy Burton Blatt Justin Dart Wolf Wolfensberger
Marc Gold Ed Roberts Judi Chamberlin Roland Johnson Herb Lovett
Harriet McBryde Johnson
2015 Schedule of Events
K E Y S T O N E I N S T I T U T E
Elizabeth “Betsy” Neuville
Betsy has served as the Executive
Director of The Keystone Institute for
well over a decade. She has over 25
years of experience within Keystone
as a human service worker,
administrator, agency director,
evaluator, educator and personal
advocate. She has extensive experience designing and
developing supports for very vulnerable people and has
developed regionally recognized leadership teams,
meaningful quality measurements and extraordinary
employee development programs.
She served for many years as the Executive Director of
Keystone Human Services of Lancaster, where she
designed and directed supports for adults and children
experiencing developmental disabilities and/or mental
disorders. During this time, she assisted over 200 people to
leave institutions and establish themselves as valued and
contributing members of their communities. She has been
deeply involved with the closure of several large institutions
in the US and abroad and established the use of person-
centered processes to assist people to gain a vision of full,
rich community life.
Betsy has worked extensively with the ideas of
Normalization and Social Role Valorization and provides a
great deal of training and consultation nationally and
internationally. She has worked in de-institutionalization
and community-based service development projects in
many places, with an emphasis on Eastern Europe.
Betsy is accredited by the North American Social Role
Valorization Council as a trainer of SRV.
Contact: [email protected]
Pamela Seetoo
Pam has worked to assist people to
live rich, full community lives for over
25 years. Over the course of her
life's work, she has assisted people
to leave institutions and establish
themselves in the communities,
supported children and families
within foster care and host home programs, provided
service leadership, and focused on values-based
education and facilitation.
Since 2005, Pam has directed her work toward educating
others about the effects of social devaluation of
vulnerable populations. She provides many presentations
at a variety of SRV and related workshops, leads small
group learning, and has been a team leader at Passing
events. She develops and organizes an extraordinary
employee development program for the Keystone
Institute, and serves as a mentor and role model to many
others. She has a strong interest in preserving and
safeguarding the personal histories of vulnerable people,
and has developed workshops around this topic.
Pam has been accredited as an SRV teacher by the North
American Social Role Valorization Council.
Contact: [email protected]
Eileen Scott
Eileen Scott leads the person
centered planning education
across Keystone Human Services.
She has over 30 years of experience
in human services and
organizational development. She
has a special interest in building
communities and developing inclusive person-centered
supports. Her knowledge and experience in the principles
of Social Role Valorization and extensive training in person-
centered planning tools are assets to the Institute.
As a leader in Social Role Valorization, Eileen has
developed a strong foundation in understanding the
profound effects of social devaluation, oppression and
marginalization of many individuals in our society. She
teaches about the importance of assisting people to fulfill
valued roles in their relationships, community, spiritual life
and civic life.
Eileen believes that creating a culture that is responsive to
and supportive of all people is our highest responsibility,
and the Person-Centered Planning process facilitates our
ability to carry out that responsibility.
Contact: [email protected]
Keystone Institute:
940 East Park Drive, 3rd Floor Harrisburg, PA www.keystoneinstitute.com
Best Western Conference Center:
800 East Park Drive Harrisburg, PA www.thecentralhotelharrisburg.com/directions.cfm
Black Rock Retreat:
1345 Kirkwood Pike Quarryville, PA www.blackrockretreat.com/directions/
Camp Hebron:
957 Camp Hebron Road Halifax, PA www.camphebron.org/directions.htm
Fort Hunter Centennial Barn:
5300 North Front Street Harrisburg, PA www.forthunter.org
Giant Community Room:
2300 Linglestown Rd Harrisburg, PA www.giantfoodstores.com/shareddev/storelocator/
HACC Lancaster Campus:
1641 Old Philadelphia Pike Lancaster, PA www.hacc.edu/Lancaster/Directions
Temenos Retreat Center 1564 Telegraph Rd West Chester, PA www.temenoscommunity.org/directions.html
KEYSTONE INSTITUTE FACULTY
WORKSHOP LOCATIONS:
REGISTER EARLY! WORKSHOPS FILL QUICKLY!
717-909-9425 • [email protected] • keystoneinstitute.com • onbeingofservice.wordpress.com
WHY A HISTORICAL FIGURES EDITION?
Keystone has a long history of preserving history, teaching it, considering our role in it, and
guiding our actions because of it. History creates the backdrop for our present and drives
us toward our future. Our actions become history the moment we engage in them.
Our roles in people’s lives today come after centuries of history – replete with oppression,
signs of hope, brutalization, and emerging ideas which moved circumstances forward at
times and at other times have caused great disappointment and betrayal. Understanding
our society through history will help us do the best work that we can on behalf of others,
and to know that we are part of a social movement, a change, a possibility for this to be
the kind of world where everyone belongs and where everyone has a chance for the
good life. That kind of world is safer for everyone.
This edition of the Keystone Institute schedule is a tribute to the many dedicated,
courageous, thoughtful, and often unknown, historical leaders in the field of disability. We
acknowledge that many have been left out of this recognition, though their efforts are no
less appreciated or important. We encourage you to learn more about the many change
agents in personal human service, past and present, and use this knowledge to spur you
on and inspire you to be an agent of change yourself.
REGISTRATION GUIDELINES:
Registrations for educational events will be taken by
telephone, email, or mail. Unless otherwise noted, events are
on a first come/first served basis, so early registration is
recommended. Waiting lists will be maintained for events
which are filled to capacity, and cancelled spaces will be
offered to those people on the waiting list.
For all events contained within the annual Keystone Institute
Events Schedule, there is no per-event fee for tuition, materials,
or training space for employees and board members of
Keystone Human Services. For other attendees, fees will be
charged as outlined in the Keystone Institute Event Fees listing
(available by contacting us at 717-909-9425). Unless otherwise
noted, a simple lunch will be provided for each full day
workshop.
In order to make the most of the educational opportunities for
all attendees, we ask that all participants make every effort to
arrive on time to all events, return from breaks and lunch on
time, and to stay until the event has concluded. Any plans to
leave early or arrive late should be discussed with Institute staff
and one’s supervisor prior to the event.
Cancellations for registrations are accepted up to three
business days prior to the event. For cancellations received
with less than three business days notice, there may be a pro-
rated event fee charged to the agency .
Facilitator Development Series:
3/18, 3/19, 4/22, 4/23, 5/20, 5/21, 6/9
All sessions are 9:30am-4pm
The Facilitator Development series includes training in Person
Centered Planning, PATH, MAPs, Tools for Change, Art of
Facilitation, and Mindfulness.
Participants must receive the endorsement of their agency’s
Executive Director and must commit to the full 50 hours of
training in order to participate.
History Series:
2/5, 2/12, 2/25
All sessions are 9:00am-12:30pm
The History Series includes The
History of Byberry; Eugenics - Past,
Present, and Future; and Moral
Treatment - A Forgotten Success.
Person Centered Approaches Series:
3/25, 4/29, 5/27
All sessions are 9:00am-1:00pm
The Person Directed Approaches Series includes
An Introduction to Person Centered Planning;
Designing and Implementing the Person
Centered Planning Process; and From Planning
to Action - Person Centered Teams.
