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Self-Tracking and Parkinson’s Disease
How-To SessionRound Three
Kevin Krejci@kevinkrejciJune 20, 2015Quantified Self Expo 2015
Who am I?Who am I?Who am I?Who am I?
image: (cc) emdotKevin Krejci @kevinkrejci @WorldPDCongress @fujitsulabs
Who am I?Who am I?Who am I?Who am I?
image: (cc) emdotKevin Krejci @kevinkrejci @WorldPDCongress @fujitsulabs
Who am I?Who am I?Who am I?Who am I?
image: (cc) emdotKevin Krejci @kevinkrejci @WorldPDCongress @fujitsulabs
Who am I?Who am I?Who am I?Who am I?
image: (cc) emdotKevin Krejci @kevinkrejci @WorldPDCongress @fujitsulabs
Visit our booth!!
What am I fighting?What am I fighting?What am I fighting?What am I fighting?
image: (cc) emdot @kevinkrejciKevin Krejci
What am I fighting?What am I fighting?What am I fighting?What am I fighting?
image: (cc) emdot @kevinkrejciKevin Krejci
What am I fighting?What am I fighting?What am I fighting?What am I fighting?
image: (cc) emdot @kevinkrejciKevin Krejci
Popular assumption:movement disorder
What am I fighting?What am I fighting?What am I fighting?What am I fighting?
image: (cc) emdot @kevinkrejciKevin Krejci
Popular assumption:movement disorder
What am I fighting?What am I fighting?What am I fighting?What am I fighting?
image: (cc) emdot @kevinkrejciKevin Krejci
Rock Steady Boxing SF Popular assumption:movement disorder
Only a movement disorder?Only a movement disorder?Only a movement disorder?Only a movement disorder?
image: (cc) emdot @kevinkrejciKevin Krejci
Only a movement disorder?Only a movement disorder?Only a movement disorder?Only a movement disorder?
image: (cc) emdot @kevinkrejciKevin Krejci
My Long Term GoalsMy Long Term GoalsMy Long Term GoalsMy Long Term Goals
image: (cc) emdot @kevinkrejciKevin Krejci
•Win the Fight (within 12 rounds)
My Long Term GoalsMy Long Term GoalsMy Long Term GoalsMy Long Term Goals
image: (cc) emdot @kevinkrejciKevin Krejci
•Win the Fight (within 12 rounds)
•Optimize productivity and QOL
My Long Term GoalsMy Long Term GoalsMy Long Term GoalsMy Long Term Goals
image: (cc) emdot @kevinkrejciKevin Krejci
•Win the Fight (within 12 rounds)
•Optimize productivity and QOL
•Slow PD progression
My Long Term GoalsMy Long Term GoalsMy Long Term GoalsMy Long Term Goals
image: (cc) emdot @kevinkrejciKevin Krejci
•Win the Fight (within 12 rounds)
•Optimize productivity and QOL
•Slow PD progression
•Help find the cause and cure…
Why do self-tracking?Why do self-tracking?Why do self-tracking?Why do self-tracking?
image: (cc) emdot @kevinkrejciKevin Krejci
We’re all unique…We’re all unique…We’re all unique…We’re all unique…
image: (cc) emdot @kevinkrejciKevin Krejci
We’re all unique…We’re all unique…We’re all unique…We’re all unique…
image: (cc) emdot @kevinkrejciKevin Krejci
Even People with Parkinson’s (PwPs)…
Remember Cholera?Remember Cholera?Remember Cholera?Remember Cholera?
image: (cc) emdot @kevinkrejciKevin Krejci
Popular assumption: airborne illness
Connecting the dots…Connecting the dots…Connecting the dots…Connecting the dots…
image: (cc) emdot @kevinkrejciKevin Krejci
Connecting the dots…Connecting the dots…Connecting the dots…Connecting the dots…
image: (cc) emdot @kevinkrejciKevin Krejci
Connecting the dots…Connecting the dots…Connecting the dots…Connecting the dots…
image: (cc) emdot @kevinkrejciKevin Krejci
Big discovery!
