This presentation is a resource developed as
part of a face to face education event or
workshop.
The target audience is health and social care
professionals in roles providing palliative and
end of life care
The author has agreed to share the work to enable
best practice in the provision of end of life care
Advance care planning with people
with a learning disability
Katy Welsh, Sandra George
and Kelly Brown
Primary Care Liaison Team
Aymi Brown Meadowside Manager
Agreements
Learning outcomes:
• To understand the process of advance care planning and resources that have been developed for people with a learning disability
• To recognise cues and facilitate conversations with people about their plans and hopes for their future
• To consider ways to enable people you work with to have choices at end of life
Free access to end of life e learning
http://www.e-lfh.org.uk/programmes/end-of-life-care/
There are 35 sessions about communication and 18 about ACP within the 160+ modules available
Examples are:• Introduction Principles of ACP• Benefits & risks of ACP to patients,
families and staff• ADRT principles• ADRT in practice• Writing an ADRT• Approaching ACP when capacity is
uncertain
Learning Disability Mortality Review found
Compared with the general population the average age of death for people with LD is :
• 23 Years younger for men
• 29 Years younger for women
Advance Care Planning
What choices do I have?
Advance Care Planning
• End of life care Planning allows people to make important decisions regarding their end of life care and treatment
• It is ongoing
• Time and space is needed to do it well
• Allows people to express their wishes
• Is voluntary
• Remember people change their minds
https://www.england.nhs.uk/wp-content/uploads/2017/08/delivering-end-of-life-care-for-people-with-learning-disability.pdf
Click for a link to the document
Click on the picture for a link to the film
Click on the picture to access the website
Also available as an app for a smart phone
Devon PartnershipNHS TrustBucket List
Devon PartnershipNHS Trust
What is important?
• On your tables, think about what would be
important for the person you are
supporting?
• What would be on their ‘bucket list’?
Devon PartnershipNHS Trust
Click on the picture for a link to the film
Devon PartnershipNHS Trust
How can we enable this?
What resources are available?
• Easy read information
• Video clips
• Talking mats
• Conversations
Devon PartnershipNHS TrustTalking Mats
• Topics:
What you want to talk
about
• Options:
Relates specifically to
each topic
• Top scale:
Allows indication of
feelings
• Where would you like
to die?
• At home; hospital;
hospice.
• Yes; no; not sure.
Devon PartnershipNHS TrustTalking mat layout
Devon PartnershipNHS Trust
http://www.togethermatters.org.uk/im-thinking-ahead-pdf/
Click on the image for a link to the booklet
Devon PartnershipNHS TrustTea / coffee
Devon PartnershipNHS Trust
Devon PartnershipNHS Trust
When is the right time?
Learning from practice.
In your groups, think about what sort of
situations might lend themselves to having a
conversation about death and dying?
Devon PartnershipNHS Trust
Care home representative
How they have approached advanced care
planning in their care setting.
Aymi Brown
Devon PartnershipNHS TrustBucket List
Devon PartnershipNHS Trust
Devon PartnershipNHS TrustFeedback and Evaluation