Social Role Valorization Study Groups:
1/27, 3/26, 5/14, 8/18, 11/10
All study groups are 10am-12pm
The Social Role Valorization Study Groups are organized for all graduates of a 3 or 4 day SRV
course. This year’s study groups include: On Broken Crowns, Seven Dwarves, and Beauties
& Beasts; Politics and Disability Mix-Up; Passion, Purpose, and Reality: Implementing SRV
in a Complex Landscape; CinemAbility - The Portrayal of Disability in Film and Television;
and, SRV Between the Cracks - Finding Possibility in a “Rule-Bound Human Service World”
The Road Most Traveled: Using the Culturally
Valued Analogue as Your Guide
January 7
9am-4pm
The Community Room at Giant
2300 Linglestown Rd Harrisburg PA
Mapping out a vision of a big, full, inclusive life for
vulnerable people can be full of road bumps.
Sometimes we don’t know people very well;
sometimes people are uncertain themselves about
their identity, gifts, talents and what their future
could hold; and sometimes we are so lost in
“human service land” that we lose sight of the
typical pathways of life and all they have to offer
people. But when we are struggling in developing
roles, designing services or even planning a house
warming party for someone, using the culturally
valued analogue can provide us some tried and
true guidance to get started, by reminding us to
consider “What happens for people with a valued
status?”
Join us to learn more about using the CVA to keep
us moving in the right direction as we walk with
vulnerable people.
The Results are In: De-Institutionalization and its
Legacy in the US by Dr. James Conroy
January 15
9am-3pm
Keystone Institute
940 East Park Dr Harrisburg PA
Changing from an institutional model to a small,
family-like community living model has had two
faces in America. One involved people with mental
illness, and can be rightfully considered a national
disgrace; the other involved people with
intellectual and developmental disabilities, and
was one of the most successful social changes of
the twentieth century. This discussion, presented by
Dr. Jim Conroy, who has deep roots and long-
standing accomplishment in our field, serving today
as Chairman of the Pennhurst Alliance, will offer the
history, facts, and outcomes of both movements,
and spark a discussion of current crises and future
challenges to full social participation of people with
disabilities.
Dr. Conroy is founder and director of the nonprofit
Center for Outcome Analysis, devoted to the study
and implementation of support models that
produce the best outcomes. Dr. Conroy has
directed more than a dozen longitudinal studies of
the impacts of human service programs, including
moving from institutional and nursing home
situations to community living. He headed the
national impact evaluation on the individual
outcomes of self-determination for the Robert
Wood Johnson Foundation. He has studied the
nature of quality of life, particularly among citizens
with disabilities, for several decades, and has been
particularly interested in the size of homes and
residential options and how that impacts people.
Pathways to the Good Life:
A Practical Workshop on Helping People to Have
a Rich and Meaningful Life
January 21 & 22
9am-5pm both days
Best Western Conference Center
800 East Park Dr Harrisburg PA
Valued roles are the pathway to the good things in
life; things like acceptance and belonging, abiding
relationships, a positive self-image, opportunity and
experience, growth and learning. For many
devalued people, the forces of social devaluation
prevent them from having access to valued roles as
well as the “good life.”
This workshop explores the importance of helping
people fill valued roles in the face of vulnerability.
Several tools (relationship mapping, personal profile
development, culturally valued analogue, and a
vision of valued roles) are offered to participants via
short presentations, followed by facilitated small
group work, to use the ideas and craft a plan to
move forward in the life of one person. Each
person prepares for the work ahead of time by
learning about one person they serve or know, with
permission, and brings that knowledge to fully
participate in an action planning process. Come
prepared to think and plan on behalf of someone
you support– or better yet, come as a team ready
to create change together!
SRV Study Group*:
On Broken Crowns, Seven Dwarves, and Beauties
& Beasts
January 27
10am-12pm
Keystone Institute
940 East Park Dr Harrisburg, PA
Children’s literature is FULL of messages about
disability, social value, valuation, and devaluation -
let’s explore some of our childhood stories and the
lessons that were deeply etched into our
pliable, receptive and easily influenced young
hearts and minds about disability. Betsy Neuville
and Sandi Strobel will facilitate this study group, as
we search for a source of the foundation of our
unconscious belief systems about who matters, who
counts, and what “wholeness” and “brokenness” is.
*All graduates of a 3 or 4 day SRV course are welcome
to attend.
Sun Mon Tue Wed Thu Fri Sat
1 2 3
4 5 6 7 8 9 10
11 12 13 14 15 16 17
18 19 20 21 22 23 24
25 26 27 28 29 30 31
In the late 18th century, Philippe Pinel, a physician in France, was appointed to care for the inmates at two institutions. At the time, the inmates were chained to the walls and left to starve. The death rate was 50% annually. Pinel noted that when people were treated decently, they behaved in a fairly orderly fashion. He understood what others saw as violent and uncontrollable behavior, as ways of protesting inhuman treatment. He became famous for “unchaining the lunatics” as he entered the courtyard of the institution and began liberating people from the chains which bound them to buildings.
His work in France influenced a generation of thinkers and physicians in the US who followed his lead and together they led the very successful movement known as Moral Treatment. They believed that, with kind and loving care and a beautiful environment, people with mental illness would make great gains. The results were remarkable. In this gentle environment, few needed to be confined and what have been shown to be some of the most remarkable gains in the lives of people with mental disorders were seen.
Philippe Pinel 1745-1826
Led the movement known as Moral Treatment. January
The History Series Part 1:
The History of Byberry
February 5
9am-12:30pm
Keystone Institute
940 East Park Dr Harrisburg, PA
Much can be learned about human effort, societal
forces of oppression and marginalization and the
possibilities for change, by studying the rise and fall
of “The Great Institutions”. This presentation will
describe the fascinating history of the Philadelphia
State Hospital, known as Byberry.
Through photos, stories of people’s lives, and
narrative, we will explore the initial hopeful vision of
a positive future for Pennsylvanians experiencing
mental illness and how that vision resulted in one of
the most inhumane, brutal and corrupt institutions in
the country.
The History Series Part 2:
Eugenics - Past, Present, and Future
February 12
9am-12:30pm
Keystone Institute
940 East Park Dr Harrisburg, PA
There are many ideologies that have influenced
the evolution of our society and how we have
chosen to treat others. Few of them are more
powerful or have had more devastating impact
than the Eugenics movement, the ideas of which
were most fully developed in this country and
passed on to Germany in the early 1920’s with
horrific consequences that are well known.
This presentation will initially focus on the American
Eugenics movement, its champions, its foes, and its
work to wage war against the least of us through
massive sterilization, brutalization, segregation, and
euthanasia. We will then explore eugenics ideas
and ideals at work within our society today, and
what that can mean for vulnerable people.
SRV Refresher Course*
February 17 & 18
8:30am-4:30pm & 8:30am-12:30pm
Best Western Conference Center
800 East Park Dr. Harrisburg PA
Haven’t been to SRV for a while and are looking for
a refresher course?
Join us as we review the themes of SRV, and discuss
how we have used these ideas over our years in
serving others. A series of short presentations will be
followed by chances to illustrate, discuss, and share
ideas and struggles. Join us to learn about the
several new themes of SRV, sharpen your grasp of
the principles, recommit to using and teaching the
ideas, and do it all in a relaxed atmosphere.
*Prior attendance at a three-day Introduction to Social
Role Valorization workshop is required to register for this
event.
The History Series Part 3:
Moral Treatment - A Forgotten Success
February 25
9am-12:30pm
Keystone Institute
940 East Park Dr Harrisburg PA
Time after time, the history of society’s treatment of
people with mental disorders reveals that
backsliding nearly always follows progress in our
understanding of and response to mental disorders.
Periods of enlightenment have been followed by
periods of darkness, with long stretches of periods
of neglect in between.
