The 21st Century Connected Patient

Michael Seres @mjseres

Background to my health journey

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Impact of being a long-term patient

• It is so much more than just taking a tablet

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Psychological

Social

Family

Friendships

Financials

My connected world – my patient dashboard

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Embracing online tools – it started with a blog

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The power of patient-to-patient

• This article directly led to

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Four patients undergoing the same transplant

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The value of engaging with other patients

25% of all patients access online communities Expected to rise to 35% by 2016

Source: Pew Institute & HIT Consultant

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Citizen-driven health – a growing global revolution

• Quantified ‘self experts’ coming out of Scandinavia • Data experts in Holland • E-patient movement driven by the US • Patient engagement embedded in NHS culture • Patients named as top health innovators • Patients included in conferences

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How social media democratises the voice

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• Google can now predict

health trends

NHS

We trust our staff with patients’ lives, so why don’t we trust them

with social media?

Mayo Clinic

• Twitter health tweets up 53%

• YouTube uploads 100 million

hours of content every day

The biggest risk in health care social media is not participating in

the conversation

Data protection is not an excuse

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What can pharma do for me?

• Understand what it is like to walk in my shoes

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Patient use of technology

•86% of people go online to look up health-related matters

•71% do it via a mobile phone whilst at home

•Biggest age group online is 55+

•Most common reason for online use – chronic conditions

•60% of adults get information or support from friends and family

•35% of US adults say that at one time or another they have gone online

specifically to try to figure out what medical condition they or someone else might

have

Sources: CDW Report/ Pew Institute/Patient.co.uk

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Skype clinics

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Texting blood results

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What about tweeting them…

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Patients as innovators

Delivering remote monitoring, self management and improved quality of life

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A technological future

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• Patients like to be able to access advice when they feel anxious or have questions

• Waiting can often exacerbate the anxiety and online communities reduce that anxiety

Improves communication

Improves compliance

Increases patient

engagement

• A cultural shift to a policy of YES we can

• Build a tripartite relationship: pharma, doctor and patient

• Understand what it is like to be me

• Help me improve my outcomes whatever they are

My call to action