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Personal Healthcare and Patient
Privacy
Asst. Prof. Dr. Sudsanguan Ngamsuriyaroj
คณะเทคโนโลยสีารสนเทศและการส่ือสาร
มหาวิทยาลยัมหิดล
25 November 2016
National Conference on Medical Informatics 2016, Bangkok, Thailand
Agenda
• Traditional Healthcare Systems
• Personal Healthcare
• IT for Personal Healthcare
• Data Protection in General
• Privacy of Personal Patient Records
NCMedInfo 2016 2
Traditional Healthcare Systems
• Hospitals via HIS usually keep records of individual patients
• During care and diagnosis, individual information is collected, stored, processed, analyzed and used• Operated as a case-by-case basis
• Patient information is collected when a patient visits a hospital
• No information obtained when a patient is away from hospitals
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Traditional Healthcare Systems• How individual healthcare data is collected
• Frequency of collection (symptom, medicine, lab, etc.)
• Hospitals collect transactions of patient visits
• Data generated once a month or 3 months at a time
• Accuracy of data collection ?
• How individual healthcare records are kept• In a hospital information system (HIS)
• Patient privacy – Centralized control at HIS
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Personal Healthcare
• What if:• Symptom of a patient is collected every day
• Other extra information such as exercise activities and dietary intake are now possible to collect
• Data association among patients with similar symptom is analyzed
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Personal Healthcare
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http://www.tacomacc.edu/UserFiles/Servers/Server_6/File/him/HIM125/PurposeANDfunctionklee/PurposeANDfunctionklee_print.html
Personal Health Records
An electronic personal health record is an application used by patients to maintain and manage their health information in a private, secure and confidential environment.
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http://www.slideshare.net/magicalayush/personal-health-records-48040846
Personal Health Records
Benefits
• Accessible anywhere, anytime from any device
• Could be a lifesaver in an emergency as it gives vital information such as blood type, doctor’s contact, drug allergy, previous records of visits, etc.
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http://www.slideshare.net/magicalayush/personal-health-records-48040846
Personal Health Records• Doctor’s name and phone number • Allergies, including drug allergies• Medications, including dosages• Chronic health problems such as
high blood pressure or Cholesterol level
• Major surgeries with dates• Family history• Immunization history• Exercise and dietary habits• Health goals such as stopping
smoking and losing weight
NCMedInfo 2016 9http://www.slideshare.net/magicalayush/personal-health-records-48040846
https://itunes.apple.com/us/app/personal-health-record-lite/id586856275?mt=8
Personal Health Record Software
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https://www.healthspek.com/
Personal Health Record Software
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http://www.slideshare.net/magicalayush/personal-health-records-48040846
Personal Health Record Software
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https://play.google.com/store/apps/details?id=com.stabilix.hcandroid.activity
Personal Health Record Software
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Microsoft HealthVault connects end users with more than 70 devices, such as blood pressure and blood glucose monitors, weight scales, pedometers, and peak flow meters, enabling consumers to track and share their health information as they wish
https://www.healthvault.com/th/en/overview
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Connection of HIS and PHR
http://e-caremanagement.com/tag/personal-health-information-network/
Arrivals of IT for Personal Healthcare
•Mobile computing via smart phones• Collect and store personal health records
• Give security and privacy protection
• Internet of Things (IoT) via sensors• Collect vital signs from human body
•Cloud computing for data collection• A path to HIS
• A platform to collect and analyze health data
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Personal Health Record
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https://www.webmdhealthservices.com/product/personal-health-record/
PHR Applications on Mobile
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http://www.activdoctorsonline.com/solutions/personal-health-records/
PHR Data Collection via IoT Sensors
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http://www.iotmashups.com/the-internet-of-opportunities-its-just-the-beginning-of-the-iot-era/
IoT in Healthcare
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https://www.cbinsights.com/blog/iot-healthcare-market-map-company-list/
PHR on Cloud
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Deliver
Collaborative
Care for
Prevention and
Wellness
Achieve
Better
Quality And
Outcomes
Improve
Operational
Effectiveness
Healthca
re G
oals
Cloud Computing by
collaborative management
of patient data through
various departments helps
in delivering effective
patient care.
Provides advance
analytics of patient
data thereby enabling
more efficient diagnosis.
Brings Flexibility in
operations to support
cost reduction and
excels both clinical and
business performance.
Clo
ud C
om
pu
ting
Coordinated Work
Enhance Quality
Cost Benefits
http://www.slideshare.net/occamsresearch/cloud-healthcare-ppt-1
In USA, 83% of healthcare organizations using cloud-based applications
Privacy Protection in General
•De-identification/
Anonymization
• Encryption
NCMedInfo 2016 21
http://shop.oreilly.com/product/0636920029229/ViewLarger.do?sortby=publicationDate
Data Anonymization
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Data anonymization is the process applied on data to prevent identification
of individuals, making it possible to
share and analyze data securely
http://www.slideshare.net/KaiX/lions-zebras-and-big-data-anonymization
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Data Anonymization
http://www.slideshare.net/KaiX/lions-zebras-and-big-data-anonymization
Data Anonymization
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http://www.slideshare.net/PrivacyAnalytics_Anonymization/improving-healthcare-outcomes-with-deeper-insight-from-anonymized-data
Data Anonymization
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http://www.slideshare.net/PrivacyAnalytics_Anonymization/improving-healthcare-outcomes-with-deeper-insight-from-anonymized-data
Encryption / Decryption
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Data at rest or Data in transit
https://avraj.wordpress.com/tag/tutorial/
Symmetric KeyEncryptionusing one key
Encryption / Decryption
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Data at rest or Data in transit
https://avraj.wordpress.com/tag/tutorial/
Public KeyEncryptionusing two keys
Data and User Classification• Sensitive data
• HN
• Name
• Symptom
• ICD 10 – Disease Code
• Prescription records
• Doctor name
• Family records
• Non-Sensitive• Address
• Mobile phone
• Emergency contactNCMedInfo 2016 28
• Patient
• Doctor
• Nurse
• Lab technician
• Pharmacist
• Family members
• Insurance company
Secure PHR on Cloud
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Changji Wang, Xuan Liu, Wentao Li, Design and implementation of a secure cloud-based personal health record system using ciphertext-policy attribute-based encryption, International Journal of Intelligent Information and Database Systems, Jan 2013
Secure PHR on Cloud
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http://www.slideshare.net/naveenbtlit/scalable-and-secure-sharing-of-personal-health-records-in-cloud-computing-using-attribute-based-encryption-21661227
• Data generation
• Data collection
• Data storage
• Data usage
• Data sharing
• Data archive
• Data removal
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Privacy of Personal Patient Records
Data Lifecycle
http://www.spirion.com/us/solutions/data-lifecycle-management
Q & A
THANK YOU
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