The reformation period of Moral Treatment during
the 19th century is of great significance in the
history of psychiatry, followed by some of the worst
abuses and most brutal treatment of people with
mental illness.
Moral treatment was responsible for some of the
greatest successes in terms of outcomes for the
people in whose lives it was used. The ideas and
assumptions of this movement remain highly
positive, useful, and yet barely acknowledged,
studied or taught. Come learn about the history of
Moral Treatment in the US and abroad.
Sun Mon Tue Wed Thu Fri Sat
1 2 3 4 5 6 7
8 9 10 11 12 13 14
15 16 17 18 19 20 21
22 23 24 25 26 27 28
Jean Marc Gaspard Itard 1775-1838
Held revolutionary mindsets about growth and learning.
Recognized today as one of the founding fathers of special education and one of the first child and youth counselors, Jean Marc Gaspard Itard gained international recognition for his work with a young boy known as “The Wild Boy of Averyon.” This boy had been abandoned in the woods for many years, and was deaf and considered by many to be an “incurable idiot.” Itard believed quite differently. He cared for the boy named Victor and devoted the next five years to educating him. Victor excelled in many ways and as one writer put it, Itard's work with Victor "did away with the paralyzing sense of hopelessness and inertia that had kept the medical profession and everybody else from trying to do anything constructive for mental defectives." The ideas of Itard were revolutionary for the time and formed the foundation for many effective educational pedagogies today including individualized instruction, emphasis on stimulation, awakening the learner’s senses, and high expectations for all children’s growth and development.
February
A Day with David Pitonyak:
Beyond Behavior - Supporting Competence,
Confidence and Well-Being
March 3
9am-5pm
Camp Hebron
957 Camp Hebron Rd Halifax PA
A current day leader in the field of disability, David
Pitonyak, is driven by a deep understanding of
vulnerability and an even deeper commitment to
understanding people’s unmet needs in the face of
that vulnerability. David recognizes that most
difficult behaviors develop because people are
misunderstood and because of that, they are living
lives that don't make sense. Often they are lonely,
powerless or without joy; they are devalued by
others or they lack the kinds of educational
experiences that most of us take for granted; or,
their troubling behaviors are the result of an illness,
or even a delayed response to traumatic events.
Together with the belief that "a person’s needs are
best met by people whose needs are met," he
teaches that supporting a person with difficult
behaviors also involves an honest assessment of
and attention to the needs of a person's
supporters. As an organization of people providing
very personal human service to others, Keystone
has long been committed to moving beyond
control and quick fixes to meet people’s true needs
and helping people experience belonging and
opportunity, the good things of life. Yet we
continue at times to struggle, addressing people’s
needs through medication, physical management
and behavior plans. This day is intended to give us
focus and direction as we move beyond managing
behavior and towards helping people to develop
competence, confidence and well-being.
Power of Roles*:
A One Day Overview of Social Role Valorization
March 12
9am-4:30pm
Keystone Institute
940 East Park Dr Harrisburg PA
This workshop provides an engaging and
enlightening overview of the framework known as
Social Role Valorization, the foundation of both our
philosophy and practice at Keystone Human
Services. It gives participants a practical
introduction to the principles of Social Role
Valorization. Developed over the last 30 years, the
principles of SRV provide steady guidance on how
to assist vulnerable people to have full, rich and
meaningful lives. It also fuels our passion for service
and gives us direction to do good work on behalf
of others, Through a combination of multimedia
presentation and small group discussion,
participants explore the phenomenon of social
devaluation, and how it plays out in people’s lives,
as well as explore “what works” to lift people out of
devaluation and open up the possibilities in their
lives. Small group work towards practical translation
of the ideas, from theory to practice, rounds out the
experience for each participant.
*This educational event meets the minimum standards
for the KHS Statement of Program Philosophy for each
employee required within the first year of employment.
Facilitator Development Series* Session 1 & 2:
Intro to Person Centered Planning & PATH
March 18 & 19
9:30am-4pm
Keystone Institute
940 East Park Dr Harrisburg PA
Session 1 includes an introduction to the Person
Centered Planning process, Throwing Away the
Garbage exercise, Judge’s Wig exercise, a look at
Learning Styles, Koru Question, several tools of the
process (Circle of Relationships, MAPS, PATH), North
Star exercise, and Change Gauge.
Session 2 is a PATH practice session. Participants
take on the role of focus person, graphic facilitator
and process facilitator. Each person leaves having
been in each role at least once.
*The Facilitator Development series is open to
employees who have received the endorsement of
their agency’s Executive Director and requires a
commitment to participate in the complete series for a
total of 50 hours of training.
Person Centered Approaches Series Session 1 of
3: Introduction to Person Centered Planning
March 25
9am-1pm
Keystone Institute
940 East Park Dr Harrisburg PA
This workshop introduces participants to the basic
principles and techniques of person centered
planning. It is a philosophy and an approach to
respectful listening and meaningful planning. The
planning process focuses on creating a positive
vision of the future for the person based on his or
her capacities, strengths, and preferences, and
creates a support network built around personal
commitment and community involvement.
SRV Study Group*: Politics and Disability Mix-Up
March 26
10am-12pm
Keystone Institute
940 East Park Dr Harrisburg PA
In a country that is politically divided, where
elections seem to loom large at all times, it’s a
great time to explore and examine messages
about disability being sent and received from all
sides of the political spectrum. Join SRV leaders
Ellwyn Andres, Emily Robinson, and Ben Fierer for a
lively look at what politicians and their campaigns
have to say about disability, ability, & social value.
*All graduates of a 3 or 4 day SRV course are welcome
to attend.
Sun Mon Tue Wed Thu Fri Sat
1 2 3 4 5 6 7
8 9 10 11 12 13 14
15 16 17 18 19 20 21
22 23 24 25 26 27 28
29 30 31
Samuel Gridley Howe 1801-1876
Raised awareness of education for people with disabilities.
Physician, reformer, educator and abolitionist, along with his contemporary and fellow teacher, James Richards, Samuel Gridley Howe is most notably credited with founding the Perkins School for the Blind, through which a new level of awareness was raised for the education of people with disabilities. Suffering himself from lifelong depression, he also advocated for those with mental disorders and was compelled to change what he saw as a flawed and “wholly inadequate” system. And he fought with great fervor for the integration of African Americans before and after the Civil War. Gridley Howe was ahead of his time, a true visionary, with the highest of expectations for all people to be fully included in society and honored for their talents.
“Now the danger of misdirection in this pious and benevolent work is, that two false principles may be incorporated with the projected institutions which will be as rotten piles in the foundations and make the future establishments deplorably defective and mischievous. These are first, close congregation; and, second, life-long association … whereas, the true, sound principles are: separation from each other; and then diffusion among the normal population. For these and other reasons it is unwise to organize establishments for teaching and training, upon such principles as will tend to make them become asylums for life… Even people with intellectual disabilities have rights which should be carefully considered.”
March
Introduction to Social Role Valorization
in Three Days*
April 7-9
8am-6:30pm, 8am-6:30pm, 8am-4:30pm
Camp Hebron
957 Camp Hebron Rd Halifax PA
This intensive workshop introduces participants to
the principles of Social Role Valorization, the
philosophical and practical foundation of the
community system to serve people with disabilities
and other vulnerabilities. Developed by Dr. Wolf
Wolfensberger beginning in the early 1970s and
continuously refined, further developed over the
ensuing decades, the body of SRV material speaks
powerfully to those who are committed to working
by, with, and for people who have been
marginalized and oppressed. This theory workshop
is intended to acquaint participants with the major
themes and ideas contained within “SRV”, give
them a foundation for action, and a valuable
source of inspiration and ideas to move forward. At
Keystone Human Services, we are fortunate to
have the opportunity to offer, study, and explore
this body of knowledge which drives us to “do right”
by the people we serve, and offers us direction and
understanding.
