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Weighing in on Social Media Hands-On Social Media Workshop ADEU -- Association of Diabetes Educators of Utah Update Pre-Conference Workshop November 4, 2009 Presented by Nancy Lombardo, MLS; Todd Vandenbark, MLS/TM; Ginny Burns, CDE, RN, MEd; Grant Sunada, MPH
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ADEU Update Pre-Conference WorkshopNovember 4, 2009
Presented by Nancy Lombardo, MLS;Todd Vandenbark, MLS/TM;
Ginny Burns, CDE, RN, MEd;Grant Sunada, MPH
Weighing in on Social MediaHands-On Social Media Workshop
ObjectivesBe able to define “Web 2.0” technologies and
describe their characteristicsLearn how to apply relevant Web 2.0
technologies Practice using some of the technologies Discuss ways to incorporate Web 2.0 into your
professional lifeHave fun!
OverviewWeb 2.0 definitionsWhat is Social Software?
What is it good for?Web 2.0 and Diabetes
Our conundrumHow to start?
Social Networking: Listening, Connecting, CreatingListening: RSS – Hands OnConnecting
“Micro-blogging” (Twitter) – Hands On Facebook – Hands On
Creating: Blogs – Hands OnQuestionsConclusions
5
Diabetes in Utah
1. Utah Health Status Survey (2007-2008). Office of Public Health Data. Utah Department of Health, Salt Lake City, UT
2. Utah BRFSS 2005-2008
More than 120,000 Utah adults (6%) have been diagnosed with diabetes1
13.3% of Utah adults with diabetes are uninsured2
6
Why in UtahMinorities have risen from 1.9% (1960) to 17.7%
(2007)1
Disparities exist in age-adjusted percentages of Utahns with diabetes by race & ethnicity2
1. Pamela S. Perlich, http://health.utah.gov/cmh/data/UtahDemographicTransformation.pdf2. Diabetes in Utah (2008), http://health.utah.gov/diabetes/pdf/fctsandfig/diabetesinutah_book_May08.pdf
American Indian
Pacific Islander
African American
Non-Hispanic
White
Asian American
Hispanic/Latino
Our society is changing
… so is the World Wide Web
Web 2.0 Definitions
9
Web 2.0StaticLectureExpert-Model
InteractiveConversationConsumer [Patient]-ModelPublic wants to have all the
information From multiple sources In ways they can
understand From experts AND peers When they want it
Web 1.0
• http://www.brochure2blog.org/
What Is Web 2.0?
Originally coined by Tim O’Reilly of O’Reilly Publishing in 2003
Classic article:http://www.oreillynet.com/pub/a/oreilly/tim/
news/2005/09/30/what-is-web-20.html User participationHarnessing the collective intelligenceDesign for "hackability" and remixability
Wikipedia Definition
“2nd generation Internet services that let people collaborate and share information online in previously unavailable ways” (wikipedia)Blogs, wikis, photo / video sharing sites,
social networking sitesOnline web services that share data
(“mashups”)
Two Sides of Web 2.0
Two-Way Communication(“Social Software”)Creates
conversations between people
Examples Blogs Wikis Photo/video sharing Social networks
Web ServicesSoftware online
Google Tools Protopage.com/websoft
Mashups Photos overlaid on
Google EarthEmbed services
Google custom search engine, Google calendar, etc.
Two Sides of Web 2.0
With social media, people communicate with each other.
With web services, machines communicate by sharing data.
What is Social Software?
Whoa, but what is it good for?
Sharing with othersCreating knowledge basesMaking connectionsBuilding communitiesEngaging colleaguesEmpowering patientsAll of these things and more!
16
The “Digital Divide”
A Possible Bridge:Mobile Access
~32% of all adults having ever gone online with a handheld (2009): 48% of African Americans 47% of English-speaking Hispanics 53% of those between the ages of 18 and 29 39% of college graduates 28% of white Americans
http://www.pewinternet.org/Reports/2009/12-Wireless-Internet-Use.aspx
18
Generation GapOlder generations use the Internet for
information searches, emailing, and buying products (2009).
More likely than younger generations to look online for health information.