Connecting the dots…Connecting the dots…Connecting the dots…Connecting the dots…
image: (cc) emdot @kevinkrejciKevin Krejci
It starts with the plumbing…
My QS HeadacheMy QS HeadacheMy QS HeadacheMy QS Headache
image: (cc) emdot @kevinkrejciKevin Krejci
Connecting cables…
My QS HeadacheMy QS HeadacheMy QS HeadacheMy QS Headache
image: (cc) emdot @kevinkrejciKevin Krejci
Connecting cables…
My QS HeadacheMy QS HeadacheMy QS HeadacheMy QS Headache
image: (cc) emdot @kevinkrejciKevin Krejci
Connecting cables…
Then Connecting DataThen Connecting DataThen Connecting DataThen Connecting Data
image: (cc) emdot @kevinkrejciKevin Krejci
Then Connecting DataThen Connecting DataThen Connecting DataThen Connecting Data
image: (cc) emdot @kevinkrejciKevin Krejci
Importing from CSVs…
Then Connecting DataThen Connecting DataThen Connecting DataThen Connecting Data
image: (cc) emdot @kevinkrejciKevin Krejci
Importing from CSVs…From apps that allow it…
Discovery!Discovery!Discovery!Discovery!
image: (cc) emdot @kevinkrejciKevin Krejci
My finger tapping speed…
Discovery!Discovery!Discovery!Discovery!
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And typing speed is improving!
And my sleep qualityAnd my sleep qualityAnd my sleep qualityAnd my sleep quality
image: (cc) emdot @kevinkrejciKevin Krejci
Is also improving!
Looking at my sleep dataLooking at my sleep dataLooking at my sleep dataLooking at my sleep data
image: (cc) emdot @kevinkrejciKevin Krejci
I found some patterns…
Quality depends on many Quality depends on many thingsthings
Quality depends on many Quality depends on many thingsthings
image: (cc) emdot @kevinkrejciKevin Krejci
Alcohol bad. Bodyboarding good…
Dancing is good!*Dancing is good!*Dancing is good!*Dancing is good!*
image: (cc) emdot @kevinkrejciKevin Krejci
*Partial list of variousexercise, routines, nutrition and supplements…
Even rain helps…Even rain helps…Even rain helps…Even rain helps…
image: (cc) emdot @kevinkrejciKevin Krejci
And good for California.
Even rain helps…Even rain helps…Even rain helps…Even rain helps…
image: (cc) emdot @kevinkrejciKevin Krejci
And good for California. More rain dances?
When Connecting the DotsWhen Connecting the DotsWhen Connecting the DotsWhen Connecting the Dots
image: (cc) emdot @kevinkrejciKevin Krejci
The patterns emerge…
When Connecting the DotsWhen Connecting the DotsWhen Connecting the DotsWhen Connecting the Dots
image: (cc) emdot @kevinkrejciKevin Krejci
The patterns emerge…And discoveries happen…
When Connecting the DotsWhen Connecting the DotsWhen Connecting the DotsWhen Connecting the Dots
image: (cc) emdot @kevinkrejciKevin Krejci
Good sleep helps my fingers do their walking…
Sleep impacts PD Sleep impacts PD symptomssymptoms
Sleep impacts PD Sleep impacts PD symptomssymptoms
image: (cc) emdot @kevinkrejciKevin Krejci
Sleep impacts PD Sleep impacts PD symptoms*symptoms*
Sleep impacts PD Sleep impacts PD symptoms*symptoms*
image: (cc) emdot @kevinkrejciKevin Krejci
*but PD also impacts sleep…
Checked my own Checked my own plumbingplumbing
Checked my own Checked my own plumbingplumbing
image: (cc) emdot @kevinkrejciKevin Krejci
Stool Test…
Checked my own Checked my own plumbingplumbing
Checked my own Checked my own plumbingplumbing
image: (cc) emdot @kevinkrejciKevin Krejci
Stool Test… Not absorbing my brain nutrients…
Long-chain fatty acidsLong-chain fatty acidsLong-chain fatty acidsLong-chain fatty acids
image: (cc) emdot @kevinkrejciKevin Krejci
Long-chain fatty acidsLong-chain fatty acidsLong-chain fatty acidsLong-chain fatty acids
image: (cc) emdot @kevinkrejciKevin Krejci
Good for PD!