The workshop blends multimedia presentation,
including a multitude of photographic slides and
video, with significant lecture style modules, written
materials, group learning exercises and small and
large group discussion sessions and reflections.
*This workshop fulfills the pre-requisite for attendance
at an Introductory PASSING workshop, the practicum
experience for Social Role Valorization training.
What is a Home?*
April 15
9am-4:30pm
Wilkes-Barre PA
This day of reflection, discussion, and discovery will
focus on the concept of home – what does it mean
to have a home, the importance and meaning of
home, how do we create home for others? Through
small group work, presentation, and discussion, we
will explore ways to assess how we are doing in this
area, which is so central to much of the work that
we do.
*This popular event has frequently been requested, so
please sign up early.
Introduction to Social Role Valorization
in Three Days*
April 21-23
8am-6:30pm, 8am-6:30pm, 8am-4:30pm
Key Human Services
Connecticut
This intensive workshop introduces participants to
the principles of Social Role Valorization, the
philosophical and practical foundation of the
community system to serve people with disabilities
and other vulnerabilities. Developed by Dr. Wolf
Wolfensberger beginning in the early 1970s and
continuously refined, further developed over the
ensuing decades, the body of SRV material speaks
powerfully to those who are committed to working
by, with, and for people who have been
marginalized and oppressed. This theory workshop
is intended to acquaint participants with the major
themes and ideas contained within “SRV”, give
them a foundation for action, and a valuable
source of inspiration and ideas to move forward. At
Keystone Human Services, we are fortunate to
have the opportunity to offer, study, and explore
this body of knowledge which drives us to “do right”
by the people we serve, and offers us direction and
understanding.
The workshop blends multimedia presentation,
including a multitude of photographic slides and
video, with significant lecture style modules, written
materials, group learning exercises and small and
large group discussion sessions and reflections.
Facilitator Development Series*
Session 3 & 4: MAPs & Tools for Change
April 22 & 23
9:30am-4pm
Keystone Institute
940 East Park Dr Harrisburg PA
Session 3 is a MAP practice session. Participants
take on the role of focus person, graphic facilitator
and process facilitator. Each person leaves having
been in each role at least once.
Session 4 includes a look at other tools of the Person
Centered Planning process including Personal
Futures Planning, Essential Lifestyles Planning,
Negotiating Roadblocks, Four Questions, Color, Six
Thinking Hats, Mind Mapping and others.
*The Facilitator Development series is open to
employees who have received the endorsement of
their agency’s Executive Director and requires a
commitment to participate in the complete series for a
total of 50 hours of training.
Person Centered Approaches Series - Session 2
of 3: Designing and Implementing the Person
Centered Planning Process
April 29
9am-1pm
Keystone Institute
940 East Park Dr Harrisburg PA
This second workshop of the series focuses its
attention on developing a personal profile using
person centered thinking tools. Participants will be
exposed to a variety of tools that aide in getting to
know the person they support in a fundamentally
different way and how to use the knowledge
gained to develop a “One Page Profile” as well as
an action-oriented plan for the future.
Sun Mon Tue Wed Thu Fri Sat
1 2 3 4
5 6 7 8 9 10 11
12 13 14 15 16 17 18
19 20 21 22 23 24 25
26 27 28 29 30
Dorthea Dix 1802-1886
Galvanized reform for people with mental disorders.
Dorothea Dix was the most influential and important reformer of the mental illness and the prison system in the United States and Europe. An abusive household characterized her early life and she eventually moved in with her grandmother who nurtured her passion and gift for teaching. As a young woman she took a teaching job in a prison and was appalled by the abysmal state and inhumane treatment she witnessed there. She immediately began agitating for change. She visited facilities and asylums tirelessly, documenting with unflinching honesty the conditions she saw.
Dix collected her numerous observations and compiled them into a report that was presented to the Massachusetts legislature in 1843 which galvanized a movement of change and reform for both prisoners and those with mental disorders. Dix expanded her reform efforts to include almost all the states east of the Mississippi and travelled around Europe spreading her message of reform.
“While we diminish the stimulant of fear, we must increase to prisoners the incitements of hope: in proportion as we extinguish the terrors of the law, we should awaken and strengthen the control of the conscience.”
April
Power of Roles*:
A One Day Overview of Social Role Valorization
May 12
9am-4:30pm
HACC Lancaster Campus
Old Philadelphia Pike Lancaster PA
This workshop provides an engaging and
enlightening overview of the framework known as
Social Role Valorization, the foundation of both our
philosophy and practice at Keystone Human
Services. It gives participants a practical
introduction to the principles of Social Role
Valorization. Developed over the last 30 years, the
principles of SRV provide steady guidance on how
to assist vulnerable people to have full, rich and
meaningful lives. It also fuels our passion for service
and gives us direction to do good work on behalf
of others, Through a combination of multimedia
presentation and small group discussion,
participants explore the phenomenon of social
devaluation, and how it plays out in people’s lives,
as well as explore “what works” to lift people out of
devaluation and open up the possibilities in their
lives. Small group work towards practical translation
of the ideas, from theory to practice, rounds out the
experience for each participant.
*This educational event meets the minimum standards
for the KHS Statement of Program Philosophy for each
employee required within the first year of employment.
SRV Study Group*:
Passion, Purpose, and Reality: Implementing SRV
in a Complex Landscape
May 14
10am-12pm
Keystone Institute
940 East Park Dr Harrisburg PA
How do we maintain our focus on the good things
of life for people when crisis and distraction gets in
the way? How is mission and margin reconciled?
How do leaders make decisions and lead towards
the vision? Join Charlie Hooker, Pam Foreman and
other organizational leaders who are also SRV
leaders from several levels of Keystone for a
discussion on compromise, risk-taking, balancing
priorities, steadfastness, loyalty to people, and
more. That's a lot to talk about in two hours, but let's
give it a shot.
*All graduates of a 3 or 4 day SRV course are welcome
to attend.
Transformation and Change Agentry
by Dr. Thomas Neuville
May 19
9am-4pm
Camp Hebron
957 Camp Hebron Dr Halifax PA
Over the years, many of us have entered human
services with a deep commitment to community,
societal and personal change. Struggles and
hardships, bureaucracy, resource issues, and
mounting dysfunctional systems have robbed many
of us, perhaps even most of us, of our hope for
positive change, our desire to engage fully with the
people we serve, and our belief that our work is
contributing to a vision of a positive future. Please
join us for a day of reconnecting with our earliest
hopes and ideals, renewing our passion for service,
and crafting a vision of what is truly possible
through personal service to others. Uncover your
gifts, the things which you uniquely bring that others
can share, and find renewed energy and vitality in
your search for meaning in your work.
Join master educator, Dr. Thomas Neuville as he
leads us through the day, using his own very
powerful story of transformation and change
agentry in developing the first inclusive university
program at Millersville University.
Facilitator Development Series*
Session 5 & 6:
The Art of Facilitation & Mindfulness Forum
May 20 & 21
9:30am-4pm
Keystone Institute
940 East Park Dr Harrisburg PA
Session 5 looks at what is masterful facilitation and
the personal qualities, skills and abilities needed
within this role, reviews of the person centered
planning cycle, selecting the tool, and the role of
the facilitator throughout the process.
Session 6 is an exploration into each participant’s
motivations and values surrounding the role of
facilitator. The purpose of the forum is to increase
our mindfulness about those motivations and values
in order to gain clarity and more fluidly and
consciously step into the role of facilitator.