Health questions drive those age 73 and older to the internet just as frequently as they drive Generation Y users, outpacing teens by a significant margin
““Get health info”Get health info”
http://www.slideshare.net/PewInternet/generations-online-in-2009-charts
21http://www.pewinternet.org/Reports/2009/8-The-Social-Life-of-Health-Information/02-A-Shifting-Landscape/2-61-of-adults-in-the-US-gather-health-information-online.aspx?r=1
22
Web 2.0 & Diabetes8 in 10 internet users (regardless of health status) look
online for health info1
AKA e-Patients
86% of internet users living with a disability or chronic illness have looked online for health information2
compared with 79% of internet users with no chronic conditions
Just half of adults with chronic conditions use the internet2
But once online, they are avid consumers of health information
1. http://www.pewinternet.org/trends/User_Demo_Jan_2009.htm2. S. Fox, http://www.pewinternet.org/Reports/2007/Epatients-With-a-Disability-or-Chronic-Disease.aspx• S. Fox, http://www.pewinternet.org/Reports/2008/The-Engaged-Epatient-Population.aspx
23
Web 2.0 and Diabetes (cont.)E-patients living with a chronic condition are more
likely than others to say that online info:Affects decisions about how to treat an illnessPrompts new questions of a doctorChanges the way they cope with a chronic condition or
manage pain1
However, they feel frustrated by a lack of info or an inability to find what they are looking for
1. S. Fox, http://www.pewinternet.org/Reports/2007/Epatients-With-a-Disability-or-Chronic-Disease.aspx• S. Fox, http://e-patients.net/archives/2009/01/doing-our-best-to-blow-your-minds-emerging-trends-in-chronic-disease-care.html
24
Our ConundrumMost people under age 40 are fully engaged with
“social media” but not yet dealing with chronic illness
Most people over 60 are starting to face chronic conditionsbut are not participating in social media
This is changing, but what do we do???
1. S. Fox, E-patients With a Disability or Chronic Disease, http://www.pewinternet.org/trends.asp
25
Provide the Best Information Using the Best Communication Methods
• http://www.brochure2blog.org/
Don’t just tell people what to doTry to empower them to be better consumers of health
information
Make it easier to distinguish good information from badRise above junk-infoUser-generated content is here to stayReal risk is for diabetes professionals to be quiet
Tailor content and delivery to the audienceEncourage their participationPromote dialogueEnable people to tell their personal stories
26
How to proceed or even start?People generally don’t believe that the
Internet is a panacea1
But it is empowering patients like never before2
What do you do now?ListenConnectCreate
1. S. Fox, http://www.pewinternet.org/Reports/2008/The-Engaged-Epatient-Population.aspx2. e-Patients: How they can help us heal healthcare, http://www.acor.org/epatientswiki/index.php/
Listening
Creating
Connecting
BLOG
Fooducate: 3 steps to embrace social media for RDs #FNCE2009 http://yfrog.com/0r42459875j 12:44 PM Oct 19th http://twitter.com/fooducate/statuses/4998762906
28
Developing a strategy: Identify Target Audiences, Goals and Mediums
Starting point – Utah Diabetes Prevention and Control ProgramKnew that online resources provided general information
about diabetesReceived a lot of requests for more specific, local
information
29
Forward to Local Expert*Local Diabetes
Questions
LocalAnswers
????
* “Local Expert” not necessarily a diabetes expert
30
Identify Target Audiences, Goals & MediumsGoal – Help connect the members of our community
who have diabetesSupport each otherGain a better understanding of our diseaseConnect with local resources
31
Forward to Local Diabetes
Expert
Record for Public
ReferenceLocal Answers
Local DiabetesQuestions
32
33
Addressing a Community Need
Gestational patientHigh glucose levelsDifficulty getting into a free clinic and sliding-
scale fee clinic
Calls were made in her behalfLed to a discussion with medical directors
34
Improving local resourcesPatient had Primary Care Network insurance
Had questions about diabetes pump suppliesCalled state office but information was
confusing for patient and PCN staff
Notified State officeArranged for more training for PCN staff
members about diabetes products
35
Sharing Information & ExperiencesHypoglycemia question
Individual had a chance to describe her unique symptoms
Sends note back saying it was helpful to understand she was not alone
36
38
Entrance KeywordsWhat did a person type into their search engine to find Ask
Ginny?