Long-chain fatty acidsLong-chain fatty acidsLong-chain fatty acidsLong-chain fatty acids
image: (cc) emdot @kevinkrejciKevin Krejci
Good for PD!
Long-chain fatty acidsLong-chain fatty acidsLong-chain fatty acidsLong-chain fatty acids
image: (cc) emdot @kevinkrejciKevin Krejci
Good for PD!When properly digested…
Connecting the dots…Connecting the dots…Connecting the dots…Connecting the dots…
image: (cc) emdot @kevinkrejciKevin Krejci
Connecting the dots…Connecting the dots…Connecting the dots…Connecting the dots…
image: (cc) emdot @kevinkrejciKevin Krejci
Another big discovery!
DiscoveriesDiscoveriesDiscoveriesDiscoveries
image: (cc) emdot @kevinkrejciKevin Krejci
DiscoveriesDiscoveriesDiscoveriesDiscoveries
image: (cc) emdot @kevinkrejciKevin Krejci
•Everything is connected!*
DiscoveriesDiscoveriesDiscoveriesDiscoveries
image: (cc) emdot @kevinkrejciKevin Krejci
•Everything is connected!*
*Except for my apps & devices
DiscoveriesDiscoveriesDiscoveriesDiscoveries
image: (cc) emdot @kevinkrejciKevin Krejci
•Everything is connected!*
•Sleep and productivity?
*Except for my apps & devices
DiscoveriesDiscoveriesDiscoveriesDiscoveries
image: (cc) emdot @kevinkrejciKevin Krejci
•Everything is connected!*
•Sleep and productivity?
•The gut and the brain?
*Except for my apps & devices
DiscoveriesDiscoveriesDiscoveriesDiscoveries
image: (cc) emdot @kevinkrejciKevin Krejci
•Everything is connected!*
•Sleep and productivity?
•The gut and the brain?
*Except for my apps & devices
• Need CSVs and open APIs
RecommendationsRecommendationsRecommendationsRecommendations
image: (cc) emdot @kevinkrejciKevin Krejci
RecommendationsRecommendationsRecommendationsRecommendations
image: (cc) emdot @kevinkrejciKevin Krejci
•Start simple!
RecommendationsRecommendationsRecommendationsRecommendations
image: (cc) emdot @kevinkrejciKevin Krejci
•Start simple!
• Figure out what troubles you most
RecommendationsRecommendationsRecommendationsRecommendations
image: (cc) emdot @kevinkrejciKevin Krejci
•Start simple!
• Figure out what troubles you most
• Find out what might help
RecommendationsRecommendationsRecommendationsRecommendations
image: (cc) emdot @kevinkrejciKevin Krejci
•Start simple!
• Figure out what troubles you most
• Find out what might help
• Experiment and track
RecommendationsRecommendationsRecommendationsRecommendations
image: (cc) emdot @kevinkrejciKevin Krejci
•Start simple!
• Figure out what troubles you most
• Find out what might help
• Experiment and track
• Pen and paper is OK
RecommendationsRecommendationsRecommendationsRecommendations
image: (cc) emdot @kevinkrejciKevin Krejci
•Start simple!
• Figure out what troubles you most
• Find out what might help
• Experiment and track
• Pen and paper is OK
• Just do it!
RecommendationsRecommendationsRecommendationsRecommendations
image: (cc) emdot @kevinkrejciKevin Krejci
•Start simple!
• Figure out what troubles you most
• Find out what might help
• Experiment and track
• Pen and paper is OK
• Just do it!
• And share your results!
RecommendationsRecommendationsRecommendationsRecommendations
image: (cc) emdot @kevinkrejciKevin Krejci
•Start simple!
• Figure out what troubles you most
• Find out what might help
• Experiment and track
• Pen and paper is OK
• Just do it!
• And share your results!