*The Facilitator Development series is open to
employees who have received the endorsement of
their agency’s Executive Director and requires a
commitment to participate in the complete series for a
total of 50 hours of training.
Person Centered Approaches Series
Session 3 of 3: From Planning to Action – Person
Centered Teams
May 27
9am-1pm
Keystone Institute
940 East Park Dr Harrisburg PA
This third workshop in the series introduces
participants to the idea that in order for effective
planning to be successful, the people we support
must be surrounded by a team that is person
centered…otherwise we just end up with pretty
paper. This workshop will focus on how work teams
can improve their approach to helping the people
they support move closer to a meaningful life.
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Édouard Séguin 1812-1880
Worked to improve life for children with disabilities.
Édouard Séguin established the first private school in Paris dedicated to the education of individuals with intellectual disabilities and in 1846 published Traitement Moral, Hygiène, et Education des Idiots (The Moral Treatment, Hygiene, and Education of Idiots and Other Backward Children). This work is considered to be the earliest systematic textbook dealing with the special needs of children with intellectual disabilities. In the United States, he made efforts to improve conditions of children with disabilities at Randall's Island asylum.
He established a number of schools in various cities for treatment of people with mental disorders. In 1866 he published Idiocy: and its Treatment by the Physiological Method; a book in which he described the methods used at the "Séguin Physiological School" in New York City. Programs used in Séguin's schools stressed the importance of developing self-reliance and independence in the intellectually disabled by giving them a combination of physical and intellectual tasks.
Édouard Séguin became the first president of the "Association of Medical Officers of American Institutions for Idiotic and Feebleminded Persons", an organization that would later be known as the American Association on Mental Retardation. His work with individuals with intellectual disabilities was a major inspiration to Italian educator Maria Montessori. Seguin is considered the first great teacher in the field of disabilities.
May
A particularly stark time in the history of disability was the era of eugenics. While some eugenicists privately supported practices such as euthanasia or even genocide, legally-mandated sterilization was the most radical policy supported by the American eugenics movement. Eugenicists argued that all people who were mentally ill, mentally retarded or physically disabled were polluting the gene pool of the country. Such individuals were seen as a threat to society and the probable cause of most of the criminal activity and social problems in the country. In many states, support for the Eugenics movement resulted in legislation requiring mandatory sterilization, incarceration, and in many cases, the
castration of persons with disabilities. By the 1930’s over 30 states had laws legalizing and even mandating sterilization of “the feeble-minded” ultimately resulting in over 70,000 people being forcibly sterilized.
Carrie Buck was one such person. In 1927, after being raped and giving birth at the age of 17, she was the first person to be sterilized in the state of Virginia under a law which included sterilizing anyone who was “feeble-minded, an imbecile or epileptic.” Shortly after, Carrie was admitted to an institution on the basis that she was promiscuous and therefore also feeble-minded. The superintendent selected her as a “test-case” for the constitutionality of Virginia’s recently enacted sterilization laws. The Supreme Court upheld the decision in Buck v. Bell, validating sterilization and increasing sterilizations throughout the country. Nazis on trial at Nuremberg after World War II cited the influence of American eugenics programs on their policies and mentioned Buck v. Bell in their testimony.
Virginia Dobbs, the daughter who was separated from Carrie after her birth, died at the age of 8. Years later, married, and moving forward with her life, Carrie was known by friends and family as an independent, caring and helpful woman. Carrie’s life is one example of the brutalization and devastation that comes from the false assumptions and mindsets our society holds about its most vulnerable citizens.
Carrie Buck 1906-1983
Stands as a symbol of the reminder of the
perilous repercussions of eugenics.
Facilitator Development Series* Session 7: Series Wrap-Up
June 9
9:30am-4pm
Keystone Institute
940 East Park Dr Harrisburg PA
Session 7 wraps up the series by bringing everyone together to review the series,
future facilitation ideas, personal action statements, upcoming learning
opportunities, questions, and sharing of resources.
*The Facilitator Development series is open to employees who have received the
endorsement of their agency’s Executive Director and requires a commitment to
participate in the complete series for a total of 50 hours of training.
Supported Decision-making:
Common Sense, Wisdom and
Life Experience Needed by Darcy Elks
June 23
9am-4pm
Giant Community Room
2300 Linglestown Rd Harrisburg PA
Just like everyone else, the people who are
vulnerable and use human service support have to make many decisions about
and in life areas e.g., home, relationships, financial situations, health, employment,
spirituality, etc. It is challenging for anyone to make decisions about life and even
harder for people who require support from others to assist with decision-making.
This workshop will cover many of the important considerations that others need to
be aware of if they are to be the best possible support for vulnerable people to
make decisions (from small to very important) for their lives. Practical guidelines
on how to advise people with disabilities will be offered.
6th International SRV Conference
Enriching Lives through Valued Roles: Gaining Depth and Setting Direction
June 10-12 (pre-conference days June 8 & 9)
Providence Rhode Island
For the first time in over a decade the International SRV Conference will be
held here in the United States! This is an incredible opportunity to learn from
leaders in the community of SRV and from other people who are also working
hard to use the ideas of Social Role Valorization to enrich the lives of people
they support and care about. For all the details and to register go to
www.srvconference.com.
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Gunnar Dybwad 1909-2001
Promoted framing disability as an issue of civil rights.
Dr. Gunnar Dybwad is credited with being one of the first in the world to frame mental disability as an issue of civil rights, rather than as a medical or social work “problem”. He and his wife, Rosemary were agents for change not only in the U.S. but all over the world as they traveled extensively, particularly in support family advocacy, but also in building organizations from a values based perspective and changing legislation and policies that truly shaped the development of human service systems.
Dr. Dybwad played a critical part in persuading leaders of the Pennsylvania Association for Retarded Children to take legal action on behalf of disabled children. The case, PARC v. Pennsylvania, 1972, is credited with establishing the right of disabled children to get a public education and with helping lead to laws about disability rights.
He was uncompromising in his efforts to indict low quality services that served to force low expectancies and stereotypes on people with cognitive impairments. His lifetime of efforts on behalf of devalued people spanned over 6 decades.
June
An Event about Service*
July 15 & 16
9am-5pm; 9am-3pm
Black Rock Retreat
1345 Kirkwood Pike Quarryville PA
If there is any work that calls us to do it well, it is the
work of personal human service. Being in service to
another implies respect, support and putting aside
your own needs on behalf of another. What does it
mean to engage in personal human service? What
draws me to the work and why is the work we do so
important? How can I be of true service to others?
Event About Service is an opportunity for people
from all parts of the organization to come together
to engage in thoughtful reflection and discussion
about the nature of our work. Through some
facilitated discussion and lots of small group work
and projects, we will explore social dynamics, the
role of helper, and the obligations we have to one
another as we engage in pursuit of our vision to
truly assist vulnerable people to realize life in its
fullest and most meaningful forms.
Dr. Thomas Neuville, master facilitator and
educator, will guide our learning with his powerful
insight, creativity and thought-provoking
approaches to bringing out the wisdom in each of
us and all of us.
*Held over two days in a beautiful wooded retreat
setting, participants are welcome and encouraged to
stay overnight at no cost (includes dinner).
Exploring the Places and Spaces Where
Community Happens: A Workshop on
Community Mapping ~ Session 1 of 2
July 23
8:30am-1pm
Keystone Institute
940 East Park Dr Harrisburg PA
"Community is a place on the ground around
where you live and where you work, and it's where
your people are. Community is a place of
belonging where we can show up and make a
difference in valued ways as citizens." -- Dr. Beth
Mount
How can we make connections to places,
associations and opportunities that will give the
people we support a chance to participate and
contribute their gifts, talents and passions?
