every age has its own lever.
ours is data.
1. how do we change the way we gather data?
centered around authenticated individuals at authenticated institutions
gathering pre-determined data from pre-determined
phenotypes
there is no center, and what is authentication?
“just record everything and figure out significance later”
2. it’s about cheap data,
not big data.
cheap data changes the way we justify our beliefs.
OPS = AB(H + BB + HBP) + TB(AB + BB + SF + HBP) / AB(AB + BB + SF + HBP)
cheap data = better decisions
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assume 1,000,000 downloadsassume 10% false positive rate
100,000 doctor visits$1000 per biopsy
$900,000,000 per app?
3. how might we connect cheap data, research, and health systems?
sharing by small but coherent groups can
create asymmetrically valuable resources.
“When Campos contacted the company for the first time, Medtronic spokesman Steve Cragle said that the patient services rep didn’t understand that Campos wanted the raw data.”
if i want to give it away, i have to understand the gift.
terms in blue pop up definitions
volunteer must click to proceed
all boxes must be checked
volunteer cannot skip video
real-time genotype sharing:
http://files.snpedia.com/reports/promethease_data/genome_jtw_ui2.html
“Also there is no suggestion of consanguinity in your pedigree.”
http://www.ianlogan.co.uk/
a relief, but no insight.
4.cheap data to insight
via open systems.
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accessibility
adaptability
leverage
easeof mastery
accessibility
adaptability
leverage
easeof mastery
0
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THREE OPTIONS TO DOWNLOADNO CLEAR LICENSEPRIVACY RESTRICTIONSMETADATA
which patients have tumor and normal samples amidst a group of celfiles?
accessibility
adaptability
leverage
easeof mastery
IMPACT OF PRIVATE INTERVENTION
free as in speech or free as in beer?
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