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That’s Just Crazy Talk Is a thoughtful and funny on-woman play that looks at both the light and dark side of living with bipolar disorder, anxiety and psychosis. It is the product of a research study in bipolar disorder exploring the impacts of a ‘lived experience’ theatrical performance on attitudes and understandings of mental health issues. The research is part of a two-year, knowledge exchange project funded by the Canadian Institutes for Health Research in 2009 to the principal investigators, Drs. Erin Michalak and Sagar V. Parikh with the Collaborative RESearch Team to study Bipolar Disorder (CREST.BD), the Canadian Network for Mood and Anxiety Treatments (CANMAT). In this presentation, Dr. Erin Michalak provides an overview of this translational research project, including highlights from preliminary findings. Originally presented in January 2012 in Victoria, BC.
Citation preview
'That's Just Crazy Talk': Using theatre to address
mental illness stigma
Dr. Erin Michalak1, Dr. Sagar Parikh2, Dr. Jamie Livingston3, Victoria Maxwell4
1University of British Columbia, 2University of Toronto3BC Mental Health and Addiction Services, 4Crazy for Life Co.
Objectives
1. To discuss mental illness stigma, in particular relating to BD
2. To share findings from a CIHR-funded study exploring the use of theatre to reduce stigma in both people with BD and health care providers
i. Human difference is distinguished and labeled
ii. Dominant cultural beliefs link persons to undesirable characteristics
iii.Persons are placed in distinct categories to separate “us” from “them”
iv. & v. Labeled persons experience status loss and discrimination
“It takes power to
stigmatize”
In Their Own Words
a cloud over you
rejectionthe injustice and
unaccountability of psychiatrists
something that’s directed at you
maliciously
when people bad mouth me about my
mental illnessnegative mark on someone
being haunted by the past
when people think the mentally ill are
weird or dangerous
an anchor that you need to carry around
being called derogatory names by educated
professionals
being royally screwed
a label that destroys your
whole reputation
when people treat you like
a dog
when people look down
on you
being treated unfairly by
people
a deformity
a character defect
look at someone and they say “oh,
he's crazy"
"prejudice" in a more specific
sense
3 Levels of Stigma
Self StigmaCharacterized by negative feelings (about self), maladaptive behaviour, identity transformation, or stereotype endorsement resulting from an individual’s experiences, perceptions, or anticipation of negative social reactions on the basis of a stigmatized social status or health condition.
Livingston & Boyd. (2010). Social Science & Medicine, 71: 2150.
3 Levels of Stigma
Social Stigma
Describes the phenomenon of large social groups endorsing stereotypes about and acting against a stigmatized group.
Corrigan et al. (2005). Applied and Preventive Psychology, 11: 179 .
3 Levels of Stigma
Structural Stigma
Refers to the rules, policies, and procedures of social institutions that restrict the rights and opportunities for members of stigmatized groups.
Corrigan et al. (2011). Challenging the Stigma of Mental Illness: Lessons for Therapists and Advocates. John Wiley & Sons.
Swine Flu Stigma
The spectrum of bipolar disorder
Goodwin FK, Jamison KR. Manic-Depressive Illness; 1990.
Mania
Hypomania
Depression
NormalMood
Variation
Normal
CyclothymicPersonality
CyclothymicDisorder
Bipolar IIDisorder
UnipolarMania
Bipolar IDisorder
SevereDepression
• BD – the orphan child?
• Are some symptoms of BD particularly stigmatizing?
• Hyper-religiosity
• Hyper-sexuality
• Psychosis
• Instability
Stigma and BD
How do we reduce stigma?
Theatrical performance
targeting internalised
stigma
Development of KE tools for findings on
wellness strategies for BD
Development of KE tools for new
BD QoL scale
Knowledge to ActionQuality of Life, Stigma, and BD:
A Collaboration for Change
That’s Just Crazy Talk
Three study components:
1. Stigma2. QoL assessment 3. Wellness strategies
Two target groups:
4. People with BD5. BD healthcare providers Two main research sites:
6. Vancouver 7. Toronto
QoL.BD scale
Wellness study team
Knowledge Exchange
Theatrical – based
performance
To exchange knowledge with people with BD and healthcare providers about how to recognize internalized stigma, how to
deal with it, and how to recognize and respond to public stigma.
To provide a compelling theatrical presentation that will engage people with BD and healthcare providers simultaneously to
reinforce mutual understanding.
