Jaklina Michael - RDNS - Partnering with Consumers to Improve Dementia- Related Health Literacy

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  • Partnering with Consumers to improve Dementia Related Health Literacy

    Jaklina Michael, Dianne Goeman, Jordan King, Huy Luu, Claire Emmanuel, Susan Koch

    Jaklina MichaelManager, DiversityNational Dementia Conference21st & 22nd March 2016Brisbane, Queensland

  • Diversity at RDNSAbout the Talking Book

    Practical demonstration

  • Diversity at RDNS

    More than 2 million to more than 45,000 clients

    81% age 56 + & 63% age 70+ High % women & lone-person household

    High % disability

    High % pension income source

    0.7% Aboriginal

    60% born overseas

    159 countries & 117 languages

  • RDNS Ltd. 20134

  • Diversity Conceptual Model - Article

    Michael J. Diversity Conceptual Model for aged care:

    Person-centred, difference-oriented and connective

    with a focus on benefit, disadvantage and equity.

    Australasian Journal on Ageing 2016 (In press).

  • Diversity at RDNSAbout the Talking BookPractical demonstration

  • Aim

    To develop a Vietnamese Dementia talking-book to

    address low health literacy in older people of

    Vietnamese background living with dementia

  • Design

    This qualitative study utilised co-design and

    participatory action research to develop and refine the

    talking book in consultation with expert stakeholders.

  • Data collection

    There were two main phases in the development of the

    talking book:

    Phase 1 - Selection and assessment of the English

    content and grade reading level

    Phase 2 - Evaluation of the finished product

  • Participants: Design of bookParticipated in the co-design and refinement of the talking

    book:

    Phase 1 - Fifty-nine members of the Vietnamese

    community, 11 stakeholders from community health

    services and ethnic agencies and consumer advocacy

    groups

    Phase 2 Twenty-two members of the Vietnamese

    community

  • Setting

    Vietnamese community planned activity groups in the

    western, northern and southern suburbs of Melbourne,

    Australia

  • Phase 1 Results:Co-design study

    Process : Partnering with consumers and expert

    stakeholders to identify consumer need

    Selection of content and appropriate language level

    Construction of the book

    Measuring acceptability of the talking book

    Modification based on feedback

    Production and dissemination

  • Phase 1 Results.

    The terminology you have used is the best way to explain Dementia.

    (Focus group participant 1)

    I am so happy it is in Vietnamese and English, it means l can share the information with my family who do not understand Vietnamese.

    (Focus group participant 20)

  • Phase 2 Results:Evaluation study of product

    Evaluation of the final talking book product

    revealed widespread consensus that the book

    enhanced the knowledge of members of the

    Vietnamese community in regard to understanding

    dementia and navigation and accessing of available

    services.

  • Phase 2 Results

    ... this is a very good one. People who don't

    understand in writing, they can understand in listen

    (Participant 1: male)

    The voice is very clear and he pronounces the words

    clearly, so its good. Its a good choice of the person

    reading it

    (Focus Group 3: male)

  • Diversity at RDNSAbout the Talking BookPractical demonstration

  • http://www.rdns.com.au/public/TalkingBooks/VietnameseDementia/VietnameseDementia.html

    http://www.rdns.com.au/public/TalkingBooks/VietnameseDementia/VietnameseDementia.html

  • Jaklina MichaelManager, Diversityjmichael@rdns.com.au0410 561 068

    mailto:jmichael@rdns.com.au

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