We teach and talk a lot in our work about helping
vulnerable people get involved in their
communities, yet many of us are unsure how to
proceed in our own lives, much less in the lives of
others. We invite you to explore community with us
in an experiential fashion, using a process of
discovery called community mapping. Where does
community life take place? Where are the places
that people gather together? How can we join in
authentically, and assist others to do so as well?
Most importantly, how might life change if we are
successful?
This two day event (July 23 & August 19) takes an in-
depth look at what is involved in Community
Mapping and provides an opportunity to
experience it for yourself - be prepared to explore,
research, travel the neighborhood, and talk to
others - the first step in understanding where people
can offer their gifts is learning the paths and places
that already exist, and that others have traveled.
Elizabeth Boggs 1913-1996
Worked to improve life for children with disabilities.
Family members of people with disabilities have been an enduring force in moving things forward and making life better for vulnerable people and we acknowledge that most of them do so with a quiet strength that nearly never brings them recognition. Of course there are also those families whose work resulted in known efforts and organizations and so they represent so many others in many regards.
Elizabeth Boggs is such a family member. She is the founder of the national association for Retarded Citizen’s and served as that association’s first woman president. Working with the International League of Societies for the Mentally Handicapped, she was a principal author of the United Nations Declaration of General and Special Rights of the Mentally Retarded. With Justin Dart, Elizabeth co-chaired the congressionally appointed Task Force on Rights and Empowerment of People with Disabilities, an important impetus to the development of the Americans with Disabilities Act. Elizabeth served on the SSI Modernization Project and, at the time of her death, was serving on the Social Security Administration's Task Force on Representative Payees.
Such mothers and reformers reflect the fortitude and drive, and persistence in love that has driven families over the centuries to push for a better life for their disabled family members.
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John F Kennedy 1917-1963
Prescribed taking action in the field of mental retardation.
While much change throughout history was led by the typical citizens, advocates and workers, there were times when change had to be legitimized and came through politicians. What we often find is that when this type of change comes, it comes because the politicians themselves, deeply identify with vulnerable people. John F. Kennedy's brief but powerful presidency was a turning point in the history of disability rights. He himself, had a sister, Rosemary, who had a disability and so his administration made a real commitment to change.
Through his legislative efforts prescribing a program of action in the field of mental retardation came The National Institute of Child Health and Human Development and the Mental Retardation and Community Mental Health Construction Act opening the doors to the replacement of isolation in state institutions to community homes and services where people could start to take back their homes and families.
“Those of us who have seen children live in the shadow know that a country as rich as ours can’t possibly justify this neglect.”
July
Adventures in Attitudes
August 5 & 6
8:30am-4:30pm each day
Fort Hunter Centennial Barn
5300 North Front St Harrisburg PA
Everyone a student, everyone a teacher...this is the
AIA experience! This active, participatory workshop
focuses on leadership development and personal
and professional enrichment through an engaging
process. Effective listening, communication skills,
attitudes of empowerment, creative problem
solving, team building strategies, and reaching
one’s potential are focal points around which
participants both learn and teach.
SRV Study Group*:
CinemAbility - The Portrayal of Disability in Film
and Television
August 18
9:30am-12:30pm
Keystone Institute
940 East Park Dr Harrisburg PA
During this SRV study group, we will take a peek at
“CinemAbility”, the acclaimed star-studded 2013
documentary by award-winning Director
Jenni Gold exploring the relationship between
disability and society. Do portrayals of disability in
the media impact society, or does the media
simply reflect back our ever-changing attitudes?
Has the media had a hand in transforming the
inclusion of people with disabilities? Alongside SRV
leaders Ann Gelvin and Sue Rowell, we’ll view this
film and consider the SRV themes that are
illustrated, and think through the power of imagery
and media on devaluation and inclusion.
*All graduates of a 3 or 4 day SRV course are welcome
to attend.
Exploring the Places and Spaces Where
Community Happens: A Workshop on
Community Mapping ~ Session 2 of 2
August 19
8:30am-1pm
Keystone Institute
940 East Park Dr Harrisburg PA
"Community is a place on the ground around
where you live and where you work, and it's where
your people are. Community is a place of
belonging where we can show up and make a
difference in valued ways as citizens." -- Dr. Beth
Mount
How can we make connections to places,
associations and opportunities that will give the
people we support a chance to participate and
contribute their gifts, talents and passions?
We teach and talk a lot in our work about helping
vulnerable people get involved in their
communities, yet many of us are unsure how to
proceed in our own lives, much less in the lives of
others. We invite you to explore community with us
in an experiential fashion, using a process of
discovery called community mapping. Where does
community life take place? Where are the places
that people gather together? How can we join in
authentically, and assist others to do so as well?
Most importantly, how might life change if we are
successful?
This two day event (July 23 & August 19) takes an in-
depth look at what is involved in Community
Mapping and provides an opportunity to
experience it for yourself - be prepared to explore,
research, travel the neighborhood, and talk to
others - the first step in understanding where people
can offer their gifts is learning the paths and places
that already exist, and that others have traveled.
Burton Blatt was a pioneer in humanizing services for people with intellectual disabilities. He is perhaps best remembered as author of the photographic exposé Christmas in Purgatory (1966), a searing portrait of life in an institution that brought national
attention to the abuse of people with intellectual disabilities in America's institutions; and the follow-up study, The Family Papers: A Return to Purgatory (1979). In these and his many books and writings, Blatt emphasized the humanity of all people, regardless of the nature or severity of their disability. As an advocate of deinstitutionalization, he helped initiate community living programs and family support services. In his clinical work he emphasized the provision of education to children with severe disabilities, and as a national leader in special education, he called for programs to integrate students with disabilities into public schools and worked to promote a more open society.
“Every person must have a place, must be here for a special reason, or no one has a place, or no one has a special reason for being. Either everybody counts or nobody counts.”
Burton Blatt 1927-1985
Emphasized the humanity of all people.
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Justin Dart 1930-2002
Called for every person to govern his or her own life.
Justin Dart Jr. was an activist and advocate for people with disabilities. Best known as the father of the Americans with Disabilities Act and often called the Martin Luther King of the disability civil rights movement, he thought of himself in much more humble terms—simply as a soldier of justice.
Dart attended the University of Houston from 1951 to 1954, earning his bachelor’s and master’s degrees in political science and history. He wanted to be a teacher, but the university withheld his teaching certificate because he was a wheelchair user. These events inspired him to begin his first human rights group, but surely not his last. His quest for justice incited marginalized people worldwide to recognize and utilize their political power and rights. Dart’s politics of “inclusion, principle, solidarity and love” and “revolution of empowerment” guided his advocacy efforts on behalf of countless people experiencing devaluation and discrimination.
“I call for solidarity among all who love justice, all who love life, to create a revolution that will empower every single human being to govern his or her life, to govern the society and to be fully productive of life quality for self and for all.”
August
From Building on Capacities to Supporting
Valued Experiences and Full Citizenship
September 10
9am-3:30pm
Fort Hunter Centennial Barn
5300 North Front Street Harrisburg PA
What are we working toward? The Keystone vision
points us in the direction of supporting people to
live their fullest life through participation and
presence in community life, building and
maintaining relationships, making choices, being a
respected member of our communities and making
a contribution. This workshop will look at how
developing a capacity view of the people and
supporting them to have valued experiences can
help them move into a more full and meaningful
life.
