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Learning Exchange: Community-Enabled Technology Daniel McLinden, EdD (Presenter) Sarah Myers, RN Melida Busch, MLIS David Davis, MFA Rapid Reports Sun Apr 23, 2017 12:25 PM - 12:33 PM LK 101

MedicinceX 2017 Education at Stanford

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Learning Exchange:

Community-Enabled Technology

Daniel McLinden, EdD (Presenter)

Sarah Myers, RN

Melida Busch, MLIS

David Davis, MFA

Rapid Reports

Sun Apr 23, 2017

12:25 PM - 12:33 PM

LK 101

This is technology…

These are people…

This is sharing by people…

Some people have

knowledge and

resources

Sharing by people* is enabled by technology

*People are messy

Some people need

knowledge and

resources

What if…

… we used the web as

a platform for

individuals to pool their

efforts, knowledge, and

resources to create

something astounding

for healthcare.

The context

Transform the health, care and costs for all children and

adolescents with Crohn’s disease and ulcerative colitis by

building a sustainable collaborative chronic care network,

enabling patients, families, clinicians and researchers to

work together in a learning health care system to

accelerate innovation, discovery and the application of

new knowledge.

www.improvecarenow.org

@ImproveCareNow

Create a learning system that makes it

possible for a geographically dispersed

community of clinicians, scientists,

patients, and parents to pool their

knowledge, learn from each other and

improve outcomes.

The Challenge…

The Idea

Aim: Create a learning resource that will radically

change for the better what people know about

how to implement an effective and reliable care

delivery system to treat and manage chronic

disease beginning with pediatric inflammatory

bowel disease.

In other words: “We need a way to share

knowledge, tools, and know-how across a

dispersed community.”

• There needs to be a

place to exchange

tools, processes,

stories and learn from

each other.

• There needs to be a

place to collaborate

and co-create new

knowledge.

Beliefs

These are people working together to improve healthcare for

pediatric inflammatory bowel disease (IBD)

This is technology that supports people working to

improve healthcare: ICNexchange.org

“Having the new co-production

change package on the Exchange

has made it really easy to access

and navigate. You don’t have to

worry that you are looking at the

wrong outdated e-mail attachment,

because you know the change

package is being updated in real-

time as the community learns

together!”

-SR, Children’s Mercy

Sharing

Building community

D.B.

M.L.

Ideate

S.M.

Co-production

Activism and activists