Vi T ¹ L i F d L ² F i J G j l III³ d R di K l 4Vicente Traver¹, Luis Fernandez Luque², Francisco J Grajales III³, and Randi Karlsen4q j1 ITACA Universidad Politécnica de Valencia Spain Contact e mail: vtraver@itaca upv es1. ITACA, Universidad Politécnica de Valencia, Spain Contact e-mail: vtraver@itaca.upv.es

2 N d T T l di i L bThe shift from Patient 1.0 to Patient 2.0

2. Norut and Tromsø Telemedicine Laboratory (ePatient)y3 eHealth Strategy Office Faculty of Medicine University of British Columbia 3. eHealth Strategy Office, Faculty of Medicine, University of British Columbia

Passive Active4. Computer Science Department, University of Tromsø Passive Activep p , y

I t d ti N d th 2 0 i h F t t I t t d ti it Reader Content GeneratorIntroduction: Nowadays, the 2.0 wave is everywhere. From concepts to Internet productivity, new Reader Content Generator

technologies have paved the way for the emergence of personalized eHealth services and applications. Healthtechnologies have paved the way for the emergence of personalized eHealth services and applications.I lik i f ti t l t t d ti t f t t f l ti hi l

Healthmanaged by Health managed byIssues like information, tools, content production, type of content, focus, relationship or roles are managed by

doctor him/herself

moving towards a new paradigm where patients produce, share, review, and comment through blogs,doctor

moving towards a new paradigm where patients produce, share, review, and comment through blogs,wikis podcasting and forums Health related video audio images and texts are produced by Patient Client/User/Citizenwikis, podcasting, and forums. Health related video, audio, images, and texts are produced by Patient Client/User/Citizen

everybody in a holistic patient centered approach.everybody in a holistic patient centered approach.Individual CommunityIndividual Community

Assessment and Advise. Exchange of best practices. Patients 2.0 Citizens are using Internet to

g pbuild the community and exchange best Citizens are using Internet to

assess,advice and evaluate bu d t e co u ty a d exc a ge best

practices and experiences, like en TuDiabetes or assess,advice and evaluate health care services as Patient

practices and experiences, like en TuDiabetes or Diabetes Connect health care services, as Patient

Opinion in UKDiabetes Connect

P l H lth R d M Diff t i iti ti Opinion in UK Personal Health Record Manager. Different initiatives as Microsoft Health Vault, Google Health, Indivo allow the patient

to introduce data and manage his Personal Health Record g

Content reviewer Patient Content reviewer. Patient can rate review modify content Community patient support PatientsLikeMe is the can rate, review,modify content

according some rules as it Community patient support. PatientsLikeMe is the

l i l l h it f l ith according some rules as it h i h lth iki

classical example where a community of people with d b happens in health wikis or

S l di common interests provides support to any member

Salupedia through forums, posts, blogs, and data sharing.g p g g

Patient 2 0Patient 2.0

Content provider. Patients acts as content provider with Community builder. Patients Sensor integration, social p ptext, audio, video, images. You Tube, Twitter, blogs are

yare using Internet to strengthen

g ,sharing and healthy text, aud o, v deo, ages. ou ube, w tte , b ogs a e

some of the main drivers As examples, a blog where a are using Internet to strengthen

relationships through community sharing and healthy

lifestyle Through easy plug some of the main drivers. As examples, a blog where a diabetic shows how to hide a pump in a wedding dress and

relationships through community building PatientsLikeMe or

lifestyle. Through easy plug d l t diabetic shows how to hide a pump in a wedding dress and

a video where a girl is explaing how she lives with multiple building. PatientsLikeMe or

SecondLife are clear examples of and play sensors, measurements

a video where a girl is explaing how she lives with multiple l i d h h l d id b t h t t

SecondLife are clear examples of th t I th h l Ali

can be shared promoting a sclerosis and why she uploads videos about her status that. In the shown example, Alice

K l i h h fli healthy lifestyle. Examples can

Krueger explains how she flies y y p

be the Activity Coach, result of and perform different activities in

y ,My Heart project or MapMyRun

Second Life in spite of she has My Heart project or MapMyRun

psevere multiple sclerosis and is p

unable to walk without the use of unable to walk without the use of crutches

The Dark Side crutches

The Dark Side

Blogs promoting anorexiaBlogs promoting anorexia

I i d f l i d iIncentivated or false patient recommendations

Ethical, legal and privacy issues, g p y

…

C l i Th di hift f ti t' l i t d ' h lth t ithi th W b 2 0 i t d i thi t S f thConclusions: The paradigm-shift of patient's roles in today's healthcare systems within the Web 2.0 is presented in this poster. Some of theg y ymost prominent new roles are: content provider, content reviewer, community builder, adviser, community patient support, exchange of bestmost prominent new roles are: content provider, content reviewer, community builder, adviser, community patient support, exchange of best

ti d P l H lth R dpractices, and Personal Health Records manager.Therefore, the patient's role and environment is changing rapidly due to the incidence and accessibility of Web 2.0 platforms and the raise ofTherefore, the patient s role and environment is changing rapidly due to the incidence and accessibility of Web 2.0 platforms and the raise ofth ti t t U f t t l ti t t ithi W b 2 0 h t t b d t d b bli d i t h lththe patient empowerment. Unfortunately, patient empowerment within Web 2.0 has yet to be understood by public and private healthcareproviders, medical staff, and governmental organizations in order to redefine healthcare processes and services towards a patient-centricproviders, medical staff, and governmental organizations in order to redefine healthcare processes and services towards a patient centriccarecare.