1.sharing by small but coherent groups can
create asymmetrically valuable resources.
small group sharing
coherentism from:
standard legal toolscommon infrastructure
normsmetadata
(doesn’t exist for personal health data)
http://files.snpedia.com/reports/promethease_data/genome_jtw_ui2.html
“Also there is no suggestion of consanguinity in your pedigree.”
http://www.ianlogan.co.uk/
2.the experiment:
let’s build a small but coherent group to
share data and see if it works in health.
PLC: “portable” legal consent
terms in blue pop up definitions
volunteer must click to proceed
all boxes must be checked
volunteer cannot skip video
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3.success will not magically increase thanks to data.
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assume 1,000,000 downloadsassume 10% false positive rate
100,000 doctor visits$1000 per biopsy
thank you