• Us snowflakes have a lot in common too…
Starting Simple and Starting Simple and SubjectiveSubjective
Starting Simple and Starting Simple and SubjectiveSubjective
image: (cc) emdot @kevinkrejciKevin Krejci
Starting Simple and Starting Simple and SubjectiveSubjective
Starting Simple and Starting Simple and SubjectiveSubjective
image: (cc) emdot @kevinkrejciKevin Krejci
Starting Simple and Starting Simple and SubjectiveSubjective
Starting Simple and Starting Simple and SubjectiveSubjective
image: (cc) emdot @kevinkrejciKevin Krejci
Starting Simple and Starting Simple and SubjectiveSubjective
Starting Simple and Starting Simple and SubjectiveSubjective
image: (cc) emdot @kevinkrejciKevin Krejci
Starting Simple and Starting Simple and SubjectiveSubjective
Starting Simple and Starting Simple and SubjectiveSubjective
image: (cc) emdot @kevinkrejciKevin Krejci
mPowermPowermPowermPower
image: (cc) emdot @kevinkrejciKevin Krejci
mPowermPowermPowermPower
image: (cc) emdot @kevinkrejciKevin Krejci
A great place to start for both PD patients and control groups (the rest or you!)
Come to Portland!!Come to Portland!!Come to Portland!!Come to Portland!!
image: (cc) emdot @kevinkrejciKevin Krejci
Learn and Teach*Learn and Teach*Learn and Teach*Learn and Teach*
image: (cc) emdot @kevinkrejci @WorldPDCongress @fujitsulabsKevin Krejci
Learn and Teach*Learn and Teach*Learn and Teach*Learn and Teach*
image: (cc) emdot @kevinkrejci @WorldPDCongress @fujitsulabsKevin Krejci
•Let’s connect the dots together and stop PD in its tracks!
Learn and Teach*Learn and Teach*Learn and Teach*Learn and Teach*
image: (cc) emdot @kevinkrejci @WorldPDCongress @fujitsulabsKevin Krejci
•Let’s connect the dots together and stop PD in its tracks!
•Just like the dot connectors did with Cholera
Learn and Teach*Learn and Teach*Learn and Teach*Learn and Teach*
image: (cc) emdot @kevinkrejci @WorldPDCongress @fujitsulabsKevin Krejci
•Let’s connect the dots together and stop PD in its tracks!
•Just like the dot connectors did with Cholera
•Then I’ll really sleep better!
Round 4 QS HomeworkRound 4 QS HomeworkRound 4 QS HomeworkRound 4 QS Homework
image: (cc) emdot @kevinkrejciKevin Krejci
Round 4 QS HomeworkRound 4 QS HomeworkRound 4 QS HomeworkRound 4 QS Homework
image: (cc) emdot @kevinkrejciKevin Krejci
Enzymes, probiotics, uBiome, and more stool tests!Master data visualization tools…
Round 4 QS HomeworkRound 4 QS HomeworkRound 4 QS HomeworkRound 4 QS Homework
image: (cc) emdot @kevinkrejciKevin Krejci
Enzymes, probiotics, uBiome, and more stool tests!Master data visualization tools… And read a good book!
Behind every boxer…
There are a lot of people to thank…
Wife and kids (Esther, Kai and Alani)
Mom and Dad
Brother and Sister
Extended Family and Relatives
Friends and Followers
Colleagues and Management at Fujitsu, @Nifty, and RocketSpace
World Parkinson Coalition
Rock Steady Boxing SF
The Parkinsons Institute
Physical Therapy Select
SoulWorks
23andMe
PatientsLikeMe
UCSF Neurology Department
The Working Stiffs Support Group
Ambulatory Parkinson’s Disease Monitoring (APDM)
Michael J. Fox Foundation
Davis Phinney Foundation
National Parkinson Foundation
Parkinson Disease Foundation
Parkinson’s Action Network
The App and Platform Developers
The Gadget Makers
And last but not least…
YOUand the rest of the
Quantified Self community!
YOUand the rest of the
Quantified Self community!
YOUand the rest of the
Quantified Self community!
THANK YOU!!!
Get Engaged!
