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Using PersonalisedTechnology to Improve the
Health and Wellbeing ofPeople with Learning
Disabilities
Emma NicholsFebruary 2016
Social Care Spend
51.3%
9.2%
31.2%
6.4% 0.1% 1.8%
Older People Physical Disability Learning Disability
Mental Health Asylum Seakers Other Adult Services
Total Adult Social Care Spend 2013/14: £17,250m
People are living longer
Early 1900s Late 1900s
Male Female Male Female
General population 45 49 81 84
People with learning disabilities 18 66
People with Down’s Syndrome 9 50
– Respiratory disease (e.g. pneumonia and aspiration)– Coronary heart disease (particularly congenital heart
disease)– Gastrointestinal disorders (e.g. gastro-oesophageal
flux disease)– Epilepsy– Cancer (particularly gastrointestinal cancers)– Sensory impairment– Osteoporosis– Hypothyroidism (particularly in Down’s Syndrome)– Mental illness and challenging behaviours– Obesity– Poor oral health
Leading Causes of Death in People with a LearningDisability
• How do we know people are getting ill?• Diagnosis• Visiting the GP• Hospital Admission• Consent (MCA)• Communication between professionals
(care provider, social care, health care)
Challenges for people with learningdisabilities
• Clear health care recording of people with learningdisabilities?
• Named Health Care Co-ordinator for people with complex ormultiple health needs
• CLDT to offer support to access services• Specialist Advice on MCA, including staff training• Long term health care plans including end of life plans• Recording of causes of death• Level playing field
CIPOLD key recommendations(Confidential Inquiry into the Premature Deaths of People with LD)
PT and Innovation projectprinciples
Esteem needs
Social needs Achievementneeds
Safety needsBasic needs
PT andInnovation
Maslow and technology
Need PT ExampleBiological and Physiologicalneeds
Medication solutionsEnvironmental Controls
Safety needs TelecareFinger Print Lock
Belongingness and Love needs Communication aidsVirtual Social Network
Esteem Needs Taking as much control aspossible of 1,2, 3 above
R & D Projectse-MAR
• eMAR (electronic MedicationAdministration Record) system
• Developed by Hft and Graphix Asset
• Designed to make process easier
• Generates reminders about missed/ latemedication
• Significantly reduces medication errors
Lincus
• Tablet-based, self-reportingtool
• Allows people to communicate how they are feeling
• Initially developed for YMCA
• Hft and Rescon developed an LD version
• Trialed in Devon
• Extending trials
Lincus Surveys
GeneralHealth
MentalHealth
Social Life EmotionalHealth
Wellbeing Mood Social Mood AngryComfort Stress Home
SituationExcited
Tired Engagement Lonely SupportedHunger Control Family Time Supported
SpirituallyThirst
Outcomes from the Lincus pilot:
• 20% increase in emotional health andwellbeing
• Diagnosis of advanced osteoarthritis
• Reduction in challenging behaviours
Lincus data
• HEF is an evidence based outcomesframework for people with learning disabilities
• Considers recommendations - CIPOLD• Aims to reduce health inequalities for people
with learning disabilities – creating a level playingfield for the people we support.
• Measures the impact of services on a personshealth and wellbeing
• It enables staff to make changes to anindividual’s health plan to ensure they have agood quality of life
What is HEF+?(Health Equalities Framework)
£75,000 over 15 months to integrateHEF+ into the Lincus platform. Making it:
• Easier to use• Easier to collate information• Clear data and reporting• Indicate where remedial action is
required (Health Action Plans)
Trialing at Hft services in Gloucestershire(supported living) and Bradford (dayservice).
Project began in November 2015.
Health Foundation project: HEF intoLincus
• Demographic challenges• Resource and funding is tight• Health and social care are not fully
integrated• How services are costed – hourly rate vs
outcome led budgetingBut…• Technology can make a difference to the
health and wellbeing of people withlearning disabilities and others
In summary