cost of insulin pump utah carbohydrates lip tingle colds and flu medication for diabetics carbohydrate grams for pre diabetes
vegetarian my ears are buzzing help i'm a
diebetic minimed supplies utah diabetes ideal glucose number blue cross blue shields of utah
diabetic pump coverage where to purchase a minimed insulin
pump in utah i am a type 1 diabetic..should i
exercise when i have a cold diabetes type 2 grams of carbs for
dinner
how many grams of sugar is o.k. on a daily basis for someone with type 2 diabetes
how many grams of carbohydrates are in 1 piece of pumpkin pie
is there a place where i can get a free high blood check in salt lake city, utah
diabetes help utah program for uncontrolled diabetes questions to ask on diabetes i had a glucose level of 104 but my
a1c was normal blocked nose and low glucose levels gestational diabetes vegetarian
menu
39
Intermountain Healthcare IntranetImproved interactions between
Provider-PatientProvider-Provider
Patient-Patient?We know that it is powerful
40
Think globally, but …what can you do locally?Create a public or private
Twitter accountExample from Frankie951
Option to connect via Internet and/or text messages
Connect with other CDEsConnect patients togetherLimited to 140 characters
Provide links to in-depth information
1. http://www.rikomatic.com/blog/2009/06/twitter-as-an-event-organization-tool-our-experience-with-the-frankie-95-birthday-festival.html
41
Think globally, but …what can you do locally?Create a local diabetes Q&A blog
Try Blogspot, Wordpress or othersSet up to receive questions and comments via e-mailPatients can also respond to questions
Moves beyond Q&ALink to Twitter account with TwitterFeedUse keywords (“meta-tags”) to increase people’s ability
to find your blog Remember to track your web traffic with Google Analytics,
Wordpress or others
42
Think globally, but …what can you do locally?
Join or create a diabetes social network on Facebook.com or Ning.com Join an existing national or
international network AADE on Facebook TuDiabetes.com
Connect local support groups Create a local identity Local diabetes educators and
experienced e-patients become “moderators”
Next steps for Ask GinnyConverted Ask Ginny to a
Blogspot blogLinked blog to TwitterLinked both to a Facebook PageCreation of “Ask Ginny &
Friends”Improved sustainability
44
Next steps for diabetes in UtahCreate a tool for diabetes educators and professionals under
the working title Online Family & Community Health Center
Use empowerment education model1 to help those affected by diabetes:1. Reflect on self-management experiments2. Discuss the emotional experience of living with diabetes3. Engage in systematic patient-centered goal setting and problem
solving4. Answer clinical questions and provide culturally tailored
education materials
1. Martha M. Funnell, Robin Nwankwo, Mary Lou Gillard, Robert M. Anderson, and Tricia S. Tang. Implementing an Empowerment-Based Diabetes Self-management Education Program. The Diabetes Educator, 2005, 31: 53-61.
45
Next steps for diabetes in UtahTarget audience
Uninsured people affected by, or at risk for, diabetes Those who care for and care about them
Reach Partner with universities to conduct market research Explore public kiosks, public libraries, ATMs and elementary
schools Utilize text messages, existing media channels and support
groupsLaunch – First Phase – World Diabetes Day (14 November
2009) The Faces of Diabetes in Utah Inspired by local girl scout Current site – http://inspiredbydiabetes.blogspot.com Future site – http://health.utah.gov/facesofdiabetes
Social Networking
Listening
Creating
Connecting
BLOG
Fooducate: 3 steps to embrace social media for RDs #FNCE2009 http://yfrog.com/0r42459875j 12:44 PM Oct 19th http://twitter.com/fooducate/statuses/4998762906
Listen, Connect, Create
RSS - Listen and ConnectReally Simple Syndication
Subscribe to information “feed”Receive updates automatically
“Current Awareness Service”Automatically receive PubMed searches,
journal table of contents or newsNew information tailored to your
interestsNo email overload!
The “Old Way” – Web sites
The “New Way” – RSS feeds
How do you find an RSS feed?
Search for RSS feeds: http://technorati.comhttp://newsisfree.comhttp://medworm.comOR ask a colleague or friend
As you are surfing, watch for the bright orange icon…
Using and reading RSS feedsPlay around with various servicesSee which one works best for you (and
that is easy to use!)
PubMed and RSS
PubMed: http://pubmed.gov/
PubMed and RSSKeep up with the current literatureReceive literature updates from PubMed
searches
Professional Journal and Current Awareness RSS FeedsDiabetes Educator
http://tde.sagepub.com/rss/American Diabetes Association journals
(4 Titles)http://diabetes.diabetesjournals.org/rss/
Medscape Headlines in RSShttp://www.medscape.com/pages/public/rss
RSS Demo and Exercise
Listening
Creating
Connecting
BLOG
Fooducate: 3 steps to embrace social media for RDs #FNCE2009 http://yfrog.com/0r42459875j 12:44 PM Oct 19th http://twitter.com/fooducate/statuses/4998762906
Connect:Micro-blogging
A means of publishing brief text updates140 or fewer charactersPossible uses
Communications: keeping up with colleagues and leaders in your field
Communications: control over your messageMarketing 1: publicizing services, trends,
events and resourcesMarketing 2: identify your community and
build those relationships
Twitterhttp://twitter.comThe short micro-
blog messages are called “Tweets”(< 140 characters)
You can “follow”your colleagues
They can “follow”you
Search topics or people
Ways to Send a Tweet
Directly on Twitter’s websiteThrough an IM client (GoogleTalk,
Jabber)From your mobile phoneTwitter Demohttp://twitter.com
Who uses Twitter?
