Hospice 101 Phases Of Grief Nov 3 2006

• 1. HOSPICE 101 Midwest Palliative & Hospice CareCenter 2050 Claire Ct., Glenview, IL 60025 847-467-7423

2. Presenters

• Midwest Palliative & Hospice CareCenter

• Families with Children Counselors

3. What is Hospice?

• A special way of caring for people with life limiting illness.

4. GOALS OF HOSPICE

• Comfort and quality of lifeas defined by the patient.

• Support for the family as the primary unit of care.

5. WHERE ARE PATIENTS CARED FOR ?

• At home

• Independent or Assisted Living facility

• Long Term Care or Skilled Care Facility

• Hospital

• Hospice Inpatient Unit

6. ELIGIBILITY

• Patients who desire to end curative phase of treatment

• Patients who want to be kept as physically, emotionally and spiritually comfortable as possible.

• Patients whose doctors certify that they have a prognosis of 6 months or less

7. THE HOSPICE TEAM

• Patient

• Patients family

• Primary physician

• Hospice physician

• Nurses

• Chaplains

• Social workers

• Nursing Assistants

• Volunteer

• Others as needed by plan of care

8. COMMON QUESTIONS

• Can I change my mind?

• Nutrition, hydration, CPR

• Giving Up

• For cancer patients only

9. HOW DO I TALK ABOUT THIS? 10.

• ASK YOUR LOVED ONE WHAT S/HE THINKS IS HAPPENING.

11.

• WHAT ARE YOUR LOVED ONES GOALS?

• WHAT IT IS S/HE REALLY WANTS?

12.

• HELP THE PERSON IDENTIFY AND ASSESS THE BENEFITS AND BURDENS OF VARIOUS TREATMENTS.

13. BEREAVEMENT

• Telephone Contact

• Memorial Services

• Support Groups

• Individual Counseling

• Referral

14. RESOURCES

• National Palliative Care & Hospice Organization

• 800.658.8898

• www.nhpco.org

• www.Medicare.com

15. Personal Loss Activity 16. Phases of Grief 17. Helping Children Cope with Grief

• Author:Alan Wolfelt, Ph.D

• 13 Dimensions

18. Shock/Denial/Disbelief/Numbness

• Most intense 6-8 weeks after death

• Can resurface over time

19. Lack of Feelings

• Appear unaffected by death

• Continue with age appropriate activities to avoid intense emotions

20. Physiological Changes

• Grief may be expressed through physical symptoms

• Symptoms are usually temporary and normal

21. Regression

• Occurs when previously mastered tasks are no longer completed

• Can represent need for protection and security

• If ongoing, may need therapeutic intervention

22. Big Man/Big Woman Syndrome

• Opposite of regression

• Take on adult roles

• Can be an attempt to replace the deceased

23. Disorganization and Panic

• Feeling of being overwhelmed and anxious

• Manifestations

• • Restlessness

• • Irritability

• • Inability to concentrate

• Routines are important

24. Explosive Emotions

• Feelings

• • Anger

• • Hatred

• • Terror

• Directed at anyone or anything

• Enjoyable events lose their appeal

• Important to validate feelings of pain, frustration and hurt

25. Acting-Out Behavior

• Result of Explosive Emotions

• May be associated with feelings of abandonment

26. Fear

• Who will take care ofme?

• Fear of own death

• Fatalistic View

• Consistency is important

27. Relief

• Natural expression after witnessing prolonged illness

• Difficult to admit

• Associated with guilt

28. Loss/Emptiness/Sadness

• Most difficult emotions

• May demonstrate physiological changes

29. Guilt and Self-Blame

• May assume responsibility of death

• If only I had done something differently

30. Reconciliation

• Grief no longer overwhelms daily functioning

• Begin to feel hope and anticipation for the future

31. Questions