Macmillan London Strategy User Task Force Project Review & Planning Session, 23rd March, 10:30am - 12:00pm

Flow Feedback from event Review of prototypes Focus & plan for fourth event

Overall project objectives• Provide people affected by cancer with a new

model for participating in leading and driving change within the framework of the London Strategy.

• Put people affected by cancer at the centre of decision-making about the future shape of holistic cancer care in London by providing funding, learning, development and access to decision-makers/experts

March event objectives• To bring (back) together a diverse group of

people people affected by cancer and organisations

• To begin to prototype the early solutions developed by the group through events 1 and 2

• To draw out further possible connections to relevant partners (corporate, charity, non-profit)

4

Flow Feedback from event Review of prototypes Focus & plan for fourth event

Feedback from event•38 people attended (10 also attended pilot)

• 8 attendees were London-based service designers/innovators

• 2 attendees worked with cancer patients (London Cancer/NHS England)

•20 have answered the evaluation form (so far)

•2 sent unprompted follow emails with thanks/positive comments (including one poem again!)

Positive feedback…• Overall score 4.2 out of 5

• 100% thought the organisation was Fabulous or Good

• 87% thought the food was Fabulous or Good

• 82% thought the venue was Fabulous or Good

Positive feedback

“Really well organised and run. I thought the fact that we were asked to come up with a 'prototype' idea meant that the discussions were far more focused than they otherwise might have been, and in turn the ideas that resulted felt more substantial. ….Enjoyed it very much!

“Innovative with lots of energy”

“Brilliant, very informative and it was a great place to network. It was amazing finding out that others shared the same platform and thinking about cancer.”

“The progression to formulate concrete ideas over three sessions was excellent. ”

What makes Capital C work? I really feel that our contributions are valued at these events, rather than just paying lip service to canvassing patients experiences. I also like that there is a fun atmosphere around what could be handled as a serious subject...because of this people relax more and it's generally more productive.

Communications easy friendly and well timed….always actively welcoming, and it feels like something tangible and worthwhile comes out of the sessions

Good to see the diversity and variety of those involved. Quite dynamic groups and involvement.

Hearing views on all aspects of cancer experience and a surprise that technology seemed to be part of the solutions that came up in the presentations

Lovely event I always enjoy and feedback to my groups at local level.

Everything is very friendly, yet efficient and well organised.

Continuing potential to develop

•100% happy to involved in the next event

•6 (of 16 respondents) had not attended before;

•10 had attended at least one of our other events.

What could we do better?50% said “Nothing”.

• Space/room made it difficult to see some presentations

• Clarity over whether the groups needed a facilitator

• Late comers were disruptive

• Clarify what is possible and what is not

• Evening felt too long for some

• Evaluation form (?)

Flow Team reflections Feedback from event Review of prototypes Focus & plan for fourth event

Visual summary from Scriberia

Six Themes 1. Relationships 2. Mental wellbeing/coping with uncertainty & isolation 3. Physical well-being and health 4. Employment 5. Finances 6. Sense of identity

7 Challenges

• Solution focused on development of a discount card (a ‘key’ that would open doors in London)

• Link to transport, need to improve relationships

CHALLENGE 1 How might we help ease relationships with friends and family by providing access to London’s

transport and unique arts/cultural activities for days out?

CHALLENGE 2 How could we tap into the vast population in the city to find a personalised buddy or doula-type mentor for

everyone directly affected by cancer in London?

• Took idea of match.com - applied to cancer patients

• Individuals would create a profile that could be matched based on common interests & problems

• Would enable searches based around needs/specific criteria

• Other areas of interest could include wills, power of attorney or issues related to life stage

• Need for safeguarding

CHALLENGE 3 How could we make the information/services/groups in London available and accessible to everyone in a single, online

place?

• Based on idea that people often don’t know where to look or what to trust online

• A full information resource, linked to information in charities and the NHS

• Also linked to online places/spaces and would be searchable based on postcode/type of cancer etc.

• Offline ‘yellow pages’ or support to get people set up and using the platform

CHALLENGE 4 How might we help people who have had cancer in London re-train, building their skills and confidence to get back to work

with the support of larger, London-based organisations?

• Link to employers and create a ‘job tasters’ programme (fully paid?)

• Cancer champions could represent their organisations/companies and talk about their own experiences as well as opportunities

• Assistance to build your CV and focus on capabilities not just qualifications

• Support with retraining or returning to work

• Need to rebuild confidence as well as career

CHALLENGE 5 How could we best provide improved information for employers/employees so that they better understand the needs and the

rights of people living with cancer in the workplace?

• ‘Advocates’ who could be trained online, focused on Equalities Act

• Online toolkit for employers & employees

• Recognition of the need to have employees, employers & advocates on the same side by focusing on getting people back to work

CHALLENGE 6 How could we be better able to use London’s parks and green spaces to provide positive health and wellbeing benefits to

people affected by cancer?

• No one chose this challenge

• BUT green spaces & parks were mentioned repeatedly in previous sessions

• Worth keeping in mind…..

CHALLENGE 7 How can we collaborate across cancer, health, social care, corporate & non-profit sectors to provide ways to tackle key issues

affecting people like sleep and depression?

• ‘Same place, same problem’ - interactive map

• Would allow for searches based on the side effect/problem, rather than the cancer type

• Services would be shown on a map & rated by users

Flow Team reflections Feedback from event Review of prototypes Focus & plan for fourth event

Fourth Event PlanningFeedback from Capital C participants

• 50% of respondents would like to focus on what Capital C could look like in the future

• 30% would like to explore prototype solutions in further depth

• 15% would like to consider in more depth the London Strategy and what could be included in it.

Outline agenda

• Evolution & future of Capital C

• ‘Close the loop’ on ideas so far & get more input on opportunities and challenges to make them happen

• Develop a narrative that shapes the strategy

Calthorpe Project - 500m from King’s Cross, with indoor/outdoor space

Thank you!