Introduction to Social Role Valorization
in Three Days*
September 15-17
8am-6:30p, 8am-6:30p, 8am-4:30p
Best Western Conference Center
800 East Park Dr Harrisburg PA
This intensive workshop introduces participants to
the principles of Social Role Valorization, the
philosophical and practical foundation of the
community system to serve people with disabilities
and other vulnerabilities. Developed by Dr. Wolf
Wolfensberger beginning in the early 1970s and
continuously refined, further developed over the
ensuing decades, the body of SRV material speaks
powerfully to those who are committed to working
by, with, and for people who have been
marginalized and oppressed. This theory workshop
is intended to acquaint participants with the major
themes and ideas contained within “SRV”, give
them a foundation for action, and a valuable
source of inspiration and ideas to move forward. At
Keystone Human Services, we are fortunate to
have the opportunity to offer, study, and explore
this body of knowledge which drives us to “do right”
by the people we serve, and offers us direction and
understanding.
The workshop blends multimedia presentation,
including a multitude of photographic slides and
video, with significant lecture style modules, written
materials, group learning exercises and small and
large group discussion sessions and reflections.
*This workshop fulfills the pre-requisite for attendance
at an Introductory PASSING workshop, the practicum
experience for Social Role Valorization training.
Model Coherency*
September 29
8:30a-4:30p
Giant Community Room
2300 Linglestown Rd Harrisburg PA
One of the most important things that a service
provider can do in protecting vulnerable people,
and helping to create the conditions for people to
experience a full and rich life, is to assure that
services are proposed, designed, and planned with
great care and caution to assure that they truly
meet the needs of the people that are to be
served. Model Coherency embodies the idea that
all elements of practice in a service should be in
harmony with each other, and follow from a
unifying set of principles. It requires people to think
about the identity of the people who are to be
served, what is it that would be required to support
people well, who could do the work well, and in
what ways the work could be done with consistent,
high quality. Model
Coherency is a unique and
very helpful tool which can
be used to both
conceptualize positive service
designs, and help participants
develop a framework for
services which increase the
likelihood of a coherent
match between people’s
identities, their most pressing
needs, and the supports to
actually meet those needs.
*Prior attendance at a three-
day Introduction to Social Role Valorization workshop is
required to register for this event.
Best Part of Me Retreat*
September 30 & October 1
9am-5pm; 9am-3pm
Temenos Retreat Center
1564 Telegraph Rd West Chester PA
Best Part of Me is aimed at identifying and
acknowledging the best parts of ourselves that we
bring to our work. Through a series of exercises,
people who work in human services, especially
direct support workers, are able to recognize the
importance our values and gifts play in the lives of
people we serve. By providing the opportunity to
leave one’s regular work environment, people are
better able to gain a clearer perspective on their
contributions. This workshop includes individual
reflection and group discussion.
*Held over two days in a beautiful wooded retreat
setting, participants are welcome and encouraged to
stay overnight at no cost (includes dinner).
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Wolf Wolfensberger 1934-2011
Developer of the principles of Social Role Valorization.
Dr. Wolf Wolfensberger dedicated his life’s work to helping devalued people experience the “good things of life.” His efforts in the 1960’s at teaching normalization forged the way for de-institutionalization and his re-conceptualization of the idea eventually and now known as Social Role Valorization, have proved tried and true in helping to understand people’s genuine needs and provide quality services to them. To accomplish that work, he and his associates authored, the PASS and PASSING evaluation tools, which are based on Social Role Valorization theory, to assess human service quality.
Dr. Wolfensberger was a Professor of Education at Syracuse University and the Director of the Training Institute for Human Service Planning, Leadership and Change Agentry. He was also powerful voice of “truth telling” who committed his life’s work to raising our collective consciousness about the perils of devaluation that people with societally marginalized conditions face and what we can do to take action against those forces to make life better for devalued people.
He was a prolific writer, a challenging and sometimes controversial teacher, and a deep thinker who served to develop strong leaders in our field and create change for innumerable vulnerable people.
September
Pathways to the Good Life: A Practical Workshop
on Helping People to Have a Rich and
Meaningful Life
October 6 & 7
9am-5pm each day
Giant Community Room
2300 Linglestown Rd Harrisburg PA
Valued roles are the pathway to the good things in
life; things like acceptance and belonging, abiding
relationships, a positive self-image, opportunity and
experience, growth and learning. For many
devalued people, the forces of social devaluation
prevent them from having access to valued roles as
well as the “good life.”
This workshop explores the importance of helping
people fill valued roles in the face of vulnerability.
Several tools (relationship mapping, personal profile
development, culturally valued analogue, and a
vision of valued roles) are offered to participants via
short presentations, followed by facilitated small
group work, to use the ideas and craft a plan to
move forward in the life of one person. Each
person prepares for the work ahead of time by
learning about one person they serve or know, with
permission, and brings that knowledge to fully
participate in an action planning process. Come
prepared to think and plan on behalf of someone
you support– or better yet, come as a team ready
to create change together!
The Search for Belonging
October 15
9am-3pm
Keystone Institute
940 East Park Dr Harrisburg, PA
A sense of belonging appears to be one of the
most basic human needs, perhaps even as basic as
food, shelter and water. And yet so many people
we support live lives of extreme loneliness and
isolation, often with devastating consequences.
Helping the people we support to find connection,
deep, sustaining relationships and belonging is
some of the best work that we can do. Drawing
upon the work of Jean Vanier, join us for this day of
reflection and discussion as we seek to understand
wounds of lost relationships and exclusion and find
and restore places of belonging for the people we
support.
Marc Gold was an absolute pioneer and master teacher. As a special education teacher in Los Angeles, he formulated a values based systematic training approach, “Try Another Way.” This approach was based on a few fundamental beliefs: Everyone can learn but we have to figure out how to teach; students with developmental disabilities have much more potential than anyone realizes; and all people with disabilities should have the opportunity to decide how to live their lives.
Dr. Gold’s life ended much too soon, but his gift of teaching and powerful message about the capabilities and competencies of people are time-tested and continues to offer us wisdom and instruction on how we can be effective teachers.
Many of our inclusive vocational strategies today, including job coaching and supported and customized employment, were built from Dr. Gold’s seminal work and pioneering efforts. In his words, “If a student fails to learn, the teacher has failed to teach.”
Marc Gold 1939-1982
Believed “everyone can learn”.
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Edward Roberts 1939-1995
Role modeled “fighting for what you need.”
Edward Roberts was the first student with severe disabilities to attend the University of California, Berkeley. He was a pioneering leader of the disability rights movement. Roberts had contracted polio at the age of fourteen and spent eighteen months in hospitals, returning home paralyzed from the neck down except for two fingers on one hand and several toes. He attended school by telephone hook-up until his mother insisted that he go to school once a week for a few hours. At school he faced his deep fear of being stared at and transformed his sense of personal identity. He gave up thinking of himself as a "helpless cripple," and decided to think of himself as a "star." He credited his mother with teaching him by example how to fight for what he needed.
His career as an advocate began when a high school administrator threatened to deny his diploma because he had not completed driver's education and physical education. He had to fight for the support he needed to attend college from the California Department of Vocational Rehabilitation because his rehabilitation counselor thought he was too severely disabled to ever get a job. When his search for housing met resistance in part because of the 800 pound iron lung that he slept in at night, the director of the campus health service offered him a room in an empty wing of the Cowell Hospital. Roberts accepted on the condition that the area where he lived be treated as dormitory space, not a medical facility. His admission broke the ice for other students with severe disabilities to attend.