Utah Diabeteshttp://twitter.com/UtahDiabetes
Ask Ginnyhttp://twitter.com/askginny
American Diabetes Association http://www.diabetes.org/
Amer Assoc of Clinical Endocrinologists(AACE) - http://www.aace.com/
Utah Diabetes - http://twitter.com/UtahDiabetes
Ask Ginny - http://twitter.com/askginny
American Diabetes Association - http://www.diabetes.org/
Twitter Problems
Down timeSustainabilityPrivacyAdds to distraction level
Productive Uses for Twitter
“Push” out information to the publicHealth AlertsServicesNewsletterEventsWellness Coaching
IndividualWeight managementSmoking cessationSocial Support System
Twitter Discussion
What do you think? Useful or waste of time?Let’s try it!
Connect - Facebookhttp://facebook.comFind friendsPost statusChatEmailJoin groupsPlay gamesShare PhotosBe a “fan”
Facebook PagesA public figure, business, or organization can
create a Facebook Page to share information, interact with their “fans”
Optimized to represent a business, or organization
Separate from user profilesPages can only be created to represent a
real organization, and may only be created by an official representative of that entity
Use your personal account to manage a Facebook Page for your organization
Facebook GroupsAn informal networkUsed for discussions and special eventsCan help organizations connect with their
stakeholdersEmployeesCustomers/services usersShareholdersGeneral public
Anyone can create a group
Exercises
Exercises
Exercises
Exercises
Listening
Creating
Connecting
BLOG
Fooducate: 3 steps to embrace social media for RDs #FNCE2009 http://yfrog.com/0r42459875j 12:44 PM Oct 19th http://twitter.com/fooducate/statuses/4998762906
Create - Blogs
In theory, blogs take the complexity out of creating content, or publishing, on the web
Most blogs have a comments area to facilitate feedback and conversation
Blogs are (usually) organized in reverse chronological order
Blogging started out as first-person, informal communication
Blogging has evolved to include professional, political, and editorial communication/publication
How a blog can benefit a healthcare organization?Destination for information and
community newsResponsive to feedbackMore staff can be involved with the
websiteIncluding the public in the
“discussion” is easierEmergency notifications
Blogs for Diabetes Information
Who is the author?Is she or he affiliated with a reputable
organization?What is the author's educational background or
experience?What is their area of expertise?
Is the information provided based on proven facts? Is there information provided to support
statements of fact?
Evaluate blogs as a source
Search Engines for Blogs
• Google blog search: http://blogsearch.google.com/
BlogCatalog with directory for browsing:http://www.blogcatalog.com/directory/
May be better off searching Google with “blog” in the search.
Medworm:http://www.medworm.com/
Blog Software
Online ( free, hosted) servicesBlogger.com - http://blogger.com/TypePad - http://www.typepad.com/
Software installed on your serverWordPress (open source)MoveableType (commercial)
Blog Features
Features to look for when choosing blog software:Authors and permissionsCommentsNotification servicesCategoriesCustomization options
Templates vs. programmingPublishing options
Publish from e-mail or mobile deviceRSS feeds
Blog Exercise
Questions?
Will you use Social Networking tools in your future work?
What opportunities for communications and collaboration in your work might be possible with these tools?
Conclusions
These tools are easy and fun! New software and services change rapidlyLiving in the “ever beta” worldTaking advantage of user-generated
contentFind the combinations that work for youKeep an open mind!
We shall see!
Thank you!
Contact usGrant Sunada:
E-mail: [email protected] Office: 801-538-6141 Twitter: @UtahDiabetes
Ginny Burns: E-mail: [email protected] Twitter: @AskGinny Blog: http://askginnyaboutdiabetes.blogspot.com… or [email protected]
Nancy Lombardo: E-mail: [email protected] Office: 801-581-5241 Twitter: @nancylombardo
Todd Vandenbark E-mail: [email protected] Office: 801-581-5263 Twitter: @tvandenbark
Website for workshop: http://library.med.utah.edu/ed/web20/ , OR http://tinyurl.com/w20ADEU
96
THANK YOU!