Specific Objectives
Methods – (I)• People will watch and evaluate a new play by established
playwright and actress Victoria Maxwell, as well as participate (optional) in post-screening discussions
• Deliberately, people with BD, healthcare providers, and the general public will watch at the same time – building a shared experience and also allowing for sharing of question and answer period following play
• Play creation, performance, and evaluation all product of CIHR grant
Methods (II) Evaluation Strategies
Satisfaction scales and standardized Stigma scales (MICA-4, Day Scale, ISMI)
Assessment scales administered at 3 time points: (T1) prior to the theatrical intervention (T2) immediately after the intervention
(T3) 3 months post intervention.
Telephone interviews at 3 months post-play to elicit narratives regarding reflections and impact of the
performance
Day’s Mental Illness Stigma
Scale
Day Scale
Internalized Stigma of Mental Illness
Scale (ISMI)
Internalized Stigma of Mental Illness (ISMI) Scale
Mental Illness: Clinician’s Attitudes
Scale (MICA)
Mental Illness: Clinician’s Attitudes (MICA) Scale
Performances • 3 research events (Vancouver & Toronto)• 2 public events (Toronto and
Victoria )
Participants• 89 health care providers • 81 people with BD• 3 individuals indentifying as both • Over 270 general public
• TJCT is valid, receiving positive feedback across people with BD, healthcare providers and general audience members
• 98% of participants described the event as ‘good’ or ‘excellent’
• TJCT observed to have the potential to affect stigma
• 85% of healthcare providers and 67% people with BD thought the play could ‘change public acceptance of BD
Results: feedback
Healthcare ProvidersPRE POST
Effect Size
N M SD N M SD t df P d
.123 0.17
83 .000 0.585.5584 2.07 0.61
8130.61 6.52 82 29.77 6.65 1.56
0.27Professional Efficacy 84 2.74 1.35 84 2.53 1.32 1.78 83
84 2.20 1.38 2.44 83 .017
Stigma among Clinicians (MICA) (a=0.66)
.079 0.20
84
3.42 83 .001 0.37
Anxiety* 84 1.72 0.89 84 1.60
3.40 0.83 0.01 83 .990 0.00
0.82 2.14 83 .035 0.24
84 2.06 0.94 4.35 83 .000 0.48
Hygiene**84 1.93 0.99 84 1.67 0.87
Treatability 84 1.74 0.76 84 1.52 0.54 2.94 83 .004 0.32
Stigma (DMISS) (a=0.87)
Recovery* 84 2.55 1.31
Relationship disturbance* 84 2.38 0.99
Visibility* 84 3.40 0.84
Total*** 84 2.26 0.63
Total 82
*p<.05, 2-tailed; **p<.01, 2-tailed; ***p<.001, 2-tailed
• Significant improvement on DMISS domains:
• ‘relationship disturbance’ (concerns about BD-related disruptions to normal, meaningful relationships)
• ‘hygiene’ (negative beliefs about the appearance and physical self-care of people with BD)
• ‘recovery’ (negative beliefs about the potential for recovery from BD)
• ‘anxiety’ (affective feelings of anxiousness, nervousness, uneasiness, and fear of physical harm when around someone with BD)
• ‘treatability (negative beliefs about the treatability of a person with BD)
Healthcare provider results: headline
People with BDPRE POST
Effect Size
N M SD N M SD t df P dStigma (DMISS) (a=0.88)
Social withdrawal 79 2.04 0.68
Self-Stigma (ISMI) (a=0.94)
Discrimination experience 75 2.20 0.63
Relationship disturbance* 80 3.22 1.23 80 3.00 1.22 2.42 79 .018 0.27
Alienation*78 2.35 0.70 78 2.23 0.77
75
2.61 77 .011 0.31Stereotype endorsement 77 1.55 0.45 77 1.56
2.24 0.72 -0.61 74 .542 0.08
0.45 -0.48 76 .635 0.04
0.02Stigma resistance 77 2.02 0.61 77 1.93 0.58 1.14 76
79 2.05 0.75 -0.32 78 .751
74 .319 0.13
.259 0.14
Total 75 2.01 0.49 75 1.98 0.55 1.00
*p<.05, 2-tailed; **p<.01, 2-tailed; ***p<.001, 2-tailed
• In people with BD, significant improvement on ISMI ‘alienation’ domain
• Floor effect at play
People with BD results: headline
Next Steps• Performances scheduled: • Toronto, ON- CME Congress, June 2012• Boston, Mass – Nat’l Society of Genetic Counsellors Conference, October 2012
• Distribution of DVD • March 2012
• 1000 in production
[email protected]/#!/CRESTBDBipolarResearch