October
Protecting the Health and Lives of Hospital
Patients, Especially Those Who are Societally
Devalued by Jo Massarelli
November 4
9am-5pm
Keystone Institute
940 East Park Dr Harrisburg, PA
This workshop provides an in-depth and detailed
explanation of the many types and sources of
dangers confronting all people who become
hospital patients, and additional perils that face
people who are especially vulnerable and
societally devalued. Strategies for increasing our
awareness of the “quality of life” mindset and the
many ways it is expressed in hospital practice,
language and decision- making processes will be
taught as will the role and functions of the
protector of a patient, including the crafting of a
protective mindset.
This workshop was developed and will be
presented by Jo Massarelli, Director of the SRV
Implementation Project, a human service training
and consultation concern based in Worcester,
Massachusetts. She is an associate of Shriver
Clinical Services Corporation and a consultant to its
Medical Safeguards Project, an effort of physicians
and nurses who seek to protect the lives of
impaired people in medical settings. She also works
with an in-home nursing agency called Family Lives,
which provides round-the-clock nursing support for
medically compromised children so that they can
live at home. Jo has a particular interest in
advocacy in hospitals and presents workshops on
protecting vulnerable people in hospitals and on
medical decision-making.
SRV Study Group*:
SRV Between the Cracks - Finding Possibility in a
“Rule-Bound Human Service World”
November 10
10am-12pm
Keystone Institute
940 East Park Dr Harrisburg, PA
A wise friend once told us “don’t let what you can’t
do get in the way of what you can do” – It seems
harder and harder to help people move into
valued roles and towards big, good lives when we
remain focused on all the myriad rules and
regulations governing many of our more formal
services. And yet, still, many of us have found ways
to promote and assist people, in spite of this. In
fact, SRV use can be powerful and impactful in the
most unlikely places. Laura Kuchta and Vicki
Hoshower lead this study group, pondering how big
ideas can take root and flourish around the edges
and in the most unlikely places.
*All graduates of a 3 or 4 day SRV course are welcome
to attend.
Introduction to PASSING*
November 16-20
5 days, late nights, overnight stays
Black Rock Retreat
1345 Kirkwood Pike Quarryville PA
This five day workshop is for those who are
interested in deepening their knowledge about the
principles of Social Role Valorization. The workshop
involves learning to use the PASSING assessment
tool, which looks at the realities of Social Role
Valorization in practice. Most of the work done in
PASSING is done in teams and involves visiting and
assessing the quality of two human service
programs based on SRV criteria. The week’s work is
conducted under the guidance of an experienced
team leader.
*Prior attendance at a three-day Introduction to Social
Role Valorization workshop is required to register for this
event.
At the forefront of moving disability rights forward on behalf of people with mental disorders, was Judi Chamberlin. At the age of 21, hospitalized against her will for depression, she was shaken by the conditions of what was called treatment for people with
mental illness. Places that were supposed to be restorative, were exacerbating people’s conditions and damaging their health and well-being at best; in many ways they were controlling, abusive, discriminatory, and even deadly. She was a force for advocacy, using strong and powerful leaders from the civil rights movement as models and mentors and began her own ignited campaign for reform.
Her book called On Our Own, which was published in 1978, became a manifesto for people receiving mental health treatment and had great influence on many people in the mental health field too.
Judi Chamberlin 1944-1990
A force for advocacy.
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Roland Johnson 1946-1998
Gave energy to the community movement in Pennsylvania.
Powerful teachers emerged out of the ashes of the institution, people with disabilities who experienced segregation and brutalization, and yet were willing to help others see what was and is important. They fought hard for legal rights, fair treatment, and to have their voices respected and heard. This struggle continues today. Roland Johnson, author and advocate, was one such powerful leader. He spent much of his childhood at Pennhurst State School, and endured brutal treatment and abuse for years.
“After that long ride up there, it was just horrible. That was very scary. Very, very frightening. I was crying that I would never see them again, my family or sisters. We went out into this great big institution that I didn't know anything about. Where you come down on the main road you see this big thing up at Pennhurst, the water tower, coming in to Pennhurst. Things looked different to me -- because it wasn't like a house that I lived in. I'm out here in this gray institution with three thousand people that live in it. It was just something that I didn't like.”
Roland Johnson’s powerful advocacy gave energy to the community movement in Pennsylvania and nationally.
November
Power of Roles*:
A One Day Overview of Social Role Valorization
December 3
9am-4:30pm
Giant Community Room
2300 Linglestown Rd Harrisburg PA
This workshop provides an engaging and
enlightening overview of the framework known as
Social Role Valorization, the foundation of both our
philosophy and practice at Keystone Human
Services. It gives participants a practical
introduction to the principles of Social Role
Valorization. Developed over the last 30 years, the
principles of SRV provide steady guidance on how
to assist vulnerable people to have full, rich and
meaningful lives. It also fuels our passion for service
and gives us direction to do good work on behalf
of others, Through a combination of multimedia
presentation and small group discussion,
participants explore the phenomenon of social
devaluation, and how it plays out in people’s lives,
as well as explore “what works” to lift people out of
devaluation and open up the possibilities in their
lives. Small group work towards practical translation
of the ideas, from theory to practice, rounds out the
experience for each participant.
*This educational event meets the minimum standards
for the KHS Statement of Program Philosophy for each
employee required within the first year of employment.
What is a Home?*
December 7
9am-4:30pm
Giant Community Room
2300 Linglestown Rd Harrisburg PA
This day of reflection, discussion, and discovery will
focus on the concept of home – what does it mean
to have a home, the importance and meaning of
home, how do we create home for others? Through
small group work, presentation, and discussion, we
will explore ways to assess how we are doing in this
area, which is so central to much of the work that
we do.
*This popular event has frequently been requested, so
please sign up early.
Herb Lovett 1949-1998
Waged a battle to stop the use of punishment for people with autism.
Dr. Herbert Lovett was a leader, scholar, teacher, and advocate for people with disabilities and their families. He promoted inclusive supports and equal access in the areas of education, meaningful work, housing, and human rights for children and adults with disabilities; and worked with national and state leaders to develop public policies that outlawed the use of aversive procedures in favor of respectful, decent, and positive supports.
He was the co-founder and president of the Autism National Committee, was a faculty member at the University of New Hampshire, and traveled throughout the United States and the world as a consultant who helped to bring about fundamental changes in the way that people with behavioral difficulties are viewed and treated.
Dr. Lovett waged an intensive battle to stop the use of punishment and aversive procedures with people who had autism and people with difficult behaviors; a struggle that continues in many places and for many people, today.
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Harriet McBryde Johnson 1957-2008
Challenged pity-based fundraising tactics.
Harriet McBryde Johnson was an American author, attorney, professor and disability rights activist. She was disabled due to a neuromuscular disease and learned at an early age, the power of devaluation and its consequences. In her 2005 memoir, “Too Late to Die Young,” she said it was the Jerry Lewis muscular dystrophy telethon that sent her the message, for the first time, that her neuromusclular disease would kill her, which powerfully framed her early vision for her life.
McBryde attended self-contained special-education classes until age 13, when she was invited to leave because she was campaigning to get the teacher fired. At that time, there was no right to appeal; she would have been limited to home-bound instruction had her parents not convinced a private high school to give her a try. Johnson became a powerful voice for change, speaking out with fervor against “pity-based tactics and a charity based mentality” of fundraising and in an ongoing debate with Peter Singer, she challenged beliefs that parents ought to be able to euthanize their disabled children. "Unspeakable Conversations," is her account of the debates with Singer and the pro-euthanasia movement.
December